Embed Size (px)
Citation preview
The Eden Principles in a Rural Respite Centre: Do They Make a
Difference?Sandra DownesHawthorn House
Albany, Western Australia
Alzheimer’s Australia WA
The Eden Principles: Do They Make a Difference?
• The Eden Principles.• Hawthorn House.• The Eden Principles at Hawthorn House.• The Research Project.• Key Findings.• Acknowledgements.• Questions.
The Eden Principles
• The three plagues of old age are:– Loneliness,– Helplessness, and– Boredom.
• Creation of a human habitat with relationships with plants, animals and children.
• Leadership– Transfer as much decision making as possible to Elders,– Wise leadership is needed to constantly grow.
Hawthorn House
• Run by Alzheimer’s WA in Albany, 400 kms. south of Perth.
• Has been an accredited Eden facility for 5 years.
• Everyone; staff, volunteers, elders (people with dementia) and their carers are all valued.
Hawthorn House
• 218 clients (109 people with dementia; 109 carers).–Day clubs 6 days per week in Albany.– Social support for carers in Albany and for a 200 kms. radius from Albany.
• 42 staff; 32 casual support workers.
• 30 volunteers.
The Eden Principles: LonelinessLoneliness is countered by friendship and social interaction
The Eden Principles: LonelinessLoneliness is countered by friendship and social interaction
The Eden Principles: LonelinessLoneliness is countered by friendship and social interaction
The Eden Principles: HelplessnessHelplessness is countered by feeling useful
The Eden Principles: HelplessnessHelplessness is countered by feeling useful
The Eden Principles: HelplessnessHelplessness is countered by feeling useful
The Eden Principles: BoredomBoredom is countered by spontaneity
The Eden Principles: BoredomBoredom is countered by spontaneity
The Eden Principles: Plants
The Eden Principles: Plants
The Eden Principles: Plants
The Eden Principles: Plants
The Eden Principles: Animals
Chooks
The Eden Principles: Animals
Jebb and Pablo
The Eden Principles: Animals
Kangaroo and Canaries
The Eden Principles: Children
The Eden Principles: Children
The Eden Principles: LeadershipLeadership is never autocratic or hierarchical
The Eden Principles: Leadership
The Research Project• Previous studies were US based and concentrated on medical results.
• Recognised the need to document the outcomes for staff, volunteers, clients and their carers.
• A study over two years:– Involved staff, volunteers, clients and their carers.– Administered quality of life and general health surveys, three times during this period.
– Interviewed all groups about their experiences at Hawthorn House.
– Dementia Care Mapping conducted twice per month for a year.
Key Findings: Clients
• Clients were not lonely, bored or felt helpless at Hawthorn House.
• Clients recognised and appreciated the home‐like environment of Hawthorn House.
• Clients spent the majority of their time in social and meaningful activity.
Key Findings: LonelinessI Feel Lonely at Hawthorn House
0
10
20
30
40
50
60
70
80
90
Phase 1 Phase 2 Phase 3
Percentage
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
Key Findings: Helplessness
Help
Clients
Volunteers
Staff
Carers
Key Findings: Helplessness
I Feel Helpless at Hawthorn House
0
20
40
60
80
100
120
Phase 1 Phase 2 Phase 3
Percentage
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
Key Findings: Boredom
I Feel Bored at Hawthorn House
0
10
20
30
40
50
60
70
80
90
100
Phase 1 Phase 2 Phase 3
Percentage
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
Key Findings
I am Happy at Hawthorn House
0
20
40
60
80
100
120
Phase 1 Phase 2 Phase 3
Percentage
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
Key Findings: Dementia Care MappingActivity Percentage of
Time Rank
Engaging in expressive or creative activity 25.3 1Eating, drinking 22.2 2Interacting with others, verbally or otherwise 16.4 3Being socially involved but passively 9.5 4Activity prioritising use of intellectual abilities 8.4 5Participating in a game 6.3 6Performing work or work‐like activity 4.6 7Sleeping, dozing 2.1 8Participating in exercise or physical sports 1.8 9
Engaging with media 1.6 10
Key Findings: Carers
• Carers exhibited less stress than comparable groups.
• Carers were better able to cope because of the respite they received from Hawthorn House.
• Carers recognised the home‐like atmosphere at Hawthorn House.
Key Findings: Carer Stress
• 34 carers completed the Zarit Burden Interview.– 29% (10) male, 71% (24) female.– Aged between 43 and 89; largest percentage aged 81‐90 and over 60% of carers were aged over 70.
• Exhibited much less stress than comparable groups in other studies, despite other groups being much younger.
• Results suggest that less than 15% of the carers are suffering from depression.
• No correlation between age and stress; carers did not exhibit more stress as they got older.
Key Findings: Staff and Volunteers
• Low staff turnover; high level of staff satisfaction.
• High number of volunteers and very small turnover.
• Staff and volunteers have real relationships with clients and carers, which makes their job meaningful.
Conclusions
• Whilst there is no cure for dementia, places such as Hawthorn House, can make a difference in the lives of people with dementia and their carers.
• The Eden Principles are a useful framework for ensuring the best outcomes for clients and carers, as well as staff and volunteers.
Acknowledgements
• This research project was funded by a Wicking Trust grant, which is administered by ANZ Bank.
• Many thanks must go to Hannah Potter, Desiree Cailes and Elizabeth Barnes for their wonderful assistance with this project.
Questions
