What is Active citizenship Network

8/7/2019 What is Active citizenship Network

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The role of social

networking to support

policy initiatives

Teresa Petrangolini

Active Citizenship Network

International Experience Exchange for Patient organizations

Frankfurt 2/3 march 2011



PromotorsCittadinanzattiva

an Italian citizens¶organization started in1978

defense of citizens¶rights and thepromotion of civic

participation in Italyand in Europe

some 90.000members, voluntaries

30 years of experience

Active CitizenshipNetwork (ACN) A

European networkstarted in 2001

promotes theparticipation of citizens¶ organizations

in European andnational public policies

over 100 partner organizations from 30European countries.



ACN¶s mission is twofold:

to contribute to the development of a European Active

Citizenship;

to promote the participation of citizens¶ organizations

in European and national public policies.



ACN's strategy is to promote the point of view of European citizens in all public policies areas, focusingon healthcare, consumers and corporate socialresponsibility issues.

This point of view is always based on civicinformation, i.e. data collected and analyzed bycitizens¶ organizations themselves.

It is embodied in civic instruments such as: theEuropean Charter of Patients¶ Rights, the EuropeanCharter of Active Citizenship, the Guidelines for goodCSR partnerships in Europe, etc.



ACN website and newsletter are two essential networking andadvocacy tools.

www.activecitizenship.net

Webinar and blog to discuss with the associations of the network

Weekly appointment on the web

Skype and teleconference

Spot and audiovisual for the diffusion of initiatives

Facebook and twitter managed by Cittadinanzattiva http://www.facebook.com/event.php?eid=15187648486

6556 Twitter: EuropeanRightsday



Online documents to download

On-line format on partner section website to

download and insert directly data of projects

On-line forum questions, experiences



Flexible ACN's organization is based onpartnership rather than membership.Some 100 citizens¶ organizations from 30

EU. Open. The associations can participate

to the different strategies and projects,on the basis of agreements and without

other obligations



Funding ACN activities and projects are financed bypublic and private funds.

Public funds Most projects carried out by ACN are co-financed by the European Commission in theframework of calls for proposals.

Private funds ACN projects are also supported by

private foundations and companies through thecreation of partnerships. Coeporate socialresponsibility is one of the strategic instruments usedby ACN to reach its goals.



European Active Citizenship

Citizens¶ Initiatives:

1. draft a European Charter of Patients¶ Rights (2002)

2. transform Patients¶ Rights into standards for assessing

healthcare (2005)

3. promote, organize and celebrate annually a EuropeanPatients¶ Rights Day (from 2007)



1.European Charter of Patients¶

Rights Bottom-up policy initiative (from a national citizens¶

view constructing a European vision). Drafted in 2002.

Despite differences in healthcare systems the samerights are at risk in all EU countries. (Growingdisparity)

Not only rights of patients but rather of all citizens(including users, family members, vulnerablepopulation and all individuals residing in the EU) withrespect to healthcare.

Make concrete art.35 EU Charter of Fundamental

Rights high level health protection. (Lisbon Treaty)



The stages of the Charter

20022002

The contents of the charter were drafted andThe contents of the charter were drafted and

discusseddiscussed through the exchange of documentsthrough the exchange of documents

and meetingsand meetings with citizens associations of 12with citizens associations of 12

countries as well as with some experts¶ advice.countries as well as with some experts¶ advice.

The fourteen rights are an embodiment of The fourteen rights are an embodiment of fundamental rights and, as such, they must befundamental rights and, as such, they must be

recognised and respected independently of recognised and respected independently of

financial, economic or political constraintsfinancial, economic or political constraints.



The stages of the Charter

20032003

The diffusione of the Charter throughThe diffusione of the Charter throughinternet and mail, especially in the EUinternet and mail, especially in the EU

people. Translated in 16 languagespeople. Translated in 16 languages

Trough the participation in meeting andTrough the participation in meeting and

conferences at national (Barcellona,conferences at national (Barcellona,

Wien, Rome, London..) and EuropeanWien, Rome, London..) and European

level (Economic and Social Commitee)level (Economic and Social Commitee)



The stages of the Charter 2004/20052004/2005

The decision to transform the rights onThe decision to transform the rights on

measurablemeasurable standard for healthcare and ontools to assess the quality of services

To transform the traditional role of citizensfrom mere targets and users of healthservices to active citizens participating inthe health care policy.

To produce information on the actualimplementation of patients¶ rights at the EUlevel, based on a national Italian experience

of civic audit of health services



2. Patients¶ Rights: standard for healthcare

1. Establishing indicators: Patients¶ Rights Matrix: 174

indicators2. Collecting information through interviews,

questionnaires, checklists, focus groups, involvement

of target people

3. Involving associations as monitors to gather

information

4. Analyzing information, value given (standard)

5. Identifying critical elements and good practice

6. Reporting and Action Plan



Where information on patients¶rights can be found?

Data on diseases and injuries and on

availability of health services Data on health policies (where the issue of

patients¶ condition is definitely understimated)

Data on actual conditions of patients (time

required to obtain a diagnostic exam, patient-professional communication, availability of

health equipment)



2. Patients¶ Rights: standard for

healthcare

Detect phenomena that can be considered

indicators that assess the attention towards

patients¶ rights.

Experimented an approach to health care issues

based on the point of view of citizens as users of

health facilities.

Made it possible a first comparison of different

national situations from the point of view of the

attention to patients¶ rights.



2. Patients¶ Rights: standard for healthcare 1st experience 14 out of the 15 ³old´ EU member countries surveyed

(excluding Luxembourg)

42 hospitals visited (in 5 hospitals only directobservation because of the refusal of authorities toprovide information to partner organizations)

82 qualified informers interviewed

14 partner organizations operating at national levelinvolved monitoring hospitals, interviewing key personsand answering questionnaires



Assessing Patients¶ Rights2nd experience (2010-2011)

1. Public policies regarding health care in Europe are still

mainly focused on economic and financial matters.

2. Data coming from public sources (comparable officialdata and legislation on national situations) lacksignificant information on the concrete condition of patients, consumers and users facing health services.

3. 21 countries participation: Alliance building betweenorganisations and groups; producing civic informationfor policy input; proactive not only reactive: buildingpartnership; sharing and learning from each other



3. European Patients¶ Rights Day To promote an official day to talk about

patients rights in Europe.

To raise awareness of Members States on theimplementation of patients¶ rights.

To present and assess the respect of theserights each year.

To make commitment for concrete actions.



5° European Patients¶ Rights Day(11/18 ± 04 ± 2011)

³Putting Citizens at the center of EU

Health Policy´

The Presentation of Civic Report on Assessingpatients rights in Europe

Presentation of the good practices on citizens¶ andpatients¶ participation and Best Practices award

celebration.



Some results on Patients¶ rightsEuropean policy

EU Council Common Values and Principles in EU HealthSystems 2006

Resolution of EU Ministerial Council June 2006.

2 resolutions of European Parlament

Opinion on Patient¶s rights of Social Economic Committee

EU cross-border healthcare directive (2011)clarifies patients' right to access safe and goodquality treatment across the EU border, allowingmember state healthcare systems and patients tobenefit from it in a number of ways



Thanks for your attention!

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What is Active citizenship Network