1 Spirituality and Alzheimer's Disease 2011

Spirituality and Dementia

This list is a reviewed collection of items prepared by the Alzheimer's Association Green-Field Library staff. Contact your local chapter or local library for availability of the items.

On this resource list: Alzheimer’s Association Publications

General

Articles, Journal Book

Web Site Care, Clinical

Articles, Journal

Books & Book Chapters

Journal Issues

Videos

Web Site

Care, Family

Articles, Journal

Books and Book Chapter

Videos

Web Sites

Care, Pastoral

Articles, Journal Books & Book Chapters

Brochure

Video

Web Sites

Diversity

Articles, Journal Book & Book Chapter

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Alzheimer’s Association Publications African American clergy guide. Order no. CM1014C

Chicago, IL: Alzheimer‟s Association National Office, 2006. Cost: Single copy free. Phone: (800) 272-3900 http://www.alz.org/national/documents/aa_brochure_clergy.pdf

General

Articles, Journal

Beuscher, L.; Beck, C. A literature review of spirituality in coping with early-stage Alzheimer's disease. Journal of Clinical Nursing. Mar 2008; vol. 17(5a), pp. 88-97. Green-Field Library does not own. Callaghan, D.M. The influence of growth on spiritual self-care agency in an older adult population. Journal of Gerontological Nursing. Sep 2006; vol. 32(9), pp. 43-51. Green-Field Library owns. Lindberg, D.A. Integrative review of research related to meditation, spirituality, and the elderly. Geriatric Nursing. Nov-Dec 2005; vol. 26(6), pp. 372-377. Green-Field Library owns. Molzahn, A.E. Spirituality in later life: effect on quality of life. Journal of Gerontological Nursing. Jan 2007; vol. 33(1), pp. 32-39. Green-Field Library owns. Urgesi, C.; Aglioti S.M.; Skrap, M.; et al. The spiritual brain: selective cortical lesions modulate human self-transcendence. Neuron. Feb 11, 2010; vol. 65(3), 309-319. http://www.sciencedirect.com/science/article/pii/S0896627310000528 Green-Field Library does not own.

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Book

Green, E. The Ozawkie book of the dead: Alzheimer's isn’t what you think it is. Los Angeles, CA: The Philosophical Research Society, 2001. ISBN 089314482. Dr. Green was the main caregiver of his wife for a number of years. During this time “he explored the realms of consciousness beyond Alzheimer's and death, and in the process discovered how we, too, can experience these mysterious and transformative realms.” Green-Field Library does not own. Jewell, A. Ageing, spirituality, and well-being. Philadelphia, PA: Jessica Kingsley Publishers, 2004. ISBN: 184310167X. Green-Field Library does not own.

Web Site

Center for spirituality and aging. Anaheim, CA. “Provides education and advocacy about spirituality and ethics as they are experienced in the aging process within both faith and long-term care communities.” http://www.spiritualityandaging.org

Care, Clinical

Articles, Journal

Callahan, S. Spiritual connections. Alzheimer’s Care Quarterly. Jan-Mar 2005; vol. 6(1), pp. 4-13. Green-Field Library owns.

Carlson, D.; Hellen, C.R. Undo the box – celebrate the gift: spirituality and activity. Alzheimer’s Care Quarterly. Spr 2000; vol. 1(2); pp. 56-62. Green-Field Library owns. Ewing, W.A. Land of forgetfulness: dementia care as spiritual formation. Journal of Gerontological Social Work. 2005; vol. 45(3), pp. 301-311. Green-Field Library owns.

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Garces-Foley, K. Hospice and the politics of spirituality. Omega (Westport). 2006; vol. 53(1-2), pp. 117-136. Green-Field Library does not own. Gaskamp, C.; Sutter, R.; Meraviglia, M.; et al. Evidence-based guideline: promoting spirituality in the older adult. Journal of Gerontological Nursing. Nov 2006; vol. 32(11), pp. 8-13. Green-Field Library owns. Gwyther, L.P. Spirituality and caring for older family members. Southern Medical Journal. Oct 1, 2006; vol. 99(10), pp. 1106-1107. Green-Field Library does not own. Hebert, R.S.; Dang, Q.; Schulz, R. Religious beliefs and practices are associated with better mental health in family caregivers of patients with dementia: findings from the REACH study. American Journal of Geriatric Psychiatry. Apr 2007; vol. 15(4), pp. 292-300. Green-Field Library owns. Hebert, R.S.; Weinstein, L.M.; Schulz, M.; et al. Religion, spirituality and the well-being of informal caregivers: a review, critique, and research prospectus. Aging & Mental Health. Sep 2006; vol. 10(5), pp. 497-520. Green-Field Library owns. Higgins, P. Bringing spiritual light into dementia care. Journal of Dementia Care. Mar-Apr 2005; vol. 13(2), pp. 10-11. Green-Field Library owns. Jolley, D.; Moreland, N. Dementia care: spiritual and faith perspectives. Nursing & Rehabilitation Care. Aug 2011; vol. 13(8), pp. 388-391. Green-Field Library does not own. Katsuno, T. Personal spirituality of persons with early-stage dementia: is it related to perceived quality of life? Dementia. Oct 2003; vol. 2(3), pp. 315-335. Green-Field Library owns. Kaufman, Y.; Anaki, D.; Binns, M.; et al. Cognitive decline in Alzheimer's disease: impact of spirituality, religiosity, and QOL. Neurology. May 1, 2007; vol. 68(18), pp. 1509-1514. Green-Field Library owns.

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Killick, J. Dementia, identity, and spirituality. Journal of Religious Gerontology. 2004; vol. 16(3-4), pp. 59-74. Green-Field Library does not own. Killick, J. Helping the flame to stay bright: celebrating the spiritual in dementia. Journal of Religion, Spirituality & Aging. 2006; vol. 18(2-3), pp. 73-78. Green-Field Library does not own. Koenig, T.L. Caregivers‟ use of spirituality in ethical decision-making. Journal of Gerontological Social Work. 2005; vol. 45(1-2), pp. 155-172. Green-Field Library owns. Lawrence, R.M. Aspects of spirituality in dementia care: when clinicians tune into silence. Dementia. Oct 2003; vol. 2(3), pp. 393-402. Green-Field Library owns. Lenshyn, J. Reaching the living echo: maintaining and promoting the spiritual in persons living with Alzheimer‟s disease. Alzheimer’s Care Quarterly. Jan-Mar 2005; vol. 6(1), pp. 20-28. Green-Field Library owns. Lloyd, M. Understanding spirituality: tuning in to the inner being. Journal of Dementia Care. Jul-Aug 2004; vol. 12(4), pp. 25-27. Green-Field Library owns. LoboPrabhu, S.; Molinari, V.; Arlinghaus, K.; et al. Spouses of patients with dementia: how do they stay together “till death do us part”? Journal of Gerontological Social Work. 2005, vol. 44(304), 161-174. Green-Field Library owns. Lowis, M.J.; Edwards, A.C.; Roe, C.A.; et al. The role of religion in mediating the transition to residential care. Journal of Aging Studies. Sep 2005; vol. 19(3), pp. 349-362. Green-Field Library does not own.

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MacKinlay, E.; McFadden, S.H. Ways of studying religion, spirituality, and aging: the social scientific approach. Journal of Religious Gerontology. 2004; vol. 16(3-4), pp. 75-90. “Describes the author‟s study of spiritual reminiscence in small groups for people with dementia to show one way in which several research methods may be used in combination to strengthen the research findings.” Green-Field Library does not own. Mooney, S.F. A ministry of memory: spiritual care for the older adult with dementia. Care Management Journals. Fall 2004; vol. 5(3), pp. 183-187. Green-Field Library owns. Mooney, S.F. When memory fails: helping dementia patients remember God. Journal of Christian Nursing. Win 2006; vol. 23(1), pp. 6-14; quiz 15. Green-Field Library does not own. Nelson-Becker, H.; Nakashima, M.C.; Edward, R. Spiritual assessment in aging: a framework for clinicians. Journal of Gerontological Social Work. 2007, vol. 48(3-4), pp. 331-334. Green-Field Library owns. Pesut, B.; Thorne, S. From private to public: negotiating professional and personal identities in spiritual care. Journal of Advanced Nursing. May 2007; vol. 58(4), pp. 396-403. Green-Field Library does not own. Power, J. Religious and spiritual care. Nursing Older People. Aug 2006; vol. 18(7); pp. 24-27. Green-Field Library does not own. Snyder, L. Satisfaction and challenges in spiritual faith and practice for persons with dementia. Dementia. Oct 2003; vol. 2(3), pp. 299-313. Green-Field Library owns. Spurlock, W.R. Spiritual well-being and caregiver burden in Alzheimer's caregivers. Geriatric Nursing. May-Jun 2005; vol. 26(3), pp. 154-161. Green-Field Library owns.

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Stolley, J.M.; Buckwalter, K.C.; Koenig, H.G. Prayer and religious coping for caregivers of persons with Alzheimer‟s disease and related disorders. American Journal of Alzheimer’s Disease. May-Jun 1999; vol. 14(3), pp. 181-191. Green-Field Library owns. Thompkins, C.; Sorrell, J.M. Older adults with Alzheimer's disease in a faith community. Journal of Psychosocial Nursing and Mental Health Services. Jan 2008; vol. 46(1), pp. 22-25. Focus groups with clergy, caregivers, and persons in early stage were asked to describe their experiences of spiritual connections related to Alzheimer's disease. Green-Field Library does not own. Trevitt, C.; MacKinlay, E. “I am just an ordinary person…”: spiritual reminiscence in older people with memory loss. Journal of Religion, Spirituality and Aging. 2006; vol. 18(2-3), pp. 79-91. Green-Field Library does not own. Trevitt, C.; MacKinlay, E. “Just because I can‟t remember…”: religiousness in older people with dementia. Journal of Religious Gerontology. 2004; vol. 16(3-4), pp. 109-121. Green-Field Library does not own. Vance, D.E. Procedural and emotional religious activity therapy: connecting cognition and affective aspects of Alzheimer's disease. Activities, Adaptation, and Aging. 2004; vol. 29(1), pp. 27-45. Green-Field Library owns. Vance, D.E. Spiritual activities for adults with Alzheimer's disease: the cognitive components of dementia and religion. Journal of Religion, Spirituality & Aging. 2005; vol. 17(1-2), pp. 109-130. [Simultaneously published IN: Brennan, M.; Heiser, D. Spiritual assessment and intervention with older adults: current directions and applications, pp. 109-130. New York, NY: Routledge, 2005. ISBN: 078902747X. Green-Field Library does not own. Wilks, S.E.; Vonk, M.E. Private prayer among Alzheimer's caregivers: mediating burden and resiliency. Journal of Gerontological Social Work. 2008; vol. 50(3-4), pp. 113-131. Green-Field Library owns.

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Books & Book Chapters

Fortinash, K.M.; Holoday-Worret, P.A. Spirituality as a dimension of the person. IN: Psychiatric nursing care plans, pp. 252-254. St. Louis, MO: Mosby, 2003. ISBN: 0323014828. Green-Field Library does not own. Grollman, E.A. The Alzheimer's patient. IN: Gilbert, R.B. Health care & spirituality: listening, assessing, caring, 203-210. Amityville, NY: Baywood Publishing Co., 2002. ISBN: 0895032503. Green-Field Library Call No.: BL 625 G465 2002. Grollman, E.A. Spirituality and Alzheimer's disease. IN: Living with grief: Alzheimer's disease, pp. 213-223. Washington, DC: Hospice Foundation of America, 2004. ISBN: 1893349055. Green-Field Library Call No.: WM 220 L785 2004 MacKinlay, E. (ed.). Aging, spirituality and palliative care. Florence, KY: Routledge, 2006. ISBN: 0789033410. Green-Field Library does not own. MacKinley, E. (ed.). Spirituality of later life: on humor and despair. Binghamton, NY: Hawthorne Pastoral Press, 2004. ISBN: 0789027313. Contains an essay describing a pastoral care program for older adults with little or no ability to speak. Green-Field Library Call No.: BL 625 S759 2004 Moody, H.R. Religion, spirituality, and aging: a social work perspective. Binghamton, NY: Haworth Social Work Practice Press, 2005. ISBN: 0789024985. Green-Field Library Call No.: BL 625 M817 2005 Shamy, E. Guide to the spiritual dimension of care for people with Alzheimer's disease and related dementias: more than body, brain, and breath. London, UK: Jessica Kingsley Publishers, 2003. ISBN: 1843101297. Green-Field Library Call No.: BL 625.9 S53 2003.

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Stolley, J.M.; Cholan, J. Professional sensitivity to religion-spirituality among male caregivers. IN: Kramer, B.J.; Thompson, E.H. Men as caregivers: theory, research, and service implications, pp 317-336. New York, NY: Springer Publishing, 2002. ISBN: 0826114725. Green-Field Library Call No.: WY 200 M534 2002 Thompson-O‟Maille, T.; Kasayka, R.E. Touching the spirit at the end of life. Alzheimer's Care Quarterly. Jan 2005; vol. 6(1), pp. 62-70. Green-Field Library owns.

Journal Issues

Spirituality and dementia. Dementia: The International Journal of Social Research and Practice. Oct 2003; vol. 2(3), pp. 1-448. This special journal issue explores the topic of dementia, religion, and spirituality from the perspectives of the patient, family caregiver, and clinician. Green-Field Library owns. Spirituality and nursing. Journal of Clinical Nursing. Jul 2006; vol. 15(7), pp. 801-930. This special issue examines spirituality as it relates to the field of nursing. Green-Field Library does not own.

Videos

Spirituality and caregiving. Janesville, WI: Alzheimer's Support Center, 2003. 1 videocassette (60 min.) The video is part of the Alzheimer's Support Center educational video series on caregiving. Spirituality and Caregiving is video no. 1. Other titles are Potpourri of activities -- Overview of county programs -- Adapting the home to make it safer -- Medications and side effects. Green-Field Library does not own.

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Understanding the effect of dementia on marital relationships and the family: clinical and spiritual perspectives, no.14. Tindell, C. IN: Rosowsky, E.; Seicol, S. To be or not to be: the role of spirituality. Boston, MA: Boston Alzheimer's Center, 2001. 1 videocassette (? min.) This video is no. 14 of a fourteen-part program on Alzheimer‟s disease taped on Oct 18-19, 2001 during the Boston Alzheimer‟s Symposium. Green-Field Library does not own.

Web Site

Alternative solutions in long term care – spirituality. Sparta, NJ: Alternative Solutions. A comprehensive collection of spirituality links to organizations providing resources and services for health care professionals and care givers, recreation therapists, activity directors, social workers, and creative arts specialists. http://www.activitytherapy.com/spirit.htm

Care, Family

Articles, Journal

Batz, J. How do we know what they know? – decision to withhold communion from Alzheimer's patients questioned. National Catholic Reporter (online). Jan 31, 1997. http://natcath.org/NCR_Online/archives2/1997a/013197/013197f.htm Green-Field Library does not own. Colbert, S. Mom's last lessons: living with Alzheimer's. Journal of Christian Nursing. Win 2003; vol. 20(1), pp. 6-7. Green-Field Library does not own. LeBlanc, A.J.; Driscoll, A.K.; Pearlin, L.I. Religiosity and the expansion of caregiver stress. Aging & Mental Health. Sep 2004; vol. 8(5), pp. 410-421. Green-Field Library owns.

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Lefevere, P. Caregivers find capacity for spirituality lingers: Alzheimer's, dementia patients respond to songs, prayers, religious symbols. National Catholic Reporter. Dec 17, 2004; vol. 41(8), p. 7a. http://findarticles.com/p/articles/mi_m1141/is_8_41/ai_n8640940 Green-Field Library does not own. LoboPrabhu, S.; Molinari, V.; Arlinghaus, K.; et al. Spouses of patients with dementia: how do they stay together „till death do us part”? Journal of Gerontological Social Work. 2005; vol. 44(3-4), pp. 161-174. Green-Field Library owns. Paun, O. Female Alzheimer's disease patient caregivers share their strength. Holistic Nursing Practice. Jan-Feb 2004; vol. 18(1), pp. 11-7. Green-Field Library does not own. Shah, A.A.; Snow, A.L.; Kunik, M.E. Spiritual and religious coping in caregivers of patients with Alzheimer's disease. Clinical Gerontologist. 2001; vol. 24(3-4), pp. 127-136. Green-Field Library owns. Stuckey, J.C. Blessed assurance: the role of religion and spirituality in Alzheimer's disease caregiving and other significant life events. Journal of Aging Studies. Mar 2001; vol. 15(1), pp. 69-84. Green-Field Library does not own.

Books and Book Chapter

Bock, C.N. Finding joy in adversity: the Alzheimer's disease challenge. Victoria, BC: Trafford Publishing, 2006. ISBN: 1412066298. Green-Field Library Call No.: WM 220 B665 2006 Burchett, H.E. Last light: staying true through the darkness of Alzheimer's. Colorado Springs, CO: NavPress Publishing Group, 2002. ISBN: 1576832988. Green-Field Library Call No.: WM 220 B947 2002.

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David, J.A. Set me adrift in the sea of faith: the faith renewing story of an Alzheimer patient’s daughter. Mustang, OK: Tate Publishing & Enterprises, 2007. ISBN: 1598869392. Green-Field Library Call No.: WM 220.75 D249 2007 Ewing, W. A. Tears in God's bottle: reflections on Alzheimer's caregiving. Tucson, AZ: Whitestone Circle Press, 1999. ISBN: 0966754700. Green-Field Library Call No.: BL 625.9 E95 1999 Forrest, D.A.; Richmond, C. Symphony of spirits: encounters with the spiritual dimensions of Alzheimer's. New York, NY: St. Martin's Press, 2000. ISBN: 0312241011. Green-Field Library Call No.: BL 625.9 F728 2000 Hall, E.T. Caring for a loved one with Alzheimer's disease: Christian perspective. New York, NY: Haworth Pastoral Press, 2000. ISBN: 0789008726. Green-Field Library Call No.: BL 625.9 H175 2000 Joltin, A.; Noble, B.H. Prayer activity. IN: A different visit: activities for caregivers and their loved ones with memory impairments, pp. 57-58. Beachwood, OH: Myers Research Institute, Menorah Park Center for Senior Living, 2005.

Green-Field Library Call No.: WM 450 J75 2005 McLeod, B.W. And thou shalt honor: the caregiver’s companion. New York, NY: St. Martin‟s Press, 2002. ISBN: 1579545580. Green-Field Library Call No.: HV 1461 A535 2002 McLeod, B.W. Care giving: the spiritual journey of love, loss, and renewal. New York, NY: J. Wiley & Sons, 2000. ISBN: 0471392170 Green-Field Library Call No.: HV 1461 M478 1999. Murphey, C.B. My parents, my children: spiritual help for caregivers. Louisville, KY: Westminster John Know Press, 2000. ISBN: 0664222463. Green-Field Library Call No.: BL 625.9 M87 2000

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Pearce, N. Inside Alzheimer's disease: how to hear and honor connections with a person who has dementia. Nashbille, TN: Forrason Press, 2007. ISBN: 0978829905. Green-Field Library Call No.: WM 220 P359 2007 Pray with me still: rosary meditations and spiritual support for persons with Alzheimer's, their caregivers, and loved ones. Notre Dame, IN: Ave Maria Press, 2006. ISBN: 1594710775 Green-Field Library Call No.: BV 4910.6 P73 2006 Rihner, B. Angel hike: an answer to prayer about Alzheimer's disease. (a novel) Mustang, OK: Tate Publishing & Enterprises, 2007. ISBN: 1602472874. Green-Field Library Call No.: PS 3573 R572 2007 Roche, L. Coping with caring: daily reflections for Alzheimer caregivers. Forest Knolls, CA: Elder Books, 1996. ISBN: 0943873290. Green-Field Library Call No.: BL 625.9 R673 1996 Samples, P. Comfort and be comforted: reflections for caregivers. Chicago, IL: ACTA, 2001. ISBN: 087946223X. Green-Field Library Call No.: BL 625.9 S36c 2001 Simpsom, R. Through the wilderness of Alzheimer's disease: a guide in two voices. Minneapolis, MN: Augsburg Fortress Press, 1999. ISBN: 0806638915 Green-Field Library Call No.: WM 220.5 S613 1999 Strecker, T.R. Alzheimer's: making sense of suffering. Lafayette, LA: Vital Issues Press, 1997. ISBN: 1563841339. Green-Field Library Call No.: BL 625.9 S914 1997

Videos

A vow to cherish. Minneapolis, MN: World Wide Pictures, Inc., 1999. 1 videocassette or DVD (82 min.) Based on the book by Deborah Raney, this made-for-television program explores the struggles between faith and marital commitment through a couple affected by Alzheimer's disease. Green-Field Library Call No.: BL 625.9 VC no.606 1999

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Spirituality – shared hope in the world of dementia. Lincoln, NE: Alzheimer's Association Lincoln/Greater Nebraska Chapter, 2001. 1 videocassette (175 min.) Green-Field Library Call No.: BV 4435 VC no.970 2001 You’re not alone: coping with the death of a spouse. Sherborn, MA: Aquarius Healthcare Videos, 1996. 1 videocassette (38 min.) Green-Field Library Call No.: BF 575 VC no 888 1996

Web Sites

Alzheimer's and spirituality. Grand Rapids, MI: Calvin College, 2003. A professor and his students interview families of persons with Alzheimer's to study the relationship between dementia and spirituality. Notable are the findings about receiving communion and the regression in age to a child-like faith. http://www.calvin.edu/news/2002-03/alzheimers.htm God and Alzheimer's: a neurological reflection on religious experience, self, and soul. Post, S.G. Park Ridge, IL: Park Ridge Center for Health, Faith, and Ethics, 2003. An online article on the relationship between personhood, self-identity, and God in persons with Alzheimer's disease. http://www.parkridgecenter.org/Page482.html Spiritual caregiving. Gaining release: healing hands and labyrinths. Guarneri, M.; King, R. Southport, CT: Caregiver‟s Home Companion, 2007. http://www.caregivershome.com/Spiritual/spiritual.cfm Spiritual traditions and aging. Iris, M. Park Ridge, IL: Park Ridge Center for Health, Faith, and Ethics, 2003. Seven issues emerge from a study on how older people experience the religious and spiritual aspects of life. http://www.parkridgecenter.org/Page109.html

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Alzheimer's disease: spirituality can be comforting Rochester, MN: Mayo Clinic, 2007. A Web page highlighting the significance of rituals, caring for the caregiver, and the forms of spirituality. http://www.riversideonline.com/health_reference/Alzheimers/AZ00024.cfm

Care, Pastoral Articles, Journal

Bonifazi, W.L. Dementia, religion and spirituality: an interview with Stephen Sapp. Advice & Advances. Win 2002/3; vol. 20. Available online. http://www.agelessdesign.com/Library/InfoManage/Zoom.asp?InfoID=324&RedirectPath=Add&FolderID=108&SessionID={BBF07E36-582B-4430-A048-4833CB0E50BD}&InfoGroup=Main&InfoType=Article Green-Field Library owns.

Elliot, H. Religion, spirituality and dementia: pastoring to sufferers of Alzheimer's disease and other associated forms of dementia. Disability and Rehabilitation. Oct 1997; vol. 19(10), pp. 435-441. Green-Field Library does not own. Everett, D. Forget me not: the spiritual care of people with Alzheimer's disease. Journal of Health Care Chaplaincy. 1999; vol. 8(1-2), pp. 77-88. Green-Field Library does not own. Farmer, Z.L. All powerful light: reflections on communion and rebirth in the midst of dementia. Journal of Pastoral Care & Counseling. Win 2007; vol. 61(4), pp. 383-384. Green-Field Library does not own. Hide, K. Symbol ritual and dementia. Journal of Religious Gerontology. Apr 15, 2003; vol. 13(3-4), pp. 77-90. Green-Field Library does not own. Johnson, G.E.; Johnson, R.H. Implicit and explicit memory: implications for the pastoral care of persons with dementia. Journal of Religion, Spirituality, and Aging. 2007; vol. 19(3), pp. 43-53. Green-Field Library does not own.

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Killick, J. Helping the flame to stay bright: celebrating the spiritual in dementia. Journal of Religion, Spirituality and Aging. 2006; vol. 18(2-3), pp. 73-78. [Simultaneously published IN: MacKinlay, E.(ed.). Aging, spirituality and palliative care, pp. 73-79. Florence, KY: Routledge, 2006. ISBN: 0789033410.] Green-Field Library does not own. Klapp, D. A practical theological model for worship with Alzheimer‟s patients: using the validation technique. Journal of Religious Gerontology. Feb 2004; vol. 15(1-2), pp. 153-170. [Simultaneously published IN: Watkins, D.R. Practical theology for aging, pp. 153-170. New York, NY: Haworth Pastoral Press, 2003. ISBN: 0789022265.] Green-Field Library does not own. Koepke, D.R. Valuing the spirit in clients with dementia. Journal on Active Aging. Nov-Dec 2005, pp. 72-74. Available online. http://www.spiritualityandaging.org/pdfs/ValuingtheSpirit.pdf Green-Field Library does not own. Kristjanson, L. Palliative approach to spirituality in residential aged care. Journal of Religion, Spirituality and Aging. Jan 1, 2006; vol. 18(4), pp. 189-205. Green-Field Library does not own. Kunz, R. You have not forgotten us: towards a disability-accessible church and society [dementia specific article]. Journal of Religion, Disability & Health. Jan-Mar 2011; vol. 15(1), pp. 20-33. Green-Field Library does not own. MacKinlay, E. Mental health and spirituality in later life: pastoral approaches. Journal of Religious Gerontology. 2002; vol. 13(3-4), pp. 129-147. Green-Field Library does not own. Post, S.G. Alzheimer's & grace. First Things. Apr 2004; vol. 142, pp. 12-14. http://www.firstthings.com/article/2007/01/alzheimerrsquos-amp-grace--43# Green-Field Library does not own.

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Post, S.G.; Whitehouse, P.J. Spirituality, religion, and Alzheimer's disease. Journal of Health Care Chaplaincy. 1999; vol. 8(1-2), pp. 45-57. Green-Field Library does not own. Ryan. E.B.; Martin, L.S.; Beaman, A. Communication strategies to promote spiritual well-being among people with dementia. Journal of Pastoral Care & Counseling. Spr-Sum 2005; 59(1-2), pp. 43-55. Green-Field Library does not own. Sanborne, E.L. Praying with those who might forget: pastoral considerations with memory impairment. Journal of Pastoral Care and Counseling. Fall 2008; vol. 62(3), pp. 207-217. http://www.brokenbrain.org Green-Field Library does not own. Sapp, S. Living with Alzheimer‟s: body, soul and the remembering community. The Christian Century. Jan 21, 1998; vol. 115(2), pp. 54-60. Green-Field Library does not own. Sapp, S. To see things as God sees them: theological reflections on pastoral care to persons with dementia. Journal of Health Care Chaplaincy. 1999; vol. 8(1-2), pp. 25-43. Green-Field Library does not own. Stolley, J.M.; Koenig, H.; Buckwalter, K.C. Pastoral care for the person with dementia. Journal of Health Care Chaplaincy. 1999; vol. 8(1-2), pp. 7-23. Green-Field Library does not own. Theil, M.M. Geriatric-focused CPE as a tool in seminary training. Journal of Religion, Spirituality and Aging. 2011; vol.23 (1/2), pp. 128-138. Green-Field Library does not own Wilks, D.E.; Vonk, M.E. Private prayer among Alzheimer's disease caregivers: mediating burden and resiliency. Journal of Gerontological Social Work. 2008; vol. 50(3-4), pp. 113-131. Green-Field Library owns.

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Books & Book Chapters

Alzheimer's disease and related disorders. IN: Koenig, H.G.; Weaver, A.J. Counseling troubled older adults: a handbook for pastors and religious caregivers, pp. 107-144. Nashville, TN: Abingdon Press, 1997. ISBN: 0687017319. Green-Field Library Call No.: BF 625 K78 1997 Barton, J. Vital connections in long-term care: spiritual resources for staff and residents. Baltimore, MD: Health Professions Press, 2003. ISBN: 1878812793. Green-Field Library Call No.: BV 4335 B32 2003 Campbell, J. A chaplain's pastoral care activity book for persons with severe communication disorders. Radium Springs, NM: Geriatric Resources, Inc., 1998. Green-Field Library Call No.: BV 4580 C464 1998 DeGidio, S. Prayer services for the elderly. Mystic, CT: Twenty-Third Publications, 1996. ISBN: 0896226859. Green-Field Library Call No.: BV 169 D317 1996 Gwyther, L. You are one of us: successful clergy/church connections to Alzheimer's families. Durham, NC: Duke University Medical Center, 1995. Green-Field Library Call No.: WM 220 G995y 1995 Hudson, R. Disabled or enabled: ethical and theological issues for dementia care. IN: MacKinlay, E. Ageing, disability and spirituality: addressing the challenge of disability in later life, pp 81–93. New York, NY: Jessica Kingsley, 2008. ISBN: 1843105845 Green-Field Library Call No.: BL 625 M158 2008 Bouchard, E.; Schindel-Martin, L.; Beaman, A. Communication in spiritual care among people with dementia. IN: Meier, A; O‟Connor, T.; VanKatwyk, P.L. Spirituality and health: multidisciplinary explorations, pp. 105-121. Waterloo, ON: Wilfred Laurier University Press, 2005. ISBN: 0889204772. Green-Field Library Call No.: BV 625 M511 2005.

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McFadden, S.H.; Brennan, M.; Patrick, J.H. (eds.). New directions in the study of late life religiousness and spirituality. Binghamton, NY: Haworth Pastoral Press, 2003. ISBN: 0789020386 Green-Field Library does not own. Manson, D. Book of worship: hymns, liturgies, psalms. Dubuque, IA: Luther Manor, 1993. Green-Field Library Call No.: BV 4580 L37 1993 Manson, D. Large print book of worship II: hymns, liturgies, psalms, bible stories. Dubuque, IA: Luther Manor, 1997. Green-Field Library Call No.: BV 4580 L322 1997 McKim, D. God never forgets: faith, hope, and Alzheimer's disease. Louisville, KY: Westminster John Knox Press, 1997. ISBN: 0664257046. Green-Field Library Call No.: BL 625.9 M216 1997 Otwell, P. Guide to ministering to Alzheimer's patients and their families. Florence, KY: Routledge, 2008. ISBN: 0789029030. Green-Field Library Call No.: BV 4335 O92g 2008 Roberts, J.D. Caring for those with Alzheimer’s: a pastoral approach. Staten Island, NY: Alba House, 1991. ISBN: 081890593X. Green-Field Library Call No.: B 4910.9 R63 1991 Robinson, S. Spirituality, ethics and care. New York, NY: Jessica Kingsley Publishers, 2007. ISBN: 1843104989. Green-Field Library Call No.: BL 625 R664 2007 Shamy, E. Guide to the spiritual dimension of care for people with Alzheimer's disease and related dementia: more than body, brain, and breath. New York, NY: Jessica Kingsley Publishers, 2003. ISBN: 1843101291. Green-Field Library Call No.: BL 625.9 S53 2003

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VandeCreek, L. Spiritual care for persons with dementia: fundamentals for pastoral practice. New York, NY: Haworth Pastoral Press, 1999. ISBN: 0789006901. Green-Field Library Call No.: BV 4435.5 S65 1999

Brochure

Supporting caregiving families: a guide for congregations.

Kensington, MD: National Family Caregiver‟s Association. Order at: https://www.thefamilycaregiver.org/nfca_store/nfca_publications.cfm?&CFID=3134567&CFTOKEN=76865117

Video Pastoral care for the Alzheimer victim and family caregiver. Tuscaloosa, AL: University of Alabama, Center for Public Television, 1997. 2 videocassettes (52 min.) Based on the premise that Alzheimer's devastates the mind but not the soul, this program is a guide for ministers and members of church congregations who advise and care for people with Alzheimer's and their caregivers. Green-Field Library Call No.: BV 4335 VC no.751 1-2

Web Sites

Alzheimer's and spirituality. Grand Rapids, MI: Calvin College, 2003. A professor and his students study changes in the spiritual experience of persons with dementia, including the opportunity to take communion. http://www.calvin.edu/news/2002-03/alzheimers.htm Education links on faith & health - Duke Center for Spirituality Theology and Health. Durham, NC: Duke University. http://www.dukespiritualityandhealth.org/education/other-links.html 49 ways to provide spiritual care when there is no chaplain. Koepke, D. Anaheim, CA: Center for Spirituality and Aging, 2002. http://www.spiritualityandaging.org/pdfs/49_ways_to_provide.pdf

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Healthcare professional: licensed professional pastors. Tuscaloosa, AL: Alzbrain.org, 2008. This web page contains a handout on pastoral care and dementia and Just the Facts for Pastors. http://www.alzbrain.org/health_care_professional.cgi?pg=lp_pastor Home visitation made easier. Koepke, D. Anaheim, CA: Center for Spirituality and Aging, (?). http://www.spiritualityandaging.org/pdfs/Home-Visits-Made-Easier.pdf Outreach to faith communities kit. Kensington, MD: National Family Caregiver‟s Association, [?]. Three downloadable faith services (Interfaith, Lutheran, and Catholic) to use for worship with caregivers. https://www.thefamilycaregiver.org/national_family_caregiver_month/guide.cfm Providing a pastoral, caring ministry to people suffering from Alzheimer’s disease. Hager, J.W. Hazelton, PA: Lutheran Services Northeast, Hazelton, 1999. Presents a theological basis for the spiritual care of persons with Alzheimer‟s, and practical advice on conducting home visits and worship services by stages of the disease. http://archive.elca.org/lutheranpartners/archives/provid.html Reaching out to the spiritual nature of persons with dementia. Waco, TX: Department of Gerontology, Baylor University, 2008. A paper presented at the 2008 annual meeting of National Council on Aging and The American Society on Aging. Includes recommended order of worship, scripture and hymns for Protestant congregations, and a link to a worship bulletin provided for an interfaith service for persons with Alzheimer's disease and their families. http://www.baylor.edu/content/services/document.php/60623.pdf

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Diversity Articles, Journal

Ark, P.D.; Hull, P.C.; Husaini, B.A.; et al. Religiosity, religious coping styles, and health service use: racial differences among elderly women. Journal of Gerontological Nursing. Aug 2006; vol. 32(8), pp. 20-29. Quiz 30-31. Green-Field Library owns. Farran, C.J.; Paun, O.; Elliott, M.H. Spirituality in multicultural caregivers of persons with dementia. Dementia. Oct 2003; vol. 2(3), pp. 353-377. Green-Field Library owns. Hegde, R.; Bell, D.; Cole, P. The Jehovah‟s Witness and dementia: who or what defines „best interests.‟? Anaesthesia. Aug 2006; vol. 61(8), pp. 802-806. Green-Field Library does not own. Jotkowitz, A.B,; Clarfield, A.M.; Glick, S. The care of patients with dementia: a modern Jewish ethical perspective. Journal of the American Geriatrics Society. May 2005; 53(5), pp. 881-884. Green-Field Library owns. Kirshblum, A. Spirituality programming for people with dementia. Journal of Jewish Aging. Spr 2007; vol. 1(1), pp. 37-43. Green-Field Library does not own. Kunin, J. Withholding artificial feeding from the severely demented: merciful or immoral? Contrasts between secular and Jewish perspectives. Journal of Medical Ethics. Aug 2003; vol. 29(4), pp. 208-212. Green-Field Library does not own. Mausbach, B.T.; Coon, D.W.; Cardenas, V.; et al. Religious coping among Caucasian and Latina dementia caregivers. Journal of Mental Health and Aging. Sum 2003; vol. 9(2), pp. 97-110. Green-Field Library does not own. Morano, C.L.; King, D. Religiosity as a mediator of caregiver well-being: does ethnicity make a difference? Journal of Gerontological Social Work. 2005; vol. 45(1-2), pp. 69-84. Green-Field Library owns.

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Nightingale, M.C. Religion, spirituality, and ethnicity: what it means for caregivers of persons with Alzheimer's disease and related disorders. Dementia. Oct 2003; vol. 2(3), pp. 379-391. Green-Field Library owns. Morano, C.L.; King, D. Religiosity as a mediator of caregiver well-being: does ethnicity make a difference? Journal of Gerontological Social Work. 2005; vol. 45(1-2), pp. 69-84. Green-Field Library owns. Stuckey, J.C. Faith, aging, and dementia: experiences of Christian, Jewish, and non-religious spousal caregivers and older adults. Dementia. Oct 2003; vol. 2(3), pp. 337-352. Green-Field Library owns.

Book and Book Chapter Carol, J.; Farran, K.; Lowe, G.; et al. Finding meaning in caregivers of persons with Alzheimer's disease: African American and white caregivers' perspectives. IN: Exploring existential meaning: optimizing human development across the life span. Thousand Oaks, CA: Sage Publications, 2000. ISBN: 0761909931. Green-Field Library Call No.: BV 4335 E96 2000 MacKinlay, E.; Ellor, J.W.; Pickard, S.K. Aging, spirituality, and pastoral care: a multi-national perspective. Binghamton, NY: Haworth Pastoral Press, 2001. ISBN: 0789016680. Green-Field Library Call No.: BV 4335 M158 2001

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Spirituality and Dementia

A selected list of references

Compiled by Mary Ann Urbashich, M.L.S.

Alzheimer’s Association Green-Field Library and Resource Center Alzheimer’s Association National Office Chicago, IL 60601

Reviewed by Elizabeth Harwood Cochran, M.S, Ph.D., Th.D. Communications Arts Albuquerque, NM 87114

Updated January 2011