21
The Vascular Priority Setting Project Survey Round 2 What have we done so far? Stage One: Open Survey Our UK-wide survey of vascular patients and carers asked “What do you think are the most important unanswered questions in vascular research?” Stage Two: Analysis We analysed all 582 questions received in round one and sorted them into the following categories: 1. Access e.g. AVF, fistula, dialysis 2. Amputation 3. Aortic e.g. AAA, Aortic Aneurysm 4. Carotid e.g. stroke, TIA 5. Diabetic Foot 6. PAD Peripheral Arterial Disease, Claudication, CLI Critical Limb Ischaemia (rest pain) 7. Venous e.g. DVT, varicose veins 8. Wounds e.g. leg ulcer 9. Service Organisation (these are general questions that apply across all categories) What happens now? Stage Three: Prioritisation The questions submitted in the first round of survey have been reviewed, summarised and duplication has been removed. They have been organised in to nine different vascular categories, as outlined above. We now invite vascular patients and carers to help researchers prioritise what questions they should focus their efforts on answering, by rating each question on a scale of importance. This is your chance to let us know us what questions you think research should focus on. Alternatively, you can Scan QR Code to go directly to the Electronic Survey or visit www.hyms.ac.uk/research/vascular-psp

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Page 1: The Vascular Priority Setting Project Survey Round 2 likert · ¡ Venous e.g. DVT, varicose veins 22 questions ¡ Wounds e.g. leg ulcer 12 questions Now go to the corresponding category

The Vascular Priority Setting Project Survey Round 2

What have we done so far?

Stage One: Open Survey Our UK-wide survey of vascular patients and carers asked “What do you think are the most important unanswered questions in vascular research?” Stage Two: Analysis We analysed all 582 questions received in round one and sorted them into the following categories: 1. Access e.g. AVF, fistula, dialysis 2. Amputation 3. Aortic e.g. AAA, Aortic Aneurysm 4. Carotid e.g. stroke, TIA 5. Diabetic Foot 6. PAD Peripheral Arterial Disease, Claudication, CLI Critical Limb Ischaemia (rest pain) 7. Venous e.g. DVT, varicose veins 8. Wounds e.g. leg ulcer 9. Service Organisation (these are general questions that apply across all categories)

What happens now?

Stage Three: Prioritisation The questions submitted in the first round of survey have been reviewed, summarised and duplication has been removed. They have been organised in to nine different vascular categories, as outlined above. We now invite vascular patients and carers to help researchers prioritise what questions they should focus their efforts on answering, by rating each question on a scale of importance. This is your chance to let us know us what questions you think research should focus on.

Alternatively, you can Scan QR Code to go directly to the Electronic Survey or visit www.hyms.ac.uk/research/vascular-psp

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PART ONE: Some questions about you.

These questions will help us to understand the range of people who have responded to our survey and help make sure that many different people take part. These details will not be linked to the questions you submit. If you prefer not to answer, skip this section and complete PART TWO.

1.1 Which of these categories best describes you? Tick all that apply.

▢ I have a vascular condition

▢ I am an in-patient with a vascular condition

▢ I am an out-patient with a vascular condition

▢ I am an informal carer of someone with a vascular condition

▢ I am a formal carer of someone with a vascular condition

▢ Prefer not to say

▢ Other: please describe _____________________________________________

1.2 Are you or the person with the vascular condition:

o Male

o Female

o Prefer not to say 1.3 What is your (or the person with the vascular condition) age in years? ____

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1.4a In which part of the UK do you or the person with the vascular condition live?

o England

o Wales

o Scotland

o Northern Ireland 1.4b Enter first part of postcode:

________________________________________________________________ 1.5 Are you or the person with the vascular condition:

o White

o Black

o Chinese

o Asian

o Mixed race

o Prefer not to say

o Other: please describe ________________________________________________

END OF PART ONE

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PART TWO: Prioritization Survey.

Survey Instructions

1. Please tick next to the vascular category or categories that you are interested in rating. You can select more than one.

2. For each category you choose, please rate all the questions shown in that

category. Remember, there are no right or wrong answers, this is your chance to let us know what questions you think research should focus on.

For example, if you think a question is very important and should be a top priority that researchers should focus on answering - then you can rate the question as extremely important. Alternatively, you might think a question is valid but you do not see it as a priority for researchers to focus on - then you can rate the question lower, as not at all important. Sometimes you might read a question you are not sure about, in this case you can select the answer don’t know.

3. Before the end of the survey, you will also be asked to review some general questions about vascular service, access, organisation and delivery. These questions apply across all of the vascular categories and we are keen to find out what vascular patients and carers think research should focus on.

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PART TWO: Prioritization Survey.

Please tick next to the vascular category or categories that you or the person you care for are going to rate. You can choose more than one category to rate.

¡ Access e.g. AVF, fistula, dialysis 15 questions

¡ Amputation 9 questions

¡ Aortic e.g. AAA, Aortic Aneurysm 24 questions

¡ Carotid e.g. stroke, TIA 10 questions

¡ Diabetic Foot 7 questions

¡ PAD Peripheral Arterial Disease, Claudication, CLI Critical Limb Ischaemia 9 questions

¡ Venous e.g. DVT, varicose veins 22 questions

¡ Wounds e.g. leg ulcer 12 questions

Now go to the corresponding category (or categories) of interest and rate all the questions listed in each of your chosen categories. This is your chance to let us know us what questions you think research should focus on.

! REMEMBER ! To complete the survey, you also need to rate the questions at the end under SECTION THREE: SERVICE ORGANISATION. These questions apply across all vascular conditions and we would really like to know how all vascular patients and carers rate these questions.

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ACCESS QUESTIONS

Please rate each question on a scale of importance to you. Remember, there are no

right or wrong answers, this is about what you think. Ex

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ê ê ê ê ê ê 1. What can be done to make fistulas or grafts last as long as

possible? ¡ ¡ ¡ ¡ ¡ ¡ 2. What can be done to avoid narrow segments from

forming in fistulas or grafts? ¡ ¡ ¡ ¡ ¡ ¡ 3. What can be done to make the needling of a fistula or

graft less painful? ¡ ¡ ¡ ¡ ¡ ¡ 4. What staff education is needed to help them to

understand the experience of patients living with a dialysis line, graft or fistula?

¡ ¡ ¡ ¡ ¡ ¡

5. What can be done to prevent fistulas becoming enlarged or at risk of a serious bleed? ¡ ¡ ¡ ¡ ¡ ¡

6. What can be done to prevent swelling in the arm with a fistula or graft? ¡ ¡ ¡ ¡ ¡ ¡

7. What do patients need to know about the risks and benefits of keeping a fistula that is not being used anymore?

¡ ¡ ¡ ¡ ¡ ¡

8. What can be done to prevent infections related to dialysis lines? ¡ ¡ ¡ ¡ ¡ ¡

9. Is a fistula always the best option for all patients who need dialysis, regardless of age?

¡ ¡ ¡ ¡ ¡ ¡

10. What education do patients need to be given about living with and looking after a dialysis line, graft or fistula and the effect this may have on their quality of life?

¡ ¡ ¡ ¡ ¡ ¡

11. What can be done to make needling of grafts and fistulas more accurate to lower the risk of problems? ¡ ¡ ¡ ¡ ¡ ¡

ACCESS QUESTIONS CONTINUED è

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ACCESS QUESTIONS continued

END OF ACCESS QUESTIONS CONTINUE TO ANSWER OTHER CATEGORIES OF INTEREST OR GO TO PART THREE

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ê ê ê ê ê ê 12.

What features of a fistula or graft make it better or worse at providing dialysis? ¡ ¡ ¡ ¡ ¡ ¡

13. Does it always have to be a doctor who puts in a line for dialysis or could a properly trained nurse or other member of staff do this instead?

¡ ¡ ¡ ¡ ¡ ¡

14. Does having the same staff needling the fistula help to make it last longer and improve the experience of dialysis?

¡ ¡ ¡ ¡ ¡ ¡

15. What do patients need to know about the risk of having many procedures to place new fistulas, grafts and dialysis lines and the possibility of damage to the blood circulation system?

¡ ¡ ¡ ¡ ¡ ¡

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AMPUTATION QUESTIONS

END OF AMPUTATION QUESTIONS.

CONTINUE TO ANSWER OTHER CATEGORIES OF INTEREST OR GO TO PART THREE

Please rate each question on a scale of importance to you. Remember, there are no

right or wrong answers, this is about what you think. Ex

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ê ê ê ê ê ê 1.

What are the best ways to prevent or treat pain after amputation? ¡ ¡ ¡ ¡ ¡ ¡

2. In a person who has undergone amputation, how do you reduce the chances of amputation in the other limb? ¡ ¡ ¡ ¡ ¡ ¡

3. How do you improve healing of the amputated stump? ¡ ¡ ¡ ¡ ¡ ¡

4. What are the best ways to support rehabilitation following amputation? ¡ ¡ ¡ ¡ ¡ ¡

5. How do we optimise prosthetic limb use following amputation? ¡ ¡ ¡ ¡ ¡ ¡

6. What are the best mobility aids following amputation? ¡ ¡ ¡ ¡ ¡ ¡

7. How do we improve the information provided to patients undergoing amputation? ¡ ¡ ¡ ¡ ¡ ¡

8. In a person who has undergone a minor amputation in the foot, how are the chances of a subsequent major lower limb amputation above the ankle reduced?

¡ ¡ ¡ ¡ ¡ ¡ 9.

When is it appropriate to perform a major amputation? ¡ ¡ ¡ ¡ ¡ ¡

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AORTIC QUESTIONS

Please rate each question on a scale of importance to you. Remember, there are no

right or wrong answers, this is about what you think. Ex

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ê ê ê ê ê ê 1.

What causes an aneurysm or is associated with aneurysm formation and how can we prevent one developing?

¡ ¡ ¡ ¡ ¡ ¡

2. How do we make aneurysm surgery safer and reduce the risk of complications? ¡ ¡ ¡ ¡ ¡ ¡

3. How do we reduce the time it takes to recover from aortic operations? ¡ ¡ ¡ ¡ ¡ ¡

4. How often are other problems detected when performing scans for a AAA and is there any benefit in doing anything about these findings?

¡ ¡ ¡ ¡ ¡ ¡

5. Can keyhole techniques and robotics make operations to repair aneurysms safer? ¡ ¡ ¡ ¡ ¡ ¡

6.

Aneurysms behave differently in women compared to men but both men and women are treated the same way. Should we develop sex-specific pathways to care for people with aneurysms?

¡ ¡ ¡ ¡ ¡ ¡

7.

What methods, including digital technology, can be used to ensure that people with acute aortic conditions such as aneurysm rupture or dissection are diagnosed quickly and treated without delay?

¡ ¡ ¡ ¡ ¡ ¡

8.

When should people with aneurysms be offered an operation to repair their aneurysm and how quickly should this be done if this is required?

¡ ¡ ¡ ¡ ¡ ¡

9.

How do surgeons decide which treatment is best for aneurysms and are these decisions based on the latest evidence available?

¡ ¡ ¡ ¡ ¡ ¡

10.

How can the risk of another aneurysm or other long-term aortic complications after aneurysm repair be minimised?

¡ ¡ ¡ ¡ ¡ ¡

AORTIC QUESTIONS CONTINUED è

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AORTIC QUESTIONS continued

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ê ê ê ê ê ê 11.

How common are complications after aneurysm repair and how can the chances of developing such complications be minimised?

¡ ¡ ¡ ¡ ¡ ¡

12.

What is the best way to monitor people after treatments to repair aneurysms to make sure they don't develop problems with their repair?

¡ ¡ ¡ ¡ ¡ ¡

13. What causes aneurysms to grow and/or rupture?

¡ ¡ ¡ ¡ ¡ ¡ 14.

Does having an aneurysm affect life expectancy, how can any effect of having an aneurysm be minimised and how can the patient and doctor achieve this?

¡ ¡ ¡ ¡ ¡ ¡

15. What is the rate of aneurysm growth or aortic growth after dissection?

¡ ¡ ¡ ¡ ¡ ¡ 16.

Can small aneurysms that are not at risk of causing harm be prevented from growing into larger, high risk aneurysms?

¡ ¡ ¡ ¡ ¡ ¡

17.

What causes aortic dissection and can the risk be picked up and/or prevented before it happens?

¡ ¡ ¡ ¡ ¡ ¡ 18. What is the optimal age to screen for aneurysms? ¡ ¡ ¡ ¡ ¡ ¡ 19.

How do we effectively diagnose and treat those with a genetic cause to their aortic aneurysm?

¡ ¡ ¡ ¡ ¡ ¡ 20.

Should genetic testing be carried out on everyone with an aortic condition?

¡ ¡ ¡ ¡ ¡ ¡ 21.

Should women be screened for AAA?

¡ ¡ ¡ ¡ ¡ ¡ 22.

Should siblings be screened for AAA when there is a family history of aneurysm?

¡ ¡ ¡ ¡ ¡ ¡ 23. How can we encourage more men to attend screening?

¡ ¡ ¡ ¡ ¡ ¡

24. Can we develop a test that could diagnose patients at risk of aortic aneurysm/dissection?

¡ ¡ ¡ ¡ ¡ ¡

END OF AORTIC QUESTIONS

CONTINUE TO ANSWER OTHER CATEGORIES OF INTEREST OR GO TO PART THREE

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CAROTID QUESTIONS

END OF CAROTID QUESTIONS.

CONTINUE TO ANSWER OTHER CATEGORIES OF INTEREST OR GO TO PART THREE

Please rate each question on a scale of importance to you. Remember, there are no

right or wrong answers, this is about what you think. Ex

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ê ê ê ê ê ê 1. What is the best treatment (e.g. medicines, life-style

changes, intervention) for carotid artery disease? ¡ ¡ ¡ ¡ ¡ ¡ 2.

How can we better explain the problems carotid artery disease can cause (e.g. warning signs and stroke risk) to patients and members of the public?

¡ ¡ ¡ ¡ ¡ ¡

3.

Is screening for carotid artery disease worthwhile, and if so, what’s the best screening test?

¡ ¡ ¡ ¡ ¡ ¡ 4. Is surveillance of patients with known carotid artery

disease worthwhile?

¡ ¡ ¡ ¡ ¡ ¡ 5.

Can doctors predict which people with carotid artery disease are most at risk of a stroke accurately?

¡ ¡ ¡ ¡ ¡ ¡ 6. Does carotid artery disease cause dementia?

¡ ¡ ¡ ¡ ¡ ¡

7.

Are chronic kidney disease and carotid artery disease connected?

¡ ¡ ¡ ¡ ¡ ¡ 8.

Can the appearance of a carotid narrowings (also called plaques) help predict an individual patient’s stroke risk?

¡ ¡ ¡ ¡ ¡ ¡ 9. Following carotid surgery, is surveillance (i.e., scanning to

detect re-narrowing) of the treated artery necessary?

¡ ¡ ¡ ¡ ¡ ¡ 10. How do we prevent restenosis and recurrent symptoms

following carotid surgery?

¡ ¡ ¡ ¡ ¡ ¡

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DIABETIC FOOT QUESTIONS

END OF DIABETIC FOOT QUESTIONS.

CONTINUE TO ANSWER OTHER CATEGORIES OF INTEREST OR GO TO PART THREE

Please rate each question on a scale of importance to you. Remember, there are no

right or wrong answers, this is about what you think. Ex

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ê ê ê ê ê ê 1.

What is the most effective way of preventing diabetic foot ulcers?

¡ ¡ ¡ ¡ ¡ ¡

2.

What is the most effective way of preventing recurrence of diabetic foot ulcers?

¡ ¡ ¡ ¡ ¡ ¡ 3.

What is the most effective way of preventing further amputation after toe amputation for diabetic foot disease?

¡ ¡ ¡ ¡ ¡ ¡

4.

Why are there delays in referral for diabetic foot disease?

¡ ¡ ¡ ¡ ¡ ¡ 5.

What factors effect healing time in diabetic foot disease?

¡ ¡ ¡ ¡ ¡ ¡ 6.

Is maggot therapy effective in diabetic foot ulcer healing?

¡ ¡ ¡ ¡ ¡ ¡ 7.

Could more patients learn to self-administer antibiotics if needed / required?

¡ ¡ ¡ ¡ ¡ ¡

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PAD / CLI QUESTIONS

END OF PAD / CLI QUESTIONS.

CONTINUE TO ANSWER OTHER CATEGORIES OF INTEREST OR GO TO PART THREE

Please rate each question on a scale of

importance to you. Remember, there are no right or wrong answers, this is about

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ê ê ê ê ê ê 1.

What are the best operations to perform to improve the blood flow to the legs of people with poor circulation?

¡ ¡ ¡ ¡ ¡ ¡ 2.

How can we make sure that operations to improve blood flow to the legs of people with poor circulation work for a long period of time?

¡ ¡ ¡ ¡ ¡ ¡

3.

What are the best ways to reduce the leg pain symptoms seen with patient with poor leg circulation without performing an operation?

¡ ¡ ¡ ¡ ¡ ¡

4. How can we stop patients getting poor circulation to their legs? ¡ ¡ ¡ ¡ ¡ ¡

5.

How can we slow down any progression of symptoms in those patients with poor circulation to their legs?

¡ ¡ ¡ ¡ ¡ ¡ 6.

How can we diagnose patients with poor circulation to their legs earlier and better? Would this make a difference in the long term?

¡ ¡ ¡ ¡ ¡ ¡

7.

How can we help educate better those patients who have poor circulation to their legs?

¡ ¡ ¡ ¡ ¡ ¡ 8.

How can we educate other doctors and health care workers so that they gain a better understanding of the consequences of a diagnosis of poor circulation to the legs?

¡ ¡ ¡ ¡ ¡ ¡

9.

How can we make it easier for patients to get help for this problem (poor circulation to the legs)?

¡ ¡ ¡ ¡ ¡ ¡

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VENOUS QUESTIONS

Please rate each question on a scale of importance to you. Remember, there are no

right or wrong answers, this is about what you think. Ex

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ê ê ê ê ê ê 1.

How can we prevent varicose veins from happening or them coming back after treatment? ¡ ¡ ¡ ¡ ¡ ¡

2. How do we prevent varicose veins from damaging the skin and from causing leg ulcers? ¡ ¡ ¡ ¡ ¡ ¡

3. How can we improve awareness and education for the general population and patients with venous disease? ¡ ¡ ¡ ¡ ¡ ¡

4. What causes varicose veins? ¡ ¡ ¡ ¡ ¡ ¡

5.

How do we ensure that patients with venous disease receive the specialist assessment and treatment they need?

¡ ¡ ¡ ¡ ¡ ¡

6. How can we improve awareness and education of venous disease for healthcare professionals? ¡ ¡ ¡ ¡ ¡ ¡

7. How can we improve pain control in venous leg ulcers? ¡ ¡ ¡ ¡ ¡ ¡

8.

Can we predict which patients with varicose veins or previous blood clots will develop skin damage?

¡ ¡ ¡ ¡ ¡ ¡

9.

Will a greater understanding of the microorganisms living in venous leg ulcers result in less infection and/or greater wound healing?

¡ ¡ ¡ ¡ ¡ ¡

10.

Are varicose veins associated with an increased risk of other medical conditions such as stroke, heart disease, chronic fatigue, memory loss?

¡ ¡ ¡ ¡ ¡ ¡

11. Does haemodialysis have an impact on venous disease?

¡ ¡ ¡ ¡ ¡ ¡

VENOUS QUESTIONS CONTINUED è

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VENOUS QUESTIONS continued

END OF VENOUS QUESTIONS

CONTINUE TO ANSWER OTHER CATEGORIES OF INTEREST OR GO TO PART THREE

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ê ê ê ê ê ê 12. What is the most effective treatment for varicose veins?

¡ ¡ ¡ ¡ ¡ ¡

13.

How can we make venous leg ulcers heal more quickly?

¡ ¡ ¡ ¡ ¡ ¡ 14. What is the impact of compression treatment on

inflammation?

¡ ¡ ¡ ¡ ¡ ¡ 15.

How can we prevent patients developing pain, swelling and skin damage after a deep vein thrombosis? ¡ ¡ ¡ ¡ ¡ ¡

16.

Can we improve the treatment of patients who have had a deep vein thrombosis and go on to develop pain, swelling and skin damage?

¡ ¡ ¡ ¡ ¡ ¡

17.

How effective is deep venous stenting in the prevention or treatment of pain, swelling or skin damage?

¡ ¡ ¡ ¡ ¡ ¡ 18. Is there a long term benefit to compression following

varicose vein treatment?

¡ ¡ ¡ ¡ ¡ ¡ 19.

Can compression be made more comfortable? ¡ ¡ ¡ ¡ ¡ ¡ 20.

How do we improve the early detection of deep vein thrombosis?

¡ ¡ ¡ ¡ ¡ ¡ 21.

Do hormone levels have an association with venous malformations?

¡ ¡ ¡ ¡ ¡ ¡ 22.

How can we improve pain in venous malformations where compression is not possible?

¡ ¡ ¡ ¡ ¡ ¡

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WOUND QUESTIONS

END OF WOUND QUESTIONS.

CONTINUE TO ANSWER OTHER CATEGORIES OF INTEREST OR GO TO PART THREE

Please rate each question on a scale of

importance to you. Remember, there are no right or wrong answers, this is about

what you think. Extr

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ê ê ê ê ê ê 1.

How can we accelerate healing of open wounds?

¡ ¡ ¡ ¡ ¡ ¡ 2.

How can we reduce wound odour? ¡ ¡ ¡ ¡ ¡ ¡ 3.

How can we prevent open wounds becoming infected?

¡ ¡ ¡ ¡ ¡ ¡ 4.

How can we improve quality of life in patients with open wounds?

¡ ¡ ¡ ¡ ¡ ¡ 5.

Which dressings are best for open wounds in specific situations?

¡ ¡ ¡ ¡ ¡ ¡ 6.

Which service configuration is associated with the best outcomes in wound patients?

¡ ¡ ¡ ¡ ¡ ¡ 7.

How can we personalise wound care to meet patient circumstances or needs?

¡ ¡ ¡ ¡ ¡ ¡ 8.

How can we improve patient involvement in the decisions about their wounds?

¡ ¡ ¡ ¡ ¡ ¡ 9.

How can we improve communication between clinicians in wound care services?

¡ ¡ ¡ ¡ ¡ ¡ 10.

How can we improve communication with patients with wounds?

¡ ¡ ¡ ¡ ¡ ¡ 11.

How can we improve consistency in assessment, diagnosis and management in patients with wounds?

¡ ¡ ¡ ¡ ¡ ¡ 12.

What is the best way to debride (remove dead or unwanted material) from wounds?

¡ ¡ ¡ ¡ ¡ ¡

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PART THREE SERVICE ORGANISATION

THESE ARE GENERAL QUESTIONS THAT APPLY ACROSS ALL VASCULAR CONDITIONS

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SERVICE ORGANISATION QUESTIONS

Please rate each question on a scale of importance to you. Remember, there are no

right or wrong answers, this is about what you think. Ex

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ê ê ê ê ê ê 1.

How can we make sure that people with vascular problems get to see the most appropriate professionals as quickly as possible?

¡ ¡ ¡ ¡ ¡ ¡

2. How can specialist vascular nurses improve the experience for people with vascular disease? ¡ ¡ ¡ ¡ ¡ ¡

3.

What can be done to improve joined-up care for people with vascular conditions?

¡ ¡ ¡ ¡ ¡ ¡ 4.

What can be done to increase patient choice in where they are treated, who treats them and the treatment they get?

¡ ¡ ¡ ¡ ¡ ¡

5. How can we safely reduce the length of hospital stay for vascular patients? ¡ ¡ ¡ ¡ ¡ ¡

6.

What can be done to ensure that GPs and other healthcare staff have a better understanding of vascular disease?

¡ ¡ ¡ ¡ ¡ ¡

7.

How can we improve the awareness of vascular disease amongst people with vascular symptoms and the general public?

¡ ¡ ¡ ¡ ¡ ¡

8.

What can be done to improve communication between healthcare professionals and people with vascular disease?

¡ ¡ ¡ ¡ ¡ ¡

9.

What can be done to make sure that everyone involved in treating vascular patients communicates better with each other?

¡ ¡ ¡ ¡ ¡ ¡

10.

What dietary advice should be given to people with vascular disease and is there any reason to alter this for specific conditions?

¡ ¡ ¡ ¡ ¡ ¡

11. What is the best way to help people with lifestyle changes such as diet, smoking cessation and exercise?

¡ ¡ ¡ ¡ ¡ ¡ 12.

How can we make sure that people who need it get the best help with lifestyle changes?

¡ ¡ ¡ ¡ ¡ ¡ SERVICE ORGANISATION QUESTIONS CONTINUED è

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SERVICE ORGANISATION QUESTIONS continued

END OF SERVICE ORGANISATION QUESTIONS NEXT STEPS è

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What can be done to improve emotional and mental health support for people with vascular conditions?

¡ ¡ ¡ ¡ ¡ ¡ 13.

What can be done to make sure that the outcome measures used for vascular services address the things that matter most to people with vascular disease?

¡ ¡ ¡ ¡ ¡ ¡

14. Which tests are most useful for the diagnosis of vascular disease and where should they be carried out?

¡ ¡ ¡ ¡ ¡ ¡ 15.

Should current screening programmes look for other vascular conditions?

¡ ¡ ¡ ¡ ¡ ¡ 16.

How can we improve the way that we inform people with vascular disease about the treatment options, so that they can take a greater part in shared decision-making?

¡ ¡ ¡ ¡ ¡ ¡

17.

What can be done to make sure that everyone gets fair and equal access to the best vascular treatment, regardless of individual characteristics?

¡ ¡ ¡ ¡ ¡ ¡

18.

How important are aspects such as the location of services, parking, and public transport links to people needing to use vascular services?

¡ ¡ ¡ ¡ ¡ ¡

19.

What can be done to reduce delays in treatment for vascular patients?

¡ ¡ ¡ ¡ ¡ ¡ 20.

How can we develop better treatments for vascular conditions that do not require major operations?

¡ ¡ ¡ ¡ ¡ ¡ 21.

How can we provide better organisation and integration of vascular services between neighbouring hospitals?

¡ ¡ ¡ ¡ ¡ ¡ 22.

Why do the treatments that are used for vascular conditions vary so much between different hospitals?

¡ ¡ ¡ ¡ ¡ ¡ 23. What can be done to make sure that who take part in

research fully understand what is involved? ¡ ¡ ¡ ¡ ¡ ¡ 24. How can we get greater involvement from patients and

the public in research into vascular conditions? ¡ ¡ ¡ ¡ ¡ ¡

Page 20: The Vascular Priority Setting Project Survey Round 2 likert · ¡ Venous e.g. DVT, varicose veins 22 questions ¡ Wounds e.g. leg ulcer 12 questions Now go to the corresponding category

The Vascular Priority Setting Project Survey Round 2

What happens next?

Once this survey has closed, the results will help us to organise research questions into an order of priority, before final workshop/s take place. The aim of the workshop/s will bring together both patient and health care professional's research priorities, to help researchers focus on finding answers to the questions that matter most to people who access vascular services, their carers/families and health care professionals.

Expression of Interest to participate in a final workshop

We are looking for people who have experience of, or knowledge about, vascular conditions. This includes people who access vascular services, their carers/families. This is a great opportunity for people who aren’t already influencing the research agenda, to have their say. We need people to join the workshops who are prepared to share their experiences and opinions, listen to other people’s experiences and opinions and participate in group discussions. At this stage we are keen to receive expressions of interest in participating in the workshop from people from across the UK. To express your interest in taking part in the workshop, please complete the form on the next page. Any personal details you do provide will be kept secure and separate from your survey answers. If you do not want to share contact details, leave blank and thank you for participating.

Return Survey to: J Long, Vascular Labs, 1st Floor Tower Block, Hull Royal Infirmary, Anlaby Road, HU3 2JZ

THANK YOU.

Page 21: The Vascular Priority Setting Project Survey Round 2 likert · ¡ Venous e.g. DVT, varicose veins 22 questions ¡ Wounds e.g. leg ulcer 12 questions Now go to the corresponding category

The Vascular Priority Setting Project Expression of interest form for future workshops

▢ Yes, I am happy to be contacted about a future workshop (please tick to confirm) Please enter preferred contact details below:

Title ________________________________________________

First Name ________________________________________________

Last Name ________________________________________________

Address ________________________________________________

Address 2 ________________________________________________

City ________________________________________________

Postal code ________________________________________________

Email ________________________________________________

Please indicate the vascular condition/s workshop that you would be interested in

joining. You may tick more than one

▢ Access e.g. AVF, fistula, dialysis

▢ Amputation

▢ Aortic e.g. AAA, Aortic Aneurysm

▢ Carotid e.g. stroke, TIA

▢ Diabetic Foot

▢ Peripheral Arterial Disease PAD, Claudication Critical Limb Ischaemia CLI

▢ Venous e.g. DVT, varicose veins

▢ Wounds e.g. leg ulcer

▢ Service Organisation