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    THE IMPACT OF ILLNESS

    IDENTITY ON RECOVERY

    FROM SEVERE MENTAL

    ILLNESSSupervisor : dr Sabar P Siregar, Sp KJ

    American Journal of Psychiatric Rehabilitation, 13: 7393, 2010Copyright # Taylor & Francis Group, LLCISSN: 1548-7768 print=1548-7776 onlineDOI: 10.1080/15487761003756860

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    INTRODUCTION

    The impact of the experience and diagnosis of

    mental illness on ones identity has long been

    recognized; however, little is known about the

    impact of illness identity. The present article proposes a theoretically

    driven model of the impact of illness identity on

    the course and recovery from severe mental

    illness and reviews relevant research.

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    DEFINITION

    the set of roles and

    attitudes that peoplehave developed aboutthemselves in relationto their understandingof mental illness.

    IllnessIdentity

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    THE MODEL

    No comprehensive theoretical model currently

    exists of how illness identity impacts important

    aspects of recovery.

    The purpose of the present paper is to propose atheoretically driven model of the impact of

    illness identity on the course of and recovery

    from severe mental illness and to review the

    existing empirical research that supports it.

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    HYPOTHESIS

    Illness identity may play a major role in the course of

    severe mental illness, affecting both subjective and

    objective outcomes related to recovery.

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    Cont(1)

    the impact of any awareness of having apsychiatric problem is moderated by the

    meanings that the person attaches to that

    problem (that is, how the illness is

    conceptualized and what that means about theperson experiencing it).

    once a person has decided to characterize

    unusual experiences at least partly as being the

    result of mental illness, what that illness means

    about him or her becomes a key issue.

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    Cont(2)

    Illness identity affects hope and self-esteem.

    Self-esteem refers to the evaluative aspects of

    the self, or self-regard (Baker & Gallant, 1984).

    some persons may identify with having a mentalillness and ascribe widely-held stigmatizing views

    to this status, while others may make a similar

    identification but take on a positive identity by

    way of identification with peers

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    Key of ideas: Cont(3)

    First key:

    persons diagnosed with

    severe mental illness donot merely experiencesymptoms but they alsointerpret their experienceof having an illness and

    assign meanings to it which

    in turn qualify and affecthope and self-esteem.

    Second key:

    Internalization of these

    meanings and, in particular,stigma, can infect personalconstructions of illness,damaging hope and self-esteem

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    Cont(4)

    Hopefullnessand selfesteem

    lack of hope and lowself-esteem may

    increase depressionand create a risk for

    suicide

    influence socialinteraction

    the individual to usemore avoidant

    strategies such asremoval from anxiety-provoking situationsor to use alcohol or

    drugs to numbunpleasant emotional

    states.

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    Cont(5)

    the types of coping strategies used can directly affect

    vocational outcomes, symptom severity, as well as social

    interaction.

    the types of coping strategies used, social interactions, and

    vocational functioning all affect the severity of psychoticsymptoms.

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    Review of Evidence for the Model

    General Evidence for Relationship

    Between Illness Identity and Recovery

    Relationship Between Illness Identity andHope/Self-Esteem

    Impact of Hope and Self-Esteem onSuicide Risk,Coping, and Social Isolation

    Impact of Hope, Self-Esteem, and Copingon Vocational Outcomes

    Impact of Coping, Vocational Outcomes,

    and Social Isolation on Symptoms.

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    General Evidence for Relationship Between

    Illness Identity and Recovery

    In a series of qualitative studies, described how

    the process of constructing a new sense of self

    is an important part of the process of recovery

    from mental illness.

    A longitudinal qualitative study, assessing theprocess of recovery from severe mental illness

    has supported this conclusion, finding that

    individuals who improved functioning over a 1-

    year period showed a progression from theidentity of patient to person in their

    narratives, suggesting that maintaining a patient

    identity can be detrimental to recovery.

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    Cont(2)

    Multiple, quantitative, longitudinal single-case

    studies have also suggested that as persons

    progress toward recovery, one of the first steps

    tends to be the reclamation of a sense of oneselfas active agent

    These studies and those described above

    suggest that an essential part of the recovery

    process involves transforming undervaluedidentities associated with internalized stigma

    and replacing them with more individualized

    empowered identities.

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    Relationship Between Illness Identity and

    Hope/Self-Esteem

    Cross sectional studies have found thatgreater insight is associated with higher

    levels of dysphoria, lowered self-esteem,

    and decreased well-being and quality of

    life.

    Several studies have also established that

    there is a relationship between

    internalized stigma and diminished self-esteem and hope.

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    Impact of Hope and Self-Esteem on Suicide

    Risk,Coping, and Social Isolation

    There is good support for the relationshipbetween hopelessness and suicide risk among

    persons with severe mental illness.

    In the recent review of the predictors of suicidal

    behavior among people diagnosed with

    schizophrenia, the researchers identified eight

    studies finding support for a relationship

    between hopelessness and suicide risk/behavior

    among people with schizophrenia.

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    Cont(2)

    Collectively, these findings suggest that

    diminished hope and self-esteem impact suicidal

    ideation among people with severe mental

    illness, and that diminished hope and self-esteem are likely impacted by illness identity

    factors.

    A few cross-sectional studies have examined the

    link between hope/self-esteem and socialisolation among persons with severe mental

    illness.

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    Cont(3)

    In a sample of individuals with recent onset

    schizophrenia, hopelessness was related to

    greater social isolation.

    Self-esteem was positively related to size of thesocial network and frequency of social

    interaction.

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    Impact of Hope, Self-Esteem, and Coping on

    Vocational Outcomes

    There is limited evidence for this relationship, asfew studies have addressed the relationship

    between psychological variables and vocational

    outcomes.

    More specifically with regard to hope, theresearcher found that different dimensions of

    hopelessness were related to different aspects of

    subsequent work performance.

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    Cont(2)

    Specifically, loss of motivation was related to

    poorer social skills and work cooperation,

    suggesting that individuals who have given up on

    working as a possibility do not invest the effort inbehavior necessary for good job success.

    The relationship between coping and vocational

    outcomes has been relatively unstudied

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    Cont(3)

    One prospective study (Yau, Chan,Chan, & Chui, 2005),

    however, found that avoidant coping (depressive

    resignation) was related to impaired work skills among

    Clubhouse (Model of Psychosocial Rehabilitation)

    participants with severe mental illness, and thatreductions in avoidant coping over time predicted

    improvements in work skills.

    While this study does not necessarily support a

    relationship between coping and competitiveemployment, it indicates that coping affects skills related

    to employment success.

    I f C i V i l O d

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    Impact of Coping, Vocational Outcomes, and

    Social Isolation on Symptoms.

    There is evidence supporting all three of these

    hypothesized

    relationships.

    There is cross-sectional evidence that the types

    of coping strategies typically used by personswith severe mental illness are related to

    symptom severity

    The changes in coping strategies were associated

    with changes in symptom severity over time.

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    Cont(2)

    However, one prospective study, found support

    that coping may influence symptoms;

    specifically, the preferences for adaptive coping

    at baseline predicted fewer psychotic symptomsat follow-up.

    Strong evidence from studies employing the

    Experience Sampling Method has found that

    social interactions with acquaintancesand familymembers are associated with reductions in the

    experience of delusions

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    Cont(3)

    Similar findings were not observed for

    hallucinations,however, suggesting that social

    interaction might reduce the intensity of some

    types of symptoms but not others.

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    Integrative StudiesOne recent study

    (Yanos, Roe, Markus,& Lysaker, 2008) has

    attempted toconduct an

    integrated study of

    some of therelationships

    discussed above.

    A path analysis supported

    the hypothesis thatinternalized stigma

    affected avoidant coping,active social avoidance,depressive symptoms,

    and that these

    relationships weremediated by hope and

    self-esteem.

    There was also evidence

    that internalized stigmaaffects positive symptom

    severity by way of itsimpact on socialavoidance, but a

    predicted relationship

    between avoidant copingand symptom severity

    was not supported.

    Li it ti f th i ti id &

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    Limitations of the existing evidence &

    recommendations for future research

    More prospectiveresearch is needed

    to address manyof the areas that

    have beendiscussed

    There is a need forresearch to test multiplefacets of the model in an

    integrated fashion

    In some areas, suchas hope/self-esteem

    and employment,research has been

    mainly eitherexploratory or cross-

    sectional.

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    DISCUSSION Evidence in support of the proposed

    model suggests that ignoring theimportance of illness identity may lead to

    difficult roadblocks in treatment and

    rehabilitation for many persons withsevere mental illness.

    The proposed model demonstrates how

    illness identity appears to be a crucial andcentral intersection influencing various

    domains of recovery directly, as well as

    indirectly, through mediating processes.

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    If illness identity has such important effects, the

    question is raised: how can the illness identity of

    people with severe mental illness be

    transformed to facilitate recovery?

    Cont(2)

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    Cont(3)

    The researchers believe that treatment

    specifically focused on illness identity can have a

    positive effect on outcomes in this area and can

    allow persons with severe mental illness tobenefit from other high-quality services.

    Specifically,the cognitive-behavioral therapy

    (CBT) approaches focused on addressing

    attitudes related to illness identity can have afavorable impact in this regard.

    Cont(4)

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    Helping individuals recovertheir identity would address

    self-stigmatizing views ascognitive distortions ordysfunctional attitudes.

    Experiencing and perceivingoneself differently in relation

    to stressors and the sense ofthreat or suffering they

    generate.

    CBT techniques such aspsychoeducation,teachingskills to conduct cognitive, and

    exposure may all be used toaddress internalized stigma.

    Coping techniques may alsobe helpful in facilitating a

    process of constructing andnegotiating meanings

    Cognitive-Behavioral

    Therapy (CBT)

    Cont(4)

    Cont(5)

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    Narrative enhancementHelping those with

    severe mental illnessto accept themselvesas sufficiently

    privileged to construct

    and develop ameaningful story of

    ones self

    The goal of such a

    process would be tohelp clients tell morecoherent stories about

    their lives in which

    their role as aprotagonist is

    developed

    Cont(5)

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    Summary The researchers have offered a model of how a

    collection of social, psychological, and clinicalforces may interact to create substantial barriers

    to recovery.

    They also suggested that to begin with a

    definition of oneself as mentally ill and to

    assume that mental illness means incompetence

    and inadequacy, places people at risk of ceasing

    to try to work and fit into their communities.

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    Cont(2)

    We have suggested that when stigma leads to an

    impoverished sense of self, low self-esteem andsuicide risk follow.

    This model can not only be tested empirically

    but it may expose a chain of thoughts andbehaviors that could be individually targeted for

    intervention.

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    CRITICALAPPRAISAL

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    ournal identity The study come from :

    Psychology Department, John Jay College of Criminal Justice,

    City University of New York, New York, USA

    Authors:

    Philip T. Yanos

    David Roe

    Paul H. Lysaker

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    Cont(2)

    Published by:

    American Journal of Psychiatric Rehabilitation, 13: 73

    93, 2010

    Copyright # Taylor & Francis Group, LLC

    ISSN: 1548-7768 print=1548-7776 online

    DOI: 10.1080/15487761003756860

    Available at:

    http://dx.doi.org/10.1080/15487761003756860

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    Cont(3)

    Titles:

    The Impact of Illness Identity on Recovery from Severe

    Mental Illness

    Positive:

    Clearly shows that variables that were investigated

    Bold written There is no abbreviation

    Less than 12 words (11 words)

    Negative:

    No location

    No time

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    bstractConsist only 3 sections

    Aim Keywords

    Conclusion

    < 250 words (113 words)

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    The Model Positive:

    The diagram of the model is clear.

    The examples is clear and easy to be

    understood.

    Negative: The outcomes are not clear

    The explanation is not clear and always

    being explained superficially

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    Review of Evidence forthe Model

    Positive

    There is explanation for every reviews

    The authors compared every hypothesis with the

    other journals or articles with reliable refrences.

    The usage of examples from authors is suitable with

    the context of reviews

    - Negative: The explanation has been discussed briefly.

    There is no further explanation for the context of

    reviews.

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    Discussion

    Positive The authors matched the solutions

    according to the previous research.

    The examples is suitable with the context

    and easily be understood by the readers.

    - Negative:

    The authors discussed only for few

    suggestions or solutions.

    The authors held on too much

    assumptions.

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    Conclusion

    The authors tried to discuss an interestingtitle,but not successfully to elaborate the

    contents same with the readers expectations.

    They came up with easy examples but there is no

    further explanation for the content that beendiscussed.

    There is no new findings in their journal as they

    chose to compare their hypothesis with the

    previous journals.

    Overall,the journal is good to get the additional

    informations about illness identity.

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