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Susan Reinhard, RN, PhDAARP Public Policy Institute

NYCFCC- 7th Annual Evening of Celebration of Caregiving

March 7, 2013

AARP

Valuing the Invaluable

• In 2009, about 42.1 million family caregivers in the U.S. provided care to an adult with limitations in daily activities at any given point in time

• The estimated economic value of their unpaid contributions was about $450 billion in 2009

from an estimated $375 billion in 2007

• New York estimated economic value of unpaid contributions $32 billion in 2011

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Family Caregiving in the “Old Days”

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Family Caregiving – “The New Normal”

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New Research

Home Alone: Family Caregivers Providing Complex Chronic Care

• Partnership between the AARP Public Policy Institute and the United Hospital Fund

• Funded by The John A. Hartford Foundation

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Background of Survey and Report• AARP Public Policy Institute and United Hospital Fund

collaborated on first in-depth national survey of family caregivers

This report documents:– What medical/nursing tasks family caregivers do;– What they find difficult;– Who trains them; and – Impact on their quality of life.

New Research

• 46% of the caregivers in the panel performed medical/nursing tasks

• Family caregivers find some tasks more difficult than others such as meal preparation for special diets, operating mechanical equipment and managing incontinence.

• More than a third of family caregivers are doing wound care and 38% would like more training.

• Close to half (47%) of these family caregivers were afraid of making a mistake and/or harming their family member.

• Three out of four family caregivers who provided medical/nursing tasks were managing medications, including administering intravenous fluids and injections. 7

Training for Medication Management

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Public Policy Institute

• Long Term Services and Supports Scorecard

• Policies to Support Family Caregivers

AARP

• AARP and Ad Council Caregiving Campaign

• Caregiving Resource Center

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Caregiving Initiatives

What is the Ad Council?

As the leading producer of public service announcements(PSAs) since 1942, the Ad Council has been addressingcritical social issues for generations of Americans.

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Goals for AARP and Ad Council Caregiving Campaign• Help boomer women recognize that the help they provide to a

parent, family member or friend is what we call “caregiving”• Identify, impact and connect with them through our PSAs

• Highlight AARP as a key destination for caregiving information and resources

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Together, we can be stronger.

Approach to Ads

• Portray the isolation, sense of responsibility and frustration a caregiver feels in a typical situation

• Show caregiving honestly and don’t sugarcoat the issues

• Make people pay attention by being disruptively authentic, edgy and real – key for securing donated media space in a cluttered media environment

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Print & Outdoor Ads

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AARP Caregiving Resources

• AARP Caregiving Resource Center – www.aarp.org/caregiving

• AARP Caregiving Resource Center (Spanish) – www.aarp.org/cuidar

• Toll-free line (English) - 1-877-333-5885 (M-F, 7 am-11 pm EST)

• Toll-free line (Spanish) – 1-888-971-2013 (M-F, 7 am-11 pm EST)

• Prepare to Care (available in English and Spanish)

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Highlights of the Caregiving Resource Center• Active online community• Access to experts via frequent blogs, chats, columns and Q&As• Monthly chats and interactive opportunities with caregivers

and experts• Tools relevant for caregivers – Care Provider Search, Many

Strong, Drug Interaction Checker, Medicare Interactive Tool, Long Term Care Cost Calculator and AARP Health Record

• Opportunity to “Share Your Story” with us• Fresh articles, blogs and potentially a caregiving e-newsletter• Companion site in Spanish

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Social media

• TV PSAs and caregiving videos are posted on AARP’s YouTube channel located at http://www.youtube.com/AARP and the Ad Council’s YouTube channel at http://www.youtube.com/adcouncil

• AARP’s Facebook page at www.facebook.com/AARP

• AARP’s Take Care blog - http://blog.aarp.org/tag/takecare/

• Twitter handle is @AARPFamily and #caresupport

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Questions?

Susan Reinhardsreinhard@aarp.org

@AARPpolicy

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