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Annual Report
2013United Cerebral Palsy of the Wabash Valley
Message from the Executive Director and Board President 1
Independent Living 2
Adaptive Equipment Purchase and Loan 3
Adaptive Technology Lending Library 4
Information, Advocacy, and Referral 5
2013 Agency Revenue 6
2013 Donors 7
Our Mission
Improving the life and well-being of individuals with disabilities through advocacy, outreach, service, and support. United Cerebral Palsy of the Wabash Valley is building bridges by helping people with all disabilities achieve independence.
United Cerebral Palsy of the Wabash Valley provides information and referral services for individuals with disabilities and their families in Clay, Greene, Parke, Sullivan, Vermillion, and Vigo Counties in Indiana.
UCPWV Staff (left to right)Front row: Nancy Sanders, Susie ThompsonBack row: Travis Phillips, Chad Curtis, Martina Thompson
If you always do what you always did, you will always get what you always got.
—Albert Einstein
Many have disliked the overused and often irritating phrase, thinking outside the box. So, you cannot
imagine the surprise UCPWV had when the year of 2013 forced us to continually and with a no other choice attitude of thinking outside the box. Let’s face it, the driving force behind thinking outside the box is the frustration we feel when there seems to be no solution to the problem or need we face. In 2013, we had to challenge assumptions and broaden our scope both in the application of our mission and the services we offer to the Wabash Valley. It seemed we were constantly facing challenging and unmet consumer needs while facing continued financial limitations. We wanted to respond effectively to the challenges our consumers faced and did not want to be forced to turn people in need away. When there seemed to be limited community options or services to meet the growing need of our neighbors, we had to rethink how we might serve our mission and even how we needed to define a disability. Our mission had always been about helping people with disabilities live “life without limits.” Did those individuals that had no food to eat, had no place to sleep, or those without heat meet that mission? Through a focus group and several discussions with our consumer base, we determined that poverty and homelessness are truly a disability. Without the basic needs of life, we cannot function or live with success and dignity. With that thought in mind, our direct aid to individuals needing assistance with basic needs increased. The number of homeless individuals that asked for our assistance increased dramatically, as well. In 2013, we made sure that 102 individuals would have a safe, warm place to live and food to eat.
Many of UCPWV’s consumers, in 2013, were faced with unique and unmet medical needs. Many could not find the equipment they needed to solve the issue, or the equipment did not exist in the open market. Others did not have the funds to meet the exorbitant medical cost
of the needed equipment. UCPWV really did not know where to begin to meet this all too common, daunting challenge. Once again, we were faced with thinking outside the box. The challenge forced us to develop new partnerships with unique partners and redefine existing relationships with old friends. As a result of that effort, some very complex medical situations were resolved. For example, a special bed was made and delivered to a gentleman forced to sleep on the floor as a result of his health condition. In another situation, a specialized wheelchair was designed and built to accommodate a child’s unusual physical needs. In yet another situation, special braces were made for an adult to make it possible for her to stand. The examples are many and varied.
Housing continues to be a challenge for many people in our community and it can be even be more difficult for a person with a disability. We knew the need was great when during the first half of the year we, on average, received five calls per week for housing, and by the end of the year that number increased to, on average, 10 per week. By this point, that box was working pretty well so we continues, thinking outside the box. As a result, in early 2013 we finished construction on four homes. They were occupied, by those from our ever expanding waiting list, within two weeks of possession. Additionally, we purchased a ten unit apartment building, formerly owned by another social service agency. By the end of 2013, the apartment units were fully rehabbed and more than half were occupied. And, as of April 2014 all of the apartments were filled and a waiting list for the Hulman property initiated.
I am happy to report that 2013 also saw UCPWV expand staff. We welcomed Nancy Sanders as our Program and Finance Coordinator and Martina Thompson as our Veterans Service Coordinator. With Nancy’s assistance, we have expanded our outreach in the Adaptive Lending Library and caught up on our property management. With Martina on board, we have started our Veteran’s initiative. Each of them bring their own talents and strengths. Our hard-working and skilled team including Travis, Nancy, Al, J.D., and Martina are always thinking outside the box to meet the needs of those we serve.
Message from the Executive Director and Board President
Lisa MooreBOARD PRESIDENT
Susie Thompson EXECUTIVE DIRECTOR
1
Independent Living
The year 2013 has been a year of growth and change for United Cerebral Palsy of the Wabash Valley
(UCPWV); however, with growth and change always comes challenges. These challenges required a great deal of thinking outside the box. In April 2013, our staff realized the agency was receiving 15-20 calls requesting housing each week. In many cases, the individual was either homeless, facing a loss of their current housing, or trying to survive with little to no income. Most of the requests for housing came from people with significant disabilities and finding few options in the community to meet their often complex needs.
In an effort to meet the needs of this diverse group, UCPWV began to look for ways to expand our Independent Living Program. UCPWV was able to purchase a two-building, ten unit apartment complex located at 1400 Hulman Street in Terre Haute from Council on Domestic Abuse. This purchase has allowed us to serve twenty-two additional individuals, increasing to 168 consumers served, who are either disabled or have low-income. UCPWV’s Independent Living Program
isn’t just about housing. Routine case management is offered to help our families, from making copies to assisting them in job placement. We are there to support, advocate, and provide services where needed.
Struggling with housing issues can be a true hardship. Imagine for a moment that you did not know if you and your family would have a place to sleep from day-to-day. This is a story we hear from many of our consumers. This past year, the agency has seen more of our consumers relying on the kindness of friends for a place to sleep, or finding their car the only place they have to call their own.
Statistics show that about 85% of people who are homeless are also disabled. The mission of UCPWV is to improve the life and well-being of people with disabilities, thereby helping them live “life without limits.” For our families, having a permanent place to live has helped them maintain jobs and have a sense of stability. Most importantly, they are just grateful to have a place to call home.
2013 IMPACT: 168 accessible/low-income housing consumers • 124 case management units provided (2,786 hours)
www.ucpwv.org2
Adaptive Equipment Purchase and Loan
Living life independently and with dignity is something to which everyone is entitled. People with disabilities
strive to achieve this goal every day through the utilization of adaptive equipment, but with the lack of funding or gaps in insurance, it is difficult. With a lack of resources, many challenges are presented. The challenge is compounded when the need of the individual cannot be met through accessible medical equipment that is available on the open market.
Our community partners work with us each day to help meet the diverse needs of our consumers. One especially valuable partner in meeting the challenges is Anderson Medical Products. They have been part of the UCPWV family since 1984. Their innovative and creative thinking
helps us meet the needs of our consumers, needs that often far exceed our resources. The staff at Anderson’s works with UCPWV on the challenges that we face, including—but not limited to—working with Medicaid, Medicare and other insurance companies and modifying standard equipment to the specific need(s) of the consumer without increasing cost.
Sometimes, there is no standard equipment to meet the specific need(s) of our consumers and the thinking outside the box strategy has worked to meet the unique challenges of our consumers, the medical field, and our partners at Anderson’s. As Dave at Anderson’s always says, “Tell me something good.” With this partnership, we can.
2013 IMPACT: 187 consumers
Living life independently and with dignity is something to which everyone is entitled.
3
Adaptive Technology Lending Library
The year 2013 has been a year of expansion for UCPWV. As part of the expansion, our staff increased
to meet the growing needs and increased numbers served. Nancy Sanders, who has been part-time with UCPWV since November 2011, stepped in as the Program Coordinator for the Adaptive Technology Lending Library in the second quarter of 2013. Since then, Nancy has put together a comprehensive inventory list of all 3,000 items in the library and is working on a supportive curriculum to accompany each item in the library. The items are organized in the five domains of development, including gross motor, fine motor, cognitive, social/emotional, and language. This helps teachers, parents, and therapists to select the appropriate item(s) needed.
Nancy has had a love of the Library since joining UCPWV, and when the position of Program Coordinator opened, she jumped at the opportunity to join the effort. As a mother and grandmother, Nancy has a good understanding of child development and is excited to work with teachers, therapists, and parents to expand the
learning opportunities of the children in our communities. She has brought a great deal of thinking outside the box to the library and uses this when trying to identify the best methods to meet the needs of our consumers.
Nancy has done a tremendous amount of outreach to our service area, which has enabled us to reach some of the outlying counties that we serve. After receiving a letter from Nancy, a therapist from one of the outlying counties came to see what items we had available to assist her clients. Not only did she leave with items, but she commented that this was a tremendous resource for the Wabash Valley.
2013 IMPACT: 603 children • 110 teachers, parents, and therapists
www.ucpwv.org4
Information, Advocacy, and Referral2013 IMPACT: 493 Consumers
UCPWV receives approximately 150 calls per month requesting information about both our services
and other services that are available to individuals with disabilities in our communities. UCPWV provides connections for people to appropriate services in the
area and can make referrals when needed. Often a staff member can answer questions and normalize the event facing the caller which helps in dealing with the issue at-hand. The consumer can then move forward in an often complex and confusing medical system.
UCPWV provides connections for people to appropriate services in the area and can make referrals when needed.
As the Assistant Executive Director, Miss Wiggins is always working very hard to help our consumers get connected with the programs and services that will best help them live “life without limits.”
5
2013 Agency Revenue
Revenue streams remained steady during the year with property management contributing 53% of the total agency revenue, donations and fundraisers at 42% of the agency revenue, and United Way totaling 5% of total revenue.
United Cerebral Palsy of the Wabash Valley served over 1500 individuals during the 2013 calendar year in four major programs.
Agency net assets increased from 2 million in 2012 to 2.6 million dollars in 2013.
$2,600,000.00
$171.00Average cost to serve each consumer in 2013.
1,500+
Donations andFundraisers
PropertyManagement
United Way
www.ucpwv.org6
Donors
2013 Donors
PLATINUMDr. & Mrs. Michael DeadyRobert J. & Mary K Primus105.5American Legion Riders Riley
Post 328Asylum ConceptsDever DistributingFifth-Third BankInternational PaperMidwest PrintingSycamore Technology
SolutionsUnited Way of the Wabash
Valley
GOLDJared McCulloughKim WilliamsEric D. ParkerAnderson Medical ProductsFirst Financial BankVigo County School
CorporationWabash Valley Asphalt
SILVERRonald W.AdamsAmalgated Transit UnionBoilermakers #374Bricklayers Local 4 IN/KYCapenters Local #133Diamond Brothers InsuranceDuke EnergyIBEW Union Electric #725Ironworkers Local #22Kanizer ExcuvatingLaborers International #204Mahurin, IncPlumbers & Steamfitters #157Saratoga RestaurantTerre Haute Savings BankUnion HospitalWilkinson, Goeller, Modesitt,
Wilkinson & Drummy
BRONZEAnonymous David & Corinne Gasner Mike McCormick Christopher & Lisa Moore John Plasse Charlie & Kim Welker
Covered Bridge Special Ed Dist
First Farmers Bank & TrustRowdy Williams Law Firm, P.C.Wells Fargo AdvisorsJetz
GREENBob AlexanderKapri Ames-BarkerAnonymousYvonne AvaryDebbie S. & Kevin P. BadeauxGeorge & Roberta BakkerRon B. BaylesRick BaysingerRoberta BeaumontGreg BishopDebbie BissingerMike BooeIsrael BorreroSandy BoswellDavid BrayJoyce BridgetteJeff BridgewaterJanet BrosmerRon BrownJay BrownCindy BrownCynthia G. BrownJulia BruceLeslie BurdickSummer BurkeCary BurpoKevin CaldwellDan CallahanCathy CardinalPat CarneyDavid P & Mika J. CassellRich CheeverTom & Linda ChiadoJennifer ClarkPatricia Clark, DDSClay CohrenJohn CollettKaren ConleyRalph & Allison ConnDebby & Ralph ConnRandy & Jennifer ConnJuanita & Vicki ConnDoug & Lisa CooperMike CooperJanice N. Crosby
Carter CrouchSteve DanielsonBarb DavisRick DawsonAngel DeanBrett DinkelPally DodmanTodd & Patricia DoormanJulie & Mike Dougherty &
GrimesKenneth & Mary Beth DuggerMatt & Cathy EffnerMichael EldredBrad ElliotTina ElliottGreg EwingSue FergusonScott Findley, DDSMary FinleyTammy FishLaura FollowellFerruccio & Mary ForneroWard FrazierSteven D. & Pat L. FridayDavid FriedrichCindy Gloye
John GoldnerBruce & Jeri GoodingThomas & Ann GossMeredeth Gray, DDSBrad GreinerDave & Pam GrimesBill & Peg GrimesElizabeth GrimesMichael GrimesWilliam G & Margaret M
GrimesMary Ann HaleJoe & Chris Haley
Tom & Melissa HaleyBeth & Bill HaleyHeather HancockMary Beth HarrisAlva & Max HeltonDeninne HeltonCindy HendrixSharon A. HensleyJeri HerbertBilly & Mika HillAmanda HoguePerry HollowellOlivia & Pete HolveyTina HorrallMike HuddlesonSteve HunterMorris JenkinsTim & Mary JenkinsKristi JerrellDustin JoyBrenda JunkerMary Ellen KearnsJoseph D. KerrSharon KerrNick KerrLarry J. & Susan K. Kreig
Amy LaddSam LeeAndrea LongCathy LongBelinda LonickJennifer M. & Marcus D
LorrickCarol LucasAaron Luttrell, DDSLee Anne LuttrellJack LynchJohn MaloneKim Marlow
Thanks to all our Donors!Without our donors we could not make our organization work. Your donation to United Cerebral Palsy of the Wabash Valley supports the programs of this agency. Every dollar raised stays in the Wabash Valley.
www.ucpwv.org8
GREEN continuedBill & Susan MarrDave MarriettaPaul & Connie MasonJohn Mast, DDSCollin McCrayMary McCulloughRodney McDonald, DDSAlisa A. & Jay A. McKeeJessica MeierKristy MerkMel MickelsonJake & Caitlin MillerScott MillerTerry ModesittBetty MooneyThomas MooreLeAnna MooreStephanie MooreKenneth MooreRichard W. & Tracie L. MorrisJohn & Cecelia MyersCharles NayRevenend NayApril NewtonVelma NewtonSherry OldsBarry O’NealCharles OverpeckSusan OverpeckTodd PancakeCarol PeakMichael & Janet PhillipsSteve Pilipovich, DDSEleanor Plahn
Jill PruettMarc & Jennifer PruettRobert PuckettJulie RagleJanet RainesMegan RamseyBrad RayceEllen ReevesGretchen & Robbert RhoadesPauline RippyJohn & Tammy RoachCarolyn RobertsJan RobinsonNancy RossCharles RossRyan Ross, DDSJack L. Rost TrustTrudy SeaneyJohn SedletzekJim SharpRon ShepardHolly & Jon SilverRoy C. Simpson Jr., DDSMary SilversEric SmithForrest & Rebecca SmithJ.T. SmithWilliam SmithGreg Smith, DDSSuzanne SoulesGary Staadt, DDSHenry StadlerEdward StewartLynn StoeltingDean Strohm
Kathy SuttererLaurie TaylorTom SzymanskiTom & Joyce TaylorBrandon, Laurie, & Gracie
TaylorAndy ThompsonOscar ThompsonRebecca S. & Richard W.
ThompsonTom TingleyJudy TompkinsBruce E. & Jocyce TravisSara & Anthony TreashCindy TruebloodBill TurnerKatherine UtleyNeal WagnerBrian & Heather WalbornSeth WebbMatthew WelkerDenise WhiteCurt WilkinsonBrad WilliamsJanie WilliamsTed WilsonDonna WilsonScott WoelfleJo Anne YoungbloodAndrews Heating & Air
ConditioningBlue Star EnergyBob Bower FordBrazil Family DentistryBurger Chysler Jeep
Century 21Comfort KeepersEtheridge ChiropracticFirst Free Will Baptist ChurchFleschner, Stark, Tanoos, &
NewlinFrist Funeral HomeIndiana Business EquipmentIvy Tech Community CollegeJetzLogan’s RibeyeMalone Realty Martini Stirs, Inc.McGlone Law OfficeMidwest ContractingMike’s Auto WreckingModel CleanersPeffley Hinshaw Wrecker
ServicePfister & CompanyRacop LawRuss Fisher Truck PartsSG SolutionsSlagle Law OfficeSmock & EtlingSmudde Family DentistryTerre Haute EndodonticsUAP ClinicWabash Valley Central Labor
CouncilWetnight RVWright, Shagley, & Lowery
2013 Donors
9
Do you want to help United Cerebral Palsy of the Wabash Valley make an impact? Contact us about volunteer opportunities and participate in our annual events! Join us in improving the life and well-being of individuals with disabilities. Your support will help us make a difference!
