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The impact of quantified self data on healthcare GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot Quantified Self Institute, Hanze University of Applied Sciences Groningen 12-06-2015

TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

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Page 1: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

The impact of quantified self data on healthcareGSMS PhD congres ‘Create your Future, Discover Talent’Dr. Martijn de GrootQuantified Self Institute, Hanze University of AppliedSciences Groningen

12-06-2015

Page 2: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

12-06-2015

Page 3: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

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Page 4: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

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Page 5: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

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Page 6: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

• As a result of self monitoring– Increased autonomy– New patient-GP interaction– Lowering of medicine intake!

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Personal Meaning to Personal Data

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Page 8: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

3

QS Community

• Founded in 2007 by Gary Wolf and Kevin Kelly

• 2010: TED talk by Gary Wolf• 2011: First international conference

California• May 2015: 206 groups in 38

countries• Almost 50 k people active worldwide

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Page 9: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Principle questions

• What did you do?• How did you do it?• What did you learn?

www.meetup.com/qsgroningenwww.meetup.com/qsamsterdam

Next meetup: Groningen, 17 Sept 2015

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Page 10: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

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Page 11: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Netwerk Organisation

• To encourage a healthy lifestyle through technology, science and fun.• Focus on ‘the big five for healthy life’

– Physical activity & sports– Food– Sleep– Stress & relaxation– Social interaction

• Availability, Creativity, Validity and Efficacy• Applied research, higher education & new business development

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Page 12: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Healthy Ageing

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1 2

3 4

Bring Data

Self-tracking;for personal reason

Self-tracking;at request of health

care provider

Care/cure Lifestyle, health/wellness

Bring Data

Adapted from: www.nictiz.nl

All about data…

A hugeamount of personal data…

And a lot of stakeholders….

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Page 15: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

http://www.digitalezorggids.nl/blog/quantified-self-quantified-us-quantified-other

Sharing data

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Page 16: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Patients like me

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Page 17: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Quantified Us

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Page 18: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Apple Research Kit

Within a couple of weeks, 60.000 volunteers…

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Page 19: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Points of interest and debate

• Quality of the data (validity and reliability)

• Data acces and control (Privacy and safety)

• Data sharing(usability, interoperability andincentives)

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Page 20: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Thea Kooiman

Oefentherapeut / Bewegingswetenschapper

Onderzoeker Lectoraat Healthy Ageing, Alliedhealth care and Nursing.

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Page 21: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

1= Fitbit Zip2= Misfit Shine3= Nike+Fuelband4= Omron5 = Withings Pulse6 = Fitbit Flex7 = Digiwalker SW-200 8 = Lumoback9 = Jawbone Up10 = Moves app

Reliability and Validity of ten consumeractivity trackers.

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Page 22: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

• Lab condition– 30 minutes walking on a treadmill, 2 times. – N=33– Gold standard: Optogait system.

• Free-living condition– One day (9:00-16:30). – N=56– Gold standard: ActivPal.

Method

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Page 23: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Results – Lab condition

Mean number of steps walked (95 % CI), measured in the Lab condition.

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Page 24: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Results – free-living condition

Mean number of steps (95% CI) walked in the free-living condition

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Page 25: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Norm values validity

• Activity monitors should not have more than 1% error deviation during walking on a treadmill in order to be named accurate. (Tudor-Locke, 2004)

• In free-living conditions, an acceptable mean deviation from the gold standard is 10%. (Tudor-Locke, 2004)

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Page 26: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Validity - mean percentages errorLab study

-300

-200

-100

0

100

200

300Moves appOmronMisfit ShineLumobackActivPalFitbit ZipPulseJawbone UpDigiwalkerFitbit FlexNike+ Fuelband

319; 9.8%

-1%

+1%

-598;-18 %

-5.7%

2,5%

-1.2 %

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Page 27: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

+10%

-37.6%

-1600

-1400

-1200

-1000

-800

-600

-400

-200

0

200

400

600

Zip

Pulse

Shine

Flex

Jawbone Up

Nike FB

Omron

Digiwalker

Moves App

Lumoback

-10%

- 24 %

+10%

Validity - mean percentages errorFree-living study

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Page 28: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Test-retest reliability

Activity tracker IntraclassCorrelation Coefficient

95% confidence Interval

Optogait .92** .85 - .96

ActivPAL .96** .90 - .99

Lumoback .90** .79 - .95

Fitbit Flex .81** .64 - .91

Jawbone UP .83** .66 - .91

Nike+ Fuelband .53** .22 - .75

Misfit Shine .86** .73 - .93

Withings Pulse .92** .83 - .96

Fitbit Zip .90** .80 - .95

Omron .14 -.24 - .47

Digiwalker .71 ** .47 - .86

Moves app .37* .02 - .64

* P < .05, ** P < .01

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Page 29: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Conclusion

• All trackers showed good reliability, except for the Omron, Nike+Fuelband and Moves app.

• In the lab situation, the Fitbit Zip, Lumoback, WithingsPulse, Misfit Shine and Jawbone Up showed the highest validity.

• Nike+ Fuelband and Moves app: low validity

• In the field situation, the Fitbit Zip showed the best validity.

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Page 30: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

Discussion

• Reliability vs. validity / within subject vs. cross-sectional.

• Lab vs. field.

• Wearing position / type of activity.

Persuasive tech for health?

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Page 34: TITEL VAN DE PRESENTATIE - Hanze · The impact of quantifiedself data on healthcare. GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot. Quantified Self

The day before tomorrow

• Preventive and predictive• Personalised• Participatory

Source: www.p4mi.org

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Martijn de Groot: [email protected]@grootm75

www.qsinstitute.org

12-06-2015