West Riding Kidney Patients Association

(Formerly St James’s KPA & Leeds General Infirmary KPA)

An Association Run by Patients for Patients

Reg Charity 1154282 July 2018

Pictured above some of the renal transitional patients, assisted by

the KPA, who attended the Climbing Out adventure programme

held in Snowdonia, Wales

2

Letter of appreciation received from Rebecca Shelton Transitional Nurse and some of the transitional patients who attended !

Dear West Riding KPA, On behalf of myself and the young adult group, I would like to say a huge thank you for your very generous contribution towards our return transport for the Climbing Out trip.

The young adults had an amazing time and the Climbing Out team did a fantastic job of facilitating the week.

The group got to enjoy a jam packed week of activities including, kayaking, rock climbing, abseiling, coast steering, hill walking and some even conquered one of the highest mountains in the region! It was incredible to see the young people grow in confidence over the week and achieve things they never thought was possible. They certainly done Leeds proud and their sense of fun, team work and camaraderie made for a great week where friendships were built and future goals set.

I made sure to let everybody know the funding came from the KPA and the young people were very grateful. They have asked that I share a few of their experiences and appreciation with you;

“I would like to thank the KPA very much as I would not have made it to Wales without the organised coach….and the week is one I will never forget. I’ve met amazing people and friends for the future; I’ve got new confidence and want to do more things in life”.

“Having funded travel to Climbing Out made me feel special and cared about….thank you to the KPA”.

“This is the first time in 2 years I’ve had a break from my dialysis unit, I am really grateful for this opportunity, the week has meant so much to me”.

Many thanks once again,

Rebecca.

3

NKF Conference

Once again the Conference will be held at Britannia Hotel (formerly Hilton

Hotel) Blackpool on weekend 19th - 21st October and the association has kept

subsidy for the first 20 patients and their carers. Full details of the

Conference, including agenda are in NKF magazine and on the website

www.kidney.org.uk. (inc online payment)

Costs for the Conference are

Friday Night Single £75 Double £85

Saturday (Inc Gala Dinner) Single £130 Double £180

Sat B&B Single £75 Double £85

Day Delegate P/P £50

Gala Dinner P/P £25

It may, to some members, be more accessible financially to stay in one of the

many other hotels or B&B that Blackpool can provide and pay separately for

the conference as a day delegate (the Gala Dinner is an optional extra for

those booking elsewhere) which we will reimburse on attendance at the

conference. A receipt from the establishment will also be required for our

accounts.

There will also be an optional 2 course supper with tea/coffee & quiz on the

Friday evening at a cost of £14pp which the KPA WILL NOT fund.

There will be a wide & varied programme (inc exhibits from renal related

companies, KPA’s & other associated charities), with presentations from

Professionals and Patients on the Saturday culminating in a Gala Dinner with

workshops on the Sunday

Please confirm with Wendy Wootton 0113 294 0773 (between 1pm &

5pm) to confirm a subsidised place then book directly with the NKF

01909 544999 or online making full payment.

The KPA strongly suggest you take out insurance to cover none

attendance as the association WILL NOT reimburse fees for none

attendance regardless of the cause.

4

FUNDRAISING

Caraline Bytheway, a PKD patient is a qualified Insolvency Practitioner who

took on the position of Chair of the R3 Ladies Committee in February 2018.

R3 is the trade association for the UK’s insolvency, restructuring, advisory,

and turnaround professionals. They represent insolvency practitioners,

lawyers, turnaround and restructuring experts, students, and others in the

profession. As Chair of the Committee, I organise, with the help of the

committee, an annual Ladies Lunch, and we always select a charity to be a

beneficiary of the funds we raise. This year I put forward KPA.

The event took place at the Aspire in Leeds. Business professionals from the

industry took part in a charity prize draw and we raised the money from that.

We also promoted organ donation overall.

Below are pictures of the event where they raised an excellent £1,332.50.

Thanks go to Caraline and all those who supported her for organising and

raising a fantastic amount.

5

Emily Wormsley , daughter of Sue Varley organised a coffee morning to

celebrate Sue’s 25th Transplanterversary and raised an amazing £462 at

Lumby Coffee shop on the outskirts of Leeds.

The KPA thank Emily and all those wjho attended for their efforts and wish

her mum Sue many more years of a dialysis free life.

The KPA thanks everyone who, no matter how large or small, donates and helps towards the work we do!

6

RICHARD LOCKWOOD GEOFF CLARKE DOUGIE HARROP DENNIS GOY PHYLLIS MITCHELL JOYCE WRIGHT FLORENCE GREEN ALFRED HOYLE PHILLIP JACKSON JOAN ROBINSON ANGELA MARTELL ERIC PARKIN JOSEPH LEE ILLINGWORTH EVAN JONES JENNY ADAMS WALTER RADCLIFFE BIDDY CLAYTON

From May 2107 - July 2018

All donations are greatly received by the Association

without which we would not be able to support the Renal Department, Staff or Patients

Donations to the KPA from Family & Friends

In Memory of

7

Holiday Grant

Following a couple of successful grants paid to patients to allow them

quality time away from home, to see or be with family we will provide up to

£200 to 10 patients a year.

To apply for the grant you must be a KPA member and any successful grant

will be paid directly to the provider on receipt of a bone-fide booking

confirmation.

Dialysis patients may be eligible for full funding from the BKPA for

financial assistance on a range of issues which the KPA can assist in.

The Association have also taken steps to assist where possible, home dialysis

patients, whether on Haemodialysis or Peritoneal dialysis to make their

treatment rooms more hospitable or homely by providing financial

assistance to purchase items such as but not limited to storage, trolleys,

dripstands etc.

If you wish to take up such assistance please get in touch to discuss things

further

wrkpa@hotmail.co.uk

or

Tel 01484 640401

Change of Address

The Association does not receive any information from

the hospital where a change of address of surname occurs

Please help us to keep our database up to date where any

changes of address or surname occurs therefore keeping

our costs down

8

100 - CLUB DRAW ONE NUMBER GIVES YOU 4 CHANCES TO WIN WHILST HELPING KPA FUNDS

1st PRIZE £75

2nd PRIZE £50

3rd PRIZE £25

(BASED ON 100 MEMBERS)

To purchase a number (£12 for 4 DRAWS) please fill out the form below &

send with remittance, to

PAMELA ISBELL

8 RAVENSWORTH CLOSE

LEEDS

LS15 8UU

PLEASE MAKE CHEQUES PAYABLE TO WEST RIDING KPA

Name …………………………………………………………..

Address …………………………………………………………..

…………………………………………………………..

…………………………………………………………..

Postcode ………………………………………

E-mail …………………………………………………………..

Tel No …………………………………………………………..

Total No’s Total to

Required @£12 each …… Pay £ ……..

June 2018 Draw winners:

1st P Scholefield No 23 £50 2nd I Harrison No 71 £35

3rd L Howard No 50 £20

Thank you to All who participate it is greatly appreciated

9

YORKSHIRE WILDLIFE PARK TRIP

Sunday 9th September

Leave St James 9:30am

Leave Park 4pm

Patient/1st Guest Free

Other Adults £15

Children 2-15 £5

Please ring Judy Pears 01943 511992/07480945780

between 6pm and 9pm before Monday 3rd September

Please note the park has mainly flat undulating stone paths and covers a

wide area. A limited number of manual transit wheelchairs are available to

borrow free of charge (subject to availability). If you would like to book a

wheelchair for your visit please call our Visitor Services team on 01302

535057

YORK BOAT CRUISE on the OUSE

&

FISH/CHIP MEAL

Join us for a leisurely boat trip on the river Ouse (wheelchair friendly) then

onwards to Thompsons Fish Restaurant on the A64 for Fish & Chips, Bread &

Butter and tea/coffee

Sunday 14th October

Leave St James - 9:30am

Patient & 1st Guest Free

Other Adults £20

Children U12 £10

Children 12– 15 £15

Please ring Judy Pears 01943 511992/07480 945780 between 6pm and 9pm

10

As a Registered Charity, formed on 1st January 2014 the WRKPA seeks to

bring about and be involved in a wide range of initiatives that offers support

to all renal patiwnts that have or are being treated in Leeds and surrounding

areas

The KPA aims to

Organise & Subsidise Social Events

Raise Awareness of & Increase Organ Donation

Help & Support People with Kidney Disease, Dialysis

& Pre/Post Transplant Treatment

Improve the Care Patients Receive

Improve & Support Service Delivery Liaising with

Renal Service Management

Support Research into Renal Disease

KPA Committee Members

Officers;

Chair - Fred Gungaram

Vice Chair - David Spink

Treasurer - Wendy Wootton

Secretary = Paul Taylor

Trustees;

Geoff Smith Catherine Fernandez

Claire Corps Judy Pears

Website Organiser - Emma Boulton

All Officers/Trustees can be contacted at

wrkpa@hotmail.co.uk

11

IMPORTANT INFORMATION – PLEASE READ

To comply with the new General Data Protection Regulations (GDPR) the

West Riding Kidney Patient Association (WRKPA) requires your consent to

contact you.

To continue to receive communication from the WRKPA please complete the

form below, sign, date it and return to: Geoff Smith, 35 Cornwall Crescent,

Bailiff Bridge, Brighouse, HD6 4DS.

PLEASE NOTE: If you do not wish to return the form below, your name,

address and any other contact details that you have previously provided will

be removed from the WRKPA database. You will still remain a member, but

not receive any communications from WRKPA including the magazine.

I consent to the WRKPA contacting me by post (WRKPA preferred method of

contact) yes/no

I consent to the WRKPA contacting me by telephone yes/no

I consent to the WRKPA contacting me by email yes/no

I consent to receiving Fundraising items from WRKPA on behalf of the

National Kidney Federation (NKF) – such as draw tickets yes/no

Name ……………………………………………………….

Address ……………………………………………………………………………………………………...

………………………………………………………………………………………………………………………

……………………………………………………………………………………………………………………...

Tel No ………………………………………………

EmailAddress ……………………………………………………

I understand that this consent is valid for 5 years and should I wish to opt out

at any time I will inform the WRKPA (either by phone or in writing).

I understand that my personal data will not be shared with any third parties,

unless consented to.

12

THE ASSOCIATION RELIES SOLELY ON

DONATIONS RECEIVED FROM

THE GENERAL PUBLIC TO SUPPORT PATIENTS

& ASSOCIATED RENAL DEPARTMENTS

SPONSORSHIP FORMS, T-SHIRTS, RUNNING

VESTS ETC CAN BE PROVIDED TO

SUPPORT FUNDRAISING EVENTS

WE ALSO HAVE A JUSTGIVING PAGE

AT

www.justgiving.com/wrkpa

DO YOU SHOP ONLINE??

WITH OVER 2700+ STORES YOU CAN SUPPORT

THE KPA AT NO EXTRA COST TO YOURSELF

JUST VISIT

www.easyfundraising.org.uk

SEARCH FOR WEST RIDING KPA,

SIGN UP AND GET SHOPPING

All Donations should be sent to Wendy Wootton, 296 Oakwood Lane

LEEDS, LS8 3LE Cheques payable to West Riding KPA

THANK YOU FOR YOUR CONTINUED SUPPORT