The directory of hospice and specialist palliative care services inIreland. 1996

Item type Report

Authors Irish Association for Palliative Care

Citation Irish Association of Palliative Care. 1996. The directory ofhospice and specialist palliative care services in Ireland.1996. Dublin: Irish Association of Palliative Care

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THE DIRECTORY OF HOSPICE &

SPECIALIST PALLIATIVE CARE SERVICES IN IRELAND 1996

Irish Association for Palliative Care

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THE DIRECTORY OF HOSPICE & SPECIALIST PALLIATIVE CARE

SERVICES IN IRELAND 1996

Irish Association for Palliative Care Marymount Hospice, Wellington Road, Cork.

Tel: 021-507110 Fax: 021507110

Contents

The Irish Association for Palliative Care ............................................ 3

Acknowledgments ............................................................................ .4

Defin~ions of Palliative Care ............................................................. 6

General Information ........................................................................... 9 Who is it farl ..................................................... 9

Referral .............................................................. 9 Is there a charge? ............................................. 9

Abbreviations ,_, ......................................... , ..... 10

HospicelPaliiative Care Services .................................................... 11

Bereavement Services .................................................................... 18

Hospice/Palliative Care Support Groups and Movements .............................................................................. 22

Useful Addresses ............................................................................ 24

Health Board Offices ...................................................................... 26

Other Publications ........................................................................... 28

Appendices ..................................................................................... 29

Index ............................................................................................... 33

The Irish Association for Palliative Care

This directory of hospice and palliative care services in Ireland is published by the Irish Association for Palliative Care. Over the past decade, we have witnessed enormous growth in the development of specialist hospice and

palliative care services, heralding a new and exciting era in modern health care provision. In 1995 the Medical Council included Palliative Medicine amongst its list of recognised specialties.

Traditionally, hospice services have been most closely associated with the care and support that is offered to patients with advanced cancer. In more recent times, the focus has broadened to include the care of patients with other advanced and progressive, but non-cancerous conditions.

Hospice teams, working in close collaboration with established in-patient and community based services, seek to ensure that all patients and those close to them, receive an optimal level of care and support.

The Irish Association for Palliative Care is committed to the continued appropriate development of hospice services in all areas of the country. The publication of this directory, which details all of the established services and summarises the range of their activities, is an important facet of the work of the association. We wish to ensure that all health care professionals, health boards, voluntary and charitable bodies and members of the general public, will have ready access to information on hospice services in their own region.

Hospice and palliative care services continue to rely heavily on charitable funding. Individual health boards must now playa more pro-active role in the planning of an integrated palliative care service in each region and must

ensure that adequate and equitable funding is provided to support such developments. There now exists a unique opportunity for true partnership and support between voluntary hospice groups and health boards, in terms of strategic planning and financial provision.

In the directory, hospice and palliative care services are listed under health board area. Bereavement services are listed separately, also under health board area. Groups and organisations working in support of hospice and palliative care services are also listed, as is a compilation of useful addresses.

The Association has taken great care to ensure the accuracy of each entry.

but cannot accept responsibility for any errors Of' omissions. Individuals are

I advised to liaise directly with their local hospice group for further and more detailed information on the precise range of services offered.

For more information on the work of the Irish Association for Palliative Care and membership details, please contact:

The Secretariat, Marymount Hospice, S!. Patrick's Hospital, Wellington Road, Cork.

Tel: 021-507110 Fax: 021-507110

Dr. Tony O'Brien, M.B. F.R.C.P.I i

I

Chairperson, Irish Association for Palliative Care

ACKNOWLEDGMENTS I

The Irish Association for Paliiative;Care wishes to acknowledge the very generous support of the Departinent of Health and the Irish Cancer Society, 5 Northumberland Road, Dublin 4 in compiling this directory,

MALLOW.

SCI88EREEN

Map LegBnd

County Borders

- Health Board Borders

• Palliative Care Services

• CilleS/lowns

Definitions of Palliative Care ;

PALLIATIVE CARE

Palliative Care is the continuing active, total care of patients and their families by a multi-professional team at a time when the medical expectation is not cure and the primary aim of treatment' is no longer to prolong life. The goal of Palliative Care is the highest possible quality of life for both patient and family. Palliative Care responds to physical, psychological, social and spiritual needs. If necessary, ite.tends to support in bereavement. (European Community, Europe Against Cancer Committee). I

ESSENTIAL ELEMENTS OF PALLIATIVE CARE.

In whatever setting it is delivered, Palliative Care should provide the following essential elements:

I

relief for patients from pain and 'other distreSSing symptoms; an integrated approach to physical, psychological, social and spiritual aspects of care so that patientS may come to terms with their own death in whatever way is appropriate to them; a support system to help the patient live as actively and creatively as possible until death; . a support system to help famili~cope during the patient's illness and in bereavement.

THE PERSON WHO IS DYING.

One of the main aims should be to improve the quality of daily life. This can be achieved by attention to the following issues:

,

the removal or alleviation of u~Pleasant symptoms; the removal or alleviation of fear and loneliness; the maintenance of choice and independence wherever possible; spiritual needs.

THE RELATIONS AND FRIENDS qF THE PERSON WHO IS DYING.

One of the main aims should be to provide support to relatives and friends, both before and after the death of the patient. There is a need to determine to whom support should be offered; sometim~s the person is not the ne><l of kin, nor even a blood relative. Staff will need to accept a range of a~emative relationships.

Good support will require attention to the following:

practical support of carers; emotional support of carers; the provision of day care facilities and in-patient beds for respite care; bereavement support.

STAFF_

In whatever setting Palliative Care is being delivered, the following need to be considered:

adequate staffing levels; skilled selection of staff; good communication between staff; adequate and continuous education; adequate and regular emotional support.

IN PATIENT HOSPICE UNIT.

An in-patient hospice unit offers specialist palliative care for patients and their families. It has a trained, multi-professional staff who are specialists in palliative care. As well as that it also has a high ratio of nursing staff to patients. The unit offers additional services such as bereavement counselling and day care. The in-patient hospice unit is also an important resource in the area by being a centre of research and education in palliative care.

HOME CARE TEAM,

This is a team of specialist staff set up to offer advice and support to patients, their families and to health care professionals. They do this by complementing the skills and resources of the primary care team thus helping families to care for the patient at home.

The location of units such as these offers an excellent opportunity for the improvement of standards of care in the hospital as a whole, not only for the dying but also for patients at an earlier stage of their illness whose professional carers may require advice on symptom control.

I , PALLIATI\IE CARE SERVICE WITHIN A GENERAL HOSPITAL

This service is provided by specialist ,staff who offer advice and support to patients, families and health professionals. They do this by complementing and supplementing the skills and resoJrces of the existing hospital care team.

PALUATIVE CARE SUPPORT BEDS

A growing number of general and di~trict hospitals are providing beds for patients requiring palliative care. These beds are also available to provide backup to the Primary Health Care Team.

A distinction Is drawn between this type of arrangement and the specialised Palliative Care Services in general hospitals.

PALLIATIVE DAY HOSPICES I A day hospice is a day care facility for patients requiring palliative care. Such patients may be referred from an in-patient or home care setting. This includes a carefully thought out programme of activities under the supervision of staff w~h specialist training in palliative care.

General Information

WHO IS IT FOR?

Traditionally, hospice services have been most closely associated with the care and support that is offered to patients with advanced cancer. In more recent times, the focus base has been broadened to include the care of patients with other advanced and progressive. but non~cancerous, conditions. For detailed infonmation regarding individual services please contact you local unit.

REFERRAL

Referral to a hospice or palliative care home care service is nonmally arranged by the patient's own GP or hospital doctor. Most services only accept patients from within a certain radius. Please check the area covered by each service under the entry for that service.

IS THERE A CHARGE?

Every citizen in the state is entitled to free in-patient hospice care. However, if you wish to go privately, please discuss this with your local hospice.

Abbreviations

AID

BS

DC

HC

IPU

PCUH

PCSB

PCSGH

RC

MN

CH

Educ

v

UniVteam willing to consjder caring for a person with AIDS

Bereavement Service

Day Care

Home Care

In-patient unit

Palliative Care Unit in hospital

Palliative Care Support Beds

Palliative Care Service i~ a General Hospital

Willing to offer respite care I

UniUteam willing to cohsider caring for a person with Motor Neurone Disease

UniVteam willing to consider caring for a child with cancer

Education Unit

Volunteer Group

Hospice/Palliative Care Services

Please note many services provide Bereavement Support.

EASTERN HEALTH BOARD Dublin

CARITAS PALLIATIVE CARE SERVICE

See each individual entry.

Our Lady's Hospice, Harold's Cross, Dublin 6. Tel: (07) 497 8099 Area covered: .. ' ... . .. South Dublin Medical Director: ... ... ... ... Dr. Uam Q'Siorain (full-lime) Medical Director (Home Cere): ... Dr. Veroni' Hanley (Iul-I,"e) Matron: .,. . .. Sr. Helena (full-lime) Sister in Chatge (Home Cere):... ... . .. Catherifl, DonneUy (full-t,"e) Secretary/Manager: .,' ... Me Michael Murphy

HIPUIHC/RC/MNfAlDSlCHlBSlEDUCN/OC - plnnnod for 1996

PALLIATIVE CARE SERVICE St. Vincent's Hospital, Elm Park. Dublin 4. Tel: (01) 269 4533

Area Covered: .. _ ... . .. 51. Vincent'S Hospital Consultant in Palliative Medicine! Medical Director. .. . .... _ ... ... Dr. Michael Kearney {part-lime) Nurse Manager: ....... , ._. .. Ms. Pal1line Doyle (part·lime) Nurse (Public Hospital): .. . .. Ms. Noreen Holland.

Ms Phil Pine (9.00 a.m.-2.00 p.m, Monday 10 Friday) Nurse (Private Hospital): ... .,. Ms. EiI'lSh O'Reilly (full-time)

PCSGH (wlll conslclOf' patlonts whh non·maIlgnant disease)

ST. FRANCIS HOSPICE Station Road, Raheny, Dublin 5. Tel: (01) 8327535

Area covered: ... Dublin North Medica! Consultant: ...... Dr. Regina McQuiUan NursingOirector. ............... '" Sr.AnnetleMcKenna Social Worker: ... Dr. Matthew Farrelly Home Care Area Covered ... Eight mile radius from hospice. Administrator: ......... ... ... Ms Mart FarreKy Medical DOector (Hom, Care): ...... Dr. Jacinta Rynn (full-time) Nursing Co-ordinator (Home Care): .,. Sr. Marian Lucey (fun·time)

HCIDClCHlBSlIPUN

ST. LUKE'S HOSPITAL oaklands, Highfield Road, Rathgar, Dublin 6. Tel: (07) 4974552

Area Covered: ...... Referrals from wit/in lhe hospital only. Consultant in Palliative Medicine: ... Dr. Uam O'Siorain (part lime) Medical Director (Hom, Cere): ...... Dr. Verorie Hanley (part-Ime)

PCSGH

ST, JAMES'S HOSPITAL James's Street, Dublin B, Tel: (01) 4537941

Area Covered: ... ... ... ... '.. ... ", Referrals from within the hospital only. Consultant In Palliative Medicine: .... ,' Dr.liam O'Siorein (part time) NUfSe Manager. .,'... ... ' ........ Mrs. Morna Hogan (full-time)

PCSGH

PAEDIATRIC ONCOLOGY LIAISON NURSE SERVICE Oncology Unit, Our Lady's Hospital, Crumfin. Dublin 12. Tel: (01) 455 8111

Area Covered: '" ... ... ." '" ". ... 26 cotKrties. All children referred 10 the Onc~ogy Un~ '" 0" llIdy's Hospital.

Medical Director: .. , Dr. Fin _lpatH"",) Dr. Anne O'Meara

Nurse Manager. ... Mrs. 8. Brady (part-time) HC/PCSBlCH ClnlylBS

PAEDIATRIC ONCOLOGY LIAISON NURSE SERVICE Oncology Unit, Our Lady's Hospital. CrumlifJ. Dublin 12. Tel: (01) 455 8111

Area COvered: ... ... ... . .. ',. ". . .. 26 counties. All children referred to the Oncology Unil al Our llIdy's Hosp~,

Medical Directo, ... .. .... Dr. F~ Breatnach (part-time) Dr. Anne O'Meara

Nurse Manager. .. ' ... Mo;. S, Brady (part-time) HC/PCSBlCH ontylBS

Kildare/West Wick/ow ST_ BRIDGID'S HOSPICE AND HOME CARE SERVICE The Drogheda Memorial Hospital, The Curragh, Co. Kildare. Tel; (045) 41875141270

Area Covered: ...... ... ... ... ... .., County Ki~are and West Wicklow Medical Director: Dr. Adrian McG~ricI< (part-time) Nurse Managec .............. ... , Ms. Teresa Scuny, SPHN (part-time)

IPUIHClRC

Wick/ow WICKLOW HOME CARE SERVICE St. Cronan's Health Centre, Bray, Co. Wicklow. Tel: (01) 286 6422

Area Covered: ... ... ... ... ... ... ... North East Wickk;lw Nurse Manager. ..................... Ms Ann Clat'" Act. SPHN (part-time)

HC

WICKLOW HOME CARE SERVICE Community Care Offices, Glenside Road, Wicklow Town, Tel: (0404) 68400

Area Covered: ... South Eas1 W~klow Nurse Managec ... ... Ms Ann Clarke Act. SPHN (part-time)

HC

MIDLAND HEALTH BOARD Laois

LAOIS HOME CARE SERVICE General Hospital, Portlaoise. Tel: (0502) 60147

Area Covered: ... County Laois Medical Director:... . ....... MI. Peler Naughton (part-time)

HClPCUHlPCSBlRClAlDSICH

Longford LONGFORD HOSPICE/HOME CARE SI. Josephs Hospital, Longford. Tal: (043) 45851

Area Covered: ... ... .. .... County longfOid Nurse Manager: ... . .. Ms. C. Leavy (part-Um.)

HC/PCUH

Offaly OFFALY HOSPICE FOUNDATION Mount Pleasant, Bluebell, Tullamore. Tel: (0506) 41904

Area Covered: ... ... . ... ... County Off'y MedK:aJ Dimctoc ... ... ... Dr. Humphrey O'ConnoT (paTHme)

HC!PCSBlPCUHIRClCH

Westmeath WESTMEATH HOSPICElHOME CARE

North County Westmaath

He

County Clinic, Mullingar. Tel: (044) 40221 Mobile: 088-626431 South County Westmeath, Moate, Bsllymore, Gfassen, Athlone Areas. District Hospital, Athlone. Tel: (0902) 75301 Nurse Manager .. , ... . ....... , ... ... Ms C.lea'o)' SPHN.

MID WESTERN HEALTH BOARD Limerick/Clare/North Tipperary

MILFORD HOSPICE (under the auspices ot the litUe Company of Mary) Plassey Park Road, Cast/etroy, Umeriek. Tel: (061) 331505 Fax: (061) 331181

Area Covered: ... ... ... ... '" ... ... Mid Westem H_ Board Region (compriSing Counties Umerick, Clare and Na1.h TIpperary)

Medical Director: ," ". ... ". Dr. Patrick Kelly /part-lime) Manager of Nursing Services:. .. .... Sr. Bri~d Walsh Co-ordinator Home Care Service:... . .. Sr. Veronica McNamara GenerallManager. ... ... ... . ... II '" Mr. Pal Quinlan

IPU/HClPCSBlEDUCIBSIRSIAlDSICHlMN/DC - planned lor 1996

NORTH EASTERN HEALTH BOARD Cavan

PALLIATIVE HOME CARE, COMMUNITY CARE SERVICES Lisdam, Cavan. Tef: (049) 61822

Area Covered: '" ", '" County Cavan Medical Director. ... Dr. Kumerausia (part-time) Nurse Manager: •.. '" ... Ms. C. Curry (part-Um.)

He

Louth PALUATIVE HOME CARE SERVICE, COMMUNITY CARE CENTRE Dublin Road, Dundalk. Tel: (042) 322B7

Area Covered: ... . ........ County Louth Medical Director. ... ... ... ", Or . Tom Filln (part-time) Nurse Manager: ... ... ... . .. Ms. Marie Dooley SPHN(full-time)

HC/PCUHlRClMN/AJOSICH

Meath COUNTY MEATH HOSPICE HOME CARE SERVICE County Clinic, Navan. Tel: (046) 27375

Area Covered: ... County Meath Nurse Manager:... .., '" Ms. Helen Thornton (part-time)

HC/PCSGtVMNlAlDSlCH

Monaghan PALLIATIVE HOME CARE

Ba1~t~'::J~ ~e~tre:.B~l1r.ba:·~Oc:u~~:;~el: (042) 41B2B

Nurse Manager:... ..• ... ... ... ... . .. Ms. C. Curl)' (part-time) He

NORTH WESTERN HEALTH BOARD Donegal

DONEGAL HOSPICE HOME CARE SERVICE LeHerkenny General Hospital, LeNerkenny. Tel: (074) 25BBB

Area Covered: ... ... . .. North East Donegal (excluding lnisowen Peninsula which is covered from Derry)

Medical Director: ... ... ... ... ... ... [)-. Tom McG01Iey (part-time) HC/PCSGHlMNIAlDSlCHlBS/PCSBIIPU In Dorry

HOME CARE SERVICE District Hospital. Donegal Town. Tel: (073) 21019

Area Covered: ... ... ... ... ... . ..•.. South & West Donegal HClMNIAlOSICH/BSIPCSB

Sligo North West Hospice, Stephen Court, 10-12 Stephen Street, Sligo. Tel: (071) 43317

Area Covered: '" ... ... ... ... ... ... 40 mile radius of Sffgo includirg all SliQo, Leitrim, South Donegal and a 'spur' ot North East Mayo.

Medical Director: Home Care Nurses: ...... ". Home Care Full Time Secretary:

HC/PCUHlPCSGHlRClAlDSlCH/BS

North Roscommon [)-. Therese O'Connor (full·lime)

," ", Carlrel Tunney. Anne Marie McCafferty, Gemma Doherty . .. May Cunningham

SOUTH EASTERN HEALTH BOARD Carlow/Kilkenny

CARLOWIKILKENNY HOME CARE TEAM SI. Lukes Hospital, Kilkenny. Tef: 056·51133 ext. 355

Area Covered: .. _... . . .. Counties Carlow and KI!kenny Medical Director. ... ,,' ... ... ", Mr. Ian Wdson (part-time)

HC/PCSBlPCSGHlRClCH

Tipperary South Tipperary Hospice Movement, County Clinic. Clonmef. Tel: (052) 22011 Fax: (052) 25337 Home care Team: (052) 25726

Area eov.red: .. ' ...... Medical Director. Nurse Manager. ". ... . .. ". 5ecretaJy: ...

HC/PCSGHlMNIAIDS/CH

Waterford

South TIpperary H_ Board Area Dr. Sam Kingston (part-time)

... Sup!. Public H_ Nurse (part·time)

... Brendan O'Keeffe

WATERFORO HOSPICE MOVEMENT LTD, Watetiord Regional Hospital, Ardkeen Waterford. Tel: (051) 73321 ext. 2239

Area Covered: .. ' Waterford Community Care Area Med<aJ Director. .. Dr. K. Hic~ey (part-time) Nurse Manager. .. ' .. Ms. M.l.anigan {parHimel

HCIPCSGHlAlOSlCH

Wexford COUNTY WEXFORD HOSPICE HOME CARE TEAM Wexford General Hospital, Wexford. Tel: (053) 42233

Area eov.red: ... ... County Wexford Medical Director. Dr. P. McKiernan (part-time) Nurse Manager:... ... . .. Mr. Bernard Finnegan (part-time)

HC/PCSBlPSCGHlAlDICHIMN

SOUTHERN HEALTH BOARD Cork

MARYMOUNT HOSPICE St. Patricks Hospital, Wellington Road, Cork. Tel: (021) 501201 Fax: (021) 501619

Area Covered: .. ' ... ... .. .... Cor1</Kerry -In-paUenl care Cork City and County - Home care

Consultant in PaJliative Medicine! Med<aJ Director: .................. Dr. Tony O'Boen (lull-Ume) Ct'lnical Director (Home Care): ,.' ... .., Or. Rnbarr Corkery (parHime) Nursing Director: ...... .,' ... Sr. Gerard McGirr (full-time) Nursing Om", (Home care): ...... 5<. Dotores Murray (IuH-time) Nurse Tutor... Ms Helen Kelleher (full-time) Secretary/Manage" .... . ..... Mr. Rnlan Fagan (IuHme)

IPUIHC/PCSGHlRC/MNlCH/EDUC

-PALUATIVE CARE SERVICE Cork University Hospital, Wilton Cork. Tel: (O21) 546400

twa Covered: ,,' ... ' ..... '.. ... ", Referrals from within the Hospaal only. CorouItant in Palliative Med~ineI Medical Director: '" , ........... ", Or. Tony O'Brien Nurse Specialist: ............ Ms Anne Staunton

Kerry KERRY HOME CARE TraJee General Hospital, Tralae. Tal: (066) 27793

Area Covered: ... ... ... ... ... ... ... North Keny Medical DirectQl: ... ... ... . .. Mr. Tom McConTlack (part-time) Nurse Manager. ... " .... ". ' ...... ,' Ms. Breda Power (part-time)

HClPCSBlPCSGHlRClCH

KERRY HOME CARE Dlstnct Hospital, Killamay. Tal: (064) 35026

Area Covered: ............... ... ... South Keny Medical Director. ... . ....... Mr. Tom McCormack (part-time) Nu"", Manager: ... ... ... ... . ........ Ms. Breda Power (part-time)

HClPCSBlPCSGHlRClCH

WESTERN HEALTH BOARD Galway

GALWAY HOSPICE FOUNDATION Ranmora, Galway. Tal: (091) 770868 Fax: (091) 752064

Area Covered: ......... ... ... County Galway Medical Director. ... ... ... ... ... . Dr. Mal)' Feerick (!uK-tme) Home Care Manager: ... ... ... . ..... Ms. Mary Mullins (full-lime) Senior Nurse: ... ... ... ... ... ... . .. Mr. Pt;Qp larkin

HC/PCSB/DCICHIIPHU -pIannocI toopon In 1996

Mayo/Roscommon MAYO/ROSCOMMON HOSPICE Tha Mall, Main Street, Knock. Tal: (094) 88666

Area Covered: ....... ,. ... ", .... " Counties Mayo and Roscommon Medical Din!ctor. ......... ... . ..... Dr. Enwnett Wais (fuN-time)

MAYO HOME CARE TEAM, COMMUNITY CARE OFFICES Wastem Health BoBtd, Cast/abar. Tal: (094) 22333

Nur.;e Manager. ..................... M. Gathe<ine Fitzgibbon (part-tm.)

ROSCOMMON HOME CARE TEAM, COMMUNITY CARE OFFICES Western Health Board, Roscommon. Tel: (0903) 26518

Nurse Manager. ... ... ... ... ... . . M. iJok>es O'Neill (part-time) HClMNICHlA1DIlPUIPCSGHlRCiMNIEDUC

NORTHERN IRELAND Belfast

NORTHERN IRELANO HOSPICE Somerton House. 74 Somerton Road, Belfast BnS 3LH. Tel: (01232) 781836 Fax: (01232) 3705B5

Area Covered: . . .. In Patient Unil- province; Home Care - Eastern and Northern Health Board Areas: Day care - BeHast and Col",ne

Medical Director: ... Dr. Yvome Duff (full· lime) .Assistant Medical Director. ... Dr. Barbara Cochrane (full-lime) Nursing Director. . . .. Ms. Rita Beattie (full·time) Assistant Nursing Director.." ... Miss Liz. McKee (full·lime) Admiristnrtiva Director.: ,.. _ .. Mr. Tom H'ill

-

HJPUIHClDCIRCiMNlAIOS/EDUCJBSlCHN Belfast Team: .. Northam I~and HOS!>ce, 74 Somerton Rd., Belfast BT 15 3LH.

Tel: (01232)781836 Fax: (01232) 370585 8aJIynahinch T earn:

~~naTeam:

Coleraine Team:

North Down &Ards Team: .

55 High SITeet. B~~ahinch, Co. Down. Tel: (01238)565151 Fax: (01238) 561956 Braid VaHey Hosp~, Cushendall Rd., Ballymena BT 43 6Bl Tel: (01266)41199 Fax: (01266)631296

... 7F CastlelOck Rd .. Col"",ne. Counly londonderry BT51 3HP Tel: (01265) 42492 Fax: (01265) 321681

... 32-34 M~n Street, Ban9or, Counly Down. BT20 SAG Tel: (01247) 270227 Fax: (01247) 468011

BEACONFIELO MARIE CURIE CENTRE Kensington Road, Belfast. Tel: (0232) 794200

Area Covered: ... ... ... Nor1hern I~ Nurse Manager. . .. _

HIPUlHClDClRC/MN/AJDS ", J. Harper (full-time)

Craigavon and Banbridge MACMILLAN HOME CARE SERVICE Gilford Health Centre, GilfOrd, Co. Down. Tel: (0762) 832091

Area Covered: ... .., ,.. ... Craigavon and Banbridge Nurse Manager.... . ... ... .. .... Ms. Ge<aJdine Maguire (lull-time)

HC/BSIEDUC

Derry FOYLE HOSPICE 61 Culmore Rood, Derry. BT4B BJE.

Area Covered: .. , ... . ... Derry. Tyrone, Donegal Medical Director. ..... Dr. Torn MeG'lnley (lull-time) Matron: ........... . ... Mrs. Rose MaJY P"";ee (lull-time)

ArDIRClMNICH/EDUCN

Newry NEWRY HOSPICE 51. John of God Hospital, Courtney Hill. Newry. Tel: (0693)67711

Area Covered: .,. . .. Newry & Mourne Unit of the Southern Health & Social Services Board Med~1 Director: ... Dr. Osmond MOJTis (lull-time) Nurse Manager: ... . ... Sr. Teresa Byrne (full-time)

IPHUlHClRCIMN

Bereavement Services

EASTERN HEALTH BOARD Dublin

IRISH HOSPICE FOUNDATION BEREAVEMENT SERVICE Our Lady's Hospice, Harold's Cross, Dublin 6. Tel: (01) 4972101/6765599

Honourary Director. ............... Ms. Therese Brady Who may avail 01 the S8fVice: .. , ... . .. Famijjes bereaved through Our Lady's Hospice

IRISH HOSPICE FOUNDATION BEREAVEMENT SERVICE St. FrancI' Hospice, Station Road, Raheny, Dublin 5. Tel: (01) 8327535/6765599

Honourary Director: .........,..... Ms. Therese Brady Who may avail 01 the service: ... ... ... Families _Ihrough St Francis Hospice

ST. JOHN'S SUPPORT SERVICE ONCOLOGY SOCIAL WORKERS St. John's Ward. Our Lady's Hospital, Crumlin, Dublin 12. Tal: (01) 455 8111

Con1act: ... '" ..................... Frida lowry, Miriam Mooney or Eddi<! O'NeiM Who may avail of the service: ... . .. ", FamiHes whose ch~d attended St. John's Ward

TEENAGE BEREAVEMENT SUPPORT Our Lady's Hospice, Harold's Cross, Dublin 6. Tel: (01) 597 2101 ext. 285

Con1act: ... ... .............. ... '" Ann Keati1g Who may avail of the service: '" ... '" Families bereaved through Our Lady's Hospice

THE BEREAVEMENT COUNSELUNG SERVICE Dublin Street, Baldoyle, Dublin 13. Tel: (01) 839 1766

Contact:... ... ... ... ... ...... . .. Lorna Meldrum (Chairperson) Who may avail of the service: ......... Anyone who has been or ~ currently affected by

bereavement or thoSe who are tryilg to come to terms with an an1Idpated death.

The Bereavement Counselling Service has several centres in the Dublin area:­Augustinian Fattm. 51. Augustin .. , Ballyboden, Dublin 16. Tel: (01) 494 4966 Good Shepherd Pastoral Centre, Baidoye. Tel: (01) 632 1367 Boylan Centre, Dun Laoghaire. T~: (01) 2604946 Parish Centre, Phibsboro, Tel: (01) 636 9708 5OOaI5elvice Centre, Raheny. Tel: (01) 6313700 Rialto Parish Centre, Riaho. Tel: (01) 453 9020 St. Ann's Church, Dawson St, Dublin 2. Tel: (O1) 676m7 (Monday & Wednesday evenings only) Bereavement 5elvice lor Children. Tel: (01) 6391766

THE COMPASSIONATE FRIENDS 18 Kilbanack Avenue, Dublin 5. Tel: (01) 832 4618

Contact:... '" ... . .. Donal O'MaoIaIaI Who may avail of the S8fVice: ... ... ". Bereaved parents

MIDLAND HEALTH BOARD Laois

LAOIS HOSPICE BEREAVEMENT SERVICE Tel: (0502) 60984

Longford LONGFORD BEREAVEMENT SUPPORT GROUP Teallach loss, St. Mel Road, Longford. Tel: (043) 46827

Contact: ... ... ... ... ... ... ... ... . .. Sr. Angela Who may avail of the service: " .. " ... AU bereaved persons

RAINBOW FOR ALl GODS CHILDREN FAMILY CENTRE St. Mels Road, Longford. Tel: (043) 46827

Contact: ... ... ... ... ... Sr. AngelaIFr. Michael Bannon Who may avail of the 5e(Vice: ... ... ... Bereaved children (5-17 years)

Offaly EDENDERRY SUPPORT GROUP Blundel Wood, Edenderry. Tel: (0405) 31255

Contact: ... ... ... ... ... ... . ........ Joe N"~ TULLAMORE SUPPORT GROUP Parochial House. Tuflamore. Tel: (0506) 21587

Who may a~ 01 the service: ... ... ... Anyone who needs the service

MID WESTERN HEALTH BOARD Limerick

MILFORD HOSPICE (under the auspices 01 the Little Company of Mary) Plassey Park Road, Castletroy, Limerick. Tel: (061) 331505

Contact: ... ... ... ... ... ... ... ... . .. Sr. Foonnu~a GlynolSr. Kay Bany INho rna y avail of the service: ... ." ... Hospice patients and their families.

Support for others on a limited basis.

NORTH EASTERN HEALTH BOARD Louth

NORTH LOUTH HOSPICE AND HOME CARE SUPPORT GROUP $eafield Lawns, Dundalk

Contact: ... ... ... ... ... ... ... . .. Mary ReINy Who may avail of the secvic9: ... ," ". Cancer patients and relatives

Meath MEATH HOSPICE HOMECARE MOVEMENT 14 Oliver Plunkett Road, Kells. Tel: (046) 41956

Contact: .. '. .,' ... ... ... ... ", ... Miriam Kiernan

NORTH WESTERN HEALTH BOARD Donegal

THE COMPASSIONATE FRIENDS Ballindrait. Bunbeg, Letterkenny. Tel: (075) 31493

Contact: .... ... '" ... . ........ '" Ms. 8riege Gillespie Who may avail of the service: ... ... ". Bereaved parents

Sligo NORTH WEST HOSPICE BEREAVEMENT SERVICE 10-12 Stephen Street, Sligo. Tel: (071) 43317

Contact: ",. .. .. " ... " ........ " Temp. Vacant Who may avail of the service: .... . _. All famiUes referred to hospice

SOUTH EASTERN HEALTH BOARD Carlow

BEREAVEMENT COUNSELLING SERVICE Garlow. Tel: (0503) 40977

Kilkenny KILKENNY BEREAVEMENT SUPPORT SERVICE St. Luke's Hospital, Kilkenny. Tel: (056) 51133

Contact: ... '" ... ... ... ... ... Matrons OffICe Who may avail ot the service: ... ... ... All bereaved

Wexford FAMILY LIFE SERVICE Bereavement care, St. Bn'dget's Centre, 12 Roches Road. Wexford. Tel: (053) 23086

Contact: ,.. ... '" ", Ms. Yvonne Pim Who may avail of the service: " .... ,_, All bereaved persons

SOUTHERN HEALTH BOARD Cork

THE COMPASSIONATE FRIENDS Cia Invermors, Skehard Road, Blackrock, Corl<, Tel: (021) 2918921364695

Contact: ... ... ... . ... . ..... Ms. Ann. Ke\ly!He~ H~y Who may avail of lhe service: ... .. . " Bereaved Parents

WESTERN HEALTH BOARD Galway

GALWAY HOSPICE BEREAVEMENT SUPPORT GROUP Renmors, Galway. Tel: (091) 770868 Fax (091) 752064 Who may avai 01 the service: ......... A1llamiies bereaved Ihrough Galway Hosp~e Founda1ion

Mayo MAYO HOME CARE TEAM

County Climc, Cast/ebar. Tel: (094) 22333 Contact: .. , '" ... '" ... ... ... ... '" Home Care Nurse Who may avail of the service: ," ... ", All families bereaved through Mayo Hospice.

Roscommon ROSCOMMON HOME CARE TEAM

Western Health Board. Roscommon. Tel: (0903) 26518 Who may avail 01 the service: ... All families bereaved through Roscommon Hospice.

NORTHERN IRELAND Belfast

NORTHERN IRELAND HOSPICE BEREAVEMENT AFTERCARE 74 Somerton Road. Belfast BT15 3LH. Tel: (01232) 781836 Fax: (01232) 370585

Contact: .,' ,,' .. , Mrs. Margaret Dodds Who may avail of ill. seIVice: ... . ... Families and friends 01 persons carod lor by the

NOIIhem 1-.:/ Hospice

BANBRIDGE BEREAVEMENT GROUP Macmillan Home Care Service, Gilford Health Centre. Gilford, Co. Down

Conlact: ... ... ... ... ... ... Macmillan Nul1lE!S

BEREAVEMENT HOME COUNSELUNG SERVICE Macmillan Home Ceta Service, Gilford Health Centre, Gilford, Co. Down

Contact:... ... ... ... ... ... ... ... ... Macmil/an Nurses

Craigavon and Lurgan CRAIGAVONlLURGAN BEREAVEMENT GROUP Macmillan Home Care Service, Gilford HeaJth Centre, Gifford, Co. Down

Contact: ". ... ... ... . ... Macmillan Nurses

Derry FOYLE HOSPITAL 61 Culmo'" Road. Derry BT48 BJE. Tel: (01504) 351010

Who may avail of the service: ... ." ... Families bereaved through Foyle Hospice

Lurgan THE COMPASSIONATE FRIENDS 3 Beddes Avenue. Lurgan Co. Armagh BT66 7JH. Tel: (01762) 321508

Contact: ,,' ... ,.. .,. Mrs. Eleanor Topping Who may avail of the service: ... ... '" Bereaved parents and relatives

Newry NEWRY HOSPICE St. John of God Hospital. Courtney Hill. Newry. Tel: (01693) 67711

Conlact: ... ... ... ... ..' ... MIS. Una Boyle Who may avaJl of the saMee: ... ..' ", Families of deceased relatives

Newtownards THE COMPASSIONATE FRIENDS "Red Rowans", 5 TuJlyhubbert Road, Moneyreagh, Newtownards, BT23 SBY. Tel: (01232) 448618

Contact: .. , ...... ... MIS Claire Wray Who may avail of the service: .. , . . All bereaved parents and bereaved

siblings in separate groups

Hospice/Palliative Care Support Groups & Movements

EASTERN HEALTH BOARD Dublin

IRISH CANCER SOCIETY 5 Northumberland Road. Dublin 4. Tel: (01)668 1855

ConIact: '" ... '" ... '" ... '" ... . .. Mr. R. Hudson. Chief ExecutN. IRISH HOSPICE FOUNDATION 9 Fitzwilliam Place. Dublin 2. Tel: (01) 676 5599

MIDLAND HEALTH BOARD Laois

LAOIS HOSPICE General Hospital, Portfaoise. Tef: (0502) 21364

Contact ", ... ", ... ' ..... ' .. , ... ,. Mr. Peter Naughton

Offaly OFFALY HOSPICE FOUNDATION Mountpleasant. Blueball. Tullamore. Tel: (0506) 54992152309

Cootact: '" ... '" ... '" ... '" ... . .. Mr. John MoGann

NORTH EASTERN HEALTH BOARD Louth

ARDEE HOSPICE AND HOMECARE MOVEMENT Aniea. Tel: (041) 53587

ConIact: ... ." ... ... ... ... ... ... •.. Uoisa McCabe NORTH LOUTH HOSPICE AND HOME CARE FOUNDATION Information Centre, Unit 6/7 Rampart Shopping Centre, Dundalk. Tel: 28533 Fax: 28533

Contact: '" ... '" ... ... ... . ........ Mary Re"~ Who may avail of the service: '" ... . .. Gancer patients and relatives

Meath MEATH HOSPICE HOMECARE MOVEMENT 14 Oliver Plunkett Road. Kells. Tel: (046) 41596

Contact: ", ". ", .,' ' ..... '.. ,.. , . Ms. Miriam Kiernan

Monaghan COUNTY MONAGHAN HOSPICE HOMECARE MOVEMENT Gavanaguilla. GasUeblayney. Tel: (042) 40701

Contact ", ". ", .. ' ". ... ... ... ... Ms. Mairead McGuinness

NORTH WESTERN HEALTH BOARD Donegal

DDNEGAL HOSPICE Main Street, Letterkenny. Tel: (074) 25656

Conlact: . ... lsobel Doherty

NORTH WEST HOSPICE LTD. 10-12 Stephen Street, Sligo. Tel: (071)43317

Contact: .. ... ... . .... , ... Noreen McGloin, Director Dr. Seamus Healy (Company Secrelary)

SOUTH EASTERN HEALTH BOARD TIpperary

SOUTH TIPPERARY HOSPICE MOVEMENT Western Road, Clonmel. Tel: (052) 22011

Contact: ... .. ... _,' ... _,.. . ... Ms. Maureen Considine

Waterford WATERFORD HOSPICE MOVEMENT LTD Waterford Regional Hospital, Ardkeen Waterford. Tel: (051) 73321 ext. 2239

Contact ... " ............ ' ..... ' ... Ms. Carmel Murphy

Wexford COUNTY WEXFORD HOSPICE HOME CARE TEAM LTD. Wexford General Hospital, Wexford. Tel: (053) 42233

Contact: ... ,.. ... . ....... ' ... Dr. Paddy McKiernan

SOUTHERN HEALTH BOARD Kerry

KERRY HOSPICE FOUNDATION The Ashe Street Clinic 36 Ashe Street, Tralee. Tel: (066) 25611

Contact: ... ." ... Dr. David Buckley

WESTERN HEALTH BOARD Galway

GALWAY HOSPICE FOUNDATION Renmore Galway. Tel: (091) 770868 Fax: (091) 752064

Contact: _ . ... Dr. Padhraic Q'Conghaile, Executive Chajnnan

Mayo/Roscommon MAYO/ROSCOMMON HOSPICE 1 The Mall Main Street, Knock. Tel: (094) 88666

Contact: '" ," , ... Angela Kirrane

Useful Addresses

Groups involved in providing support for the drug user and people affected by AIDS and HIV

ANNA LIFFEY DRUG PROJECT 13 Lower AbbeySt,.et, Dublin 1. Tel: (01) 878 68991878 6828

Contact: ..... ' ". ... '" MargueriteWoodslElhnaO'Donovan A programme of action, prevention and support for the drug·user.

BALLYMUN YOUTH ACTION PROJECT lA Balcums Road, Ballymun, Dublin 11. Tel: (01) 842 8071

Contact: ... ... ... ... ... Mary Bien McCann

COOLMINE THERAPEUTIC COMMUNITY Coo/mine House, 19 Lord Edward Street, Dublin 2. Tel: 679 4822/679 4867

Contact: , .... ' ..... , The Director

CROSSCARE CATHOUC SOCIAL SERVICE CONFERENCE The Red House, Clonliffe, Dublin 3. Tel; (01) 836 0011 Fax: (01) 8367166

Contact: ... . ... Sr. Ka1hteen Meagher Befriending service (support. friendship service) tor those affected by HIV. Bereavement counselling and pastoral care available to individuals and families, Prison. hospital, home visits, prevention and awareness raising programmes

DRUG TREATMENT CENTRE Trinity Court, 30-31 Pearse Street, Dublin 2. Tel: (01) 677 1122

Contact: ... ... ... ... . . ... Dr. John O'Connor Uaison care of H1V positive and drug misusers

DUBLIN AIDS ALLIANCE The Erin Centre, 53 Pamell Sq. w., Dublin 1. Tel: (01) 873 3799 Fax: (01) 8733174

Contact: ... ... ... ... ... ... ... ... . .. Enn Nugent (Community Support) Beth Wallace (Prevention, education, training)

MERCHANTS QUAY PROJECT 4 Merchants Quay, Dublin 8. Tel: (01) 679 00441677 1128

Contact: ............ Sean CassinITony Geoghegan Assist in the prevention of HIV transmission. Provide care and treatment to drug users and their families affected by HIV and AIDS.

Help and Advice CANCER PLUS (National AsSOCiation of Parents & Children with Cancer) c/o Irish cancer Society. S Northumberland Road. Dublin 4. Tel: (041) 242/3/(01) 8490654

Contact: .,. Margamt JohnstoniFrances Owens Support for parents of children with cancer.

COLOSTOMY AND ILEOSTOMY WELFARE GROUP c/o Irish Cancer Society, 5 Northumberland Road, Dublin 4. Tel: (01) 288 0071

Contact: ... ... . ... Dorothy DUnne Support and practical advice on a one 10 one level for those who have undergone surgery.

DEPARTMENT OF HEALTH Hawkins House, Hawkins Street, Dublin 2. Tel: (01) 6714711 HEBER clo Insh Hospice Foundation, 9 Fitzwilliam Place, Dublin 2. Tel: (01) 676 5599

Umbrella organisation for Hospice Bereavement Groups Contact: ." ... ... .. ....... Therese Brady

HODGKINS UNITED GROUP clo Irish Gancer Society, 5 Northumberland Road, Dublin 4. Tel: (01) 8472620

Contact: ," ... ". lsobel Thompson Practical information and emotional support for patients diagnosed with Hodgkins and Non Hodgkins lymphoma.

IRISH ASSOCIATION FOR PALLIATIVE CARE Marymount Hospice, St. Patricks Hospital, Wellington Road, Cork, Tel: (021) 507110 Fax: (021) 507110 IRISH CANCER SOCIETY, 5 Northumberland Road, Dublin 4. Tel: (01) 6681855

Cancer Helpl'lne: ... Freefone 1 BOO 200 700 . Provides information. guidance and support for patients, families. professionals and anyone concerned

about cancer. Funding for palliative care, home care, education, prevention and ear1y detection.

IRISH HOSPICE FOUNDATION 9 Atzwilliam Place. Dublin 2. Tel: (01) 676 5599 IRISH MOTOR NEURONE DISEASE ASSOCIATION Garmichael House, North Brunswick Street. Dublin 7. Tel: (01) 873 0422 Fax: (01) 873 5737 Freetone: 1800 403 403 LARYNGECTOMY ASSOCIATION OF IRELAND c/o Irish Cancer Society, 5 Northumberland Road. Dublin 4. Tel: (01) 6681855

Contllct: ... ... ... ... ... ... ... Irish Cancer Society Help and support lor patients, their families and friE!flds from diagnosis onward. Hospital visttaUon on request Education and social meetings.

REACH TO RECOVERY clo Irish Cancer Society, 5 Northumberland Road, Dublin 4. Tel: (01) 668 1855

Contllct:. ... ... ... ... May Ryan Practicall1elp, emotional support, information and a listening ear for women and their families who are about to have or have had surgery and treatment for breast cancer, and their families.

ULSTER CANCER FOUNDATION 42 Eglantine Avenue, Belfast Brn. Tel: (0232) 663281

For information on hospice sBlVices in the u.K. contact: Hospice Information Service St. Christopher's Hospice 51-59 Lawrie Park Road, Sydenham, London, SE26 6DZ. Tel: 0181 7789252 Fax: 01816598680

Health Board Offices

Eastern Health Board HEAD OFFICE Eastern Health, Board. Dr Staev9ns Hospital, Dublin B. Tef: (01) 679 0700 EASTERN HEALTH BOARD AREA 1 Community Care Offices, Tivoli Road, Dun Lao/re, Co. Dublin. Tel: (01) 284 3579 EASTERN HEALTH BOARD AREA 2 Community Care Offices. Vergemount Hall, Clonskeagh. Dublin 6. Tel: (01) 269 8222 EASTERN HEALTH BOARD AREA 3 ' Community Care Offices, Gamegie Building, 21-25 Lord Edward Street, Dublin 2. Tel: (01) 679 2611 EASTERN HEALTH BOARD AREA 4 I

Community Care Offices, Health Centre, Old County Road. Dublin 12. Tel: (01) 454 2511 ' EASTERN HEALTH BOARD AREA 5 Community Care Offices, Cherry Orchard Hospital, Ballyfermot, Dublin 10. Tel: (01) 626 8101 EASTERN HEALTH BOARD AREA 6 Community Care Offices, St. Brendan's Hospital. Upper Grangegorman. Dublin 7. Tel: (01) 868 0444 EASTERN HEALTH BOARD AREA 7 Community Care Offices, Aras Daimhin, Croke Park. Jones's Road, Dublin 3. Tel: (01) 8731777 I EASTERN HEALTH BOARD AREA 8' Community Gare Offices, Health Centre. Cromcastfe Road, Coolock, Dublin 5. Tel: (01) 847 6122 EASTERN HEALTH BOARD COMMUNITY CARE OFFICES Poplar House. Poplar Square. Naas. Co. Kildare. Tel: (045) 876001 EASTERN HEALTH BOARD COMMUNITY CARE OFFICES Glenside Road. Wicklow. Tel: (0404) 68400

r

MIDLAND HEALTH BOARD HEADOFRCE I Midland Health Board. Arden Road. Tuffarnore. Co. Olfafy. Tel: (0506) 21868 MIDLAND HEALTH BOARD : County Clinic. Long/ord. Tel: (043) 46211 Health Centre. Muffingar. Tel: (044) 40221 Health Centre. Dublin Road, Porl/aoise, Co. Laois. Tef: (0502) 21135 Health Centre. Arden Road. Tuffamo';'. Co. Offaly. Tel: (0506) 41301

MID WESTERN HEALTH BOARD HEAD OFFICE

Mid Western Heallh Board. 31-33 calheline Street, Umelick. T~: (II6t) 3t6655

MID WESTERN HEALTH BOARD Community care Department, Bindon S_. Enn~. Co. Clare. Tel: (065) 28525 Community Care Department. Kenyon St~. Nenagh, Co. Tippera!'!. Tel: (1167) 31 2t2

NORTH EASTERN HEALTH BOARD HEAD OFFICE

No1h Eastern Health 1Joanj, Ceanannus More, Co. Meath. Tel: (D46) 40341

NORTH EASTERN HEALTH BOARD Usdam, Cavan. Tel: 1049) 61822 Dublin Road, Dund~k Co, Louth, Tel: 1042) 32287 County Clinic, Navan Co. Meath. Tel: 1046) 21595 Rooskey, Co. Monaghan. Tel: 100n 81333

NORTH WESTERN HEALTH BOARD HEAD OFFICE

North Western Health 1Joanj, ManorIlammon, Co. L~lrim. T~: 1072) 55123

NORTH WESTERN HEALTH BOARD Isaac Butt Building, BaI~fey, Co. Do~. Tel: 1074) 31391 L.eltrim Road, Carrick on Shannon, Co. L~m. Tel: 1078) 20308 Community Gate Offices, MarIOevicz House, Sligo. T.: (O71) 60222

SOUTH EASTERN HEALTH BOARD HEAD OFFICE .

South Eastern Health Board, Dublin Road, ~Ikenny. To'. (O56) 51702

SOUTH EASTERN HEALTH BOARD Community eare Offices, James's Green, Klkenny. Tel: {056) 52208 County Clin~, Western Road, Clonmel, Co. TIpperary. T.: 1052) 22011 32 TheM~I, Waterford. T~: 1051)76111 County ain~, Wexford. T,;: 1053) 23522 Alhy Road, Carlow. Tel: {0503) 31691

SOUTHERN HEALTH BOARD HEAD. OFFICE .

Southern Health Boatd, Cork Fann Centre, Dennehy's Cross, Cork. Tel: (021) 545011

SOUTHERN HEALTH BOARD Community Gate Offices, Abbeycourt House, George's Quay, Cork. Tel: 1021) 965511 Health and Welfare Centre, M~Iow, Co. Cork. Tel: 1022) 21484 Wesl Cork Community Gate Centre, Skibbereen, Co. Cork. T~: 1028) 21722 19 Denny Stree1, Tr~ee, Co. Keny. Tel: 1066) 21566

WESTERN HEALTH BOARD HEAD OFFICE

Western Health 1Joanj, Menin Park Regional Hospital, Galway. T,;: 1091) 751131

WESTERN HEALTH BOARD Community Gate Offices, Newcastle Road, G~way. Tel: 1091) 523122 Western Hea~h Board, County Clinic, Casllebar, Co. Mayo. Tel: 1094) 22333 Western Health Board, Community Care Offices, Roscommon. Tel: (0903) 26518

Other Publication~ , ,

Other publications available from the Irish Association for Pal/iativ~ Care:

Guidelines for the Development of a Palliative Care Service

Guidelines on the Possession, Supply and Administration of Controlled Drugs by Registered Nurse~ worl<ing in the community in the Delivery of Palliative Care.

Appendices

Appendix 1.

1. DEFINmONS

1.1 PaUialj,>c c~

PaJlialive Can: is the active toral ~ ofpatiems and their fllmilies by II mulliprofessionalle3m when rhe patients diSease is no longer rcsponsh-e 10 curative trtatmenl (World Health Organisation. Technical Report Series 804, Gene-.-aI990).

1.2 Palliative Care Services

Pallialive Care SeNices is II broad Icnn which covers provision in both community and inpatient set1ings. Services mDy be Health Board or volunlaJy, mulliprofessional or uniprofessional: and may be provided by individuals or leams. Some services will meet lile definition of specialist palliative care services, othm may nOI: Ihey are all staffed by professionals who have extensive experience andfor additional training in aspects of palliative Cllrc, some up 10 specialist level.

1.3 The Palliative Care Approoch

The Palliative em Approach, aims to promote bolh physical and ps}1:hosociaJ well being. II is II vila] and integral pan arall clinical ptill:lice. whaJC\'ef the illness or ii'S Alage, informed by II knowledge and pructice of palliative care principles.

1.4 Palliati\'e Medicine

Palliative medicine is the uppropriare medical care ofpaticnts with active. progressive and advanced disease for whom the prognosis is limited and the focus of care is lhe quality of life, Palliative medicine includes consideration of the family's needs ~fore and after the patient's death,

1.5 Specialist Palliative. Care Services

Specialisl Palliative. Care Services are those services with palliatil'c care as their ron: speciality. Specialist palliative care services an: nceded by a sigruficanl milloril}' of people whose deaths are anticip3ted, and may be provided:

dirmly through the specialist services as defined and described in this paper or

indirectly through adviC'C 10 a patiem's present professional care!5ladvisers,

1.6 Terminal Care

Tenninal care is a rolltinuum of palliative care and usually n:fers to the management of patients at the point where it become5 dear that d~th is imminent and the prognosis islikcly 10 lit measured in hours or days,

Appendix 2.

2. SPECIALIST PALLIATIVE CARE SERVICES

2.1 Chanlct~stics

Specialist palliali\'e cure scrvices. because oflre naMe oflhe needs !hey are designed 10 meel. are analogues to secondary or tertiary health care SCI'\·jces. They require a high level ofprofession:li skills trom rmincd!il3ff and 8 high suiT-patient ratio. They can support the palient whe!'e\'er that patient may be: BI home. in residential care or nursing home, in hospital. day cenln: or in a specialist unit.

The charocl.aUtics of a spcciJJist palliab\'e care service are llul:

il provides ph)'5iC<lI. psychological, social and spirifU31 support. with 0 mi., of skills. deli\'m:d Ihrough 0 multiprofcssionJl. col\aboralive ttam arproach.

ntthc least the lead person in each professionoJ group within the muluprofcssionalteam should be a trained and acknowledged f;JlCCialisl in palliative care.

patients/families are supported and in .... oh1cd in mDnagement rlans.

patients nre encournged to e:tpJn.~ !heir preference Pbolll where they wish to be cared lor and where they uish 10 die.

carers and familil!.'i nrc supporttd Ibrough tIu: illness into b!:rc;l\'emenl and UlI: needs ofthc berea\-ed Il1'1: ~ and ~

thcre is co-opcr1I1ion and rollabonnion 1ol-ith prlm:Jl')' health care tcanu, hospilals and horne care sc:vius 10 support patients .... -hm\"C!' they mlghl be.

tIu: contribution of\'ohmteers (where present) is recognised Wid \'llIIKrl.

the ser.·icc has either directly or indiredly II recognised academic external education role and in­service eduC'iltion provision, rOT

- those wishing 10 unin as palliative can: specialis1s; IImi

- bealth pmfe.'lSionals wishing \(] incorporntl: tbe pal1i:J.Iive care approach into their prnctice in corrununity and hospillli scl1ings.

sta:nd:trd!l art sct for the education and ttaining provided.

qualilY assurance progr3.l11ImS nrc in pIau and nrc constD.lltly uscrll(l re\1tw prnctifX'. clinical audil ond ~h programmes c;list to e\'aluate IICItment and QUU:ome.

staff support arrangements aist which nrc appropriale \(] meet the n.:ed1 of those working in specialist plIUiative care, whether full time or pan-time.

2.2 STAFFING SPECIAUST PALLIATIVE CARE SERVICES This section outlines the optimal staffing requiR:menls., r«ognising thai nOl all scrvice; ha\'e achieved them but thai m:lny an: working towards them. Sel'vices may not m\'e reached thitt goal do-pite a commitment 10 move towards it. Reasons may include lack of resources or. as yet. insufficient professionals who have undertaken n:eognised fOTmalli.lining in palliali ve cart' due 10 the wry rapid expan~ion of pallialive care services and its very recent recognition as a speciality.

The staffmg requin:menl~ of a Unil providing inpatient sen'ices or a home can: on a 24·bour basis. ~1\1 bt different from Iho~ of a tram operating a service providing day cart: only.

Specialist pa1liati\'e care scrvil.'CS should ha\"C a\'ililable an essenlial minimum core of professionally 1mincd suff .... ith recognised posl-qu.alificalion Irnining and clinical aperience in p3l1iativc care services. The qu:l1ificntions 1100 staffing rntios should be endorsed and agreed with the appropriale academic Wld professional bodies,

A nuroing rulff providing a skill mi~ 10 mee1tl\.e requirements of Ute scr.'jce. in which all h:l\'l: at IClSt introduclOl)' eduCiltion in pallialive care printiples and practice, All nw;es in more .~ior posts should hold a n:cognised post registr.llion quaiifiClltion (i.e. diplollla or other Ilcatkrnic award, e.g. a specialist prncltlioncr recordable qualification in paJli:uive care). or have had equi\'alcnl e,'perience and ha\'e achieved ctlmpardbie com~tence.

One or more doctor.; holding a recognised nppoinunenl in palliativc mroicinc and on or ciigible In be on m~ SpeciaJisi Register ofthr: Medical Council. and pnu;tising principally in lJu: speciality.

WIlen a service is responsible for PJtienl~ on II 24·hour basis, as inp:!lients in II specialist pal1imi\'C' care unit or in SOfru: hospice Ilt home developments, mcdiC".l1 and nursing staffwill need 10 be available on a 24-hour basis.

Specialist scrvices should also have available, full·lime, parI.time or wim regubr sessions. the following ruIT:

StaIT specifically lr.Iined 10 meeT the psychosocial needs of me paTient. family and carers. For ex.ample, a social worker able to oITer counselling. family work. access ({) other services and resources, and bere;wemenl asses,<;Jl1cnl. Othcr examples. include psychologists. ps~hialrislS, COW\SI!'J!ors, welfare officers Of family therapists.

Ph}'5iothmpist - registered with the Chanmd Society ofPh}'5iother.!py.

OccupHlionaJ Theropist • regjslmd with Ihe Msoc:iaTion of Occupliliollll Therapists of Ireland.

A suitably troined and e.~pcricneed member of slaffn:sponsibJe for thc berea\'emenl scl'\iec, oble 10 coordin.1tc Hnd manage the Tmined sUlffor voluntcers whn deliver bc;re:wcmenl care and support.

A coordin:llOr of spiritual care who could be 0 minister of religion (or equivalent) with uaining, Of cxpericna: in the care of dying people and their carers, 10 pro\·idc..'coordin:lI~ spiritual C>U't'. The prcwision of5pirilUal ~ sbould ensu~ the spirirual needs of all patients IlIl! addressed wroTever their culture. am whether they It:l\'e II faith or ha\'e none.

In addition there should be access 10 the following. either within II ~-peci3Iist palliative care unit or tbrough liaison with O1hcr health care providers:

Oncology and radiotherapy SC'n:ices Clinical expertise in other specilJitie:s

Parnelinie

Clinical invl!StigMion f3cilitle~. c_g. X-my. Jaborotory tcsts

Pharmacist

Dietician

Specia.lis.t sc:r ... ices should nuke 1l\"3ibblc the following scnlices for patients wishing to use them:

Range of stlff(p:lid or voluntary) promoting ereali\'e activities (e.g. mu.~ic, drama, art)

IUlnge of sllIIT(paid or voluntary) qualified to provide complementary therapies (e.g. massage, aro/JUltherupy).

2.3 GENERAL REQUIREMENTS WITHIN SPECIALIST PALUATIVE CARE SERVICES

\Alhere \'oluntee~ are used they must be oppropriately sdect«l amI tr.lincd for the tasks given. as well as ~lIpcrvised, Many specialist palliative care !'.Crvices employ a volunteer coordinalllr for this purpose. The management ofvoluntCCl'S and the q\l3lity of their perfomt:ll1ce shoLild not differ from plid suff,

All services prmided within II speciaiisl palliati\·-c: can: SCI'\'ice should be supported by an effective administration.

Service users and purchasing ngencics need 10 knnw whJt skills and trealments are offered 11) meet specific p:!!ient need£.

2.4 PROVIDING SPECIALIST PAUIATIVE CARE

Sen.ices meeting the abovc criteria shuuld be recognised Ii.~ a specialist pa!iiati\'c care ~r .. ice.

Definitions of C'Jch service element will JJC'l:d to ilJClLlde agreed stafTing levels (determined with the help of the appropriaTc prufcssioM.! bodies),

Specialist palliari\'c care services prov"ide~: in response 10 refena1s from primary heahh em learns through:

advice Day Hospice

Ill!: involvement of un IIdvisory Home em Service for p:ltienlS at home or in n:~idl:11,ia1 or nUT'liing homes

Ihe involvement ora comprdtcmi'lle Hospice B\ Home SCl'\'icc taking 2400ur can: inlo the patient's home. :

in gcm:roJ and spedaJist hospitals lhrou'gh palliative care teams (SUpportlWl1S, symptom rdicf1eamsj

in specialist palliati\'c care units which may be in a hospital, in the gmunds of a hospital or free-standing (the trnditional hoSpice). I

EkmenlS ofthc specialist pallialiv"(! c::m: service may operate in one geographic:a1location or severallfthc ekmenlS defim:d as making up a spccialiSi palliative cure 5el"o'ice arc separately managed or funded thrn: must be a management slrUcture and strntegy that ensures patients who need specialist pallialive care receive il (e-g. through beds in a community hospilal, a hospice al home ser.icc Or II day hospice in an oncology unit or cCIltre) in 11 coordinated and integruted Vt'ay. 11IiIt management structure must ensure good communication and ~ion berwecn all the serviC\:s in"'ol .. oo,

References: National Cowu:il for Hospice!llld Sprxiali~ Palliative Care Services: Specillht PaUlalin Clre: A Sbllemenl of DenDitiDDS. Occasional PIIpCf 8, October 1995

I

THE IRISH ASSOCIATION FOR PALLIATIVE CARE , WISHES TO THANK ,

THE NATIONAL COUNCIL FOR HOSPICE

AND SPECIAUST PAWATIVE CARE SERVICES

FOR ALlOWING US TO USE THESE DEFINITIONS.

Index

AIDSIHIVIDRUGS Anna Uffey Drug Project .............. _ ........ . Ballymun Youth Action Project Coolmlne Therapeutic Community Crosscare Catholic Social Service Conference Drug Treatment Centre, Trinity Court Dublin Aids Alliance ................. . Merchants auay Project

BEREAVEMENTSER~CES EASTERN HEALTH BOARD

Bereavement Counselling Services Compassionate Friends Our Lady's Hospice Our lady's Hospital for Sick Children St. Francis Hospice ........ _ ..... . Teenage Bereavement Support

MIDLAND HEALTH BOARD Edenderry Support Group Laois Hospice Bereavoment Service ........... . Longford Bereavement Support Group ........ . Rainbow For All Gods Children Family Centre Tullamore Support Group

MID WESTERN HEALTH BOARD Milford House Hospice

NORTH EASTERN HEALTH BOARD North Louth Hospice and Home Care Group Meath Hospice Homecare Group _ .....

NORTH WESTERN HEALTH BOARD

. ..... 24

...... 24 · ...... 24

...... 24 ............ 24

. .............. 24 .............................. 24

........................ 18 ......... 18

· ...... 18 ............. 18

.. ....... 18 ... 18

... 19 .19 .19

... 19

... 19

................... 19

............. 19 . .. 19

Compassionate Friends _ ............ ,' .......... " ........... ' ..... . .20 ... 20 North West Hospice Bereavement Service

SOUTH EASTERN HEALTH BOARD Carlow, Bereavement Counselling SeNiee Kilkenny Bereavement Support Service Wexford. Family Ufe SeNlce

SOUTHERN HEALTH BOARD Cork. The Compassionate Friends

WESTERN HEALTH BOARD Galway Hospice Bereavement Support Group Mayo Home Care Team ...... . Roscommon Home Care Team

NORTHERN IRELAND Banbridge Bereavement Group Bereavement Home Counselling Service CraigavoniLurgan Bereavement Group ... Compassionate Friends. Lurgan Compassionate Friends, Nev.1ownards ... Foyle Hospice ........... . Newry Hospice ....................... . Northem Ireland Hospice Bereavement Aftercare

......... 20 ...... 20 ...... 20

... 20

......... 20 ...20 ... 21

· ...... 21 ........... , ... 21

...21

... 21

. .. 21

...21

. .. 21 ............... 21

HEALTH BOARDS Eastem Health Board ... .. .......... " ....................... " ...... 26 Midland Health Board ........................... , ... ... ... ... ... .... . ..... 26 Mid Westem Heallh Board ................... '" .................. 26 North Eastern Health Board . ... ... ... ... . ..... 27 North Westem Health Board ................................... '" ... 27 South Eastem Health Board ... ... ... ... ... ... ... __ .... 27 Southern Health Board ... ... ... ... ... ... ... ... ... . __ .... 27 Westem Heatth Board ... ... ... ... ... ... ... ... ... . .............. 27

HELP AND ADVICE Cancer Plus ... ... '" ............ '" ... .. .... '" ... 24 Colostomy & Ileostomy Welfare Group .... .. .............................. 24 Department of Health ......... __ ................... __ .......... 25 Heber .............. ... ... ... ... .. ....... '" .. 25 Hodgkins United Group ........ ,. . . .25 Irish Association for Palliative Care ... 25 Irish Cancer Society __ ......................... . ......... 25 Irish Hospice Foundation ... ... ... . . '" ............ '" ... 25 Irish Motor Neurone Disease Assoc. ..................... ...25 L:uyngectomy Association of Ireland ...... __ . ... ... ... ... ... ... ... .... . ..... 25 Reach to Recovery ... '" ......... __ ..................... ' '" ............ '" ... 25 Ulster Cancer Foundation '" ...................... " ............... 25

HOSPICE/PALLIATIVE CARE SERVICES EASTERN HEALTH BOARD

Our Lady's Hospice. Harold's Cross _ ........... ," '" ........ _ ... " .... 11 Our Lady's HospItal for Sick Children, Dublin' 2 ......... ". " .... 11 51. Brigid's Hospice and Home Care Service, Co. Kildare ", ... 12 51. Francis Hospice, Aaheny ......... _,_ , .. ", ...... " ...... , ... 11 St.James'sHospllal .. , ............ _ ......• _ ... ,_, ..... _ ,_, ..... _ ... " .. ,' ... 12 51. Lukes Hospital ... ", " ..................... _ ................. .-_ .... _, ... 11 51. Vincent's Hospital Palliative Care Service .... '" ... '" .........•.. '" ... 11 WicktowHomeCare-Bray ..... _ ... _._ ... .... . ... " ....... ,_, ... 12 Wicklow Home Care Service - Wicklow Town ... ,_. _ .. ,_, ", .. " ... 12

MIDLAND HEALTH BOARD Laois Home Care Service Longford Hospice/Home Care ........ . Offaly Hospice Foundation . Westmeath Hosplce/Home Care

MID WESTERN HEALTH BOARD Milford House Hospice ............• , •.

NORTH EASTERN HEALTH BOARD

......... 12 . .............. 12

. .. 12 ....... " '" ... 12

. .............. 13

CavanHomeCare ............. ............ '" ... 13 Louth Palliative Home Care ...................... ".... . ............ 13 County Meath Hospice Home Care Service '" ... ... .... . ..... 13 Monaghan Palliative Home Care ....... . .. '" ......... , ........ 13 St. Christopher'S Hospice ..... " ... ... .. .13

NORTH WESTERN HEALTH BOARD Donegal Hospice ... " .............. T

Donegal Town Home Care Service ......... '" .,. North West Hospice .................. " .... " ... .

......... '" ... 14 ...14

" .... 14

SOUTH EASTERN HEAlTH BOARD CarfowlKllkenny Home Care Team County Wexford Hospice Home Care Team South Tipperary Hospice Movement . Waterford Hospice Movement

SOUTHERN HEALTH BOARD Cork University Hospital ...• _. Kerry Home Care- Killarney Kerry Home Care - Tralee Marymount Hospice

WESTERN HEALTH BOARD Galway Hospice Foundation Mayo Home Care Team ... Mayo/Roscommon Hospice. Roscommon Home Care Team

NORTHERN IRELAND

.... ,_ ..... _ ......... ," ... , .. 14 ... 15

. ..... 14 .............. 14

. ..... 15 .15

...... 15

...... 15

.. _ .. ,_, ..... 16 . ....... 16

. .. 16 · ... 16

Beacanfield Marie Curie Centre ... ,_, ...... 16 Craigavonl8anbrldge Macmillan Service .... 17 Newry Hospice ., ........................................ , ................... 17 Northern Ireland Hospice ... ... . .. ................ 16

HOSPICE/PALLIATIVE CARE SUPPORT GROUPS EASTERN HEAlTH BOARD

Irish Cancer Society ... . Irish Hospice Foundation ..... .

MIDLAND HEAlTH BOARD laols Hospice Offaty Hospice Foundation .. '

NORTH EASTERN HEAlTH BOARD Ardee Hospice and Home Care Movement County Monaghan Hospice Home Care Movement Meath Hospice Home Care North Louth Hospice and Home Care Foundation

NORTH WESTERN HEAlTH BOARD Donegal Hospice .............. . North West Hospice ..... ' ..... ' ....... " .. '

SOUTH EASTERN HEAlTH BOARD South TIpperary Hospice Movement Waterford Hospice Movement ... Wexford Hospice Home Care Team

SOUTHERN HEAlTH BOARD Kerry Hospice Foundation .. , ...

WESTERN HEALTH BOARD Galway Hospice Foundation MayolRoscommon Hospice ...

. ..... 22 ....... 22

........ 22 ...... 22

......... 22 ........ 22

· ... 22 .......... 22

. ............ 23 .23

....... 23 · ... 23

.. 23

. .. 23

........ 23 ..23

ERRATA

Page 14.

Monaghan Palliative Home Care, Ballybay Health Centre, Ballybay, Co. Monaghan Tel: (042) 41 157

Page 25.

Hodgkins United Group, c\o Irish Cancer Society, 5 Northumberland Road, Dublin 4 Tel: (01) 668 1855

IRISH ASSOCIATION FOR PALLIATIVE CARE

THE DIRECTORY OF HOSPICE AND

SPECIALIST PALLIATIVE CARE SERVICES

IN IRELAND 1996

Please letme have ___ copies of the Directory.

Name:

Organisation :

Address:

Please return to Mrs. Olwyn Ryan, Executive Member LA.P.C., c\o Irish Cancer Society, 5 Northumberland Road, Dublin 4

MEHBERSHIP APPLICMIOH / RENEWAL FORK

NAME: ..........................................

TITLE: ............................................................ ·ADDRESS: .......................... ," ........ -.- .............. ..

.. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. . ' .........

.... - ......................... ' ...

if'EIaEPHOHE: ........................................................ ..

CURRENT POSI~ION: .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .. .

PLEASE TICK:

NURSING { ) MEDICINE ( ) SOCIAL HORK ( . )

PASTORALCARB . ( ) PHYSIOTHERAPY ( ) ace.· THERAPY (

SP./LAN. THERAPY ( ) VOLUliITEER ( ) ADHIRISTRATION (

FOND RAJ:S:tNo. ( ) DEn. ccnmS:e::r.r.oA ( ) CA'lr C~ (

OTBER ( )

I enclose cheque / money oZ'der ( no cash. please" ) in the SllJIl of £15 in respect of my annual membership fee of the Irish Association for Palliative Care, for the year. begj pni nq .January 1st. 1996.

Please forward completed foOl wi th payment to:

I.A.P.C. Marymount Hospice, st. Patrick's Hospital, Wellington Road, Cork.

)

)

)