TheatreBrewhouse – Taunton’s artformsAccessible€¦ · August 2012 Accessible artforms – Taunton’s Brewhouse Theatre Finding employment – Special feature Arthritis –

August 2012

Accessibleartforms– Taunton’s Brewhouse Theatre

Finding employment

– Special feature

Arthritis– The biggest

cause of physicaldisability in the UK

Networker

3www.compassdisability.org.uk

q Compass Disability Services is an innovative,enlightened and positive organisation.q Our mission is ‘to enable disabled people tohave equality of opportunity’. Our values, beliefs,and mission have allowed us to spread ourinfluence in Somerset, North Somerset andWiltshire.q Compass Disability Services is a user-ledorganisation and our Board of Trustees iscomprised of at least 80% disabled people.q Our principles give us the authority to exploreoptions to give a voice to disabled people.q Compass Disability Services works throughconsultation, representation and service delivery,facilitating various projects.

Networker is produced by Compass Disability Services, Unit 11-12 Belvedere Trading Estate, Taunton, TA1 1BH.

Tel: 0330 3330089 or 01823 282823Email: [email protected]

Website: www.compassdisability.org.ukRegistered Charity Number: 1099376.

About

Editorial or advertising queries: ContactGreg Jackson on 0330 333 0089 or [email protected] formats: Networker is alsoavailable in large print, braille, on cassette, cdor by email. For further information, contactGreg Jackson on 0330 333 0089 or [email protected]: Compass Disability Serviceswelcomes any feedback on Networker, or anyof the services it provides.Disclaimer: The views expressed inNetworker are not necessarily those ofCompass Disability Services.

Networker contentsCompass Points

Interview

Associate member news

National news

August focus

..............Natalie’s 31-mile fundraising walk6

.........................Carnival collectors needed8

......................................Independent living9........................................Network news10-11

....................................Member case study12

....................Athlete to speak at SJA event16

.............................................Jacky King18-19

...................Access to Elected Office Fund17

Special feature.............................Finding employment20-25

.................................................Arthritis26-29

Accessible days out..............Taunton’s Brewhouse Theatre30-31

Sport................................Paralympic special32-33

Have your say............................Macular disease support34

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Compass Points

ANYONE who believes theyhave been the victim of a hatecrime due to their disabilitycan report it to CompassDisability Services.

Examples of incidentspassed on to us so far includeverbal abuse, threateningbehaviour and intimidation.

So, if you have been a victim of hate crime orwitnessed someone who has, please get in touchwith Nikki Watson on 01823 282823 or [email protected]

More work is needed to increase awareness ofthe types of incidents that constitute hate or matecrime. Mate crime is when someone acts or

pretends to be a friend butactually takes advantage ofyou – for example, bystealing from you, spendingyour money or teasing you.

If you have been a victim,please tell someone you trustand if you can't report it

yourself please ask someone to report it for you.If you belong to an organisation that supports

people – clubs, activity programmes etc – tell themabout it. Together we can stop hate crime.n THE Somerset Against Hate Crime

Facebook page is now up and running and youcan see it for yourself at www.facebook.com/somersetagainsthatecrime

Have you been a victim of hate crime?

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4 www.compassdisability.org.uk

Compass Points

IN the last issue ofNetworker, I mentioned wewere in the middle of a miniheat wave.

Well, mini is exactly what itturned out to be and, again,as I write this piece they aretalking of our summer finallystarting so fingers crossed.

Speaking of bright, sunnydays Compass DisabilityServices has had a few of itsown recently.

I am pleased to say that wehave recently won twocontracts under ourCompass IndependentLiving Services – one inBirmingham and one inWarwickshire.

However, our mostexciting news is that

Compass Disability Serviceshas been chosen to deliverthe Universal CarersSupport Service forSomerset over the next threeto five years.

This not only helps secureour future for this period oftime but also will give us anopportunity to showcase atruly user-led professionalservice in Somerset.

As I write, the details arestill to be confirmed but wewill continue to give updatesin the Networker as to whenand how the project will beimplemented.

I hope you enjoy the restof your summer and that thenext Networker will containas much good news.

New contracts make it a sunny outlook!

COMPASS Disability Services is recruiting newTrustees with a range of skills to join the existingboard.

The organisation is looking for people who arecommitted to its mission, values, aims andobjectives and are passionate about the work itdoes.

As a Trustee you would be expected to ensurethat the organisation complies with its governingdocuments, charity law, company law and anyother relevant legislation or regulations.

Trustees also use their specific skills,knowledge or experience to help the board reach

sound decisions. Becoming a Trustee will involve:• Scrutinising board papers• Focusing on key issues• Providing special expertise• Leading discussions• Promoting the organisation and enhancing

and protecting its reputation• Being a good ambassador for the

organisation.For more information please contact Paula

Ingrey on 0330 333 0089 or email:[email protected]

Do you have the skills to become a Trustee?

Richard Pitman, CEO, Compass Disability

Services


Compass Points – fundraising focus

A COMPASS DisabilityServices staff memberraised almost £40, simplyby changing herbroadband supplier.

Sharren had previouslyregistered withEasyfundraising andselected CompassDisability Services as herchosen ‘good cause’.

By signing up online witha broadband provider onEasyfundraising’s list ofretailers, Sharren was able toraise £37.50 for charity. It reallywas as simple as that and it costSharren nothing.

Easyfundraising doesn’t onlyapply to broadband suppliers –

there are well over 2,000 topretailers to choose from, includingAmazon, Ebay, John Lewis andArgos. Whenever you buy onlinefrom one these retailers, you willgenerate a cash donation for

Compass DisabilityServices.

For example, John Lewiswill donate 2.5%, Amazon2.5%, The Body Shop10%, some insuranceretailers will even donateup to £30 simply for takingout a policy with them.

And, to make it eveneasier to donate whenshopping online,Easyfundraising hasdeveloped a new tool –

‘Find and Remind’ – whichautomatically provides a handydrop-down reminder every timeyou visit a partner retailer, tomake sure that you neverforget to claim a donation.

HOW TO REGISTER AND SHOP• Go to www.easyfundraising.org.uk• Click on ‘Find a cause’ and select the

cause you wish to support.• Fill out the quick form to register your

details.• Find the retailer you want to shop with.• Click to visit the retailer, then shop as

you normally would.• Your donation will be show in your

easyfundraising account within 30 days.

Support us by shopping through

OOrrddeerr yyoouurr bboouuqquueettss ffrroomm CChhaarriittyy FFlloowweerrss... and raise vital funds for Compass Disability Services!YOU can now raise vital funds for CompassDisability Services when buying flowers for yourloved one on their birthday or Valentine’s Day.

If you buy your bouquets from ‘Charity Flowers’,15% of the retail price will be donated to charity.

HHooww ttoo oorrddeerr• Call the 24-hour order hotline 08705300600 and quote ‘CDS’

• Order online at www.charityflowers.co.ukand select ‘Compass Disability Services’from the drop down menu.



Natalie’s incredible 31-mile effort!A COMPASS Disability Servicessupporter produced anincredible effort to complete a31-mile cross-country walk andraise £600 for the organisation.

Natalie Chester’sachievement would have beenimpressive enough withouthaving to battle sheeting rainand howling winds that metparticipants of the ExmoorPerambulation.

The gruelling effort tookNatalie 13 hours 20 minutesand, due to the atrociousconditions, visibility was downto 50 metres on much of thecourse.

Natalie was cheered home atthe finish by Compass friendsand staff members Nikki,Watson, Paula Ingrey andMichelle Edwards, whodisplayed a ‘Well done and

thank you Natalie’ banner.The Exmoor Perambulation is

a traditional walk dating backover 725 years.

It’s one of the mostchallenging walks in the Exmoorannual calendar, featuring 31miles of cross-country onExmoor National Park.

Every June hundreds ofpeople from around the countrytread the boundary of the oldRoyal Forest of Exmoor andpass through some uniqueareas of Exmoor not normallyaccessible to the public.

Starting at the PinkeryOutdoor Education Centre,north of the road betweenSimonsbath and Challacombe,the course follows closely theboundary of Exmoor Forest in aclockwise direction for adistance of about 31 miles.

n LEFT PHOTO: Compass Disability Services staff members Michelle Edwards and Paula Ingreyhold a banner aloft to welcome Natalie (far left) back from the walk. RIGHT PHOTO: Nataliecompletes final stage of the walk in the wind and rain.

n Natalie proudly displays hercertificate after completing the31-mile course in atrociousconditions.


Compass Independent Living

n The term Independent living is concerned withproviding disabled people with the same level ofchoice, control and freedom in their daily lives asany other person.

Compass Independent Living provides support

services that enable disabled people to liveindependently. This page includes details of theseservices and how they can help you live a moreindependent life. For more information, seewww.compassindependentliving.org.uk

COMPASS Know How(www.compassknowhow.org.uk)is an independent living onlineservice directory.

This web resource enablespeople to source a variety oforganisations, groups and

facilities all which help providedisabled people with the ability tolive independently.

The various services areseparated into categories andsome of the services andequipment they refer to.

So, whether your looking forhomecare in Horton, crafts inKilve, hydrotherapy at Huntworth,communications help inCannington or stair lifts inShepton, Compass Know Howcan help.

Let us help you achieve choice,freedom and control in your life

Compass Independent Living Services offerspayroll support across Somerset and NorthSomerset.

We will take your staff hours and calculate anytax and National Insurance before providing youwith a payslip and P32 to enable you to pay yourstaff and tax contributions.

We also run a managed accounts service. Thisis people who may require additional supportmanaging their care monies.

The funding from your care package is receivedby Compass Independent Living into a separatebank account. We will arrange to pay all theagreed outgoings for your care on your behalf.You retain responsibility for your money but areable to focus on directing how funds are spent.n If you are interested in using the Payroll or

Managed Accounts service, please call FinanceManager Sharren Elliott 01823 282823.

Agency workers often keep a record of theirhours, plus a note of what they did and anychanges to the routine.

This is now being recognised as best practicefor private PAs and carers, when someone is ona Personal Health Budget or Direct Payment,although it’s also useful to self funders.

It’s probably best to record this in a large diary,or note book. This way there is an ongoing recordthat can be used if, for instance, an increase incare is needed, and something is taking longerthan it used to.

A useful tool if your careneeds are increasing ...

Take the worry out ofmanaging your care

Compass Know How

YOU could win yourself a prize and a £500 donationfor Compass Disability Services just by clicking abutton!

Not-for-profit enterprise Giveacar is running acompetition, to see who can take a holidayphotograph with the best background view.

All you have to do is make sure someone in thephoto is displaying a poster with the CompassDisability Services and Giveacar logos (see photo).

To receive a poster, give us a call on 01823282823.

So, if you’re heading to Paris, Pisa, New York,Los Angeles, Sydney or Egypt, make sure you takea poster with you and snap someone in front of theEiffel Tower, Leaning Tower, Statue of Liberty,Holywood sign, Opera House or Pyramids.

You must email the photo, your name and yourchosen charity Compass Disability Services [email protected] with ‘AWESOMEGIVEACAR ROAD TRIP COMPETITION’ in the

email subject field.To be eligible for a prize, please also email the

photo to [email protected] Thecompetition closes at noon on September 1st. n PICTURED: David Oldershaw, on work

placement with Compass Disability Services, isfeatured in our mocked up photo in front of theHolywood sign.



COMPASS Disability Serviceshas been chosen as a charitycollector at this year’s BridgwaterCarnival and is looking forvolunteers to help collect funds.

Bridgwater Carnival, which hasbeen described as the “largestand best illuminated processionin the world”, takes place onSaturday, November 3.

Collectors are needed duringthe day before the Carnival andat night when the procession istaking place.

Many volunteers will bewearing fancy dress, but this istotally up to you!

Operations Manager MichelleEdwards said: “Last year, 22 ofus pounded the streets of theCarnival route and collectedalmost £600 – we would dearlylove to double that figure this

year and also double the amountof money we collect.

“Fundraising is a hugelyimportant source of revenue forus and a local event as big as theCarnival is a fantastic opportunityto bring money into theorganisation.

“Any help we can get on theday would be hugely appreciatedand would help us continueimproving the lives of disabledpeople in Somerset and beyond.”

If you’re able to help, pleasecontact Michelle Edwards on01823 282823 or [email protected]

Can you take a prize-winning holiday snap?

Carnival collectors needed!

n Compass collector Sara Deanat the 2011 Bridgwater Carnival.


Compass Points – Network news

THE Compass DisabilityNetworker is a network ofdisabled people, their carers andorganisations that representdisabled people, which works toimprove access and inclusion toservices and facilities.

Members participate inconsultation events andmeetings to give their views on arange of issues that areimportant to them. Views are fedback to organisations andagencies that develop services,

such as local authorities andhealth services. It’s free to joinand members can participate asmuch or as little as they like. Tojoin, please call Mandy on01823 282823 or [email protected]

Join the Network and have your say!

COMPASS Disability Network members haveparticipated in two events at the SomersetRural Life Museum in Glastonbury.

The museum has been successful ingetting through the first stage of a £625,000Heritage Lottery Fund bid to fund asignificant refurbishment of the museum. Aspart of the next stage of the application forHeritage Lottery Funds, Network memberswere given a opportunity to look around themuseum and provide suggestions forimprovements to make the museum moreaccessible – see right.

Taunton Deane Disability Discussion Group AGE UK’s Charlie Thorne gave a comprehensive

run down of services available to older people at thelatest group meeting.

Members also heard from Claire Stewart, ofCountryside Mobility South West, which aims toimprove access to the Countryside for people withlimited mobility, while Compass’s own Nikki Watson,provided an overview of Compass DisabilityService’s new Hate Crime reporting service.

A full report is available to view onwww.compassdisability.org.uk under the CompassDisability Network Somerset section. If you wish to

receive a copy please contact us on 01823 282823.n The next Taunton Deane Disability Discussion

Group takes place on September 25 when speakerswill be John Lewis – Parking and CivilContingencies Manager at Taunton Deane BoroughCouncil – to discuss Blue Badge Parking. TDBC’sPaul Harding will also be attending to discussforthcoming changes in Council Tax Benefit.Sedgemoor Disability Forum

The next Forum will take place on Wednesday,October 17 from 10.30am to 2.30pm, at theCanalside, Bridgwater. Please contact Mandy on01823 282823 for more details.

Members involved in museum consultation

Network news extra


Compass Points – Network news

MEMBERS have given theirviews on the Compass DisabilityNetwork as part of its annualmembership evaluation.

The questionnaire askedmembers to give their opinions onall aspects of the Network,including Networker andinvolvements events.

Network co-ordinator MandySeaman said: “Thank you to ourmembers who completed andreturned the Annual MembershipEvaluation questionnaire in April.We really do value your feedbackand will be using the informationsupplied to help us plan services.

“We have compiled a full reportsummarising the responses,which is available to view underthe Membership Evaluationsection of our website titled‘Membership Evaluation Report2012’. However if you’d like tosee a hard copy please contactus and we can arrange this.”

Results of the evaluation aresummerised below:n Dates and Timings of events

This remains a factor for peoplenot getting involved, with 45%saying they would consider

attending an event if it was held inthe evening or weekend. Thisoption will be trialled when asuitable consultation is available.n Transport and other support

Transport was noted as anissue for people not gettinginvolved. Transport is provided forall Compass Disability Networkmeetings for members who areunable to make their own way oraccess pubic transport. For thoseusing their own transport, mileageexpenses can be reimbursed.

Other support to enable ourmembers to attend, such aselectronic notetaking, can also beprovided. This is acommunication service where anoperator produces a typedsummary of a meeting, lecture orpresentation for a hearingimpaired person.

Any requests for support ortransport should be detailed onour return sheets so that we areable to make the necessaryarrangements.n Location

From the returns, 24% saidthey would like to see events heldin the Sedgemoor area followed

by 19.5% for Mendip, 19%Taunton Deane, 17% SouthSomerset and 8% WestSomerset. This information will beused to make further enquiriesabout existing groups andavailable funding. The number ofpeople happy with their level ofinvolvement has remained thesame year on year at 75%.n Networker

The number of people that feelthat the Networker is a usefulpublication has increased thisyear to 96% which is verypleasing to note.

Share your stories –Comments indicate memberswould like to see more articlesfrom members. One person noted“Problems disabled people haveencountered and how they wereresolved”.

If you have a story to shareabout how you resolved aproblem so that other readers canlearn more please contact Greg,the Editor. Greg can takeinformation over the phone if youprefer or you can write to theaddress on page three or e [email protected]

Members give views on Network

n THE Compass Disability Network now has amembership of around 1,000 people acrossSomerset who receive information from theorganisation.

However, members will only be sent informationthey have specifically requested when filling out amembership form. For example, if you only wishto be sent the Networker magazine we will ensure

this is all you receive from us. Or, if you haveopted to be updated on meetings or consultationswe carry out, this is all you will receive.

Therefore, if you don’t receive information youwould like to or are sent correspondence that isnot of interest, then please get in touch and wewill update our records. Contact Mandy on 01823282823 or email [email protected]

Follow Compass Disability Services on

Facebook andTwitter!

Sleepingarrangements: 5 berthSleeping arrangements are flexiblewith one double bed in the overheadcab, one single converted from theside dinette and the rear has a fixedtransverse bed with a wheelchairfriendly access for transfer. Alsocomes with a pressure relief mattress.Front LoungeThe off side bench seat has aremovable centre cushion which whenremoved provides leg room forpassengers when travelling in thefacing seat belted seats. Both seats have side ‘pull out sections to give maximumflexibility providing up to four seats plus a wheelchair around the table for diningplus the additional swivel cab seats and any combination for entertaining.

The main area of the lounge is left opento allow plenty of space for a wheelchairturning circle and has flush mountedwheelchair restraints for wheelchairtravelling which ensures all passengerstravel in close proximity for socialinteraction and to allow carers to be inclose attention if required.KitchenThe kitchen is fully equipped with fulloven, grille, hob, sink, microwave andfridge.

BathroomThe bathroom is converted into a full wet room andcomplete with ‘Altro Marine’ flooring. The standard doorremains but is complemented by a hinged corner wallsection that opens up allowing full access to the toiletand bathroom.A full shower curtain is provided and use of toilet andshower facilities can be by use of the shower curtainonly or standard use, fully enclosed.


THE South Western Ambulance Service NHSFoundation Trust (SWASFT) is looking to recruitmembers from across Somerset and the GreaterSouth West region.

On March 1, 2011 SWASFT became the firstambulance service in the country to operate as anNHS Foundation Trust (FT). Being an FT gives theTrust more independence to develop its servicesto meet the needs of the community it serves.

The Trust is more directly accountable to itspatients, staff and local communities who, asMembers, are able to influence its decisions andfuture development.

Membership is free and open to anyone over theage of 16. Members are offered the opportunity tobecome as informed, involved and influential asthey wish to be – the choice is theirs.

Some members choose just to receiveinformation about the Trust and its services; otherschoose to get involved by taking part inconsultation exercises or by attending events;whilst some Members become Governors of theTrust. Benefits of becoming a member are wide-ranging and include: access to the NHS DiscountScheme, having the opportunity to become a TrustGovernor or voting in the Governor Elections,access to Member only events and helping toshape the future of SWASFT.

Signing up to become a member of the Trust issimple. You can call the SWASFT MembershipOffice on 01392 261526, sign up online atwww.swast.nhs.uk/ft or come along to the manyevents that we hold in the community where youwill also be able to speak to staff from the Trust.

Now available to hireNewSwift Sundance 630L

Accessible Motor Home

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A brand new motor home bought and adapted with theknowledge and experience of John, the owner, who himself is aT10 Paraplegic wheelchair user of 20 years. This vehicle cannow be hired from Taunton Motor Home Hire, with whom aworking partnership has been formed to make this possible.

For further details, call John on 07887 525159or email [email protected] details are to be found on

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Ambulance Serviceseeks new members


Compass Points – Member case study

JILL has experiencedmental healthdifficulties throughouther life.

However, byattending CompassDisability Services’discussion forums andgroups, Jill has found away to avoid what shedescribes as “slippingback.”

Jill has suffered fromOCD, anxiety panicattacks and depressionsince birth, due to a lack ofserotonin in the brain.

“With the help of counselling,cognitive and group therapy, andmedication, I learned to managethe problem,” said Jill. “But afterthe treatment ended I neededsomething to keep me fromslipping back.”

Jill, who also has problems withher mobility, was referred toCompass Disability Services by afriend. She got involved with thecharity’s discussion forums andother projects, which haveprovided her with a focus, new-found confidence and a boost forher self-esteem, to help manageher mental health issues.

Jill said: “By just having groupand forum dates in my diary, itgives me something to focus onand aim for – that structure is veryimportant for me.

“I’d always hated speaking in

groups, but by attendingdiscussion forums, I’ve grown inconfidence so much and am nowable to speak up.

“I remember the first time I washanded a microphone at one ofthe groups. It was a dauntingexperience, but I spoke up as Ifelt passionately about the issuebeing discussed.

“It was only when I was drivinghome that it dawned on me whatan achievement this was for me.Whenever I leave a meeting Ihave spoken in, I feel so goodabout myself.”

Jill’s self-esteem has also beenhelped by making a positivecontribution for disabled people inher local community.

“I spoke up about a kerb in mytown, which was causingproblems for disabled people as itwas not low enough,” she said.

“The forum was attended by arepresentative from the local

council and, not longafter, work was carriedout to lower the kerb.

“Being able tocontribute, see an endresult, and make adifference for otherdisabled people was sorewarding.”

Jill added: “I owe somuch to CompassDisability Services forbeing there for me.They have helped memaintain my mental

wellbeing with help and support.“The meetings help me

socialise with other people in asafe environment. Staff are veryhelpful.

“If they can’t answer a questionthere and then, they look into itand come back to me.

“They let me know about anyinformation that comes into theoffice related to mental health,which helps me to maintain somecontact with the Mental Healthservice.”

Jill has recently expanded herinvolvement with Compass bybecoming a member of The Hub– a group of disabled people whocontribute to the learning of socialcare staff – and the Voice andInfluence Project.

“I’m now confident to get moreinvolved and, by doing so, I cankeep challenging myself and stopmyself from ‘slipping back’”.

‘Getting involved in discussions andforums has stopped me slipping back’

n Compass Disability Services organises a rangeof discussion groups and consultation eventsthroughout Somerset.

THE British Red Cross inSomerset provides short-termcare and support for people afteran accident or illness, givingthem the confidence to continuetheir daily lives.

Services are:• Home from Hospital –

available to any adult inSomerset who has recently hada period of hospitalisation andneeds extra support back athome for up to six weeks.Volunteers help with shopping,providing companionship, takingyou home and settling you inand supporting you in rebuildingyour confidence.

• Medical Equipment – they

have outlets across Somersetwhere anyone can loan or buyequipment (such aswheelchairs, walking aids,bathing aids, etc) to enable themto live independently.

• Transport – they can provide

transport for people needing toget to appointments, locally andfurther away. This service relieson volunteers living nearby toyou and we do request adonation.

If you or someone you knowcould benefit, please call on thenumber below.

The British Red Cross is alsolooking for volunteers.

All volunteers are trained andthey are flexible with what timeyou have to give.

Volunteering with the RedCross is a chance to make areal difference to people’s lives.Call 01823 273707 to find outmore.



BIBIC is a national charity based in Bridgwater,offering practical help to families caring for childrenwith conditions like autism, cerebral palsy, Down’ssyndrome, developmental delay, brain injury, andspecific learning difficulties like ADHD, dyslexia anddyspraxia.

bibic specialises in understanding the causes ofchallenging behavior and can even offer support ifyour child has not been diagnosed with a condition.

It is bibic’s 40th birthday this year. bibic,previously called The British Institute Of BrainInjured Children, was originally founded by KeithPennock in 1972, whose daughter Alison was bornwith a brain injury. As all fathers do, Keith knew thatAlison could achieve so much in her life if theycould just access the right support and experience.He travelled to America to find the therapies heknew were available and brought the techniquesand strategies back to England.

The range of conditions bibic can support and thetherapy programs offered have been developedover the years. As well as the charity’s NationalAssessment Centre in Somerset it also has a teamof Lottery-funded Outreach Therapists workingclosely with families in their own homes in the SouthWest and West Midlands. bibic aims over the nextdecade to extend their outreach services nationallyrather than have children travel long distances tothe national assessment centre in Knowle Hall,Bridgwater.

Events are being held all over the country by bibicsupporters for their 40th year.

Supporters will be fundraising at events such asThe London To Brighton Bike Ride and The GreatNorth Run in Newcastle, while HSBC is holdingevents with the bank matching funds raised. bibicare also looking for 40 volunteers to for 40 sky divesfor their 40th birthday, anybody interested?

bibic celebrates its 40th birthday!

Red Cross provides support in the home

Compass Disability Servicesis looking for volunteers tohelp us distribute Networkerin Somerset.

The magazine providesdisabled people across thecounty with interestingnews and features as well as importantdisability-related information and updates.

So, if you would be willing to help usdistribute the magazine, please call RichardPitman on 01823 282823 or [email protected]



MENDIP Mallards produced afine performance to win theSenior Shield at the swimmingGala in Plymouth last month.

The annual event was hostedby the Plymouth Pisces, whosenew pool and facilities areexcellent with a real emphasis oncatering for the less mobileswimmers.

Of particular note is a specialchair hoist which operates frominside the pool – a very welcomefeature.

As usual, the competition wasintense but coupled with an air offriendly rivalry which hasprevailed since the South Westgalas began some 20 years ago.

On this occasion it was theMallards who came away withthe Senior Shield, closelyfollowed by Plymouth Pisces,Yeovil Apollo and Keynsham

Seals.The photograph shows the

Mallards medal winners withMarcia Richards from Street(seated) holding the ‘Endeavour’shield which she was awardedfor showing special effort anddetermination during her races.

The Mallards swim everySunday at Strode Pool, Streetfrom 12.30pm to 1.30pm in a‘sheltered swim’ and newmembers and their families arealways welcome.

Please ring Norman on 01963240439 for further details.

AUTISM Somerset is a developing network of familymembers, professionals and providers bringingtogether people concerned with the well being ofthose whose lives are affected by autism.

Its website www.autismsomerset.org is now liveand, in the news section of the site, you will findtheir first e-bulletin, timed to coincide with thepublication of the ‘NICE Adult Autism Guidelines’.

Mallards swim to victory in Plymouth

New website goes live

Help us spread the word!


National news

THE Access to Elected OfficeFund offers grants of between£250 and £10,000 to disabledpeople who want to be selected ascandidates for an election, or whoare standing for election.

Grants help meet the additionalsupport needs that a disabledperson has that are associatedwith their disability. If this supportwere not provided, a disabledperson may face an additionalbarrier in the selection andcampaign processes compared toa non-disabled person.

The Fund will be open forapplications until the end of March2014. It will help disabledcandidates meet the additionalcosts they may face compared toa non-disabled person whetherthese are related to transport,

communication, technology orsupport.

To receive a grant, applicantsmust be: eligible to stand for anelection covered by the Fund,disabled, and able to show theyhave been involved in or areinterested in politics, civic,community or relevant activities.

The Fund will provide supportfor disabled people who want tostand either for political parties oras independent candidates for thefollowing elections and by-elections: UK Westminsterelections, English local authorityelections, English Mayoralelections and elections for Policeand Crime Commissioners.

The Fund is part of theGovernment’s Access to ElectedOffice Strategy which provides

practical support for disabledpeople who want to become anelected representative.

National charity Scope arguesthe fund is much needed. Aspokesman said: “Scope has beencampaigning on theunderrepresentation of disabledpeople in civic life for many years.

“As well as the negativeattitudes and assumptions manydisabled candidates face, manyalso incur significant extra costs intheir election campaigns as MPsor councillors as a result of theircondition or impairment.

“A representative proportion ofthe population should place thenumber of disabled MPs at around65, yet there is no exact figurebecause the data has never beencollected.”

DISABLED people have the opportunityto pass on their views on the future of theIndependent Living Fund.

As part of a public consultation, theGovernment is inviting views of ILFusers, their carers, families, localauthorities and other interested partieson the proposal to close the ILF in 2015, and forlocal authorities to take on the funding andresponsibility for ILF.

Stephen Jack, Chairman of the ILF Trustees,said, "We welcome the consultation on the futureof the ILF. We have worked closely with theDepartment for Work and Pensions to help it

consider the future support of ILFusers, and will continue this work toensure that our users’ responses tothe consultation are effectivelygathered and presented."

The Government will consider thefuture of the ILF alongside the wider

changes proposed in the Department of Health’sWhite Paper, 'Caring for our Future – reformingcare and support'.

The consultation is open until October 10, 2012.To find out more about the consultation, includinghow to respond, visit the ILF consultation page onthe DWP website.

Fund will support disabled peopleto become elected representatives

Views wanted on ILF closure proposal


Associate member / local news

INSPIRING Paralympicmedallist Ben Rushgrove willshare the secrets of his successat a fundraising event for StJohn Ambulance in Somersetlater this year.

Sprinter Ben, who won silverin the games in Beijing in 2008,will be the guest at the annualevent at Queen’s College,Taunton, on November 2.

Ben (pictured) has battled toovercome severe deafness andcerebral palsy to become one ofthe UK’s most talentedParalympians.

The 24-year-old from Bath is athree-time World Cup Championand won silver and bronze at the2011 World Championships. Hebroke the world record in the

200m in 2007 with a time of25.17 seconds. He won silver atBeijing despite suffering afracture in his foot three weeksearlier. All this has beenachieved despite his parentsbeing told that baby Ben mightnever walk.

Deborah Melmoth, CountyExecutive Officer for St JohnAmbulance, said: “We are veryexcited to have secured such aninspiring speaker for this year’s

event with Ben.“Not only will he be able to

share with us his story of how hehas overcome his disability toreach the top of his sport, buthopefully let us in on some ofthe secrets of London 2012 ashe will have competed in that aswell.”

All the funds raised for theevent will go towards the work ofSt John Ambulance in Somerset.Tickets are £15 to includecanapés and a glass of wine,£7.50 for under 18s and £6 forgroups of 10 or more under 18s.

For further information or topurchase tickets please contactRachel Cornish on 01278726743 or email [email protected]

A NETWORKER reader is hoping other disabledpeople can benefit from enquiries he has recentlymade with regards to rail travel.

Colin Pearce was planning to travel from Tauntonto Norwich to visit friends but was told his mobilityscooter was too large for the train.

They said Colin could travel with a standardwheelchair but the journey demanded a number ofchanges – including in the London Underground –which were unmanageable for Colin, who wastravelling alone.

Colin eventually overcame the problem bypurchasing a motorised wheelchair, which isaccepted by rail companies, but also discoveredmost rail networks provide a service to helpdisabled people make their journey connections.

“Most rail companies will provide wheelchair

users with assistance between platforms if theirjourney requires changes,” said Colin.

“I wasn’t aware of this before making enquiriesabout my journey and wanted to pass it on as Iwondered how many other disabled people knewabout it. As long as you book in advance, someoneshould be able to provide you with help.”

The Network Rail website states that disabledpassengers provide “a minimum of 24 hours noticebefore your journey as this will allow time for anyspecial arrangements to be made”.

Colin was also pleased to discover that, if youhave a Disabled Person’s Railcard, you and yourcarer are entitled to a discount on most railjourneys. For more information on rail travel fordisabled people, go to www.nationalrail.co.uk/passenger_services/disabled_passengers

Inspiring athlete to speak at SJA event

Important information for rail travellers


Interview – Jacky King

leadership team or in the classrooms in mywheelchair. I have spoke beads on my wheelswhich jangle and front castors that light up – thesemake me an instant distraction in any classroom!

A lot of my work is carried out in Somerset. Mybackground in specialist education means I spendtime working with a number of special schoolshelping them to develop their work so that they areable to deliver excellent outcomes for their pupils.

I also work on the Foundation Degree inSomerset on behalf of Worcester University. A lot ofthe adult students haven’t had a universityeducation and I never fail to be amazed at whatthey are able to achieve whist juggling work andfamily commitments.

This year I’ve worked on a pilot project where, forthe first time, we’ve had trainees working in specialschools. This has given them a chance to learnsome specialist skills to help promote the educationof children and young people with complex needs.

I’m lucky that new projects spring up over theyear. This year I’m looking forward to working on aprogramme to help teaching assistants in schoolsdevelop their skills in working with pupils who needmore individual support for their special needs.

Although I tend to work in specialist settings myaim is to help people to develop their skills so thatchildren and young people can achieve the bestpossible outcomes and have the best possible lifechances.

n What are the challenges in your workbecause of your disability, and how do youovercome them?Accessibility is a real challenge. I need to planahead as much as possible and ask the peoplewhere I will be working about access. I always listen

out for: “it’s only a few metres”, “there are only a fewsmall steps” or “there’s a slope”. Any of these mightnot necessarily spell disaster but they can mean Iarrive worn out before I even begin my day’s work.

When I think about it, though, the biggestchallenge is probably me! When I am battling to getinto a building and in pain and tired, I find it canbecome easy to doubt myself. I need to remindmyself how good I am at my job – having a littlepositive thought is really good for everybody.

n What would you say has been the most usefulequipment aid to you in your daily living?What immediately jumps into my mind is my bedlever because without it I can’t get out of bed,without my wheelchair I can’t browse in thesupermarket and without my Triwalker I can’t walksafely outside. I think the best answer to thisquestion is, having the right bit of kit for the job.

n If you could change one thing to improvethings for people with similar disability to yourown, what would it be?I have 30 years experience of working with childrenand young people with special needs and alwaystold my staff to ‘walk in their shoes’. However, noone could have prepared me for how tough it reallyis living on ‘the other side’.

I would like it to be okay for people withimpairments to stop striving to be the same aspeople who don’t have the same challenges. I knowso many people with impairments who think thatthey have to prove something and be ‘as good as’people without impairments. I want us to be able toreally celebrate our differences and say: “I may notbe able to do ‘x’ but look at what I can do andachieve everyday.”

n Interview courtesy of Positive Living Devon magazine, which you can read at www.livingoptions.org

is good for everybody’


Interview – Jacky King

JACKY was born in Northamptonshire and was thefirst in her family to go to university and, aftergaining qualifications, taught in schools in the WestMidlands and Greater Manchester.

When in 1989 Jacky was involved in a project tosupport science teachers in special schools, sheknew that she had found her passion. By 1991, shewas working in a residential special school forchildren with severe epilepsy.

Jacky learnt the value of taking a holistic view ofthe needs of the child, young person and the family.

She followed her interest in behaviour to take upthe headship of a school for young people withbehavioural, emotional and social difficulties.

After meeting her partner, Jacky re-located toSomerset where she had responsibility for the fullrange of Special School provision.

As Head of Service in Somerset, Jacky hadresponsibility for the most vulnerable of children andyoung people – those with special needs,behavioural difficulties and those who had beenexcluded from school. In this role, Jacky alwaysheld the fundamental right of fairness at the heart ofany decision she made.

In 2006 Jacky was involved in a serious roadtraffic accident, which wasn’t her fault, sustaining somany injuries that she wasn’t expected to survive.

She broke five out of the seven bones in herneck, including the top two which is usually fatal.

The expectation, if she survived, was paralysisfrom the neck down. Jacky well remembers the daywhen, whilst holding her foot, the surgeon felt amuscle flicker and said: “You will walk again”.

Jacky now lives with significant physicalimpairments, constant nerve pain and dreadful

fatigue. She also has problems with verbal memoryand facial paralysis due to a head injury.

Just under a year after the accident Jackymanaged to return to work but found she could onlywork part time. As a result, Jacky is now a selfemployed, independent consultant, working as aSchool Improvement Partner. She helps people whowork with children and young people, develop theirpersonal and professional skills, to affect a realimpact on the lives of those children, young peopleand their families.

n Tell us about the work you carry out inSomerset?I work with Special Schools supporting developmentwork and I also challenge things to ensure thatschools deliver excellent outcomes for their pupils.

I either work with the headteacher and senior

Compass Disability Network member Jacky King has overcome horrificinjuries, which led to serious physical and mental impairments, to carryout a vital role in special schools in Somerset.

‘A little positive thought

n Jacky has a room named after her at theTaunton Academy – for services to children andyoung people, and overcoming adversity. Jackyis stood in front of her plaque at the school.


Finding employment – special feature

YOUNG disabled jobseekers on work experiencewill be able to access extra support to help theminto mainstream placements for the first time.

They will be given access to the Government’ssuccessful Access to Work scheme, which providesmore than £100m to help disabled people intomainstream work by providing specially-adaptedequipment, support workers and interpreters.

Until now, the scheme has only been available tothose in paid work, but the Government hasannounced that it will now be extended to thoseundertaking work experience placements also.

This will mean more young disabled people cantake full advantage of the 100,000 work experienceplaces being offered by the Government each yearto help them get the skills they need to find work.

The move follows a review by Liz Sayce, ChiefExecutive of Disability Rights UK, who produced aseries of recommendations on how to use theprotected £320m budget for disability employmentprogrammes differently. The Government hasaccepted all her recommendations.

Following Liz Sayce’s review, the Governmenthas invested an extra £15 million in Access to Workto help another 8,000 disabled people inemployment. A campaign is also underway toencourage more disabled people, particularly those

with mental health conditions and in areas of highunemployment, to find out if they could benefit fromthe extra cash support on offer through the scheme.

A panel to advise the DWP on the best way totake forward Liz Sayce’s recommendations hasbeen established. They have also been asked togive their own recommendations on how to improvethe programme to make it more efficient.

Mike Adams OBE from the Essex Coalition ofDisabled People (ecdp) – a disabled people's user-led organisation – will lead the panel.

Mike Adams said: “This is the most radical reviewof Access to Work in the programme’s history andit’s great to see that the Government has a realcommitment to building on Liz Sayce’s work anddelivering disability employment support fit for the21st century.”

Liz Sayce, CEO of Disability Rights UK said: “Iwelcome the Government's plans to implement therecommendations I made on Access to Work sothat far more disabled people can get and keepjobs. They are widely supported by disabled peopleand our organisations – and it’s especially importantto improve opportunities for young disabled peoplewho can bring big talents to our economy.”n For more information on Access to Work,

visit www.direct.gov.uk/accesstowork

job interviews, then Access toWork may be able to pay some orall of the communicator costs.

* For more news regardingthe Access to Workprogramme, see article below.

Work Choice helps people withdisabilities whose needs cannotbe met through other workprogrammes, Access to Work or

workplace adjustments.This might be because you

need more specialised support tofind employment or keep a jobonce you have started work.

Work Choice will also ensureemployers get the support theyneed to employ more disabledpeople. The programme isdelivered by providers funded bythe government.n Residential training

Residential training for disabledadults is a programme that helpslong-term unemployed disabledpeople secure and maintain jobsor self-employment.

The programme is providedwhen there are no suitablealternative programmes availablelocally. Courses vary from collegeto college, with many leading toNational Vocational Qualifications(NVQs).

n From page 20

Young people to benefit from scheme



Support is availableIt is estimated that 50% of working-age disabled people are unemployed. With pooreconomic conditions making finding a job increasingly tough, it is vital that disabledpeople are aware of the support available. This feature highlights areas of supportthat can help people back into employment, government initiatives, case studies andthe role volunteering can play in finding work.

YOU can get help to gain newskills, find a job or stay in workfrom a range of organisations.

These include Jobcentres,careers services and voluntaryorganisations.

n JobcentresJobcentre Plus is responsible forthe national network ofJobcentres.

These give skilled advice atevery stage of your search for ajob. They will also make sure youknow which benefits orallowances you are entitled toclaim. They can also support youif you are concerned about theimpact of your disability on yourexisting job.

Your local Jobcentre can helpand advise you regardless of your

situation. They can also help andadvise you if you've not had anywork experience or not worked fora long time.

n Disability EmploymentAdvisersYou and your Jobcentre Plusadviser may decide that gettingfurther specialist advice would behelpful for you. They can arrangefor you to have an interview with aDisability Employment Adviser.

The DEA will find out aboutyour abilities, the sort of job thatwould suit you and draw up a planof action with you to help you getcloser to or into work.

Your DEA can offer you:• An employment assessment to

help you identify what type ofwork or training suits you best;

• A referral, if needed, for aspecialist employmentassessment with a WorkPsychologist to help youprepare to find and stay in work;

• A job-matching and referralservice;

• A referral, where appropriate, tothe Work Programme, WorkChoice or Residential Training;

• Information on employers inyour area who have adopted the'two ticks' disability symbol.

n Work schemes andprogrammes

Access to Work can help you ifyour health or disability affects theway you do your job. It gives youand your employer advice andsupport with extra costs whichmay arise because of your needs.

Access to Work might paytowards a support worker or theequipment you need at work. Itcan also pay towards the cost ofgetting to work if you cannot usepublic transport.

If you need a communicator at

Getting help finding work

n Continued top of facing page



Debbie lives in Bristol and is one of thedirectors of A Clean Sweep co-operativeA Clean Sweep is an office cleaning company setup and run by people with a learning disability. It isa social firm, owned and controlled by the peoplewho work for it and supported by Mencap’s BristolPathway service.

The company was set up in 1995 and Debbie hasbeen a member since the beginning. She said:“Before Clean Sweep I was in the day centre everyday. I was fed up not having any jobs or anything.”

Debbie found out about A Clean Sweep whenMencap staff held a meeting at her day centre.

Debbie said: “There are currently 17 members.There is no boss in the group; we all makedecisions between us. The members all clean to thebest of their abilities and I think we should all bevery proud of ourselves as a group.”

A Clean Sweep has built up a number of cleaningcontracts in the Bristol area, including officebuildings, church halls and a theatre. The companycontinues to expand, taking on new contracts andrecruiting more staff.

Debbie began as a cleaner and now works as thecompany’s administrator. “I enjoy my admin job, I

have completed a NVQ in office work,” said Debbie.“We all meet every Friday morning as a companyand I run the meetings.”

Sukhjinder and Karen, the Mencap staff who areemployed to promote the growth of the company,support Debbie and the other members of A CleanSweep with the running of the company.

As a director Debbie is responsible for workingwith the other directors to ensure the work is beingdone, people are paid the right money and there areno issues surrounding reliability.

Before A Clean Sweep Debbie worked in twonursing homes as a cleaner – at one she completeda training programme. And, although she had thisexperience, she still found it difficult to find a job.

Debbie remembers: "I kept getting told when Iwent to the day centre that I would never get a joband I would not be able to keep it either if I got onebecause of my learning disability. But I am still hereafter 14 years! So I am quite proud.

“I don't want my mum and dad worrying about meall the time, so I try to be an independent personand get on with my life, doing what I can.”

fibromyalgia leads to chronic pain,so she requires arm rests whilesat at a desk working.

Amanda is currently working 12hours a week as volunteer co-ordinator – a role which requiresher to liaise with police volunteersto keep them involved, seek othervolunteers, organise ID cards etc.However, this will soon beboosted to 16 hours.

“I need to be working at least

16 hours before the Shaw Trustwill fund the position, saidAmanda.

“In the meantime, they will puttogether a business package toevidence why the post shouldbecome paid – for example, showhow my role ensures volunteerscontinue to perform tasks that,ultimately, saves the force money.

Hopefully, after six months, thepolice will decide to make it apermanent, paid position.

“However, I’m well awarethere’s no guarantee this will bethe case, but the work I’ve donewith the police will stand me ingood stead when looking for paidemployment elsewhere.

“This role has also helped mekeep my brain active and, even ifit only turns out to be a temporarypaid role, the police will be able toprovide me with a reference,which they are unable to do if it isvoluntary.”

n Continued from page 22

Debbie plays lead role in firm’s growthCASE STUDY



Compass Disability Networkmember Amanda Stone is anoutstanding example of howperseverance and willingnessto perform voluntary roles canhelp lead to paid employment.

Amanda, a wheelchair user whoalso has fibromyalgia, hadalready exhibited an interest inworking for the police while shewas on Compass DisabilityServices’ Pre-EmploymentTraining Course.

By coincidence, Inspector TimPowell-Gill contacted course co-ordinator Rachel Bye to enquirewhether anyone was interested ina voluntary role with the police.

Amanda said: “It had alwaysbeen my passion to work for thepolice so I jumped at the chanceof voluntary work.

“After setting up a meetingthrough Compass, I had aninterview and was accepted. Itwas tricky at first as they didn’t

have a specific role in mind, so Idid a variety of tasks.

“One of the main tasks was tocontact victims of dwellingburglaries on how the police hadhandled their case.

“I spoke to 30 people andpresented the feedback in areport, which helped the policeget a different perspective fromtheir standard feedback forms.

“I also had the opportunity totake some statements frompeople and was given sometraining.

“But overall it was a bit of a‘slow burner’ and it could’ve got tothe point where Tim and I bothgave up, but we’ve beenpersistent.

“I also had some time at theCPS, which didn’t materialise intoanything substantial but, again, Irefused to be beaten.”

Amanda persevered andcontacted Inspector Powell-Gill,who had since moved into a newrole, and he agreed to take onAmanda on as an unpaidVolunteer Co-ordinator for theSomerset West area.

In a bid to find paid employmentAmanda was also meeting withthe Shaw Trust – a charity whichhelps disabled people findemployment – which she cameinto contact with at the DisabilitySomerset exhibition.

The Shaw Trust has helpedAmanda “jazz up” her CV andhave also met regularly with thepolice to discuss how they canhelp fund Amanda’s role tobecome a paid position.

The charity can also providefunding to help employers withthe funds to make reasonableadjustments for disabled people.For example, Amanda’s

Amanda’s path to employment

n Amanda (far end of the table) is pictured at a Police Disability Independent Advisory Groupmeeting as part of the VIP course. Compass Trustee Mark Oldershaw (white shirt) also attended.


CASE STUDY



right through life and help you take or gain stepstowards your ideal job.

Up to 60% of job vacancies are not advertisedand end up being filled internally or through externalnetworking and, if you are already working,volunteering can help change your career direction. Employment routesThere are no guarantees in life but, working withSomerset County Council, the next step volunteerservice has already identified a number of possibleroutes into employment.

If you are interested in finding out more pleasecontact them. Build your confidenceMany volunteers encounter a variety of newchallenges when they begin giving time in theircommunities.

Sharing experiences with new people, they canlearn new skills that can give them confidence to

face challenges in other areas of their lives.Introduce you to new friendsThere’s no better place to meet like-mindedindividuals than through volunteering for acampaign or cause you believe in.

Working together to bring about a change is agreat way to bond with others and become part of acommunity that can stay in touch long after yourwork is done. Improve your health and wellbeingAccording to a study commissioned by VolunteeringEngland, volunteering has a range of healthbenefits and can even prolong the lives ofvolunteers.

Studies carried out by the University of WalesLampeter's voluntary sector studies departmentfound that volunteering also boosts confidence andself-esteem, reduces hospital visits, and makespeople better able to cope with depression, stressand illness.

n From page 24



VOLUNTEERING is a great way to benefit yourcommunity, but could it actually make a positiveimpact on your life, too?

Whether you want to improve your CV by addingnew skills, meet new people or just feel good aboutyourself, the next step volunteer service canmatch you up with a volunteer opportunity withinSomerset County Council’s Social Care Servicesthat could change your life for the better. Boost your career optionsA survey carried out by the Time Bank, throughReed Executive, showed that among 200 of theUK’s leading businesses:• 73% of employers would employ a candidate

with volunteering experience over one without. • 94% of employers believe that volunteering can

add to skills.

• 58% say that voluntary work experience canactually be more valuable than experiencegained in paid employment.

• 94% of employees who volunteered to learn newskills had benefited either by getting their firstjob, improving their salary, or being promoted.

Additionally, volunteering lets you ‘road test’different kinds of work, giving you hands-onexperience of how different professions operate.

Volunteering can bring you into contact with allkinds of professionals and people from every walkof life. In fact, the networking opportunities it canprovide are among the least publicised but mostexciting benefits of all.

A good network can guide your career pathway

Volunteering is not only a great way to boost career prospectsbut also to improve wellbeing and help to build communities

The next-step volunteerservice – part of Careers SouthWest Ltd – aims to support andrecruit people who wish to bevolunteers.

Next-step volunteer serviceshas a number of contracts:• next-step volunteer bureau –

Recruiting and supportingvolunteers in Somerset CountyCouncil’s Social Care Services,including: TransportingSomerset, SomersetPartnership, Learning DisabilityServices, Children and FamilyServices, Adult Services

• Somerset ‘You-can-Do’ – Theenhanced volunteer bureau –developing a range ofvolunteer-lead initiatives forservice users who do not havea substantial need but stillneed some kind of moderateintervention that include:facilitating groups, Somerset

friendship circles includinginternet support groups, one-to-one support and befriending,supported volunteering, emailvolunteers, text and Phonevolunteers.

n If you would like to find outmore about volunteeropportunities or how you canbecome a Somerset CountyCouncil volunteer, pleasecontact next-step volunteerbureau (nvb) on 01278 664180or email [email protected]

Next-step volunteer service

Boost your prospects



August focus: Arthritis

The type of arthritis you havecan determine how you mightbe affected and for how long.

Sometimes arthritis can getbetter on its own or as a result oftreatment. However, the majorityof people with arthritis will findthey are affected to varyingdegrees over many years.

In the early stages it is oftenvery difficult for your doctor to tellwhich course your disease willtake. For most people, arthritiscauses discomfort, pain, stiffness,fatigue – and frustration. It mayresult in varying degrees ofphysical impairment – that is, itcan cause loss of strength andgrip which in turn may make yourmovements more difficult.

This may be hard to accept,especially if you have always leda very active life and may meanthat you will have to adapt and

make some changes to your life.Because people feel paindifferently and react to treatmentdifferently, the pain youexperience from your arthritis willbe very individual to you.

Pain can even be felt in placesother than the affected joint. Youmay, for example, have arthritis inthe hip, but feel pain in your knee.

This is called referred pain.There are different kinds of pain.Some people get persistent pain,some get sharp stabbing pains,others ache and others get acomplex mixture of aches andpains.

Your loss of strength, grip andmovement will fluctuate from dayto day. There will be some gooddays and some bad days.Although there is, as yet, noknown cure for most types ofarthritis, there is much that can bedone to help.

Pain can usually be controlled,and stiffness and inflammationcan be relieved. There are waysof overcoming the loss ofstrength, grip and mobility.

of physical disabilityHow will arthritis affect you

n Arthritis only affects older people. Fact – Arthritis doesn’t discriminate. It canaffect anyone, of any age including youngchildren.

n It’s just aches and pains. Fact – It’s the biggest cause of physicaldisability, accounting for 30% of GP visits.

n You have to learn to live with it.Fact – There are so many different wayspeople can manage their arthritis – medicaland non-medical. With the right information and supportpeople can overcome the pain andimmobility arthritis can cause.

Common myths



ARTHRITIS carries a huge economic as well ashuman and social cost, estimated at £7 billionannually in terms of lost labour in 2007.

It is the most common cause of chronic pain inthe UK with pain being the most commonsymptom of living with arthritis and pain affectsthe majority of people living with arthritis in theUK.

An average of 85% of contacts to the ArthritisCare helpline is about pain. Around 5,150 peopleper year receive information about painmanagement via the helpline.

There are 8.5 million people living in pain,isolation and distress because of osteoarthritis

Arthritis means, simply, inflammation of thejoints.

The word rheumatism is even more general, andis used to describe aches and pains in joints, bonesand muscles.

Arthritis is not a diagnosis in itself; it is a generalterm that acknowledges something is wrong. It oftentakes time for a doctor to reach a precise diagnosis.

There are over 200 kinds of rheumatic diseasesor conditions – often referred to as arthritis ormusculoskeletal diseases – which affect about tenmillion people in the UK.

Some forms of arthritis are rare, while others,

such as osteoarthritis, are much more common. It isnot generally known that arthritis affects people ofall ages, including children.

Arthritis is not, therefore, just part of the ageingprocess. However, some kinds of arthritis do tend toaffect people in particular age groups, whilst othersare more common in women than men. Mostcommonly, people with arthritis experience pain andimmobility.

The causes of arthritis are complex, and manyare as yet unknown. While there is no cure, there isplenty that can be done to control the disease andto improve your quality of life.

UK’s leading cause Arthritis is the biggest cause of physical disability inthe UK, affecting up to 10 million people, including12,000 children, and accounting for 30% of GP visits

What is arthritis?



ONCE you have been diagnosed ashaving arthritis, it is a matter offinding the right treatment for you.

This will depend on the kind ofarthritis you have, its severity, how itis affecting you and how you respondto whatever treatment you have.

It can sometimes take time to findthe treatment which works best foryou. There may be some periods when differenttreatments have to be tried and their effectsmonitored. And, over time, your treatment mayneed to be adjusted to meet your changing needs.Finding the right treatment will require thedevelopment of a good relationship with all yourhealth professionals to enable a sharing ofknowledge – yours is most valuable, so don’t beafraid to speak out.n DrugsThere is a vast range of drugs used to treatarthritis. Whatever drug you are prescribed, you

will need information from your doctorabout what it is and how it may help.Drugs prescribed include:• Painkillers (analgesics) – painrelieving drugs such as paracetamoland codeine,• Non-steroidal, anti-inflammatorydrugs (NSAIDs) – Reduceinflammation but can also give relief

from pain and reduce joint swelling. Theyinclude ibuprofen, diclofenac or naproxen.

• More powerful drugs – Disease modifying andimmunosuppressive drugs are used for thosetypes of arthritis which involve auto-immunity,including rheumatoid arthritis and lupus.

n SurgerySurgery is usually the last resort after othertreatment options have been explored.

Surgery can be minor – to assess damage doneor to smooth joints and repair cartilage – or it canbe more intrusive such as a joint replacement.

Treatment

ARTHRITIS Care exists tosupport people with arthritis.

It is the UK’s largest charityworking with and for all peoplewho have arthritis.

Arthritis Care is a user-ledcharity which means people witharthritis are at the heart of its work– they form its membership, areinvolved in its activities and directwhat it does.

It provides clear and accurateinformation about arthritis. Thehelplines team offers practical,confidential support backed up bya wealth of useful publications,including Arthritis News, its award

winning magazine.Arthritis Care runs a range of

self-management and personaldevelopment programmes, givingpeople the confidence and skillsto manage their arthritis anddramatically improve their quality

of life.People with arthritis are put in

touch with each other through thecharity’s network of over 250branches and groups. It also hasoffices throughout the UK’sregions and nations

Arthritis Care campaigns forgreater awareness of the needsof everyone with arthritis,improved services and an end todiscrimination.n You can call the Arthritis

Care helpline on 0808 800 4050.To find out more about thecharity go to its website:www.arthritiscare.org.uk

Arthritis Care



THERE are actually over 200different forms of arthritis.Some kinds of arthritis arestraightforward to diagnose,but others are much morecomplex and may need X-raysand various blood tests. Theseare the most common.■ OsteoarthritisThis is a condition which usuallydevelops gradually, over severalyears, and affects a number ofdifferent joints.

The cause is unknown, but itappears more in females thanmales and often starts after themenopause. This can lead to itbeing seen as part of the ageingprocess. Osteoarthritis used to beconsidered wear and tear arthritis,but it is now thought there aremany more factors than age anduse that contribute to thedevelopment of osteoarthritis –including obesity, past injury andgenetics.

In osteoarthritis, cartilagebecomes pitted, rough and brittle.The bone underneath thickens

and broadens out. In some cases,bony outgrowths (osteophytes)may form at the outer edges ofthe joint, making it look knobbly.

Often there is someinflammation. The joint maybecome stiff and painful to moveand occasionally swells.

If the osteoarthritis worsens,part of the cartilage may becomebrittle and break away from thesurface of the bone. Bone endscan then begin to rub againsteach other and the ligamentsbecome strained and weakened.This causes a lot of pain andchanges in the shape of the joint.

Osteoarthritis is most commonin hands, knees, hips, feet andspine.■ Rheumatoid arthritisAn inflammatory disease mainlyaffecting joints and tendons, butin a flare-up, other organs can beaffected. An inflamed joint isswollen, reddened and warm tothe touch.

In most diseases, inflammationhelps heal the body but, inrheumatoid arthritis, it causes

damage. When it is active –known as a flare-up – you mayfeel unwell. The body’s naturaldefences (the immune system)are part of the problem inrheumatoid arthritis.

It somehow puts itself intoreverse and attacks certain partsof the body instead of protectingit. It is not known what causes theimmune system to react in thisway.

Rheumatoid arthritis may startsuddenly, but more often thesymptoms develop slowly over afew weeks or months. While anacute onset of RA may be easierto diagnose, a gradual onset canmake diagnosis much moredifficult. Morning stiffness and thepainful swelling of joints aretypical features.

If your doctor begins to suspectrheumatoid arthritis, you will beasked to have some blood testsdone. If some or all of these arepositive, or your symptomspersist, you should be referred toa consultant rheumatologist for afirm diagnosis and treatment.■ Ankylosing spondylitisAnother form of inflammatoryarthritis.It begins by affecting thejoints of the lower back. Theybecome inflamed and stiff.■ GoutA condition where crystals buildup in the body and cause joints tobecome very painful. It is one of afew types of arthritis where futuredamage in joints can be avoidedby treatment.

Different forms of arthritis

A normal joint

SYNOVIALFLUID

CARTILAGESYNOVIALMEMBRANE

CAPSULE ANDLIGAMENTS

BONE

BONE

A normal joint

More advanced osteoarthritis

THICKENEDJOINTCAPSULE

BONETHICKENS ANDSPREADS OUT

(OSTEOPHYTES)

CARTILAGETHINS

FURTHER

Advanced osteoarthritis


Accessible days out

n Turning 20 – Anniversary Billn Tuesday, October 2, 7.45pmA COMPANY of disabled andnon-disabled dancers will beperforming at The Brewhouse inTaunton in October.

Candoco Dance Company istravelling to the past, present andfuture to celebrate 20 years ofbold and unexpected danceworks.

The performance begins with anew version of Set andReset/Reset by Trisha BrownDance, while French Choreographer RachidOuramdane confronts us with the present.Rounding off the programme is MatthiasSperling’s lighthearted, quirky solo.

These works herald the next 20 years bycelebrating dance through time, presentingdifferent ways of making dance and building onCandoco’s rich experience as the company ofdisabled and non-disabled dancers.Box Office: 01823 283244

n Candoco Dance Company isa company of disabled and non-disabled dancers. They commissionproductions created by world-classchoreographers for national andinternational touring and deliver anextensive learning and developmentprogramme to provide broad accessto the highest quality of dance.Candoco is a charitable organisationthat is a source of inspiration,support and innovation, whichspecialises in the integration ofdisabled and non-disabled dancers.

n NETWORKER is giving readers theopportunity to win two tickets for theperformance of Turning 20. All you need to dois write a short review of the performance andthe Brewhouse’s accessible facilities. At leastone of the claimants must be disabled.

To enter, email your details – withBREWHOUSE TICKETS in the subject line – [email protected] by September7, when the draw will be made.

characters. Tours are bookedthrough the Box Office and arefree of charge although there arelimited spaces so please requestthe tour when booking your seatsand audio headset.Hearing and Guide DogsSupport dogs are welcomethroughout The Brewhouse.Please mention this whenbooking and they can allocate

suitable seats and arrange for abowl of water for your dog beforeor after the performance, or in theinterval. Alternatively, if you makecontact in advance they can lookafter your dog during theperformance.BrochuresIf you wish to receive a copy ofthe season brochure, includingaudio described performances,they are available in special Large

Print or Audio Tape formats. To receive a copy of the

brochure in one of these specialformats at the beginning of eachseason please contact the BoxOffice.Find out moreTo find out more aboutaccessibility at The Brewhousecontact the Box Office on 01823283244 or pop in and have achat.

Disabled dancers perform at The Brewhouse

n How to find it: Brewhouse Theatre & Arts Centre, Coal Orchard, Taunton, Somerset, TA1 1JLBy car: 3 miles from M5, Jct 25. Follow signs for Theatre and Cricket Club.

n From page 30


Accessible days out

THE Brewhouse is committed tomaking all forms of art asaccessible as possible to ensureyour visit is an enjoyable one.

Therefore, it offers a wide rangeof facilities and performances toensure that your experience iscomfortable and pleasurable.WheelchairsAll entrances to The Brewhouseand its venues are wheelchairaccessible.

Three wheelchair positions (3ft4in x 3ft 4in) are available in theMain House. An accompanyingregistered carer goes free.

The Brewhouse Studio is easilyaccessible for wheelchair users. Ifyou are a wheelchair user, pleasemention this when booking yourtickets for performances in theStudio. The Café Bar andrestaurant area is accessible toall. If you are a wheelchair userplease let them know whenbooking your table in the

restaurant and a suitable table willbe selected for you.ToiletsDisabled toilet facilities areavailable in both the Box Officeand up the ramp in the Café Bar.Sign Language InterpretedPerformancesDuring these performances aBritish Sign Language Interpreterwill be positioned on the stageand specific seats with a clearview of the signer will be reservedand should be requested whenbooking.

Audio Described PerformancesAudio described performancesprovide the audience with adescription of the set, thecharacters, the costume, thescene and the lighting throughoutthe performance, interspersingwith the actors dialogue.

The information is relayedthrough a headset that will begiven to you on arrival at TheBrewhouse.

The headsets should bebooked when booking your tickets(at no extra cost) and collectedfrom the Box Office before theperformance.

A number of audio describedperformances are also availablewith a Touch Tour, which takesplace before the performance.

Visually-impaired customershave the opportunity to explorethe set and and feel thecostumes, as well as chat tomembers of the cast about their

Accessible artformsn The Brewhouse Theatre and Arts Centre in Taunton


Deb Criddle – equestrian


Sport – Paralympic special

TAUNTON’S Deb Criddle isset to appear in her fourthParalympic Games afterbeing selected in the GreatBritain Equastrian team forLondon 2012.

The Trull-based dressagerider, who won an incrediblefour gold medals at Athens2004, was delighted to beselected. She said: “I’m just

over the moon; it means somuch more this time around,being in London with a homecrowd behind us.”

Hugely-talented Deb, whoalso regularly competes innon-disabled events, will bein contention for threemedals in the grade threecategory – team, individualand freestyle to music.

for London 2012 Games

PARALYMPIC SCHEDULE OF EVENTSAugust September

Thu 30 Fri 31 Sat 1 Sun 2 Mon 3 Tue 4 Wed 5 Thu 6 Fri 7 Sat 8 Sun 9Boccia M M

Cycling Road M M M MCycling track M M M MFootball (5) MFootball (7) M

Goalball MArchery M M MAthletics M M M M M M M M M M

Equestrian M M M MJudo M M M

Rowing MSailing M

Shooting M M M M M M M MTable tennis M M M MPowerlifting M M M M M M MSwimming M M M M M M M M M M

Sitting volleyball M MBasketball M MFencing M M M M MRugby MTennis M M M

M – medals being contested. Opening ceremony – Wednesday, August 29, closing – Sunday, September 9.


Sport – Paralympic special

SOMERSET’S Lucy Shuker hasbeen selected in theParalympicsGB wheelchair tennisteam for London 2012.

The British women’s number one,who lives in Ash Priors and trains inTaunton, will play her first match atEton Manor at the Olympic Park onSaturday, September 1.

Shuker said: “I’ve been workingextremely hard throughout thequalification period and so it’sfantastic to have my placeconfirmed on the team. It’s amazing to have theonce-in-a-lifetime opportunity to compete inLondon and it really is a dream come true. It is areal honour to be part of ParalympicsGB.

“My preparations over the past few years havebeen hindered slightly by injury, but it’s given me

the desire and determination tomake it back to full fitness and tobe in peak form. I’ve recently hadsome great wins against athletesranked above me so goingforward I feel great, and I’m veryhappy with my current form.

“Heading into London I feelmore prepared than I did inBeijing, although my first Gamesexperience gave me an insightinto what it’s like to compete atthis level.”

n LUCY Shuker geared up for the Paralympics byfinishing runner-up in the Wheelchair LadiesDoubles event at Wimbledon last month. It was thethird time in four years she reached the Wimbledonfinal – her first partnering fellow Brit JordanneWhiley, who will also compete at London 2012.

Somerset stars selected

SOMERSET will also have arepresentative in the football andevent at the London 2012Paralympics.

Blind footballer Robin Williams,from North Petherton, will take tothe world stage and put his skillson show. The winger, 24, hasnow featured 30 times for his

country, combining a six days-a-week training schedule with hisstudies at Exeter University as hecompletes a PhD in statistics.

Robin said: “I’m really excitedto be a part of the Paralympicsand it will be a proud moment forme to play or my country – I’mquite lucky, really.”

With the London 2012 Paralympics kicking off this month,Networker spotlights the local athletes to look out for

Lucy Shuker – wheelchair tennis

Robin Williams – footballSWIMMER AnthonyStephens, from Highbridge,will be hoping to makewaves at this year’s Gamesafter representing Team GBin 2004 in the Men's S5 50metre freestyle and theMen's S5 100 metrefreestyle.

Anthony Stephens –swimming


Somerset Direct PO Box 618, Taunton, TA1 3WF.Tel: 0845 3459133 Minicom: 0800 7834518Email: [email protected]

Care Connect North SomersetNorth Somerset Council, Town Hall, Weston-super-Mare, BS23 1UJ.Tel: 01275 888801 Minicom: 01275 888805Email: [email protected]

Somerset Primary Care TrustWynford House, Lufton Way Yeovil, Somerset, BA22 8HR. Tel: 01935 384000 Fax: 01935 384079Email: [email protected]

Somerset Patient Advice and Liaison Service NHS Somerset, Freepost RRKL-XKSC- ACSG Yeovil,BA22 8HR Tel: 0800 0851067Email: [email protected]

North Somerset Primary Care TrustWaverley House, Old Church Road, Clevedon, North Somerset, BS21 6NNTel: 01275 546770 Fax: 01275 546769North Somerset Patient Advice and LiaisonServiceWaverley House, Old Church Road, Clevedon,North Somerset, BS21 6NNTel: 0800 923 2222 (Freephone)Email: [email protected]

NHS Direct Tel: 0845 4647

Equality and Human Rights CommissionFreepost RRLL-GHUX-CTRX, Arndale House,Arndale Centre, Manchester, M4 3AQTel: 0845 6046610 Textphone: 0845 604 6620Website: www.equalityhumanrights.comRADAR12 City Forum, 250 City Road, London, EC1V 8AFTel: 020 7250 3222 Minicom: 020 7250 4119Email: [email protected]

Reach your target audience in Networker

NetworkerJune 2012

Claim a free family day out to the Eden Project – the accessible jewel in Cornwall’s crown

Strongmanwows thecrowd atDisabilitySomerset

Let’sstamp

out hatecrime!

q Advertisers will receive invaluable exposure to a guaranteed and highlytargeted audience of disabled people, carers and professionals.

q Networker is published six times a year witharound 3,000 free copies distributedthroughout Somerset and North Somerset,producing an estimated readership of 10,000.

q Networker is sent out to Compass DisabilityServices’ membership of 1,300 disabled people,doctors surgeries, active living centres, daycentres, hospitals, care homes and careprofessionals.

Call Greg Jackson on 01823 282823 or email [email protected]

Useful contacts


Have your say

Dear sir,I write in response to your informative article onsight loss in the June edition of Networker.

I have recently been diagnised with age-relatedmacular disease (AMD), which causes loss ofvision in around half a million people in the UK. Inits most acute form patients may not be able toread, drive, watch TV or recognise faces.

The shock of facing the future without normalsight is, from my experience, full of apprehension,despair and intense anxiety about lifestyle coping.

A practical measure to check for AMD is to covereach eye alternately and observe any changes inthe open eye. If worried, seek advice at anopthalmic clinic without delay.

There are two types of AMD – wet and dry.Unfortunately, at the moment, dry remainsuntreatable. Treatment for wet AMD is availableand usually slows down the progression of sightloss and should begin without delay.

The Macular Disease Society is a valuablesource of information, reassurance, practicalsolutions and counselling.

The society helpline 0845 2412041 is free to nonmembers and will supply booklets and details ofself-help groups, including a local group near you.The society (www.maculardisease.org) alsosponsors medical research and is worthy financialsupport.

Anonymous

Dear Networker,A word of warning if you need shoe raises. After mylast meeting on NHS reforms, I was told, from April1st 2012, I did not fit the Somerset Referral Criteriafor orthotics and footwear.

The pathway was set by the ClinicalCommissioners through the flexible healthcaregroup. Even, my doctor is behind me on this one.

I now have to see an orthopaedic consultant anda specialist just to get a shoe raise.

I have had assessments every two years, now it’severy year. I don’t mind that but why do I need tosee two people? It’s a waste of time and moneypaying two people to do one job. How long will Ihave to wait for shoes.

And, if I don’t fit into the Somerset criteria wherewill I go? Chemists can’t deal with my problem.

This is not something I have just started to sufferfrom – I have had shoe raises for 18 years. I will nothave any more operations after two have gonewrong.

Mrs S. Jones, Bridgwater

n Would like to airyour views in ‘Haveyour say’ on anytopic related todisability?n Email letters [email protected] orpost to the address on page three.

I have to jump throughhoops for my shoe raise

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Support availablefor AMD sufferers

Documents

TheatreBrewhouse – Taunton’s artformsAccessible€¦ · August 2012 Accessible artforms – Taunton’s Brewhouse Theatre Finding employment – Special feature Arthritis –