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tenzin’s tb journey Wisconsin Mycobacteriology Laboratory Network Conference Wednesday, November 4th, 2015
give thanks & recognition
All the workers today – person that made your
coffee, custodial staff, hotel staff, people that will
cook and serve your lunch, etc.
Indigenous and native people whose land we
are on. Decolonizing our world begins with
recognition, historical accuracy, and
accountability.
This opportunity to speak with you all today.
who i am
Tibetan American born in Hobli,
India
I’m 25 years old cis-gender straight
man who is temporarily able-bodied
I’m currently in graduate school
studying higher education at Iowa
State University
I love learning about things and
working to live in a more socially just
and equitable world
I love dogs
who i am not
Like other TB patients
Someone afraid of an oppressive culture that
stigmatizes people’s lived experiences
http://positivedoodles.tumblr.com/
overview of the talk
Provide a TB patient’s perspective
Talk about diagnosis
Talk about quarantine and home isolation
Talk about medication
Talk about stigma
What I learned
Q & A
diagnosis
Thursday, April 25th, 2013
Symptoms
Chest pain
Cough
Sore throat
Dry throat
No skin test
Chest x-ray
Blood test
what i struggled with
Isolation
Side effects of meds
Stigma of infectious diseases
http://www.msf.ca/en/article/sluggish-response-risks-squandering-historic-opportunity-tackle-global-drug-resistant
quarantine and isolation
Isolation
Boredom
Loneliness
Dehumanizing
Feeling Purposeless
Others before self
Artwork: “Waiting for Sunshine” by Lisa Murphy
my regimen and side effects
Amikacin – PICC line – loss of hearing and
anxiety
Paser – loss of appetite and fatigue
Ethambutol – loss of visual acuity
Ethionamide aka Trecator – extreme nausea and
peripheral neurapathy
Pyridoxine aka Vitamin B6 pill
Linezolid aka Zyvox
Moxifloxicin aka Avelox
Peerizinomide
Clofazimine aka Lamprene – darkening of skin
https://33.media.tumblr.com/7c78c84c60e022fef1dc58a91a44e0f6/tumblr_mvhxc2EevX1qaejg5o1_1280.gif
stigma
When I was diagnosed
When I arrived to Iowa State
University
When I opened up about my
illness
How stigma impacts students with disabilities in college
http://images.huffingtonpost.com/2014-10-13-appstigmamentalillness.jpg
what helped me succeed
Netflix – HIMYM, new girl,
parenthood, the walking dead, etc.
Judy, Dr. Pepperell, Jen, and Tammie, & more
My family & friends
Walking/exercising & nature
Optimism and an attitude of
gratitude
an attitude of gratitude
Being grateful is a reflective
practice
Gratitude happiness
Gratitude ≠ positive attitude
Positive attitude is socially
culturally constructed and can be super ableist
what i learned
Interaction and connection is
essential to the human
experience
My family and friends love me
And I love them
I am pretty darn strong
I am extremely privileged
