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NHS Midlands and East PowerPointWest Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
How can we help people with learning disabilities and their family carers to look after their weight?
What do we need to do to support people?
How can we work together to make a difference?
Ranjit Senghera
Programme specialist
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West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Valuing People Now vision
‘All people have the right to lead their lives like any others, with the same opportunities and responsibilities, with the right support to make possible and be treated with the same dignity and respect”
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Areas to cover?
Values of resources for commissioners and providers
What differences the resources can make?
Ideas for Implementation
The background to the programme and the development of the resources – aims, objectives, partnership working
Strategic context of the Framework for action and charter
Values of the framework and charter for commissioners and providers
What differences the resources can make to partnerships, organisations and individuals
Ideas for implementation and efficiencies
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West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Background and context
Charter has ‘Valuing people Now’ vision at the heart and approach was innovative:
strives to tackle health inequalities related to weight management in people who have learning disabilities and works on ways to improve quality of life and outcomes.
why should we take this approach?
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Why we should care?
The Facts:
One person in three (1 in 3) with a learning disability who are obese (compared to one in five (1 in 5) of the general population)
This means 328,333 people with Learning disabilities being obese in England.
What else do we know?
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
The real facts?
Women, people with Down’s syndrome, people of higher ability and people living in less restrictive environments are at increased risk of obesity .
Less than 10% of adults with learning disabilities in supported accommodation eat a balanced diet, with an insufficient intake of fruit and vegetables.
Carers generally have a poor knowledge about public health recommendations on dietary intake.
Over 80% of adults with learning disabilities engage in levels of physical activity below the Department of Health’s minimum recommended level, a much lower level of physical activity than the general population (53%-64%),
People with more severe learning disabilities and people living in more restrictive environments are at increased risk of inactivity.
The rate of Type 2 Diabetes in people with learning disabilities is double that of general population.
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Where to start?
We know that better support and services could be provided for these individual’s
This charter sets out to raise the profile of the needs of this population regarding
weight management services,
support commissioning and prioritisation and
provide clear standards for service deliverers to adhere to through contracting processes.
This approach will empower people with learning disabilities, their carers and family members to make healthy choices the norm no matter what their circumstances.
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Aims of the Charter
The implementation of the charter will:
Improve practice relating to the commissioning and delivery of weight management and related services for people with learning disabilities, their carers and families.
Standardise the services offered to people with learning disabilities, their carers and families regarding weight management.
Advise on the standards that are expected when commissioning and delivering services to people with learning disabilities to support them in maintaining a healthy weight.
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
The Charter aims to:
Promotes and supports the prioritisation of the needs of people with Learning Disabilities regarding the commissioning of specialist and community services to aid weight management.
Strengthens commissioning processes and advises on the standards expected when delivering services.
Aids the determining of strategic direction and the requirements for contracting services that maximise opportunities for people with learning disabilities, their carers and families to be supported to maintain a healthy weight.
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
The Rights and Values of the Charter
People have the right to a healthy life and to be given the appropriate support to achieve this.
All people with a learning disability, their families and carers have an equal right to support and advice that will enable them to make healthy lifestyle choices and maintain a healthy weight.
This support should be person centred with services that are developed to take into account individuals communication needs.
Services should be individually tailored, flexible, responsive to changes in individual circumstances and delivered in the most appropriate local situation. Services should be delivered by individuals with the right values, attitudes, training and experience.
People have the right to environments that enable individuals, their families and carers to make healthy choices regarding lifestyle.
Services should be developed on the principles of positive behavioural support and other evidence based approaches that will respond to all the needs of the individual.
All services and professionals delivering services should put valuing the lives of people with a learning disability at the heart of their work and provide a high standard of care and support regarding weight management.
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Who charter aimed at?
Support organisations to meet legislative frameworks of the Equalities Act 2010
Disability discrimination Act
Disability Equality Duty – all public bodies to make reasonable adjustments to meet needs
Public Health, NHS and Social care Commissioners and strategists
Front line health services
Service deliverers (service managers)
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Charter allows you to..
Work done for you:
Commissioners and contracts statements
CQC mapping against meeting CQC essential standards for quality and safety
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
WEST MIDLANDS FRAMEWORK FOR ACTION
Learning Disabilities and Obesity
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Framework for Action
Framework is:
A partnership approach of DH West Midlands and its partners in 2009/10 to develop a focus on the needs of people with learning disabilities regarding:
maintaining a healthy weight,
making healthy food choices
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Framework s focus:
Gaining an understanding of the agendas, policies and challenges effecting people with learning disabilities
Developing an understanding of the relationship between obesity and learning disabilities
Understanding the challenges of maintaining a healthy weight for people with learning disabilities
Developing knowledge of the programmes of work happening already to tackle obesity within this specific group in the community
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Partnerships are important – regional seminar
DH West Midlands Public health and social care teams
West Midlands public health observatory
NHS West Midlands SHA and Pan-WM
Specialists practitioners in LD, physical sport, transport, dance, healthy eating, obesity, commissioners
People with learning disabilities and their carers
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
WM Framework for Action
Strategic hooks and leavers to support work
Identified areas of work in the region and identified good practice
Looked at challenges facing people with Learning disabilities and their carers in accessing and participating in physical activities, healthy eating
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Context of framework
Facts on Learning disabilities and Obesity
Numbers are scarce as recording is low, yet people with Learning disabilities is 2% of population
Sports and recreational activities – access is low, therefore take up is low
Diet and nutrition – people with LD have access to limited range of foods, people in traditional long stay units and nutritional problems
People with Prader-Willis – syndrome where people with a LD have an insatiable appetite and eat excessively even when full, often leading to chronic obesity.
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Strategic Policy context
Rights, Independent Living, Control and Inclusion
The NHS White Paper, Equity and excellence: Liberating the NHS (2010)Healthy Lives, Healthy People: Our strategy for public health in England (2010)
Greater control to people over their health and care
Greater accountability for patient outcomes for both the NHS and Social care
Health and care professionals being encouraged and supported to work more effectively across boundaries to achieve improved outcomes.
Social Care White Paper 'A vision for adult social care: Capable communities and active citizens'
Public Health White Paper; Healthy Lives, Healthy People (2010)
Valuing people now 2009 – Making it happen
Rights – people with learning disabilities and their families have the same human rights as everyone else
Independent living – all disabled people should have greater choice and control over the support they ned to go about their daily lives, greater access to housing, education, employment, leisure and transport opporotunities and to participation in family and community life
Control – about being involved and in control of decisions made about their life. Its about having information and support to understand the different options and their implications , so people can make informed decisions about thie own lives.
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West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Policy context
The Quality, Innovation, Productivity and Prevention (QIPP) programme
Forthcoming Green Paper on Special Educational Needs and Disability
Healthy Lives, Healthy People: A call to action on obesity in England
The 2011 update for the UK Physical Activity Guidelines
NHS Operating Framework 2012/13
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Coalition commitment
The Coalition Government have stated their commitment to fulfil the priorities laid out by the previous Government in the Valuing People Now strategy, reiterating a pledge for equity, excellence and personalised services for all people with learning disabilities. The vision stated in Valuing People Now is reinforced in the valuing People Now Summary Report as;
“All people have the right to lead their lives like any others, with the same opportunities and responsibilities, with the right
support to make this possible and be treated with the same dignity and respect”
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Policy context
The Obesity and Physical Activity papers are due to be published in spring 2011. The document also makes links to the Local Transport White Paper and the Natural Environment White Papers that are due out imminently.
The new Public Health Service will focus on key outcomes developed into a framework that will include 5 domains:
Health protection
Preventing ill health
Healthy life expectancy
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Mapping to Outcomes
The Public Health Outcomes Framework
NHS Outcomes Framework
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Value of Charter and resources
Commissioners and strategists
Learning Disability Partnership Boards
Clinical Commissioning Groups (CCGs)
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Differences resources can make?
Turn evidence into action
Examples from Telford and Coventry
Examples of how the Charter and the Framework for action can work to make a difference to the lives of people with learning disabilities and their carers
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Ideas for action: Process for organisations and partners
West Midlands Strategic Health Authority
NHS Midlands and East is a cluster of SHAs comprising NHS East Midlands, NHS East of England and NHS West Midlands Chair: Sarah Boulton Chief Executive: Sir Neil McKay CB
Thanks....