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1 DRAFT The National Clinical Programme for Dermatology Clinical Strategy & Programmes Division, HSE & the Royal College of Physicians of Ireland Model of Care for Dermatology September 2017 September 2017 DRAFT V3.0

The National Clinical Programme for Dermatology Clinical … · 2017-09-13 · 1 DRAFT The National Clinical Programme for Dermatology Clinical Strategy & Programmes Division, HSE

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Page 1: The National Clinical Programme for Dermatology Clinical … · 2017-09-13 · 1 DRAFT The National Clinical Programme for Dermatology Clinical Strategy & Programmes Division, HSE

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DRAFT

The National Clinical Programme for Dermatology

Clinical Strategy & Programmes Division, HSE

& the Royal College of Physicians of Ireland

Model of Care for Dermatology

September 2017

September 2017

DRAFT V3.0

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Contents

Acknowledgements ............................................................................................................... 4

Abbreviations ........................................................................................................................ 4

1.0 Contributors & Stakeholders ........................................................................................... 6

1.1 Working Group ............................................................................................................ 6

1.2 Clinical Advisory Group ............................................................................................... 6

2.0 Executive Summary ........................................................................................................ 7

3.0 Dermatology overview ..................................................................................................... 9

3.1 Description of the specialty .......................................................................................... 9

3.2 Skin Cancer ................................................................................................................. 9

3.3 The National Cancer Control Programme – Skin Cancer ........................................... 10

3.4 Psoriasis .................................................................................................................... 11

3.5 Dermatitis .................................................................................................................. 11

3.6 Acne .......................................................................................................................... 12

3.7 Acute Dermatology Service ....................................................................................... 12

3.8 Paediatric Dermatology ............................................................................................. 12

4.0 Background of dermatology in Ireland ........................................................................... 13

4.1 Consultant Dermatologists ......................................................................................... 13

4.2 Specialist Registrar Training in Dermatology ............................................................. 15

4.3 Dermatology Nursing ................................................................................................. 15

4.4 Psychodermatology and allied health professionals ................................................... 17

4.5 The Irish Association of Dermatologists ..................................................................... 17

4.6 The Irish Skin Foundation .......................................................................................... 17

5.0 Overarching aims of the dermatology programme ......................................................... 18

5.1 Quality ....................................................................................................................... 18

5.2 Access ....................................................................................................................... 18

5.3 Value ......................................................................................................................... 19

6.0 Models of Care .............................................................................................................. 20

6.1 Rationale ................................................................................................................... 20

6.2 General Principles underlying Service planning in dermatology ................................. 20

7.0 Key elements of Model of Care ..................................................................................... 22

8.0 Dermatology Clinical Networks ...................................................................................... 23

9.0 Current Organisation of the service and patterns of referral: Patient Journey ................ 24

9.1 Primary care .............................................................................................................. 24

9.2 Secondary Care Dermatology services ...................................................................... 25

9.3 Supra-specialist care ................................................................................................. 29

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10.0 Managing outpatient access ........................................................................................ 32

10.1 Triage of referrals .................................................................................................... 32

10.2 Demand Management and follow up in dermatology ............................................... 32

10.3 Efficient and Innovative ways of dealing with demand ............................................. 32

11.0 Quality and Clinical Governance ................................................................................. 33

11.1 Clinical governance ................................................................................................. 33

11.2 Clinical leadership ................................................................................................... 33

11.3 Clinical effectiveness Use of information and information technology ...................... 33

11.4 Education, training and continuing professional development (CPD) ....................... 33

11.5 Clinical audit ............................................................................................................ 34

11.6 Risk management .................................................................................................... 34

12.0 Collection of data from dermatology departments ....................................................... 35

13.0 Education .................................................................................................................... 38

13.1 Primary Care ........................................................................................................... 38

13.2 Secondary Care ....................................................................................................... 38

14.0 Conclusion .................................................................................................................. 39

References ......................................................................................................................... 40

Appendix 1 Exclusion Letter ................................................................................................ 42

Appendix 2 Waiting lists ...................................................................................................... 43

Appendix 3 Mapping Survey of Dermatology Services 2016 ............................................... 45

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Acknowledgements

Abbreviations

AMNCH Adelaide & Meath Hospital incorporating National Children’s Hospital Tallaght

BAD British Association of Dermatologists

BCC Basal Cell Carcinoma

BIU Business Intelligence Unit

CAG Clinical Advisory Group

CME Continuing Medical Education

CNS Clinical Nurse Specialist

DNA Did not attend

DNC Dermatology Networking Centre

DNE Dublin North East

DOH Department of Health

GP General Practitioner

HIQA Health Information and Quality Authority

HIV Human Immunodeficiency Virus

HSE Health Service Executive

HSH Hume Street Hospital

IAD Irish Association of Dermatologists

ICGP Irish College of General Practitioners

ICHMT Irish Committee on Higher Medical Training

IDNA Irish Dermatology Nursing Association

IMCSR Irish Medical Councils Specialist Register

ISF Irish Skin Foundation

LOS Length of Stay

MDT Multidisciplinary team

MMS Mohs Micrographic Surgery

MMUH Mater Misericordiae University Hospital

NCCP National Cancer Control Programme

NCHD Non-consultant hospital doctor

NHS National Health Service

NICE National Institute for Health and Clinical Excellence

NP New patient

OLCHC Our Lady’s Children’s Hospital Crumlin

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OLOL Our Lady of Lourdes

OPD Out-patients department

OTC Over the counter

PILS Patient Information Leaflets

PSG Patient Support Group

PUVA Psoralen Ultra Violet therapy

RCPG Royal College of General Practitioners

SCC Squamous cell carcinoma

SDU Special Delivery Unit

SIVUH South Infirmary Victoria University Hospital

SJH St James Hospital

SVUH St Vincent’s University Hospital

UCD University College Dublin

UCHG University College Hospital Galway

UVL Ultraviolet Light

WRH Waterford Regional Hospital

WRS Weekly Return Service

WTE Whole Time Equivalent

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1.0 Contributors & Stakeholders

1.1 Working Group Dr Anne – Marie Tobin – Consultant Dermatologist and National Clinical Lead

Kellie Myers – Programme Manager

Sheila Ryan – Nurse Lead

Prof Brian Kirby – Consultant Dermatologist

Dr Sinead Collins – Consultant Dermatologist

Dr Annette Murphy – Consultant Dermatologist

Dr Caitriona Hackett – Consultant Dermatologist

Dr Johnny Burke – Consultant Dermatologist

Dr Patrick Ormond – Consultant Dermatologist

Prof Alan Irvine – Consultant Dermatologist

Susan O’Dwyer – Community Pharmacist

Caroline Irwin – Patient representative

1.2 Clinical Advisory Group

Dr Michelle Murphy- Chairperson

Dr Anne – Marie Tobin – Clinical Lead

Dr Alan Irvine

Dr Annette Murphy

Dr Aoife Lally

Dr Bairbre Wynne

Dr Bart Ramsay

Dr Brian Kirby

Dr Brid O'Donnell

Dr Catherine Gleeson

Dr Catriona Hackett

Dr Cliona Feighery

Dr Dermot McKenna

Dr Emma Shudell

Dr Fergal Moloney

Dr Fiona Browne

Dr Gillian Murphy

Dr Grainne O'Regan

Dr John Bourke

Dr Kashif Ahmad

Prof Louise Barnes

Dr Marina O'Kane

Dr Mary Frances Bennett

Dr Mary Laing

Dr Maureen Connolly

Dr Muireann Roche

Dr Nicola Ralph

Dr Patrick Ormond

Dr Patsy Lenane

Dr Paul Collins

Dr Pauline Marren

Dr Rosemarie Watson

Dr Rupert Barry

Dr Sinead Collins

Dr Sinead Field

Dr Trevor Markham

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2.0 Executive Summary

Skin disease is extremely common, 54% of the population are affected by skin disease

annually with 23-33% at any one time having disease that would benefit from medical care.

Some of the commonest skin diseases continue to increase in frequency, in particular rising

rates of skin cancer. There has also been a significant improvement in the treatments

available for skin disease, and thus in the expectations of a successful outcome to treatment.

Thus there is a need to develop dermatology services in Ireland which have been historically

underfunded. The proposed model of care for Dermatology, when implemented will bring

service provision for patients with skin conditions in line with evidence-based practice and

international standards of care.

Dermatologists diagnose patients with rare skin disorders, manage patients with moderate to

severe common disorders such as psoriasis, eczema and acne and also treat patients with

skin cancer. General Practitioners manage a wide range of dermatology conditions in primary

care and act as gate-keepers for those patients who require treatment by a dermatologist.

The Dermatology Programme aims to:

improve access and services for patients who require care by a dermatologist

support and promote the provision of care for dermatology patients in primary care

promote public awareness, particularly of skin cancer and measures to avoid same,

and self-management of skin disease

In this Dermatology model of care document, we outline a model to ensure that the

dermatology patient is seen and assessed and treated by the right person, in the right place

and in the timeliest manner. The model envisions close collaboration between primary and

secondary care, between GP’s and their local dermatology department by promoting and

supporting dermatology care in primary care through the provision of education. Current work

is underway with ICGP to ensure as many GP registrars receive dermatology training as part

of their postgraduate training programme.

Based on international best practice, we set out both personnel and infrastructure

requirements to ensure that all patients in Ireland will receive the same standards of quality

care wherever they present. This model of care will allow for increased access to dermatology

expertise for patients with skin cancer, chronic inflammatory skin conditions, rare

genodermatoses by increasing the number of consultant dermatologists to 1 per 80,000. This

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will require an additional 15 consultant appointments over 5 years and the development of the

advanced nurse practitioner role in all dermatology services. This will achieve an extra 15,000

new patients being seen. Based on current figures, no patient would wait longer than 8 months

(appropriate wait time should be 3-4 months for routine referrals), some patients are waiting

up to four years at the moment. New Peripheral/Outreach Clinics would be established or

supported and specialist services would be supported.

Investment in infrastructure is required over the next five years, the following departments are

in urgent need of physical infrastructure; South Infirmary Victoria University Hospital, Cork,

Beaumont Hospital, Dublin, Tallaght Hospital, Dublin, Galway University Hospital, Galway.

This current model will undoubtedly evolve and the, future service development is mapped for

the next five years only. Updates of this model and enhancements will require performance

measurement of activity, supply versus demand and ongoing audit of clinical outcomes. There

will also be a requirement for consistency of data collection and a robust reporting and

monitoring system.

The timely and equitable access to the full range of high quality dermatology services with

care delivered at a level appropriate to the severity and complexity of their condition is a

fundamental overarching principle of care.

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3.0 Dermatology overview

3.1 Description of the specialty

Dermatologists manage diseases of the skin, hair and nails in adults and children. As

over 2,000 skin disorders are recognized, of which 100 are common, accurate

diagnosis is fundamental to successful management.

54% of the population are affected by skin disease annually with 23-33% at any one

time having disease that would benefit from medical care.

Skin diseases represent 34% of disease in children; atopic eczema affecting 20% of

infants1.

Skin cancer is the most common cancer in Ireland. Basal cell carcinoma (BCC)

numbers equal all other malignancies combined (www.ncri.ie).

Skin diseases such as psoriasis, eczema and hidradenitis suppurativa cause

significant impairment of Quality of Life equivalent with that seen in conditions such

Chronic Obstructive Pulmonary Disease. Patients with inflammatory skin disease also

have increased co-morbidities such as elevated cardiovascular risk and diabetes2.

Paediatric dermatology is a subspecialisation within dermatology with care delivered

in the three paediatric hospitals in Dublin (soon to be the National Children’s Hospital)

and in paediatric clinics in Cork, Galway, Waterford, Limerick, Sligo, Mullingar and

Drogheda)

3.2 Skin Cancer

Skin cancer (melanoma and non-melanoma skin cancer (basal cell carcinoma, squamous cell

carcinoma)) is the most common form of cancer in Ireland. Between 1994 and 2011, an

average of 6,899 cases of invasive skin cancer were diagnosed per year in Ireland, the figure

for 2015 will exceed 10,000. Malignant melanoma accounted for just over 8% of this number

with 100 melanoma-related deaths annually; the vast bulk of all invasive skin cancers being

non-melanomatous subtypes, of which over 6,300 were diagnosed each year. Over 95% of

these “non-melanoma” skin cancers were histologically diagnosed and almost all were either

basal (68% approximately) or squamous (30%) cell carcinomas (BCC and SCC respectively).

The remaining non-melanoma subtypes were all very rare by comparison and included Kaposi

sarcoma and cutaneous lymphomas, principally mycosis fungoides and T-cell lymphomas.

From the mid 1990’s to early 2000’s there was little overall change in incidence rate for NMSC,

with rates in females remaining fairly level and a slight decline in males. However rates of both

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subtypes have subsequently increased, and for both sexes current rates (2011) are between

33% and 39% higher than those in 2002. An annual percentage change of between 3% and

4% has been recorded during the last 10 years (Cancer Trends. www.ncri.ie).

Exposure to ultraviolet radiation is known to be the major risk for developing skin cancer. The

link between cumulative lifetime exposure and the risk of developing non-melanoma skin

cancer is well-established, whereas melanoma appears to be linked to intermittent intense

exposure in a less defined manner. Sunburn in childhood increases the risk of melanoma in

later life and sunbed users are known to be at increased risk of developing skin cancer.

3.3 The National Cancer Control Programme – Skin Cancer

In 2012, the National Cancer Control Programme published Guidelines for the management

of melanoma with the aim of preventing and treating melanoma. All patients with a suspected

melanoma must be referred to a consultant dermatologist or plastic surgeon via a standardised

electronic referral form and all patients with a diagnosis of melanoma must be discussed at a

multi-disciplinary skin cancer meeting. This has streamlined the care of patients with

melanoma and work is currently ongoing to establish key-performance indicators for the

management of melanoma to promote standardisation of care nationally. An electronic

referral form for such suspected lesions has been rolled out nationally. Since its introduction

all dermatology departments operate rapid access pigmented lesion clinics on a fortnightly or

weekly basis Many of these clinic function as ‘see and treat’ clinics with many patients having

suspected lesions removed at initial presentation. Just under half of the workload of UK

Dermatologists is related to skin cancer3

Guidelines for the Management of patients with non-melanoma skin cancer have been

developed. This will have similar aims of streamlining patients with NMSC care and also

facilitating the discussion of patients with high risk NMSC particularly SCC at MDT.

It is recommended that all melanomas, squamous cell carcinomas and high risk basal cell

carcinomas are managed in a hospital setting. General practitioners act as gatekeepers and

are critical in recognising skin cancers and treating pre-malignant skin cancers such as actinic

keratoses and Bowen’s Disease and basal cell carcinomas as per the NCCP Guideline.

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3.4 Psoriasis

Psoriasis is a chronic cutaneous immune-mediated disease with a complex pathogenesis. It

affects 2-3% of the population, and is associated with an inflammatory arthropathy in up to

30% of patients4. It has been recognised by the World Health Organisation as a chronic

systemic disease5. Patients with more severe psoriasis also have increased cardiovascular

and metabolic risk6. It is estimated that there are 77,000 patients with psoriasis in Ireland7.

Approximately 30% of patients with psoriasis with moderate to severe disease require care in

a dermatology department with either phototherapy or systemic treatments. Patients with mild

disease can be managed in primary care with topical therapy. Psoriasis has significant

psychosocial impact on patients’ lives and it is imperative that those patients who require

phototherapy or systemic treatment have timely access to same.

The advent of biological treatments for psoriasis since 2005 has improved outcomes for

patients with psoriasis and the imperative to treat patients has increased. Dermatologists in

Ireland apply the BAD/NICE Guidelines for the management of psoriasis

(http://www.bad.org.uk/healthcare-professionals/psoriasis) and adhere to the principles of

NICE in the prescription of phototherapy, photochemotherapy and systemic treatments

(https://www.nice.org.uk/guidance/cg153)

3.5 Dermatitis

Up to 12% of adults suffer with atopic eczema and 20% of paediatric patients8. Eczema

causes significant sleep deprivation and can be extremely stressful for families who, because

of its genetic nature, may have several family members affected. Understanding of the

pathogenesis of eczema has advanced and it is apparent that early intervention can alter its

natural history9. New therapies are also coming on stream which will improve treatment

options for patients with severe eczema.

Occupational dermatitis is an important occupational hazard for certain professions including

healthcare professionals, hairdressers, and workers with exposure to chemicals or irritant

such as cutting oils. Hand dermatitis is one of the commonest reasons for disablement benefit.

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3.6 Acne

Acne is a very common complaint among adolescents and young adults. It causes significant

distress and also has the potential to leave permanent scars. Most acne is managed in

primary care (ICGP Guidelines for treatment of acne). Certain types of acne such as scarring

acne, acne conglobata and fulminant acne require urgent and timely treatment in secondary

care with Isotretinoin.

3.7 Acute Dermatology Service

Dermatologists provide important in-patient consultation service in acute hospitals and are

critical to the care of patients with skin failure secondary to severe drug reactions, vasculitis,

graft versus host disease. It must also be recognised that patients with severe skin disease

such as patients with epidermolysis bullosa, erythrodermic psoriasis or eczema may require

hospital admission and treatment. This service ensures that such patients receive the correct

diagnosis and are appropriately managed.

3.8 Paediatric Dermatology

Children attend with severe atopic dermatitis, vascular anomalies, genodermatoses and other

inflammatory skin disorders. There are approximately 10,000 referrals for paediatric

dermatology annually with pressures on the services ever increasing (the number of 0-4 year

olds living in Ireland increased by 17.9% between 2006 and 2011, giving Ireland the highest

proportion of children with the EU. 25% v 19%). A National Clinical Programme for Paediatrics

and Neonatology has been established and clearly outlines a model of care that promotes all

children having access to safe, high quality services in an appropriate location, within an

appropriate timeframe, irrespective of their geographical location or social background.

Currently Paediatric dermatology is delivered regionally in Cork, Limerick, Galway, Mullingar,

Drogheda and Waterford. In Dublin, paediatric dermatology is currently delivered in Our

Lady’s Hospital Crumlin, Tallaght Hospital and Temple Street Children’s Hospital, this service

will be centralised in the new National Children’s Hospital.

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4.0 Background of dermatology in Ireland

4.1 Consultant Dermatologists

There has been a considerable move in recent years to improve the national dermatology

service as service delivery has been hampered by lack of resources and lack of standardised

care pathways. The dermatology outpatient service in Ireland was reviewed by the HSE in

early 2010 as part of the Outpatient Programme of the Quality & Clinical Care Directorate

(QCCD). The stimulus for inclusion of dermatology in that programme was the lengthy

outpatient waiting lists for new patient appointments.

Between 2010 and 2012, an additional 10 consultant dermatologists were employed by the

HSE bringing the number of dermatologists to 45. This investment has led to significant

improvements and innovation in the provision of dermatology services:

An additional 12,224 new patients being seen and a 42% increase in new patient

activity between 2009 and 2014.

The rate of returning patients also fell from 2.08 to 1.6 in the same time period, as

patients are increasingly being educated in self-management of what may be a chronic

condition.

The development of regional dermatology clinics and thus the inception of an

integrated service which supports a local network of GP’s and ensured regional self-

sufficiency as was recommended in a Comhairle Report on Dermatology in 2003.

There are now dermatology clinics in Bantry Hospital, Kerry General Hospital, South Tipperary

General Hospital, Naas General Hospital, Nenagh Hospital, Portiuncula Hospital, Mayo

General Hospital, Cavan General Hospital.

Some of these centres also provide phototherapy (Bantry, Nenagh) which has greatly

increased access to this modality for patients who hitherto could not avail of this service

because of geographical constraints.

* The establishment of pigmented lesion clinics nationally, there are now screening clinics

regionally for all patients with suspected pigmented lesions which has improved access for

such patients and more standardised care in common with international standards and with

other cancers.

* The development of a specialist centre for Mohs micrographic surgery in Cork.

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* The establishment of other dedicated clinics:

Dedicated transplant clinics for patients who have received a solid organ transplant to

detect patients who develop skin cancer, these are run in conjunction with the

transplant team and reduce the number of hospital visits for patients.

Combined rheumatology/dermatology clinics for patients with connective tissue

disorders, this has obviated the need for patients to attend multiple clinics and has

introduced efficiencies in the management of patients with a multisystem disorder.

Systemic treatment clinics for patients with severe inflammatory skin disease such as

psoriasis and eczema.

Combined clinics for the management of patients with hidradenitis suppurativa who

require both medical and surgical input.

Dedicated systemics, vascular, laser, thermography and genodermatoses clinics for

paediatric patients in Our Lady’s Hospital Crumlin.

There are currently 16 training places in the RCPI, ICHMT Dermatology Specialist Registrar

Training Programme with an average of twenty trainees in the programme at any given time

as many engage in clinical research during their training which lasts 5 years.

Table 1

Hospital Group Estimated population No. of Dermatologists

Midlands 800,00 6.8

Dublin East 1000,00 7.5

Dublin North East: RCSI 800,00 5.1

South / South West 1000,00 8

West / North West: Saolta 700,00 6

University of Limerick 400,00 3

National Children’s Hospital 5.6 (if all posts filled)

*Location and no. of dermatologists as per hospital groups

There are currently 45 dermatology posts (when all are in post in the public system), this

represents a ratio of 1 per > 100,000 (4.75 million) (ref census 2016). There is a need for

sustained expansion in consultant numbers to bring this ratio to 1 per 80,000 initially and then

62,500 as per BAD Guidelines.

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4.2 Specialist Registrar Training in Dermatology

The Irish Committee on Higher Medical Training (ICHMT) programme for dermatology

specialist registrars was established in 1999 and is formally accredited by the Irish Medical

Council. The training schedule is 5 years duration with formal annual appraisals to meet

requirements for entry to the Irish Medical Council’s Specialist Division of the Register in

dermatology. There are currently 16 training places in the RCPI, ICHMT Dermatology

Specialist Registrar Training Programme with an average of twenty trainees in the programme

at any given time, as many engage in clinical research during their training. As of July 2017

34 doctors will have completed Specialist Training in Dermatology. The programme has a

well-established teaching structure lead by the National Specialty Director Dr Michelle Murphy.

4.3 Dermatology Nursing

It is well recognized that dermatology nurses play a key role in delivering dermatology services

(BAD 2014, Comhairle na nOspidéal 2003). There are currently 3 Registered Advanced Nurse

Practitioners, 28 Clinical Nurse Specialists and approximately 26 staff nurses in Dermatology.

Staff nurse posts in dermatology vary from sole specialisation in dermatology and allocation

to the service for a specific time allocation (e.g. outpatient nurses allocated to dermatology

clinic). In Ireland dermatology nurses are mainly employed in dermatology departments with

3.8 posts in peripheral hospital services. There are no dermatology nurses in Ireland in primary

care.

The allocation of dermatology trained nurses is considerably lower than their counterparts in

the UK and Northern Ireland even in dermatology departments. There are some dermatology

services where there is no dermatology nurse specialists and restricted access to staff nurses

trained in dermatology. These services often rely on general trained nursing staff. Services

that rely heavily on general trained nursing staff are often unable to develop and operate

appropriately essential dermatology services such as phototherapy, patch testing, disease

education clinics, topical treatment clinics.

To meet current patient demands there is a need to develop and expand the dermatology

nurse role. Academic programmes that facilitate the training of dermatology nurses in the

specialty and also that allow progression to the clinical nurse specialist role and advanced

nurse practitioner role is needed in Ireland. There are no educational programmes in Ireland.

Nurses wishing to train in the specialty can only access courses in the UK.

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There is also significant scope to expand the role of dermatology nurses so that they can take

on additional roles that will help meet the current long waiting times for dermatology services.

In the UK dermatology nurses are employed in both primary, and secondary services taking

on advanced roles in patient consultations, nurse surgery, skin cancer management, chronic

disease management. Sub-specialisation in the UK includes Paediatrics, Skin Surgery, Skin

Cancer, Phototherapy, Biologics, Contact Dermatitis, Community, Teaching, Laser, and

disease-specific posts (Epidermolysis Bullosa, Xeroderma Pigmentosa, Psoriasis and

Eczema). In the UK dermatology and oncology nurses are employed in skin cancer nursing

posts.

In relation to secondary care there is a lack of dermatology nurses employed in peripheral

services. However it is worth exploring developing dermatology services here to bring key

dermatology services closer to the patient. One dermatology service (ULHG) has developed

a day treatment service (providing phototherapy, patch testing, wound care and nurse

education) at their secondary care site by employing 1.8 dermatology staff nurses. The service

is supported by staff from the dermatology department for leave and clinical supervision.

There are several advantages in developing dermatology nursing services

Provision of dermatology treatment services (Comhairle na nOspidéal 2003)10

Increasing patient capacity in dermatology services (Gradwell et al 2002)11

Provision of services closer to the patient (Courtenay and Carey 2007)12

Improving chronic disease management (Cork et al 2003)13

Improved co-ordination of patient pathways especially in skin cancer.

There is scope to expand the role of dermatology nursing. To do so the pool of dermatology

trained nurses needs to be increased. In addition academic training in the speciality and

development of subspecialist skills (phototherapy, paediatrics, surgery and skin cancer

recognition and management) needs to be developed in Ireland. For further development

dermatology nurses will need support to access nurse prescribing and masters programmes

already available in Irish Universities.

The Irish Dermatology Nurses Association

The Irish Dermatology Nurses Association (IDNA) was established in 2002 to provide support

for the practice and development of dermatology nurses on the island of Ireland. It is a cross

border organisation in which all nurses working in dermatology can become members. It has

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currently over 70 members. The group holds an annual conference and offers educational

bursaries to members.

4.4 Psychodermatology and allied health professionals

Cutaneous disease may be the manifestation of psychological disease e.g. in conditions such

as dermatitis artefacta and delusional parasitosis or other monodelsuional presentations.

Furthermore patients with severe common skin diseases such as psoriasis and hidradenitis

suppurativa are known to suffer increased levels of anxiety and depression. This in addition

to adverse health behaviours such as smoking, excess alcohol consumption, lack of exercise

and obesity are over-represented in patients with psoriasis and hidradenitis suppurativa.

While there has been Irish clinicians involved in research in this field for many years, there is

a dearth of access to psychology, dietetics, smoking cessation programmes for patients with

cutaneous skin disease in all dermatology departments. This is a deficit that must be

addressed to promote self-care and quality of life in a significant number of dermatology

patients.

4.5 The Irish Association of Dermatologists

The Irish Association of Dermatologists is the professional organisation of which all Irish

Dermatologists are members. It is a cross-border organisation and is affiliated with the British

Association of Dermatologists. The organisation holds bi-annual meetings promoting clinical

education and research.

4.6 The Irish Skin Foundation

The Irish Skin Foundation (ISF) is an independent organisation and has charitable status.

Patient advocacy at all levels including the Health Service Executive and the Department of

Health is a key aim of the ISF, as well as supporting education (patients, the public, primary

care practitioners, non-dermatology hospital medical and nursing staff).

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5.0 Overarching aims of the dermatology programme

The national clinical programme in dermatology, in line with all the clinical programmes from

the Clinical Programme & Strategy Division, has 3 main goals; the delivery of improved quality

of care and improved access to care for patients to dermatology services while at the same

time delivering on value which will ensure the sustainability of the programme into the future.

These goals will be realised over the next 5 years.

5.1 Quality

Increase OPD capacity

Additional new consultant dermatologist appointments

Improve productivity by ensuring availability of key resources

Establishing the new GP e-referral system – as recommended by HIQA

Nurse led clinics for chronic skin disease

Facilitate and support the self-management and primary care management of patients

with skin problems as appropriate

5.2 Access

To facilitate the “right person, right place, first time” assessment of patients with skin disease

Primary care

To reduce the overall numbers of patients referred to dermatology OPDs by promoting

dermatology education and improving the management of patients in primary care

Introduce standardised referral criteria to secondary care dermatology services and

improve access for those patients who require dermatology care in a secondary care

setting in a timely fashion.

Secondary Care

To reduce the OPD waiting lists for all dermatology referrals to < 6 months

To fast track patients with suspected melanoma and rapidly growing skin cancers

To fast track patients with severe inflammatory skin disease

To increase and make more effective the satellite /hub dermatology service delivery in

smaller hospitals under the supervision of the larger/hub hospital departments of

dermatology

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To ensure that the majority of patients can access care closer to home

5.3 Value

To identify potential efficiencies and savings within the system

To avoid more expensive options by providing local Day-Care services e.g. patient with

psoriasis attending for UVL locally rather than commencing systemic medications as

a first step

Improve overall efficiency of outpatient management

Maximise use of existing staff, space and resources

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6.0 Models of Care

Models of care for people with skin conditions should be developed to ensure that patients are

seen by the “right person, in the right place, at the right time” and can move readily between

the levels of care as necessary. The underpinning principle of all guidance documents

published in this area is that services should be integrated and are best designed by

stakeholders based on local assessment of need. Broad stakeholder engagement and

enthusiastic clinical engagement by GPs, consultant dermatologists, dermatology nurses is

essential for the success of this process.

6.1 Rationale

The current traditional service model of care for dermatology in Ireland has been under strain

especially in the past decade, due to a crisis in the numbers of trained dermatologists; a

significant increase in demand; and a dramatic increase in the treatments available. The result

of these changes has been unacceptable waiting times for new appointments.

6.2 General Principles underlying Service planning in dermatology

An equitable and patient centered service

Regional self sufficiency

Collaboration between primary and secondary care

It is essential that service models are patient driven and orientated.

The starting point for quality of care, wherever it is based and however organised, is

an accurate diagnosis

Care should be delivered as close to the patient’s community as is consistent with safety and

cost effectiveness. This means that primary care will continue to take responsibility for the

more straightforward parts of the management of long term skin diseases, and in particular to

facilitate effective, safe and informed patient self-management. Dermatology needs to be a

core element of general practitioner training. It is helpful for trainee general practitioners to

attend dermatology clinics and for more interactive teaching to be developed between local

dermatology consultants and GPs.

Those functions and facilities that are limited to hospital practice must continue to be

supported and the educational role of secondary care acknowledged and developed.

Outreach clinics in smaller peripheral hospitals deliver excellent care when connected to a

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dermatology department. In the Comhairle 2003 report it was emphasised that since

dermatology is an outpatient based service that there should be regional sufficiency and that

a network of peripheral or outreach clinics should be developed.

The current economic environment makes the proposed improvements to the delivery of care

challenging, however it can also be used to advantage as a stimulus for change.

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7.0 Key elements of Model of Care

To develop a series of Dermatology Networks within each Hospital Grouping to ensure

equitable provision of high quality, clinically effective services.

Primary care treatment and screening of a majority of skin diseases and skin lesions and

referring on, if necessary, for diagnosis and management to the network of hospital services

in that area. Maximise health promotion and reinforcement of self-management.

Secondary Care:

Outreach clinics in peripheral hospital to support a local network of GP’s, provide care

closer to home for patients and provide onsite dermatology consultations for inpatients.

It is also envisioned that phototherapy would be provided in peripheral clinics, this is

currently available in certain peripheral clinics.

Dermatology departments in teaching hospitals with OPDs, day-care, patch testing,

management of complex skin diseases, surgery for skin cancer, multidisciplinary care

of chronic skin disease and skin cancer MDTs.

Supra specialist services - provision of highly specialised care for specific disease

investigation/care:

Mohs micrographic surgery (St James’s Hospital and South Infirmary Victoria

University Hospital)

Phototesting – Mater University Hospital.

The skills and knowledge of the healthcare professionals should always match the level of

care provided, whatever the location.

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8.0 Dermatology Clinical Networks

Table 2. Dermatology Networks

Hospital

Grouping

Dermatology

Departments

Peripheral Clinics

Ireland East St Vincent’s University

Hospital

Mater University

Hospital

St Michael’s Hospital Dun Laoghaire,

Kilkenny University Hospital

Midlands Regional Hospital

Mullingar (MRHM)

Dublin Mid

Leinster

Tallaght Hospital

St James’s Hospital

Naas Hospital

Dublin

North East

Beaumont Hospital

Our Lady of Lourdes

Hospital Drogheda

Connolly Hospital

Cavan University Hospital

University

of Limerick

Hospitals

Limerick University

Hospital,

Ennis Hospital

Nenagh Hospital

Ireland

South

South Infirmary Victoria

University Hospital

Waterford University

Hospital

Kerry General Hospital Tralee

Bantry Hospital

Mallow Hospital

South Tipperary General Hospital

Clonmel

Saolta University Hospital

Galway

Sligo University

Hospital

Portiuncula Hospital Ballinasloe

Mayo University Hospital

Letterkenny University Hospital

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9.0 Current Organisation of the service and patterns of referral: Patient

Journey

9.1 Primary care

The community pharmacists

Community Pharmacists are often the first point of contact for patients with a dermatological

condition and provide a vital form of contact for patients who are self-managing, 75% of the

Irish population use community pharmacy at least once a month. The majority of pharmacists

are confident in the day to day management of common skin conditions. Advice and sale of

non-prescription items (OTC sales) and dispensing of prescription items with advice about

their correct usage is all part of an important role that pharmacists play. Expanded scope of

practice in recent years includes medication management and monitoring (e.g. INR

management), parenteral administration of medicines (e.g. flu, pneumococcal and shingles

vaccinations), emergency administration of medicines (e.g. adrenaline, glucagon, naltrexone).

Increased education at undergraduate level and post-graduate level could support and

promote self-management in particular sign-posting of available information and patient

support groups.

Examples of Pharmacist Delivered Dermatology Services;

Self-management support for chronic disease such as psoriasis, eczema , acne

Medication adherence support

Medication management – examples include, supply of Dovonex without Rx in

accordance with guidelines from PSI

Rational/cost effective use – emollient use, adherence, cost considerations

Health promotion – e.g. structured smoking cessation programmes

General Practitioners

A large proportion of dermatological conditions are managed in primary care by general

practitioners. Studies in the UK show that up to 24% of the population see their GP each year

for skin disease and approximately 5.5% of these patients were referred for specialist advice,

the vast majority within the NHS system. The skin complaint may not be the sole reason for

the visit to the general practitioner13, 14. There are no available similar figures in Ireland

however it is likely to be representative of the numbers of patients visiting their GPs as the

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same gatekeeper system prevails. Thus with a population of 4,757,976 (2016 census) primary

care in Ireland could currently be accounting for >1,000,000 visits each year. If, as in the UK

some 6% of those who attend their GPs are referred for specialist advice that would lead to

approximately 68,000 new referrals to consultant dermatologists annually in Ireland. In 2016

there were 42,493 new patients seen at dermatology outpatients and 70,753 return patients,

thus there is likely to be considerable unmet needs particularly in more rural areas.

There is an urgent need to promote dermatology education at undergraduate and

postgraduate level for general practitioners. Given the ubiquity of skin conditions presenting

to primary care it is important that GP’s feel confident in managing and diagnosing the most

common skin conditions. Work is currently underway devising a dermatology module with

ICGP to facilitate GP registrars receiving clinical training in dermatology.

Written patient information: involving patients in choice and decision-making about their care

has been improved by quality information such as BAD Patient Information Leaflets (PILS)

available at http://www.bad.org.uk and other websites such as the http://www.dermnetnz.org.

These are available in all departments of dermatology, they are reliable excellent sources of

information for patients and should be made available to patients in primary and secondary

care.

9.2 Secondary Care Dermatology services

Secondary care is delivered by consultant dermatologists, dermatology registrars or

registrars working in either a teaching hospital or outreach/peripheral hospital.

Peripheral Clinics:

There are a number of examples of clinics delivered in outreach hospitals (Cavan, St Michael’s

Hospital, Midlands Regional Hospital, Naas Hospital, Nenagh Hospital, Clonmel Hospital,

Bantry Hospital and Kerry General Hospital). The service provision varies from a monthly to

twice weekly clinics, ward consultation, UVL (Bantry, Nenagh, Naas) or other day care

treatments. This brings the service closer to the locality of the patient and also provides

education and support for regional GP’s. Patients requiring patch testing, complex surgery

are sent to the hub or base hospital dermatology department.

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Requirements at peripheral/outreach clinics

Adequate OPD clinic rooms

Adequate Clerical support

Nursing which can include clinical nurse specialists attending from the “base hospital”

Day Care to include UVL therapy with adequate staffing

Minor surgery equipment as necessary

Secondary Dermatology Services

Skin cancer clinics - dermatologists screen over 90% of skin cancer referrals and

treat approximately 75%.

Facilities for dermatological surgery, cancer multi-disciplinary teams (MDTs) and data

collection compliant with NICE guidance.

Medical or surgical dermatology for complex problems, often in MDT clinics with

other specialties such as rheumatology, gynaecology, plastic & reconstructive

surgery, maxillo-facial surgery allergy specialists and paediatrics

In-patient care of sick patients with severe skin diseases or skin failure, sometimes

requiring intensive care.

Phototherapy, wound care and other day treatments

Paediatric dermatology services including laser surgery

Investigation of cutaneous allergy and occupational skin disease by patch and prick

testing.

Investigation of photodermatoses, which affect 18% of the population reducing

quality of life, psychological welfare and employability.

Management of skin problems in hospital patients with other illnesses thereby

reducing length of stay (LOS).

Skin cancer screening for organ transplant recipients

Genital skin diseases.

Diagnosis and management of genodermatoses.

Cutaneous infections, tropical diseases and HIV skin diseases.

Teaching, training and assessment of medical students, GPs, trainee dermatologists

and other healthcare professionals.

Collection and analysis of clinical data, clinical audit and compliance with clinical

governance requirements

Clinical research including therapeutic trials

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Requirements of hospital-based service

A dermatology service should provide patient-centred care focusing on outcomes that meet

national standards. To achieve this, all staff must be correctly trained and accredited.

Staffing16,17

Hospital-based services require at least one whole-time equivalent consultant

dermatologist per 80,000 population. This is less than the currently stated requirement

in the UK of one dermatologist per 62,500 population, where there is a shortfall of over

250 WTE dermatology consultants for a population of 61,800,000.

A sustained expansion in the number of dermatologists will lead to:

o A reduction in waiting times and waiting lists for patients

o Continued improvement in the clinical management of patients with skin

cancer:

o Diagnostic accuracy of skin lesions is highest among dermatologists which

results in efficient triage of patients with skin cancer and avoidance of

unnecessary treatments in patients who have benign lesions.

o Improved treatment for patients with severe inflammatory disease and patients

with rare skin disorders

Dermatologists treat skin cancer and pre-cancerous lesions with a number of

modalities including surgery, topical treatments and photo-dynamic therapy.

Dermatologists are most expert at recognising and monitoring patients at high risk of

skin cancer e.g. transplant recipients.

Innovations in service delivery and the development of a truly integrated service e.g.

e-referrals provide the opportunity for dermatologists to provide advice to GP’s and

deflect referrals to secondary care. Expansion of consultant numbers with dedicated

clinical time to such a service could provide a significant efficiency saving to the health

service.

NCHDs including senior house officers, registrars and specialist registrars form an

integral part of the team in many hospital units. In some dermatology units there are

no NCHDs, this must be taken into account when assessing what services can be

delivered. The drive to a more consultant delivered service and the reduction in the

number of NCHD’s should be seen as an overall improvement as a result of the more

senior and experienced clinical decision making.

Specialist trained Dermatology Nurses who;

o Treat patients in day-care units and onwards

o Provide and supervise phototherapy

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o Assist / perform patch testing under consultant supervision.

o Perform surgical procedures

o Nurse prescribe

o Run monitoring clinics for isotretinoin and biological/systemic treatments for

inflammatory skin diseases.

o With paediatric training, run hospital/outreach services for children with chronic

skin disease.

o Establish and run community clinics.

o Co-ordinate the patient journey in skin cancer including provision of

psychological support

o Provide skin cancer support and skin surveillance services

o Manage and care for wounds and ulcers.

o Provide patient information, demonstrate and apply treatments, dress wounds,

remove sutures and review follow-ups.

o Assist in operating theatres and advise patients undergoing surgery.

o Advise and train professional colleagues caring for patients with skin diseases

in the hospital/community.

Clerical staffing sufficient to support all the department activities.

Pathology support is a vital component with weekly review conferences and teaching

of registrars. Pathology review of skin cancers discussed at MDT.

Physics support of activities such as phototherapy

Structural facilities required at hospital level

A fully integrated department with outpatient clinics, outpatient Day - Care treatment centre

and dedicated day surgery facilities is the gold standard in hospital dermatology service

delivery. In Ireland there are remarkably few such well integrated departments with the notable

exceptions of the dermatology department in St. Vincent’s University Hospital and OLCHC,

both of which benefited from additional external funding. Below is an outline of the necessary

structural provisions for a modern integrated department.

Dedicated outpatient units with rooms for patient education.

Areas for contact allergy testing with storage areas for allergens meeting national

published standards.

Surgical facilities meeting national standards for space, cleanliness and equipment,

with storage for liquid nitrogen.

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Laser-safe areas where required

Facilities for Mohs' micrographic surgery where required, meeting national standards.

Day-care centres staffed by dedicated dermatology nurses.

Phototherapy units for adults and children staffed by trained dermatology nurses who

can also provide skin care, meeting national standards for equipment and safety.

Medical physicists should monitor UV output. A named consultant dermatologist

should be responsible for the service.

Hospital beds staffed by trained specialist dermatology nurses with 24 hour medical

care is the gold standard. This is difficult to attain with an increasing demand upon

acute medical beds and thus there are few or no dedicated dermatology beds.

Dermatology patients require a specialised dermatology nurse to apply treatments and

provide education, with adequate bathing and treatment rooms.

Diagnostics Laboratory support including chemical pathology, haematology,

microbiology, mycology, histopathology and immunopathology and radiology.

IT hardware and software that is robust, modern, reliable, fast, in the right place and

immediately available.

Medical photography services

Appropriate accommodation for paediatric dermatology clinics and inpatient care in a

dedicated paediatric area, staffed by paediatric trained nurses.

9.3 Supra-specialist care

This type of care usually takes place within an acute hospital and is carried out by consultant

dermatologists and a range of other healthcare professionals with special skills in the

management of complex and/or rare skin disorders. Identified links should be established

within each network though there are a few national supra-specialties which will require linking.

Examples include the following:

Table 3. Supra-Specialist Services

Supra-specialist

service

Types of conditions

seen

Services offered Current Locations

Genetic

dermatology

Rare and severe

inherited skin

diseases

Diagnostic and

genetic counselling

service, outreach (to

community and

OLCHC,

Accredited

National Rare Skin

Disease Centre

and member of the

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general hospital )

nursing service

European

Reference Network

for rare and

undiagnosed skin

disease

Photodermatology Skin disorders

related to sunlight,

including rare

conditions such as

porphyria and

xeroderma

pigmentosum

Specialist diagnostic

services, including

light testing.

MMUH

Epidermolysis

Bullosa and

Fragile Skin

Sub types of

Epidermolysis

Bullosa and Fragile

Skin disease

Diagnosis and

Multidisciplinary

management

OLCHC

(paediatrics)

SJH (adults)

Dermatological

surgery

Complex, large and

difficult to manage

skin cancers.

Access to Mohs

micrographic surgery

and complex

reconstructive

surgery involving joint

working with a range

of specialist plastic

and reconstructive

surgeons.

South Infirmary

Victoria University

Hospital

St James’s

Hospital

Vascular

anomalies clinic

Venous, lymphatic,

arterial and

overgrowth disorders

Multidisciplinary

management,

including radiology,

plastic and

reconstructive

surgeons,

haematology,

occupational therapy

and specialist nurse

OLCHC

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Paediatric

connective tissue

disease clinic

Connective tissue

disease and

Autoinflammatory

disorders

Multidisciplinary

management,

including

rheumatology

consultants and

nurse specialists.

OLCHC

Paediatric atopic

eczema clinic

Atopic dermatitis

clinic

Multidisciplinary

management, with

consultant allergist

and clinical

nutritionist and nurse

specialist

OLCHC

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10.0 Managing outpatient access

Referrals to hospital dermatology departments are increasing. In order to deal with the

demand there has to be some form of referral management but care must be taken to

ensure that the process works well for patients.

10.1 Triage of referrals

Referrals to specialist services should be triaged by experienced clinicians working as part of

the same dermatology team in order to facilitate the “right person, right place, first time”

approach. Within each department there will be dedicated clinics and the experienced clinician

will know where best to direct each referral. It is essential that GPs can have immediate access

to senior decision makers within the department. It is envisioned that e-referral may enhance

communication between primary and secondary care and that advice could be returned to the

referring GP and might obviate a visit to the dermatologist. At the moment this clinical activity

is undertaken by many consultants but is not recorded as clinical activity this must be

addressed.

In a health care system such as the HSE resources are inevitably limited, thus an arbitrary

line has to be drawn on who can and cannot access and benefit from HSE provided care. The

National Clinical Programme for Dermatology has introduced an exclusion letter for benign

lesions that will not be treated or seen in secondary care unless there is diagnostic uncertainty

(Appendix 1).

10.2 Demand Management and follow up in dermatology

Patients should have rapid access to re-enter the OPD system when needed. This process

can be facilitated with active management.

10.3 Efficient and Innovative ways of dealing with demand

Pigmented lesion clinics with one-stop treatment

Skin Lesion clinics

Urgent new patient clinics

Rapid re – access clinics e.g. patient with a chronic disease such as psoriasis

Specialised review clinics e.g. psoriasis, eczema

Nurse triage clinics

National Haemangioma referral pathway

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11.0 Quality and Clinical Governance

It is essential that clinical governance arrangements are embedded in clinical practice to

enable services to constantly review and measure themselves in terms of effectiveness, safety

and patient experience.

11.1 Clinical governance

Clinical governance should be embedded in the clinical practice of all services in order to

standardise and constantly improve clinical effectiveness.

All specialist services should audit their clinical effectiveness alongside ongoing reviews of

safety and patient experience, following the specific guidance for their specialty.

11.2 Clinical leadership

Specialist services for people with skin conditions (those led by consultants on the specialist

register of the IMC for dermatology) should provide clinical leadership, including supervision,

training, clinical expertise, clinical management and research into skin conditions.

11.3 Clinical effectiveness Use of information and information technology

All services should review their clinical effectiveness including waiting list and activity data at

regular intervals. Information technology should be developed and used to support clinical

governance within and across organisations by supporting clinical and data reporting

requirements. A diagnostic database and clinical information system are important

requirements to support the clinical effectiveness of services.

11.4 Education, training and continuing professional development (CPD)

It is essential that all providers of care for people with skin conditions are appropriately trained

and competent to deliver care. Specialist providers of dermatology care should support the

provision of training for the management of the full range of skin conditions.

Procedures should be in place for the dissemination and implementation of new evidence-

based practice, disease and treatment specific guidelines, research, national standards and

audit outcomes to achieve quality service delivery.

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11.5 Clinical audit

All specialist providers of services for people with skin conditions should, as a minimum, audit

annually elements of clinical practice against current local and national guidelines and

evidence-based pathways and procedures.

11.6 Risk management

All providers of services for people with skin conditions should have procedures in place to

minimise risk to both service users and staff. All services should be compliant with local and

national requirements. Clear mechanisms should be in place to report, review and respond

formally to all clinical incidents and complaints using, for example:

incident and near-miss recording, with investigation and root cause analysis.

audit of current practices and standards and of medical records

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12.0 Collection of data from dermatology departments

It is accepted that the accurate recording of all activity that takes place within each department

of dermatology is essential. The vast majority of dermatology activity is at an outpatient level.

Currently the data collection within hospitals can be variable. It is important that each patient

visit is recorded in a similar fashion throughout all departments. The service delivered to

patients is essentially the same in each department though there may be some minor

differences in some subspecialty treatments such as Mohs micrographic surgery or

phototesting. The data submitted to the HSE must be standardised across each department,

only then can outpatient activity and complexity be measured. Hard data will in the future

underpin developments that are to be funded.

Although dermatology is primarily an outpatient based speciality, there are also activities that

take place outside the outpatient department and which need to be recorded as such activity

is part of the day to day clinical service delivered to patients.

Essential data should include:

Current staffing

Staff Category Grade WTE / session commitment Funding (Internal / External)

Medical

Nursing

Administration

Other

Activity Levels

Type Month 1 Month 2 Month 3 Month 4 Total

New patients seen

Return patient seen

New: Return ratio by clinic

DNA rates

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Waiting list

0-30

days

31-60

days

61-90

days

91 – 120

days

121-180

days

181 –

365 days

Total

New

patients

Return

patients

Number of nurse led Clinic attendances

OPD NP

Assessment

OPD

Review

Biopsies Dressings Camouflage Education Patch

Testing

New

patients

Return

Patients

Day care & Surgical Activity

Day Care Procedure Total

Narrow band UVB

PUVA

Phototesting

Surgery Procedure Total

Minor Surgery (Cons delivered))

Minor Surgery (Cons supervised)

MMS

Laser treatments

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Collection of this data will facilitate recording the KPI’s proposed for the service plan (see

Table 4 below)

Table 4. Proposed KPI’s for Service Plan

Clinical

Program

Performance indicators Data

collection

Dermatology

OPD

Number of new patients waiting >6

months for dermatology OPD

appointment

Duration of wait for dermatology

outpatients with conditions requiring

urgent assessment

Duration of wait for dermatology

patients referred from clinic for

treatment

BIU (SDU)

BIU (SDU)

BIU (SDU)

Inpatient consultations/ward referrals

Systemic patients:

From the NCP dermatology mapping survey of 2015 it is estimated that there are 3,000

patients attending dermatology departments with inflammatory skin disease requiring

treatment with medications such as:

Biologics

Methotrexate

Outcome measures;

Numbers of patients waiting over 3 months for new patient appointment

New patient: return ratio

Duration of wait for patients with suspected rapidly growing SCC or a melanoma,

Clinic to definitive excision – for skin cancers

Duration of wait for severe inflammatory disease difficult to measure?

Clinic to Day Care e.g. UVL therapy for psoriasis

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13.0 Education

13.1 Primary Care

A 2011 publication in the British Journal of Dermatology used surveillance data collected in

the Weekly Returns Service of the Royal College of General Practitioners which monitors

sentinel practices in England and Wales to assess the frequency of consultations for skin

disorders. It confirmed that compared with other major disease groups, skin conditions are the

most frequent reason for consultation in general practice (the prevalence estimate is 24%).

These findings have important implications for education and training in primary care. This has

been discussed with the ICGP. The amount of time devoted to dermatology undergraduate

and post-graduate medical, nursing and pharmacy training bears little reflection of the

importance of skin disorders in their future clinical experience.

GP Registrars are attending dermatology clinics on a weekly basis in many hospitals

There is currently a group formed to review the curriculum of General Practice

Registrars in training after a meeting with ICGP Chair and CEO

At a postgraduate level plans are underway to deliver a module of Dermatology education

through an online platform to facilitate the delivery of an educational package. The package

should include practical educational material on the presentation, diagnosis and management

of selected common skin diseases.

It must be acknowledged that levels of dermatology expertise vary widely amongst members

of primary care teams.

13.2 Secondary Care

The role of the Clinical Nurse Specialist and Advanced Nurse Practitioner needs to be

developed. The expertise of nurses could be optimised to monitor return or follow-up patients

and free up clinic slots for new patients. Also specialist nurses can be an important source of

advice to patients and may obviate unnecessary appointments. The career of nurse specialist

in dermatology should also be promoted by the rotation of trainee nurses through the

speciality.

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14.0 Conclusion

All services should be delivered by appropriately trained staff with standardisation of

educational provision. Specialist dermatology services should play a key role in supporting the

delivery of education and training across the range of providers.

Patients should be seen by the right person in the right place with suitable facilities; those with

special or specific needs, such as children, should be seen by appropriate staff in facilities that

meet their specific needs.

Patients should be fully informed about their diagnosis and management and be involved in

decisions about their care.

Patients should have access as needed to all approved treatments and treatment should be

carried out in a safe, competent and timely manner according to national standards.

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References

1. New insights into the epidemiology of childhood atopic dermatitis. Flohr C, Mann J.

Allergy. 2014 Jan;69(1):3-16. doi: 10.1111/all.12270.

2. Health-related quality of life in patients with psoriasis: a systematic review of the

European literature. Obradors M, Blanch C, Comellas M, Figueras M, Lizan L.

Qual Life Res. 2016 Nov;25(11):2739-2754.

3. Gelfand JM, Neimann AL, Shin DB, Wang X, Margolis DJ, Troxel AB, Risk of

myocardial infarction in patients with psoriasis. JAMA. 2006 Oct 11;296(14):1735-41.

4. How can dermatology services meet current and future patient needs, while ensuring

quality of care is not compromised and access is equitable across the UK?. The

Kings Fund 2013.

www.bad.org.uk/shared/getfile.ashx?id=2348&itemtype=document.

5. High prevalence of psoriatic arthritis in patients with severe psoriasis with suboptimal

performance of screening questionnaires. Haroon M, Kirby B, FitzGerald O. Ann

Rheum Dis. 2013 May;72(5):736-40.

6. Global Report on Psoriasis - World Health Organization

apps.who.int/iris/bitstream/10665/204417/1/9789241565189_eng.pdf

7. The Burden of Psoriasis - Irish Skin Foundation https://irishskin.ie/wp-

content/uploads/2016/.../Burden_of_Psoriasis_Report_final.pdf

8. Public Health Burden and Epidemiology of Atopic Dermatitis.Silverberg JI. Dermatol

Clin. 2017 Jul;35(3):283-289.

9. Can early skin care normalise dry skin and possibly prevent atopic eczema? A pilot

study in young infants. Kvenshagen BK, Carlsen KH, Mowinckel P, Berents TL,

Carlsen KC. Allergol Immunopathol (Madr). 2014 Nov-Dec;42(6):539-43

10. Comhairle na nOspidéal (2003) Report of the Commitee on dermatology Services.

Comhairle na nOspidéal, Dublin

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11. Courtenay, M., Carey, N. (2007) A review of the impact and effectiveness of nurse

led care in dermatology. Journal of Clinical Nursing, 16(1), 122-128

12. Cork, M.J., Britton J., Butler, L., Young.S.,Murphy,R., Keohane, S.G.. (2003)

Comparison of patient knowledge, therapy utilization and severity of atopic eczema

before and after explanation and demonstration of topical therapies by a specialist

dermatology nurse. British Journal of Dermatology. 149(3). 582-589.

13. Gradwell,C. Thomas, K.S., English, J.S.C., Williams, H.C. (2002) A randomized

control trial of nurse follow-up clinics: do they help patients and do they free up

consultants time ? British Journal of Dermatology 147. 513-517

14. Skin conditions are the commonest new reason people present to general

practitioners in Englang and Wales BJD 2011 165, 1044-1050

15. Schofield JK. Grindlay D, William HC. Skin Conditions in the UK a Health Needs

Assessment (2009) http://www.nottingham.ac.uk

16. Staffing and Facilities for Dermatological Units, BAD. Nov 2006. (www.bad.org.uk)

17. British Association of Dermatologists (2014) Staffing and Facilities for dermatological

services. British Association of Dermatologists, London

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Appendix 1 Exclusion Letter

Department of Dermatology,

Hospital,

Address

Contact phone and email

Date

Re: Exclusion criteria for referral to dermatology services

Dear Doctor

In order to ensure that patients referred with skin cancers and inflammatory dermatoses are

seen and treated in a timely manner, it is necessary for our department to decline referrals

and not to treat certain benign lesions. If there is diagnostic doubt or clinical concern referrals

will be accepted. Patients should be made aware that treatment will not be offered if it is

thought to be either benign or cosmetic.

The exclusion criteria have been developed by the National Clinical Programme for

Dermatology to ensure appropriate referral, to improve services and to benefit patients.

List of conditions for which referrals will normally declined

1. Viral warts including verrucae, molluscum 2. Seborrhoeic warts/keratoses 3. Skin tags 4. Dermatofibromas 5. Spider naevi 6. Epidermal cysts 7. Sebaceous cysts 8. Lipomas 9. Tattoos 10. Xanthelasma

Yours sincerely,

CEO of the Hospital, Department of Dermatology

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Appendix 2 Waiting lists

Numbers waiting for dermatology outpatient appointments by time-band, end May 2017

Dermatology OPD Waiting list May 2017

0-3 Months

3-6 Months

6-8 Months

8-12 Months

12-15 Months

15-18 Months

18-24 Months

W_24TO36_MNTH

W_36TO48_MNTH

W_GTE48_MNTH

Bantry General Hospital 109 39 3 7

Beaumont Hospital 688 300 120 203 131 95 253 188

Cavan General Hospital 161 154 80 154 99 77 82

Children's University Hospital Temple Street 229 120 72 154 166 6

Connolly Hospital - Blanchardstown 77 177 40 108 74 58 107 114 15

Cork University Hospital 69 21

Galway University Hospitals 820 506 255 458 270 227 75

Letterkenny University Hospital 244 125 9

Mater Misericordiae University Hospital 1008 552 250 545 338 165 235 151

Mayo University Hospital 81 77 55 93 53 68 103 90 6

Midland Regional Hospital Mullingar 301 242 180 253 173 131 236 190 5 3

Naas General Hospital 356 188 69 108 87 73 145 82

Our Lady of Lourdes Hospital Drogheda 1159 594 334 425 211

Our Lady's Children's Hospital, Crumlin 570 291 139 202 171 164 295 166

Portiuncula University Hospital 73 77 48 85 41 28 17

Sligo University Hospital 410 33 2

South Infirmary/Victoria University Hospital Cork 1505 607 313 654 362 202 197 92

St. James's Hospital 1130 288 153 92 1

St. Luke's Hospital Kilkenny 37

St. Michael's Hospital 107 46 15 15

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St. Vincent's University Hospital 1033 454 102 24 55 60 36 1

Tallaght Hospital - Adults 680 407 218 451 161 94 186 255 42 13

University Hospital Kerry 248 106 59 147 105 23

University Hospital, Limerick 1128 637 333 328 137 99 81

University Hospital Waterford 1014 467 295 707 406 109 60 11 1

Total 13237 6508 3144 5213 3041 1679 2108 1340 69 16

Data Source: NTPF

Please note this data is preliminary and subject to change

Reference - BUI

Information Request Number: 3375

Date report created: 07/07/17

Data Source: NTPF

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Appendix 3 Mapping Survey of Dermatology Services 2016

DERMATOLOGY MANPOWER Survey

Dublin Midlands Hospital Group Estimated population 800,00 Group CEO: Susan O'Reilly Chair: Frank Dolphin

number of consultants

No of Spr

no of Registrars

No. of SHOs

CNM CNS Staff nurse HCA Administrator

Coombe Women's and Infants University Hospital

Naas General Hospital 0.5 0 0 0 0 0.2 0 0.2

St James Hospital + St Lukes Hospital

3.8 1 1 0 0 3 4 Yes 4

Tallaght Hospital (Adults) 2.5 2

NCHDs 3.8

CNS/CNM

0 0.5 3.6*

Midland Regional Hospital Portlaoise

Midland Regional Hospital Tullamore

TOTAL 6.8 1 1 0 0 3.2 0 0.5 4.2

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Dublin East Hospital Group Estimated population 1,000,000 Group CEO: Mary Day Chair: Thomas Lynch

number of consultants

No of Spr

no of Registrars

No. of SHOs

CNM CNS Staff nurse HCA Administrator

St Luke's Hospital Kilkenny

0 0 0 0 0 0 0 0 0

Wexford General Hospital

0 0 0 0 0 0 0 0 0

St. Colmcilles Hospital Loughlinstown

St. Michael's Hospital Dun Laoghaire

St. Vincent's University Hospital Elm Park

4 1 2 1 3 2 8 1 3

National Maternity Hospital Holles Street

Royal Victoria Eye and Ear Hospital Dublin

Midland Regional Hospital Mullingar

0.6 0 0 0 0 0 0.4 0 1

Our Lady's Hospital Navan

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Cappagh National Orthopaedic Hospital

Mater Misericordiae University Hospital

2.9 1 1 1 0 4 1 0

TOTAL 7.5 2 3 2 3 6 9.4 1 4

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Dublin North East: RCSI Hospital Group Estimated population 800,000 Group CEO: Bill Maher Chair: Anne Maher

number of consultants

No of Spr

no of Registrars

No. of SHOs

CNM CNS Staff nurse HCA Administrator

Cavan Monaghan General Hospital

0.3 0 0 0.2 0 0.5 0.2 0 1

Louth County Hospital

Our Lady of Lourdes Hospital Drogheda

1.7 1 2 1 0 2 2.5 0.25 4

Beaumont Hospital (+St Joseph's Hospital Raheny HSE)

2.5 1 1 0.5 1 2 3.6

Connolly Hospital 0.6 1 0.6

Rotunda Hospital

TOTAL 5.1 2 4 1.7 1 4.5 3.3 0.25 8.6

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South / South West Hospital Group Estimated population 1,000,000 Group CEO: Gerry O'Dwyer Chair: Geraldine McCarthy

number of consultants

No of Spr

no of Registrars

No. of SHOs

CNM CNS Staff nurse HCA Administrator

Bantry General Hospital

0.5

Cork University Hospital (inc. CU Maternity Hospital)

Kerry General Hospital

Mallow General Hospital

Mercy University Hospital Cork

South Infirmary University Hospital - Victoria

5 1 1 0.9 1.3 1.6 0 4.8

South Tipperary General Hospital

0 0 0 0 0 0 0 0 0

Lourdes Orthopaedic Hospital Kilcreene

Waterford Regional Hospital

3 1 1 0 0 1 2.5 0 2

TOTAL 8 2 2 0.5 0.9 2.3 4.1 0 6.8

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West / North West: Saolta Hospital Group Estimated population 700,000 Group CEO: Maurice Power Chair: Niall Higgins

number of consultants

No of Spr

no of Registrars

No. of SHOs

CNM CNS Staff nurse HCA Administrator

Letterkenny General Hospital 0 0 0 0 0 0 0 0 0

Sligo General Hospital 1 0 1 1 0 1 2 0 1

Galway University Hospitals

4 2 0 1 0 0 2.6 0.5 4

Mayo General Hospital

0 0 0 0 0 0 0 0

Merlin Park Regional Hospital

Portiuncula Hospital General & Maternity Ballinasloe

0 0 0 0 0 0 0 0 0

Roscommon County Hospital

TOTAL 5 2 1 2 1 1 4.6 0 5

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University of Limerick Hospital Group Estimated population 400,000 Group CEO: Colette Cowan Chair: Noel Daly

number of consultants

No of Spr

no of Registrars

No. of SHOs

CNM CNS Staff nurse HCA Administrator

Mid-Western Regional Hospital

2.6 1 0 0 0 1.7 2.6 0.1 2

Mid-Western Regional Hospital Ennis

0.2 0 0 0 0 0 0 0

Mid-Western Regional Hospital Nenagh

0.2 0 0 0 0 0 2

Mid-Western Regional Maternity Hospital

Mid-Western Regional Orthopaedic Hospital Croom

St. John's Hospital

TOTAL 3 1 0 0 0 1.7 4.6 0.1 2

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National Children's Hospital Group

Group CEO: Eilish Hardiman Chair: Jim Browne

number of

consultants

No of

Spr

no of

Registrars

No. of

SHOs

CNM CNS Staff nurse HCA Administrator

Our Lady's Children's Hospital Crumlin

2.5 2 0 1 0 4 0 0 2.6

Tallaght Hospital (Children’s) 0.2 1 1 0 0 1 0 0 0.3

Children's University Hospital Temple Street

1.6 0 0 0 0 2.5 0 0 1

TOTAL 4.3 3 1 1 0 7.5 0 0 3.9

Overall totals

40

13

12

7.2

4.9

26.2

26

1.85

34.5