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Val EyreEvents Fundraiser
National Rheumatoid Arthritis Society
What is Rheumatoid Arthritis?Rheumatoid Arthritis is a progressive and systemic
disease of the autoimmune system causing joint inflammation and stiffness. It can cause extreme pain and fatigue
It can affect other organs increasing the risk of heart and lung disease and eye damage
There is currently NO CURE and we don’t know exactly what causes it
690,000 people across the UK live with RA, which is approximately 1.1% of the population
Being diagnosed with RA is often difficult to come to terms with and some people find it difficult to cope with.
Anger, frustration, distress and a desire to ignore it are common place.
This is where NRAS fits in...
‘A better life for those living with Rheumatoid Arthritis
We achieve this by:
Providing information, support, education and advocacy
Raising public awareness of the disease
Raising the priority of RA with politicians and key policy makers
Campaigning for equal access to good levels of care for all
Encouraging self management and networking
The NRAS Team
• Staff of 21
• Head office in Maidenhead in Berkshire
• Work throughout the UK
• Accountable to a Board of Trustees
How can NRAS help?
• NRAS has a comprehensive range of services which support and empower people with RA, their families and carers:
• Helpline• Membership• Publications• Website• Volunteer Network• RA Self Management Programme• Campaigning
What we are doing now
Continuing to support people living with RA, their families, carers and healthcare professionals
Developing a new support and information service for the 12,000 children and young people living with Juvenile Idiopathic Arthritis (JIA)
First RA Awareness Week, 2013 New publication - The Impact of RA on Emotions,
Relationships and Sexuality Rolling out our RA Self-Management Programme
The future – 2013 - 2016
Increase membership to 7,500 and professional members to 1200
Greater income streams including more regular legacy income and major donor income
Have an established income stream from supporting UK research
Greater public awareness Use Social Media to spread the word
The future continued Establish RASMP as the programme of choice for
people with RA Better GP awareness/earlier referrals Lower entry criteria for starting Biologics Make a significant contribution to improving support
for families with JIA Established NRAS Ambassadors in all UK nations Increase volume on all our front line services More volunteers and groups in the UK
Events and ChallengesNRAS Tea PartyYou choose the date and venueWe supply the Tea Party Pack
RunsGreat North RunGreat South RunRoyal Parks Half Marathon
Overseas ChallengesClimb Mount KilimanjaroTrek the Great Wall of China
Why not choose your own event !
RA Awareness Week
24th – 30th June
About raising awareness of the disease with the key message “RA can STRIKE at any age”
There will be a release everyday, however fundraising is not the key driving message, awareness is!
World Arthritis Day 2013
12th October
About raising awareness of all rheumatic and musculoskeletal disease with the key message “Living better, aging well”
Individual Support Give as you Live
www.nras.org.uk/giveasyoulive
Recycle for Charity Ink Cartridges Old Mobile Phones Jewellery Clothes
Payroll Giving Merchandise
Wristbands Canvas bags Lapel badges
