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USRDS 1998 I-1 United States Renal Data System (USRDS) NIDDK DKUHD Project Officer Executive Committee Data Request Review Committee Biomedical Scientific Advisory Committee (BSAC) Coordinating Center Renal Community Council Special Study Subcommittees HCFA Economic Scientific Advisory Committee (ESAC) Special Studies Review & Implementation Committee

USRDS 1998 I-1 United States Renal Data System (USRDS) NIDDK DKUHD Project Officer Executive Committee Data Request Review Committee Biomedical Scientific

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Page 1: USRDS 1998 I-1 United States Renal Data System (USRDS) NIDDK DKUHD Project Officer Executive Committee Data Request Review Committee Biomedical Scientific

USRDS 1998I-1

United States Renal Data System (USRDS)

NIDDK

DKUHD

Project Officer

ExecutiveCommittee

Data RequestReview Committee Biomedical Scientific

Advisory Committee(BSAC)

CoordinatingCenter

Renal Community

Council

Special StudySubcommittees

HCFA

Economic ScientificAdvisory Committee

(ESAC)

Special Studies Review& Implementation

Committee

Page 2: USRDS 1998 I-1 United States Renal Data System (USRDS) NIDDK DKUHD Project Officer Executive Committee Data Request Review Committee Biomedical Scientific

USRDS 1998I-2

Overall Structure of the USRDS DatabasePatient

Characteristics(821,000 Patients)

PatientCharacteristics

(821,000 Patients)

Dialysis Claims

(17.7 million)

Dialysis Claims

(17.7 million)

Master ESRDProvider Records

(3,738)

Master ESRDProvider Records

(3,738)

Annual FacilitySurveys(32,800)

Annual FacilitySurveys(32,800)

TransplantReports

(159,000)

TransplantReports

(159,000)

Transplant Followup Reports

(633,000)

Transplant Followup Reports

(633,000)Updated as ofJanuary, 1998

Updated as ofJanuary, 1998

USRDSSpecial Studies

(35,000)

USRDSSpecial Studies

(35,000)Treatment

History(2.6 million)

Treatment History

(2.6 million)

Residence(1.2 million

records)

Residence(1.2 million

records)Hospital Claims

(4.9 million)

Hospital Claims

(4.9 million)Oupatient

Claims(16.9 million)

Oupatient Claims

(16.9 million)

Other Insitutional

Claims(7.9 million)

Other Insitutional

Claims(7.9 million)

Physician/ Supplier Claims

(246 million)

Physician/ Supplier Claims

(246 million)

Page 3: USRDS 1998 I-1 United States Renal Data System (USRDS) NIDDK DKUHD Project Officer Executive Committee Data Request Review Committee Biomedical Scientific

USRDS 1998I-3

0

200

400

600

800

1000

1200

1400

1600J-

96

J-96

A-9

6

S-9

6

O-9

6

N-9

6

J-97

F-97

A-9

7

M-9

7

J-97

J-97

A-9

7

S-9

7

O-9

7

D-9

7

J-98

F-98

0

200

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1000

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Usage of the USRDS World Wide WebJune 1996 - February 1998*

Month

WWW Sessions

Total Bytes

ADR Bytes

*Full ADR Became Available September 1996

Reference Table Bytes

Other Bytes

Es

tim

ate

d M

on

thly

WW

W S

es

sio

ns

Mill

ion

s o

f B

yte

s D

ow

nlo

ad

ed

pe

r M

on

th

Page 4: USRDS 1998 I-1 United States Renal Data System (USRDS) NIDDK DKUHD Project Officer Executive Committee Data Request Review Committee Biomedical Scientific

USRDS 1998I-4

Data Requests Processed 1989-97

88 77 98152

45

251 226

365

743

0

100

200

300

400

500

600

700

800

1989 1990 1991 1992 1993 1994 1995 1996 1997

YearYear

Page 5: USRDS 1998 I-1 United States Renal Data System (USRDS) NIDDK DKUHD Project Officer Executive Committee Data Request Review Committee Biomedical Scientific

USRDS 1998I-5

3 2

8

22

2

25

3 212 5

79

170

0

10

20

30

40

50

1992 1993 1994 1995 1996 1997 1992 1993 1994 1995 1996 1997

0

40

80

120

160

200

Researcher Requests for USRDS Patient Level Data Files and CDs Supplied, 1992-97

# Requests

Requests

# CDs

CDs