Why raise awareness – to save lives?

Why raise awareness – to reduce disability?

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Acknowledgement

• Ms Jo Fen Liu• Miss Maya Sussman• Dr Sophie Wilne• Professor Richard Grundy• Professor Colin Kennedy• Professor Jacqueline Collier• Dr William Whitehouse• Dr Gabby Chow

• Professor Michel Coleman • Dr Thomas Chu• London School of Hygiene and

Tropical Medicine

• All Party Parliamentary Party Group• HEADSMART Clinical Champions• HEADSMART Project Team• Jan Dudley - Chair• Julia Trussler• Paul Carbury• Sarah Lindsell• Lucie Clough• Dr Peter Lachman• Ian Phillips• Dr Monica Lakhanpaul• Neil and Angela Dickson• HEADSMART Community Champions and

Volunteers

Sustainability

www.headsmart.org.uk

3 into 1

Public Awareness

Professional Awareness

Enhance the experience of consultation

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Sustainability

Professional Awareness - Confidence

How confident are you in your ability to recognise when a child might have a brain tumour?

Low?

Intermediate?

High?

How confident are you in your ability to recognise when a child might have a brain tumour?

Which of the following symptoms and signs do you think may occur in a child with a brain tumour?

Symptom : abnormal head position

HeadSmartHeadSmart Clinical Champions Clinical Champions

Median Symptom Interval

All patients 8.0 weeks (min 0, MAX 398.1) 1.8 months (min 0, MAX 91.6)Pre-launch 9.2 weeks (min 0, MAX 398.1) 2.1 months (min0, MAX 91.6)Post-launch 7.4 weeks (min 0, MAX 363.6) 1.7 months (min0, MAX 83.6)

Median Symptom Interval

All patients 8.0 weeks (min 0, MAX 398.1) 1.8 months (min 0, MAX 91.6)Pre-launch 9.2 weeks (min 0, MAX 398.1) 2.1 months (min0, MAX 91.6)Post-launch 7.4 weeks (min 0, MAX 363.6) 1.7 months (min0, MAX 83.6)

Symptom Interval by Month of Diagnosis (weeks)Symptom Interval by Month of Diagnosis (weeks)(Jan2011-Jan 2012, data extracted 30/01/2012)

P25 – Median – P75

Sample size <10

• Significant difference across 3 cohorts (Kruskal-Wallis test, p<0.01)

• No significant difference between pre- vs post-launch (Mann-Whitney U test,

p=0.136)

Median Symptom Interval (months)Median Symptom Interval (months)Multi-centre Studies in the UKMulti-centre Studies in the UK

P25 – Median- P75

30/01/201230/01/2012

Professional Awareness – Symptom Interval

What do you think is the average time from symptom interval currently experienced by children diagnosed with a brain

tumour in England?

<1 month1-2 month2-3 month3-4 month5-6 month>6 month

Professional Awareness – Symptom Interval

What do you think is the average time from symptom interval currently experienced by children diagnosed with a brain

tumour in England?

Delayed Diagnosis of Cancer: Thematic Review NPSA March 2010 / NRLS Groups 1 and 2

National Reporting and Learning System (NRLS)