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The Prostate Cancer Continuum The Changing Face of Disparity: Taking Health into Our Own Hands

The Prostate Cancer Continuum

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The Prostate Cancer Continuum. The Changing Face of Disparity: Taking Health into Our Own Hands. The real voyage of discovery consists not in seeking new landscapes but in having new eyes. - Marcel Proust. Pca is a Global Concern. - PowerPoint PPT Presentation

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Page 1: The Prostate Cancer Continuum

The Prostate Cancer Continuum

The Prostate Cancer Continuum

The Changing Face of Disparity:

Taking Health into Our Own Hands

The Changing Face of Disparity:

Taking Health into Our Own Hands

Page 2: The Prostate Cancer Continuum

The real voyage of discovery consists not in seeking new

landscapes but in having new eyes.

The real voyage of discovery consists not in seeking new

landscapes but in having new eyes.- Marcel Proust- Marcel Proust

Page 3: The Prostate Cancer Continuum

Pca is a Global ConcernPca is a Global Concern•Highest incidence of male cancer in

U.S.; 2nd greatest cause of death; declining overall but increasing in minority populations(2)

•#1 diagnosed cancer in Europe; deaths have increased by 16% since 1995(1) ”despite widespread use of PSA testing...”

• Sources: (1) World Health Organization; (2) American Cancer Society

•Highest incidence of male cancer in U.S.; 2nd greatest cause of death; declining overall but increasing in minority populations(2)

•#1 diagnosed cancer in Europe; deaths have increased by 16% since 1995(1) ”despite widespread use of PSA testing...”

• Sources: (1) World Health Organization; (2) American Cancer Society

Page 4: The Prostate Cancer Continuum

Why We Must Be ConcernedWhy We Must Be Concerned

1 in every 6 men get Prostate Cancer 1 in every 4 Black men get Prostate Cancer Latinos have the 3rd highest incidence rate Blacks and Latinos are diagnosed at advanced disease

stages at a 144% greater rate than whites The 5 year survival rate for Blacks and Latinos is

worse than for whites and getting worse Black men die at a rate 240% higher than whites

1 in every 6 men get Prostate Cancer 1 in every 4 Black men get Prostate Cancer Latinos have the 3rd highest incidence rate Blacks and Latinos are diagnosed at advanced disease

stages at a 144% greater rate than whites The 5 year survival rate for Blacks and Latinos is

worse than for whites and getting worse Black men die at a rate 240% higher than whites

Page 5: The Prostate Cancer Continuum

National Healthcare Quality Report - 2007

National Healthcare Quality Report - 2007

•“Preventive healthcare lags significantly behind other gains in healthcare.”

•Access to care and information varied widely between racial/ethnic groups and by socio-economic status

• Source: www.ahrq.gov

•“Preventive healthcare lags significantly behind other gains in healthcare.”

•Access to care and information varied widely between racial/ethnic groups and by socio-economic status

• Source: www.ahrq.gov

Page 6: The Prostate Cancer Continuum

Healthcare Costs represent an increasing % of GDP

- $650B more for Cancer Treatment

Healthcare Costs represent an increasing % of GDP

- $650B more for Cancer Treatment

Page 7: The Prostate Cancer Continuum

U.S. - World’s Best Medical Care?- New York Times, 12 August 2007

U.S. - World’s Best Medical Care?- New York Times, 12 August 2007

• 37th in W.H.O. health system performance (France #1, Italy #2)

• Last in overall quality: lack of coordination of care/access for preventive and critically ill

• Only major industrialized country without universal health coverage

• Life expectancies near the bottom of other industrialized nations

• Worst Infant Mortality stats of any developed nation• Sources: Commonwealth Fund, Centers for Disease Control, W.H.O.

• 37th in W.H.O. health system performance (France #1, Italy #2)

• Last in overall quality: lack of coordination of care/access for preventive and critically ill

• Only major industrialized country without universal health coverage

• Life expectancies near the bottom of other industrialized nations

• Worst Infant Mortality stats of any developed nation• Sources: Commonwealth Fund, Centers for Disease Control, W.H.O.

Page 8: The Prostate Cancer Continuum

Exacerbating the ProblemExacerbating the Problem

• Increasing employee cost burden

• Regulations on employers => increasing costs => decreasing competitiveness

• Insurance compensation standards

• Medicare reimbursement changes

• Increasing employee cost burden

• Regulations on employers => increasing costs => decreasing competitiveness

• Insurance compensation standards

• Medicare reimbursement changes

Page 9: The Prostate Cancer Continuum

American Cancer Society Disparity Study - 2007

American Cancer Society Disparity Study - 2007

•Cancer patients with private insurance are much more likely to be diagnosed early, increasing their long-term survival

•Those uninsured patients or those with Government insurance are more likely to be diagnosed with advanced stage disease at first treatment

•Cancer patients with private insurance are much more likely to be diagnosed early, increasing their long-term survival

•Those uninsured patients or those with Government insurance are more likely to be diagnosed with advanced stage disease at first treatment

Page 10: The Prostate Cancer Continuum

“Baby Boom” Impact“Baby Boom” Impact

Estimated Per Capita Health ExpendituresEstimated Per Capita Health Expendituresby Age and Sex, 1995by Age and Sex, 1995

Page 11: The Prostate Cancer Continuum

Service Provider ImpactService Provider Impact

•Continuing nurse shortage

•Resistance to greater use of nurse practitioners

•Decline in doctors entering into Primary Care Medicine

•Resistance to “Convenient Care” clinics

•Continuing nurse shortage

•Resistance to greater use of nurse practitioners

•Decline in doctors entering into Primary Care Medicine

•Resistance to “Convenient Care” clinics

Page 12: The Prostate Cancer Continuum

Population ImpactsPopulation Impacts 12 million cancer survivors alive in the U.S.

today 3 out of 4 American families will have a family

member diagnosed with cancer 25% of American families living with cancer

have children under the age of 18 living at home More than 28% of children in America will be

living in poor households

Sources: American Cancer Society, Institute of Medicine, World Health Organization, The Policy Press

12 million cancer survivors alive in the U.S. today

3 out of 4 American families will have a family member diagnosed with cancer

25% of American families living with cancer have children under the age of 18 living at home

More than 28% of children in America will be living in poor households

Sources: American Cancer Society, Institute of Medicine, World Health Organization, The Policy Press

Page 13: The Prostate Cancer Continuum

Treatment ImpactTreatment Impact

Skeletal impacts of ADT Cardiovascular issues related to hormone therapy Conflicting preventive therapeutic recommendations

SELECT Finasteride PLCO Study

Emerging technologies with minimal curative benefit Positive benefit of drug therapies

Targeted disease management

Skeletal impacts of ADT Cardiovascular issues related to hormone therapy Conflicting preventive therapeutic recommendations

SELECT Finasteride PLCO Study

Emerging technologies with minimal curative benefit Positive benefit of drug therapies

Targeted disease management

Page 14: The Prostate Cancer Continuum

Lifestyle ImpactLifestyle Impact

Meat becoming more popular in diets globally 10.4% in the U.S. 25% more in Korea 49.7% in China >2% in India

Higher birth weights in emerging countries strong cancer association

Sources: Food & Agriculture Organization of the United Nations, AICR

Meat becoming more popular in diets globally 10.4% in the U.S. 25% more in Korea 49.7% in China >2% in India

Higher birth weights in emerging countries strong cancer association

Sources: Food & Agriculture Organization of the United Nations, AICR

Page 15: The Prostate Cancer Continuum

Business of Medicine Business of Medicine

The System often has other issues: Equipment investment Revenue production Pharmaceutical alliances Pay-for-Performance

Patients MUST become their own advocates

The System often has other issues: Equipment investment Revenue production Pharmaceutical alliances Pay-for-Performance

Patients MUST become their own advocates

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Page 16: The Prostate Cancer Continuum

Complicating the IssueComplicating the Issue

Women vs. Men Comparable incidence and mortality Research funds - 3X for breast cancer Public health staffing - inconsistent Government commitment - no agencies Media focus - inordinately female focus Men don’t communicate

Women vs. Men Comparable incidence and mortality Research funds - 3X for breast cancer Public health staffing - inconsistent Government commitment - no agencies Media focus - inordinately female focus Men don’t communicate

Page 17: The Prostate Cancer Continuum

Why Prostate Cancer Prevention?Why Prostate Cancer Prevention?

Significant public health risk

186,000 new cases and 29,000 deaths yearly (2008)

Risk factors (age, race, genes) are not modifiable

Benefit of screening on mortality is controversial

Therapy is associated with morbidity

That Leaves Prevention

Significant public health risk

186,000 new cases and 29,000 deaths yearly (2008)

Risk factors (age, race, genes) are not modifiable

Benefit of screening on mortality is controversial

Therapy is associated with morbidity

That Leaves Prevention

Page 18: The Prostate Cancer Continuum

Phase III Chemoprevention TrialsPhase III Chemoprevention Trials

RRR = 22.5% RRR = 23.5%

PCPT REDUCEREDUCE

Page 19: The Prostate Cancer Continuum

5ARIs for Biochemical Recurrence5ARIs for Biochemical Recurrence

Andriole et al, Urology 45:491, 1995

Page 20: The Prostate Cancer Continuum

PCPT and REDUCEWhat did we learn?

PCPT and REDUCEWhat did we learn?

Consistency of effect Similar magnitude of risk reduction across all

risk groups No longer any grade issues

Conclusion Use of 5-alpha reductase inhibitors is an effective

primary prevention strategy

Consistency of effect Similar magnitude of risk reduction across all

risk groups No longer any grade issues

Conclusion Use of 5-alpha reductase inhibitors is an effective

primary prevention strategy

Page 21: The Prostate Cancer Continuum

Healthcare DisparityHealthcare Disparity

•Disaffected classes• racial/ethnic minorities• high risk populations

•Socio-economic impact• lack of/limited insurance• breaking the “social contract”

•Equal Access:• education• preventive mechanisms• care

•Disaffected classes• racial/ethnic minorities• high risk populations

•Socio-economic impact• lack of/limited insurance• breaking the “social contract”

•Equal Access:• education• preventive mechanisms• care

Page 22: The Prostate Cancer Continuum

Moving the Bar Forward:

Success Stories and Templates for Change

Moving the Bar Forward:

Success Stories and Templates for Change

Page 23: The Prostate Cancer Continuum

Technology for ChangeTechnology for Change

71% of the people in North America are online 113 million Americans seek health information

online Almost half of adult users and 84% of teens will

be on social sites 40% of self-classified “non-users” became direct

or indirect users after a cancer diagnosis Sources: Internet World Stats, Pew Internet & American

Life Project

71% of the people in North America are online 113 million Americans seek health information

online Almost half of adult users and 84% of teens will

be on social sites 40% of self-classified “non-users” became direct

or indirect users after a cancer diagnosis Sources: Internet World Stats, Pew Internet & American

Life Project

Page 24: The Prostate Cancer Continuum

Social Network IntegrationSocial Network Integration

Credible peer-to-peer communications “New” Prostate Cancer Infolink “Pints for Prostate” Prostate Cancer Internet Alliance FaceBook

Credible peer-to-peer communications “New” Prostate Cancer Infolink “Pints for Prostate” Prostate Cancer Internet Alliance FaceBook

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Page 25: The Prostate Cancer Continuum

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Page 26: The Prostate Cancer Continuum

Este sitio se ha producido con la ayuda de la familia de Roberto "Tito" Warat y una concesión educativa de la oncología

de Sanofi-Aventis

Opciones de TratamientoInvestigación TraslacionalToma de Decisión InformadaHormonasGleason 7: ¿Una Nueva Categoría de Riesgo?DiagnósticosTerapia Citotóxica¿Está considerando un Ensayo Clínico?QuimioterapiaMedicina Alternativa / ComplementariaEspera AlertaTerapias de AtaqueSoluciones QuirúrgicasManejo de Efectos ColateralesSoluciones Oncológicas de la RadiaciónCuidado PaliativoManejo del DolorFuentes de InformaciónServicios de asistencia pacientes

Page 27: The Prostate Cancer Continuum

Reinforcing the MessageReinforcing the Message

“In The Know” newsletter Hard Copy - 29M circulation Online supplement - > 100M Broad spectrum content Audience diversification

consumers/patients advocates professionals researchers international

“In The Know” newsletter Hard Copy - 29M circulation Online supplement - > 100M Broad spectrum content Audience diversification

consumers/patients advocates professionals researchers international

Page 28: The Prostate Cancer Continuum

Media SyndicationMedia Syndication

Mass impressions Minimal cost Increase reach

Mass impressions Minimal cost Increase reach

Page 29: The Prostate Cancer Continuum

PodCasting for Health

•Reinforce the print message

•Portability for consumers

•Viability for diverse situations:•personal•public health•clinical•research

Page 30: The Prostate Cancer Continuum

Cell Casting for Health

•Enhanced consumer interactivity

•Opt-in network

1.877.2CHECKNOW

•Customized content

•Applications for:cliniciansresearcherspublic health

Page 31: The Prostate Cancer Continuum

Going to the Barbershop: Going to the Barbershop: Empowering Communities Through Empowering Communities Through

Risk CommunicationRisk Communication

Page 32: The Prostate Cancer Continuum

Barbershop based Health Awareness Initiative

Barbershop based Health Awareness Initiative

Project BHAI (Brother): 48 shops in Jharkhand and Orissa Provinces - India cancer prevention and tobacco control

enhance knowledge enhance healthy behavior create a sustainable environment build on existing networks and partnerships expand to co-morbid disease

Project BHAI (Brother): 48 shops in Jharkhand and Orissa Provinces - India cancer prevention and tobacco control

enhance knowledge enhance healthy behavior create a sustainable environment build on existing networks and partnerships expand to co-morbid disease

Page 33: The Prostate Cancer Continuum
Page 34: The Prostate Cancer Continuum

Research PartnershipsResearch Partnerships

Page 35: The Prostate Cancer Continuum

Creating a New NetworkCreating a New Network

The Prostate Net

Core Distribution:80,000+ Website visits/month

1,200 Patient Support Group Leaders1,000+ Public Health Workers

~ 6,000 Medical Oncologists> 4,000 Urological Specialists> 2,000 Cancer Researchers

Sponsors

National Ass’n. of Barber Boards

of America~ 200,000 Barbers

ParticipatingMedical/Research

Centers> 300

American/National MedicalAss’ns.

> 5,000 Doctors

Community

Page 36: The Prostate Cancer Continuum

Create HeroesCreate Heroes Meet James He came to a Health Fair On HIS BIRTHDAY!! To give himself The Gift

of Life!!

Meet James He came to a Health Fair On HIS BIRTHDAY!! To give himself The Gift

of Life!!

•Warren brought his son to a Pca screening•To educate him about being responsible for his health

•Warren brought his son to a Pca screening•To educate him about being responsible for his health

Page 37: The Prostate Cancer Continuum
Page 38: The Prostate Cancer Continuum

Why is all this needed?!Why is all this needed?!To Eliminate the Suffering and Death from To Eliminate the Suffering and Death from

CancerCancer

“If You’re Not the Lead Dog, the View Never Changes”

- Mike Ditka

Page 39: The Prostate Cancer Continuum

Thank You!Thank You!

WWW.THEPROSTATENET.ORG1.888.477.6763