The BEARR Trust Annual Conference 2015

Seinep Dyikanbaeva

PO “The Association of parents of disabled-children” (APDC), Bishkek, Kyrgyzstan

20th of November 2015

Content

Basic information

Legislation

Definition of disability

Reasons of disability

Problems and solutions (ARDI activities)

Good practices (ARDI activities)

Recommendations

Conclusion

Purpose of the presentation

General situation of disability in Kyrgyz Republic: problems of

disability and its resolutions

ARDI supports children and people that live within their homes, and

their activities that they can stay inside their families.

ARDI does not work directly for deinstitutionalization.

General information

In the Kyrgyz Republic, 46% According to the World Health Organization (WHO)

10% to the more accurate figure of 15%.

Among 6 million. more than 168,000 persons with disabilities registered.

the World Health Organization states 15% of a given population have a disability or more than 1 billion people.

in January 2014 , the total number of people with disabilities in the country is about 133,400 people 2.4 % of the total population.

Children with disabilities to basic, secondary and higher education in the country, employability of people with disabilities is particularly low compared to their non-disabled peers.

According to Handicap International’s survey conducted in November 2012 for the German International Cooperation (GIZ), only 25% of all persons with disabilities of employable age are economically active.

Basic information (vulnerable group and

deinstitutionalization.

In Kyrgyzstan to the Ministry of Social Development informed that children – recipients of

poverty benefits - 362,100 children (about 16 % of the country’s children) by 2012.

- children – recipients of social benefits - 22,400 children, of them:

- children who lost one or both breadwinners - 13,500 children;

- children in residential institutions – over 20,000 children, of them:

- children in state residential institutions – 3,220 children;

- children in non-state residential institutions – 2,280 children.

Constitution of the Kyrgyz Republic

Non discrimination principle of Constitution of the Kyrgyz Republic Article

16 p.2

No one may be a subject to discrimination on the basis of sex, race, language,

disability, ethnicity, belief, etc…

Discrimination because of disability is prohibited.

The constitutional norms are breached and people with disabilities are subject to

different kinds of discrimination such as direct and indirect discriminations”

Definition of disability

Article 1 Law of KR “On the Rights and

Guarantees of persons with limited

abilities of health

Disability is abnormality of health with

persistent disruption in functions of body,

leading to the full or significant loss of

ability to work or serves as a reason for

limits of living activities.

Conclusion: Disability is illness which

should be restored. The problem is

focused on the person’s impairment.

Article 1 UN Convention on People with

disabilities

The Persons with disabilities include

those who have long-term physical,

mental, intellectual or sensory

impairments which in interaction with

various barriers may hinder their full and

effective participation in society on an

equal basis with others.

Conclusion: Disability is condition of the

person. The problem is absence of the

conditions in the society.

Reasons of disabilities

Disability as a result of various diseases that

caused during childhood

Disabilities as result of occupational injury or

occupational disease.

Mission of ARDI

Assist Children with Disabilities

to have equal opportunities for

inclusion in society

by creating social programs that

empower the parents, protect rights,

advance interest and awareness, as well as

develop individual potential and civic activities.

Key ARDI Activity Lines

Protect rights and interests of parents & children

Rehabilitate Medical /Social /Educational /Cultural

Develop potential parent & children activities

Provide quality services for stakeholders

Publish informational materials, etc.

Train Representatives to be Specialists:

Local (Mayoral staff, Parents, Business, Schools)

State (Ministry staff, i.e., Education/Social/Health/Judicial/Labor/ Migration/Financial)

Regional (NGO partners)

International (NGO’s, Peace Corp., Handicap Intl., United Nations Development Program (UNDP), Disabled People Intl. (DPI), Crosslink Development Intl.)

Problems & solutions

Problems

The lack of social standards, assessment

systems and mechanisms of financing and

determining the cost of services that are

needed for calculation of quality of

services provided.

Solutions

Standards were created for day care or all

forms of centers for children with

disabilities, which were approved by the

Governmental Decree №381 dated July 8,

2014. network project

“Empowering parents of children with

disabilities” supported by ICCO \ KERK

in Actie.

Problems & solutions

Problems

Weak involvement of children and

people to get education.

Lack of educational standards for

children with disabilities in the country

that helps to establish a foundation for

inclusive education.

Solutions

In cooperation with the Ministry of

Education and Science of the Kyrgyz

Republic, the project team has developed

draft state educational standard which were

approved by the Order № 1089, August 17,

2015 Project of ARDI

“The complex of educational standard is

the foundation for inclusive education”

supported by Soros Foundation Kyrgyzstan.

Photos

ARDI Collaborations Organize:

International Conferences

International, National & Local Round Tables

Press-conferences

Individual Meetings with State Bodies, NGO’s, and Business

Facilitate Discussions:

Parents

Kyrgyz Government

NGO’s

International Organization

Improve:

State Level Situation of Parents & Children

ARDI Children’s Day Center Established 2009

Big Lottery

HealthProm Project “Support Children with Special Needs in the Kyrgyz Republic and their Families” social rehabilitation center was established as ARDI with financial support.

◦ Crosslink Development Intl. provided experts from America.

◦ The project purchased furniture, equipment, toys.

ARDI Children's Day Center (Pre-Condition May 21, 2012)

The Embassy of German Federation Republic

Project “The Best for Children”

Funding: 494,691 soms

ARDI Project “Inclusion is the Way to Accessible Education”

2013-2014 Soros Foundation Kyrgyzstan

EARLY INTERVENTION, the building

blocks of the ARDI Children’s Day

Center in preparing children with

disabilities for comprehensive schooling or

assisted classroom teaching was a model

of integrated support in an inclusive

educational environment during their early

developmental years.

ARDI Children’s Day Center

Parent Involvement at Home

Consultation is provided for

parents to teach materials at

home with their children and

also continue their therapy

and education at home.

ARDI Children’s Day Center – RESULTS!

September-May 2014 - 200 children trained

Each year 20 children are enrolled

FACT: Friends are found here;

Mutual learning to interact happens;

None are sitting at home, locked in four walls!

The parents believe in their children; in the infinite

possibilities and in their future!

Since 2012 an adolescent group of seven was formed.

Three teenagers, being prepped for mainstreaming,

currently attend the Center.

Right to health

Health right

"ARDI" in Kyrgyzstan is involved with Article 25 organization participating Global Day of Action being coordinated by Article 25.

"ARDI" is organizing the action and Mass media, parents, children with disabilities, youth and other interested people are invited to attend.

Necessity of to creating effective mechanism of to achieve accessible and quality medical services for children with disabilities and their families.

Recommendations

To ensure and promote the full realization of all human rights and fundamental

freedoms for all persons with disabilities without discrimination.

Bring into conformity the national legislation and policies with the Convention to

ensure that social model of disability is applied within the legislation and state

policy, rather than medical model.

To change “spirit of law” from medical approach to social

Conclusion

With the ratification of the UN Convention and the Optional

Protocol and implementation of offered recommendations.

The state accountability will increase and the violations of rights of

PWD will decrease.

KR has to ensure the rights of PWD, implementing national laws.

State accountability for non-implementation of international and

national obligations”.

Freedom to choose

“For equal rights and a better future for all

children”!