UK Renal Data Collaboration UKRR Audit Day 25 June 2013
[email protected] Slide 2 Involves Registries (UKRR & SRR)
RPV Rare renal disease groups Patients Renal Association Renal
units Renal IT industries Data Governance NHS, HSCIC, DoH, ISD UK
Renal Data Collaboration Slide 3 Governance & Risks Guiding
Coalition Met in Edinburgh Nov 2012, 2 nd Meeting soon Chair Dr
Afzal Chaudhry Position paper available Risk Register Slide 4 Can
we develop a project that better supports what we do: Care for
patients data and info for patients Research basic and
epidemiology, traditional & novel Teach & learn Run the
services Quality improvement units could devolve some QI to the
registries prompts (Tx list), trends (infections)... UK Renal Data
Collaboration Slide 5 . Renal Units Slide 6 . UK Renal Data
Collaboration Labs Renal Units Slide 7 . UK Renal Data
Collaboration Labs Renal Units NHSBT Other National data Slide 8
RPV. Labs Renal Units UKRR SRR RaDaR NHSBT Other National data BAPN
UK Renal Data Collaboration Slide 9 hard to manage wasteful
summarised data cant be recovered perpetuates errors some unknown
>> bias eg RRT start date & unit lost in transfer
inflexible Slide 10 RPV. Labs Renal Units UKRR SRR RaDaR ?10-20 gps
NHSBT Other National data Warehouse Patient sees~all their data
BAPN UK Renal Data Collaboration Slide 11 RPV. Labs Renal Units
UKRR SRR RaDaR ?10-20 gps NHSBT Other National data Warehouse
Patient moves renal unit BAPN UK Renal Data Collaboration Slide 12
RPV. UK Renal Data Collaboration Labs Renal Units UKRR SRR RaDaR
?10-20 gps NHSBT Other National data HES, RGOS... Warehouse BAPN
other ukrdc_it_09b 17022013 Primary care eg drug prescription
Warehouse data viewable NHS net firewall Slide 13 Prerequisites:
Use 1) NHS and CHI numbers for patient id 2) real time
comprehensive electronic records 3) national & international
terminologies SNOMED CT, DM&D, eBNF, NLMC 4) information
standards eg FHIR from HL7 Need firm lead from RAs and CDs Relevant
to clinical governance if we hope to use IT to address eg CV
catheter infection UK Renal Data Collaboration Slide 14 Clinical
terminology SNOMED CT UK Renal Terminology Committee Membership and
expert Guidance from Professional Terminologists from HSCIC UK
Renal diagnosis subset Good links with ERA-EDTA Need good SNOMED CT
interface in Renal Units (paper to be issued by HSCIC) Hospitals
not encouraging use ?because paid by ICD9/10 No Teaching about it
in Universities, Colleges and Professional associations Slide 15
National Laboratory Medicine Catalogue (cross referenced to SNOMED
CT) Slide 16 PTH urate, Hb Slide 17 UK Renal Data Collaboration
Information Model 17 Presented by Peter Nicklin, HSCIC, 7 th June
2013 Slide 18 UKRDC Data Model big picture Slide 19 UKRDC Data
Model bigger picture Slide 20 UKRDC Data Model some headings Slide
21 External Collaboration 1) UK Renal IT suppliers 2) Health and
Social Care Information Centre member of renal terminology
committee SNOMED CT, Drugs Medicines & Devices data model data
transfer scheme advice on warehouse 3) Royal College of
Pathologists & DoH NLMC 4) Senior trainee interested in
participating Slide 22 RPV. UK Renal Data Collaboration Labs Renal
Units UKRR SRR RaDaR ?10-20 gps NHSBT Other National data HES,
RGOS... Warehouse BAPN other ukrdc_it_09b 17022013 Primary care eg
drug prescription Warehouse data viewable NHS net firewall
