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Washington D.C., USA, 22-27 July 2012www.aids2012.org
CURE:The point of view of people
living with HIV
Fred VerdultAmsterdam, The Netherlands
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Washington D.C., USA, 22-27 July 2012www.aids2012.org
Cure
Why a cure would be important for people living with HIV?
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Why is a cure important?
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Why is a cure important?
The answers of Steven Deeks:
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Why is a cure important?
The answers of Steven Deeks:• Life expectancy
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Why is a cure important?
The answers of Steven Deeks:• Life expectancy• Long term side effects
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Why is a cure important?
The answers of Steven Deeks:• Life expectancy• Long term side effects• Financial reasons
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Dan Kuritzkes:
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Dan Kuritzkes:
“When can we start a trial with patients?”
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Research questions
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Research questions
From the PERSPECTIVE of people living with HIV:
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Research questions
From the PERSPECTIVE of people living with HIV:• How important is a cure? WHY?
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Research questions
From the PERSPECTIVE of people living with HIV:• How important is a cure? WHY?• WHICH cure is preferred?
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Respondents
Washington D.C., USA, 22-27 July 2012www.aids2012.org
• Database of 1,002 names contacted
Respondents
Washington D.C., USA, 22-27 July 2012www.aids2012.org
• Database of 1,002 names contacted• Response: 458 (= 46%)
Respondents
Washington D.C., USA, 22-27 July 2012www.aids2012.org
• Database of 1,002 names contacted• Response: 458 (= 46%) • May 15–31 (+ 4 respondents in June)
Respondents
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
“No longer having that feeling of uncertainty”
Uncertainty
Washington D.C., USA, 22-27 July 2012www.aids2012.org
“No longer having that feeling of uncertainty”
“Having less anxiety about the future”
Uncertainty
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
“No longer being afraid of infecting others”
Risk of infecting
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
“Not having to deal with the stigma anymore”
Stigma
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
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Washington D.C., USA, 22-27 July 2012www.aids2012.org
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Washington D.C., USA, 22-27 July 2012www.aids2012.org
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Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
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Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
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Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Follow-up study
Multinational study to characterize the willingness of people living with HIV to participate in cure trials
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Meeting on July 23, including:
• Michael Arnold, USA• Françoise Barré-Sinoussi, FR• Steven Deeks, USA• Matthias Eggert, SW• David Evans, USA• Sophie Gravat, FR• Richard Jefferys, USA• Dan Kuritzkes, USA
• Joep Lange, NL• Peter Newman, CA• Veronica Noseda, FR• Bruno Spire, FR• Marie Suzan, FR• Nelson Vergel, USA• Fred Verdult, NL
Washington D.C., USA, 22-27 July 2012www.aids2012.org
Washington D.C., USA, 22-27 July 2012www.aids2012.org
