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Strategies for Involving Consumers of HMIS Operation
September 13-14, 2005St. Louis, Missouri
Sponsored by the U.S. Department of Housing and Urban Development
Julia Tripp, UMass Boston
Carolyn Smith, The Technologist
Ray Francis, Church Army Branson
Joseph Mazza, Eva’s Village
Consumer Involvement in HMIS:How it Began & Continuing to Make it
Happen – The Methodology Tour
September 13-14, 2005St. Louis, Missouri
Sponsored by the U.S. Department of Housing and Urban Development
Julia Tripp, Constituent CoordinatorCenter for Social Policy, UMass Boston
John W. McCormack Graduate School of Policy Studies
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
3
The History of Consumer Involvement in HMIS
– Get on Board
Overview of Session:• What is consumer involvement?• How I got involved• How the concept developed• What are some of the challenges• Where it went • Who were some of the successes• Where its at now• Where it needs to go• Where you can get on board – tomorrow!• Next steps
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
4
What Is Consumer Involvement?
• Involvement of persons impacted by poverty, who may receive services within the CoC, participating in the generation of ideas and providing feedback to agencies and programs
• Education to fully participate
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
5
How I Got Involved
• 1997 – Invited to join a Privacy protections group
• 1998 – Invited to join the HMIS Steering• 1998 – Invited to join (NHSDUG) National
Homeless Services Data Users Group• I took a stand to defend our continued
inclusion• Sequence initiated a personal
transformation• 1999 – I was invited to join a national
homeless coalition
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
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…and Got Hooked
• 1999 – Initiated and managed a Consumer Advisory Committee
• 2000 – Participated in the early stages of the implementation process with Seattle, Washington’s, Safe Harbors Project
• 2001 – Hired as a consultant to develop a philosophy and a national model for consumer involvement in HMIS
• 2001 – 2005 - Delivered and refined work in over 30 trainings
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
7
How the Concept Developed
• Hired as a consultant to develop a philosophy and a national model for consumer involvement in HMIS
Swimming in the dark!
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
8
Challenges
• Engaged the staff in an open discussion to generate ideas that the whole staff could embrace
• Noted that there are many challenges to consumer participation
• However, including consumer voices is the right thing to do and it is what set CSP apart from other research efforts
• We wanted to get feedback from constituents on our reports
• One way was to have a panel of constituents to review and reflect on those reports
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
9
Where Consumer Involvement Evolved To
The First Consumer User Group
HMIS Implementation Guide
National Training
HUD Conference 2004
Incorporated into a play
Other communities initiating efforts
• Explanation of CSPTech project
• An overview of HMIS• Running a report to show how
we use data• Overview of software and how
it benefits us all• Privacy, confidentiality &
security• Role play• Added an evaluation design
component
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
10
Class of 2004
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
11
Where It’s At
• HUD expectations• Maine – consumer
education • Discussion guide &
video on consumer involvement
• PATH Audio Conference• UMass Boston website
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
12
Where It Needs To Go
• Ensuring continuation of CI at local level
• State, regional models (in development)
• National advocacy (advocacy tips for consumers)
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
13
How You Can Get on Board the Train:
• Your local CoC• Stewards of the data?• State Housing Authority• Other ideas….?
• Or…
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
14
Where You Can Get on Board Tomorrow:
• Art Stimulating Life: The Bringing America Home Project; Making public policy education a dramatic experience
• Putting action behind the act & making data sing
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
15
Next Steps….
• Consumers involved in HMIS implementation Walk Across America???• To raise awareness • To raise hope• To raise the roof!• You tell me…
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
16
For More Information on Consumer Involvement in HMIS:
More information on topics referred to in this presentation can be found at:
• http://www.mccormack.umb.edu/csp
• http://www.hud.gov/offices/cpd/homeless/
hmis/index.cfm
A Change Is Coming:A Portrait of Homelessness
Chicago
September 13-14, 2005St. Louis, Missouri
Sponsored by the U.S. Department of Housing and Urban Development
Carolyn L. SmithThe Technologist, Inc.
Chicago, Illinois
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
18
Challenges We Face
• Reduced funding from HUD• Constituency based representation Chicago
Continuum of care• Transition to Housing First model• Economic conditions (loss of employers)• Lack of affordable housing (gentrification)• 30,000 emancipated youth per year from foster
care system, 30,000 ex-offenders from Illinois prisons
• De-funding of community based homelessness providers
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
19
Reduced HUD Funding
• Homeless count from CDHS has remained at 13,000 for last several years
• Level count compresses the allowable dollars as the HUD budget reduces
• HUD funding is the primary contributor to the Chicago Continuum funding
• Point in time homeless count of 7,000 in 2005 with 1,700 counted as unsheltered
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
20
Constituency Based Representation
• The Chicago Continuum Board has been reduced from 60 to 28
• Consumers representation has increased from 8% to 25%
• Public and private sectors have 50% representation
• Special provider constituencies constitute 25% representation and include the black caucus, youth, domestic violence, ex-offenders, community developers, Hispanic caucus, Asian caucus, Polish caucus and others
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
21
Housing First Model
• All housing is converted to permanent with various support service models; All permanent housing are existing occupied beds
• Eliminates funding for emergency shelter, interim and transitional housing
• Support services are funded outside of HUD• Within two years 400 emergency shelter beds and several
hundred interim and transitional housing units have been eliminated
• Permanent housing is in the construction phase with completion in 2007
• Those hit hardest are youth, family and those homeless persons that are not permanently disabled
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
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Economic Factors
I. EmploymentA. Loss of manufacturing jobs
B. Loss of trade school educationC. Under educationD. College Costs
II. GentrificationA. Demolition of Public Housing (175,000 –25,000)B. Communities of Hyde Park, Bronzeville, Cabrini, Uptown,
Garfield, Humbolt, Little Village, etc. plus rising real estate taxes
C. Affordable housing units replaced at a rate of 15%
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
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Emancipated Youth From Foster Care
• Approximately 30,000 per year are emancipated• 80% are in Chicago and surrounding suburbs• 60% have graduated high school• 7% attend some college• 25% are employed at time of emancipation• 55% experience homelessness within 2 years
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
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Ex-Offenders and Homelessness
• 30,000 reported to be released to the Chicago area in 2005
• Lack of job training• Cannot benefit from CHA housing• Cannot benefit from CHAC voucher program• Incidence of HIV/AIDS infection and impact on
general population• Do not quality for many entitlement programs
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
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De-funding of Community Based Organizations
• Chicago Continuum ranking process has reduced the number of funded programs from 145 (2003-2004) to 96 (2005-2006)
• Small CBO’s are becoming sub-contractors of large agencies (results in a loss of personality of how programs work)
• Loss of CBO’s equated with loss of cultural sensitivity, dis-enfranching of consumers from community and decreasing visibility of homelessness
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
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Affordable Housing
• Gentrification forces long standing residents to leave the area due to enormous tax increases
• The CHAC voucher program is closed until possibly 2007
• Traditionally Black and Hispanic working and middle class neighborhoods bear the brunt of gentrification
• Increased burden on South and West Suburban communities
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
27
Practical Solutions
• Expanding the funding base of the Continuum through alternative public and private funding
• Partnering with educational and research facilities to disseminate aggregate HMIS data
• Use HMIS data to develop a conversion plan to transition to the Housing First model
• Increase the direct involvement of consumers on standing and ad-hoc committees
• Provide consumer trainings city-wide regarding issues pertinent to integration within society
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
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The Cuts
Recent cuts in emergency shelter, transitional and interim housing have caused the displacement of about 700 consumers into the streets. They do not qualify for specialized housing programs and are not eligible for permanent housing programs. This is the quiet crisis.
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
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The Scathing Reality
Long standing community housing providers found themselves losing anywhere from 30-100% of their funding, closing programs and forcing people back into the streets and other substandard living conditions.
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
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Consumer-Provider Partnerships
• Homelessness cannot be solved without the input of people it effects
• Evaporating public and private funding opportunities dictate the necessity of new operating paradigms
• Partnerships demonstrate human dignity and respect
• Partnership elicits trust, better program development, and pertinent outcomes
• We may all be potential consumers
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
31
It’s a Beginning…
Moving toward significant consumers involvement in not only HMIS but also the planning process of how homelessness is eradicated is not easy. But it is simple. We are all in this together and the success of all depends on each one
I have been in the process of putting myself out of business as an advocate; As providers I hope you endeavor to do the same
It takes education, opportunity and a sincere change in thinking; There is no us or them; In reality we are all human
The human condition puts us all at risk of being homeless if our society is not a compassionate and responsive one;
Consumer Involvement in Branson
September 13-14, 2005St. Louis, Missouri
Sponsored by the U.S. Department of Housing and Urban Development
Ray FrancisChurch Army Branson
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
33
Consumer Involvement in Branson, MO.
• Rural Community
• NIMBY Issues
• Plight of the Hidden Homeless
• Public Education regarding Homelessness
• The Role of HMIS in gathering data and developing
resources to house the homeless
Consumer Involvement in New Jersey
September 13-14, 2005St. Louis, Missouri
Sponsored by the U.S. Department of Housing and Urban Development
Joseph L. Mazza, HIMS CoordinatorEva’s Village
Paterson, New Jersey
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
35
Eva’s Village
Programs and Services• Eva’s Kitchen• Central Intake• Shelters for Men and Women• Shelter for Mothers and
Children• Primary Care Clinic• Residential Recovery Program• Intensive Outpatient Program• Permanent Housing for Men
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
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Where Hope Begins…
Our CreedWe believe in putting faith intoaction and that all those who arehurting and homeless need us asfriends and companions on theirjourney. The Lord commandedus to love one another andencouraged us to feed thehungry and shelter thehomeless. He said to us, “Whatyou do for the least of mybrethren, you do for me.” (Matt:25.46) In that spirit, we hope tofulfill this mandate by makingGod’s love more visible in theworld.
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
37
You Are Making a Difference!
“I stand before you today, aproduct of your success. Please know that you aremaking a difference. It mightbe one person at a time, oneday at a time – but I amliving proof.” Joey
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
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HMIS Is Making a Difference…
• Demonstrates impact• Documents significance of homelessness• Provides demographics• Identifies needs• Substantiates unmet needs
You have to have responsible people involved in the HMIS process.
Data has to be accurate to be useful.
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
39
Client Involvement
• Staff must have sensitivity for the client to be effective
• Staff must establish rapport• Establishing trust is essential• Respect the client
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
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Community Involvement
• CEAS• Homeless Continuum of Care• Grant Funding
We cannot afford for the poor, the homeless and the addicted to remain faceless, ignored and
overlooked.
September 13-14, 2005 St. Louis, MissouriSponsored by the U.S. Department of Housing and Urban Development
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Resources
“A Portrait of Prisoner Re-entry” Nancy G. LiVigne, Cynthia A. Mamalian with Jeremy Travis and Christy Visher. Urban Institute Justice Policy Center. 2003.
“Final Report Illinois Child and Family Services Review” United States Department of Health and Human Services. 2004.
“Midwest Evaluation of the Adult Functioning of Former Foster Youth: Conditions of Youth Preparing to Leave Foster Care in Illinois” Mark E. Courtney,Sheri Terao, Noel Bost. Chapin Hall Center for Children University of Chicago. 2004.
“Structural Change and Economic Growth: Sources of Output Change in Chicago During the 1990’s” Saurav Dev Bhatta. 2002.
City of Chicago Web Site.
Chicago Department of Human Services Web Site.
Safer Foundation Web Site.
Chicago Continuum of Care Website.
Chicago Tribune “Record numbers of ex-cons return to Illinois streets” June 19, 2005.