Side Event at the 43 rd Session of the UNSC RAVirola/ 01 March 2012 Republic of the Philippines NATIONAL STATISTICAL COORDINATION BOARD 1 Mainstreaming

Side Event at the 43rd Session of the UNSC RAVirola/ 01 March 2012

Republic of the PhilippinesNATIONAL STATISTICAL COORDINATION

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Mainstreaming Disability Statistics in the Philippine Statistical System:

Challenges and Opportunities

Presented by

Romulo A. Virola

Secretary GeneralNational Statistical Coordination Board, Philippines

Side Event on Disability Data and Statistics for Inclusive Development: Next Steps for

Action at the National, Regional, and Global LevelsOrganized by the Division for Social Policy and Development

43rd Session of the UN Statistical Commission 1:30 p.m.-2:30 p.m., 01 March 2012



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Discussion Points Requested

1. The experience of the Philippines – how disability data have been used for national policy-making

2. What is the biggest challenge in your experience in mainstreaming the collection and analysis of disability data and statistics (creating demand for disability statistics and building national capacity)

3. How can international cooperation help to

address this challenge?



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Outline of Presentation

I. Efforts of the Philippines Statistical System (PSS) on the Compilation of Disability Statistics

II. Challenges and Opportunities on the Generation of Disability Statistics

III. Way Forward



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I. Efforts of the Philippine Statistical System (PSS) on the Compilation of Disability Statistics

I. Efforts of the PSS on the Compilation of Disability Statistics



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A. Promotion of Disability Concerns in the Philippines:

•Guided by internationally agreed frameworks/commitments, such as the:

•United Nations Convention on the Rights of Persons with Disabilities

•ILO Convention on the Vocational Rehabilitation of Persons with Disability



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1) The 1987 Constitution

• There are five provisions of the Constitution where persons with disability are expressly mentioned to ensure that persons with disability have equal participation in the Philippine Society

• Mandates the establishment of National Commission Concerning Disabled Persons (NCCDP, now National Council on Disability Affairs, NCDA) for their rehabilitation development and self-reliance, and integration into the mainstream of society

A. Promotion of Disability Concerns in the Philippines:•Guided by local legal/official frameworks such as the:




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2. Accessibility Law (July 26, 1982)•requires that public buildings meet reasonableaccessibility requirements in order to promote the mobility of persons with disability

3. Republic Act. No. 6759 White Cane Act (Sept 18, 1989)•awareness raising measure for the benefit of visually impaired persons


•Guided by local legal/official frameworks such as the:




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4. Magna Carta for Disabled Persons (Republic Act No. 7277 of 1992)

The Magna Carta contains specific provisions and policies:•Address the concerns of persons with disability and ensures that they are provided equal opportunities and participation in their development

•Prohibits acts of discrimination in the area of employment, transportation services and use of public accommodations

•Grants 20% discount privileges in the purchase of medicines and other basic services






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5. Republic Act. No. 8425 Social Reform and Poverty Alleviation Act (Dec 11, 1997)•Declares that the State should adopt an area-based sectoral and focused intervention to poverty alleviation•Identified persons with disability as 1of the 14 basic sectors.

6. National Plan of Action for the Philippine Decade of Persons with Disabilities (2003-2012)

7. National Human Rights Action Plan 2009-2014, particularly on the Convention of the Rights of Persons with Disability (CRPD)






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8. Philippine Development Plan (2011-2016)

•Includes in Chapter 8 on Social Development strategies on PWDs, such as on education and training of PWDs, full implementation of laws protecting PWDs, amended Magna Carta for PWDs






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• The Philippines has supported/initiated resolutions on disability concerns adopted by the UN General Assembly (GA)

- A/Res/65/186 - Realizing the Millennium Development Goals for PWDs Towards 2015 and Beyond

- A/Res/66/124 – High Level Meeting on the Realization of the MDGs and Other Internationally-Agreed Development Goals for PWDs

B. Promotion of disability concerns at the global level




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Now widely recognized that,

Efforts aimed at advancing the status of PWDs require timely and accurate information on the situation of PWDs.

In the Philippines,

The Philippine Statistical System (PSS) acknowledges the need to provide the necessary data support on disability statistics for the formulation of plans for the development of the PWDs

The PSS is a decentralized statistical system where different agencies of government produce various kinds of statistics including those on PWDs, which has implications on the quality of disability statistics




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Framework of Statistical Coordination in the PSS



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Framework of Statistical Coordination in the PSS

produces general-purpose statistics Produces

establishment- based labor and employment statistics

produces agricultural statistics

produces money and banking statistics

conducts short-term courses in statistics and researches to enhance methodologies, concepts, etc.

Policy-making and

coordinating body

The Decentralized Philippine Statistical SystemMajor Statistical Agencies



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What Do We Have In the Philippines?

A. Statistical Policies on Disability Statistics

B. Coordination Mechanisms on Disability Statistics

C. Disability Statistical Products and Services




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1. NSCB Resolution No. 22, Series of 2009 – Approving the Data Items to be Included in the 2010 Census of Population and Housing

• Questions on functional difficulty, based on the recommended questions of the WG on Disability Statistics, were included in the core data items included in the 2010 Census of Population and Housing

2. NSCB Resolution No. 8, Series of 1994 – Enjoining the agencies of government to promote gender conderns in the generation of data, which covers sex-disaggregation of disability statistics

A. Statistical Policies on Disability Statistics




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1. Philippine Statistical Development Program (PSDP)

- Serves as a guide to the PSS in the formulation and implementation of statistical activities during the period as well as the directions/work plan of the NSCB-coordinated IAC-HNS.

- One chapter is on Health and Nutrition Statistics, which particularly addresses concerns on the generation, dissemination, and utilization of statistics on health and nutrition, including disability.

- Philippine NSDS, PSDP 2011-2017 – eighth edition since 1976





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2. Interagency Committee on Health and Nutrition Statistics (IACHNS)

- Aims to resolve statistical issues and to address emerging concerns on health and nutrition statistics, including disability statistics, to be able to provide relevant reliable and timely data for planning and programming purposes.

- Composition:Chair: Department of Health (DOH) Vice-Chair: National Statistical Coordination Board (NSCB)Members: 13 member agencies, NCDA as resource person





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3. Hosting of International Conferences/Local Advocacy Interagency Activities

• 8th Meeting of the Washington Group on Disability Statisticswas held in the Philippines on 29-31 October 2008

• Annual Celebration of National Statistics Month – a forum for collaboration among PSS agencies towards improvement of sectoral statistics in the Philippines





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4. International Cooperation

• Participation of the Philippines, through the NSCB, on various conferences/fora/meetings/regional and global projects

- Meetings of the Washington Group on Disability Statistics, including Annual Reporting on National Activities Related to Disability Statistics

- Sessions of the UN Statistical Commission, International Statistical Institute, etc

- UN ESCAP/Washington Group Project on Disability Statistics





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4. International Cooperation (cont.)

• Conduct of UNESCAP- WG- NSO Project on the Improvement of Disability Measurement and Statistics in Asia and the Pacific

- Cognitive and field test of the International Classification of Functioning, Disability and Health (ICF) based disability questions for surveys

- Cognitive and field test project under the Biwako Millennium Framework (BMF) and Regional Census Programme, a project implemented by the UNESCAP from 2007 to 2009

- The Philippines was one of the six countries which undertook the cognitive and field testing in 2009.





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1. 1983 National Disability Survey

-Conducted by the National Council for the Welfare of Disabled Persons (NCWD) now National Commission on Disability Affairs (NCDA) with the Department of Health and University of the Philippines General Hospital





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2. Conduct of 1990 CPH, 1995 PopCen, and 2000 CPH with 1 question on disability

Disability Question:

“Does _______ have any physical or mental disability?”

1 Yes2 No





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2. Conduct of 1990 CPH, 1995 PopCen, and 2000 CPH with 1 question on disability

Official statistics on PWDs: Proportion of PWDs less than 1.5%

2000 CPH: 942,098 (1.23%)

1995 PopCen: 919,292 (1.34%)

1990 CPH: 636,999 (1.05%)





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3. Conduct of the 2010 CPH with questions on functional difficulty

• Inclusion of short set of questions recommended by the WG on functional disability in the 2010 CPH

Functional Difficulty Question:

“Does ____ have any difficulty/problem in…?”

Yes No

• Questions were translated in English, Filipino and five major dialects (Cebuano, Waray, Ilocano, Bicolano, Hilgaynon)


a) Seeing, even when wearing eyeglasses

b) Hearing, even when using a hearing aidc) Walking or climbing steps

d) Remembering or concentrating

e) Self-caring (bathing or dressing)

f) Communicating using his/her usual language




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3. Conduct of the 2010 CPH with questions on functional difficulty

Using the results of the 2010 CPH:

• The following statistical tables on disability are planned to be released in 2012:

o Table 8. Household population with functional difficulty by sex and age group

o Table 9. Household population 5 years old and over with functional difficulty by type, sex and age group





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4. Conduct of some testing for effective data gathering of disability statistics

A. Pretests of Census of Population

B. WHO/UNESCAP Disability Question Set Testing

C. Washington Group General Measure on Disability Cognitive Test





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5. Available Administrative Data on PWDs

• Data/information on the number of PWDs served on a quarterly, semestral and annual basis

• Data are released through the Compendium of the Department of Social Welfare and Development and Selected Social Welfare and Development Statistics





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5. Available Administrative Data on PWDs (cont.)

• Some Administrative Data on PWDs are also available from the following agencies:

- Social Security System (SSS) and Government Security and Insurance System (GSIS)

o statistics on employed workers registered in their system who became disabled when they claim for benefits

-Department of Social Welfare and Developmento statistics based on the submitted administrative

forms on “Social Services for Distressed and Displaced Population”

-Department of Educationo statistics based on enrolment records of public

schools and special schools where PWDs are currently enrolled





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6. Philippine Registry for PWDs – many problems

• Department of Health’s National Center for Disease Prevention and Control (DOH-NCDPC), in coordination with the National Council for Disability Affairs

• Uses a web-based system for the issuance of PWD Identification Cards which was launched last 24 September 2009

• Aimed to eventually establish the Philippine Registry for PWDs (PRPWDs) for the issuance of the identification numbers and the generation of statistical reports




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In mainstreaming disability statistics in the Philippine Statistical System, what challenges do/did we face?

• Measurement problems associated with functional difficulty

• Need to ensure use of international standards

• Problems are being encountered in the establishment of the Philippine Registry for PWDs


A. Methodological/Operational – lack of capabilities of official Statisticians/data producers on the measurement of disability



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B. Lack of Statistical Capacity of dutybearers/users of disability statistics (NCDA)

C. Need for better coordination of the agencies of government involved in the generation of disabilitystatistics

D. Lack of resources allocated for disability statistics!

E. Absence of clearly demonstrated policy uses of disability statistics – the BIGGEST CHALLENGE – the absence of a demand-driven disability statistics culture

In mainstreaming disability statistics in the Philippine Statistical System, what challenges do/did we face?



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A. Philippine Registry for PWDs

Area Target Actual1.

Registered PWDs

4.3 million PWDs (assuming 5% of the population are PWDs)

Note: Official statistics on PWDs are,

2000 CPH: 942,098 (1.23%)1995 PopCen: 919,292 (1.34%)1990 CPH: 636,999 (1.05%)

Registry started in 2004.

As of 2009: Only approximately 5,000 registered.

As of 2010: Despite the introduction of web-based registration in 2010, only 500 registrants were added.

Main source of reference: National Center for Disease Prevention and Control (NCPDC), DOH. The NCPDC is the unit in charge of the Philippine Registry for PWDs.



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Area Target Actual2. Budget There was no specific funds allocated

for the national registration. Per Manual of Operations, the Municipal Health Offices need to prepare a work and financial plan to be submitted to the Office of the Mayor for approval and funding.

Lacked financial resources to cover transportation allowances of registrants especially those coming from distant barangays/villages.


A. Philippine Registry for PWDs (cont.)




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Area Target Actual3. Operations Manuals were distributed to concerned

local units with only a month or few weeks before conduct of the Registry.

Very few PWD organizations were mobilized to assist in the registration.

Training of trainers lasted for three days; Re-echoing the national registration training to the local government health units lasted at most half a day

Local health workers handling the registration complained of work overload.






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Area Target Actual4. Advocacy Lacked information campaign

on the Registry and its incentives/benefits/advantages

5. Institutionalization

Needed to identify key players in the institutionalization of the national registrationMain source of reference: National Center for Disease Prevention and Control

(NCPDC), DOH. The NCPDC is the unit in charge of the Philippine Registry for PWDs.





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B.Cognitive Testing of Functional Difficulty for 2010CensusCognitive Test Process

• Long and tedious• Requires persuasion and good note taking

skills• Emotionally depleting especially if the

respondent belongs to the low socio-economic status group

• Requires some knowledge of medical conditions especially to validate self-report ailments or determine health disparities (for functional difficulty)

Source: Philippines’ National Statistics Office. 2009. Philippines’ NSO Experience in Cognitive Testing of Functional Difficulty. 9th Meeting of the Washington Group on Disability Statistics. 7-9 October 2009.




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Working Towards the Improvement of Disability Statistics

has been challenging but it also has its rewards/opportunities

A.The Philippine engagement with the Washington Group under the leadership of NCHS/Jennifer Madans has been an empowering experience towards mainstreaming disability statistics in the PSS

- Official Statisticians now know more about disability- Official Statisticians now know better how to measure disability




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has been challenging but it also has its rewards/opportunities

B. Efforts of the statistical agencies to improve

sectoral statistics like on disability, have opened up

avenues to improve statistical coordination within

the Philippine Statistical System and enhance appreciation for statistics by stakeholders

Many more agencies of government are now consulting/collaborating with the statistical agencies towards

•Development of a Registry of Farmers•Development of a Registry of

Fisherfolk




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has been challenging but it also has its rewards/opportunitiesC. Integration of statistics in decision making (on

poverty alleviation) in the Philippines has been enhanced

- With the support of the World Bank, the NSCB produced small area poverty estimates which were used by the DSWD to identify beneficiaries of our CCT program. The PSS-DSWD collaboration on poverty alleviation (NHTSPR) has been an inspiring experience towards the integration of statistics in decision-making

- Statistics are now very visibly being used inthe primary program of government on poverty alleviation and stakeholders, including politicians

know it, even if not all of them like it!




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III. Way Forward

III. Way Forward



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Mainstreaming disability statistics in the Philippine Statistical System means:

1. Availability of Better statistics on PWDs

• Need for timely, regular, relevant and sex -disaggregated disability statistics – (socio-economic profile)who are the PWDs?

• Need for sub-national (local level) disability data–where are the PWDs?

III. Way Forward

Where do we want to go?



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Mainstreaming disability statistics in the Philippine Statistical System means:

2. Better use of better statistics on PWDs

Disability statistics are actually used to craft programs and policies for inclusive development

3. Higher investments on disability statistics

Government is giving higher budgetary priority to the generation, dissemination/communication, and use of disability statistics

III. Way Forward

Where do we want to go?



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To mainstream disability statistics in the Philippine Statistical System towards inclusive development, towards better development outcomes for PWDs: some strategies

1. Statistical Capacity Building

• Producers of statistics• Users of statistics - NCDA

2. Greater Advocacy – we need convincing articulation on the importance of disability statistics by agencies promoting PWDs

• NCDA to push for better statistics on PWDs• PWDs are one of the 14 basic sectors – poverty

statistics available for 8 of the basic sectors but not for PWDs

III. Way Forward



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To mainstream disability statistics in the Philippine Statistical System towards inclusive development, better development outcomes for PWDs: some strategies

3. Institutionalization of collection/dissemination of statistics on PWDs in the Philippine Statistical System

•The Philippine Statistical Development Program 2011-2017 has identified programs on disability statistics

• Conduct of disability surveys• Improvement of the Registry of PWDs• Improved sharing of disability data - Devt of

disability data portal

III. Way Forward



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4. Better coordination - Lack of coordination wastes resources

• Within countries, between the statistical community and the program ministries

• Among the stakeholders in the international communit y

III. Way Forward



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5. Continued engagement with/of the international community

•Methodological Work/Capacity Building

• Devt of long set of questions by Washington Group

• Methodological Initiatives of WHO• Training Programs of SIAP – both producers &

users of statistics

•Conduct of Regional/International Workshops• UNESCAP for sharing of experiences

III. Way Forward



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5. Continued engagement with/of the international community

•Implementation of the Busan Action Plan for Statistics• World Bank as a key player

•Financial/Technical Assistance

•Help in the Advocacy for Statistics, Advocacy for PWDs

III. Way Forward



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It costs money to generate, disseminate, and utilize

high quality statistics!

Resources for statistics have increased but have not been commensurate with the much increased demand for statistics

If we want better disability statistics, we must cultivate a genuine political will

• to advocate for statistics, • to invest in statistics,

Investment on Disability Statistics = Investment on PWDs!

III. Way Forward



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Maraming Salamat po!

URL: http://www.nscb.gov.phe-mail: [email protected]

Documents

Side Event at the 43 rd Session of the UNSC RAVirola/ 01 March 2012 Republic of the Philippines NATIONAL STATISTICAL COORDINATION BOARD 1 Mainstreaming