Winter 2004 Issue 18

“SpeakUp”ContinuedonPage2“Coping”ContinuedonPage2

Your Invitation to Attend!Your Invitation to Attend!Your Invitation to Attend!Your Invitation to Attend!Your Invitation to Attend!Getting Beyond Hearing Loss – Tools for CopingSaturday,February28th9:30AMto4:00p.m.SantiamMemorialHospitalAuditorium,Stayton

Arethoseyoulovetellingyouthatyouhaveselectivehearing?

Dotheysay,“Whydon’tyouturnupyourhearingaid?”Areyoufrustratedthatpeoplemumbleallthetimeand

othersjustdon’tseemtounderstandaboutyourhearingloss?Doyou

liveorworkwithhardofhearingpeopleandwanttoknowmoreabouttheissuestheyfaceandhowtheycancope?

Ifyouhaveanswered‘yes’toanyofthesequestionsthenhere’safreeworkshop especiallyforyou!.

Spend afunandlivelydaywithus!afunandlivelydaywithus!afunandlivelyday Notonlywillyoulearn*real-life*strategiesforlivingpositivelywithhearingloss,you’llalsomeetotherswhounderstandwhat’sit’sliketolivewithoneandlearnhowtheycope.

Withyouinmind,we’veplannedavarietyoftopics,withwell-knownandknowledgeablespeakersthatwe’resureyou’ll

Speak Up About Your Needs (ByLeoneMiller-Springfield)

FiveyearoldDaniellewasillforseveraldays.Finallyhermomtookhertothedoctor.Afterathoroughexam,thedoctordeclaredthatshehadstrepandthathewouldhavetogivehersomeshots.Danielleletthedoctorandeveryoneelseintheofficeknowthatshedidn’tlikethatideaonebitandscreamedduringtheshotprocess.Beforetheylefttheoffice,momsteppedtothecounterandtookouthercheckbook.Daniellewasappalled.Withtearsstillrunningdownherredfacesheshouted,“AreyoureallygoingtoPAYforTHIS?”

Yes,sometimestheverythingweneedthemostisnotonlypainful,butwehavetoPAYforit.Thatmakesmechuckle.

Itcostssomethingtodealwithourhearingloss.Itcoststime,lotsofmoney,becomingassertive,educatingourselves,seekingoutwaystocope(suchasSHHHmeetings),andperhapsevenswallowingsomepride.Wedon’twanttoappearold,ordisabled,

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“Coping” Continued from page 1“Speak Up” Continued from page 1 findinterestingandhelpful.We’llcoversomepsychological

aspectsofhearingloss,copingstrategieswithpaneldiscussionandaudienceinteraction,andthelatestonassistivehearingtechnology-allofwhichwillhelpin“reallife”.

Realtimecaptioningandassistivelisteningdeviceswillbeprovidedforallpartsoftheworkshop.(Ifotheraccommodationisneeded,pleasecontactusatleasttwoweeksbeforetheevent.Wewilldoourbesttomeetyourneeds.)Bestofall,itsfunandinspiringto

bewithandlearnfromagroupofenthusiastichardofhearingpeople!

There’snochargebutpre-registrationisrequiredasseatingislimited.Toregisterforthisworkshop,sendinyourname,address,phonenumber,email(ifapplicable)toSHHHOregon“GettingBeyondHearingLossWorkshop”,POBox22501,Eugene97401.

Vendingmachinesforbeverages&snacksareavailableattheHospital.Aone-hourlunchwillbeonyourownandalistofnearbyrestaurantswillbeprovidedattheevent.

Ifyouplantostayovernight,thenearbySunriseInn(aBestWesternhotel)hasagreedtoofferSHHH-ORfolksa10%discountifyoucall(503)769-9579andmentionSHHH-OR(limitedspacesareavailablesoreservesoon).

Directions: FromInterstate5(northorsouth),TakeHighway22fromI-5totheStayton-Sublimityexit.TurnrightandgotothetrafficlightatthetopofthehillpastArco&DairyQueen.Turnleft.Driveapproximately1⁄4ofamiletotheHsignandturnright.Thehospitalisatthetopofthehill.Theauditoriumisinthebasement.FromCentralOregon,turnleftontoCascadeHighway.DrivepastArco&DairyQueenandfollowdirectionsabove.

Questions?pleasecontactBobWilliams:Email:robertiw@cablerocket.comorphone(503)769-0259

Thiseventisco-sponsoredbySHHHOregonandtheWROCCoutreachsiteattheRegionalResourceCenteronDeafnessatWesternOregonUniversity.Checkoutourwebsites:www.shhhor.organdwww.shhhor.organdwww.shhhor.org www.wou.edu/wrocc.

orincapable,butwearingahearingaidcanmakeusfeelasifthatisexactlyhowothersviewus.Thatiswherethepaincomesin.Andweaddtothecostwhenwedon’texplain.

Actuallythatisnothowothersviewus.Peopleareoftenconfusedastowhattodotohelpus.Theyaregratefultohaveusexplaintothemwhatahearinglossislike.TheyDOwanttohelp-theyjustdon’tknowhow.Here’ssomewaysyoucanhelpthemhelpyou:

Explainthatyouhaveahearinglossandthatitwouldbehelpfultoyouiftheywouldspeakslowlyandclearly-butnottoshout.

Trytomovetoaquietplacesoit’seasiertohear.

Askforaclueastowhattheyaregoingtotalkabout.

Useassistivelisteningdevicestohelp,andexplainwhattheydoandhowtheycanusethemicrophoneorotheritemstohelpyou.

Letthemknowwhenyoudounderstandsothattheyaren’tfrustratedthatyou’renotresponding.Hearingpeopledon’treallyknowifwe“get”itornot,ifwedon’ttellthem.

Don’tbluff.Rememberthatyouare

responsibletomakeiteasierforyourselfaswellasothers.

EducationMatters–PleasemakeagifttoSHHH.

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Trouble Finding a Cordless or Cell Phone You Can Use?

Haveyoushoppedforacordlessorcellphoneandhadtroublefindingonethatwillworkwithyourhearingaidorcochlearimplant?Youcandosomethingaboutit!

Whenyoushopforaphoneandcannotfindaphonethatyoucanusewithoutinterference,pleasefileaninformalcomplaintwiththeFederalCommunicationCommission(FCC).Therejusthavenotbeenenoughcomplaintsfiledandthelawisenforcedviaacomplaintprocess.Weneed25complaintstogointotheFCC.

Tocomplainyouneedtodothefollowing.Itisveryeasytouseemail.fccinfo.@fcc.gov

Providethefollowinginformation:

-yourname,address,email,phone-nameofmanufacturerofphone-nameofcarrierofthesystemyouweretryingtouse-typeofphoneandmodelnumber-locationwhereyoupurchasedortriedtopurchasephone-specificproblemyouencounterede.g.doesnotworkwith

telecoil;causesinterferencewhenhelduptoearwithhearingaid

-howdoyouwanttheproblemresolved

Therearealsoproblemswithcordlessphonescausinginterference.Thesearewirelinephonesandarefullycovered

bytheHearingAidCompatibilityLaw.Ifyoufindyoucannotuseacordlessphonebecauseofinterference–manypeoplearefindingthedigitalspreadspectrumcordlessphonescauseinterferencewiththeirhearingaids,thesameapplies-emailtheFCCandfileaninformalcomplaint.Usethesameinformationasabove.

Speakup!Togetherwecanmakeadifferenceintheworld.

Don’t Fence Me In(AsadaptedbyHelenBoyd–aCIUsersince1991)

Oh,givemesound,lotsofsoundJusttohearfromallaroundDon’tfencemeinLetmehearwithmygearWithmynewbionicearDon’tfencemein

LetmebewithmyfriendsIntheeveningbreezeListentothemurmurofthecottonwoodtreesTalktomeforeverbutIaskyoupleaseDon’tfencemein

Justhookmeup,LetmelistenwithmysystemThenewfangledbionicearHowgooditfeelsKickin’upmyheelsBecausenowIreallyhear

IwanttohearallthesoundThattheworlddispensesListentoitsnoisesJoyovercomespretensesWon’tacceptsilenceAndIcan’tstandfencesDon’tfencemein!

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The CHAAMP Big Hit at SHHH Convention in Atlanta

Atlanta,Georgia,June2003-Audex®,Inc.inconjunctionwithMLTWirelessGroup,introducedanewhearingaidmobilephoneaccessorythatwasenthusiasticallyreceivedbytheconventionattendees.Byactuallyactivatingthephonesontheconventionfloor,manypeoplewerenowabletojointhemillionsofotherwirelessusers.AccordingtoanarticleinTheBostonGlobe,morethan120millionpeopleacrosstheU.S.nowcarrycellularphones,butonegroupisstrugglingto

jointhewirelessrevolution-the28millionAmericanswithhearingimpairment.CEORichardManleynotesthat,“Cellularphonesbydesignprovidemuchlessvolumethandeskphones,and

theirspeakerstypicallycreatenothingbutbuzzinhearingaids.WeareexcitedthatTheCHAAMP™willhelprectifythedigitalstaticproblemandincreasetheamplification30decibels,offeringimprovedmobilephoneaccessibilitytohearingimpairedindividuals,aswellastothoseinharshlisteningenvironments.”DevelopedbyAudex,theCHAAMP™cellularphonemoduleattachestocertainNokiacellularphones.Theaccessoryeliminatestheinterferencethatsomedigitalcellphonescauseinhearingaids.Thedeviceisalsousefulindifficultlisteningenvironments,suchasconstructionandtransportation,whenacellphonethatprovideshigherspeakerandringingvolumesisneeded.Inadditiontoitscompatibilitywithhearingaidsandcochlearimplants,otherfeaturesoftheCHAAMP™includebackgroundnoisesuppression,ahigh-qualityspeakerforimprovedsound,arecorderfunctionforon-linerecordingofcallsandplaybackcapability,andaflashinglightindicatorforincomingcalls.MLTWirelessGroup,locatedinPortland,Oregon,istheexclusivedistributorofAudexproductsthroughouttheNorthwest.Theyhavehelpedmanycustomerswiththeircellularphoneneeds.Forfurtherinformation,callMLTWirelessGroupat503-608-3952ortollfreeat877-452-0081,oremailmltsales@verizon.net.

Thanks – We Can’t Do It Without Your Help!

Itcostsapproximately$1900toprintandmaileacheditionofthisnewsletter.Weareatotallyvolunteerorganizationandneedyoursupporttocontinuethisnewsletter.Ifyouareable,pleasesendadonationofatleast$10annually.Otherwise,senduswhatyoucanorwhatyouthinkisfair.Pleasenote:Thisisdifferentandseparatefromanylocalchapterfeeyoumaypay.Wethankthefollowingfolkswhohavesentdonationssincethelastissue:JackNutt,TomRiddle,ArdisMarshall,CrowandWaltervilleGranges,FlorenceKohout,MarleneRobbins,JimGoodwin,BarbaraMinturn,Palmer&MarionLarson,KennethGray,CharlotteLee,EdWatson,LloydSharrard,JoD’Antonnio,AnneMcLaughlin,HerbertaChandler,DonnaKelly,BJMcIntosh,LoisJohnson,BarbaraBay,LaneCountySHHH,and3AnonymousDonors

Mailyourtax-deductiblegifttoSHHHORPOBox22501,Eugene,OR97402usingtheformonthebackofthenewsletter.

“Sometimesourlightgoesoutbutisblown“Sometimesourlight

goesoutbutisblown“Sometimesourlight

intoflamebyanothergoesoutbutisblownintoflamebyanothergoesoutbutisblown

humanbeing.Eachofintoflamebyanotherhumanbeing.Eachofintoflamebyanother

usowesdeepestthankshumanbeing.Eachofusowesdeepestthankshumanbeing.Eachof

tothosewhohaveusowesdeepestthankstothosewhohaveusowesdeepestthanks

rekindledthislight.”AlbertSchweitzer

Willing to Share Your Experiences?

Weknowthatworkingwithahearinglosscanbeachallenge.

Wouldyoubewillingtoshareyourhearinglossrelatedworkexperienceswithourreaders?We’dliketohearfromyou.PleasecontactKaren(email:kswezey@efn.orgorPOBox22501Eugene,OR97402).

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NCRAR Conference Big Success

OnOctober8-10,2003,NCRARhosted168attendeesfrom28statesplusDenmark,Switzerland,andBritishColumbiaatitsinauguralconference,“AuditoryRehabilitation:AMultidimensionalApproach”.TheconferenceopenedwithareceptionwhichwasattendedbyconferenceparticipantsandspecialguestsincludingrepresentativesfromtheofficesofSenatorRonWyden,CongressmanEarlBlumenauer,CongresswomanDarleneHooley,andCongressmanDavidWu,officersofVeteranServiceOrganizations,andmembersoftheNCRARNationalAdvisoryBoard.ThereceptionopenedwithanofficialproclamationfromPortlandMayorVeraKatzproclaimingOctober 8th to10thAuditoryRehabilitationDaysinPortland.

Therefollowedtwodaysofsessionsinwhicheightinternationallyrespectedclinicalresearcherspresentedanddiscussedthelatestadvancesinthefieldofauditoryrehabilitation.InthenextissueoftheSHHHNewsletterlookforasummaryofinformationontelephoneuseandhearingaidsaspresentedatNCRAR’snationalconference.CarolynLandsverk,M.S.EducationManagerNationalCenterforRehabilitativeAuditoryResearch

MarkRoss,Ph.D.,DavidLilly,Ph.D.andHarryLevitt,Ph.D.answerquestionsontelephoneuseandhearingaidsatNCRARconference.

Drug May Protect Ears From Chemotherapy

Ongoinghumanclinicaltrialswithsodiumthiosulfateareshowinggreatpromiseinprotectingtheearsofbraintumorvictimsfromchemotherapydamagetotheinnerear.

Upuntilthetrialsbegan,50%ofbraintumorvictimswhoreceivedchemotherapyhadsevereenoughhearinglosstorequireaids.Nowit’s5%.

Trialsinchildrenarebeginning,andthemanufacturerhopestoreceiveapprovalbytheFoodandDrugAdministrationintwotothreeyears.

(From“OntheLevel”the“OntheLevel”the“OntheLevel”newsletteroftheVestibularDisordersAssociation–Winter2003.Vedacanbereachedbyemail–veda@vestibular.org,phone(800)837-8428–PObox4467Portland,OR97208-4467–www.vestibular.org)

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“Elections”ContinuedonPage7

Community Access Hearing Assistive Technology Program

InAprilof2000,theOregonHardofHearingandDeafAlliance(OHHDA),anadvocacycoalitionofover25public,non-profitandfor-profitorganizationsrepresentingOregonianswithhearingloss,appliedforatwoyeargrantwiththeMeyerMemorialTrusttofundaHearingAssistanceTechnologyproject.ThegoalsoftheCommunityAccessHearingAssistiveTechnologyProgram,CAHATforshort,aretoenablepeoplewithhearinglosstofunctionatparitywithhearingpeopleandtoimprovecommunicationamongthosewithhearinglossthroughtheavailabilityofhearingassistancetechnology.InOctoberofthesameyear,theMeyerMemorialTrustapprovedthegrantof$48,000“topurchasehearingassistancetechnologyandequipmentforstatewidedistribution.” (TheMeyerMemorialTrustwascreatedbythepersonalphilanthropyofFredG.MeyerandisinnowayconnectedwithFredMeyer,Inc.)

CAHATequipmenthasnowbeendistributedto7sitesthroughouttheStateofOregon.TheintentoftheprogramisnottoreplacetherequirementsofentitiesmandatedbytheAmericanswithDisabilitiesActof1990toprovideaccessibilityforhardofhearinganddeafindividualsparticipatingintheirprograms.Rather,thepurposeistomakeassistiveequipmentreadilyavailabletothegeneralhearingimpairedcommunity.Therearetimes,however,whensomeorganizationswillbecalledupontoprovideaccessforeventsthatwillhavemanymorehearingimpairedparticipantsthantheyareequippedfor.LoanofequipmentbytheCAHATprogrammaybeapprovedifitwillbeavailableatthetimeoftheevent.

Thesitesandsiterepresentativesinclude:

OregonLionsSight&HearingFoundation,1410SWMorrisonSt.,Suite760,Portland,OR97205

SiteRepresentative:SherryYarger,(503)827-6952,1-800-635-4667,sherry.yarger@orlions.org

SouthernOregonLionsSight&HearingCenter,228NorthHollyStreet,Medford,OR97501

SiteRepresentative:SherrieMesser,Exec.Dir.,(541)779-3653,(541)773-5086TTY,solshc@uci.net

UmpquaValleydisAbilitiesNetwork,419NEWinchesterStreet,POBox507,Roseburg,OR97470

SiteRepresentative:ClarkAnderson,(541)957-8245,clarkoa@presys.com

DepoeBay,CentralandNorthOregonCoastSHHH,PO

Notice of Elections

VotingwilltakeplaceattheFebruary28th

Votingwilltakeplaceattheth

Votingwilltakeplaceatthe“BeyondHearing

AidsEvent”(seepage1)fortheAidsEvent”(seepage1)fortheAidsEvent”newSHHH-ORBoardofTrustees.Everyoneisencouragedtoattendthatmeeting,andallSHHHmembersinOregonareeligibletovoteforTrusteesatthatmeeting.

Trusteesareelectedandserveathree-yearterm.AnySHHHmemberinOregoncannominateacandidateforanyavailableTrusteeposition.TheTrusteeselecttheofficerseachyear,usuallyatthesamegeneralmeeting.TheTrusteesandothervolunteersformcommitteesasneededtopursueareasofinterestallyear.

SHHH-ORmeetingsarenormallyheldquarterlyinAlbany(nearthemiddleofthestate,soit’sreasonablyconvenienttomakethemeeting).Ifyou’dliketobecomeinvolvedwithSHHH-ORpleasecalloremailusformoreinformation.

ThefollowingpeoplehaveagreedtohavetheirnamesplacedontheballotinFebruary:

ClarkAnderson(Roseburg)-BonneBandolas(Eugene)-HelenBoyd(Springfield)-AndyEvans(Philomath)-MarkFoster(Portland)-JimHamm(Medford)-DonaldLadd(Scio)-KathyLadd(Scio)-BobRussell(Portland)-CathySanders(Bend)-KarenSwezey(Eugene)-MitchTurbin(Portland)-DavidViers(Portland)-BobWilliams(Sublimity)

Be an ACTIVE part of SHHHIt’snicetobeneeded,andsoyouknowwhy?Wemustalldependontheotherguy,Youcanworkonaproject,rightdowntothebone,Butyoucertainlycan’tgetitdoneallalone.Ifeverymemberrealizedthisobviousfact,Andelectedrightthentogetintotheact,Whatasuper-accomplishingClubthiswouldbe,Withmehelpingyouandyouhelpingme.

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“Elections” Continued from page 6

Box1137,DepoeBay,OR97341SiteRepresentative:BobHall,(541)765-3342,

bhall@oregonvos.netCrookCountyLibrary,175NWMeadowLakesDr.,

Prineville,OR97754SiteRepresentative:MaryReed,(541)447-7978,

reedmaryj@earthlink.netCentralOregonResourcesforIndependentLiving(CORIL),

20436ClayPigeonCourt,Bend,OR97708SiteRepresentative:CathySanders,(541)388-8103,

costr-l@bendnet.comEagleOptical,3701MidwayDrive,BakerCity,OR97814SiteRepresentative:RexJohnson(541)523-2020,

eagle3@eoni.comSiteshavebeengivendifferentequipmenttohouse,

dependingontheneedsofthecommunity.EquipmentrangesfromsmallandlargeFMsystems,toloopsystems,infraredsystems,closedcaptioningequipmentusedwithTVorwithaprojectorandscreen,wirelessandhardwiredmics,lapelmics,mixers,basetransmitter,etc.

Toensureasuccessfulevent,pleasereservetheequipmentwellinadvanceofyoureventwheneverpossibleandallowtimetovisitwithyoursiterepresentativeaboutwhichequipmentwouldbethemostappropriateforyoureventormeeting.Alsoallowyourselftimetolearnhowtoproperlysetupandusetheequipmentpriortoyourevent.Brochuresabouttheprogramareavailableateachsite.

FormoreinformationabouttheCAHATprogram,pleasecontactSherryYargerattheOregonLionsSightandHearingFoundation,orcontactyournearestsiterepresentative.

Ifyoucannotattendthemeeting,butwouldliketovote,youmayrequestanabsenteeballotbywritingtoClarkAndersonbyFebruary15th(email:Clarkoa@presys.com–orwritehimat570GardenGroveDr.Roseburg,OR97470)

IfyouwouldliketonominateyourselforsomeoneelsejustsendyourrecommendationbyFebruary10thsendyourrecommendationby

thsendyourrecommendationby

toClarkAnderson,NominatingCommitteeChair(addressabove).Ifyouhavequestionsaboutservingortheelectionsprocess,youcanalsocontactClark.

ItisourgoaltorepresenthardofhearingpeopleacrossOregon.Wewouldliketohavetrusteesfromallchaptersaswellasthosewhodonotbelongtoachapter.

WehopetoseeyouonFebruary28th

Wehopetoseeyouonth

Wehopetoseeyouon!

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SHHH – Opening the World of Communication

SelfHelpforHardofHearingPeople(SHHH)isthenation’sforemostmembershipandadvocacyorganizationforpeoplewithhearingloss.Ourclear,straightforwardmessagehaschangedthelivesofthousandsofpeopleforovertwodecades.Hearinglossisadailychallengeyoucanovercome.Youdonothavetohideyourhearingloss.Youdonothavetofacethischallengealone.

MembersreceiveHearingLoss:TheJournalofSHHH,anawardwinningbimonthlymagazine.Topicsincludeimportantissuessuchascopingstrategies,technologicalinnovations,andpublicpolicy.TheJournalalsofeaturesarticleswrittenbypeoplewhohaveexperiencedhearingloss.

SHHHisthenationalvoicefortherightsandconcernsofpeoplewhoarehardofhearing.SHHHimpactspublicpolicy,researchdirection,productdesignandinnovation,disabilityrights,andbestpracticesinhearinghealth.SHHHadvocatesforimprovementsinareassuchashearingaidinsurancecoverage,captioningandhearingaidcompatibilityofmobilephonesandothercommunicationtechnologies.

Won’tyoujoinSHHHtoday?Youcansendyourmembershipfeewiththeformonthebackofthisnewsletterandsoonyou’llbeenjoyingthebenefitsofSHHHmembership.YoucanmakeadifferencethroughyourmembershipwithSHHH.

Web Sites for You!www.hearingloss.org–Thenewandimprovedwww.hearingloss.org–Thenewandimprovedwww.hearingloss.org

websiteforSHHH.Checkitout!Lotsofgoodinformationhere!FindarticlesonHearingAssistiveTechnologyOverview,WhatDoSHHHMembersSayAboutHearingAidsandCochlearImplants,HowDoISelectaHearingAid,Peersupport,SelfAcceptanceandGoodCommunication,andmore!

www.listen-up.org–Givesawealthofwww.listen-up.org–Givesawealthofwww.listen-up.orginformationonhearingloss.

Hearing.harvard.edu/information/cx26.htmandwww.iro.es/cx26deaf.htm–bothhaveinformationaboutconnexin26,themostcommoncauseofgenetichearingloss.

“WebSites”ContinuedonPage9

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“Web Sites” Continued from page 8

Survivor’s Manual Goes to Third Printing

WearepleasedtoannouncethatwehaveraisedenoughmoneytobeabletoreprintSHHH-Oregon’sverypopularbooklet“FacingtheChallenge–ASurvivor’sManualforHardofHearingPeople”.Wehavedistributedmorethan15,000oftheseManuals’sandtheorderscontinuetorollin.WestartedwiththeoriginalseedmoneyintheformofachallengegrantfromBlancheFischerFoundationandmatchingfundsfromtheOregonLion’sSightandHearingFoundationtoprintthefirstbatch.Wehavehadcontributionsfrommanysourcesforthe2ndfirstbatch.Wehavehadcontributionsfrommanysourcesfor

ndfirstbatch.Wehavehadcontributionsfrommanysourcesfor

and3rdfirstbatch.Wehavehadcontributionsfrommanysourcesfor

rdfirstbatch.Wehavehadcontributionsfrommanysourcesfor

printings.Thistime,wewerepleasedtobeawardedagrantfromtheWoodardFamilyFoundation,andsponsorshipsfromotherorganizationsthatsupportSHHH.

WewanttothankLeoneMiller(Springfield),fordreaminguptheSurvivor’sManualinthefirstplaceandworkinghardtomakeithappen.KathyKifer(Eugene),ourgraphicsdesignguruwhohasworkedonallthreeeditionsofthisManualandKenMoore(Aumsville)foraddingittoourwebsiteandkeepingourwebsiteuptodateandlookinggreat!Whattalentedpeopleyouare!Thankyou,Leone,KenandKathy!!

VocationalRehabilitationCounselors,Audiologists,HearingAidSpecialistsandotherprofessionalswhoworkwithhardofhearingandlatedeafenedpeoplefindthesebookstobewonderfulresourcesforthemselvesandtheirclients.Manypeoplehaveorderedadditionalcopiestoshare.

ThecurrenteditionoftheSurvivor’sManualisatwww.shhhor.org.Andyoucanordercopiesbysending$3perbookor$25foreach20bookstoSHHH,POBox22501,Eugene,OR97402.Ifyouwouldlikemoreinformation,youcancontactusatkswezey@efn.orgorwritetothePOBox.

When the Hearing Aid Whistles

Awhistlinghearingaidcanbeveryannoyinganddisturbing.Thehigh-pitchedsoundisfeedbackfromahearingaidandyoucandosomethingaboutit.

Waxintheearcanalmaypreventsoundfromtravelingintotheear.Thesoundbeingforcedbackoutoftheearresultsinthehigh-pitchedwhistle.Thewaxneedstoberemovedbyaphysician.

Wearinghearingaidsonfullvolumeoftencreatesfeedback.Turndownthevolumeorhavethehearingaidscheckedifyoualwaysneedhighvolumetohearproperly.

Andincorrectlyfittedearmoldcancausethehearingaidtomakethewhistlingsoundandyouneedtobeseyourhearinghealthcareprofessionaltogetanewormodifiedearmold.

Theplastictubingthatjoinssomehearingstotheearmoldcanbecomehardenedandshrinkpulingontheearmoldsoitnolongersitscorrectlyintheear.Thiscancausethewhistlingsoundandanewtubingisneeded.Tubingshouldbechangedabouteverysixmonthsorwhenitlosesitsflexibility.

(GleanedfromtheCOHEARNews)

www.cici.org–Thisnon-profitgivessupporttocochlearwww.cici.org–Thisnon-profitgivessupporttocochlearwww.cici.orgimplantwearers,theirfamiliesandprofessionals.

CochlearAmericasCorp.–www.cochlear.com(hasconsumerforum)–Manufacturerofcochlearimplanttechnology

AdvancedBionics–www.BionicEar.com–Manufacturerofcochlearimplanttechnology

MedicalElectronicsCorp.-www.MedEl.com–Manufacturerofcochlearimplanttechnology

Andspeakingofwebsites!Haveyoucheckedoutwww.shhhor.orglately?Ourwebmastersupreme,KenMoorewww.shhhor.orglately?Ourwebmastersupreme,KenMoorewww.shhhor.orgdoesagreatjobofkeepingourwebsitefreshanduptodate.Thankyou,Ken,forallyourgreatwork!!

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Self-Help Chapters in OregonLocalchaptermeetingsareopentoall.Family,friendsandprofessionalsareencouragedtoattendandbecomeinvolved.Throughchaptermeetingsandnewslettersyou’llfind:

InsightsintoeffectivelylivingwithhearinglossSupport/Referrals/InformationInformationaboutthelatesttechnologyCopingstrategies&tipsAnopportunitytomakeadifferenceDiminishedfeelingsofisolationandalonenessOpportunitiestoshareconcernsandhearfromothers

Webelieveineducation-forthosewhohearwellandthosewhocannot-sothatbothmayunderstandthecauses,challengesandpossibleremediesforhearingloss.Atourmeetings,you’llfindacomfortableplacewherehearinglossisacceptedandnotaproblem.ManypeoplereportthatbeingapartofaSHHHgrouphasmadeamajordifferenceintheirlives.Yourparticipationbenefitsnotonlyyou,butotherswhoattendaswell.FollowingisalistofthecurrentchaptersandcontactpeopleinOregon.WehavenewchaptersstartinginAstoria,Bend,BakerCity,andDepoeBayrightnow!

BakerCitySHHHmeetsthe2ndMondayofthemonth-4PMatCommunityConnections-2810CedarSt.-BakerCity.ContactPeggyBenintendi CathyWilsone-mail:pegleg@bakervalley.net(541)524-0453(541)524-16302795E.Street,BakerCity,OR97814

BendSHHHmeetsonthe2ndWednesdayofthemonth-6PMattheSt.CharlesMedicalCenter-RehabilitationConferenceRoom.ContactCathySanderse-mail:csotr-l@bendnet.com(541)388-8103CORILPOBox9425,Bend,OR97708

SHHH-CentralOregonCoastmeetsthe4thTuesdayeachmonth-1:30PMattheNewportChamberofCommerce,555SWCoastHighway,NewportContactBobHalle-mail:bhall@oregonvos.net(541)765-3342POBox1137,DepoeBay,OR97341

LaneCountySHHHmeets2ndThursdayeachmonth-7PMattheHilyardCommunityCenter,2580HilyardStreet,Eugene.ContactLeoneMiller, AndreaCabrale-mail:vngleone@msn.com e-mail:angora@comcast.net(541)744-2994 (541)345-9432voice/TTYPOBox22501,Eugene,OR97402

Who We Are“HearItIs!Oregon”ispublished“HearItIs!Oregon”ispublished“HearItIs!Oregon”quarterly.Thereisnosubscriptionfeecurrentlyrequired,butwedependonyourcontibutionsandwerequestthatyounotifyusannuallyifyouwishtocontinuetoreceivethisnewsletter.Wewouldlikeallhardofhearingpeopletoreceiveitregardlessofabilitytopay.Ifyouwishtobeaddedtothemailinglistorcontinuetoreceivethisnewsletter,pleasefilloutthecoupononthebackpageandreturnittous.Ifyouhaverespondedinthelast12months,youwillcontinuetoreceiveitanddonotneedtorespondagain.Wewelcomeyourarticles,noticesaboutevents,donations,andotheritemsthatwillbeofinteresttohardofhearingpeople.Pleasesendyouritemsto:

SHHHofOregonPOBox22501Eugene,OR97402Phone(541)689-7242voice/TTYFAX(541)461-8601e-mail:kswezey@efn.org

OpinionsexpressedinthisnewsletterarethoseoftheindividualauthorandarenotnecessarilythoseofSHHH.Mentionofproductsandservicesdoesnotmeanendorsement,norshouldexclusionindicatedisapprovalPersonalexperiencesanddiverseopinionsrelatedtohearinglossarewelcomeforpublication,andshouldbemailedtoSHHHOregon(addressabove).Unlessotherwisenoted,readersinterestedinduplicatingordistributinganyorallmaterialfoundinthe“HearItIs!”have“HearItIs!”have“HearItIs!”ourpermissiontodoso.Pleasecreditthesourcewhenusingsuchmaterial.

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Self Help for Hard of Hearing People of OregonPeople helping people have a better life through support and education.

http://www.shhhor.org

Lowestin(LakeOswego/WestLinn/Tualitan)SHHHmeets2ndTuesdayeachmonth-2PMattheAdultCommunityCenter-505GSt.,LakeOswego.ContactEdLarsone-mail:edlarson4@juno.com(503)620-0437voice/TTY18750WoodDuckCircle,LakeOswego,OR97035

MedfordAreaChapter-NewforYou!Contact:Jim&MarilynHamme-mail:cruzin2thetop@aol.com(503)664-0141POBox4666,Medford,OR97501

PortlandSHHHmeetsthe3rdTuesdayeachmonth-7PMattheGoodSamaritanHospital,Wistar-MorrisConferenceRoom-NW22ndandMarslall,PortlandContact:MarkFostere-mail:hey_foster@hotmail.comWeb:www.shhhor.org/portland/(503)413-7348-voice/TTY POBox2112,Portland,OR97208

RoseburgSHHHmeetsthe2ndMondayeachmonth-7PMattheMercyHospitalCommunityEducationRoom-2459StewartParkway,Roseburg.(BetweenParkwayPharmacy&OfficeMax)Contact:LoreneRussell ClarkAndersone-mail:rlrussell@mcsi.net e-mail:clarkoa@mcsi.net(541)679-9655 (541)957-8245732MulberryLn. 570GardenGroveDr.Roseburg,OR97470 Roseburg,OR97470

SalemSHHHmeetsthe2ndWednesdayeachmonth-6:30PMattheSalemHospitalMeetingRoomH(inthebasement)-665WinterStreetSE,Salem.ContactKathyLadde-mail:SHHHSalem@aol.com(503)394-386338427ShelburnDr.,Scio,OR97374

Ifyouareinterestedinbeingapartofachapterinyourarea,contact:BobWilliams,Oregon ChapterCoordinator e-mail:robertiw@cablerocket.com (503)769-0529POBox317,Sublimity,OR97385

or

ChapterCoordinator,SHHHNationalOfficee-mail:national@SHHH.org(301)657-2248-voice•(301)657-2249-TTY•(301)913-9413-FAX7910WoodmontAvenueSuite1200Bethesda,MD20814

“Wearelivingart,createdtohangon,standup,forbear,continueandencourageothers.”

MayaAngelou

Self Help for Hard of Hearing People of OregonPO Box 22501Eugene, OR 97402

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