Sharing Your InformationWhat this means to you

Andrea Slater

Care Records Programme Manager

What is it all about?

•There are 2 main kinds of data sharing

• Sharing your information with clinical staff that can directly aid your treatment and care

• Summary Care Record

• Sharing your information to allow NHS to manage services and quality

• Care.Data leaflet you may have had through the door

Summary Care Record - SCR

• A few years ago, all patients were written to. This informed everyone about what the SCR is.

• Allergies you may have• Sensitivities to medication and environment• Medications you take or have taken in last year

• Additional information can be added with your permission

• You had the option to ‘Opt Out’ if you didn’t want one

SCR - continued

• Emergency clinicians are able to look at this if you attend A&E, Ambulance, call Out of Hours GPs or attend a Walk in Centre/Minor Injuries Unit.

• If you are able, they need to ask your permission to view this information.

• If you are unable (unconscious etc.), they can view without your permission but this alerts a senior person in their organisation.

Care.Data

• This is information that the NHS use to manage services and quality across the country.

• It only takes some of your information• It identifies you so it can match you to other

parts of the NHS where you may be treated• Information that identifies you can ONLY be

used by the NHS

Care.Data - Cont

• Information that is extracted can be stripped of anything that can identify you and then used for research purposes.

• You have a choice• Agree to your information being used – do nothing, this

will happen automatically• Agree for the NHS only to use your information to

manage services and quality – Inform your practice so they can code this

• Do not agree for your information to be used at all – inform your practice so it can be coded.