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“Never doubt that a small group of thoughtful,
committed citizens can change the world.
Indeed, it is the only thing that ever has.”Margaret Mead
• Who We Are• Why We Got Together• What the NC SEG Wants• How Other Groups/Organizations Can Help• How to Become Involved
Who is the NC Stakeholder Engagement Group (SEG)?
• An Organization Solely of Consumers and Family Members
• Cross-Disability Focused – Intellectual/Developmental, Physical, Mental Health Disabilities, and Addictive Disease, Caregivers, Aging
• Initiated and Funded by the NC Council on Developmental Disabilities
• Informed by standards and expectations of the Centers for Medicare and Medicaid Services (CMS) and the National Council on Disabilities Policy & Implementation Considerations for Medicaid Managed Care for People with Disabilities
• Partnering with NC DHHS, DMA, and DMH/DD/SAS
DRAFT
Why We Got Together
1. Become Educated to Make Informed Decisions regarding NC MLTSS
2. Provide Consumer and Family Insight and Expectations to Those Directing Medicaid Change
3. Inform Our Constituent Groups of Expectations
The SEG’s Mission
The SEG’s Positions
Focus on Measurable Life Outcomes and System Accountability
Ensure that Consumer and Family Expectations are Met in 13 Key Elements of System Design
Consumer & Family
StakeholderEngagement
EntranceTo
SystemWaiting
Lists
Assess-ment
Person-CenteredPlanning
Self-Direction
SupportCoordina-
tion
Services
Quality
QualifiedProviders
PaymentStructure
SystemTransition
ParticipantProtection
A Consumer & Family Centric Approach For LTMSS Implementation
No Waiting Lists
Integrated Employment
Inclusive Living
Asset Development
An AccountableSystem
The System
The Outcomes
All eligible people receive services and supports they require - no waiting list
Everyone works in integrated community employment at competitive wages, with the supports necessary to be successful
Everyone lives inclusively in the community, in housing that is not segregated by disability, with people of their choice and actively participates in his or her community
Everyone is able to develop personal and financial assets
The system is continuously accountable (achieves the desired outcomes and is transparent to the public) by involving consumers and families in its design, development, oversight, and evaluation
The SEG’s Required Outcomes and Accountability of a Successful North Carolina MLTSS System
Consumer & FamilyStakeholderEngagement
EntranceTo
System
Waiting Lists
Assessment
Person-CenteredPlanning
Self-Direction
SupportCoordination
Services
Quality
QualifiedProviders
PaymentStructure
TransitionPlanning
ParticipantProtections
SEG Member Had Their Voice Heard
“Some of the strongest statements during the forum came from people with disabilities ranging from mental health to developmental to physical.
From his wheelchair, Matthew Potter made an impassioned plea to the panel to keep people such as him in the forefront as they make their decisions, telling the panel, “I feel that the voices of clients and consumers are often lost in this process.”
He said the panel should maintain advisory bodies that allow for patients and consumers of care to give feedback to providers.”
- Article published by NC Health News
SEG Members Matthew Potter and Michael Mayer both spoke at the
January Medicaid Reform Advisory Committee Meeting
The NC SEG was Mentioned in the Medicaid Reform Legislative Report
“The North Carolina Council on Developmental Disabilities worked with a group of stakeholders from all types of disabilities and all parts of the state to identify the values that will guide the underpinnings of reform. I recommend that as details are developed, the state follow the adage “Nothing about me, without me” for consumers, providers (BH and primary health care), hospitals, and others. I also suggest that the value statements developed by the NCCDD workgroup be continually referred to as decisions are made, whether decisions are to be made about fiscal matters such as PMPMs, quality measures, or access into the system. In this way, all stakeholders can be part of the solution.”
- Peggy S Terhune, Ph.D., MBAMember of Medicaid Reform Advisory Group
Appendix 1, Proposal to Reform North Carolina’s Medicaid Program
“The secret of change is to focus all of your energy,
not on fighting the old, but on building the new.”
-Socrates
How Can Your Group Help? • Endorse our Outcomes &
Expectations Report!• How? Once your group has
discussed and formally agreed, email [email protected]. Please provide: – a contact name and title– organization name– phone number– email address.
• Your organization’s name will be added to our endorsement list!
Stay Connected!
“Like” us on Facebook:facebook.com/NCSEG Follow us on Twitter:
twitter.com/NCSEG
• Visit our website: ncseg.com • Join our email list
Questions?
For More Information Contact:
Consumer & FamilyStakeholderEngagement
EntranceTo
System
Waiting Lists
Assessment
Person-CenteredPlanning
Self-Direction
SupportCoordination
Services
Quality
QualifiedProviders
PaymentStructure
TransitionPlanning
ParticipantProtections
