Surveying Pennsylvania’s Families of Young Children who

~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT AND EARLY LEARNING

4. pennsylvania Y• DEPARTMENT OF HEALTH

FY 2018-19 EHDI & EI Family Survey Results

Surveying Pennsylvania’s Families of Young Children who are Deaf/Hard of Hearing

Results of the FY 2018-19 Family Satisfaction Survey & Record Review

·tn \nfants/io oeaf/Hard

ddlers whO are ·a families w,

f pennsylvanl 1he results survey O 1th heanng \ass e the of Hearing ab1es and young ch1:~~e~r:grarn and to irnprov

s !or pennsy\van1a 1a:;\;:~:::: ~n the ~:r~; :::~r:~::s are irnportantl 8 minutes to ih1s survey I rnprove services h heanng \ass hou\d take about w1\\ be used to \ oung ch1\dren wit ih1s survey s 1dent1f1cat1on o y can answer

uest1ons that you i . s diagnosed pond to a\\ the C\ ur part1c1pat1on nen your child wa

p\ease res thanks !or yo xperiences w rnp\ete t,\anY about your e

co . . n this section are est1ons1

part 1: 1'he qu hearing loss with deafness or a


-4. pennsylvania Y• DEPARTMENT OF HEALTH


Two Methods to Collect Data P

PELICAN-EI

S

--


• -


FY 2018-19 EHDI & EI Family Survey Results S

The survey return rate for FY 2018-19 decreased.

900 25%

CY 2015 FY 2016-17 FY 2017-18 FY 2018-19

# surveys sent # surveys returned % return rate

9%

0%

5%

10%

15%

20%

0

100

200

300

400

500

600

700

800



FY 2018-19 EHDI & EI Family Survey Results P

Early Intervention Record Reviews • Random sample

of 10% for a total of 77 infants and toddlers

PELICAN-EI




Hearingscreening test

for all babies no later than 1

month of age

Diagnostic evaluation by an audiologist no later than 3

months of age

Early intervention no

later than 6 months of age

1month 3months 6months


■

■



Families knew their child was screened at birth but didn’t have clear information to get additional testing. 100%

80%

60%

40%

20%

0%

96% 92%

75% 81% Screened at birth Given clear information

FY 2017-18 FY 2018-19


■

■



86% of infants in EI with a hearing loss were identified at NBHS. 100%

FY 2017-18 90%

82%

18%

86%

14% 0%

10%

20%

30%

40%

50%

60%

70%

80% FY 2018-19

Referred to EI from NBHS Passed NBHS and in EI






month of age


months of age





■

■



Infants are getting diagnostic evaluations and EI referrals early. 100%

80%

60% 75% 74%

83% 83%

FY 2017-18 40%

FY 2018-19

20%

0%

Obtain Diagnostic Eval by Referred to EI Program 3 mos

■


■



While most families are satisfied with how quickly their child received a diagnosis, satisfaction has decreased since last year.

100%

80%

60% 80%

40%

20%

0%

71%

FY 2017-18 FY 2018-19






month of age


months of age




-~ pennsylvania \Iii OFFICE OF CHILD DEVELOPMENT

AND EARLY LEARNING

--....... -•••••••••

•••



Most infants receive hearing services by 6 months of age 40%

30%

20%

10%

0% Birth to 4 - 6 7-9 10-12 13 - 15 16 - 18 19 - 21 22 - 24 25-27 28 -30 31 - 33 34-36 3 mos mos mos mos mos mos mos mos mos mos mos mos

In FY 2018-19, 58% of infants had an IFSP in place by 6 months of age.

FY 2016-17 FY 2017-18 FY 2018-19


Newborns who received a NBHS, were referred and reached EI by 6 months.

100%

70% 75% 66%

0%

20%

40%

60%

80%

FY 2016-17 FY 2017-18 FY 2018-19




• Outreach to local hospital Newborn Hearing Screening Programs

• Outreach to local audiologists




Learn more about EHDI and the goals for early identification of children with a hearing loss

https://www.health.pa.gov/topics/programs /Newborn-Screening/Pages/Hearing.aspx

https://www.health.pa.gov/topics/programs/Newborn-Screening/Pages/Hearing.aspx




Parent Experiences in Early Intervention




Overall, my child’s EI services made me feel better equipped to care for his/her needs.

100%

80% 98% 94% 85%

60%

40%

20%

0%

FY 2016-17 FY 2017-18 FY 2018-19




I am satisfied with the progress my child has made in the Early Intervention Program. 100%

80% 91% 87%

60%

40%

20%

0%

FY 2017-18 FY 2018-19




I am satisfied that EI staff included me in the IFSP/IEP decision making process. 100%

80% 92% 90%

60%

40%

20%

0%

FY 2017-18 FY 2018-19




I am satisfied that the EI program communicated with me to ensure that my child experienced a smooth transition from one program to another.

100%

80%

60% 74% 66%

40%

20%

0%

FY 2017-18 FY 2018-19




99% 100% 95%100%

In EI, I was given access to at least one staff person who is qualified in the areas of deafness and hearing loss

80%

60%

40%

20%

0%

FY 2016-17 FY 2017-18 FY 2018-19




I am satisfied with my EI Service Coordinator's level of knowledge regarding hearing loss in infants and young children 100%

95% 89% 78%80%

60%

40%

20%

0%

FY 2016-17 FY 2017-18 FY 2018-19




Approximately ½ of the families reported using a Communication Plan. 70% 59% reported a

Communication

FY 2016-17 FY 2017-18 FY 2018-19

30%

58%

49%

0%

10%

20%

30%

40%

50%

60% Plan in PELICAN


■ ■



Infants in EI are receiving services from hearing specialists and speech therapists.

Both SLP & SI-Hearing

SLP Only

SI-Hearing Only

17%

39%

44%

0% 10% 20% 30% 40% 50% 60%

FY 2018-19 FY 2017-18




• Provide training to Service Coordinators who are likely to get referrals of children with hearing loss




Learn more about how to use the Early Intervention Communication Plan

http://www.eita-pa.org/low-incidence/hearing-deafness/





Providing Information & Support to Families




In EI, I received parent support information about Hands and Voices Guide By Your Side 100%

83% 82% 66% 60%

80%

40%

20%

0%

FY 2016-17 FY 2017-18 FY 2018-19




98%

I am satisfied with the support provided by my Guide By Your Side Parent Guide. 100%

80% 91% 91%

60%

40%

20%

0%

FY 2016-17 FY 2017-18 FY 2018-19




In my community, I had access to professionals and/or other adults in a variety of roles, who are themselves deaf or hard of hearing. 100%

80%

60%

40% 54% 56%

20%

0%

FY 2016-17 FY 2017-18 FY 2018-19

48%




Family Connections for

Listening & Learning

Contact: Anne Gaspich [email protected]

mailto:[email protected]

to Parent of Pennsylvania

Home About •

My experience ...

My heart ...

Matches • Affiliate Programs & Partnerships •

Peer Supporters • P2P Supports Groups • Commun ications • How Can I Help •

• • ,Ir Affiliate Programs & Partnerships

Parent to Parent of Pennsylvania

Trisomy 21 Parent Peer Program

Penn State Hershey NICU Parent Support Program

Pediatric Therapy Professional Family Connection


Parent to Parent of Pennsylvania www.parenttoparent.org

www.parenttoparent.org




In EI, I was provided with information about community organizations, agencies, and events that are of interest to families who have children who are deaf or hard of hearing. 100%

94%80%

80% 60%

40%

20%

0%

FY 2017-18 FY 2018-19




The information provided in the booklet Getting Started was reviewed with me by a service coordinator or other person. 100%

83% 77%

60%

80%

61% 40%

20%

0%

FY 2016-17 FY 2017-18 FY 2018-19




• Now Online Job Aid & Document

• Getting Started: Resources for Parents and Families of Infants and Young Children with Hearing Loss





Parent experiences with communication options and technology




96% 94% 87% 80%

I am satisfied that in EI the information I received about a variety of different languages and communication options/methods was provided in an unbiased way.

100%

60%

40%

20%

0%

FY 2016-17 FY 2017-18 FY 2018-19




EI staff consistently give parents information about all communication options.

91% 84% 77% 86%

60%

80%

100%

40%

20%

0%

L&SL ASL Cued Speech Total Comm


••••••• • •• • •• •• • •• • . , .. :... ······ •••••••• •••

•••



Information on communication options is more often provided by EI staff than staff diagnosing hearing loss. 100%

40%

60%

80% EI Staff FY 2017

Eval Staff FY 2017

EI Staff FY 2018

Eval Staff FY 2018

20%

0%

L&SL ASL Cued Total Comm Speech

■


■



Most families Cued Speech are choosing

Listening & ASL Spoken

Language or Total Comm Total

Communication as their child’s L& SL

communication 0% 10% 20% 30% 40% 50% 60% 70% method.

FY 2018-19 FY 2017-18 FY 2016-17


~···················· ~· ........

••• -•••



Information on Hearing Aids/ALD comes equally from EI staff and staff diagnosing hearing loss. 100%

EI Staff 2017

Eval Staff 2017 80% EI Staff 2018

Eval Staff 2018 60%

40%

20%

0%

Hearing Cochlear FM Systems Aids/ALD Implants

■


□ □



Most infants in Early Intervention use Hearing Aids.

None/Unknown

Cochlear Implants

Hearing Aids & FM

Hearing Aids

0% 10% 20% 30% 40% 50% 60% 70%

FY 2018-19 FY 2017-18 FY 2016-17





You can find the slides for today’s presentation at:


Professionals>Low Incidence>Hearing/Deafness


Documents

Surveying Pennsylvania’s Families of Young Children who