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Sexual Violence Against People with Disabilities: Examining the Problem from a New Lens, Part 1 FCASV Sexual Violence Training Summit 2012 Wednesday, May 9, 2012 – 10:45 am to 12:15 pm Nancy M. Fitzsimons, PhD, MSW, Professor Minnesota State University, Mankato [email protected] Nancy M. Fitzsimons, PhD, MSW, 1 5/18/2012

Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW [email protected] 507-389-1287 Minnesota State University,

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Page 1: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Sexual Violence Against People with Disabilities: Examining the Problem from a New Lens, Part 1 FCASV Sexual Violence Training Summit 2012 Wednesday, May 9, 2012 – 10:45 am to 12:15 pm

Nancy M. Fitzsimons, PhD, MSW, Professor

Minnesota State University, Mankato

[email protected]

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Page 2: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Defining Disability

• Legal definitions

• Americans with Disabilities Act (federal)

• Vocational Rehabilitation Act (federal)

• state statutes

• SSDI/SSI (federal benefits)

• Medical definitions

• International Classification of Diseases, Functioning and Disabilities (ICD-10)

• Diagnostic and Statistical Manual (DSM-IV TR)

• Educational definitions

• Individuals with Disabilities Education Act (IDEA)

• Categorical vs. functional vs. social model 2

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Page 3: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Broad Categories of

Disability

Physical

Sensory

Cognitive

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Psychiatric

Typically involve the motor system and place some limitations on the person’s ability to move his/her body.

Impacts the senses of sight, hearing, balance, smell, taste or touch.

Impacts a person’s thinking, learning, reasoning, problem-solving, information processing, or memory.

A mental health condition that significantly interferes with a person’s ability to perform major life activities.

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Page 4: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Magnitude of the Problem • Violent crime 1.5 times higher • Rape/sexual assault 2 times

higher • Females with disabilities

higher rate than males with disabilities

• Males with disabilities higher rate than females without disabilities

• Persons with cognitive disabilities higher rate than people with any other type of disability.

Source: Bureau of Justice Statistics, Crimes Against People with Disabilities, 2007 (Civilian non-institutionalized population), www.ojp.usdoj.gov/bjs/pub/pdf/capdo7.pdf

• Violent crime 2 to 3 times times higher

• Rape/sexual assault 2 times higher

• Females with disabilities higher rate than males with disabilities

• Males with disabilities higher rate than females without disabilities

• Persons with cognitive disabilities had the highest rate of violent victimization.

Source: Bureau of Justice Statistics, Crimes Against People with Disabilities, 2008 (Civilian non-institutionalized population)

http://bjs.ojp.usdoj.gov/index.cfm?ty=pbdetail&iid=2019

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Page 5: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Fitzsimons, N. (2009). Combating violence and abuse of people with disabilities: A call to action. Baltimore, MD: Paul H Brookes Publishing.

The book was written for people with disabilities and allies (family, friends, advocates, people working in criminal justice, disability services, victim services, adult protection services)

Use of presentation materials should clearly credit in writing the author of these training materials.

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MUCH OF THE MATERIAL FOR THIS PRESENTATION IS COPY WRITTEN, BASED ON MATERIAL FROM THE BOOK:

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Page 6: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Focus of Workshop

1. Personal-Professional Lens

2. Jeopardy

3. Ecological Theory

4. Vulnerability

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Page 7: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Personal and Professional Lens

• What do you think of when you hear the words:

• Special needs

• Disabled

• Handicapped

• Mentally retarded

• Brain damaged

• Non-verbal

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Page 8: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

• What other words commonly used to refer to people with disabilities?

The Power of Language

Very Negative Neutral Very Positive

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Page 9: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

• Disabled

• Confined to a wheelchair

• Suffering from …

• Special ________________

• Non-verbal or non-communicative

• Birth defect

• Brain damaged

• Case manager

Dissecting “Words”

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Page 10: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

The Power of Language/Words…

The devaluation or marginalization of a person or group begins with language (Snow, 2005, p. 112).

Negative Beliefs & Attitudes

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Page 11: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Dehumanization Cycle (Fitzsimons, 2009; Sobsey, 1994, p.

316)

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Belief

Belief that people with disabilities are

less than human

Action

Inhumane

treatment justified

by belief

Outcome

Atypical

behavior as a result

of inhumane treatment

Observation

Confirmation of

dehumanizing belief

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Page 12: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

The “R” Word

•Offense Taken: A Community Response to the “R” word. • www.offensetaken.org

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Page 13: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

http://www.disabilityisnatural.com

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Page 14: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Competence vs. Humility (Illinois Images Project, 2010;Tervalon &

Murry-Garcia, 1997)

Disability Competence

• Staff need extensive training beforehand

• Staff are viewed as the “experts.

• Tends to identify people with disabilities as a uniform group.

• Never say, “I don’t know.”

• Mindset: “I know what is best for you.”

Disability Humility

• Staff do not need extensive training

• Individuals viewed as experts on themselves & own needs

• Treat each person with a disability as a unique individual

• Be willing to say, “I don’t know.”

• Mindset: “I am open, curious, honest, ready and willing to learn.”

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Page 15: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Intellectual

Disability Lesbian

Woman

Native American

Older Adult

PERSON

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Multiple Jeopardy

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Page 16: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Integrated Ecological Theory of Abuse (Originally proposed by Sobsey, 1994; adapted by Fitzsimons, 2009; Fitzsimons, 2010)

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Higher Risk Individuals Higher Risk Carers/Offenders

Characteristics

Higher Risk Environment Characteristics

Societal Culture, Policies, Systems

Less able to physically defend self

Uses alternative forms communication

Lack critical information Learned helplessness Learned compliance Underdeveloped sense

of personal space/boundaries

Greater dependence upon others

Desire to please or be accepted by others

Few alternative to exploitation

Viewed negatively by others

Engage in “problematic” behaviors

Multiple carer Multiple service

settings Not viewed as credible

reporter of abuse

Need to exert control over others

Lack of control over own life

Authoritarian Low self-esteem Displaced

aggression Don’t respect

confidentiality, right to privacy & automomy

Exposed to abusive models

Little attachment to service recipients

Devaluing attitudes towards people with disabilities

Impulsive behaviors

Emphasizes control Teaches/reinforces

compliance Attracts abusers Eliminates non-abusers Provides awarded models of

aggression Covers-up reports of abuse Many /transient carers Dehumanizing policies and

practices Clusters people with greatest

risk Discourages attachment Isolation Fails to protect reporters Closed culture – little input

from outside Justifies abusive practices as

“behavior management” Unjust balance of power Discourages friends/visitors Readily accepts excuses for

abuse

Devalues people with disabilities

Laws &policies that disempower people with disabilities

Teaches/reinforces compliance

Emphasizes vulnerabilities

Reinforces control, power imbalances, aggression

Denies problems Supports

institutional & segregated systems of support and care

Discourages solutions targeting root cause

Promotes “them” and “Us” mentality

Limits right to autonomy

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Page 17: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Learned Helplessness

• “The belief that one’s actions have no influence on future outcomes” (Sobsey, 1994, p. 164 as cited in Fitzsimons, 2009, p. 91)

Learned Helplessness

Compliance Training

Learned Compliance

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Page 18: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

The ‘Rules’ people with disabilities (particularly people with ID/DD) often have to live by.

• Don’t ask for much

• Don’t get anyone else in trouble

• Obey the rules…don’t be a troublemaker

• Always obey anyone who acts “in charge”

• Act nice

• Don’t get angry

• Don’t ask for much

• Other’s opinions are important – not yours

• It is bad, dangerous, noncompliant to: • Be assertive

• Have an opinion

• Say “no”

• Assert one’s right

Can result in being labeled

as having a “BEHAVIOR” or

being a “BEHAVIOR PROBLEM”

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Page 19: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

• Individuals and institutions that control access to information, resources, opportunities…

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Gatekeeping

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Page 20: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Excerpt from Rape Poem

“There is no difference between being raped

And going head first through a windshield

Except that afterward you are afraid

Not of cars

But half the human race.” by Marge Piercy

Diminished Recognition of Impact on Victims

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Page 21: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Physical Psychological Social

Physical injuries Posttraumatic Stress Disorder (PTSD)

Difficulty in re-learning trust

Stress-induced physical health problems • Headaches, stomach

ailments, ulcers, irritable bowel syndrome, colitis, high blood pressure, heart palpitations, allergic skins reactions

• Depression • Borderline Personality

Disorder • Dissociative Disorders • Somatization Disorders • Self-Mutilation • Easting Disorders • Panic & Anxiety Disorders • Phobias

• Involuntary fear, mistrust of “care providers”

• Strain on or disruption of relationships

Increased presence of negative health behaviors • substance abuse,

alcoholism, attempted suicide, high-risk sexual behavior, unhealthy diet-related behaviors

• Anger/Hostility • Suicidality • Anxiety • Low self-esteem • Fear of physical safety,

intimacy, retaliation, re-victimization

• Emotional detachment

• Reluctance to enter into new relationships

• Avoidance of crowds • Voluntary social isolation

Impact of Sexual Violence & Other Traumatic Experiences (Afifi, et al., 2010; CDC, 2009; Cohen & Swift, Coker, et al., 2002; Corso, et al, 2007; Dutton et al, 2006; Matich-Maroney, 2003; Matich-Maroney, et al., 2007; Ryan, 1994; Sequeira, 2006)

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Page 22: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Diagnostic overshadowing (Burke & Beford, 1995; Matich-Maroney et al., 2007; Razza &

Tomasulo, 2005)

• Attribute “symptoms” or “behaviors” to the “disability” rather than: • Mental health concern

• Indicator of sexual victimization or other abuse

• Response to sexual victimization or other trauma

• Psychological crisis in relation to developmental milestones

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Page 23: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Reasons for Increased Vulnerability

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• Often dependent on others for care and support (varying degrees) – compounded by systemic barriers

• Communication challenges (varying degrees) and barriers

• Greater challenges in taking risk-reducing precautions or resisting abuse compounded by systemic barriers

• Often lack economic independence (varying degrees)

• Stereotypes and negative attitudes

• Less risk of discovery of as perceived by offender

• Failure to be believed when a report is made

• Lack of participation in sexuality education, interpersonal relationships, personal safety

• Fewer opportunities to engage in healthy interpersonal & intimawte relationships

• Social isolation - segregation

• Overprotection

• Physical barriers to accessing supports and services (Fitzsimons, 2009, p. 29)

Much of the RISK

is SOCIALLY CREATED

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Page 24: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Vulnerability and People with Disabilities

• Do not assume that every person with a disability is…

• Equally vulnerable

• Unable to assess her or his own risk

• Unable to protect his or her self

• Unable to make informed decisions about his or her life and future

• Unable to make choices about what is in her or his best interest

• Dependent upon other for physical and financial care and support

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Page 25: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

Societal Level

Community Level

Relationship Level

Individual Level

Examining “Disability” and the Problem of & Solutions For Sexual Violence from a “New” Lens

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Page 26: Sexual Violence Against People with Disabilities ......Nancy M. Fitzsimons, PhD, MSW, 26 Nancy M. Fitzsimons, PhD, MSW Nancy.fitzsimons@mnsu.edu 507-389-1287 Minnesota State University,

My Contact Information

Nancy M. Fitzsimons, PhD, MSW,

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Nancy M. Fitzsimons, PhD, MSW

[email protected]

507-389-1287

Minnesota State University, Mankato

Department of Social Work

358 Trafton Science Center North

Mankato, MN 56001

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