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EMBRACE ADVERSITY
An Inspirational “Decide Success” Presentation
JohnBaumann.com
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TANGIBLE TAKEAWAYS
REALIZE the MANY LOOPS and CURVES in the PARKINSON’S ROLLERCOASTER RIDE
YOU have the POWER to IMPROVE YOUR QUALITY of LIFE
CREATE YOUR SUCCESS PLAN AND PULL TOGETHER YOUR TRIBE
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Legal Disclaimer (kinda)
I am not a licensed doctor, personal trainer, nutritionalist, benefits attorney, yogi, psychologist, counselor, country singer, psychic, etc.
BUT I AM A 100% OPTIMISTPlease check with a licensed specialist before doing anything -
EXCEPT being happy.
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WE ARE NOT PARKINSONS
WE ARE THE SAME PERSON THAT WE HAVE ALWAYS BEEN (MAYBE
EVEN BETTER?)
RETREAT - OVERBOARD
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“PwP”
Change “PERSON WITH PARKINSONS”
… think about it
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“CAREGIVER”
CHANGE THE LABEL
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iCare about your health iCare that you eat healthy food iCare that you schedule time to exercise iCare that you take your meds on time iCare that you drink enough water iCare that you get enough rest iCare that we live as stress-free as possible iCare that we continue to do research
We are iCARE PARTNERS
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Journey
We are all on a journey. We face adversity. We have life-changing events. We have choices to make along the way. It’s those choices that define you.
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This is what I know is true
WE have the power to maintain your quality of our life
including slowing the progression of the disease!!
and, YES, even reversing, some of the symptoms of Parkinson’s!!!
Until there is a cure, that is the GOAL.
WE have the power to maintain your quality of our life
including slowing the progression of the disease!!
and, YES, even reversing, some of the symptoms of Parkinson’s!!!
Until there is a cure, that is the GOAL.
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WHO?
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LIFE BEFORE PARKINSONS
WE ALL HAD ONE Some were doctors, lawyers, executives,
accountants, politicians, actors, athletes, even a Pope, … every job you can imagine.
White collar, blue collar, all races, creeds and national origins (Parkinson’s truly is color blind).
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EmotionsThe phases or stages that each of us
have gone through, are going through or will go through.
These need to be identified, experienced, understood and transcended.
You can move beyond the more difficult stages.
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Finding Out
We all remember in excruciating detail
that fateful day when we got diagnosed.
We all know where we were, who was there, and how we felt:
A True Life-Changing Event
We all remember in excruciating detail
that fateful day when we got diagnosed.
We all know where we were, who was there, and how we felt:
A True Life-Changing Event
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Shock & DisbeliefRecognize it, we went into shock.
We are human. In some strange way, relieved that we
finally know the cause of the unexplained changes in us, that relief is short-lived and frequently results in disbelief.
Some describe it as “going through the motions”, others as feeling like a zombie.
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DENIAL
WE nothing to cause our illness. Parkinson’s can be misdiagnosed in the
medical communityThen there was no definitive confirmatory
test? Drugs work?
No wonder we get stuck in Denial
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DAVE PARKER
Former Pittsburgh Pirates slugger Dave Parker confirmed that he was diagnosed in February 2012.
He had previously only disclosed the news to family and a few friends.
"There's no fear," said Parker
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Isolation & Disclosing
Feeling that we are alone, and some of us truly may be, BUT by keeping it a secret, we may increase the degree of isolation.
When you are ready, it is time to disclose your illness: Your spouse, children, parents, workplace, friends.
Add knowledgeable Employment Lawyer & Benefits Attorneys to Your Team of Advisors.
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AWKWARDNESS
Offers of empathy and compassion are likely, however,
no one, but you knowswhat it is like to have your
individual form of Parkinson’sSNOWFLAKE
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ANGER We have a right to be ANGRY. You were not on a motorcycle without a helmet.
You had your seatbelt on at all times.
This is not our fault. So what? GET OVER ITAnger is poison to the soul.
Nourish your mind … body … soul …Do whatever it takes to let go of the anger.
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WHY ME?
You may blame a higher power. I have been a good person. I have not broken the golden rule. Well, guess what, there is no definitive answer to
this question that I know of.
Just like the anger, we just have to
Get Over It Look at yourself as you one of the “CHOSEN?”
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DEPRESSION Inevitably at some point you have to deal with
depression. BLACK HOLE. For goodness sake, you have a progressive,
degenerative, irreversible, neurological disease that likely will effect your ability to walk, think, swallow, have “relations”, drive, go to the bathroom and talk.
Someday they may have to put electrodes in your brain.
Just listen to the speakers at this event /look around you. GHOST OF CHRISTMAS YET TO BE
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GET OVER IT The chemical issue from the reduction of
dopamine or the awareness of your disease, you may become depressed.
If you can’t get over it on your own: talk to a friend, see a doctor, see a spiritual counselor, try eastern medicine, exercise more, eat better - just do something until you find what works for you.
Uncovering and Fulfilling your Purpose is the cure for “I have no reason to live.” - John Baumann
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WAKE UP CALL
Somewhere along the way occurs a transforming moment. FOR THE BEST
Keep your blinders off: 16 words of inspirationPick a day to start your new life
and GO FOR IT.
Remember: WE are NOT Parkinson’s. We are the same person we have always been. We just happen to be dealing with Parkinson’s.
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A PLAN
It’s never too late to develop a Life Plan.
Our new Job is to sustain the highest quality of our life for the remainder of our life.
This MUST BE our TOP PRIORITY.
It’s that simple, but the hardest thing that we will ever do.
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CREATING YOUR PLAN
Read the book or listen to the Audio-book
DECIDE SUCCESS: 12 Action Steps
(#1) ASSESS (Continual)(#2) END-VISION (PD) - DAILY ACTIONS
(#10) ATTITUDE - Power(available on Amazon.com and at JohnBaumann.com)
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MY PLAN
(1) Only eat healthy, nutritious, body-healing food.(2) Lots of Greens. Organic Veggies.
No animal based proteins. No fried food. No processed food. No soda, diet or otherwise.YES Lots of Water.
(3) Be-aware of the effects of SUGAR and SUGAR SUBSTITUTES
(4) Exercise every day inching more and more out of my comfort zone. MY TRIBE
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BikramLouisville.com
Crestwood, Kentucky
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Garrett Watson,RKC Certified Fitness Trainer
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Action Steps(5) Learn as much as you can about Parkinson’s:
DO YOUR OWN INTERNET RESEARCH to (DECIDE SUCCESS Action Step #4
PREPARE) prepare for each Doctor visit (AZILECT STORY).
(6) Put together a team of experts: movement disorders specialist, physical therapist/ trainer, nutritionist, even benefits & employment attorney
(7) Live in the moment. Cherish every day. Listen to your body: “Il dolce far niente.”
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DECIDE SUCCESS Chapter 7: Contacts & Resources
You can call it a team, or a tribe, or a village, we all need a group of experts to advise us on our best course of action.
WE may NOT be as able to make decisions as well as we once did:
PD has some effect on cognitive function. Be Aware: To some degree, you may still be
in Shock. I know I sure am.
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Social Security & Medicare
What you don’t know, CAN hurt you. Find a knowledgeable benefits attorney right
away to join your team as an advisor. Know what you would be entitled to right now:
LTD, Social Security Disability, etc. What happens if you wait? Think about how to bridge the gap in medical
coverage: COBRA?
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HowToLiveWellWithParkinsons.com
This might be a great fit for those diagnosed with Parkinsons and
Your iCarePartner: HowToLiveWellWithParkinsons.comIn fact, you can even stay with us:
www.airbnb.com/rooms/19935or we will come to you to give you the
benefit of our experience.
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Benefits (Silver Lining)Focus upon the Benefits of having PARKINSONS
(YES, I said it): Motivation to improve yourself - WAKE UP Use your new found “abilities”: STARE, TEXAS Express appreciation to your icare partner Develop lasting friendships in the PD community Humbling Experience:
Become more loving, kind and compassionate
Do something more purposeful with your life
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Daily Actions For me, every single day:(1) Take my meds(2) Eat Right (3) Exercise (Bikram Hot Yoga or CORE)(4) Research PD (AZILECT)(5) Seek out learning and teaching opportunities at
support groups, trade associations and corporate events.
(6) Identify individuals who are willing to sponsor talks at support groups in less populated locations.
(7) Live the DECIDE SUCCESS action steps
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POSITIVE ATTITUDE
In the face of all this, it is absolutely critical that we maintain a positive attitude.
LUCKIEST DAYPLACEBO EFFECTKATIE CHEERLEADING
DECIDE SUCCESS Chapter 10
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FAITH
IN YOURSELF IN OTHERS IN YOUR HIGHER POWER YOU HAVE A PURPOSE
DECIDE SUCCESS Chapter 12
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EMBRACE
Finally-
Find meaning in what has happened.
Truly believe, with your entire being, that it is “For the Best”.
EMBRACE ADVERSITY
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The ultimate result of enacting this plan is:
I am healthier now, over ten years into my PD,
than I ever was before I started exhibiting the
symptoms of PD.- John Baumann
The ultimate result of enacting this plan is:
I am healthier now, over ten years into my PD,
than I ever was before I started exhibiting the
symptoms of PD.- John Baumann
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iCARE PARTNERS
Interestingly, although you don’t have PD, you go through most of the same stages.
LIFE BEFORE PARKINSONS – you also had a full Life before your loved one got Parkinson’s.
FINDING OUT – we all remember that fateful day when we found out our loved one had Parkinson’s.
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iCARE Partners Experience
DISBELIEF – DENIAL ISOLATION – TELLING OTHERSAWKWARDNESS - ANGER - WHY DEPRESSION – WAKE UP CALL
A PLAN - END-VISION DAILY ACTIONS – ATTITUDE - FAITH
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Quality of Life
WE have the POWER to have the HIGHEST
QUALITY OF LIFE that we can POSSIBLY HAVE.
TAP INTO THAT POWER.
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You should laugh every day. You should spend some time in
thought. You should have your emotions
moved to tears, could be happiness or joy.
If you laugh, you think, and you cry, that's a heck of a day.
-Jim Valvano
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Life ain’t always beautifulSometimes it's just plain hardLife can knock you down, it can
break your heart….But the struggles make you
strongerAnd the changes make you wiseAnd happiness has its own way
of takin’ it's sweet time.
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No, life ain’t always beautifulBut I know I'll be fineHey, life ain’t always beautifulBut it's a beautiful rideWhat a beautiful ride.
- songwriter Gary Allan
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YOUR NEW “TITLE”
DRUM ROLL PLEASEEEEEE ……
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IT’S OFFICIAL
PARKINSON’S PROUD
REPEAT AFTER ME: I, state your name, am P.P.
IT’S OFFICIAL
PARKINSON’S PROUD
REPEAT AFTER ME: I, state your name, am P.P.
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IT’S OFFICIALIT’S OFFICIAL
PROUD PARKINSON’S
iCARE PARTNERS
PROUD PARKINSON’S
iCARE PARTNERS
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NOTHING IS IMPOSSIBLEA CURE?
MAN ON THE MOON HEART TRANSPLANTS DEEP BRAIN STIMULATION UNSOLVABLE MATH PROBLEM
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BOOK SIGNING with complimentary downloadable book and handouts:
THE ART OF LIVING WELL
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All John Baumann’s Books, CDs and DVDs AVAILABLE from his website: JohnBaumann.com
DECIDE SUCCESS also available from AMAZON.COM in paperback and audio-book form
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Michael J. Fox Quote:
“For everything this disease has taken, something of greater value has been given -
sometimes just a marker that points me in a new direction that I might not otherwise have traveled.”
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Michael J. Fox Quote:
“So, sure, it may be one step forward and two steps back, but, after a time with Parkinson’s,
I’ve learned that what is important is making that one step count, always ..”
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NOT “MY” PARKINSONS
JUST PARKINSONS THANK YOU PARKINSONS
MY MISSION:Force me to retire from
practicing law and sports (what I loved to do)
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INSTEAD:
develop my gift for inspiration presenter, writer & teacher live my purpose
I LOVE TO SHAREwith PD groups (actually all groups) in need of
inspiration and direction in
Embracing Adversity
INSTEAD:
develop my gift for inspiration presenter, writer & teacher live my purpose
I LOVE TO SHAREwith PD groups (actually all groups) in need of
inspiration and direction in
Embracing Adversity
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OUR NEXT MISSION
Match affluent people (with or without a connection to
Parkinsons) with support groups in lower
populated areas VISIT AND SPREAD MESSAGE
Embrace Adversity
Match affluent people (with or without a connection to
Parkinsons) with support groups in lower
populated areas VISIT AND SPREAD MESSAGE
Embrace Adversity
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REMEMBER ALWAYS
"Too often we underestimate the power of a touch, a smile, a kind word, a listening ear,
an honest compliment, or the smallest act of caring,
all of which have the potential to turn a life around."
- Leo Buscaglia
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With Infinite love and Gratitude,
John & Bernadette Baumann
EmbracingParkinsons.comEmbraceAdversity.com
JohnBaumann.com
With Infinite love and Gratitude,
John & Bernadette Baumann
EmbracingParkinsons.comEmbraceAdversity.com
JohnBaumann.com