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SUSAN G. KOMEN FOR THE CURE®TRI-CITIES AFFILIATE
COMMUNITY NEEDS ASSESSMENTAND
BUILDING PARTNERSHIPS
CHERYL YOULAND, EXECUTIVE DIRECTOR
GRACE EKUA GHANSAH, MPH, CHESTONI HERRING BOUNDS, PHD, MPH
COLLEGE OF PUBLIC HEALTHEAST TENNESSEE STATE UNIVERSITY
APRIL 23, 2009
Introduction
Susan G. Komen for the Cure, Tri-Cities®
The Tri-Cities Affiliate of Susan G. Komen for the Cure® was established in 2005 to serve 22 counties in Southwest VA (9), Northeast TN(8), and Western NC(5).
http://www.komentricities.org
Background
The goal of the Tri-Cities Affiliate is to provide breast cancer education, mammograms, early detection and treatment options through its Grantees to women who are under-served or under-insured in the service region.
To effectively fulfill its goal of service delivery, the affiliate completes a community needs assessment every two-three years.
Background
Komen Tri-Cities contracted with researchers at the College of Public Health at East Tennessee State University (ETSU) to provide epidemiologic support and community participatory research assistance with the data collection and analysis phase of the community assessment.
A team consisting of Affiliate board members and the ETSU researchers was formed.
Sources of Data Data provided by Susan G. Komen for the Cure® State Cancer Registries Local health departments/districts Cancer control programs Centers for Disease Control and Prevention (CDC) Surveillance Epidemiology and End Results (SEER) US Census data Behavioral Risk Factor Surveillance System
(BRFSS) Appalachian Regional Commission (ARC)
Factors of Interest Breast cancer incidence rates Breast cancer mortality rates Demographics (age, race, income) ARC economic classification status Mammography use Insurance status
Partnerships
Roundtable Meetings
County Selection for Roundtables
From the data compiled by ETSU, 6 counties (2 from each of the 3 states) were selected to participate in local community qualitative data collection.
The counties selected from TN: Hawkins (rural) and Sullivan (urban)
Grant Funding
To help fund discussions in the 6 counties, the Team responded to a Request for Proposal from the Office of Rural and Community Health & Community Partnerships at ETSU.
The team was granted $2500 to support
the community roundtable discussions.
Listening to the Community Voices
Roundtable Discussions
Roundtable Discussions
COUNTY COMMUNITY NUMBER OF PARTICIPANTS
SESSION DATE
Wise Big Stone Gap 14 January 14, 2009
Washington Abingdon 13 January 15, 2009
Hawkins Rogersville 11 January 21, 2009
Sullivan Blountville 15 January 22, 2009
Madison Marshall 13 February 10, 2009
Avery Linville 16 February 11, 2009
Roundtable Attendees
82 people participated in the discussions Participants represented: - State Cancer Registries - State Cancer Control Programs - Local health departments - Breast cancer survivors - Clergy/Nurses/Medical Staff
- American Cancer Society (ACS) -Other local cancer-related organizations
Roundtable Agenda
Grant-required pre-survey Presentation about the mission and goal of
Susan G. Komen for the Cure® and Komen Tri-Cities.
Presentation of state and county level breast cancer statistics
Presentation of state cancer plan/state coalition
Roundtable Discussions Grant-required post-survey
Discussion Topics
The discussions included 3 broad topics:
- Barriers to accessing breast cancer services
- Solutions to those barriers - Best practices
Barriers, Solutions, and Best Practices
Major ThemesResults of Discussions
Major ThemesBarriers
Lack of Transportation to screening & treatment
No/inadequate insurance- high deductibles Lack of knowledge about available
resources/services Do not want to know status/fear of the
unknown No time; too busy Lack of Education Lack of financial support
Major ThemesSolutions
Knowledge of existing programs Grants for support Financial help Patient navigator Support groups Breast Health Education Relate to culture/Storytelling
Major ThemesBest Practices
Cancer Resource Center Good patient navigation Physicians keep tract of patients Rural health initiative Rural health grants BCCEDP/Komen/ACS grants Education – middle school & high school Pink day/Pink nails Family caregiver program School/Parish nurses Go where they are ACS programs for patients
Conclusion (Roundtable)
The following emerged from all community roundtable discussions, as major themes that could be addressed by Komen Tri-Cities:
- Access to screening and treatment- Transportation, free/low-cost mammograms, etc.
- Comprehensive breast health education- Community, providers, physicians, women, etc.
- Access to and knowledge of existing resources- Support groups, patient navigators, story telling, etc.
Reference
Appalachian Regional Commission Can be found at http://www.arc.gov/index Cancer Control P.L.A.N.E.T Can be found at http://cancercontrolplanet.cancer.gov/ Centers for Disease Control and Prevention (CDC). http://www.cdc.gov/cancer/breast/statistics/state.htm Centers for Disease Control and Prevention (CDC). Behavioral Risk Factor Surveillance System Survey Data. Atlanta, Georgia:
U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, 2008. http://www.cdc.gov/BRFSS/
http://statecancerprofiles.cancer.gov/cgi-bin/quickprofiles/profile http://www.komentricities.org/AboutUs http://www.komentricities.org/komenhistory http://www.komentricities.org/UserImages/Pictures%20149.jpg http://www.thomsonreuters.com National Cancer Institute Can be found at http://www.cancer.gov/ North Carolina Central Cancer Registry. Can be found at www.schs.state.nc.us/SCHS/CCR North Carolina Comprehensive Cancer Program. Can be found at http://www.nccancer.com/ State of Tennessee Comprehensive Cancer Control Plan 2009-2012 Can be found at
http://health.state.tn.us/CCCP/TCCC_Plan.pdf Surveillance Epidemiology and End Results. Can be found at http://seer.cancer.gov/statistics Tennessee Cancer Registry. Can be found at http://health.state.tn.us/TCR Tennessee Comprehensive Cancer Control Coalition. Can be found at http://health.state.tn.us/cccp/index.htm U.S. Cancer Statistics Working Group. United States Cancer Statistics: 1999–2005 Incidence and Mortality Web-based
Report. Atlanta: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention and National Cancer Institute; 2009. Available at: www.cdc.gov/uscs
US Census Bureau. Can be found at http://www.census.gov/ Virginia Department of Health Cancer Plan 2008. Can be found at http://www.vahealth.org/cdpc/cancerprevention/ Virginia Cancer Registry Can be found at http://www.vahealth.org/cdpc/cancerregistry
Thank you
Questions/comments?