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Overview
SBIRC + SINAPSE
Regulatory Framework
Project Data
Current Practice
Current Developments
SBIRC
SFC Brain Imaging Research Centre• Situated at WGH• ~12,000 subjects studied in 11 yrs• Provides Imaging and technical support for
studies in:• Psychiatry• Psychology• Stroke• Oncology
WE ALSO DO OUR OWN RESEARCH!
SINAPSE
SINAPSE
• Consortium of six Scottish universities
• Collaborative research in Brain Imaging
• Support and connections to CRNs
• Data distribution, storage and cataloguing• Second phase to provide processing and
applications
SBIRC + SINAPSE
Who do we acquire imaging from:
NHS Patients
– Service provision to NHS
NHS Patients in Research studies
Volunteers
Regulatory Framework
Data Protection Act:Personal data should not be held longer than necessaryCannot be reused
R&D Ethics Committee:Time frame should be placed upon retention periodCannot be reused
MRHA:Data should be retained
Project Data
ACTIVITY!
BOP
Ethics, R&D
Insurance
Internal Forms
Raw Data
‘Image Data’
Subject Data
Paradigm
Proc’ Data
‘Image Data’
Study Results
Data Bases
Publications
Reports
Journal Papers
Applications
Source Code
Processing scripts
ARCHIVECOMMUNITY
RESOURCE
ACTIVITY
Project Data
Raw Data:
Usually in standard format (DICOM, e-Prime)
Processed Data:
Various formats (often excel, word)
Varies from project to project
Software:
Often closed source
No version control
Current Practice
Raw Data:
Archived on CD / Tape - NAS
Processed Data:
Responsibility of PI
Software:
Version control available
poor uptake
Not centrally available
Not open source
Future Developments
SOPs to cover archiving of project data –
Including:
Creation of data dictionaries
Documenting analysis procedures
Specifying preferred data formats
BUT….
not popular – does not publish papers (RAE)!
HOWEVER….
Some data is very valuable and should be captured
(LBC 1936, 1921 Cohort)
