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The Role and Value of Mental Health Service Users’ Association in Fostering and Promoting Recovery Esmina Avdibegović, Sandra Marković, Zerina Ibrakić, Bojan Šošić Association for Mutual Assistance in Mental Distress “Feniks”, Tuzla, Bosnia and Herzegovina

The Role and Value of Mental Health Service Users

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Page 1: The Role and Value of Mental Health Service Users

The Role and Value of Mental

Health Service Users’

Association in Fostering and

Promoting Recovery

Esmina Avdibegović, Sandra Marković, Zerina Ibrakić, Bojan Šošić

Association for Mutual Assistance in Mental Distress “Feniks”,

Tuzla, Bosnia and Herzegovina

Page 2: The Role and Value of Mental Health Service Users
Page 3: The Role and Value of Mental Health Service Users

Objectives

• To showcase the experiences of promoting a program focused on recovery among the members of a mental health service users’ association;

• to discuss the significance and uniqueness of opportunities offered by peers in promoting recovery from mental illness;

• to address the issue of the link between recovery in mental health and protection of rights of persons with psychosocial disabilities.

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Page 5: The Role and Value of Mental Health Service Users
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The training

In order to strengthen the theoretical knowledge and

practical skills of its members, Association for Mutual

Assistance in Mental Distress “Feniks” conceived and offered

a training for its members, with the purpose

• to elucidate the concepts of psychosocial disability and

recovery as they are presented in the social model of

disability,

• to motivate the training participants to engage in advocacy

and peer support activities of the organization; and

• to enable each training participant to create own individual

recovery plan so he or she can present it to physicians,

family members and friends to get support for its

implementation.

Page 8: The Role and Value of Mental Health Service Users

The training involved elements of theoretical teaching, as well as various forms of group work, work in pairs, and individual activities.

Theme units this training covers were selected to provide knowledge on key concepts but primarily to provide motivation and practical guidance in everyday life and the work of the participants within the association. The training encompassed a theoretical introduction to mental health and mental disorders; the concept of psychosocial disability within the social model of disability; recovery and principles of recovery; formulating an individual recovery plan; self-advocacy, and peer support.

(All photographs taken and shared with permission of all participants)

Page 9: The Role and Value of Mental Health Service Users

Why do

people join

mental health

service users‘

associations?

REASON FOR PARTICIPATION (Odžak sample) %

Entertainment / leisure 90.9

Supporting well mental health 93.9

Safe space 87.9

Social environment 97.0

Help with practical issues 81.8

Learning new things (languages, skills) 69.7

Employment or creative work that makes me feeluseful 78.8

Fighting off loneliness 90.9

Recommended by a professional 84.8

McCormick & Sosic 2019

Page 10: The Role and Value of Mental Health Service Users

65,74

75,93

63,3368,06

51,85

0,00

10,00

20,00

30,00

40,00

50,00

60,00

70,00

80,00

90,00

100,00

1 2 3 4 5

%

RAS-R

1 – Personal

Confidence and Hope

2 – Willingness to Ask

for Help

3 – Goal and Success

Orientation

4 – Reliance on Others

5 – Not Dominated by

Symptoms

� Corrigan, P.W., Giffort, D., Rashid, F., Leary, M., & Okeke, I. (1999). Recovery as a psychological construct. Community Mental Health Journal, 35, 231-240.

� Corrigan, P.W., Salzer, M., Ralph, R., Sangster, Y., & Keck, L. (2004). Examining the factor structure of the Recovery Assessment Scale. Schizophrenia Bulletin, 30, 1035-1042

Page 11: The Role and Value of Mental Health Service Users

Users‘ experiences

• One should not be making an emphasis on the symptoms, or lack of symptoms.

• There are no people who are not facing crises.

• The diagnosis does not necessarily relate to the crisis or to the process of recovery.

• Others can have a role of tugboats.

• The process of recovery involves opening new perspectives.

Page 12: The Role and Value of Mental Health Service Users

Developed

countries

Developing

countries

A fraction of users is really active in the

associations � �

Difficulties in attracting young people� �

Short-term thinking, project-oriented� �

Need to re-do things over and over� �

Users are facing stigma� �

Conditions inconducive to support employment

of users � �

Mental health is in the shadow of other

disabilities � �

Publications usually have only formal value� �

Decision makers want and expect quick and

easy solutions in communication with users’

initiatives� �

Authorities offer consistent financial support for

users’ initiatives � ⌧

Conditions

faced by

mental health

service users‘

associations

Sosic 2019

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Some outstanding questions and needs in the

Bosnian context

• Personality factors that predispose people to join users‘ associations or effects focusing on social aspects of functioning?

• How does recovery relate to rights of persons with psychosocial disabilities?

• How can the users‘ association compensate for what the services do not cover?

• How can learning be formalized, and users be empowered and trained to act as peer-supporters?

Page 16: The Role and Value of Mental Health Service Users

Mental health

service users‘

associations can

act as first-class

agents in fostering

and promoting

recovery

https://tkfenix.ba/

Page 17: The Role and Value of Mental Health Service Users