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WHERE ARE THEY NOW:Children who are Deaf or Hard
of Hearing Identified by Newborn Hearing Screening in
Hawai`i
2005 Early Hearing Detection and Intervention ConferenceAtlanta, GA; March 4, 2005
Beppie J. Shapiro, Ph.D. andTaletha M. Derrington, M.A.
Center on Disability Studies, College of Education, University of Hawai`[email protected], [email protected]
Presentation Outline
Description of StudyInitial dataDiscussion
Hawai`i Follow-Up Study of Children with Congenital Hearing Loss
Goal: Describe communication, cognitive and social/emotional status and service history
Relate to type and degree of hearing loss
Collect demographic and family information
Study Eligibility
Born 1992-1998Permanent congenital hearing lossLived continuously in Hawai`iCo-occurring disabilities do not
preclude assessment
Study Process
Funding - CDC & HI DOH
IRB approvals Recruitment and
consents Parent completes
questionnaires & signs releases
Send record abstracts to providers
Determine eligibility Assess
communication, cognitive and social/emotional as necessary
Current Study Status
50 potentially eligible children enrolled
Information from 147 providers obtained
Initial data for NHS-identified children entered in database
Child Demographics
Ethnicity
0
1
2
3
4
5
6
7
8
Asian
Caucasian
Pacific Islander
Asian/Caucasian
Asian/Caucasian/Pac Isl
Hispanic/Native Am/Pac Isl
Child Demographics
0
1
2
3
4
5
6
7
1994 1995 1996 1997 1998
Mean age upon study entry 6.9 years (range 4.6-10.4, SD 1.8)
7 girls, 15 boys
Birth Year
Family Demographics
Mean household income 184% FPL (range 55-300%, SD 81%) Mean age of mother at birth of child 32 yrs. (range 16-42, SD
6.6)
0
5
10
15
20
English Cantonese Ilocano
012345678
<8th grade
H.S./GED
Some college
Bachelors
Mother’s Education Parents’ Language
Parent Report: How Loss Was Identified
Mean age of identification reported by parent was 9 months (range 0-72, SD 18 mo)
One child had a family history of hearing loss
NHS
At Birth by MedicalProfessional
By teacher/medicalprofessional whenolder
Child Service History
36% use hearing aids; no cochlear implants
Mean age of amplification 27 mo (range 2-72, SD 29)
Mean percent of the time child wears aid 65% (range 25-100%, SD 29%)
Three children use aids only at school
Child Service History
82% were enrolled in EI Mean age at first
intervention 1.5 yrs. (range 0-4.75, SD 1.36)
Mean length of enrollment in EI 1.8 yrs. (range 0-3, SD 0.89)
86% attended preschool at ages 3-4
86% currently attend public schools, 14% attend private schools
Child Development
95% communicate in spoken English; one child primarily uses ASL
18% had other developmental delays (cognitive, fine motor, gross motor)
Discussion
What questions do you have?
