Torbay and Southern Devon Stroke Book...Torbay and Southern Devon Stroke Book This book brings together a range of useful material, written in everyday language, to make it easy for

Torbay and Southern Devon Stroke Book

Information for people who have had strokes, and for

families, carers and friends.

2015

Torbay and Southern Devon Stroke Book

This book brings together a range of useful material, written in everyday language, to make it easy for you to find what you are looking for, when you need it.

It should not be used as a basis for taking, or not taking, any specific course of action in relation to your care, and is not a replacement for information that is given to you at hospital or by health professionals.

Always consult a qualified professional about your care.

This book has been produced voluntarily by the Stroke Association. Information has been checked for accuracy at time of publication. If you find that anything is out of date, we would greatly appreciate your letting us know.

Please contact:Stroke Association,George Earle WardHetherington UnitTorbay Hospital TQ27AA.

Torbay01803 655045 Mobile 07717 275848Email: [email protected]

Southern Devon01392 447361Mobile 07717 275802Email: [email protected]

Torbay and Southern Devon Health and Care NHS Trust, which commissions the Stroke Association to provide free independent support and information in Torbay and Southern Devon, paid for the printing of this book.

The inclusion of organisations and services is for information purposes, and does not constitute endorsement of any kind.

PDF copies of this book are available by email from: [email protected]

About Stroke

What is a stroke? 4

Effects of stroke 5

Reducing your risk 7

Community therapy 10

Local Support

Exercise options 12

Local services 13

Stroke Association 14

Emotions

Depression and anxiety 15

Stroke Groups

Torbay and South Devon Groups 18

Driving / Transport

Driving after stroke or ‘TIA’ 20

DVLA 20

Blue Badge 21

Disability

Disability Information 22

Alarm 22

Research

Clinical research 24

Getting involved 24

Care and Carer Support

Carers Assessment 25

Carer Support Services 25

Domiciliary Care and Housework 27

Benefits and Legal

Benefits help 29

Direct Payments 30

Decisions and Court of Protection 31

Further information

Stroke Association Factsheets 32

Disability Factsheets 34

Younger Stroke Survivors 36

Contacts

Local Stroke Phone Numbers 37

Help Directory 38

Useful Websites 41

Finding the right therapist 42

NHS Complaints 43

Glossary

Word Meanings 44

4 Torbay and Southern Devon Stroke Book 2015

What is a Stroke?What is a Stroke?

Every year an estimated 150,000 people in the UK have a stroke. A stroke is a brain attack. It is caused by a blood clot or a bleed in the brain which blocks the blood supply and causes brain cells to become damaged or die.

This can occur in two main ways:1. Around 80% of strokes are caused by a blockage. Blood to the

brain is transported through arteries from the heart. A clot, which can form in an artery or in another part of the body, blocks the artery, stopping the blood from reaching the brain, This is called an ischaemic stroke.

2. Up to 20% of strokes are caused when a blood vessel bursts, causing bleeding directly into the brain. This is called a haemorrhagic stroke.

You may have had what is called a TIA.A TIA (Transient Ischaemic Attack) is a ‘mini stroke’ where symptoms last up to 24 hours. It must be treated as a medical emergency, as a TIA often leads to a stroke.

The brain controls everything we do. A stroke causes damage to the brain, which affects how the body works and how you are able to make sense of the world around you.

Every stroke is different and people who have a stroke are affected in different ways. For some, the symptoms are mild and last only a short time. For others, stroke may cause severe and lasting damage. This depends on how and where in the brain the damage occurs.

Every stroke is different

TIA is a medical

emergency

Torbay and Southern Devon Stroke Book 2015 5

Effects of StrokeEffects of stroke can include:

VisionYou may have double vision or a variety of problems, such as loss of awareness of half or part of the space around you.

Weakness or paralysisThis is one of the most common effects of stroke. It usually happens on one side of the body. Your balance can also be affected.

Speech or languageMany stroke survivors experience difficulty speaking or understanding, and reading and writing.

EmotionsHaving a stroke can affect your moods. Depression, anxiety, apathy and mood swings can happen as a result of stroke. Your pattern of behaviour may change and you may react differently than you used to. It is normal to be upset, and to struggle initially. However this usually passes.

SwallowingAround half of stroke survivors have difficulty swallowing after a stroke. It can be dangerous if food or liquid gets into the windpipe or lungs. Excess saliva can be a problem.

Bladder and bowelsDifficulty controlling bladder and bowels is not uncommon. With an appropriate assessment and treatment, most people improve. Support services are available for those with ongoing problems.

CognitiveYou may experience problems with your memory, attention, concentration and coordination. You may also have difficulty recognising familiar objects or knowing how to use them.

FatigueMost people experience extreme tiredness after a stroke. You may also have trouble sleeping, which makes you more tired.

More on emotional support on

page 15

More on fatigue on page 17


Effects of StrokeSensationDisturbances in sensation, such as decrease or increase in sensation, unpleasant feelings of hot or cold, and tingling like pins and needles, can result from a stroke. A physiotherapist might be able to assist to ease some of these feelings.

Sexual FunctionStrokes, by themselves, are rarely a direct cause of sexual problems. But the stress brought on by a stroke is as difficult as any a couple can ever face. Sexual dynamics may be changed, at least temporarily, by problems such as inability to speak or paralysis of one side of the body. Difficulty in getting, or maintaining, an erection may occur.It is important to deal with the nuances of a new sex life after a stroke. Your GP may be able to offer you some help, or refer you to specialist support. Relate is an organisation that offers assistance for couples dealing with sexual or relationship issues.

BehaviourBehaviours can be changed in terms of your control over your emotions, and in how you react to others. Stroke often affects the ability to control emotions - this is called being ‘emotionally labile’. You might experience excessive crying or laughter, sometimes unrelated to what is going on around you. Emotional outbursts and uncontrolled swearing can result from stroke damage, and be as distressing to you as they are to other people.It is helpful for people not to over-react and to acknowledge that they understand this reaction is part of your stroke.Speak to your nurse or doctor about how to deal with it.

PainAs with many aspects of stroke, pain may persist for some time, but physiotherapy and other treatments are successful in many instances, and there are coping techniques that can be learned to help you manage long-term pain. See your GP. Stroke Association Factsheet 30 has information about pain management.

Most recovery happens in the first few months after a stroke, but you can continue to recover for several years.

Emotional supportpage 15

Relate contact page 39


A stroke is caused when something goes wrong with the blood flow.The major causes of this are:• Narrowing, hardening or weakening of the arteries (blood vessels)• Thickening of the blood

Some things that increase your risk can’t be lessened, including:• If someone else in your family has had a stroke• Older people’s arteries harden so they are more at risk• Men under 75 have more strokes than women• People of Asian, African or African-Carribbean origin are more at

risk• People with heart disease or diabetes are at higher risk

The following can help to reduce your risk, in order of priority:

SmokingSmoking doubles your risk of stroke. It causes artery damage and increases your chance of a blood clot.Stopping can cut your risk in half, no matter how long you have smoked.Smoking is discouraged if you want to avoid a stroke. Stop Smoking Service offers free support and advice for people giving up smoking. Torbay Stop Smoking Service: 0300 456 1006Devon NHS Stop Smoking Service: 01884 836024National Smoking Helpline: 0800 022 4332

Blood PressureBlood pressure is a measure of the force with which the blood presses on the walls of your arteries as it is pumped around your body. High blood pressure is the biggest risk factor for stroke.Blood pressure varies throughout the day.Ideally your blood pressure should be lower than 140/85, or 130/80 if you have diabetes.You may be prescribed medication to reduce your blood pressure. It is recommended you see your GP 6 weeks after your stroke, then after 6 months and 12 months.

Reducing your risk

Help to stop

smoking

Reduce your risk of

stroke


Reducing your riskAtrial Fibrillation If you have an irregular heartbeat or palpitations see your GP.

DietA healthy diet can reduce your risk of stroke, or can reduce risk of having a further event. It can also reduce risk of heart disease, diabetes and cancer. Your GP may prescribe medicines to control your risk; a healthy diet may improve how the medication works, and also blood pressure and cholesterol levels.Suggestions on how to change your diet to reduce risk of stroke:• Fruit and vegetables – at least a third of your diet, or 5 portions a day, eg an apple or banana, two plums, handful of berries.• For vegetables about 3 heaped tablespoons for one portion. • Have fruit as snacks.• Swap white flour foods and white rice, pasta etc. for whole grain foods. Whole grain products contain more B vitamins and fibre, which can be beneficial in reducing risk.• Protein – eat 2 portions per day of low-fat proteins in the form of lean meat, fish, eggs and vegetarian alternatives. Beans and pulses are high in protein, fibre and vitamins and minerals.• 1-2 portions of fish per week (one oily) reduces the risk of the main cause of stroke – a blockage to the blood supply to the brain. • Fluid – drink at least 6-8 glasses water and other fluidsReduce fat to control weight, and in particular “bad fats” such as saturated fats found in meat, dairy products, palm oil, ghee and coconut oil, and trans fats found in processed foods such as margarine, cakes, biscuits, pastries. These can lead to fatty deposits in arteries, and eventually blood clots, which increase the risk of strokes occurring.

General tips for reducing cholesterol:• Too much saturated and trans fats can increase the dangerous type of cholesterol in your blood. Healthier choices include olive oil and rapeseed oil for cooking, and use spreads based on these oils.• Regular exercise will improve the balance of cholesterol in your blood, and will also help reduce blood pressure.• Increase foods that contain fibre - oats, beans, peas, pulses, nuts, fruit and vegetables.• Eat 1-2 portions of oily fish per week – eg salmon, mackerel, sardines, trout, herring, pilchards.• Eggs, liver, prawns have little effect on your cholesterol levels.

Drink plenty of

fluid

Remember“Five a

day”


Reducing your riskSaltSalt may increase blood pressure, the biggest risk factor for stroke. Salt intake is difficult to measure because most in our diet comes from processed and ready-made everyday food. Tips:• Don’t add salt to food – try herbs, spices, garlic, lemon/lime juice and zest or chilli.• Reduce intake of salty snacks, ready meals and pre-prepared soups, and processed meats like bacon, sausages, meat pies, smoked fish.• Choose lower salt versions where possible in foods like bread, breakfast cereal, sauces, ketchup. • Use no more than 6g salt per day: this is the equivalent of 2.5g sodium. To work out total salt, multiply the sodium content on food labels by 2.5.

DrinkingDrinking alcohol raises your blood pressure. A unit of alcohol is a small glass of wine, or a half pint of weak beer. Men who drink more than 3 or 4 units a day, or women who drink more than 2 or 3 units a day, are at risk of stroke. Binge drinking is especially dangerous - drinking more than 6 small glasses of wine, or 3 pints of weak beer in 6 hours is binge drinking.Drinkline (National Helpline) 0300 123 1110Alcoholics Anonymous: Support for those whose lives are affected by alcohol 0845 7697555Drug and Alcohol Services NHS: advice, treatment, information and support for alcohol and drug users, their families, and friends. Includes prescribing, counselling, and onward referral to other agencies or rehabilitation centresTorbay 01803 604334Newton Abbot 01626 351144 (Rise Recovery)

CholesterolHigh cholesterol increases your risk of stroke. Your doctor can give you an individual plan to help keep it down.

Regular check-upsIt is recommended that you see your GP for a health check within 6 weeks of hospital discharge, then after 6 months, and then at least annually.

Salt may increase

blood pressure,

the biggest risk factor for stroke

See your GP within 6 weeks

after going home from

Hospital

Drug and alcohol support


Community TherapyCommunity TherapyPrior to your discharge from hospital, a decision concerning further rehabilitation at home will have been discussed with you. This can include physiotherapy, occupational therapy and/or speech and language therapyYou may be given a follow-up appointment before you leave hospital. If not, you will be contacted by the appropriate therapists from the community teams.If you haven’t been contacted or you do have specific concerns, please don’t hesitate to contact the hospital, or contact the appropriate therapists yourself.The community therapists will re-assess your needs and decide with you whether:1. Further treatment is required2. A future review date is set3. Discharge from their services is appropriateAfter discharge from the Community Stroke therapists, changes may occur in your mobility, communication, swallowing or daily living activities. If this occurs, you can contact the relevant therapist yourself for advice, or speak to your GP.More important than therapy, however, is what you do for yourself.It is important to keep as active as possible.

If you do have any queries at any time after your stroke, please do not hesitate to contact the following…

George Earle Ward, Torbay Hospital: 01803 656891

Teign Ward, Newton Abbot Hospital: 01626 324553

Torbay Community Neuro Rehab Team (CNRT): 01803 547157This team provides a service to enable early supported discharge from hospital for people living in Torbay, and specialist assessment and management for people with stroke and other neurological conditions. Community Neuro Team Teignbridge 01626 324550This team provides a service to enable early supported discharge from hospital for people living in Teignbridge, Dartmouth and Totnes areas. It also provides specialist assessment and management for people with stroke and other neurological conditions for residents of Teignbridge.

Don’t hesitate to contact the hospital, or contact the appropriate therapists yourself.


Kingsbridge Rehabilitation Team & Falls Clinic at South Hams Hospital 01548 855974 or 01548 852349. This team provides rehabilitation after early supported discharge (if required) and assessment and management of people with stroke in Kingsbridge

Totnes Rehabilitation Team 01803 862622This team provides rehabilitation after early supported discharge (if required) and assessment and management of people with stroke in Totnes.

Dartmouth Rehabilitation team 01803 837350This team provides rehabilitation after early supported discharge (if required) and assessment and management of people with stroke in Dartmouth.

Complaints about NHS servicespage 43


ExerciseIf you have reduced movement since your stroke, the physiotherapist may have given you some specific exercises. It is important to keep working with these to help your recovery. General regular exercise also helps to reduce blood pressure and control weight. If able, you should aim to exercise for at least 30 minutes, 3 times a week.When exercising you should aim to be slightly out of breath but still able to hold a conversation. If you are not able to exercise to this level, any activity at all will still be beneficial. If you want more advice about exercising, please contact one of the physiotherapists or your GP. There are a number of exercise programmes that you may find useful. Your Physiotherapist or Occupational Therapist are good people to talk to about exercise programmes.

For information about some of the local exercise groups in your area please contact your local Stroke Association Coordinator on 01392 447 361 or 01803 655045

It is always advisable to speak with a health professional before starting an exercise programme.Options include:

Torbay Fit Bay: Gym exercise10-week supervised exercise programme to which you can be referred by your doctor, practice nurse or other health professional. There is a Fit Bay Graduates Class at Barton Gym for those who have completed Fit Bay. For further information please call the Healthy Lifestyles Team on 0300 456 1006 or email [email protected].

Torbay Swimming Pool exerciseSwim Torquay, at Plainmoor Pool has sessions on Tuesdays and Thursdays for people recovering from strokes. Call 01803 323 400 or 01626 367151 for details.ACE (Access to Community Education): Leisure activities for physically disabled people and carers, including pool exercise sessions at Clennon Valley and Brixham. Call 01803 853302.

Torbay Stroke Association Peer Support Exercise GroupGentle exercises with a fully trained instructor. Exercises you can

Exercise options

for stroke survivors

Exercise


Exercise, and Local Supportlearn to do at home without specialised equipment. Free 10-week courses. To get involved call 07717 275848.

Strength and Balance Exercises for Healthy Ageing, and Bay Walks.Regular exercise and strengthening techniques to help prevent people from falling and fracturing bones or sustaining other injuries. Bay Walks is a programme of regular led walks in Torquay, Paignton and Brixham. Strength and Balance, and Bay Walks are coordinated by the Healthy Lifestyles Team, part of Torbay and Southern Devon Health and Care NHS Trust.Contact the Healthy Lifestyles Team on 0300 456 1006.

Devon Exercise Referral SchemeExercise Referral Schemes enable healthcare professionals to recommend you to an exercise programme in order to support your health and wellbeing and quality of life. The services are provided by a number of leisure centres in Devon and operate through qualified instructors who design and work through a personalised programme of exercise with you. A programme will normally include an initial one-to-one consultation, followed by a 12-16 week programme. The services are paid for by you, although many leisure providers offer the services as part of a membership scheme or offer concessionary rates.To be referred on to these services speak to your GP, Nurse, Physiotherapist or Healthcare Assistant.www.devonhealthandwellbeing.org.uk

Hannahs at Seale-HayneHydrotherapy, support, and a wide range of activities for people with disabilities are offered at Hannahs, near Newton Abbot.Call 01626 325800 for details.

Newton Abbot Leisure CentreSpecial swim sessions for people with disabilitiesCall 01626 215660 for details.

Age UK offers a wide range of services, including support, advice, a Handy Person Service, Befriending, the Days Out Care Service and benefits assistance for those over 55. 01803 5551810800 1696565


Local SupportHousingTorbay:Torbay Housing Needs Team can be contacted in the first instance about any issues relating to housing. 01803 208723Devon: For information about affordable housing options in Devon, contact Devon Homechoice on: Exeter City Council 01392 265889South Hams District Council 01803 861234Teignbridge District Council 01626 361101

WestbankWestbank aims to promote and improve the health and wellbeing of people in the local community, across Devon, and beyond. They offer a range of services and opportunities to meet different needs. This includes providing health and wellbeing services and facilities for the local community, providing support for isolated and vulnerable people across Devon and promoting social action and volunteering. 01392 824752. www.westbank.org.uk

Stroke AssociationThe Stroke Association is a charity that provides information and support for stroke survivors, carers and families. Stroke Association Coordinators are funded by the NHS to visit you at home, to provide assistance, essential information and emotional support - someone to talk things over with. They will help you identify and achieve your goals, and work with you to help ensure your needs are being met as you return to life after stroke. The service offers:• Home visits for information and support.• Help with finding how to get your needs met, including information

and help with contacting professionals and other organisations. • Peer Support: Opportunities to learn and gain support from other

stroke survivors and carers, through support groups, one-to-one peer support, telephone calls and email.

• Events at which you can learn more about stroke and prevention.• Volunteering opportunities. • Helpline 0303 303 3100: get your questions answered.• www.stroke.org.uk for lots of information.Contact your local coordinator:

Torbay 01803 655045 or mobile 07717 275 848South Devon 01392 447362 or mobile 07717 275 802

Housing Support


Emotional recovery A stroke is an unexpected and frightening event for anyone to go through and, although everyone copes differently, it is ‘normal’ to struggle or feel overwhelmed at times.A stroke can affect any area of your life and it is hard to predict how someone will be affected immediately after or in the longer term. Many people feel worried, angry or uncertain about the future and you might find yourself feeling a range of difficult emotions as you adapt to changes in your life. We often experience big shifts in how we feel (sometimes labelled as ‘mood swings’), and this is part of how people adjust to such a major life event. Many people are critical of themselves and feel that they should be ‘doing better’ but it is usually more helpful if you can find ways to be kind and patient with yourself. For instance, understanding that being in hospital and going through rehabilitation might be very helpful, but they are also challenging experiences and can be difficult.Sometimes it is hard to feel motivated throughout the process of recovery. Changes in motivation happen to most people, but family, friends and healthcare professionals can help you keep focused and energised so that you can achieve your goals. Some people might seem apathetic and may find it hard to identify emotions, or be disconnected from how they feel. Some of us are not used to being cared for in this way. If you were more independent before the stroke, it might be hard to accept support. Remember, you are important and you do deserve support.

Why do I feel so low? After a stroke, people can feel anxious, unhappy, angry or upset. These feelings come and go, and fears about the future (even returning home) can be difficult to bear. You and your family are likely to be affected but might have different feelings. This can be difficult and often you may feel like nobody understands. Meeting other stroke survivors can help you feel understood and connected to others. The same applies to carers, so meeting other people in the same situation can be very helpful. All of these reactions are a normal part of the emotional adjustment that people make when they experience a traumatic or shocking event, and sharing our experiences is usually helpful. This can be in a group or with just one other person.Some people do become depressed or very anxious after a Stroke and this can have a negative impact on their recovery. These changes can pass with time but there is help available as well. It is a

Emotions


Emotionsgood idea to tell your GP or health professional, who will be able to help you monitor your wellbeing and access further support, which might include medication or talking to someone who has the right expertise. Why do I feel so tired? Almost everyone who has a stroke complains of fatigue. Your brain has had some damage as a result of your stroke and is having to work much harder to do some of the things you used to do automatically. This tiredness can be especially frustrating when you are trying to put effort into your rehabilitation. It can sometimes be difficult for others to understand your tiredness. Some helpful tips for dealing with tiredness include:• Be sensible about the amount you can do at one time. It will not

always be realistic to expect yourself to be as efficient as you were before your stroke.

• Rest when you need to and avoid becoming completely exhausted. Pushing yourself makes things worse.

• Set small goals, and celebrate achieving them. It can be very frustrating if we set unrealistic targets for ourselves and then fail to meet them.

What support is available?A ‘stepped approach’ is provided to offer emotional support to stroke survivors.1. Peer support, starting on the hospital wards, and in the

community via the Stroke Association and local stroke groups. 2. Psychological therapies offered by the Depression and Anxiety

service.3. Referral to Mental Health teams or Neuropsychology.

The Neuro Rehabilitation Team can offer advice on how to cope, as well as whom to contact, and your GP will be able to advise you on the range of treatments available.

People who have had strokes say that it is most important that you know that help is available. If you feel stuck please do make sure you talk to the Stroke Association or contact one of the support organisations in this book.


Below is a summary of different sources of support available locally and nationally

Self Management for Life ProgrammeA free short course that offers adults with chronic health conditions the chance to develop their skills in coping with the difficulties of long- term health problems.The course is led by tutors who themselves are living with long-term conditions. It provides a small group of participants with a supportive approach to problems of fatigue, pain, isolation and frustration. Relaxation, managing symptoms, exercise and nutrition are also covered.To find out more call 0800 988 5560. Depression and Anxiety ServiceThis is an NHS psychological therapy service for people who are feeling stressed, anxious, low in mood or depressed. Your GP can refer you, or you can refer yourself by phoning: Torbay 01803 696600South Devon 01626 203500

Health Promotion Devon (HPD) The Health Trainer Service provides a one-to-one behavioural change model. Health Trainers are available for individual appointments to develop a more health-enhancing lifestyle.This might be to increase physical activity, address weight management, or reduce alcohol consumption etc.South Devon 01884 836024Torbay 01803 208840 (Healthy Lifestyle Team)

Samaritans Confidential and emotional support available to everyone 24 hours a day, 365 days a year. Samaritans National Telephone 08457 90 90 90

Cruse Bereavement Care Provides help, support, advice, counselling and information on practical matters at local branches to anyone who has been bereaved.Cruse: 0844 477 9400www.cruse.org.uk

Emotions

Bereavement

Help with depression and anxiety


Stroke GroupsStroke GroupsStroke groups are for those affected by stroke and for carers. No-one understands a stroke as well as someone who has had one. Groups provide an opportunity to meet others, gain encouragement, and share strategies for rehabilitiation. They help to rebuild confidence.

Torbay Stroke HUB at Paignton Library. Peer support and information drop-in for stroke survivors and carers. Confidence building, sharing and communication. Meet people with similar interests. Cafe.Every Monday at 11.00am.First floor, Paignton Library (opp bus station)TQ3 5AG.

Torbay Peer Support Exercise Group. For joint or muscle stiffness or flexibility. Carers can also learn to support stroke survivors. Individual programmes developed for home exercise. Paignton. Please phone 07717 275848 to find out more.

Torbay Younger Womens Stroke Survivor Group.Peer support: stroke survivors supporting each other. Coffee and communication in a nice cafe in Paignton. Tuesdays at 10.30amPaignton. Please phone 07717 275848 to find out more.

Torbay Younger Mens Stroke Survivor Group.Peer support: stroke survivors supporting each other. Coffee and communication in a nice hotel in Torquay. Wednesday at 11.00am.Torquay. Please phone 07717 275848 to find out more.

Torbay Strokes ‘R’ Us. Volunteer-led group for stroke survivors and carers. Information, support, activities, speakers, crafts, games, refreshments. Alternate Thursdays from 2.00-4.00pm.Windmill Centre, Pendennis Road, Hele, TQ2 7QR. 01803 324157.

Babbacombe Communication Group.Peer support: stroke survivors over 60 supporting each other. Coffee and communication in a nice hotel in Torquay. Tuesdays at 10.30am. Please phone 07717 275848 to find out more.

Torbay Stroke Survivor Computer Group.For stroke survivors who have never used a computer, or those who would like to develop their skills.

Groups provide

invaluable support

from other stroke

survivors and carers


Stroke GroupsStroke survivor-led group. Paignton. Please phone 07717 275848 to find out more.

Totnes Stroke Group30 Home Meadow, Warland, Totnes, TQ9 5XY.2nd and 4th Tuesday each month 2.00-4.00pm. Chair-based yoga available. Lisa Woods 07795550980

Dawlish-Teignmouth Stroke Support GroupBitton Park Court, Bitton Park Road, Teignmouth. First Wednesday of month 2.00 - 4.00pmKate & Alan Vanstone 01626 889578 or Irene & Terry Fletcher 01626 890329

Kingsteighton Stroke Group - Strokes AheadRydon Hall, Rydon Road, Kingsteighton.Mondays 2.00-4.00pm, every two weeks.Keith & Susan 01803 316845 or Monica 01626 201727

Kingsbridge Phoenix Stroke Group 2nd Monday in the month 2.00-4.00pm Age Concern, Ibert Road, Kingsbridge. TQ7 1DZSarah Freedman 07702 269490

Kingsbridge Drop-in Coffee Morning for CarersHarbour House Café. The Promenade, TQ7 1JDSarah Freedman 07702 269490

Ivybridge Stroke Drop-in SessionIvybridge Library, The Watermark, Erme Road, PL21 0SZ.Chair based yoga available.Every second Wednesday in each month 2.00-4.00pm.

Dartmouth Stroke Support GroupTown Hyne House, Strete, 1st Tuesday in the Month 2.00-4.00pm

Newton Abbot Stroke Support GroupNewton Abbot Library, Passmore Edwards Centre Call 07717 275802 for more information (4-6 weeks stroke education courses)

Your Voice Stroke GroupCromwell Arms, Fore Street, Bovey Tracey.TQ13 9AE.Monthly Mondays 2.00-4.00pmContact: Georgina 07879 698681or Paul 07745 379363.

No one understands

stroke as well as

someone who has had one


Driving / TransportDriving after a stroke or a TIAThe medical standards specify that if you have a licence to drive a car or motorcycle (category B licence) you are not allowed to drive for at least one month after a stroke or TIA. You may resume driving after this period if your doctor says you have made a satisfactory recovery.If you experience frequent TIAs over a short period of time you may be required to have three months free of TIAs before resuming driving and you will need to notify the DVLA (Driver and Vehicle Licensing Agency).If you have a licence to drive a large goods vehicle (LGV) or a passenger carrying vehicle (PCV) you are not allowed to drive vehicles under this licence for one year and you will need to inform the DVLA. If you have any doubts as to your right to drive, discuss the matter with your doctor.

Do I need to notify the DVLA?During the first month after your stroke or a single TIA, although you are not allowed to drive, you are not required to notify the DVLA.You must notify the DVLA if any of the following apply:• You have experienced multiple TIAs over a short period of time.• Your condition worsens at any time.• You have experienced any form of epileptic attack, other than

ones within the first 24 hours following the stroke.• Treatment for your stroke included brain surgery.• You have experienced more than one stroke in three months.• Your doctor expresses concern about your fitness to drive.• You hold a current Large Goods Vehicle (LGV) or Public Carrying

Vehicle (PCV) licence.• You have residual neurological deficit at a month, such as loss of

visual field, or significant weakness.

DVLASwansea, SA99 1TU. Tel: 0300 790 6806Website: www.dvla.gov.uk Email: [email protected]

Vehicle Adaptations and Driving AssessmentCornwall Mobility Centre works with Devon Drivers Centre offer• Car adaptation assessments.• Specialist car seats and restraints, including fitting wheelchair

accessible vehicles.

DVLAAddress

You are not allowed to drive for at least one

month after a stroke or

TIA.


Driving / Transport• Getting passengers and equipment in and out of a car safely.

Driving tuition.Cornwall Mobility Centre 01872 254920www.cornwallmobility.co.uk

Your Devon GP can refer you for a Road Fit Assessment or you can self-refer to ‘Driving Safer for Longer’. For more info please call 0345 155 1004 email [email protected]

Concessionary Bus Travel SchemeThe National Bus Pass in England entitles the pass-holder to free off-peak travel on local buses anywhere in England. Available to older people or those with certain disabilities. Application forms can be got from libraries, Connexions or Stagecoach offices, orDevon County Council, County Hall, Exeter, EX2 4QDTelephone: 01392 383688. www.journeydevon.info

Transport InformationTorbay Disability Information Service has an information sheet detailing wheelchair-accessible taxi firms, ambulance services and local and voluntary services. Torbay Disability Information Service 01803 546474

Blue Badge SchemeThe Blue Badge Scheme allows you to park close to your destination. Devon: Care Direct 0345 1551 007.Disability Information Service 0845 1551 005. Email: blue.badge@ dft.gsi.gov.uk.Torbay: Blue Badge Scheme, Castle Circus Health Centre, Abbey Road, Torquay, TQ2 5YH. Call 01803 217700.

Parking PermitDisabled Persons Parking Permits allowing you to park in many Council car parks are available. There is an annual fee. For more information contactTorbay Parking Team, PO Box 422, Torquay, TQ2 5WU01803 207653www.torbay.gov.uk/parkingpermits

Blue Badge

Driving assessment


Driving and DisabilityDevon Parking Permits www.devonpermits.orgMyDevon Customer Service Centre on 0345 155 1073

Ring and Ride and Voluntary TransportRing & Ride Schemes aim to provide transport for people who find it difficult to use public transport, or who live remotely.Dawlish 01626 888777Kingsbridge (WRVS) 01548 853259 Ivybridge 01752 690444Newton Abbot 01626 335775Totnes & Dartmouth 01803 867878Torbay (Fare Car) 01803 207687 - for application form for reduced fare taxi scheme, if eligible.MotabilityThe Motability scheme enables people with disabilities to obtain cars, powered wheelchairs or scooters, using government-funded mobility allowances.Motability, City Gate House, 22 Southwark Bridge Road, London SE1 9HB 0300 456 4566 www.motability.co.uk

HolidaysTorbay Disability Information Service produces an up-to-date Fact Sheet on holiday and travel information for people who have disabilities. Call 01803 546474 and ask for Factsheet P09.Holiday InsuranceThe Stroke Association Factsheet 27 has further holiday information about going on holiday, insurance companies and specialist tour companies (see page 32).

Falls If you are experiencing falls, it is advisable to ask for an assessment. Torbay - 01803 219700 (NHS Trust)Devon - Care Direct on 0345 155 1007.

Personal Alarm: Community Alarm ServicePuts you in touch with an emergency alarm centre in seconds. A small pendant radio trigger is clipped to the clothing or worn around the neck. It can be rented at a reasonable cost. Torbay Lifeline Community Alarm Centre, 0300 456 4861

Are you having falls?

Personal Alarm


Disability InformationTelecare Devon, Care Direct on 0345 1551 007

Torbay Disability Information Service 01803 546474

Devon Disability Information Service 0345 155 1005

Toilet KeysRADAR administers the National Key Scheme (NKS) which offers use of locked public toilets around the country. RADAR Keys can be purchased from English Riviera Tourist Centres. Maps of toilet locations are also available.020 7250 [email protected]

Connect is a charity for people living with aphasia, a communication disability which usually occurs after stroke. They have a number of resources available.Connect 020 7367 0840 www.ukconnect.org

The Independent Living Centre In Newton Abbot, which provides advice, assessment and the opportunity to try out a range of community service equipment. Independent Living Centre: 01392 380181Email: [email protected]: www.devon.cc.ilc

Equipment LoanBritish Red Cross loan and sell equipment to aid mobility. They have a delivery service across Torbay (£10).Newton Abbot 01626 369731Exeter 0845 331 3331

Council Tax - disability property adaptionsIf you have a disability and your property needs certain adaptions to meet your needs, you may be entitled to a reduction in the amount of Council Tax you have to pay.The adaptions must be essential or of a major importance to someone with a permanent and substantial disability. The person who is responsible for paying the Council Tax must apply even if it is another person living in the property who has the disability.Torbay 01803 207201

Disabled toilet keys

Council Tax

reduction for property adaptions

Disability Information Factsheets

Page 34


Research and getting [email protected] Devon Adult Care and Support: 0345 155 1007Clinical ResearchTorbay Hospital and Torbay and Southern Devon Health and Care Trust actively promotes and supports a wide range of clinical research as part of the core work of the NHS. Some studies are stroke specific; others look at issues relating to stroke, like diabetes and cardiac conditions.Clinical research provides information to enable doctors to compare current treatments with potentially better ones.Some studies aim to improve treatments to prevent a stroke, and others aim to improve the diagnosis, care and treatment for people who have had a stroke, during both the acute and rehabilitation phases. If you are a hospital inpatient, or attending one of the Stroke or TIA clinics, the doctors may ask you to consider taking part in a study. As part of the National Institute for Health Research (NIHR) “It’s OK to ask” campaign. We need patients to ask about research to keep it at the top of the NHS agenda.If you choose to say “no” we will respect your wishes, and your standard of care will not change.Use the following links to find out more about researchwww.crncc.nhir.ac.uk/oktoask - OK to Ask Campaign.www.crncc.nihr.ac.uk/ppi - clinical research and how to get involved.www.ukctg.nihr.ac.uk – a database of UK research trials.Or you can contact the NHIR: 0300 311 99 66Email: [email protected] contact the Research Team based at Torbay Hospital:01803 656617

Volunteering for the Stroke AssociationThere are different roles available, from one-to-one peer support for stroke survivors who are unable to get to groups, to running stroke groups, helping at events and office admin. To find out more: Stroke Association CoordinatorTorbay 01803 655045Southern Devon 01392 447362

Healthwatch DevonHealthwatch Devon is a ‘consumer champion’ in health and care. They have powers to ensure the voice of the consumer is strengthened and heard by those who commission, deliver and

Getting involved in Research


Caring regulate health and care services. If you want to have your say call them on 0800 520 0640 www.healthwatchdevon.co.ukCaringLooking after yourself and making time to relax is very important if you are a carer. If you try to continue day after day without a break, you can risk illness, stress and depression.This section aims to provide brief information about the services available in Torbay and South Devon, and explains your rights as a carer. You can obtain more detailed information from the services below, or from your GP surgery.

Carer’s AssessmentThe Carers (Equal Opportunities) Act 2004 places a legal duty on local authorities to inform carers of their right to an assessment of their needs for a caring role. The carer’s assessment should look at whether you wish to continue caring and your needs. This is not an assessment of how good you are at caring, but is about the support that may be available to help you in your role as a carer.Contact: Torbay and Southern Devon Health and Care NHS Trust 01803 219700.

Torbay Hospital Carer SupportThe Torbay Hospital Support Worker for Carers can offer help for those faced with caring responsibilities, or those struggling to manage. Support is given to ensure a carer’s own needs are taken into account during discharge planning and in the immediate period beyond. A Carers Assessment can be completed and a variety of services accessed. 01803 [email protected]

Signposts for Carers – information and adviceSignposts for Carers is a specialist information and advice service for unpaid carers in Torbay. The service is part of Torbay and Southern Devon Health and Care NHS Trust. Chadwell Annexe, Torquay Road, Paignton TQ3 2DW01803 666620. [email protected]

Devon Carers provide information and support services for carers in Devon. Helpline 08456 434 435www.devoncarers.org.ukBenefits to carers include:


Caring• Contact with someone to give you advice and support• Access to Flexible Breaks Grants for help towards a holiday,

hobby or leisure activity.• Access to Take a Break sitting service, providing subsidised

short breaks to give you time off from caring.• A Carer Alert Card to ensure the person you care for gets help

if something unexpected happens to you.• A regular newsletter with information about events in your area.

Torbay GP Surgeries Carer Support WorkersGP Surgeries in Torbay have Carer Support Workers whose aim is to support carers, and link carers to other support services and agencies. Ask at your surgery.

Emergency CardThe Emergency Card is a free service to give carers peace of mind when away from home. The card enables a pre-planned emergency support plan to be put in place if you are unable to return home because of an emergency. Signposts for Carers: 01803 666620.Devon Carers: 08456 434 435.

Torbay Carers Education & Training Regular training courses in Torbay. Support for the cared-for person can be put in place to allow carers to attend. Most courses are free. Signposts for Carers 01803 666620Devon Carers Education & TrainingA regular programme of training courses are arranged for carers in Devon. Devon Carers: 08456 434 435.

Breaks from caringTorbay and Southern Devon Health and Care NHS Trust provides a range of breaks for carers. It may be possible to arrange day care in a day care centre or to join with a small group of other people in a trained person’s own home for activities. Signposts for Carers 01803 666620 Devon Carers on 08456 434 435

Crossroads CareFree one-to-one support service for unpaid carers and their families. Helping carers in meeting their needs, and organising breaks. Other support includes advocacy and help with paperwork and forms.Crossroads Care 01803 323510

Carers breaks

Carers training


Caring

Emotional Support SchemeYou may be entitled to use the free Emotional Support Scheme for Carers if you are caring in Torbay. The Scheme provides 10 free sessions with a qualified counsellor.01803 666620 – Signposts for Carers, for further information.

Younger CarersEmotional and practical support for younger carers in Torbay.Torbay Young Carers’ Service 01803 208657.Devon Younger Carers 08456 434 435.

Torbay Carers Telephone LineA confidential telephone line run by voluntary carers to provide support. More information from Val Shute on 07596 103291.

Practical helpFollowing an assessment by Torbay and Southern Devon Health and Care NHS Trust, if the person with a long-term health condition or disability meets the current Fair Access to Care criteria, the following services may be provided: • Aids and adaptations such as handrails, bathing equipment. • Help with getting in and out of bed, washing and dressing.• Day care facilities for recreation or therapy.• Help with home maintenance and handyman services.• Laundry/incontinence services.• Meals on wheels.Torbay: Signposts for Carers 01803 666620South Devon: Care Direct 0345 155 1007

Domiciliary (Personal Care) AgenciesTorbay Disability Information Service Information Sheet P05 ‘Domiciliary Agencies’ gives contact details and ratings of agencies that provide personal care, help with washing, dressing and toileting. Torbay Disability Information Sheet P11 ‘Housework, Domestic and Laundry Services’ gives contact details of local agencies that provide housework, shopping, domestic and laundry services, meal preparation and letter-writing.01803 546474 Email: [email protected] Disability Information Service holds a community directory of services and agencies that provide personal care such as help with washing, dressing and toileting. These agencies may also be

Younger carers


Caringable to provide help with domestic tasks such as shopping, cleaning, letter writing, laundry and ironing.0345 155 [email protected]

Care HomesFor some people there comes a time when they realise that despite how hard they try, and how many outside services might be available, remaining at home is no longer an option. When faced with this, you will be assessed by a professional health worker and advice will be given on the type of care home that should be chosen. Age UK’s Fact Sheet 20, ‘NHS Continuing Healthcare and NHS funded Nursing Care’ is available (www.ageuk.org.uk/publications/).

Torbay Disability Information Service has information sheets with details of care homes in Torbay. 01803 546474.

Devon Disability Information Service 0345 155 1005.

Care Quality Commission can provide independent information on Care Home and Domiciliary Care organisation ratings.Call 03000 616 161. You can also look up the ratings of individual Care Homes online at www.cqc.org.uk

Care Home ratings


There are many benefits which you or your carer may be entitled to. Benefits are very complex. It is important to get impartial advice.

If you want to contact the benefits service yourself:Disability Living Allowance helplineTelephone: 0345 712 3456.Attendance Allowance helplineTelephone: 0345 605 6055.Personal Independance Payment helplineTelephone: 0345 850 3322.Employment Support Allowance HelplineTelephone: 0800 055 6688.www.gov.uk/benefits

Agencies that can help you with benefits include:

Citizens Advice BureauFree, impartial and confidential advice on:• Entitlement to benefits• Employment rights • Consumer issues• Legal issues• Housing problems• TaxTo find your nearest office, contact the National Helpline: 03444 111 444

Torbay Disability Information Service 01803 546474

Devon Disability Information Service0345 155 1005Email: [email protected].

Living Options Devon 01392 459222Email: [email protected]

Age UK Torbay 01803 555181.Age UK Information and Advice Helpline: 01803 841832Age UK Devon0845 296 7810

Get impartialadvice on Benetits

Benefits


Care Direct Devon can offer information and advice regarding benefits and other entitlements: 0345 1551007.

If you are unable to phone through to the numbers, or areunsure of how to get help with benefits, please contact the Stroke Association on 01392 447 362. We will help to refer you to someone who will be able to give you information and support in completing application forms for benefits.

StepChange (Debt Charity)Information and help to manage debts, deal with creditors and advice on how to look after your money.0800 138 1111www.stepchange.org

Direct paymentsOnce the services that you can receive have been agreed, you can choose if you prefer to arrange the services yourself, and receive a Direct Payment.Using the payment to employ your own care worker gives you flexibility, though it makes you an employer with responsibilities, including tax and national insurance, holidays, sickness, redundancy etc. For assistance and information, contactTorbay and Southern Devon Health and Care NHS Trust01803 219700Devon Direct Payment Finance Team01392 383126

Disability Focus 01803 867968, and Disability Support 01803 215871 are not-for-profit charities that can help manage direct payments and provide a payroll service.

Care Act 2014Some changes under this legislation include:• Local councils’ new duty to promote people’s wellbeing will now

apply not just to users of services, but also to carers. • People receiving care and support from a regulated provider and

arranged by their council, whether in a residential setting or at home, will now be covered by the Human Rights Act. However, the provision will not apply to people paying for their own care.

• Councils must now enable people to access independent financial advice to help steer them through the complexities of care funding. Such advice must be accessible to all, so it cannot

Benefits - Financial

Get impartialadvice on

debt


Legalbe simply online, and must be “proportionate” to an individual’s needs, including advocacy where appropriate.

• People may appeal against council decisions on eligibility and funding for care and support.

Making DecisionsThe Mental Capacity Act 2005 sets out what should happen when someone lacks capacity to make decisions and allows people to appoint someone to make their health, welfare and/or financial decisions if in the future they lack capacity to make these decisions. This person is appointed via a formal document called a Lasting Power of Attorney (LPA). There are two different types of LPA:• A personal welfare LPA is for decisions about health and personal

welfare.• A property and affairs LPA is for decisions about finances.For further information, Signposts for Carers Torbay 01803 666620.Carers Trust Devon 0844 800 4361

Court of ProtectionThe Court of Protection is a court that makes decisions for people who are unable to do so for themselves. It can also appoint someone (called a deputy) to act for people who are unable to make their own decisions. Court of Protection 0300 456 4600 BanksIf you need to have access to another person’s bank account, you can contact the bank to arrange a third party mandate.If you need to help someone collect their pension or benefits, contact your local Department for Work and Pensions office about becoming an agent or appointee. An agent collects someone’s benefits. An appointee deals with all aspects of benefits for someone who cannot act for themselves. Work and Pensions 0345 606 0265 www.gov.uk

Stroke Association Fact sheets

Power of Attorney


Stroke Fact sheetsThese fact sheets are available free to download from www.stroke.org.uk/eshop, where you can also order copies. Or ask your local Stroke Association to get them for you:01392 447362

01 Transient ischaemic attack (TIA)

02 Driving after stroke

03 Communication problems after stroke

04 Stroke: A carer’s guide

05 Swallowing problems after stroke

06 High blood pressure and stroke

07 Cognitive problems after stroke

08 Healthy eating and stroke

09 Stroke in younger adults

10 Depression after stroke

11 Blood-thinning medication after stroke

12 Continence problems after stroke

13 Alcohol and stroke

14 Speech and language therapy after stroke

15 Diabetes and stroke

16 Physiotherapy after stroke

17 Occupational therapy after stroke

18 Fatigue after stroke

19 Smoking and the risk of stroke

20 Accommodation after stroke

21 Stroke in African-Caribbean people

22 Balance problems after stroke

23 Bereavement and stroke

24 Epilepsy after stroke

25 Haemorrhagic stroke


Stroke Fact sheets26 Atrial Fibrillation and stroke

27 Holiday information

28 Migraine and stroke

29 Dementia after stroke

30 Pain after stroke

31 Sex after stroke

32 Stroke in South Asian people

33 Physical effects of stroke

34 Childhood stroke

35 Ischaemic stroke

36 Emotional changes after stroke

37 Visual problems after stroke

38 Women and stroke

39 Taste changes after stroke

40 Carotid artery disease

The following are available as photocopies only:R01 Benefits and Financial AssistanceR02 Book listR03 Aids and equipment for independent livingR04 Complementary therapyR05 Electronic communication aids and softwareRO6 Stroke explanation for childrenR07 Exercise and strokeR08 Making a complaintR09 Leisure activities after strokeR10 Private treatmentR11 Stroke statistics and resources for students and professionals


Disability FactsheetsTorbay and Southern Devon Health and Care NHS Trust Disability Information Service Information Factsheets

These free information sheets are available from: Torbay Disability Information Service, Chadwell Annexe, Torquay Road, Paignton,TQ3 2DW,01803 546474. They can be obtained online at www.tsdhc.nhs.uk/disinfosheets P01 Information, Advice and Advocacy Services P02 Bathing and ShoweringPO3 Family and Emotional Support servicesPO4 Telecare (includes community alarm systems)P05 Domiciliary (Personal Care) AgenciesP06 Emergency Care for PetsP07 Equipment CentresP08 Equipment Hire and Loan ServicesP09 Holiday ServicesP10 Home Maintenance Services and Building AdaptationsP11 Housework, Domestic and Laundry ServicesP12 Finding Funding for Extra NeedsP13 Keeping safe and warm at homeP14 Meal Delivery ServicesP15 Parking and Public ConveniencesP16 Shop Delivery ServicesP17 MotoringP18 Sitting ServicesP19 Stairlifts and Vertical LiftsP20 Transport ServicesP21 Support GroupsP22 Gentle ExerciseP23 Home Visiting ServicesP24 Continence ManagementP25 Housing Options for Older PeopleP27 ComputersP28 Leisure


Disability FactsheetsP33 Support for adults with High Functioning Autism and Aspergers SyndromeP34 Sport and Outdoor Activities

Caring SeriesP29 Caring for an Adult with a Mental Health ConditionP30 Caring for Someone with a Life-limiting ConditionP31 Caring for an Adult with an Alcohol or Drug ProblemP32 Caring for someone coming out of Hospital

Care Home SeriesC01 Care Homes: Paignton and BrixhamC02 Care Homes: TorquayC03 Care Homes: Nursing, TorbayC04 Care Homes: Dual Registered to include Nursing, TorbayC05 Care Homes: Learning Disability, TorbayC06 Care Homes: Dementia (residential and nursing), TorbayC08 Care Homes: Mental Health, TorbayC09 Care Homes: Day Care, Torbay


Younger Stroke SurvivorsFactsheets for younger stroke survivorsThese free Factsheets are available from Different Strokes, which provides a service to younger stroke survivors throughout the United Kingdom. They are run by stroke survivors for stroke survivors, for active self-help and mutual support.Different Strokes,9 Canon Harnett Court,Wolverton Mill,Milton Keynes MK12 5NF0845 130 7172www.differentstrokes.co.ukDifferent Strokes information packs can be downloaded online. They include:• Life After a Stroke (stroke information and prevention)• Preventing Further Strokes• Services For Stroke Survivors (services & organisations that may

be able to help)• Benefits (entitlements)• How To Get Help From Social Services (entitlements and

procedures)• Charities That May Be Able To Assist Financially • The Invisible Side of Stroke (dealing with counselling and the

emotional aspect of stroke)• Sex After a Stroke• Work After a Stroke (Summary)• Caring for Somebody After a Stroke (Summary)• Care After a Stroke in Childhood (for parents and families of

children who have had a stroke).

TorbayYounger Women’s Stroke Survivor GroupTorbay Younger Men’s Stroke Survivor GroupPeer support: stroke survivors supporting each other. Coffee and communication in a nice hotel.Please phone 07717 275848 to find out more.

Young Stroke Survivors Email UpdateTo receive an occasional email alerting you to local activities of interest for younger stroke survivors, please [email protected]

See Groups on Page 18


Stroke Phone NumbersTorbay Hospital

George Earle Stroke Unit - 01803 656891

George Earle Ward Manager - 01803 655735

George Earle Ward Sister - 01803 654345 Therapist Office - 01803 665046

Torbay Community Neuro Team - 01803 547157 (Torbay StrokeTherapists)

Torbay Early Supported Discharge Team - 01803 547157

Social Care Team for Torbay Area Residents - 01803 219700

Newton Abbot Hospital

Teign Ward Stroke Unit - 01626 324553

Consultant Therapist - 01626 324549 Teign Ward Manager - 01626 324558

Teign Ward Sister - 01626 324558

Therapist Office - 01626 324554

Teignbridge Neuro Rehab Team - 01626 324550(Teignbridge StrokeTherapists)

Adult Social Services for Devon Area residents - 0845 1551007


Advice and help for people over 55

Age UK 0800 169 6565Torbay 01803 555181

www.age.org.uk

Alarm to carry in case of falls or emergency Age UK: 0800 7722 66

Call 24: 0800 085 0407

Teign Care: 01626 355 135

Torbay Lifeline: 01803 522228

Benefits Help

See Page 29

Care Direct (My Devon) 0345 1551 007www.devon.gov.uk

Torbay Disability Information Service

01803 546474

Age UK Torbay 01803 555181

CAB Citizens Advice National

03444 111 444

Blue Badge Parking Devon 0345 1551 007

Torbay 01803 217700

Plymouth 01752 308921

British Red Cross Equipment loan and hire 0845 331 3331www.redcross.org.uk

Newton Abbot10am - 12pm

01626 369 731

Exeter10am - 4pm

0845 331 3331

Care Home and Domiciliary Care ratings

Care Quality Commission

03000 616 161www.cqc.org.uk

Carers: Support and breaks Crossroads Care 01803 323 510

Carers: Information and advice (NHS)

Carers Direct 0300 123 1053www.nhs.uk/carersdirect

Carers: Information, advice and support. Torbay.

Signposts for Carers, Torbay

01803 666620

Help Directory


Carers: Information, advice, support

Carers UK Help line: 0808 808 7777www.carersuk.org

Carers: Help for young carers in Devon

08456 434435

Carers: Help for young carers in Torbay

01803 208657

Carers: support in Devon Devon Carers 08456 434 435

Bereavement Care - Cruse Bereavement counselling

0844 477 9400www.cruse.org.uk

Disability information Disability Information Service Torbay

01803 546474

Disability Information Service Devon

0345 155 [email protected].

GP unavailable Doctors Emergency Duty Team

Torbay 01803 524519Devon 0845 6000388

Emergency 999

Medical non-emergency 111

Fire and Rescue Fire information and advice. Home safety visits.

0800 7311 822

Office of Public Guardian Lasting Power of Attorney

0300 456 0300www.direct.gov.uk

Police Non-emergency number 101

Samaritans Confidential 24hr emotional support.

08457 90 90 90www.samaritans.org.uk

Sexual or relationship difficulties

Relate Torquay 01803 297854National 0300 100 1234

www.relate.org.uk

Help Directory


Shopmobility: Scooter or wheelchair hire for shopping

PaigntonTorquayBrixham

Newton AbbotTeignmouth

DawlishNational Association

01803 521771 01803 38098201803 85830401626 33577501626 77777501626 8888900844 4141850

Social ServicesHealth and Social Care Torbay

01803 219700

Health and Social Care‘Out of hours’ Torbay

0300 4564876

‘My Devon’ for Devon Residents

0345 1551 007

Emergency Duty Service ‘Out of hours’ Devon

0345 6000388

Stroke Association Free information, advice, home visits, support, peer support

TorbaySouth Devon

Helpline

01803 65504501392 447362

0303 3033100

Toilet keys and location guide to over 9,000 locked toilets

RADAR(Disability Rights UK)

020 7250 3222www.radar.org.uk

Training courses - first aid, lifting, health and safety

St John Ambulance 0844 7704800

Help Directory


Different StrokesDifferent Strokes helps stroke survivors of working age to optimise their recovery, take control of their own lives and regain as much independence as possible by offering ‘rehabilitative services’, information and advice.www.differentstrokes.co.uk

Driver and Vehicle Licensing Agencywww.dft.gov.uk/dvla

ConnectConnect is a charity for people with aphasia, a communication disability that usually occurs after a stroke. Support and publications are available online.www.ukconnect.org

Stroke AssociationStroke Association funds research into prevention, treatment and better methods of rehabilitation, and helps stroke survivors and their families directly through its Life After Stroke Services. These include Information, Advice and Support, Communication Support and Life After Stroke grants.www.stroke.org.uk

Outsiders A club where people with physical and social disabilities can make new friends and, if they wish, find partners. www.outsiders.org.uk

SpeakabilitySpeakability is a national charity dedicated to supporting and empowering people with aphasia and their carers. More than 250,000 people in the UK have problems with speaking, reading, writing or understanding language. It should be noted that intellect is rarely affected. The medical term for this is aphasia (or dysphasia). www.speakability.org.uk

SEAPFree, confidential advice and support when making complaints about NHS service.www.seap.org.uk

Web sites


Overall charge of your medical care.

General Practitioner (GP)

Help at home with medication, blood pressure measurement, etc.

District or Community Nurse

Speaking and understanding of speech, reading and writing, communication.Excess saliva.

Speech and Language Therapist (SALT)

Swallowing, difficulties with eating and drinking.


Movement of arms and legs, balance, transferring to bed or commode, mobility and fitness level, muscle strength.

Physiotherapist (Physio)

Pain and spasticity. Physiotherapist (Physio)

Supporting and controlling limbs, preventing tightening.

Orthotist

Weight loss, weight gain, nutrition.

Dietitian

Difficulty with everyday activities such as dressing, washing and meal preparation.

Occupational Therapist (OT)

Advice on equipment and home adaptations.


Memory and thinking skill difficulties.


Sitting and wheelchair advice, hand and foot splints.

Physio and OT

Therapist Roles


Sex and intimacy. General Practitioner, Relate (see Help Directory)

Bowel or bladder continence issues.

GP first - possible referral to Continence Advisor.

Depression, anxiety, mood swings, behaviour changes,emotional lability.

General Practitioner (GP), Community Psychiatric Nurse,

Depression and Anxiety Service.

Foot care problems GP first - Podiatrist

Complaints about NHS CareIf you are not happy with the care you have received, it is important to let the service know. You could raise your concerns with the service manager, the hospital ward manager or matron, or the practice manager of your surgery if your concern is about your GP. If you would like to talk with someone outside of the service, you can contact the Feedback and Engagement Team (PALS), or SEAP.

Patient Experience Team, or PALsIf you would like non-clinical advice and support, or you would like to provide feedback about health services, you can contact the Patient Experience Team for South Devon and Torbay Clinical Commissioning Group.Telephone: 01803 652 578 (lines are open Monday to Friday 9am - 5pm)Email: [email protected]

SEAPSEAP provides Independent Health Complaints Advocacy (IHCA) to people who wish to raise concerns about their NHS treatment or services. SEAP is independent, and this independence often gives people confidence that their complaint will be taken seriously. SEAP can write letters, attend resolution meetings, and provide support throughout the process. This is often helpful for those who are unwell, bereaved, have a physical or communication disability etc.Free, independent and confidential service.03003435707 Devon 03003435730 Torbay

Complaints about NHS

Support in making

Complaints


Agnosia The inability to recognise an object by touch alone with both hands.

Agraphia Difficulty writing or drawing.

Alexia Difficulty reading.

Aneurysm A balloon-like bulge in the wall of an artery that may burst and cause a haemorrhage (bleeding).

Angioplasty A technique whereby the doctor inserts a catheter into the narrowed portion of the artery and stretches the artery by inflating a little balloon on the end of the catheter.

Anticoagulant A drug that is used to ‘thin’ the blood and thus reduce the risk of clots forming within the circulation. Anticoagulants include Warfarin, Dabigatran, Rivaroxaban and Apixaban.

Aorta The main artery taking blood from the heart to the rest of the body. All other arteries branch off it.

Aphasia Inability to use language. It can either be a problem understanding language (receptive) or speaking it (expressive). People are often affected by both sorts.

Apraxia The inability to do complex tasks when requested and there is no paralysis of the muscles.

Assessment Looking at someone’s situation and deciding what sort of help they need.

Ataxia Loss of the control of muscle function, leading to a staggering walk and difficulty performing delicate tasks with the hands.

Atrial Fibrillation Heart condition in which the upper left side of the heart beats out of rhythm with the other three chambers. It increases the risk of a blood clot forming inside the heart, which can break off, travel to the brain and cause a TIA or stroke.

Carers Assessment Looks at what support or assistance a carer needs in order to continue in their caring role.

Cardio Embolic Stroke Stroke due to a clot that formed in the heart and travelled to the brain.

Care Quality Commission (CQC)

The Care Quality Commission registers, inspects and reports on health and social care services in England. Its aim is to improve services and eliminate bad practice.

Care Plan A map or plan of someone’s needs and how they are being met.

Word Meanings


Carotid artery There are two carotid arteries, one on each side of the neck, which carry blood from the heart to the head, notably the face and front of the brain. Disease of a carotid artery is a common cause of stroke.

Community Nurse Community nurses are registered nurses who work in the community: in people’s homes, in schools and in local surgeries and health centres.

Continence/Incontinence

Whether someone is able to control movements of their bowel or bladder.

Court of Protection Specialist Court for issues relating to people who lack capacity to make decisions. The Court can make decisions or appoint Deputies (see Deputy) in the best interests of those people who lack capacity.

CVA or CVE Abbreviations for ‘cerebro-vascular accident’, and ‘cerebro-vasuclar event’. The terms are widely used but are not good ones: many strokes do not affect the cerebrum and none of them is an accident. ‘Stroke’ is a better term.

Day Care Centre A place where groups of stroke survivors can go during the day, where care is provided for social activity and (sometimes) training. This is sometimes provided to give your carer a break.

Daily Living How someone manages their day-to-day life (e.g. shopping, laundry, cleaning, cooking)

Deep vein thrombosis (DVT)

A clot of blood in the veins, usually of the leg.

District Nurse A nurse who provides nursing care for people by visiting them in their own homes.

Dysarthria Speech disorder in which the pronunciation is unclear, although the meaning of what is said is normal.

Dysgraphia Difficulty in writing.

Dyslexia Difficulty reading.

Dysphagia Difficulty in swallowing.

Dysphasia Difficulty in using language. It can either be a problem understanding language (receptive) or speaking it (expressive). People are often affected by both sorts.

Dyspraxia Difficulty doing complex tasks.


Embolism When a piece of solid material, usually a blood clot, travels to elsewhere in the body and blocks an artery, causing damage to the organs involved.

Emotional lability Emotions (crying or laughter) that are not in context with what is happening. Common after stroke.

Endarterectomy Surgical operation to remove obstructions (usually fatty tissue or blood clot) from inside an artery.

Extra Care Housing A style of housing and care for individuals that falls between established patterns of sheltered housing and accommodation, and care provided in more traditional residential care homes.

Financial Assessment Looking at information about your finances (income and expenditure) from which it is worked out how much you have to pay towards services.

Home Care Assistant A paid carer who goes into someone’s own home to provideassistance and help.

Home Care Provider An agency who provides a home care service.

Hospital Discharge The planning of arrangements to enable someone to leavehospital and return home or into an alternative care setting.

Hypertension High blood pressure.

Hypotension Low blood pressure.

Infarction An area of cell death (e.g. part of the brain) as a resultof being deprived of its blood supply.

Intermediate Care Teams

Teams and workers who provide short-term support for people to increase their independence, often after a period of illness or after being in hospital.

Ischaemia Cells that have an inadequate blood supply (see alsotransient ischaemic attack).

Lability (Emotional) A condition of emotional instability, which can be caused by stroke, in which the mood can swing from joy to sorrow, affection to anger, and so on. Sometimes an expression of emotion is inappropriate or extreme.

Word Meanings


Lacunar infarct A small stroke less than one centimetre in diameter.

Middle cerebral The artery that most frequently becomes blocked. It is the most common site of a stroke.

Multi-Disciplinary Team

Describes the joint working of people with different roles or functions within the same organisation or across sectors e.g. Doctors, social workers and therapists.

Myocardial infarction The medical term for a heart attack.

Nursing Home A residential home which has trained nursing staff that can look after people who need regular nursing care.

Occupational Therapist

A worker who helps to improve someone’s independence through assessment and provision of specialist equipment or activities.

Personalisation Is the all-encompassing term for the Government’s agenda to give people more choice about, and control in the care they receive. The system intends to place the service-user at the centre of the process and allows them to choose the support they use and the manner in which they receive support.

Residential Care Care provided to a group of people in a home set up for thatpurpose.

Respite break When someone goes to a day centre or to a care home for a short period of time to allow their carer to have a break from looking after them.

Risk Assessment Looking at and weighing up of any dangers that may occur in someone’s home.

Personal Care How someone looks after themselves (e.g. washing, dressing, bathing, going to the toilet)

Platelets Small blood cells that stick together to form a clot.


Pulmonary embolism A blood clot in the lungs, which can very rapidly leadto sudden death.

Safeguarding The process of responding to concerns that a vulnerable person (or people) is being, or are at risk of being abused, neglected or exploited.

Sheltered Accommodation

A complex of flats where older people live. There is often an onsite warden and usually a communal room.

Sitting Service A paid carer who stays with someone to allow their carer to have a break or go out.


A therapist who specialises in the rehabilitation of people with speech and language difficulties, helping them to improve their speech and language and/or to find alternative ways of communicating. Also expert in problems with swallowing.

Stenosis A narrowing.

Thrombosis The formation of a blood clot.

Transient Ischaemic Attack (TIA)

A stroke-like event that fully recovers within 24 hours of the start of symptoms.

Vertebral arteries The two arteries that travel up the back of the neck to the brain which, with the two carotid arteries, supply all the blood to the brain.

Warfarin The most frequently used oral anticoagulant (for thinning the blood and preventing clots forming inside the circulation).

Word Meanings

Documents

Torbay and Southern Devon Stroke Book...Torbay and Southern Devon Stroke Book This book brings together a range of useful material, written in everyday language, to make it easy for