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Study Definition TABLE24
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
17‐03 UNDERGOING RApR Review: Evaluation of breast cancer treatmetn patterms among Medicare Patients in Appalachia
1995‐2014 Active Faustine Williams & Iris Zachary
Active
17‐02 UNDERGOING RApR Review: Disparities in breast cancer subtype, stagin, and access to mammography in the Mississippi Delta Region
1995‐2014 Active Whitney Zahnd
Active
17‐01 WAITING FOR IRB FORMS FROM RESEARCHER: Recalibrating NHIA
1995‐2013 Passive Frank Boscoe
Active
16‐14 WAITING FOR IRB FORMS FROM RESEARCHER: Determinig the extent of head & neck cacner outcome disparity in Appalachia
1995‐2013 Passive Scott Weed
Active
16‐13 Geographic Patterns in incidence of TNBC
1995‐2013 Active Tatalovich Wenzel & Moss 2 /13/2017
Active
Friday, April 28, 2017 Page 1 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
16‐12 State‐level lung cancer burden 1995‐2013 Active Dennis Deapen & Zach Jump 1 /23/2017
Active
16‐11 Oregon Hereditary Cancer Surveillance
1995‐2013 Active Kristin Kane & Alicia Parkman 1 /5 /2017
Active
16‐10 Measuring observed incidence of prostate cancer by grade and extent of disease for race/ethnic groups in the US and Canada
1995‐2013 Passive Raymond Balise 1 /23/2017
Active
16‐09 Analysis of cancer among transsexual and intersex patients in the US using national surveillance data
1995‐2013 Passive Kevin Ward & Michael Goodman 10/11/2016
Active
16‐08 Forecast of trends in esophageal and gastric cancer in the US through 2030
1995‐2013 Active Jessica Petrick 11/21/2016
Active
16‐07 Age‐ and subsite‐specific trends in incidence of gastric and esophageal cacners in North American adults
1995‐2013 Active M. Constanza Camargo 10/11/2016
Active
Friday, April 28, 2017 Page 2 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
16‐06 Geographic patterns in lung cancer incidence in the US
1995‐2013 Active Denise Lewis 10/7 /2016
Active
16‐05 PENDING RESPONSE FROM RESEARCHER/UNDERGOING IRB REVIEW: The Affordable Care Act and cancer stage at diagnosis
1995‐2013 Active Xuesong Han
Active
16‐04 Imputing hormone receptor and HER2 status for defining breast cancer molecular subtypes using US population based cancer registry data
1995‐2013 Active Nadia Howlader 10/12/2016
Active
16‐03 Incidence of hepatocelluar carcinoma and intrahepatic cholangiocarcinoma by racial/ethnic group in the US
1995‐2013 Passive Katherine McGlynn 10/7 /2016
Active
16‐02 Trends in incidence of esophageal and gastric cancer by histological/anatomical subtype and race in the US
1995‐2013 Passive Jemal 4 /24/2017
Active
16‐01 Trends in incidence rates of biliar tract cancers by age group and cancer site among adults in North America and associations with trends in obesity rates
1995‐2013 Active Alison VanDyke 5 /6 /2016
Active
Friday, April 28, 2017 Page 3 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
15‐14 Socioeconomic status and variaton in laryngeal cancer stage at diagnosis and survival: a cross‐country comparison
1995‐2013 Active Eshwar Kumar 5 /6 /2016
Active
15‐13 ON HOLD not yet approved by RApR; waiting response from researcher
ON HOLD RESPON Chaturvedi
Active
15‐11 The association between the incidence of Chronic Lymphocytic Leukemia among adults in the US and rural‐urban residence
1995‐2012 Passive S. Cristina Oancea, NDSCR 11/14/2016
Active
15‐10 Rates of childhood cancers in the US 1995‐2012 Passive Meredith Shiels, NCI 10/28/2016
Active
15‐06 Assessing the relationship between rural‐urban residence and cancer using the NAACCR urban‐rural indicator codes
1995‐2012 Passive Kevin Henry, Recinda Sherman 2 /1 /2017
Active
15‐05 Testicular cancer incidence in men aged 50 years and older
1995‐2012 Passive Armen Ghazarian 10/26/2016
Active
Friday, April 28, 2017 Page 4 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
14‐10 Examining cancer disparities in the Philadelphia Metro Area (New Jersey, Pennsylvania and Delaware)
1995‐2011 Active Kevin Henry 11/30/2016
Active
14‐03 2014‐Geographic clustering of invasive melanomas in the United States
1995‐2012 Active Phyllis Gimotty (University of Pennsyl 9 /28/2016
Active
14‐02 2014‐Comparison of latitude gradients for testicular cancer and remaining cancer in Australia and the United States
1995‐2011 Active Peter Baade (Cancer Council Queensl 4 /26/2016
Active
13‐09 2013‐The burden of cancer in the USA in 2012 by race/ethnicity
1995‐2011 Passive Joannie Lortet‐Tieulent (ACS) 4 /26/2016
Active
13‐05 2013‐Health insurance and cancer stage at diagnosis
2005‐2009 Active Xuesong Han 4 /20/2017
Active
13‐02 2013‐Trends in hormone related female cancer incidence in relation to changing patterns of menopausal hormone therapy in the United States
1998‐2010 Passive Mark Sherman and Hannah Yang 11/8 /2016
Active
Friday, April 28, 2017 Page 5 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
13‐01 Delayed for Survival Data 2013‐Ovarian cancer mortality and survival trends in relation to changing patterns of menopausal hormone therapy in the United States ‐
1998‐2010 Active Hannah Yang and Mark Sherman 11/15/2016
Active
07‐05 2007 ‐ Projecting estimates of cancer incidence for every US state both spatially and temporally. [This is an annual project for American Cancer Society's Facts and Figures.]
continuous Passive Rebecca Seigel (formerly Ahmedin Je 10/27/2016
Active
05‐13 2006‐Cutaneous malignant melanoma (CMM): Differences in epidemiology between U.S. adults and children, 1995‐2002
1995‐2002 Passive Lisa Paddock 7 /1 /2016
Active
15‐12 WITHDRAWNPending revision of application by PI: Treatment pattenrs in Primary CNS Lymphoma
1995‐2012 WITHDRAWN Mendel Goldfiner/Kevin David, Rutge
Terminated
15‐09 NOT APPROVED by RApR: The association between environmental radon exposures and long term survival from Chronic Lymphocytic Leukemia among adults in the US
1995‐2012 NOT APPROVED b S. Cristina Oancea, NDSCR
Terminated
15‐08 NOT APPROVED by RApR: Spatial analysis of rural disparities in staging and oncologic outcomes for esophageal and pancreas cacner
1995‐2012 NOT APPROVED b Whitney Zahnd, SIUSM
Terminated
Friday, April 28, 2017 Page 6 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
15‐07 Forecasting trends in testicular germ cell tumors in the US
1995‐2012 Active Armen Ghazarian, NCI 10/27/2016
Terminated
15‐04 WITHDRAWN: The impact of reporting practices onstate and local lip cancer rates
1995‐2012 WITHDRAWN Frank Boscoe, Christopher Johnson
Terminated
15‐03 US CONCORD‐2 study: incidence rates (1995‐2009)
1995‐2012 Passive Hannah Weir 10/25/2016
Terminated
15‐02 WITHDRAWN: pending IRB materials from PI: Maine Cancer Registry: Annual Cancer Report and Routine Surveillance using CINA deluxe data
1999‐2012 Passive Molly Schwenn
Terminated
15‐01 Recent trends in incidence of testicular germ cell tumors in the US
1995‐2012 Passive Armen Ghazarian 5 /6 /2016
Terminated
14‐09 NOT APPROVED by RApR
Terminated
Friday, April 28, 2017 Page 7 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
14‐08 Demographic and regional/state variation in DCIS and early stage breast cancer incidence and treatment
1995‐2012 Passive Ward & Lin 4 /27/2017
Terminated
14‐07 Lymphoid malignancy statistics in the US, 2001‐2012
1995‐2012 Passive Jemal & Teras 4 /24/2017
Terminated
14‐06 Variations in receipt of curative‐intent surgical treatment for early‐stage non‐small cell lung cancer (NSCLC)
1995‐2011 Active Helmneh Sineshaw 11/4 /2016
Terminated
14‐05 The epidemiology of pediatric brain cancers in Appalachia
1995‐2012 Active Bin Huang 4 /25/2016
Terminated
14‐04 Recent trends in incidence of testicular germ cell tumors in the US: rising rates among Hispanic men
1995‐2011 Passive Armen Ghazarian (NCI Fellow) 10/22/2015
Terminated
13‐08 2013‐State‐level changes in the incidence of HPV‐associated anal and oropharyngeal cancers in the US
2001‐2010 Passive Edgar Simard 7 /15/2013
Terminated
Friday, April 28, 2017 Page 8 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
13‐07 2013‐Female breast cancer incidence at Komen Foundation affiliate‐level
2005‐2010 Active Serban Negoita 7 /15/2013
Terminated
13‐06 2013‐Withdrawn before IRB approval WITHDRAWN
Terminated
13‐04 2013‐Insurance coverage expansion and disparities in cervical, prostate, and lung cancer
1998‐2010 Passive Amresh Hanchate 4 /28/2016
Terminated
13‐03 2013‐Cancer burden and trends among adults aged 20‐40 years in the U.S.
2000‐2010 Passive Edgar Simard 5 /15/2014
Terminated
12‐05 2012‐Priorities for cervical cancer control based on disparities in race, social position, screening, vaccination, incidence, and mortality, 1995‐2009
1995‐2009 Active Sean Alterkruse (Jonathan Kish) 4 /25/2016
Terminated
12‐04 2012‐Weighting method to handle missing values in estimating tumor stage distributions in population‐based cancer registration
2004‐2009 Active Qingzhao Yu 8 /23/2014
Terminated
Friday, April 28, 2017 Page 9 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
12‐03 2012‐Analysis of ethnic disparities in colon cancer suggests a potential need for early colon cancer screening in Asians living in the USA
1995‐2009 Passive Jeannette Jackson‐Thompson 9 /2 /2016
Terminated
12‐02 2012‐Assessing the relationship between poverty and cancer using the census tract poverty indicator
2005‐2009 Active Frank Boscoe 11/8 /2015
Terminated
12‐01 2012‐U.S. geographic distribution of hepatocellular and cholangiocarcinoma
1995‐2009 Active Zaria Tatalovich 6 /9 /2015
Terminated
11‐08 2011‐State‐specific Endometrial Cancer Incidence Rates Corrected for Hysterectomy Prevalence
1999‐2008 Passive Rebecca Siegel 2 /5 /2013
Terminated
11‐07 2011‐Comparing Surveillance Methods Using County‐level Cancer Incidence Data in the United States
2004‐2008 Active Ge Lin 6 /30/2015
Terminated
11‐06 2011 ‐ Incidence and Trend of Soft Tissue Sarcoma in Adolescents and Young Adults
1995‐2008 Active Mei‐Chin Hsieh 1 /25/2013
Terminated
Friday, April 28, 2017 Page 10 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
11‐05 2011 ‐ Estimating Complete Prevalence by State/County
1995‐2008 Active Angela Mariotto 2 /10/2014
Terminated
11‐04 2011 ‐ Hodgkin Lymphoma Incidence in the United States by Age, Race, and Ethnicity
1995‐2008 Passive Denise Lewis 1 /31/2015
Terminated
11‐03 2011 ‐ Data Quality Control Through Nonlinear Association Analysis of Unknown Staged Cancer Cases
2004‐2007 Active Qingzhao Yu 5 /8 /2013
Terminated
11‐02 2011 ‐ Comparisons of Cancer Incidence and Mortality for Rural vs. Urban Counties in Pennsylvania and Rural United States
1999‐2008 Active Samuel Lesko 6 /30/2015
Terminated
11‐01 2011 ‐ Geographic Association of Agriculture and Pancreatic Cancer
1995‐2007 Active Brian Luckett 1 /11/2011
Terminated
10‐07 2010 ‐ Comparison of Patients Captured in the National Cancer Data Base with Those in Population‐Based Central Registries
1995‐2007 Active Anthony Robbins 9 /18/2012
Terminated
Friday, April 28, 2017 Page 11 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
10‐06 2010 ‐ Recent Changes in Incidence Rates of Ovarian Cancer: Relationship to Patterns of Use of Hormone Replacement Therapy
1995‐2007 Passive Mark E. Sherman NCI 8 /12/2014
Terminated
10‐05 2010 ‐ Incidence of Small Bowel Cancer in the United States, 1995‐2007
1995‐2007 Passive Marc T. Goodman 6 /24/2012
Terminated
10‐04 2010 ‐ Cancer in the Appaliachian Regions of North Carolina, Tennessee, and Virginia, 2004‐2006
Toni Herring Bounds ‐ retired 8 /1 /2012
Terminated
10‐03 2010 ‐ 3 State/3 Province Combined Cancer Incidence Rate Study ‐ A Descriptive Epidemiology Study
Active Bruce Riddle 4 /12/2012
Terminated
10‐02 2010 ‐ Comparative Epidemiology of Osteosarcoma in Adults
1995‐2007 Passive Holly L. Howe 3 /23/2011
Terminated
10‐01 2010 ‐ Urban‐Rural Gradient and Time Trends in Incidence of Medulloblastoma
Frank D. Groves 4 /1 /2011
Terminated
Friday, April 28, 2017 Page 12 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
09‐02 2009 ‐ Spatio‐temporal estimation of childhood cancer incidence in all US states for 1995‐2009
Li Zhu 12/3 /2010
Terminated
09‐01 2009 ‐ Pediatric Brain Tumor Incidence: Comparison of the Central Brain Tumor Registry of the United States (CBTRUS) and the International Classification of
Bridget J. McCarthy 12/1 /2010
Terminated
08‐05 2008 ‐ Hematopoietic Cancers in the Hispanic Population in the United States
Maria Schymura 1 /6 /2016
Terminated
08‐04 2008 ‐ Epidemiology of Head and Neck Cancer Sub‐sites among Different Racial and Ethnic Populations in the United States, 1995‐2005
Edward Peters 8 /2 /2012
Terminated
08‐03 2008 ‐ Evaluation of in situ Tumors Reported to Cancer Registries
Holly L. Howe 6 /2 /2009
Terminated
08‐01 2008 ‐ Multiple Imputation for Incomplete Cancer Registry Data
Brent Shelton 3 /16/2009
Terminated
Friday, April 28, 2017 Page 13 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
07‐09 2007 ‐ Incidence of Soft Tissue Sarcoma in Older Adolescent and Young Adults, US, 1995‐2004
Mei‐Chin Hsieh 11/30/2009
Terminated
07‐08 2007 ‐ Comparative Incidence of Fallopian Tube Cancer, Primary Peritoneal Cancer, and Ovarian Cancer in the US, 1995‐2004
Marc T. Goodman 9 /17/2008
Terminated
07‐07 2007 ‐ Racial/ethnic and socioeconomic variation in breast cancer incidence trends: US and Canada, 1995‐2004
Christina Clarke 10/8 /2009
Terminated
07‐06 2007 ‐ Geographic Patterns of Cervical Cancers in the US: Incidence, Mortality, and Related Factors
David Stinchcomb 11/16/2009
Terminated
07‐04 2007‐Highlights from CINA 2000‐2004 Holly L. Howe 4 /16/2008
Terminated
07‐03 2007‐Quantifying transportation barriers in accessing health facilities for breast cancer diagnosis and treatment
Holly L. Howe ‐ no longer the PI/ Char 5 /19/2011
Terminated
Friday, April 28, 2017 Page 14 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
07‐02 2007‐Trends in colorectal cancer incidence rates by county‐level poverty in the US, 1995‐2004
1995‐2004 Yongping Hao 6 /26/2009
Terminated
07‐01 2007‐Multiple Imputation for Incomplete Cancer Registry Data.
Brent J. Shelton 3 /4 /2008
Terminated
06‐08 2006‐Racial/ethnic differences in national incidence trends of primary, invasive cervical cancer.
Jill Barnholtz‐Sloan‐no longer a memb 12/17/2009
Terminated
06‐07 2006‐Incidence patterns of primary extranodal Non‐Hodgkin lymphoma by anatomic site and histology among whites, blacks, and Asians and Pacific Islanders (API) in the U.S.
Xiaocheng Wu 10/27/2009
Terminated
06‐06 2006‐Epidemiology of Penile Carcinoma in the United States, 1995‐2003.
Marc T. Goodman 10/12/2007
Terminated
06‐05 2006‐Ecologic Method to Estimate Specific Latino Group Cancer Rates.
1995‐2003 Holly Howe 10/30/2008
Terminated
Friday, April 28, 2017 Page 15 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
06‐04 2006‐Incidence rates and trends for chronic myeloproliferative disorders and myelodysplastic syndromes.
1995‐2003 Matthew Hayat‐no longer a member/ 9 /17/2008
Terminated
06‐03 2006‐Testing Record Consolidation of the New Multiple Primary/Histology Rules.
na Holly Howe/Betsy Kohler 7 /17/2008
Terminated
06‐02 2006‐Analysis of AI/AN Data from NAACCR Data Submissions for the 2007 Annual Report to the Nation.
1995‐2004 Holly Howe 7 /20/2007
Terminated
06‐01 2006‐Quality and Correction of Time Trend Estimates in the Presence of Missing Data in CINA Deluxe.
1998‐2002 Passive Robert Greenlee 3 /3 /2010
Terminated
05‐15 2006‐Descriptive Epidemiology of Invasive Primary Cardiac Tumors.
1995‐2002 Passive Robert Greenlee 12/28/2010
Terminated
05‐14 2006‐General Assessment of Rare Cancers in CINA Deluxe 1995‐2002
1995‐2002 Passive Robert Greenlee 4 /20/2010
Terminated
Friday, April 28, 2017 Page 16 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
05‐12 2006‐Cancer Incidence Disparities in Applalachia and within Appalachian Sub‐regions.
1995‐2002 Active Bin Huang 11/5 /2007
Terminated
05‐11 2006‐Spatio‐temporal estimation of cancer incidence in all US states for 1995‐2002.
1995‐2003 Active Linda Pickle 2 /23/2007
Terminated
05‐11 2006‐Spatio‐temporal estimation of cancer incidence in all US states for 1995‐2002
1995‐2002 Active Linda Pickle 11/28/2005
Terminated
05‐10 2006‐Geography of second primary breast cancer.
1995‐2002 Passive Jeanette Jackson‐Thompson 1 /12/2007
Terminated
05‐09 2006‐Epidemiology of Head and Neck Cancer in the U.S.
1995‐2003 Colleen McLaughlin 11/3 /2008
Terminated
05‐08 2006‐Solar Radiation and Cancer Incidence and Mortality in North America.
1995‐2002 Active Frank Boscoe 11/13/2006
Terminated
Friday, April 28, 2017 Page 17 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
05‐07 ARN on the status of cancer 1975‐2003, with a special feature on cancer in US Hispanic/Latino populations, 1999‐2003
1995‐2003 Holly Howe 7 /14/2006
Terminated
05‐06 2005‐Comparative Epidemiologic Patterns of Leukemia among Men and Women in the United States.
1995‐2002 Active Marc T. Goodman 5 /17/2007
Terminated
05‐05 2005‐Carcinoma of the Biliary Tract in the United States.
1995‐2002 Passive Marc T. Goodman 5 /17/2007
Terminated
05‐04 2005‐Racial Disparities in Esophageal Cancer Incidence and Potential Influences of Data Integrity in Results.
1995‐2002 Emmanuel Nwokolo 4 /21/2006
Terminated
05‐03 2005‐Subsite and Histology of Esophageal and Gastric Cancers among Hispanics and non‐Hispanics in the U.S, 1995‐2002.
1995‐2002 Xiaocheng Wu 3 /20/2008
Terminated
05‐02 2005‐Geographic variations in breast cancer incidence in the United States. Note: updated data set.
1995‐2002 Active Carol Smigal, Ahmedin Jemal 3 /6 /2006
Terminated
Friday, April 28, 2017 Page 18 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
05‐01 2005‐Variation in Cancer Stage at Diagnosis by Area‐Level Poverty and Urban/Rural Gradient in CINA Deluxe 1995‐2001: A NAACCR 'Access to Care' Special Study.
1995‐2001 Robert Greenlee 4 /20/2010
Terminated
04‐12 2004‐Risk of Childhood Cancers Associated with Residence in Agriculturally Intense Areas of the U.S.
1995‐2001 Sue Carozza 4 /17/2008
Terminated
04‐11 2004‐Demographic characteristics of individuals diagnosed with head and neck cancers.
1995‐2001 Marsha Reichman 11/2 /2007
Terminated
04‐10 2004‐Distributions and incidence rates of subsite‐specific leukemia in Asians/Pacific Islanders and other racial populations in the U.S.
1995‐2001 Xiaocheng Wu 10/19/2006
Terminated
04‐09 2004‐Using NAACCR Data to Validate Cancer Prevalence at the State Level.
1995‐2001 Angela Mariotto 10/15/2010
Terminated
04‐08 2004‐Incidence of Cutaneous Melanoma in the US by Race, Age, and Anatomic Subsite, 1995‐2001.
1995‐2001 Lisa Roche‐retired/Xiaocheng Wu 8 /27/2007
Terminated
Friday, April 28, 2017 Page 19 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
04‐07 2004‐Assessment of development of name lists for Asian groups.
Holly Howe 7 /20/2007
Terminated
04‐06 2003‐Geographic variation in cancer incidence among Hispanic populations.
1995‐2000 Maria Schymura 5 /5 /2009
Terminated
04‐05 2004‐Recent time trends in the incidence of selected cancers among rural and urban US populations, 1995‐2001. Note: updated data set.
1995‐2001 Robert Greenlee 4 /9 /2010
Terminated
04‐04 2004‐Incidence of Chronic Lymphocytic Leukemia by Racial and Ethnic Group in the United States, 1995‐2000.
1995‐2000 Marc T. Goodman 3 /14/2005
Terminated
04‐03 2004‐Comparison of trends in infant neuroblastoma and other cancers in the US, 1995‐2001.
1995‐2001 Lisa Roche‐retired/Betsy Kohler 7 /19/2007
Terminated
04‐03 2004‐Comparison of trends in infant neuroblastoma and other cancers in the United States, 1995‐2000.
1995‐2000 Lisa Roche, Betsy Kohler 6 /23/2004
Terminated
Friday, April 28, 2017 Page 20 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
04‐02 2003‐Cancer Incidence among Hispanic children and Adolescents.
1995‐2000 Susan Carozza 4 /24/2008
Terminated
04‐02 2004‐Cancer Incidence Among Hispanic/Latino Children and Adolescents.
1995‐2000 Sue Carozza 6 /23/2004
Terminated
04‐01 2004‐Descriptive epidemiology of Paget disease of the breast, US, 1995‐2001. Note: updated data set.
1995‐2001 Joellyn Ellison 3 /7 /2007
Terminated
03‐16 2003‐Evaluation of Methods to Estimate and Compare Race/ethnicity specific Cancer Incidence Rates Using Combined Central Cancer Registry Data.
1992‐1997 Robert Greenlee 11/15/2004
Terminated
03‐14 2004‐Geographic Patterns of Prostate Cancer Mortality in the U.S. in Relation to Variations in the Stage and Grade at Diagnosis.
1995‐2000 Ahmedin Jemal 11/9 /2004
Terminated
03‐13 2004‐Developing new methodology for estimating the completeness of case ascertainment.
1995‐2000 Barnali Das, Linda Pickle 10/25/2005
Terminated
Friday, April 28, 2017 Page 21 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
03‐12 2004‐Trends in thyroid cancer histologic sub‐types in the United States.
1995‐2000 Karen Pawlish 9 /12/2008
Terminated
03‐11 2004‐Projecting estimates of cancer incidence for every US state both spatially and temporally.
1995‐2000 Linda Pickle‐retired/Barnali Das 9 /25/2007
Terminated
03‐10 2004‐Descriptive Epidemiology of Pancreatic Cancer in the United States, 1995‐2000.
1995‐2000 Catherine Correa, L. Joseph Su, Elizab 9 /14/2005
Terminated
03‐09 2004‐Obtaining further evidence of the reported decrease in distant stage disease for prostate cancer.
1995‐2000 Ben Hankey‐retired/Denise Lewis 9 /14/2010
Terminated
03‐08 2004‐The epidemiology of breast cancer among men in the United States, 1995‐2000.
1995‐2000 Marc T. Goodman 8 /29/2005
Terminated
03‐07 2004‐Subsite and morphology of esophageal and gastric cancers in the United States, 1995‐2000.
1995‐2000 Xiao‐cheng Wu, Vivien Chen, Bernard 8 /15/2006
Terminated
Friday, April 28, 2017 Page 22 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
03‐06 2003‐Subsite‐specific Colorectal Cancer Incidence Rates and Stage Distributions in Asian/Pacific Islanders, Whites, and Blacks in the US, 1995‐1999
1995‐1999 Xiaocheng Wu 9 /29/2004
Terminated
03‐05 2003‐2004 Hispanic Call for Data Monograph
1995‐2000 Holly Howe 7 /6 /2004
Terminated
03‐04 2003‐Incidence of Noncutaneous Melanomas in the United States.
1995‐2000 Colleen Mclaughlin 7 /23/2004
Terminated
03‐03 2003‐Quality assessment and use of CINA Deluxe Morphology Data.
1995‐1999 William Athas 7 /9 /2004
Terminated
03‐02 2003‐Mini‐Proposal: Urban‐Rural Incidence Gradient in Childhood Leukemia.
1995‐2000 Frank Groves 7 /6 /2005
Terminated
03‐01 2003‐Urban‐rural variation in the incidence of selected cancer sites, United States, 1995‐1999.
1995‐1999 Holly Howe 6 /1 /2005
Terminated
Friday, April 28, 2017 Page 23 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
2005‐Geographic variations in breast cancer incidence in the U.S.
1995‐2001 Active Carol Smigal, Ahmedin Jemal, Americ 3 /6 /2006
Terminated
2004‐Recent time trends in the incidence of selected cancers among rural and urban US populations, 1995‐2000.
1995‐2000 Robert Greenlee 4 /1 /2005
Terminated
2004‐Descriptive epidemiology of Paget disease of the breast, US, 1995‐2000. Project to add the use of the primary site variable by topography code in addtion to SEER groupings.
1995‐2000 Joellyn Ellision, MPH, NAACCR 3 /1 /2005
Terminated
2003‐Changing proportions and age‐specific incidence rates of epithelial vs. non‐epithelial cancers from adolescence to adulthood.
1995‐1999 Xiaocheng Wu
Terminated
2003‐Determining Probabilities of error from each step of indirect identification method for Hispanic persons using NHIA.
1995‐2000 Susan Carozza, PhD and CRWG
Terminated
2003‐Urban‐rural variations in Hispanic cancer incidence.
1995‐2000 Susan Carozza, PhD and CRWG
Terminated
Friday, April 28, 2017 Page 24 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
2004‐Incidence of Cutaneous Melanoma in Non‐White Population in the United States, 1995‐2000.
1995‐2000 Steven Roffers (Emory University), Xia
Terminated
2004‐February Consent Hispanic Data Set.
1995‐2000 Steven Roffers
Terminated
2002‐Geographic and Racial Variations in Female Breast Cancer Incidence Rates and Stage Distributions
1992‐1997 Mary Hutton
Terminated
2002 ‐ Assesment of melanoma incidence: Phase II data quality assessment.
1995‐1999 Irene Hall
Terminated
2002‐Breast Cancer Monograph: Focus on Race/Ethnic Variations
1994‐1998 Holly Howe and Rachel Jean‐Baptiste
Terminated
2004‐February consent including topography.
1995‐2000 Catherine Coreea, and Xiao Wu
Terminated
Friday, April 28, 2017 Page 25 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
2002 ‐ Geographic variation in stage at diagnosis of prostate cancer and its association with the mortality patterns in the U.S.
1995‐1999 Ahmedin Jamal
Terminated
2003‐Geographic variation in stage at diagnosis of prostate cancer and its association with the mortality patterns in the U.S.
1995‐1999 Admedin Jamal
Terminated
2001‐The DEPC members to use these data for special analyses and data evaluation projects.
2001
Terminated
2001‐For inclusion of registry‐specific desease rates for the 2001 Annual Report to the Nation, on the burden of cancer.
2001
Terminated
2001‐CINA+ Online if the data meets the standard established for high quality.
2001
Terminated
2001‐To produce and publish the mongraph, Cancer in North America.
1994‐1998
Terminated
Friday, April 28, 2017 Page 26 of 27
IRB # Study Data Set Consent Type Principal Investigator Last Review Date
2004‐In class project in order to describe the cancer burden for the United States for lung cancer. Students will be given access for two days (Jan. 28th and 29th) to study
1995‐2000
Terminated
2003‐In‐class exercise for the Cancer Surveillance Institute in January, 2003. No table output will be used to generate any report or paper.
1995‐1999
Terminated
Friday, April 28, 2017 Page 27 of 27
