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ThirdmeetingoftheInternationalConsortiumforFibrousDysplasia/MAS
Preliminary ProgramWednesday15-11-2017
13:00 Welcome
13:30-17:30 Fibrous Dysplasia:BasicResearch.Confirmed speakers prof.dr.M.Riminucci Sapienza University,dr.M.T.Collins NIH.
19:00 Welcome dinner
Thursday16-11-2017
08:15 Welcome08:30 Fibrous Dysplasia:Outcome ofclinical studies
Confirmed speakers:dr.R.Chapurlat Lyon,dr.A.Boyce NIH,dr.N.M.Appelman-DijkstraLUMC.
12:30 Lunch13:30 Fibrous Dysplasia:FocusonOrthopedic managementand the managment of
Craniofacial Fibrous Dysplasia from the surgeons perspectivePresentation ofabstractsfrom participating centers
16:30 Closing
Friday17-11-2017
08:30 Consortiummeeting
09:45 International Patients day
10:0010:1510:4511:1511:45
Welcome:presidentofthe DutchFDpatient associationClinical carepathway for FD:physicians perspectiveClinical carepathway for FD:patient advocacy groups’perspectiveEuropeanPatients’registry:the role patient advocacy groupsRound table discussion:Fibrous Dysplasia future researchperspectives
12:45 Lunch13:30 Round table discussion , continued
15:00 Closing
Thethird meetingofthe InternationalConsortiumfor FibrousDysplasia will be heldthis year inLeiden,the Netherlands,fromNovember15th-17th 2017.
Similar to the previous meetings,the main objectives ofthismeetingare- to reviewand updatethe clinical managment ofFibrous
Dysplasia/MAS- to encourage the interaction between basicscientists with
clinicians ofvarious specialities and patient advocacy groups.
AnInternationalPatients’Daywill be heldonthe lastday ofthemeetingto which all interested patients arealso invited.
Please find belowthe preliminary program,for further informationabout the meeting,the programorto participate please contact
Organizing comittee:Dr.N.A.T.Hamdy,internist-endocrinologistProf.dr.P.D.S.Dijkstra,orthopedic surgeonDr.N.M.Appelman-Dijkstra,internist-endocrinologist
