What is I.H. and how does it affect families?

I.H. is invisible…but we are not!

I.H. is invisible…but we are not!

I.H. is invisible…but we are not!

I.H. is invisible…but we are not!I.H. is invisible…but

we are not!

Medication helps some people, but for others it means excruciating

brain surgeries, inserting shuntswhich often fail and have to be replaced or block causing life

threatening situations.

This shows how Doctors do a Lumbar Puncture. (L.P.)This drains off excess Cerebrospinal fluid, lowering brain pressure. It’s also used to diagnose IH and monitor the pressure too. Some IH patients have to have this done every weekThis procedure carries risks too; meningitis, infections and damage to the back.

“NothingSeems normal compared to other people’s lives.”

Young carerUSA

“I get sad and mad when Mommy isn’t home.”

“I get sad and mad w

hen Mom

my isn’t hom

e.”

Young carer, USA.

Thank you to all the young carers, IH patients and their families who helped to make this awareness campaign a reality. I truly appreciate your support.Together we can make a difference….so thank you!Victoria Lewin

For more information on IH please go to www.ihrfoundation.org

For online support please go to www.ihaveiih.org

For more information about Caitlin’s wish and our support resources, please go to www.caitlinswish.com