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IN an Australian first, local service provider Li-Ve Tasmania has undertaken 12 months of ground-breaking research focusing on end-of- life care for people with disability.
The project is attracting international attention.
“Until now, Tasmanians with a disability haven’t generally been encouraged to participate in planning their own end-of-life care,” Li-Ve Tasmania’s chief executive, Paul Byrne, said.
“Many have never been asked how they feel or what they want.”
If not with their family members, people with disability are often supported in their homes by staff who know their routines, needs, fears and preferences.
However, Li-Ve Tasmaniahas discovered that if they are diagnosed with a life-limiting illness, many people living with disability are moved out of their homes and away from the people they feel safest with.
At a time when they needcomfort and familiarity more than ever, this represents a huge disruption in their final days and can be confusing, frightening and traumatic.
“Using a grant from the Palliative Care Tasmania and Better Access to Palliative Care, we talked to people with disability, their friends and family, and other service providers. We asked them about death, dying and end-of-life care. It became clear that they want to have a say,” Mr Byrne said.
In Australia, Li-Ve Tasmania is creating a cutting-edge blueprint to help disability service providers understand their roles in this area, the services available, and the pathways to access these; and what best practice looks like.
“Dying can be an uncomfortable topic, but we are committed to generating a systemic shift across the state and across sectors by providing a voice for people living with disability,” Mr Byrne said. “That is why our outcomes are creating interest, globally. Our work will keep the end-of-life conversation active and relevant; form the basis of long-term quality improvement strategies; and provide opportunities for organisations to share knowledge and resources – and commit to enhancing the life and death experiences of the people we support.”
Help with a tough topic
SUPPORTIVE: A Li-Ve Tasmania staff member opens up a conversation about end-of-life care with a person living with disability.
Provideroffers clients a voice
MOVING out of the family home is an exciting rite of passage that most of us take for granted.
However, for people with adisability and their family, this exciting stage of life can sometimes be a complex or daunting experience, requiring the right level of expertise.
As one of Tasmania’s mosttrusted disability service providers, Able Australia don’t just find accommodation for people with a disability – they help to create a home.
Focusing on more personal, two-three bedroom
home arrangements, the Able Australia team work closely with each individual to ensure the first move is the right one by tailoring services to meet each person’s needs, wants and future aspirations.
For the highly skilled AbleAustralia team, the secret to success is based on relationships.
By getting to know and understand each person’s interests, likes/dislikes and goals for the future, the staff can work with families to map out and source the best possible solutions.
From supported living options and outreach services
through to in-home support programs and community engagement activities, Able Australia offers a range of options to help individuals to develop daily living skills, promote social interaction, and encourage independent money management or travel.
The outcome is a nurturingliving space for all residents which fosters genuine opportunities for each person to develop their full potential and enjoy a fulfilling social, community and even working life.To find out more, phone 1300 225 369 or visit ableaustralia.org.au
NURTURING: Team members at Able Australia don’t just find accommodation for people with a disability – they help to create a home.
Ready and Able to help foster independence
www.livetasmania.org
Whileyou make the life you want, we’ll be right beside you
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AT Lifestyle Solutions, our focus is on helping to develop understanding and appreciation for the positive contributions that people with a disability make to our communities.
Every day we work with people who, through courage and determination, push their personal boundaries to challenge the stereotypes around what people think they can achieve.
International Day of Peoplewith Disability celebrates their triumphs and so do we.
We don’t want to see anyone defined by their disability. We want to see them recognised for their abilities.
As a community, we needto work collaboratively to break down the barriers that limit opportunities and exclude some people from housing, education, employment, mobility and
social interaction.Our Tasmania Support
Centre in North Hobart offers a broad range of supports and services tailored to meet individual needs and abilities.
The centre provides customised accommodation services across the state as well as a community outreach
program for people with an acquired brain injury.
“We provide in-home support to assist people with personal care, shopping, social activities and access to their communities,” Lifestyle Solutions’ senior manager of Disability Services Tasmania Jason Hall said.
“We also help them to establish routines and develop and maintain their independence.
“Our Community AccessServices not only provide a social hub for people who feel isolated, they help people to develop friendships and networks, especially through our popular Coffee Club.
“And there’s always a lot ofinterest in our cooking classes.
“We run art classes, life skills courses and physical rehabilitation programs. We also provide Disability Employment Services to help get people into the workforce.”
Breaking down the barriers
INDEPENDENT: Lifestyle Solutions is keen to assist clients achieve their goals.
THIS year St Vincent Industries will be celebrating International Day of People with Disability at its premises in North Hobart.
SVi is a Supported Employment Enterprise providing employment and training to people with a disability and is the leading supplier of recycled cleaning rags in Tasmania.
It has been an exciting year for SVi and its employees, with the Tasmanian Community
Fund assisting in funding the replacement of its ageing rag-cutting machines and local design company Futago developing a new modern look and website for the organisation.
With the Tasmanian Community Fund grant, SVi was able to have 26 new rag-cutting machines developed and built in Tasmania by 2HM Design.
The new machinery hasnow been operating in the workplace for the past six
months and the design and build quality has exceeded expectations.
The machines are fully adjustable and have addressed the problem of dust and noise, and most importantly the employees are enjoying working with them.
The new designs can beseen at their workplace at 82A Burnett St, North Hobart and on its new website, www.stvincentind.com.au
ENGAGED: A group of StVi employees studying Certificate II in Warehousing.
From rags to riches
Looking for a better life experience?When you partner with Able Australia, you are supported by a professional, quality-assured disability service provider with almost 50 years’ experience.
We assist you to direct your own support because you have the right to exercise choice and control over your life goals and dreams. We offer:
• Supported accommodation• Individual support• Recreational activities• Art & music therapy
• Deafblind services (including digital literacy)• School holiday programs• Family and community support• Much more.
Talk to one of our experienced disability service professionals about how you can achieve a better life experience today!
Call 6228 0443 or visit www.ableaustralia.org.au Follow us on
St Vincent Industries, offering supported
employment and training. Begin your career with SVi.
Call us on03 6234 5680
www.stvincentind.com.au
EMPLOYMENTTRAININGSUPPORT
Supporting people
with a disability• Individual and group support
• Life skills development
• Recreation and leisure
• Supported holidays
• School holiday and after
school programs
• Respite - evening and overnight
weekend
• Coordination of supports –
improving life choices
Local and Tasmanian. Large enough to support you, Small enough to care.
For further information Phone 03 6243 6044
Email [email protected]
www.parksidefoundation.org.au
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ADAM Knowles is on the way to achieving his life-long goal of becoming a photographer and running his own business with the help of the NDIS and OAK Training and Develop-ment.
The 22-year-old Hobart man engaged OAK Training and Development, who helped him navigate his path.
Now Adam is studying a Certificate I in Information, Digital Media and Technology and he’s working on improv-ing his literacy and numeracy, and health and wellbeing.
“I love taking photos. I takeall kinds – churches, play-grounds, museums, cemeteries and rock bands, which is my favourite,” he said.
His transition to work coor-dinator, Debra Peers, said Adam approached them look-ing to build his social and economic skills, so they sat down with him to identify his interests.
“We discovered photogra-phy was one of Adam’s pas-sions,” Debra said.
“He told us it was really something he wanted to do be-
cause one day he would like to have his own photography business.
“To help Adam work to-wards his goal, we identified he needed to work on his liter-acy, numeracy, computer and photographic skills. Through his NDIS funding, he was able to do it.”
Debra said it’s incredible how much these activities have improved Adam’s confi-dence.
“He’s come such a long way,” she said. “It’s great to see him committed to his pho-
tography, and for me, it’s a re-warding feeling to be able to help him work towards achiev-ing his goals.”
OAK Training and Devel-opment is part of the wide range of services available from OAK and Possability since merging several months ago.
OAK Possability chief executive Drew Beswick says the combined organisation will allow the range and qual-ity of services to be strength-ened across Tasmania.
“It will ensure that the
maximum resources are di-rected to the areas that make the biggest difference for cli-ents,” he said.
As part of the merger, OAKand Possability services are re-taining their names and iden-tities, and will be supported by shared management and ad-ministration.Find out what support can be offered to you as part of your current or future NDIS plan by calling 1300 067 842 or visiting oak.org.au and/orpossability.com.au.
OAK helps Adam branch out
ON TRACK: OAK is helping Adam Knowles realise his dreams.
THE best road trips are the ones that are planned around ticking something off your bucket list.
For 58-year-old Chris, who lives in a shared home and receives support from Anglicare Lifestyle, the bucket list item he wanted to achieve was a visit to his family in their hometown of Smiths Lake in NSW.
In October this year, Chrismade that happen with the support of Lifestyle worker Gary Jones. They booked a passage on the Spirit of Tasmania, packed the car and headed up the highway on an eight-day road trip.
“For many years, Chris’ssiblings believed he was deceased, Gary said.
“It was only through sheerdogged determination that his family managed to track him down more than 20 years ago,”
“It was a long and ultimately incredibly satisfying and
unquestionably worthwhile and necessary trip for Chris to undertake.
“At the end of the day, it’sall about family.”
Assisting people to achieve their goals – both large and small – is central to the support provided by Anglicare Lifestyle.
“Chris had many hours together with his family eating, drinking, reminiscing, looking at photos and laughing and crying, with Chris being very much at the centre of the interaction,” Gary said.
“Chris wants to do anothertrip next year to meet more of his siblings in NSW.
“I reckon he’ll definitelybe up for it.”
If you have something on your bucket list you’d like totick off, call Anglicare on 1800 466 300 to talk about the support they can provide. Or visit www.lifestyle.support.
Anglicare makes reconnection dream a reality
ON THE ROAD: Chris admires a monument in Glenrowan, on the trip Anglicare helped him make to visit family.
Are you living your life, your way, today?
Anglicare Tasmania Inc. ABN 90 979 742 836
1800 466 300www.lifestyle.support
• CIRCUS and FACE PAINTERS
• FREE BBQ and TREASURE HUNT!!
• MASSAGES and KITE FLYING
• TRAIN RIDES and MORE!
More information Phone 62728265
or visit www.tascare.org.auestival of Smiles Facebook Event
Parking available
FESTIVAL
of smiles
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most, with one-to-one supportfrom service provider LifeWithout Barriers.
Together with a familyfriend, Corey developed hisNDIS plan and chose LifeWithout Barriers to deliver theservices he wanted.
Corey focused on indepen-dent living skills such as learn-ing to cook, budgeting, taking
THE NDIS has been life-changing for many Tasmani-ans with disabilities since itslaunch in 2013.
For 21-year-old Corey fromHerdsmans Cove, throughfunding from the NDIS for hissupport services, a whole newworld has opened up to him.
Corey was always a very re-served and quiet young person.He had lived with social anxie-ty and this impacted on his lifeso much that by the time hewas living independently, hehad a fear of talking to peopleor taking public transport.
However, with his fundingfrom the NDIS, Corey was ableto focus on what he needed
public transport and becomingwork-ready through complet-ing a Level II Certificate in theEmployment Success Programwith Maximus EmploymentSolutions.
“I have confidence in myselfand pride in what I can nowdo,” Corey said.
“I have a nice home andcook healthy meals for myself,and can travel places on myown and don’t feel nervousanymore. I like that I’m happybeing around people now and Ihave goals I want to achieve inthe future.”
Corey also hopes to find ajob in warehousing or in a pro-fessional kitchen.
A whole world of solutions
LEFT:Through NDIS support, Life Without Barriers helps Corey live a fuller life.
DISABILITY support providerThe Parkside Foundation has afocus on skill development.
Mutually beneficial part-nerships with community or-ganisations has enabled it toprovide meaningful volunteerand work experiences for peo-ple attending its programs.
Canteens at Bagdad, Herds-mans Cove and New Town pri-mary schools are now operatedby Parkside volunteers andsupport staff.
It is a win-win outcome – itsvolunteers learn skills associat-ed with money, retail and com-munication while enjoyinginteraction with the children.
The children see the volun-teers providing a valuable ser-vice and the schools have anoperational canteen.
Confidence gained throughvolunteering has promptedsome of the participants to getfurther experience at Hobart’sHamlet Cafe.
Other opportunities havebeen offered in a nursinghome, and through Parkside’smaintenance program.
Parkside continues to seekopportunities for the people itsupports to expand their hori-zons and to develop skills.Could your organisation offer such an opportunity? Contact Parkside today by emailing [email protected] or calling 6243 6044
GRINS will be aplenty at theMontrose Bay Foreshore Parkthis Sunday when TascareSociety for Children plays hostto the Festival of Smiles.
Tascare together withGlenorchy, Hobart andClarence councils, willwelcome people of all ages tocelebrate International Day ofPeople with Disability.
The day will bring togetherfamilies and the widercommunity with the aim of
breaking down barriers’ andincreasing inclusion of peoplewith disability.
“We welcome all families tocome and join us at this funevent,” Tascare actingexecutive officer Keren Frankssaid.
“Mums, dads, and kids canenjoy a free barbecue, havetheir faces painted and enjoy arange of activities fromdrumming, games, kite flying,train rides, a treasure hunt, or
simply relax with a massage. “There will be plenty of
stalls with information andactivities on offer and weencourage all families toattend.”
Glenorchy City Mayor,Kristie Johnston, will bedonning her dancing shoesand joining the Bright StarsDance Troupe to kick thingsoff at the official opening,along with a performance fromthe Southern Support School.
SET TO SHINE: Glenorchy Mayor Kristie Johnston, second left, rehearses for the Festival of Smiles opening ceremony with members of the BrightStars dance troupe.
Event to produce miles of smiles
Parkside offers opportunities
Celebrating abilities
Call 1800 NDIS 4 U (1800 634 748)Lifestyle Solutions is a registered NDIS provider.
Life’s possibilities are endless with Lifestyle Solutions
At Lifestyle Solutions we don’t want to see anyone defined by their disability.
We want people recognised for their abilities.
We can help make that happen through tailored supports and services designed to develop confidence, independence, skills and social networks so that people can achieve their goals.
Talk to us today and explore the possibilities.
WE’RE ALL ABOUT YOUPartnering with People with DisabilityIn Southern Tasmania and across Australia, we partnerwith people with disability.
WeÕre here for you. We deliver what you want, in the way you want it, when you want it.
If youÕd like to know more about the NDIS and our personalisedsupports in Southern Tasmania, contact Life Without Barriers.
CONTACT US
E. [email protected]. 03 6232 8750 W. www.lwb.org.au We all share the responsibility for child safety
