!e MyStory Journey: Capturing each child’s story to personalize the care we provide pediatric patients and their families

Evidence strongly supports the importance of capturing the personal story and preferences of a child admitted to an acute care hospital setting. At University of Minnesota Amplatz Children’s Hospital, we have developed an initiative, called MyStory, that recognizes not just the patient, but the child as an individual.

Objectives:

families that will be an Always Event™ when caring for children — MyStory

o MyStory as an Always Event™ is a interprofessional e"ort to capture each patient’s “story.”

o Document the “story” in a convenient tool within the electronic health record.

o Use the patient’s “story” to personalize the care we provide to patients, and to involve them in care planning and decision making.

patients by learning their story and engaging them in care planning and decision making.

Tools & Implementation:

electronic health record

to be used in the outpatient areas: o Surgery waiting room

Outcomes: !e MyStory project outcomes are measured by a number of metrics that have been put into a dashboard that is formatted to match the clinical quality and safety dashboard the organization uses.

Cheristi Cognetta-Rieke, BSN, DNPc, RN; University of Minnesota Amplatz Children’s Hospital, Minneapolis, MN

My name is: You can call me: Age:

My caregiver(s) name(s) are:

I am from:

My friends are:

My favorite toys or things to do are:

I am good at:

When I grow up, I want to be:

Draw a picture of what you want to be when you grow up:

My Story:(School Age)

! is is to be used as a template only! Give to health care team to enter in EPIC.

uofmchildrenshospital.org

My name is: You can call me: Age:

My caregiver(s) name(s) are:

I am from:

My friends are:

My favorite hobbies/activities are:

I am good at:

In the future, I want to:

My past experience with being sick or coming to the hospital:

Before a procedure, I need to know:

My Story:(Teen)

uofmchildrenshospital.org

Lessons Learned:

of this type of initiative is invaluable.

Transforming the care we provide to children

Evidence-based

Interprofessional Collaboration

Patient & Family Involvement

MyStoryPersonalizing

Pediatric Care

Data  Source MetricMeasurement  Time  Period

Pre  -­  MyStory  Data

Previous  Measurement

Current  Measurement Target

Long-­Term  Target Trend

Status  vs.  Target

"Hospital  workers  talk  to  you?" 1Q  12 96.1% 85.7% 100% 100%

"Listen  when  you  told  them  something?" 1Q  12 85.0% 78.6% 93% 100%

"Let  you  make  choices?"   1Q  12 70.0% 67.9% 85% 100%

"Find  ways  to  make  hosp  feel  like  home?" 1Q  12 58.3% 64.8% 79% 100%

"When  hurting,  help  you  feel  better?"   1Q  12 80.0% 83.9% 90% 100%

"Like  how  they  took  care  of  you?"   1Q  12 83.3% 87.5% 92% 100%

"Did  the  Doctors  pay  enough  attention  to  your  experiences  and  

suggestions  in  caring  for  your  child?"4Q  11 62.6% 96.9% 86.4% 100%

"Did  the  Nurses  pay  enough  attention  to  you  experiences  and  suggestion  

in  caring  for  your  child?"4Q  11 63.6% 94.9% 88.0% 100%

"Would  you  have  liked  more  involvement  in  making  the  decisions  about  

your  child's  hospital  care?"4Q  11 67.3% 90.8% 77.3% 100%

"How  much  did  you  participate  in  your  child's  care,  such  as  feeding  or  

bathing?"4Q  11 93.9% -­ 95.2% 100%

"Was  the  information  about  his  or  her  condition  discussed  with  your  child  

in  a  way  he  or  she  could  understand?"4Q  11 57.6% 96.4% 81.3% 100%

"Did  someone  explain  to  your  child  the  tests  that  were  being  done  in  a  

way  he  or  she  could  understand?"4Q  11 64.5% 94.8% 83.3% 100%

Do  My  Caregivers  Know  My  Favorite  Things? Jan  12  -­  Feb  12 41% 53% 60% 75%

Do  My  Caregivers  Know  Things  I  Don't  Like? Jan  12  -­  Feb  12 30% 9% 60% 75%Get  

Well  

Networ

k

University  of  Minnesota  Amplatz  Children's  Hospital  -­  MyStory  Dashboard

Children's  

Satisfaction  Survey

NRC  Picker  Parent  Satisfaction

MyStory is being funded by the Picker Institute as an Always Event ™.

Arrow Up = Performance Improving Arrow Straight = Performance Same Arrow Down = Performance Declining

Key:Green = Going Well Yellow = Monitor Red = Requires Mgmt Attention

MyStory is a navigator/button

on the left

My name is: You can call me: Age:

My caregiver(s) name(s) are:

I am from:

Special parent requests:

My favorite toys are:

I become upset or cry when:

Things that comfort me are:

You can distract me with:

My past experience being sick or coming to the hospital:

My Story:(Infant and Toddler)

! is is to be used as a template only! Give to health care team to enter in EPIC.

uofmchildrenshospital.org

* Questions taken from Children’s perceptions survey© Lindeke,L., Fulkerson, J., Chesney, M., Johnson, L., Savik, K. (2009). Children’s perceptions of healthcare survey. Nursing Administration Quarterly, 33(1), p. 26-31.

*

** Questions taken from NRC Picker Patient Satisfaction Survey©

**