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UN CRPD & THE POST-2015
SUSTAINABLE DEVELOPMENT GOALS (SDG)
A 15-YEAR GLOBAL ACTION PLAN (2015-2030):
ADVOCACY FOR LMIC* HEARING CARE SYSTEMS
6TH GLOBAL HEARING HEALTH CONFERENCEGALLAUDET UNIVERSITY, WASHINGTON, DC
OCTOBER 8-10, 2015
Evelyn Cherow , MA, MPA; Founder & CEOGlobalPartnersUnited LLC &
Global teleRehabilitation Institutehttp://www.global-partners-united.com
WHAT ARE INTERNATIONAL DEVELOPMENT
FOCI, DRIVERS & TRENDS?
� Human Rights (Child, Girls/Women, Persons with Disabilities, Refugees, LGBT)
� Poverty Reduction & Economic Development (individual’s/nations’)
� Capacity Building (Human and Social Capital)
� Systems Strengthening and M&E metrics
� Sustainability & Scalability
� Country Ownership & Donor Preferences
WHO/World Bank
World Report on Disability (2011)
PREAMBLE
‘We have a moral duty to remove the barriers to participation, and to invest sufficient funding and expertise to unlock the vast potential of PWDs.
Professor Stephen W. Hawking
� 1 billion people (1 of 7) have a disability; 80% in developing countries
� 2-3% of children with disability attend school
� Population of people with disabilities is growing-why?� Aging of world population
� Life saving at birth and new treatments/ MNCH MDGs
� Effects of infectious & noncommunicable chronic diseases (NCDs)
� Nutrition, conflict and migration
Human &
Social Capital Foci:
Ex: Tech Access,
Literacy & InnovationCHWs, Malawi: eHealth Mapping
� Human Capital� Human labor as a commodity and resource within
economic systems; results from competencies, knowledge, habits, social and personality attributes—cognition, creativity, etc
� Social Capital
� The collective or economic benefits derived from preferential treatment and cooperation between individuals and groups; networks, crowd wisdom…
UN Convention on the Rights of Persons
with Disabilities (CRPD): FACTS
� Adopted on 12/ 13/2006 at the UN;
� Opened for signature on 3/30/2007;
� 1st comprehensive human rights treaty of 21st century;
� 1st human rights convention to be open for signature by regional integration organizations;
� The Convention entered into force on 5/3/2008;
� 1st treaty with stakeholders (PWDs) collaborating at UN in human rights treaty development.
CRPD CONSTRUCT
WHO ICF Model of
Disability & Function
+ Societal Inclusion
� Persons with disabilities as "subjects" with rights, capable of claiming rights, & making decisions for their lives based on their free and informed consent & being active members of society
� Not as as "objects" of charity, medical treatment and social protection
A Society Inclusion Model
vs. ‘Outdated Medical Model’:
CRPD National Disability Planning and Laws
UN CRPD: Treaty’s Unique Features
� Both a development and a human rights instrument
� A policy instrument which is cross-disability and cross-sectoral
� Legally binding� The Convention marks a ‘paradigm shift’ in attitudes
and approaches to serving persons with disabilities to a right- based framework.
� The Convention gives universal recognition to the dignity of persons with disabilities.
� CRPD Article 32: UN Millennium Development Goals will not be achieved if persons with disabilities are not included! Similar messaging for SDGs planning!
Ethiopia Lea McD School for the Deaf
(closed one month later)
The CRPD Ratifying LMICs’ Challenges:
Developing and Implementing
National Disability Plans
� Creating laws and regulations
� Enforcement for rights-based governance
� Limited workforce with knowledge and skills for early identification/intervention (MNCH), education, healthcare, and (re)habilitation inclusion
� Cultural and religious beliefs about disability
� Family awareness
� Prosthetic device manufacture, cost, distribution
� Program funding mechanisms to build and scale sustainable programs
Status of the CRPD Globally
(UN Enable; www.un.org/disabilities)
• 160 Signatory/159 Ratifying Nations
• Ratifying Nations report on CRPD progress at annual UN Conference of States Parties (COSP) meetings (recent June, 2015)
• SAMPLE CRPD Resources• CRPD Training Guide - PDF (OHCHR, 2014)
• It's about Ability! (UNICEF)
• World Federation of the Deaf: International Sign Language videos
• World Federation of the Deaf: National Sign Languages
� Education (Article 24)
� Health (Article 25)
� Habilitation and rehabilitation (Article 26)
All activities must include the participation of persons with disabilities:
‘Nothing about us without us’
CRPD Guiding Principle Alignment:
Cross-Sectoral Accessibility to…
CRPD Key Issues Under UN Study & more…
Gender Focus
Survives in SDGs
� MDGs & Disability
� Women & girls with disabilities
� ECCE/ECD-Early
identification/intervention
� Disability assessment and
statistics (UN Statistics Office,
UNICEF & Washington
Statistics Work Group)
� Disability and HIV/AIDS
� Mental Health & Development
� Disability, natural disasters and
emergency situations
� Indigenous persons with
disabilities
United Nations Millennium Development Goals
(MDGs, 2003-15; 189 countries)
* NO EXPLICIT TARGETS FOR DISABILITY
1. Eradicate extreme
poverty and hunger*
2. Achieve universal
primary education*
3. Promote gender equality
and empower women*
(e.g., microfinance)
4. Reduce child mortality*
5. Improve maternal
health* (focus on
maternal mortality,
FPRH)
6. Combat HIV/AIDS,
malaria and other
diseases
7. Ensure environmental
sustainability
8. Develop a global
partnership for
development
©GlobalPartnersUnited
SAVING MATERNAL & CHILD LIVES AT BIRTH:
MDGs GOALS 4 & 5 SUCCESS STORY CONTINUES
Post-2015 SDGs & Global Partnership
for Sustainable Development:
People, Planet, Prosperity,
Peace, Partnership--interlinkages
� Overarching aims: resolve extreme poverty & hunger
� Build on the Millennium Development Goals and complete what they did not achieve
� Realize the human rights of all and to achieve gender equality and the empowerment of all women and girls.
� They are integrated and indivisible and balance the three dimensions of sustainable development: the economic, social and environmental.
� Focused in particular on the needs of the poorest and most vulnerable and with the participation of all countries, all stakeholders and all people.
UN HIGH LEVEL GENERAL ASSEMBLY MEETING
ON DISABILITY AND SDGs DEVELOPMENT
9/23/13; &
COSP CRPD Annual Meeting, 6/2014
GOAL
� Integrate CRPD tenets
into planning post-2015
(targets for MDGs due)
for ‘sustainable
development goals’
� The unanimous 2013
GA vote adopting the
UN Outcomes
Document = Policy
support to achieve this
goal
PREMISE
� An end to poverty can’t be achieved without full inclusion of persons with disabilities including women and girls…’
� An estimated 2 trillion (6%) is lost to our global economy from lack of PWD’s societal participation’
‘Transforming Our world: The 2030 Agenda for
Sustainable Development’− UN Sustainable
Development Goals (SDGs; 2015-2030; Effective Jan 1, 2016)
� 9/25/15− UN Member States adopted the 2030
Agenda for Sustainable Development at the
UN Sustainable Development Summit.
� 17 goals; 169 targets
� More than 150 Heads of State and Government
attended the Summit at UN Headquarters in
New York.
� The 2 year negotiation process of the 2030
agenda featured the unprecedented
participation of civil society, including
organizations of persons with disabilities
alliances (IDA, IDDC, DPOs) and other
stakeholders.
SDGs and Hearing Health Care
Program & Systems: Implications
� Funding streams flow to UN SDG goals, targets and
the indicators monitoring & evaluation (M&E)
measurement framework,
� Healthcare was prominent in MDGs especially
outcomes achieved in Maternal, Newborn and Child
(MNCH) Mortality Reduction….
� But no real attention targeted in MNCH on
morbidity; i.e., early disability identification,
intervention, capacity building.
Post-2015 SDGs Build on MDGs:
2 Years of Consultations
� Goal 1. End poverty in all its forms everywhere
� Goal 2. End hunger, achieve food security and improved nutrition and promote sustainable agriculture
� Goal 3. Ensure healthy lives and promote well-being for all at all ages
� Goal 4. Ensure inclusive and equitable quality education and promote lifelong learning opportunities for all
� Goal 5. Achieve gender equality and empower all women and girls
� Goal 6. Ensure availability and sustainable management of water and sanitation for all
� Goal 7. Ensure access to affordable, reliable, sustainable and modern energy for all
� Goal 8. Promote sustained, inclusive and sustainable economic growth, full and productive employment and decent work for all
� Goal 9. Build resilient infrastructure, promote inclusive and sustainable industrialization and foster innovation
� Goal 10. Reduce inequality within and among countries
� Goal 11. Make cities and human settlements inclusive, safe, resilient and sustainable
� Goal 12. Ensure sustainable consumption and production patterns
� Goal 13. Take urgent action to combat climate change and its impacts*
� Goal 14. Conserve and sustainably use the oceans, seas and marine resources for sustainable development
� Goal 15. Protect, restore and promote sustainable use of terrestrial ecosystems, sustainably manage forests, combat desertification, and halt and reverse land degradation and halt biodiversity loss
� Goal 16. Promote peaceful and inclusive societies for sustainable development, provide access to justice for all and build effective, accountable and inclusive institutions at all levels
� Goal 17. Strengthen the means of implementation and revitalize the Global Partnership for Sustainable Development
UNICEF: ‘NO MENTION OF ASSISTIVE DEVICES OR REHABILITATION’
SDGs and
CRPD Tenets
� Disability is referenced in new SDG agenda items specifically� Education, � Economic growth and employment,� Inequality,� Accessibility of human settlements,� Data collection and monitoring….
� 7 targets explicitly refer to persons with disabilities, despite CRPD and COSP high level meetings on importance of disability integrated into SDGs targets and indicators.
� CSOs’ & DPOs’ representatives made statements again at the 9/25/15 Summit about attention to challenges and opportunities related to achieving the SDGs for all, including 1 Billion persons with disabilities.
� UN DESA/DSPS/CRPD Secretariat & World Health Organization (Disability data indicators)� A note was prepared in consultation with experts from international agencies and from
disability organizations. � Contributions from ILO, ITU, UNFPA, UN-Habitat, UNICEF and WHO are gratefully
acknowledged. � This note is supported by the UN Special Rapporteur on the Rights of Persons with Disabilities,
Disabled People’s International, International Disability Alliance and International Disability and Development Consortium.
UN COSP CRPD: Tech Access Panel (6/15)
� UNESCO Book: Investing against evidence: The global
state of ECCE (9/2015)
�World Bank Report Invest Early-ECD Driver for Result; Investing in ECD (2015); & Education 2020
� UNICEF Report: State of the World’s Children-Children with Disabilities (2013)
�USAID: First Principles-Designing
Effective ECD Programs Compendium
Early Childhood Development: LMICs’ & Developed
Countries’ ECD/ECCE Priority Policy Advocacy
Global Partnership on Children with Disabilities
(GPCWD): UNICEF Secretariat (260 organizations)
� NEW “Issue Brief: The Rights of Children with Disabilities”
www.unicef.org/disabilities/index_70277.html
� GPCWD Task Forces
� Early Child Development
� Inclusive Education
� Nutrition
� Assistive Technology
� Leadership & Mentoring
� Humanitarian Action
� Child Protection
� Physical Activity and Sport
� Youth Council
From CRPD: How accessible are the
activities of my organization (program)?
� Every aspect of an organization’s activities must be analyzed to ensure accessibility and inclusion. Examples:
� Do we require our partners/grantees to have policies and practices in place to ensure inclusion of persons with disabilities?
� Do we collect data on the number of persons with disabilities which benefit from our development activities?
� Do we design our development projects and programmes to ensure that persons with disabilities can participate and benefit?
� And many others…Medical director,
MCH
Clinic
Bangladesh
• WG Recommended Short Set of Questions
Collaborating with UN and UNICEF statistics offices
Q2.Do you have difficulty hearing, even if using a hearing aid?
1 - no difficulty, 2-Yes – some difficulty, 3-Yes – a lot of difficulty,
4- Cannot do at all
• WG/UNICEF Questionnaire on Disability
http://www.cdc.gov/nchs/data/washington_group/meeting13/wg13_unicef_child_disability_background.pdf
CRITICAL DISABILITY DATA: TOOLS
Disaggregation of Disability Data & Outcome Measures:
A Priority for SDGs, Data Harmonization & Knowledge
Economies for Development
9/22/15
� UN Permanent Mission of the Republic of Korea hosted experts from Member States, UN agencies and civil society at a meeting "The importance of disability indicators for measuring the implementation of the SDGs for Persons with Disabilities".
� The event was co-organised by the International Disability Alliance (IDA) and the International Disability and Development Consortium (IDD), co-sponsored by the Permanent Missions of Antigua and Barbuda, and Australia, UNICEF and DESA.
� DESA’s keynote address discussed options to include disability indicators in the SDG-indicator framework.
� 25 indicators were discussed, 15 of which can be obtained simply by disaggregating already collected data by disability
� Indicators are important to measure the progress of implementation of the new Agenda for persons with disabilities and to make sure that no one is left behind.
� Panelists noted that unless policy makers are provided with data on disability indicators and disaggregated by disability, they will not be able to make educated decisions, design policies and address gaps in the implementation of the sustainable development goals and related targets.
� The pre-UN General Assembly SDGs event also marked the launch of the Global network on monitoring and evaluation (M&E) for disability-inclusive development:www.un.org/disabilities/default.asp?navid=13&pid=1515
Global teleRehab Institute/GPU:
Creating a Sustainable, Scalable
Cross-disability, Cross-sectoral Ecosystem
� Co-create a consortium of academic and clinic/hospital institutions
� Coalesce cross-sector resources across training institutions via ‘twinning’
� Integrate global trends education into rehabilitation knowledge & skill building for Human RH
� Create community-based CBR CoPs for peer mentoring, M&E, & program data mapping,
� Co-design an e-/m-health/rehab PPP social enterprise model of operations for program design for sustainablility and scalability
� Integrate program goals and data collection with CRPD, MOH, MOEdMinistries
