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www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and Outreach Program, NCMHD, NIH Presented By 19th National Conference on Chronic Disease Prevention and Control “Health Disparities: Progress, Challenges, and Opportunities” March 1-3, 2005, Atlanta, GA.

Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

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Page 1: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

www.ncmhd.nih.gov

NATIONAL CENTER ON MINORITY HEALTH

AND HEALTH DISPARITIES

Francisco S. Sy, MD, DrPHChief, Community-Based Participatory Researchand Outreach Program, NCMHD, NIH

Presented By

19th National Conference on Chronic Disease Prevention and Control“Health Disparities: Progress, Challenges, and Opportunities”

March 1-3, 2005, Atlanta, GA.

Page 2: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

Public Law 106-525

The Minority Health and Health Disparities Research and Education of 2000

Public Law 106-525

The Minority Health and Health Disparities Research and Education of 2000

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NCMHD MISSION

To promote minority health and to lead, coordinate, support,and assess the NIH effort to reduce and ultimately eliminatehealth disparities. In this effort, the NCMHD will:

conduct and support basic, clinical, social science, and behavioral research

promote research infrastructure and training

foster emerging programs

disseminate information

reach out to minority and other health disparity communities.

To promote minority health and to lead, coordinate, support,and assess the NIH effort to reduce and ultimately eliminatehealth disparities. In this effort, the NCMHD will:

conduct and support basic, clinical, social science, and behavioral research

promote research infrastructure and training

foster emerging programs

disseminate information

reach out to minority and other health disparity communities.

Page 4: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

Public Law 106-525

Minority Health Disparities Research

Basic, clinical, and behavioral research on minority health conditions

PRIORITY FOR NCMHD

Page 5: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

NCMHD Programs

Page 6: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

Statutorily Mandated Programs: 2004 Highlights

Centers of Excellence (Project EXPORT) Community-Based Participatory Research and

Outreach Endowment Loan Repayment

Centers of Excellence (Project EXPORT) Community-Based Participatory Research and

Outreach Endowment Loan Repayment

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Purpose: Support biomedical and behavioral researchtraining for members of “health disparity populations”

Award Period: Not more than 5 years, pending annual approval of the NCMHD Director and availability of appropriations for the program

Purpose: Support biomedical and behavioral researchtraining for members of “health disparity populations”

Award Period: Not more than 5 years, pending annual approval of the NCMHD Director and availability of appropriations for the program

Centers of Excellence Program

Centers of Excellence in Partnerships for Community Outreach, Research on Health Disparities and Training (Project EXPORT)

Page 8: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

CENTERS OF EXCELLENCE FUNDING MECHANISMS

The R24 or Developmental Grant Awards: are targeted to institutions that are beginning to build their health disparity research programs. Funds will support activities designed to develop or enhance the infrastructure for scientifically meritorious research on the determinants of health disparities.

Page 9: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

Table 1. Project EXPORT Resource/Capacity Building Centers

(R24) Institutions1. Alabama State University 2. Black Hills State University 3. Bluefield State College4. Carlos Albizu University 5. East Tennessee State University6. Florida International University7. Governors State University8. Hampton University 9. Morehouse College 10. Shaw University 11. SUNY Downstate Medical Ctr.12. Temple University School of 13. Texas A&M Research Foundation

Medicine14. Texas College15. Texas Southern University

16. Texas Tech University Health Sciences Center

17. University of Alabama at Birmingham

18. University of Alaska, Anchorage19. University of Albany, SUNY20. University of Medicine and

Dentistry of New Jersey21. University of Michigan at Ann

Arbor22. University of Nevada, Las Vegas23. University of North Carolina,

Greensboro24. University of Northern Iowa25. University of South Alabama at

Mobile26. University of Texas, El Paso27. University of the Virgin Islands

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CENTERS OF EXCELLENCE FUNDING MECHANISMS

The P20 or Exploratory Grant Awards: are targeted to institutions that have research programs but need additional funding to develop a health disparity research program. Funds will provide a mechanism to strengthen the infrastructure for minority health and other health disparities research and training. In addition, program funds will provide resources to assist successful applicants in the development of innovative partnership models.

Page 11: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

Table 2. Project EXPORT Exploratory Centers

(P20) Institutions

1. Charles R. Drew University of Medicine and Science

2. Children's National Medical Center3. Clemson University4. Florida A&M University5. Henry M. Jackson Foundation for

the Advancement of Military Medicine

6. Howard University7. Howard University8. Jackson State University9. Medstar Research Institute 10. Meharry Medical College11. Morehouse School of Medicine

12. North Carolina Central University 13. Tuskegee University 14. University of Alabama at

Tuscaloosa15. University of California - Los

Angeles 16. University of Hawaii at Manoa 17. University of Illinois at Chicago

18. University of Oklahoma Health

Sciences Center19. University of Puerto Rico Medical

Sciences Campus 20. University of Texas at Brownsville21. University of Texas Health Science

Center, Houston

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CENTERS OF EXCELLENCE FUNDING MECHANISMS

The P60 Center Awards: are targeted for research-intensive institutions pursuing research in health disparities. Funds will be used to establish a health disparities research center.

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Table 3. NCMHD Project EXPORT Comprehensive Centers

(P60) Institutions

1. Albert Einstein College of Medicine2. Columbia University Health Sciences3. Emory University4. Johns Hopkins University5. Medical University of South Carolina6. Morgan State University 7. Mount Sinai School of Medicine8. New York University School of

Medicine of New York University9. San Diego State University 10. Shaw University11. South Carolina State University

12. University of Alabama at Birmingham13. University of Arizona14. University of California - San Diego15. University of California, Davis 16. University of California, Los Angeles17. University of Colorado Health Sciences

Center18. University of Maryland Baltimore

Professional School19. University of North Carolina20. University of Pennsylvania 21. University of Pittsburgh22. University of Texas MD Anderson

Cancer Center23. University of Wisconsin, Madison

Page 14: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

Administrative Core

Research Core

Community Outreach and Information Dissemination Core

Training/Mentoring Core

Minority Health and Health Disparity Education

Shared Resource Core

CENTERS OF EXCELLENCE PROGRAM STRUCTURE

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ALAZ

FL

GA

PR

TN

AK

CACO

IA

IL

MI

MS

NC

NY

OK

PA

SC

SD

TX

VA

WI

DCMD

NJNV

WV

U.S. VI

HI

Project EXPORT PROGRAM AWARDS Current Geographic Distribution of Awardees

71 Awards

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Purpose: To build Health Disparities Research Capacityand other health disparities research

Participants: Targets “Section 736 Public Health Service Act (PHS) Institutions with currently funded Programs of

Excellence in Health Professions Education for Underrepresented Minority Individuals (HRSA)

Eligibility: Non-research Intensive InstitutionsResearch Institutions with endowment investmentsbelow the ceiling established in Public Law 106-525

Purpose: To build Health Disparities Research Capacityand other health disparities research

Participants: Targets “Section 736 Public Health Service Act (PHS) Institutions with currently funded Programs of

Excellence in Health Professions Education for Underrepresented Minority Individuals (HRSA)

Eligibility: Non-research Intensive InstitutionsResearch Institutions with endowment investmentsbelow the ceiling established in Public Law 106-525

RESEARCH ENDOWMENT PROGRAM

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NCMHD Endowment Institutions

CRIEGHTON UNIVERSITY

UNIVERSITY OF MONTANA

HOWARD UNIVERSITY

UNIVERSITY OF KANSAS MEDICAL CENTER

MOREHOUSE SCHOOL OF MEDICINE

UNIVERSITY OF HAWAII AT MANOA

TUSKEGEE UNIVERSITY

XAVIER UNIVERSITY OF LOUISIANA

CHARLES R. DREW UNIVERSITY OF MED & SCIENCE

UNIVERSITY OF PUERTO RICO MED SCIENCES

FORIDA AGRICULTURAL AND MECHANICAL UNIV.

MEHARRY MEDICAL COLLEGE

UNIVERSITY OF CALIFORNIA SAN DIEGO

UNIVERSITY OF TEXAS HLTH SCI CTR SAN ANT

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FL

LA

TN

TX

HI NM

CA

MT

KS

GAAL

MT

NM

KS

TX

PR

DC

NE

ENDOWMENT PROGRAM AWARDS Current Geographic Distribution of Awardees

14 Institutions

Page 19: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

Health Disparities Research (HDR-LRP)Encourages health professionals to engage in basic, clinical or behavioral research directly relevant to health disparities issues.

The program seeks to recruit and retain highly qualified health professionals in research careers that focus on minority health disparities research related to the medically underserved.

The HDR program serves as an avenue for NIH to engage and promote the development of research programs that reflect the variety of issues and problems associated with disparities in health status.

Extramural Clinical Research (ECR-LRP)Encourages health professionals from disadvantaged backgrounds to conduct clinical research.  The emphasis on “clinical research”and on individuals from “disadvantaged backgrounds” highlight the need for the involvement of a cadre of physician scientist in clinical research to strengthen the twenty first century biomedical and behavioral workforce.

LOAN REPAYMENT PROGRAM

Page 20: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

LRP: Applications and Awards for 2004

422 Applications New: ECR-36 & HDR-264

Renewals: ECR-32 & HDR-90

243 Awardees New: ECR-19 & HDR-133

Renewal: ECR-24 & HDR-67

Page 21: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

LRP:Health Disparity Populations

Race/Ethnicity

HDR ECR Total

African-American

68 13 80

Asian American 16 7 23

Caucasian 75 14 89

Hispanic/Latino 22 8 30

Native American

6 1 7

Native Hawaiian/Pacific Islander

1 - 1

Unknown 13 - 13

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AR

AL

CA

CO CT

DC

FL

GA

IL

KS

MA

MD

MI

MN

MO

M

NCNJ

NM

NYOR

PA

SCTN

TX

VA

WI

AK

AZ

IN

KY

LA

NH

OH RIWV

IA

WA

NE

UT

MT

HI

Current Geographic Distribution of Awardees 466 Recipients

LOAN REPAYMENT PROGRAM

Page 23: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

NCMHD Community-Based Participatory Research Activities

Page 24: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

This subcommittee will provide advice to the OCBPRO. It has nine members from academe and community-based organizations with expertise in community-based participatory research (CBPR) and outreach. The subcommittee met for the first time on October 29, 2004 at NCMHD. It will meet twice a year with regular conference calls and e-mail communications in between the meetings.

This subcommittee will provide advice to the OCBPRO. It has nine members from academe and community-based organizations with expertise in community-based participatory research (CBPR) and outreach. The subcommittee met for the first time on October 29, 2004 at NCMHD. It will meet twice a year with regular conference calls and e-mail communications in between the meetings.

STRATEGIC PLANNING SUBCOMMITTEE

Page 25: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

Develop RFA to examine the interface between physical and psychosocial environments and their impact on health with special emphasis on racial and ethnic minority populations; start with 2 year planning grant, followed by a 5 year CBPR intervention grant, and another 5 year continuation/dissemination grant.

Fund training grant – two year postdoctoral fellowship on CBPR

Develop a community-based participatory research (CBPR) guide.

Develop RFA to examine the interface between physical and psychosocial environments and their impact on health with special emphasis on racial and ethnic minority populations; start with 2 year planning grant, followed by a 5 year CBPR intervention grant, and another 5 year continuation/dissemination grant.

Fund training grant – two year postdoctoral fellowship on CBPR

Develop a community-based participatory research (CBPR) guide.

Short Term Recommendations

Page 26: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

Fund training grant for junior faculty and community partners (e.g. continuing education, multiple sessions over time, with seed money for pilot CBPR projects)

Develop RFAs for CBPR studies on cultural determinants of health disparities; CBPR research methodology; studies on undoing racism in the health systems to increase access to care and quality of care; CBPR studies focus on prevention and addressing system-level factors & determinants across diseases

Fund CBPR partnerships for outreach & dissemination research; CBPR partnerships for sustainability & infrastructure support

Fund training grant for junior faculty and community partners (e.g. continuing education, multiple sessions over time, with seed money for pilot CBPR projects)

Develop RFAs for CBPR studies on cultural determinants of health disparities; CBPR research methodology; studies on undoing racism in the health systems to increase access to care and quality of care; CBPR studies focus on prevention and addressing system-level factors & determinants across diseases

Fund CBPR partnerships for outreach & dissemination research; CBPR partnerships for sustainability & infrastructure support

Long Term Recommendations

Page 27: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

NCMHD Community Participation in Health Disparities Intervention Research

The goal is to support community intervention research studies using CBPR principles to reduce and eventually eliminate health disparities in any disease or condition of major concern to the community (e.g. cancer, cardiovascular diseases, diabetes, HIV/AIDS, infant mortality) with emphasis on racial & ethnic minorities

CBPR is defined as scientific inquiry conducted in communities and in partnership with researchers. Community partners have the opportunity to be full participants in each phase of the study (from study conception to dissemination).

This initiative will start with a three- year planning grant, followed by a competitive five-year intervention grant, and conclude with a competitive three- year dissemination grant.

The goal is to support community intervention research studies using CBPR principles to reduce and eventually eliminate health disparities in any disease or condition of major concern to the community (e.g. cancer, cardiovascular diseases, diabetes, HIV/AIDS, infant mortality) with emphasis on racial & ethnic minorities

CBPR is defined as scientific inquiry conducted in communities and in partnership with researchers. Community partners have the opportunity to be full participants in each phase of the study (from study conception to dissemination).

This initiative will start with a three- year planning grant, followed by a competitive five-year intervention grant, and conclude with a competitive three- year dissemination grant.

Page 28: Www.ncmhd.nih.gov NATIONAL CENTER ON MINORITY HEALTH AND HEALTH DISPARITIES Francisco S. Sy, MD, DrPH Chief, Community-Based Participatory Research and

RFA-MD-05-002 NCMHD Community Participation in Health

Disparities Intervention Research The ultimate goal is to support community intervention research on health disparities that is jointly conducted by communities and researchers.

The total amount to be awarded is $ 4.5 million to 5 to 10 grantees.

This RFA will provide support for a three- year planning grant. The first year of the grant is devoted to partnership development, community needs assessment, identifying the disease/condition for intervention research, & planning the intervention methodology. A pilot intervention research study using the CBPR principles will be conducted during the second and third year.

The ultimate goal is to support community intervention research on health disparities that is jointly conducted by communities and researchers.

The total amount to be awarded is $ 4.5 million to 5 to 10 grantees.

This RFA will provide support for a three- year planning grant. The first year of the grant is devoted to partnership development, community needs assessment, identifying the disease/condition for intervention research, & planning the intervention methodology. A pilot intervention research study using the CBPR principles will be conducted during the second and third year.

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Facing the future ...

“The best way to Predict the future

Is to invent it”Alan Kay