Val EyreEvents Fundraiser

National Rheumatoid Arthritis Society

What is Rheumatoid Arthritis?Rheumatoid Arthritis is a progressive and systemic

disease of the autoimmune system causing joint inflammation and stiffness. It can cause extreme pain and fatigue

It can affect other organs increasing the risk of heart and lung disease and eye damage

There is currently NO CURE and we don’t know exactly what causes it

690,000 people across the UK live with RA, which is approximately 1.1% of the population

Being diagnosed with RA is often difficult to come to terms with and some people find it difficult to cope with.

Anger, frustration, distress and a desire to ignore it are common place.

This is where NRAS fits in...

‘A better life for those living with Rheumatoid Arthritis

We achieve this by:

Providing information, support, education and advocacy

Raising public awareness of the disease

Raising the priority of RA with politicians and key policy makers

Campaigning for equal access to good levels of care for all

Encouraging self management and networking

The NRAS Team

• Staff of 21

• Head office in Maidenhead in Berkshire

• Work throughout the UK

• Accountable to a Board of Trustees

How can NRAS help?

• NRAS has a comprehensive range of services which support and empower people with RA, their families and carers:

• Helpline• Membership• Publications• Website• Volunteer Network• RA Self Management Programme• Campaigning

What we are doing now

Continuing to support people living with RA, their families, carers and healthcare professionals

Developing a new support and information service for the 12,000 children and young people living with Juvenile Idiopathic Arthritis (JIA)

First RA Awareness Week, 2013 New publication - The Impact of RA on Emotions,

Relationships and Sexuality Rolling out our RA Self-Management Programme

The future – 2013 - 2016

Increase membership to 7,500 and professional members to 1200

Greater income streams including more regular legacy income and major donor income

Have an established income stream from supporting UK research

Greater public awareness Use Social Media to spread the word

The future continued Establish RASMP as the programme of choice for

people with RA Better GP awareness/earlier referrals Lower entry criteria for starting Biologics Make a significant contribution to improving support

for families with JIA Established NRAS Ambassadors in all UK nations Increase volume on all our front line services More volunteers and groups in the UK

Events and ChallengesNRAS Tea PartyYou choose the date and venueWe supply the Tea Party Pack

RunsGreat North RunGreat South RunRoyal Parks Half Marathon

Overseas ChallengesClimb Mount KilimanjaroTrek the Great Wall of China

Why not choose your own event !

RA Awareness Week

24th – 30th June

About raising awareness of the disease with the key message “RA can STRIKE at any age”

There will be a release everyday, however fundraising is not the key driving message, awareness is!

World Arthritis Day 2013

12th October

About raising awareness of all rheumatic and musculoskeletal disease with the key message “Living better, aging well”

Individual Support Give as you Live

www.nras.org.uk/giveasyoulive

Recycle for Charity Ink Cartridges Old Mobile Phones Jewellery Clothes

Payroll Giving Merchandise

Wristbands Canvas bags Lapel badges

Thank you very much!

Any Questions?

Val@nras.org.uk

01628 501547