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Consumer and Community Engagement Unit Update Issue 25 July 2017 Consumer & Community Newsletter Consumer and Community Engagement Unit The Women’s and Children’s Health Network (WCHN) is embracing many methods of partnerships, in particular a method known as participatory editing. Participatory editing is a way of enhancing consumer input and maintaining an informed community, by giving control to the consumer to write articles on behalf of the organisation. The method is strongest in the mental health sector and now growing in other health contexts such as acute care. Participatory editing enables maturing beyond consumers simply sharing their experience or story in healthcare. It empowers consumers to interpret and share their understanding of health literature and contribute to new literature and understandings. WCHN consumers are helping to define the news and contribute to the collective conscience and knowledge base of the organisation rather than just being users. Participatory editing takes on four forms in WCHN: Crowdsourcing: The WCHN 24/7 crowdsourcing space allows the organisation to partner with consumers to process, edit, analyse and contribute to health literature. Reviewing and contributing to health information: Daily, our staff and consumers are actively working together at local ward and service levels to co-design health information and literature that goes out to targeted or wider public audiences. Increasingly, millennials ‒ through our Youth Advisory Group ‒ are shaping digital strategies like vlogs. A concrete example of this was the vlog about the Youth Guide to Places and Spaces. Reviewing and contributing to procedure development: A recent development is a process now underpinning consumer involvement in the review and development of procedures. A prompt to invite consumer participation in new WCHN procedure development exists. Where it is deemed appropriate, a similar process to the development of health information is enacted. Consumers at a ward or service delivery level review the procedure and provide helpful hints. Editing and writing consumer articles and blogs: This is evidenced by the number of articles our consumers and staff are creating for the monthly consumer memo. Participatory culture is about tapping into all available human intelligence and shaping narratives that form part of the overall story of the network. There are some challenges. As the 24/7 consumer culture grows, our organisation must ensure that our participatory editing culture is: portable personalised participatory. There is a growing appetite for consumer engagement in the development of literature. The Consumer Governance Structure is asked to address new ways of thinking and to provide guidance about how our information can be accessed on smartphones or tablets (portable), is customised to meet the target audience’s needs (personalised) and contributions by our consumers has the space to grow (participatory). In this edition you will find examples of participatory editing evidenced by Jackie’s reflection on health research. Allan J Ball Director, Consumer and Community Engagement

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Page 1: WCHN Consumer and Community Newsletter - … · Consumer & Community Newsletter Consumer and Community Engagement ... example of this was the vlog about the Youth Guide to Places

Consumer and Community Engagement Unit Update

Issue 25 – July 2017

Consumer & Community Newsletter

Consumer and Community Engagement Unit

The Women’s and Children’s Health Network (WCHN) is embracing many

methods of partnerships, in particular a method known as participatory

editing. Participatory editing is a way of enhancing consumer input and

maintaining an informed community, by giving control to the consumer to

write articles on behalf of the organisation. The method is strongest in the

mental health sector and now growing in other health contexts such as

acute care. Participatory editing enables maturing beyond consumers

simply sharing their experience or story in healthcare. It empowers

consumers to interpret and share their understanding of health literature

and contribute to new literature and understandings. WCHN consumers

are helping to define the news and contribute to the collective conscience and knowledge base of

the organisation rather than just being users. Participatory editing takes on four forms in WCHN:

Crowdsourcing: The WCHN 24/7 crowdsourcing space allows the organisation to partner

with consumers to process, edit, analyse and contribute to health literature.

Reviewing and contributing to health information: Daily, our staff and consumers are

actively working together at local ward and service levels to co-design health information and

literature that goes out to targeted or wider public audiences. Increasingly, millennials ‒

through our Youth Advisory Group ‒ are shaping digital strategies like vlogs. A concrete

example of this was the vlog about the Youth Guide to Places and Spaces.

Reviewing and contributing to procedure development: A recent development is a

process now underpinning consumer involvement in the review and development of

procedures. A prompt to invite consumer participation in new WCHN procedure development

exists. Where it is deemed appropriate, a similar process to the development of health

information is enacted. Consumers at a ward or service delivery level review the procedure

and provide helpful hints.

Editing and writing consumer articles and blogs: This is evidenced by the number of

articles our consumers and staff are creating for the monthly consumer memo.

Participatory culture is about tapping into all available human intelligence and shaping narratives

that form part of the overall story of the network. There are some challenges. As the 24/7

consumer culture grows, our organisation must ensure that our participatory editing culture is:

portable

personalised

participatory.

There is a growing appetite for consumer engagement in the development of literature. The

Consumer Governance Structure is asked to address new ways of thinking and to provide

guidance about how our information can be accessed on smartphones or tablets (portable), is

customised to meet the target audience’s needs (personalised) and contributions by our

consumers has the space to grow (participatory). In this edition you will find examples of

participatory editing evidenced by Jackie’s reflection on health research.

Allan J Ball

Director, Consumer and Community Engagement

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NOTICEBOARD Save these dates! July 2017

1 July newsletter launched.

3-9 Surgical Services Listening Post. A deep dive into staff communication with the

consumer and carer in Allied Health of the WCHN.

4 Child and Family Health Services, Consumer

Advisory Committee

Members only. Executive

Boardroom, WCH Campus

11am–1pm.

7 NAIDOC Family Fun Day

All welcome to join WCHN.

Tarntanyangga (Victoria Square).

11am – 3pm.

RSVP to Allan Ball.

7 Consumer Feedback on Experience

Surveying.

WCH Campus.

10 Youth Advisory Group. Members only. Hospital School,

WCH Campus 10am-12pm

13 Roving Consumer Coffee Club. 10am–11:30am. WCH Campus.

13 Consumer Feedback on Experience

Surveying.

WCH Campus.

18 Kids Klub Alan Crompton Boardroom.

10am–12pm.

20 Consumer Feedback on Experience

Surveying.

WCH Campus.

24 School Ambassador Program. East Para

Primary School.

East Para Primary School.

27 Consumer Coffee Club. 10am–11:30am Café Level 2,

WCH Campus.

27 Consumer Feedback on Experience

Surveying.

WCH Campus.

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Better health care for women, children and babies $592 million is being invested into the health of South Australian women, children

and babies.

$528 million will be invested to build a new, world-class Adelaide Women’s Hospital,

providing Australia’s highest standard of maternity and newborn services.

The 2017/18 State Budget also included an additional $24 million over two years to an overall

$64.4 million investment to upgrade the existing Women’s and Children’s Hospital site.

A plan for the relocation of the new Adelaide Children’s Hospital will be announced by the end of

2019.

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A new world-class Adelaide Women’s Hospital

A new $528 million state of the art Adelaide Women’s Hospital will be built, co-located with the

new Royal Adelaide Hospital within the new South Australian Health and Biomedical Precinct.

The new Adelaide Women’s Hospital will continue to provide tertiary level maternity, neonatal

and gynaecological services that are currently offered at the existing Women’s and Children’s

Hospital site in North Adelaide.

It will support complex maternity services with access to adult intensive care and sub-specialty

services. It will also have access to the new Royal Adelaide Hospital’s helipad to enable rapid

access to clinical care.

Perinatal infant mental health services currently delivered at Helen Mayo House will be relocated

and expanded from the current Glenside site.

The new Adelaide Women’s Hospital will be part of a single-service, multi-site Women’s and

Children’s Health Network, which will continue to deliver the State’s highest level of care to

babies, children and women. It will exemplify outstanding clinical service, education and

research.

Construction is expected to be completed by 2024.

$64.4 million investment into the existing Women’s and

Children’s Hospital site

The first works will involve the development of a new Medical Day Unit incorporating renal

dialysis and day medical treatment spaces for children. It will provide 18 treatment bays as well

as improved spaces for consulting rooms, staff facilities, medication, treatment and waiting areas.

The South Australian Government will announce its plan for the development of a new Adelaide

Children’s Hospital, located within the South Australian Health and Biomedical Precinct, by the

end of 2019. It is expected the children’s services will remain at the current site for at least 10

years until relocation to a site in the South Australian Health and Biomedical Precinct is

completed.

For more information please visit the www.sahealth.sa.gov.au/yourlocalhospital

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EDUCATION & CAPACITY DEVELOPMENT

Immunisation Advisory Committee

Expression of Interest: 1 Consumer Representative for an immunisation advisory

committee.

The committee will support the WCHN to implement an excellent, safe and quality immunisation

system that has a clear direction, clinical leadership and is accessible for all. The SA Local

Health Networks Immunisation Program Advisory Committee (LHNIPAC) is to ensure the delivery

of an immunisation program that is consistently delivered across the Local Health Networks to

help reduce hospitalisations from infectious diseases.

Meetings

One-hour meetings held quarterly at the

Women’s and Children’s Hospital (WCH) campus

Executive Office.

Submitting an expression of interest

Please submit your expression of interest to Allan

Ball, Director Consumer and Community

Engagement by Friday, 7 July 2017. All

applicants will be asked to attend an informal

meeting to learn more about the role. For further

information please contact Allan on 8161 6935

or via email.

Consumer Training Calendar 2017

Full 2017 training calendar is available on the web. Check it out.

Grand Rounds (Lecture series on innovation, health and

research)

All consumer representatives signed up to the database have access to the weekly Grand

Rounds. A Grand Round is a lecture series that provides WCHN staff with education on a range

of health topics relating to our core business. They are held every Wednesday in the WCH

Queen Victoria Lecture Theatre from 12pm–1:30pm. This is a voluntary task that consumer

representatives can opt in to attending. Family and friends are welcome to join you.

DATE TOPIC

5 NAIDOC Day

12 Documentation your best friend or worst enemy

19 The Legacy of the Anaesthesia Events at Pearl Harbor, 7th December, 1941.

Dr John Crowhurst

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BASECAMP NEWS

E-Book Club July 2017

5 elements of a successful

patient engagement strategy

by Athena Health.

Journal Article: Carer

Experience, principles and

framework from Planetree.

July 2017 direct

Consultation

Family support in a women's and children's healthcare setting is an important factor that

contributes to a person and family centered care philosophy. The jury wants to know: What does

person and family centered care family support look like for the WCHN to ensure that caregivers,

carers and support people are provided with excellent support?

Survey Link: https://www.surveymonkey.com/r/BTYQ2WP

Not a member of Basecamp?

Visit our website to learn how to get involved. Invitations are open to WCHN staff, consumers,

caregivers, family members and community members. To provide feedback to the survey

without signing up to Basecamp click here.

We want to hear about your hospital experience

Please provide your letterbox feedback by answering 3 questions at

www.wch.sa.gov.au.

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CONSUMER GOVERNANCE UPDATES

WCHN Citizen Jury

We welcomed new juror, Cece on 9 June, with two new cases for review including: Visiting hours at the WCH Campus

The Choosing Wisely campaign.

Prior to welcoming expert witnesses, the jury heard about the progress from two previous

verdicts, including the work that has occurred since December 2015. This verdict stated "The jury

recommended a parent checklist regarding medication, carefully worded to encourage parents to

feel comfortable to ask questions when medication is being administered". The jury learnt that

the project has been rolled out, been evaluated and will move into a new phase later in 2017, in

which consumer representatives will again be sourced to help plan for the work.

One of our more recent verdicts: "To make the right decision (not to smoke) the easiest thing to

do is to create a ‘Destination Smoke-Free’ at the Women's and Children's Hospital. The WCHN

Citizen Jury wants to respect the healthcare rights of the unborn child, children, young people

and women who access the campus. In conjunction with the WCHN Person and Family Centred

Care Charter, a community campaign and strategy is recommended, to eliminate people smoking

around the hospital. A mixed methodology approach will be adopted, which values

compassionate, health promotion and compliance perspectives." was given an update.

A project advisory group has been established and consultations have occurred with Adelaide

City Council, St. Andrews Hospital (who have recently rolled out a smoke-free campaign) and

Drug and Alcohol Support Services South Australia. A project proposal that looks at multiple

strategies, including compliance and health promotion has been drafted and awaiting

approval. A consumer representative will be asked to join the group and the health literacy group

will be asked to review the health promotional campaign.

Two cases were discussed at this month’s Citizen Jury. The first was on visiting hours.

44 consumers submitted their experiences on WCH visiting hours. All of the stories were

reviewed and considered as part of the verdict creation. In addition, directors from all three

hospital divisions gathered with the Chief Operating Officer to understand the issue from multiple

perspectives.

It was felt that unrestricted presence and participation of a support person can improve the safety

of care, and enhance the person and family centered care philosophy. Stories from consumers

and caregivers indicated that better awareness of visiting hour processes was needed and more

control regarding who can visit them in hospital and when. The jury felt it was important to

support flexible visiting arrangements and learned about the flexibility that currently exists. The

verdict put forth was:

To ensure that the Women’s and Children’s Hospital campus has processes that allow

flexible visiting arrangements to meet the needs of our consumers (when it is safe to do

so) the Jury recommends to:

1.1 - Review communication on visiting arrangements by developing appropriate

communications inclusive of (internet and internal communications) including a welcoming

and respectful script/charter for clinical and non-clinical staff to refer to. A group with nursing

divisional directors and members of the jury will meet with Manager Media and

Communications.

1.2 - Ensure infrastructure and supports are available to provide flexible visiting

arrangements by exploring the feasibility of electronic billboards within wards

or lift areas.

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1.3 - Once 1.1 and 1.2 have been implemented, monitor the effectiveness of flexible visiting

arrangements by coordinating an impact statement through consumer experience feedback.

The second case for review involved the Deputy Director, Medical Services, Dr James Rice. He

walked the jury through the Choosing Wisely campaign. Choosing Wisely is a program that

supports conversations with consumers and clinicians to ensure that there is a system of safe,

supportive and accurate testing, procedures and treatments. This is because sometimes tests,

treatments, and procedures do not add value. WCHN signed up to this in April 2017, joining a

growing international community that has bought into the "choosing wisely approach". Tests and

treatments can expose the consumer to undue risk of harm and unnecessary costs. This can

lead to more frequent and invasive investigations. Choosing Wisely is about managing

expectations from the consumer and the clinical staff. Most consumers agree with the concept of

reducing unnecessary tests, this was not compatible with their attitudes towards medical tests for

themselves. Choosing Wisely is about guiding clinicians and the community about what is the

value of the proposed test, treatment and procedure. The jury spoke about how the WCHN can

embrace the program and recommended:

Choosing Wisely is an approach to shared decision-making for medical treatments, tests

and processes. The jury supports the roll out of the campaign and recommends:

The “Choosing Wisely” campaign to be an integral part of the excellent care and person and

family centred care frameworks.

Two consumer representatives join the Choosing Wisely steering committee to ensure that

implementation and evaluation are inclusive of the WCHN consumer and the community.

For the next jury, members agreed that they would like to take a deeper look into the types of and

amount of family support provided to caregivers. Open now is the electronic crowd-sourcing tool;

welcoming feedback on what does Person and Family Centred Care family support look like for

the WCHN?

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CONSUMER ENGAGMENT UPDATES

Friends Passion Project Updates

Over the last six months, four teams across the organisation, from four different divisions have

been partnering with our consumers to purchase new equipment and implement new projects,

enhancing the four pillars of Person and Family Centred Care.

On 20 September, during Person and Family Centred Care Week, teams from across the state

will gather for a Grand Round to share their learnings. But, just for you, here is an update from

each of the teams.

Thanks to Friends WCH Inc. for their commitment to Person and Family Cantered Care.

Child and Adolescent Mental Health Services (CAMHS)

This Passion Project has been completed. They have purchased equipment for the Elizabeth

team that covers a population of 250,000. The equipment purchased is iPads, which are used to

gather critical information about children’s and young people’s experience of mental illness,

through questionnaires. An unexpected additional benefit of the iPads has been the adoption of

mindfulness applications that are used widely in the waiting rooms, by children and young

people.

Child and Family Health Service (CaFHS)

The lighthouse program to support young families, including those from the Aboriginal community

has been purchased and rolled out in the CaFHS Berri office.

Surgical Services

A consultation with 115 young people, from three primary schools (North Adelaide Primary

School, East Para Primary School and St Joseph’ Primary School at Payneham) occurred to help

co-design a five-minute cartoon video to reduce anxiety faced by children coming in for day,

overnight or complex surgery. The full-day consultation enabled staff from Surgical Services to

learn how best to design a video that kids would actually want to watch. The video has moved

into the production phase.

WABS

Birthing Stories is a collaborative project created by Tessa Kowaliw, consumer advocate and

educator, and Heather Frahn, songwriter, sound therapist and performer. The pilot program has

been generously funded by WCHN as a Passion Project. At its heart lie the birth stories of

12 WCHN mothers. Through a variety of creative activities, Tessa and Heather will work with

participants to create a variety of written and spoken word, musical and visual art-based pieces

which document individual experiences. These will be collated to form:

A custom-composed Birthing Stories ‘Song for Relaxation’

A Birthing Stories vox pop podcast; and

A Birthing Stories poetry and art exhibition.

The resulting collection will premiere at an official opening of the Birthing Stories exhibition.

On 2 July and 16 July, artists will meet with 12 mothers to capture the stories. The sessions are

designed so that babies can attend with their mothers.

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HIPPO consumer campfire

Nikki, Tara, Sharon, Josephine, Lisa, Vivienne and Elle joined Yasmin (Acting Director, Health

Informatics, Planning, Performance and Outcomes (HIPPO) Unit) and Allan for our first

‘campfire’. The campfire is an approach not unlike a focus group. Focus groups are often a

helpful addition to committee attendance as they allow any emerging issues to be explored in

more depth and in a less restrictive way. A campfire softens the approach further by valuing the

power of storytelling and drawing out issues within a framework of appreciative

inquiry. Appreciative inquiry is about the co-evolutionary search for the best in people, their

organisations, and the relevant world around them.

The focus for the first campfire was to discuss debate and understand the enablers and barriers

to effective consumer and community engagement in policy/procedure development. Actions

resulting from the meeting included:

1. To set up a series of ongoing campfires for consumers, who are supporting planning, policy

and procedural development for the Network.

2. To circulate a one-page highlight of the enablers and barriers to effective consumer and

community engagement to chairs of HIPPO committees.

3. To ensure all consumers have a relevant job description, for their role on the specific

committee. To ensure that the chair is aware of this role description and the committee

members are aware.

A typical week in Consumer and Community Engagement

Between 5 and 9 June, a

not too strange series of

co-design events unfolded

within the Network in which

consumer engagement in

healthcare was the featured

act.

The WCHN Consumer and

Community Engagement

Unit was part of a number

of influential discussions,

events and meetings during

this week. So what does a

typical “co-design” week look like?

Monday

Consumers met with an international Safety and Quality expert, Dr Stephen Muething for a

masterclass in serious safety event reduction, high reliability organisation theory and evidence-

based care.

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Tuesday

Think tank with the consumer co-chair of the Person and Family Centred Care Network Steering

Group, in ways to enhance story telling.

Consumer representatives have access to request support, supervision and collaboration

sessions with the Director, Consumer and Community Engagement.

Wednesday

A campfire was held for consumers participating in

health planning and policy development within the

Network. Colloquially dubbed the “HIPPO

campfire”, a list of enablers was developed to

support effective consumer engagement in health

policy development.

In the afternoon and evening, Lil and Tanya

attended their regular monthly safety and quality

committee, which had a focus on challenging

behaviours and code blacks.

Thursday

Bright and early in the morning, three kids from our

WCH Kids Klub and two of our Youth Advisory

Group members co-directed and starred in four

paediatric emergency department videos. The

filming is the next phase of a bigger project looking

at increasing the transparency of what occurs in the

emergency department for children waiting for

treatment. YAG member Riley jumped behind and

in front of the camera to make it a consumer

co-design initiative.

Consumer surveyors were trained and oriented to their role as Listening Post Consumer

Representative. The small group and experiential training, allowed three new representatives to

understand the tips and tricks to be successful in the roll out of weekly consumer surveying.

Concurrent with the training session, current Listening Post consumer representatives were

co-designing with WCH Allied Health staff the next week of Listening Posts. Three consumer

representatives hosted a roving coffee club within the Women’s and Babies Division to learn

about current consumer experience of care.

Lily, Tanya and Melissa attended a full-day workshop run by NSW Health; exploring aspects of

digital healthcare for children and young people.

A Youth Advisory Group (YAG) meeting was held in the evening, with SA Health media and

communications team to look at a series of new communication approaches; soon to be

established in the paediatric emergency department. Twelve YAG members gathered in a large

group think tank to provide commentary, suggestions and options to enhance the efficacy of the

campaign.

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Friday

The WCHN held its third Citizen Jury for 2017.

A typical week for the WCHN involves the public in co-design, with co-design looking very

different for each initiative.

Updates on WCHN consumer and community engagement features, in real-time, on WCHN

Basecamp. To learn more and sign up to Basecamp visit the WCH Website.

Allied Health Listening Posts

Listening Posts continue to roll out across the Network, with Allied Health the latest division

exploring the effectiveness of staff communication. Following the Queen’s birthday long

weekend, Sharon and Tiffany conducted over 50 interviews with carers and consumers using the

Fabio the Frog software. Locations for the listening posts for Allied Health included:

Women’s Health,

Allied Health Ground Floor of the Hospital; and

Audiology

Tiffany and Sharon were pleased with the level of interaction that unfolded, with many carers and

consumers providing detailed ways to enhance one-on-one communication approaches.

Allied Health becomes the fourth division to host a Listening Post utilising the same set of

questions. With Surgical Services up next, followed by the Community and Mental Health

divisions, the Listening Post 2017 schedule is moving into its final stages. The Listening Posts

will result in 300-400 interviews from our current consumers on the effectiveness of staff

communication. A report will be presented to the peak Safety and Quality committee in October

for response and action.

Consumer Networking (Winter extravaganza)

On 23 June, the Alan Crompton Boardroom

was turned into a winter wonderland with

34 consumers, caregivers and their families

gathering for an informal exchange. From the

2016 Consumer and Community Engagement

survey, our consumer representatives told the

Network that they wanted two opportunities to

gather with their peers.

With a growing number of consumers and carers on the WCHN database (just under 200) and 56

consumer representatives sitting on regular committees it was important to bring the entire

consumer family back together. There were three phases to the event: mingle, share and

collaborate.

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Mingle

For the first part of the morning, guests were invited to

participate in a game of people bingo. People were

encouraged to complete a matching set of 20 questions

against a person in the room. Categories included finding

someone who loves the Crows, prefers cats over dogs

and is a vegan. The opportunity allowed people to get to

know each other beyond a health or consumer

representative perspective.

Share

Phase two involved sharing stories, “campfire style”,

regarding what is currently working well and where

consumers have made a great impact. Stories shared

were enriching and powerful, illuminating the maturity and

growth of the Network’s approach to public participation.

Consumer Representatives highlighted the high level of

support and nurturing they experience during moments of

participation; and particularly spoke about the efficacy of

staff to close the feedback loop.

Collaborate

A winter networking extravaganza would not be complete without an opportunity to further

harvest the great ideas of our consumers and carers. The final phase of the morning allowed

members to brainstorm answers about what “excellent care” is.

The feedback was collected using post-it notes, prior to display as part of a gallery walk. This

activity gave consumers a small teaser into an upcoming Network-wide consultation designed to

develop a Safety and Quality Strategy.

Time for Art

During June, 50 children and 15 women

worked with the Consumer and Community

Engagement Unit to answer the question:

“What does excellent care look, sound and

feel like?”.

Tessa worked with women in the Women’s

and Babies Division, whilst Allan worked

with children on the wards.

The creative exchange resulted in a library

of original drawings and stories from the

consumer perspective, which will help

shape the safety and quality strategic plan.

Check out some of the original

drawings.

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A report by Jackie Barreau

Two years ago I began an exciting journey as a valued health consumer. A chance social media

encounter led to my recruitment to the WCHN and Consumer and Community Engagement Unit

(the consumer hub of the WCHN) – thanks Allan!

I have been involved as a consumer representative of the Person and Family Centred Network

Steering Group (PFCCNSG) and Team Kids - Gallery and Exhibition Committee, my tenure

finishes at the end of 2017.

This then led to my subsequent position as consumer lead for Unicorn Foundation Consumer

Advisory Group (CAG) – a not-for-profit organisation based in Melbourne that provides advocacy

and support for patients living with neuroendocrine cancer, or neuroendocrine tumours (NETs).

This came about due to my lived experience having two children with NETs, over two decades. I

was fortunate to travel to Melbourne late last year and participate in both a first face-to-face

Consumer Advisory Group workshop at the new Victorian Comprehensive Cancer Centre (home

of Peter McCallum Cancer Centre) as well as attend day one of the 4th World Theranostics

Conference as a health consumer. Although heavily scientific, it was wonderful to hear our

leading clinicians and researchers talk about the latest treatment and research for patients with

NETs.

An expression of interest led to another opportunity to participate in Cancer Australia – Priority

Driven Collaborative Cancer Research Scheme 2016 grant application round as a consumer

reviewer. Training was conducted in Sydney for one and a half days, and this was a fantastic

opportunity to be trained in assessing research grant applications. What I took away from that

training was the valuable knowledge of other consumers and their lived cancer experiences. It

was a wide cross section covering both adult and paediatric cancer streams.

Currently, I enjoy reading cancer research articles and connecting with other patients/carers and

am inspired by their bravery and strength. On 18 May, I was fortunate to participate in a Senate

Inquiry - ‘Funding into Research for Cancers with Low Survival Rates’ along with Cancer Voices

SA team member Julie Marker and Chair Chris Christensen via teleconference call. It was

important that the rare cancer voice was heard and I read out a brief statement

about my lived experience as a carer of two children with rare cancers.

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In August I fly to Sydney, thanks to the Unicorn Foundation to attend the 5th International

Symposium on Phaeochromocytoma and Paraganglioma. World leading experts will discuss the

latest in phaeo and para research and treatment options (my daughter has one of these rare

tumours). These opportunities don’t come along very often and I am really looking forward to this

meeting. I will connect with patients and carers from not only Australia but also around the world.

YOU SAID – WE DID – WE LISTENED

You wanted us to provide you more opportunities to improve access and flow of our services.

Since October 2016, Network Capacity Huddles have been established to ensure excellent care

happens every time.

Huddle time

A more coordinated approach to managing patient flow and bed capacity in an effort to improve

the consumer journey from admission to discharge has been introduced at the WCH.

The WCHN Access and Flow Strategy is a whole-of-network approach, which follows the Patient

Flow Management Framework, launched in October 2016, to provide a platform for the

standardisation

of practices and processes that support

daily patient capacity and demand management.

In addition, twice daily executive-led ‘Network Capacity Huddles’ are held so issues can be

canvassed by key hospital personnel, and high-level decisions made in real time.

“The huddles run for between 10 and 15 minutes at 10am and 3.30pm each week day, with

teleconferences held over the weekend,” said Sally Milsom, WCHN Access and Flow Coordinator

“Each huddle has a standard agenda, with at least one of the Heath Network’s executive team

attending to be briefed about the current capacity of the hospital as well as any other issues that

may impact on services.

We also discuss potential activity as well as booked admissions for the following day to ensure

there is capacity and smoother access to WCHN services for our families.”

Senior staff from WCHN Women’s and Babies, Paediatric Medicine and Surgical Services, Child

and Adolescent Mental Health Service divisions, as well as SA Pharmacy, SA Pathology, SA

Medical Imaging, and Spotless also attend the huddles

“Staff are encouraged to bring issues to the table, so we can reflect on how we might improve

processes. By having the right people in the room to address issues and provide advice, we are

able to make informed collaborative decisions,” Sally said.

“And having the statewide shared services such pharmacy and pathology and medical imaging

as part of the meetings means we can ensure that those patients who are being discharged have

everything they need, such as medications.”

WCHN Executive Director Corporate Services, Phil Robinson at one of the twice daily Network Capacity Huddles at the WCH.

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Police Link

The Police Link Program was developed as a direct result of a request from staff of the WCH to

Police to provide life skills to young people who often miss out on this education due to their

chronic and often life-threatening illnesses.

The program was developed by Sergeant Kevin Beinke and commenced in 1997 in the

Adolescent Ward and, as a result of positive feedback, was introduced to all wards of the hospital

from April 1998. The program was formally recognised as a South Australia Police Blue Light

Program in 2003 and is now a SAPOL Corporate Blue Light.

Mission

To provide positive engagement through general conversation and tailored crime prevention and

community safety messages.

Objective

To provide life skills to young people who often miss out on this education due to their chronic

and often life-threatening illnesses.

Committee structure

Branch Chair, Deputy Branch Chair, Secretary, Treasurer, Committee Members, State Council

Rep and Hospital Rep.

Person and Family Centred Care Awards May Monthly Winner

A key pillar of person and family centred

care is operating with positivity and

kindness. Kindness towards a consumer

is the easiest way to demonstrate empathy

and increase consumer satisfaction levels.

Tarnya Eggleton, CaFHS Nuriootpa

received high praise from several

consumers who wanted to thank her for

the amount of support, kindness and

knowledge she gave them and for making

herself available for texts and chats when

needed.

One consumer wrote “Tarnya is

Awesome!” and then went on to say she is

very friendly, caring, understanding and

accepting.

Positive consumer engagement is about ensuring that we continuously work in partnership with

our consumers; promoting empowerment and shaping excellence in care.

Congratulations Tarnya! A well-deserved monthly winner.

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May Person and Family Centred Care Award Recipients

Rebecca Greenslade - Neurology Department

All WCH Staff

Crystal Fawcett - Kate Hill Ward

Zac Augustson - Kate Hill Ward

Johanna Van Crugten - Antenatal and Gynae Ward

Tania Petrou - Antenatal and Gynae Ward

PICU Staff - PICU

Tarnya Eggleton - CaFHS Nuriootpa

Diana Raschella - Women's Assessment Service

Lisa Salisbury - Fracture Clinic, Paediatric Outpatients

Elizabeth Wilson - Fracture Clinic, Paediatric Outpatients

Dr Daniel Harris - Paediatric Emergency Department

Sarah Hill - Child Development Unit

Alice Wright - Child Development Unit

Susan Moore - Child Development Unit

Alexia Brooke - PICU

Karen Tucker - CaFHS Norwood

Maree Thus - Diabetes and Endocrine

Tania Kelly - Diabetes and Endocrine

Louise Wilson - Diabetes and Endocrine

Samara Archibald - Diabetes and Endocrine

Elisa Garces - Medical Short Stay Ward

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Consumer rewind: A spotlight over the past 30 days Consumer and Community Engagement

Reconciliation artworks were displayed in Gallery B, to provide a talking point for visitors to

WCH Campus to think about how they can think about or re-think approaches to

reconciliation.

Tessa worked with 15 women in Postnatal and Antenatal collecting stories through

artwork.

Awa, Penny and Oskar joined a team from the WCHN to have their responses to what

excellent care looks, sounds and feels like recorded on video. These videos will be edited in

July for display as part of a state-wide consultation to develop the WCH safety and quality

strategic plan.

On 14 June, Tiffany and Leanne represented ELECT and the consumer voice in a

pre-planning session for potential refurbishments of a mental health environment.

Penny helped to co-design the July Consumer and Community Partnering Council

agenda.

Consultation was completed for the Volunteer Strategy, and on 21 June, Sammi alongside

members of the Project Advisory Group gathered to endorse the principle, action areas and

vision statement. The Executive Director, Corporate Services attended, and the next step is

to take the strategy to the Consumer and Community Partnering Council and Executive for

final endorsement.

National Refugee Week was observed between 18-23 June, with the Network represented

by the Consumer and Community Engagement Unit at three events including; youth poster

exhibition and presentation with the Australian Migrant Resource Centre, a cultural leaders

forum, and child and youth short film festival with Multicultural Youth South Australia.

Allan attended the Robinson Research Institute Health Consumer Engagement

Executive sub-committee. The focus of this committee is to enhance consumer and

community engagement in research within the Institute.

34 consumers attended the inaugural Consumer Networking Event.

Consumer and Community Partnering Council gathered on 26 June to discuss a gap

analysis of shared decision making, gap analysis of partnering with consumers, action plan

based on the 2017 consumer engagement evaluation approach, and family support.

Cultural Roundtable was held on 28 June at which the migrant and new arrival shared

decision making guide was endorsed by members. Members were also invited to comment on

outpatient letters and introduced to the safety and quality strategic plan.

Education, Training and Development

Family Huddle was referenced and spoken to at the Australian New Zealand Conference for

Haematology and Oncology. On 15 June, a consumer engagement parent afternoon

workshop was held on Grote Street, focusing on children’s oncology and community

engagement.

Tara, Jackie and Tanya attended a full day workshop with the Robinson Research Institute

focusing on consumer and community engagement in research.

The Cultural Roundtable and Allan attended a Cultural Communities Leaders Forum on

20 June at Veale Gardens. Set up as a think tank, the leaders forum allowed members to

reflect on and plan for the future needs of migrant, refugee and new arrival

consumers.

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27 WCH Physiotherapy staff had a crash course in person and family centred care, with a

focus on the charter and shared decision-making.

3 consumers joined Allan for a webinar delivered by Children’s Healthcare Australasia

looking at the Starlight Children’s Foundation’s approach to children’s healthcare rights. Dr

Suzanne Hood is leading the analysis and research.

Safety and Quality

The excellence in care sub-committee continued to meet to plan for the upcoming staff

and public consultation. Focus has been on working with consumers through art activities and

vlogging to capture what excellent care looks like.

Allan met with Laurence from Sydney Children’s Hospital to explore the learnings from the

rolling out of the Consumer Governance Structure, Health Literacy Group and involvement of

special interest groups like CAMHS and Oncology in decision-making.

The April – June report card on consumer experience data was written with consumers from

the Person and Family Centred Care Network Steering Group.

Youth Advisory Group members presented a webinar to the Children’s Health Australasia

Transition of Care special interest group on 22 June.

Tiffany and Allan attended the first SA Health Proof of Concept Patient Demographic

Work Group, tasked with looking at how to better communicate demographical data

internally and externally. WCHN is represented alongside other Local Health Networks.

For more information

Consumer and Community Engagement Unit

Women’s and Children’s Health Network

72 King William Road

North Adelaide SA 5006

Telephone: 8161 6935

Email: [email protected]

www.wch.sa.gov.au

© Department for Health and Ageing, Government of South Australia. All rights reserved.

All information was accurate at the time of printing, dates and times may vary.