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Selected Resources for Grieving Parents, Their Families, Friends, and Other Caregivers Introduction Resources Helping Parents, Family Members, and Friends Deal with Loss Resources Helping Children and Teens Dealing with Loss Resources for Health Care Professionals, Caregivers, Educators, Clergy, and Funeral Directors Journal Articles Dealing with Bereavement and Grief Religious Books Dealing with Loss Spanish Materials Selected Organizations Selected Journals and Newsletters Selected Publishers Introduction The death of an infant or young child is a devastating tragedy for parents, family members, and other caretakers. A time of crisis follows which is typically very overwhelming and stressful. Sometimes, loved ones may experience a complicated grief process and need emotional support and resources for bereavement. The accompanying list, developed by the National SIDS/Infant Death Resource Center (NSIDRC), provides information about selected publications, organizations, and other resources developed for bereaved parents and family members. In addition, there are resources for caregivers and professionals who work with parents. We have also divided special topics into categories such as materials for children and teens, religious books, Spanish resources, journal articles, and selected publishers. Although this list is not exhaustive, it does include highly recommended materials contained in the NSIDRC collection. Experts in the field of grief and bereavement have made suggestions and we welcome information about additional resources. Every effort is made to ensure that the details for each entry are as correct as possible. Please contact the NSIDRC staff at (866) 866-7437 or at [email protected] for further information or to provide comments. 1

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Page 1: Selected Resources for Grieving Parents, Their Families, Friends

Selected Resources for Grieving Parents, Their Families, Friends, and Other Caregivers

• Introduction • Resources Helping Parents, Family Members, and Friends Deal with Loss • Resources Helping Children and Teens Dealing with Loss • Resources for Health Care Professionals, Caregivers, Educators, Clergy, and

Funeral Directors • Journal Articles Dealing with Bereavement and Grief • Religious Books Dealing with Loss • Spanish Materials • Selected Organizations • Selected Journals and Newsletters • Selected Publishers

Introduction The death of an infant or young child is a devastating tragedy for parents, family members, and other caretakers. A time of crisis follows which is typically very overwhelming and stressful. Sometimes, loved ones may experience a complicated grief process and need emotional support and resources for bereavement. The accompanying list, developed by the National SIDS/Infant Death Resource Center (NSIDRC), provides information about selected publications, organizations, and other resources developed for bereaved parents and family members. In addition, there are resources for caregivers and professionals who work with parents. We have also divided special topics into categories such as materials for children and teens, religious books, Spanish resources, journal articles, and selected publishers. Although this list is not exhaustive, it does include highly recommended materials contained in the NSIDRC collection. Experts in the field of grief and bereavement have made suggestions and we welcome information about additional resources. Every effort is made to ensure that the details for each entry are as correct as possible. Please contact the NSIDRC staff at (866) 866-7437 or at [email protected] for further information or to provide comments.

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Page 2: Selected Resources for Grieving Parents, Their Families, Friends

Resources Helping Parents, Family Members, and Friends Deal with Loss Flying Hugs and Kisses Sample J, Centennial, CO: Lifevest Publishing. 2006. 32p. Available from Lifevest Publishing, 4901 East Dry Creek Road, #170, Centennial, CO 80122. (877) 843-1007 (toll-free), [email protected] (e-mail), http://authorstobelievein.com/children.htm (not a U.S. Government Web site). ISBN 1-599879-119-2. Missing Hannah: Based on a True Story of Sudden Infant Death Kane D. Bloomington, IN: AuthorHouse. 2006. 27p. Available from AuthorHouse 1663 Liberty Dr, Ste 200, Bloomington, IN 47403. (888) 519-5121 (toll-free), www.authorhouse.com (not a U.S. Government Web site). ISBN 1-4529-0136-0. The Death of a Child, The Grief of the Parents: A Lifetime Journey Revised Edition. McLean, VA: National SIDS/Infant Death Resource Center (NSIDRC), 2005. Available from NSIDRC, 8280 Greensboro Drive, Suite 300, McLean, VA 22102. (866) 866-7437 (toll-free), (703) 821-8955, (703) 821-2098 (fax), [email protected] (e-mail), www.sidscenter.org (not a U.S. Government Web site). Available full-text at: www.sidscenter.org (not a U.S. Government Web site). Someone very Important has just Died: Immediate help for people caring for Children of all ages at the time of a Close Bereavement Turner M. Philadelphia, PA: Jessica Kingsley Publishers. 2005. 40p. Available from Jessica Kingsley Publishers, 400 Market St., Ste 400, Philadelphia, PA 19106. (215) 922-1161, (215) 922-1474 (Fax) [email protected] (e-mail), www.jkp.com (not a U.S. Government Web site). ISBN 1-84310-295-1. A Child’s View of Grief: A Guide for Parents, Teachers, and Counselors Wolfelt AD.Fort Collins, CO: Companion Press. 2004. 52p. Available from Companion Press, The Center for Loss and Life Transition 3735 Broken Bow Road, Fort Collins, CO 80526. (970) 226-6050, (800) 922-6051 (Fax), [email protected] (e-mail), www.centerforloss.com (not a U.S. Government Web site). ISBN 1-879651-43-2. Hope is like the sun: Finding Hope and Healing after Miscarriage, Stillbirth, or Infant Death Church L. Hampton, VA: HopeXchange Publishing, 2004, 174p. Available from HopeXchange Publishing, 26 Towne Centre Way # 731, Hampton, VA

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23666-1999. (757) 826-2162, www.hopexchange.com (not a U.S. Government Web site). ISBN 0-9748699-6-1. Waiting for Gabriel: A Story of cherishing a Baby's Brief Life Kuebelbeck A. Chicago, IL: Loyola Press, 2004. 174p. Available from Loyola Press, 3441 North Ashland Avenue, Chicago, IL 60657. (800) 621-1008, (773) 281-0555 (Fax), [email protected] (e-mail), www.loyolapress.com (not a U.S. Government Web site). ISBN 0-8294-1603-X. Gaby D. a Mother's Journey through Grief O'Neill K.Lincoln, NE: IUniverse Inc., 2004. 71p. Available from IUniverse, Inc. 2021 Pine Lake Road, Ste 100, Lincoln, NE 68512. (877) 288-4737 (toll-free), (402) 323-7800, (402) 323-7824 (Fax), [email protected] (e-mail), www.iuniverse.com (not a U.S. Government Web site). ISBN-0-595-32279-4. Sudden Infant Death Syndrome: Surviving the Death of a Baby Baltimore, MD: First Candle/SIDS Alliance, 2004. 11 p. Available from National SIDS/ID Program Support Center, 1314 Bedford Avenue, Suite 210, Baltimore, MD 21208. (410) 415-6628, (800) 221-7437 (toll-free), (410) 653-8709 (fax), [email protected] (e-mail), www.firstcandle.org/health/health_human.html (not a U.S. Government Web site). The Death of a Child: Reflections for Grieving Parents Stillwell E. Chicago, IL: ACTA Publications, 2004. 160 p. Available from ACTA Publications, 4848 N. Clark Street, Chicago, IL 60640-4711. (800) 397-2282 (toll-free), (773) 271-1030, (800) 397-0079 (fax), [email protected] (e-mail), www.actapublications.com (not a U.S. Government Web site). ISBN 0-87946-260-4. A Guide for Fathers: When a Baby Dies Nelson T. St. Paul, MN: A Place to Remember, 2004. 66 p. Available from A Place to Remember, 1885 University Avenue, Suite 110, St. Paul, MN 55104. (612) 645-7045, (800) 631-0973 (toll-free), (612) 645-4780 (fax), [email protected] (e-mail), www.aplacetoremember.com (not a U.S. Government Web site). Fathers Grieve, Too: For Fathers Who Have Experienced the Death of a Child Johnson J, Johnson SM, et al. Omaha, NE: Centering Corporation, 2004. 4 p. Available from Centering Corporation, P.O. Box 4600, Omaha, NE 68104. (402) 553-1200, (402) 553-0507 (fax), [email protected] (e-mail), www.centering.org (not a U.S. Government Web site). ISBN 56123-116-9.

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Children Die, Too: A Book for Parents Who Have Experienced the Death of a Child Revised Edition. Johnson J, Johnson SM. Omaha, NE: Centering Corporation, 2004. 10 p. Available from Centering Corporation, P.O. Box 4600, Omaha, NE 68104. (402) 553-1200, (402) 553-0507 (fax), [email protected] (e-mail), www.centering.org (not a U.S. Government Web site). Miscarriage: A Book for Parents Johnson J, Johnson SM, et al. Omaha, NE: Centering Corporation, 2004. 24 p. Available from Centering Corporation, P.O. Box 4600, Omaha, NE 68104. (402) 553-1200, (402) 553-0507 (fax), [email protected] (e-mail), www.centering.org (not a U.S. Government Web site). ISBN 56123-007-3. Do and Don't Suggestions for the Bereaved and Their Caregivers Gambill A. Colorado Springs, CO: Bereavement Publishing, Inc., 2004. 4 p. Available from Bereavement Publishing, Inc. 4765 North Carefree Circle, Colorado Springs, CO 80917-2118. (888) 604-4673 (toll-free), (719) 266-0006, (719) 266-0012 (fax), [email protected] (e-mail), www.bereavementmag.com (not a U.S. Government Web site). When a Child Dies…The Compassionate Friends Can Help Oak Brook, IL: The Compassionate Friends, 2004. 2 p. Available from The Compassionate Friends, P.O. Box 3696, Oak Brook, IL 60522-3696. (877) 969-0010 (toll-free), (630) 990-0246, [email protected] (e-mail), www.compassionatefriends.org (not a U.S. Government Web site). Life Touches Life: A Mother's Story of Stillbirth and Healing Ash L. Troutdale, OR: New Sage Press, Inc., 2004. 192 p. Available from New Sage Press Ltd., P.O. Box 607, Troutdale, OR 97060. (503) 695-2211, (877) 695-2211 (toll-free), (503) 695-5406 (fax), [email protected] (e-mail), www.newsagepress.com (not a U.S. Government Web site). ISBN 0-93916-550-3. When a Baby Dies: A Handbook for Healing and Helping Limbo RK, Wheeler SR. La Crosse, WI: Bereavement Services, 2003. 165 p. Available from Bereavement Services, 1910 South Avenue, La Crosse, WI 54601. (800) 362-9567 (toll-free), (608) 775-4747, (608) 775-5137 (fax), [email protected] (e-mail), www.bereavementprograms.com (not a U.S. Government Web site). ISBN 0-9607098-4-3. Mommy, Please Don't Cry: There Are No Tears in Heaven DeYmaz L. Sisters, OR: Multnomah Gifts, 2003. 48 p. Available from Multnomah Gifts, P.O. Box 1720, Sisters, OR 97759. (541) 549-1144, [email protected] (e-mail), www.multnomahbooks.com (not a U.S.

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Government Web site). ISBN 59052-151-X. Heart Works: A Father's Grief Peterson J. Portland, OR: Heart Works Publishing, 2003. 83 p. Available from Heart Works Publishing, 930 SE Sandy Boulevard, Portland, OR 97214. (503) 236-1350, (503) 236-8555 (fax), [email protected] (e-mail), www.heart-work-publishing.com (not a U.S. Government Web site). ISBN 09729377-1-4. SIDS and Infant Death Survival Guide: Information and Comfort for Grieving Family and Friends and Professionals Who Seek to Help Them Horchler JN, Rice R. Cheverly, MD: SIDS Educational Services, 2003. 320 p. Available from SIDS Educational Services, Inc., 2905 64th Avenue, Cheverly, MD 20785. (301) 322-2620, (877) 935-6839 (toll-free), (301) 322-9822 (fax), [email protected] (e-mail), www.sidssurvivalguide.org (not a U.S. Government Web site). ISBN 0-9641218-2-4. SIDS Hoppenbrouwers T, Hodgman J. Los Angeles, CA: Women's and Children's Hospital, 2004. 93 p. Available from San Diego Guild for Infant Survival, 9807 Highdale Road, Santee, CA 92071. www.sandiegosids.org (not a U.S. Government Web site). ISBN 0742663-0-2. In the Presence of Grief: Helping Family Members Resolve Death, Dying, and Bereavement Issues Becvar DS. New York, NY: Guilford Press, 2003. 284 p. Available from Guilford Press, 72 Spring Street, New York, NY 10012. (800) 365-7006 (toll-free), (212) 431-9800, (212) 966-6708 (fax), [email protected] (e-mail), www.guilford.com (not a U.S. Government Web site). ISBN 57230-937-7. Not Just Another Day: Families, Grief and Special Days Throckmorton ML. Omaha, NE: Centering Corporation, 2003. 16 p. Available from Centering Corporation, P.O. Box 4600, Omaha, NE 68104. (402) 553-1200, (402) 553-0507 (fax), [email protected] (e-mail), www.centering.org (not a U.S. Government Web site). ISBN 56123-055-3. Silent Birth. When Your Baby Dies Revised Edition. Covington SN. Minneapolis, MN: Fairview Press, 2003. 16 p. Available from Fairview Press, 2450 Riverside Avenue, Minneapolis, MN 55454. (800) 544-8207 (toll-free), (612) 672-4180, (612) 672-4980 (fax), [email protected] (e-mail),

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www.fairview.org (not a U.S. Government Web site). ISBN 57749-144-0. Stillbirth, Miscarriage and Infant Death-Understanding Grief Oak Brook, IL: The Compassionate Friends, 2003. 2 p. Available from The Compassionate Friends, P.O. Box 3696, Oak Brook, IL 60522-3696. (877) 969-0010 (toll-free), (630) 990-0246, [email protected] (e-mail), www.compassionatefriends.org (not a U.S. Government Web site). Being with Parents After Their Child or Baby Dies: For Friends and Relatives of Grieving Parents Johnson J, Johnson SM, et al. Omaha, NE: Centering Corporation, 2003. 4 p. Available from Centering Corporation, P.O. Box 4600, Omaha, NE 68104. (402) 553-1200, (402) 553-0507 (fax), [email protected] (e-mail), www.centering.org (not a U.S. Government Web site). When Your Baby Dies...A Gentle Guide for Teenage Parents Sanders DB. Rancho Cordova, CA: California SIDS Program, Maternal and Child Health Branch, California Department of Health Services, 2003. 18 p. Available from California SIDS Program, 11344 Coloma Rd, Suite 560, Gold River, CA 95670-6304. (916) 851-7437, (800) 369-7437 (toll-free in CA), (916) 851-5937 (fax), [email protected] (e-mail), www.californiasids.com (not a U.S. Government Web site). Your Next Baby: For Parents and Families Who Have Experienced a Miscarriage, Stillbirth or Infant Death and Are Now Expecting a Baby Johnson J, Johnson SM, et al. Omaha, NE: Centering Corporation, 2002. 4 p. Available from Centering Corporation, P.O. Box 4600, Omaha, NE 68104. (402) 553-1200, (402) 553-0507 (fax), [email protected] (e-mail), www.centering.org (not a U.S. Government Web site). Dear Cheyenne: A Journey into Grief, A Collection of Love, Faith and Miracles. A Book for Bereaved Parents and for Those Who Love Them Cacciatore-Garard J. Peoria, AZ: MISS Foundation, 2002. 145 p. Available from MISS Foundation, P.O. Box 5333, Peoria, AZ 85385-5333. (623) 979-1000, (623) 979-1001 (fax), [email protected] (e-mail), www.missfoundation.org (not a U.S. Government Web site). ISBN 0-9717-2665-5. The Angel with the Golden Glow: A Family's Journey through Loss and Healing Al-Chokhachy E. Gloucester, MA: Works of Hope Publishing, 2001. 32 p. Available from Works of Hope Publishing, 149 Eastern Avenue, Gloucester, MA 01930. (877) 887-2828 (toll-free), www.worksofhope.com (not a U.S. Government Web site). ISBN 893356-00-0.

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How Do We Tell the Children? A Step-by-Step Guide for Helping Children Two to Teen Cope When Someone Dies Schaefer D, Lyons C. New York, NY: Newmarket Press, 2001. 208 p. Available from Newmarket Press, 18 East 48th Street, 15th Floor, New York, NY 10017. (800) 669-3903 (toll-free), (212) 832-3575, (212) 832-3629 (fax), www.newmarketpress.com (not a U.S. Government Web site). ISBN 55704-425-2. Helping Children Grieve: Sudden Infant Death Syndrome Sanders DB. Rancho Cordova, CA: California SIDS Program, Maternal and Child Health Branch, California Dept. of Health Services, 2001. 8 p. Available from California SIDS Program, 11344 Coloma Rd, Suite 560, Gold River, CA 95670-6304. (916) 851-7437, (800) 369-7437 (toll-free in CA), (916) 851-5937 (fax), [email protected] (e-mail), www.californiasids.com (not a U.S. Government Web site). Facts and Feelings: Sudden Infant Death Syndrome Rancho Cordova, CA: California SIDS Program, Maternal and Child Health Branch, California Department of Health Services, 2001. 14 p. Available from California SIDS Program, 11344 Coloma Rd, Suite 560, Gold River, CA 95670-6304. (916) 851-7437, (800) 369-7437 (toll-free in CA), (916) 851-5937 (fax), [email protected] (e-mail), www.californiasids.com (not a U.S. Government Web site). A Silent Sorrow: Pregnancy Loss Guidance and Support for You and Your Family Kohn I, Moffit PL, Wilkins IA. Florence, KY: Routledge Taylor & Francis Group, 2000. 317 p. Available from Taylor & Francis Group/ Routledge, 7625 Empire Drive, Florence, Kentucky 41042. (800) 634-7064 (toll-free), (800) 248-4724 (fax), [email protected] (e-mail), www.routledge-ny.com (not a U.S. Government Web site). ISBN 0-415-92481-2. Grandparents Cry Twice: Help for Bereaved Grandparents Reed ML. Amityville, NY: Baywood Publishing Company, Inc., 2000. 127 p. Available from Baywood Publishing Company, Inc., 26 Austin Avenue, P.O. Box 337, Amityville, NY 11701. (800) 638-7819 (toll-free), (631) 6911270, (631) 691-1770 (fax), [email protected] (e-mail), www.baywood.com (not a U.S. Government Web site). ISBN 0-89503-204-X. What Will Help Me? 12 Things to Remember When You Have Suffered a Loss. How Can I Help? 12 Things to Do When Someone You Know Suffers a Loss. Miller JE. Fort Wayne, IN: Willowgreen Publishing, 2000. 63 p. Available from Willowgreen Publishing, 10351 Dawson's Creek Boulevard, Suite B, Fort Wayne, IN 46825. (260) 490-2222, (260) 497-9622 (fax), [email protected] (e-mail), www.willowgreen.com (not a U.S. Government Web site). ISBN 885933-19-3.

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When a Grandchild Dies: What to Do, What to Say, How to Cope Galinsky N. Houston, TX: Gal in Sky Publishing Company, 1999. 130 p. Available from Gal in Sky Publishing Company, P.O. Box 70976, Houston, TX 77270. (713) 880-8089, (713) 864-6689 (fax). ISBN 0-9674416-0. How Can I Help? Suggestions for People Who Care About Someone Whose Baby Has Died Before Birth Wegner-May M. St. Paul, MN: A Place to Remember, 1999. 20 p. Available from A Place to Remember, 1885 University Avenue, Suite 110, St. Paul, MN 55104. (751) 645-7045, (800) 631-0973 (toll-free), (651) 645-4780 (fax), [email protected] (e-mail) www.aplacetoremember.com (not a U.S. Government Web site). Reaching Out … Do's and Don'ts Revised Edition. Seattle, WA: SIDS Foundation of Washington, 1999. 2 p. Available from SIDS Foundation of Washington, 4649 Sunnyside Avenue North, Room 348, Seattle, WA 98103. (206) 548-9290 (Seattle), (509) 4560505 (Spokane), (800) 533-0376 (toll-free in WA), (206) 548-9445 (fax), [email protected] (e-mail), www.sidsofwa.org (not a U.S. Government Web site). When a Baby Dies Boston, MA: Massachusetts Center for SIDS, 1998. 12 p. Available from Massachusetts Center for SIDS, Boston Medical Center, 1 Boston Medical Center Place, Boston, MA 02118-2393. (617) 414-7437, (800) 641-7437 (toll-free in MA and RI), (617) 414-5555 (fax), [email protected] (e-mail), www.bmc.org/pediatrics/special/SIDS (not a U.S. Government Web site). Grieving as a Family Luebering C. St. Meinrad, IN: Abbey Press, 1998. 7 p. Available from Abbey Press, One Caring Place, 1 Hill Drive, St. Meinrad, IN 47577. (800) 3252511 (toll-free), (800) 320-8670 (fax), [email protected] (e-mail), www.abbeypress.com (not a U.S. Government Web site). Family and Friends: How You Can Help Limbo RK, Wheeler SR, Gensch BK. La Crosse, WI: Bereavement Services, 1996. 4 p. Available from Bereavement Services, 1910 South Avenue, La Crosse, WI 54601. (608) 275-4747, (800) 362-9567, ext 54747 (toll-free), (608) 775-5137 (fax), [email protected] (e-mail) www.bereavementprograms.com (not a U.S. Government Web site). Resources Helping Children and Teens Dealing with Loss Flying Hugs and Kisses Sample J, Centennial, CO: Lifevest Publishing. 2006. 32p.

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Available from Lifevest Publishing, 4901 East Dry Creek Road, #170, Centennial, CO 80122. (877) 843-1007 (toll-free), [email protected] (e-mail), http://authorstobelievein.com/children.htm (not a U.S. Government Web site). ISBN 1-599879-119-2. Missing Hannah: Based on a true story of Sudden Infant Death Kane D. Bloomington, IN: AuthorHouse. 2006. 27p. Available from AuthorHouse, 1663 Liberty Dr, Ste 200, Bloomington, IN 47403. (888) 519-5121, www.authorhouse.com (not a U.S. Government Web site). ISBN 1-4529-0136-0 Children also Grieve: Talking About Death and Healing. Goldman L. Philadelphia, PA: Jessica Kingsley Publishers, 2006. 79p. Available from Jessica Kingsley, Taylor & Francis Group, 400 Market St. Ste 400, Philadelphia, PA 19106. (215) 922-1161, (866) 416-1078 (toll-free), (215) 922-1474 (Fax), [email protected] (e-mail), www.jkp.com (not a U.S. Government Web site). ISBN- 1-84310-808-9. Tell me, Papa: Answers to Questions Children Ask About Death and Dying J Johnson, M Johnson,Omaha, NE: Centering Corporation, 2005. 31p. Available from Centering Corporation, PO Box 4600, Omaha, NE 68104. (402) 553-1200, (402) 553-0507 (Fax), [email protected] (e-mail), www.centering.org (not a U.S. Government Web site). Life Touches Life: A Mother's Story of Stillbirth and Healing Ash L. Troutdale, OR: New Sage Press, Inc., 2004. 192 p. Available from New Sage Press, Inc., P.O. Box 607, Troutdale, OR 97060. (503) 695-2211, (877) 695-2211 (toll-free), (503) 695-5406 (fax), [email protected] (e-mail) www.newsagepress.com (not a U.S. Government Web site). Always and Forever Durant A, Gliori D. San Diego, CA: Harcourt Publishers, 2004. 32 p. Available from Harcourt Publishers, 525 B Street, Suite 1900, San Diego, CA 92101. (691) 231-6616, www.harcourtbooks.com (not a U.S. Government Web site). ISBN 0-1521-6636-X. Gentle Willow: A Story for Children About Dying Mills JC. Washington DC: Magination Press. 2003. 32p. Available from Magination Press, American Psychological Association, 750 First Street, NE, Washington DC 20002. (800) 374-2721 (toll-free), (202) 336-5502 (Fax), [email protected] (e-mail), www.maginationpress.com (not a U.S. Government Web site). ISBN 1-59147-072-2. When Bad Things Happen: A Guide to Help Kids Cope O’Neal T, Alley RW ill, St. Meinrad, IN: Abbey Press. 2003. 28p. Available from Abbey Press, One Caring Place, 1 Hill Drive, St. Meinrad, IN 47577.

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(800) 325-2511 (toll-free), 800-320-8670 (Fax), [email protected] (e-mail) www.abbeypress.com/ (not a U.S. Government Web site). Penny Bear's Gift of Love: A Story of Friendship Between a Grieving Young Boy and a Magical Little Bear Wigglesworth P. Marblehead, MA: The Penny Bear Company, Inc., 2003. 84 p. Available from Penny Bear Company, Inc., Six Elmwood Road, Marblehead, MA 01945. (781) 629-2828, [email protected] (e-mail), www.pennybear.org (not a U.S. Government Web site). ISBN 1-893356-01-9. We Were Gonna Have a Baby: But We Had an Angel Instead Schwiebert P. Chicago, IL: ACTA publications, 2003. 24 p. Available from ACTA publications, 4848 N. Clark Street, Chicago, IL 60640-4711. (800) 397-2282 (toll-free), (773) 271-1030, (800) 397-0079 (fax), [email protected] (e-mail), www.actapublications.com (not a U.S. Government Web site). ISBN 0-9724241-1-3. Where's Jess? Revised Edition. Johnson J, Johnson M. St. Paul, MN: A Place to Remember, 2003. 12 p. Available from A Place to Remember, 1885 University Avenue West, Suite 110, St. Paul, MN 55104. (800) 631-0973 (toll-free), (651) 645-7045, (651) 645-4780 (fax), [email protected] (e-mail), www.aplacetoremember.com (not a U.S. Government Web site). ISBN 1-56123-009-X. How Can I Help Papa? A Child's Journey Al-Chokhachy E. Gloucester, MA: Works of Hope Publishing, 2002. 32 p. Available from Works of Hope Publishing, 149 Eastern Avenue, Gloucester, MA 01930. (877) 887-2828 (toll-free), www.worksofhope.com (not a U.S. Government Web site). ISBN 0-9712481-0-9. This Book Is for All Kids, but Especially My Sister Libby. Libby Died Simon J. Riverside, NJ: Andrews McMeel Publishing, 2002. 32 p. Available from Andrews McMeel Publishing, Simon & Schuster, Inc., 100 Front Street, Riverside, NJ 08075. (800) 943-9839 (toll-free), (800) 943-9831 (fax), www.andrewsmcmeel.com (not a U.S. Government Web site). ISBN 0-7407-29527. When a Loved One Dies: Walking Through Grief as a Teenager (Videotape) Sherborn, MA: Aquarius Health Care Videos, 2002. 30 minutes. Available from Aquarius Healthcare Videos, 18 North Main Street, Sherborn, MA 01770. (888) 440-2963 (toll-free), (508) 650-1665 (fax), [email protected] (e-mail), www.aquariusproductions.com (not a U.S. Government Web site).

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Facing Death, Facing Grief: Teens Healing at Camp Brave Heart (Videotape) Sherborn, MA: Aquarius Health Care Videos, 2002. 22 minutes. Available from Aquarius Healthcare Videos, 18 North Main Street, Sherborn, MA 01770. (888) 440-2963 (toll-free), (508) 650-1665 (fax), [email protected] (e-mail), www.aquariusproductions.com (not a U.S. Government Web site). Healing a Child's Grieving Heart: 100 Practical Ideas for Family, Friends and Caregivers Wolfelt AD. Fort Collins, CO: Companion Press, 2001. 128 p. Available from Companion Press, Center for Loss and Life Transition, 3735 Broken Bow Road, Fort Collins, CO 80526. (970) 226-6050, (970) 226-6051 (fax), [email protected] (e-mail), www.centerforloss.com (not a U.S. Government Web site). ISBN 1-8796-5128-9. Healing Your Grieving Heart for Teens: 100 Practical Ideas for Family, Friends and Caregivers Wolfelt AD. Fort Collins, CO: Companion Press, 2001. 128 p. Available from Companion Press, Center for Loss and Life Transition, 3735 Broken Bow Road, Fort Collins, CO 80526. (970) 226-6050, (970) 226-6051 (fax), [email protected] (e-mail), www.centerforloss.com (not a U.S. Government Web site). ISBN 1-8796-5124-6. How Do We Tell the Children? A Step by Step Guide for Helping Children Two to Teen Cope When Someone Dies Schaefer D, Lyons C. New York, NY: Newmarket Press, 2001. 208 p. Available from New Market Press, 18 East 48th Street, 15th Floor, New York, NY 10017. (800) 669-3575 (toll-free), (212) 832-3629 (fax), [email protected] (e-mail), www.newmarketpress.com (not a U.S. Government Web site). ISBN 1-55704-425-2. Helping Children Grieve: Sudden Infant Death Syndrome Rancho Cordova, CA: California SIDS Program, Maternal and Child Health Bureau, California Department of Health Services, 2001. 8 p. Available from California SIDS Program, 11344 Coloma Rd, Suite 560, Gold River, CA 95670-6304. (916) 851-7437, (800) 369-7437 (toll-free), (916) 851-5937 (fax), [email protected] (e-mail), www.californiasids.com (not a U.S. Government Web site). Dancing on the Moon Roper J, Grimm L. Cheverly, MD: SIDS Educational Services, Inc., 2001. 36 p. Available from SIDS Educational Services, Inc., 2905 64th Avenue, Cheverly, MD 20785. (877) 935-6839 (toll-free), (301) 322-2620, (301) 322-9822 (fax),

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www.dancingonthemoon.org (not a U.S. Government Web site). ISBN 0-9641218-6-7. Sad Isn't Bad: A Good-Grief Guidebook for Kids Dealing with Loss Mundy M, Alley, AW. Meinrad, IN: Abbey Press, 1998. 1 p. Available from Abbey Press, One Hill Drive, St. Meinrad, IN 47577. (888) 374-4226 (toll-free), (800) 320-8670 (fax), [email protected] (e-mail), www.carenotes.com (not a U.S. Government Web site). ISBN 0-87029-321-4 What About Me? Kids and Grief (Videotape) Wheeling, IL: Film Ideas, Inc., 1992. 18 min. Available from Film Ideas, Inc. 308 North Wolf Road, Wheeling, IL 60090. (800) 475-3456 (toll-free), (847) 419-8933 (fax), [email protected] (e-mail), www.filmideas.com (not a U.S. Government Web site). Thumpy's Story: A Story of Love and Grief Shared by Thumpy, the Bunny Burnsville, NC: Compassion Books, 1985. 20 p. Available from Compassion Books, Inc., 7036 Highway 80 South, Burnsville, NC 28714. (800) 970-4220 (toll-free), (828) 675-5909 (outside U.S.), (800) 970-3350 (fax), (828) 6759687 (fax outside U.S.), [email protected] (e-mail), www.compassionbooks.com (not a U.S. Government Web site). Resources for Health Care Professionals, Caregivers, Educators, Clergy, and Funeral Directors Knowledge Path: Infant Mortality Lorenzo SB. Washington, DC: National Center for Education in Maternal and Child Health (NCEMCH), 2006. Available from NCEMCH, Georgetown University, P.O. Box 571272, Washington, DC 20057-1272. (202) 784-9770, (202) 784-9777 (fax), [email protected] (e-mail), www.mchlibrary.info (not a U.S. Government Web site). Full text available at: www.mchlibrary.info/KnowledgePaths/kp_infmort.html (not a U.S. Government Web site) Bereavement Support for the Family Suffering the Death of an Infant McLean, VA: Association of SIDS and Infant Mortality Programs, Association of Clinicians for the Underserved (ACU), 2006. Available from National SIDS/Infant Death Resource Center (NSIDRC) 8280 Greensboro Dr. Suite 300,McLean, VA 22102. (866) 866-7437, (703) 821-2098, (703) 821-2098 (Fax), [email protected] (e-mail), www.sidscenter.org/ (not a U.S. Government Web site). Full-text downloading available at: www.sidsprojectimpact.com/_assets/documents/pdf/ACU-ASIP_Bereavement.pdf (not a U.S. Government Web site)

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Caregivers Hurt too [English and Spanish versions]. Baltimore, MD: Center for Infant and Child Loss. 2005. Available from Center for Infant and Child Loss, University of Maryland, School of Medicine, 630 West Fayette Street, Room 5-684, Baltimore, MD 21201-1585.(800) 808-7437 (toll-free), (410) 706-0146 (fax), [email protected] (e-mail), www.infantandchildloss.org/ (not a U.S. Government Web site). Brief Interventions with Bereaved Children Munroe B, Kraus F. Ed. Cary, NC: Oxford University Press. 2005. 245p. Available from Oxford University Press, 2001 Evans Road, Cary, NC 27513.(800) 445-9714 (toll-free), (212) 726-6000, [email protected] (e-mail), www.oup.com/us (not a U.S. Government Web site). ISBN 0-19-852909-0. Sudden Infant Death Syndrome: Medical Dictionary, Bibliography and Annotated Research Guide Parker J, Parker P, San Diego, CA: ICON Health Publications. 2004. 280p. Available from ICON Health Publications, ICON Group International, Inc., 4370 La Jolla Village Drive, 4th Floor, San Diego, CA 92122. (858) 546-4341 (Fax), [email protected] (e-mail), www.icongrouponline.com/health (not a U.S. Government Web site). ISBN-0-597-84082-2. Responding to a Sudden, Unexpected Infant Death: The Professional's Role McLean, VA: National Sudden Infant Death Syndrome/Infant Death Resource Center (NSIDRC), 2004. 4 p. Available from NSIDRC, 8280 Greensboro Drive, Suite 300, McLean, VA 22102. (866) 866-7437 (toll-free), (703) 821-8955, (703) 821-2098 (fax), [email protected] (e-mail), www.sidscenter.org (not a U.S. Government Web site). Full text available at: www.sidscenter.org/ProfessionalRole.pdf (not a U.S. Government Web site). Sudden Unexpected Infant Death: Information for the Emergency Medical Technician McLean, VA: National Sudden Infant Death Syndrome/Infant Death Resource Center (NSIDRC), 2004. 4 p. Available from NSIDRC, 8280 Greensboro Drive, Suite 300, McLean, VA 22102. (866) 866-7437 (toll-free), (703) 821-8955, (703) 821-2098 (fax), [email protected] (e-mail), www.sidscenter.org (not a U.S. Government Web site). Full text available at: www.sidscenter.org/MedicalTechnician.pdf (not a U.S. Government Web site). Bereavement Counseling for Sudden Infant Death Syndrome (SIDS) and Infant Mortality: Core Competencies for the Health Care Professional McClain M, Arnold J. McLean, VA: Association of SIDS and Infant Mortality Programs (ASIP), 2004. 24 p. Available from National SIDS and Infant Death Project IMPACT, 8280 Greensboro Drive, Suite 300, McLean, VA 22102. (800) 930-7437 (toll-free), (703) 902-1320 (fax),

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[email protected] (e-mail), www.sidsprojectimpact.com (not a U.S. Government Web site). Full-text available at www.sidsprojectimpact.com (not a U.S. Government Web site). Infusing Cultural and Linguistic Competence into the Multiple Systems Encountered by Families Following Sudden, Unexpected Death of an Infant Bronheim S. Washington, DC: National Center for Cultural Competence (NCCC) Sudden Infant Death and Other Infant Death (SIDS/ID) Project, 2003. 12 p. Available from NCCC, Georgetown University Center for Child and Human Development, University Box 571485, Washington DC 20007. (800) 788-2066 (toll-free), (202) 687-5387, (202) 687-8899 (fax), [email protected] (e-mail), www11.georgetown.edu/research/gucchd/nccc/projects/sids/index.html (not a U.S. Government Web site) Full-text available at: www11.georgetown.edu/research/gucchd/nccc/documents/SIDS_ID_PB_Aug_03.pdf (not a U.S. Government Web site). Cultural Competence and Sudden Infant Death Syndrome and Other Infant Death: A Review of the Literature from 1990 to 2000 Brathwaite-Fisher T, Bronheim S. Washington, DC: National Center for Cultural Competence (NCCC) Sudden Infant Death and Other Infant Death (SIDS/ID) Project, 2003. 38 p. Available from NCCC, Georgetown University Center for Child and Human Development, University Box 571485, Washington DC 20007. (800) 788-2066 (toll-free), (202) 687-5387, (202) 687-8899 (fax), [email protected] (e-mail), www11.georgetown.edu/research/gucchd/nccc/projects/sids/index.html (not a U.S. Government Web site). Full text available at: www11.georgetown.edu/research/gucchd/nccc/documents/sidslitreview.doc (not a U.S. Government Web site). Cross Cultural Expressions of Grief and Loss II: When an Infant Dies Volume 2 Shaefer J. Washington DC: National Fetal and Infant Mortality Review Program (NFIMR), 2003. Available from NFIMR, P.O. Box 96920, Washington DC 20090-6920. (202) 863-2587, (202) 484-3917 (fax), [email protected] (e-mail), www.acog.org/goto/nfimr (not a U.S. Government Web site). Full text available at: www.acog.org/departments/dept_notice.cfm?recno=10&bulletin=2866 (not a U.S. Government Web site). When a Baby Dies: A Handbook for Healing and Helping Limbo RK, Wheeler SR. La Crosse, WI: Bereavement Services, 2003. 165 p. Available from Bereavement Services, 1910 South Avenue, La Crosse, WI 54601. (800) 362-9567 (toll-free), (608) 775-4747, (608) 775-5137 (fax), [email protected] (e-mail), www.bereavementprograms.com (not a U.S. Government Web site). ISBN 0-9607098-4-3.

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Helping Bereaved Children: A Handbook for Practitioners Second Edition Webb NB. New York, NY: Guilford Publications, 2003. 386 p. Available from Guilford Publications, 72 Spring Street, New York, NY 10012. (800) 365-7006 (toll-free), (212) 431-9800, (212) 966-6708 (fax), [email protected] (e-mail), www.guilford.com (not a U.S. Government Web site). ISBN 1-57230-632-7. SIDS and Infant Death Survival Guide: Information and Comfort for Grieving Family and Friends and Professionals Who Seek to Help Them Horchler JN, Rice R. Cheverly, MD: SIDS Educational Services, 2003. 320 p. Available from SIDS Educational Services, Inc., 2905 64th Avenue, Cheverly, MD 20785. (301) 322-2620, (877) 935-6839 (toll-free), (301) 322-9822 (fax), [email protected] (e-mail), www.sidssurvivalguide.org (not a U.S. Government Web site). ISBN 0-9641218-2-4. SIDS Hoppenbrouwers T, Hodgman J. Los Angeles, CA: Women's and Children's Hospital, 2004. 93 p. Available from San Diego Guild for Infant Survival, 9807 Highdale Road, Santee, CA 92071. www.sandiegosids.org (not a U.S. Government Web site). ISBN 0742663-0-2. Loss and Grieving in Pregnancy and the First year of Life: A Caring Resource for Nurses Gemma, PB, Arnold J, Wieczorek RR. Ed White Plains, NY: March of Dimes. 2002. 76p. Available from March of Dimes Fulfillment Center, 1275 Mamaroneck Avenue, White Plains, NY 10605.(800) 367-6630 (toll-free), www.marchofdimes.com (not a U.S. Government Web site). Fetal and Infant Mortality Review: A Guide for Home Interviewers Shaefer J, Noell D. Washington DC: National Fetal and Infant Mortality Review Program (NFIMR), 2002. 92 p. Available from NFIMR, P.O. Box 96920, Washington, DC 20090-6920. (202) 863-2587, (202) 484-3917 (fax), [email protected] (e-mail), www.acog.org/goto/nfimr (not a U.S. Government Web site). Full text available at: www.acog.org/from_home/departments/NFIMRHomeInterviewers02.pdf (not a U.S. Government Web site). The 2002 Official Parents Sourcebook on Sudden Infant Death Syndrome: A Revised and Updated Directory for the Internet Age Parker JN, Parker PM. Eds. San Diego, CA: ICON Group International, Inc., 2002. Available from ICON Health Publications, 4370 La Jolla Village Drive, 4th Floor, San Diego, CA 92122. (858) 546-4341 (fax), [email protected] (e-mail), www.icongrouponline.com/health (not a U.S. Government Web site). ISBN 0-597-83207-2.

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Guidelines for Medical Professionals: Providing Care to the Family Experiencing Perinatal Loss, Neonatal Death, SIDS or Other Infant Death Baltimore, MD: National SIDS and Infant Death Program Support Center (NSIDPSC), 2002. 12 p. Available from NSIDPSC, 1314 Bedford Avenue, Suite 310, Baltimore, MD 21208. (800) 221-7437 (toll-free), (410) 415-6628, (410) 653-8709 (fax), [email protected] (e-mail), www.firstcandle.org/health/health_human.html. ( not a U.S. Government Web site). Full text available at: www.sidsalliance.org/FC-PDF2/HHS&P/guidelines_for_medical_professionals-final.pdf (not a U.S. Government Web site). Guidelines for Christian Clergy: Providing Care to the Family Experiencing Perinatal Loss, Neonatal Death, SIDS or Other Infant Death Baltimore, MD: National SIDS and Infant Death Program Support Center (NSIDPSC), 2002. 12 p. Available from NSIDPSC, 1314 Bedford Avenue, Suite 310, Baltimore, MD 21208. (800) 221-7437 (toll-free), (410) 415-6628, (410) 653-8709 (fax), [email protected] (e-mail), www.firstcandle.org/health/health_human.html (not a U.S. Government Web site). Full text available at: www.sidsalliance.org/FC-PDF2/HHS&P/guidelines_for_christian_clergy-final2.pdf ( not a U.S. Government Web site). Guidelines for Funeral Directors: Providing Care to the Family Experiencing Perinatal Loss, Neonatal Death, SIDS or Other Infant Death Baltimore, MD: National SIDS and Infant Death Program Support Center (NSIDPSC), 2002. 12 p. Available from NSIDPSC, 1314 Bedford Avenue, Suite 310, Baltimore, MD 21208. (800) 221-7437 (toll-free), (410) 415-6628, (410) 653-8709 (fax), [email protected] (e-mail), www.firstcandle.org/health/health_human.html (not a U.S. Government Web site). Full text available at: www.sidsalliance.org/FC-PDF2/HHS&P/guidelines_for_christian_clergy-final2.pdf (not a U.S. Government Web site). Grief Counseling and Grief Therapy: A Guide for the Mental Health Practitioner Third Edition Worden JW. New York, NY: Springer Publishing Company, 2002. 248 p. Available from Springer Publishing Company, 536 Broadway, New York, NY 10012-3955. (212) 431-4370, (877) 687-7476 (toll-free), (212) 941-7842 (fax), [email protected] (e-mail), www.springerpub.com (not a U.S. Government Web site). ISBN 0-8261-4161-7.

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Sudden Infant Death Syndrome Counseling Manual Springfield, IL: Springfield Statewide SIDS Program, Illinois Department of Public Health, 2002. 57 p. Available from Illinois Department of Public Health, 500 East Munroe Street, First Floor, Springfield, IL 62761-0001. (217) 557-2931, (217) 557-5396 (fax), www.idph.state.il.us/ (not a U.S. Government Web site). A Practical Guide to SIDS Home Visit Edelstein G, Gemmill DR, et al. Rancho Cordova, CA: California SIDS Program, Maternal and Child Health Branch, California Department of Health Services, 2001. 3 p. Available from California SIDS Program, 11344 Coloma Rd, Suite 560, Gold River, CA 95670-6304. (916) 851-7437, (800) 369-7437 (toll-free), (916) 851-5937 (fax), [email protected] (e-mail), www.californiasids.com (not a U.S. Government Web site). Sudden Infant Death Syndrome: What Childcare Providers and Other Caregivers Should Know Rancho Cordova, CA: California SIDS Program, Maternal and Child Health Branch, California Department of Health Services, 2001. 13 p. Available from California SIDS Program, 11344 Coloma Rd, Suite 560, Gold River, CA 95670-6304. (916) 851-7437, (800) 369-7437 (toll-free), (916) 851-5937 (fax), [email protected] (e-mail), www.californiasids.com (not a U.S. Government Web site). When an Infant Dies: Cross-Cultural Expressions of Grief and Loss Volume 1 Shaefer J. Washington, DC: National Fetal and Infant Mortality Review Program (NFIMR), 1999. 20 p. Available from NFIMR, P.O. Box 96920, Washington, DC 20090-6920. (202) 863-2587, (202) 484-3917 (fax), [email protected] (e-mail), http://www.acog.org/goto/nfimr (not a U.S. Government Web site). Available full text at: www.acog.org/departments/dept_notice.cfm?recno=10&bulletin=797 (not a U.S. Government Web site). After Loss, Parenting in the Next Pregnancy-A Manual for Professionals Working with Families in Pregnancy After Loss O’Leary J, Parker L. Minneapolis, MN: International Childbirth Education Association Inc. (ICEA), 1998. 108 p. Available from ICEA, P.O. Box 20048, Minneapolis, MN 55420. (800) 624-4934 (toll-free), (952) 854-8660, (952) 854-8772 (fax), [email protected](e-mail), www.icea.org (not a U.S. Government Web site). Parent Support Group Guide: A Guide for Leading Self-Help Groups Revised Edition. Limbo RK, Wheeler SR. La Crosse, WI: Bereavement Services, 1998. 67 p. Available from Bereavement Services, 1910 South Avenue, La Crosse, WI 54601. (608) 775-4747, (800) 362-9567, ext. 54747 (toll-free), (608) 7755137 (fax),

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[email protected] (e-mail), www.bereavementprograms.com (not a U.S. Government Web site). Loss During Pregnancy or in the Newborn Period: Principles of Care with Clinical Cases and Analyses Woods JR, Esposito Woods JL, eds. Pitman, NJ: Jannetti Publications, Inc., 1997. 561 p. Available from Anthony J. Jannetti, Inc., East Holly Avenue, P.O. Box 56, Pitman, NJ 080710056. (856) 256-2300, (856) 589-7463 (fax), www.ajj.com (not a U.S. Government Web site). A Caregiver's Handbook to Perinatal Loss Vogel GE. St. Paul, MN: A Place to Remember, 1996. 97 p. Available from A Place to Remember, 1885 University Avenue, Suite 110, St. Paul, MN 55104. (751) 645-7045, (800) 631-0973 (toll-free), (651) 645-4780 (fax), [email protected] (e-mail), www.aplacetoremember.com (not a U.S. Government Web site). Journal Articles Dealing with Bereavement and Grief Aho AL, Tarkka MT, Astedt-Kurki P, Kaunonen M. Father’s grief after the death of a child. Issues Ment Health Nurs. 2006 Jul; 27(6): 647-63 Armstrong D. Exploring fathers' experiences of pregnancy after a prior perinatal loss. MCN Am J Matern Child Nurs. 2001 May-Jun; 26(3):147-53. Arnold J, Gemma PB, Cushman LF. Exploring parental grief: combining quantitative and qualitative measures. Arch Psychiatr Nurs. 2005 Dec; 19(6):245-55. Barr P. Relation etween grief and subsequent pregnancy status 13 months after perinatal bereavement. J Perinat Med. 2006; 34(3): 207-11. Bartell AS, Kissane DW. Issues in pediatric palliative care: Understanding families. J Palliat Care. 2005 Autumn; 21(3):165-72. Bartellas E, Van Aerde J. Bereavement support for women and their families after stillbirth. J Obstet Gynaecol Can. 2003 Feb; 25(2):13-18. Boyce PM, Condon JT, Ellwood DA. Pregnancy loss: A major life event affecting emotional health and well being. Med J Aust. 2002 Mar 18; 176(6):250-1. Buchi S, Morgeli H, Schnyder U, Jenewein J, Hepp U, Jina E, Neuhaus R, Fauchere JC, Bucher HU, Sensky T. Grief and post-traumatic growth in parents 2-6 years after the death of their extremely premature baby. Psychother Psychosom. 2007; 76(2):106-14. Caelli K, Downie J, et al. Parents experiences of midwife managed care following the loss of a baby in a previous pregnancy. J Adv Nursing. 2002 Jul; 39(2):127-38.

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Carter BS. Providing palliative care for newborns. Pediatr Ann. 2004 Nov; 33(1):770-7. Callister LC. Perinatal loss: A family perspective. J Perinat Neonatal Nurs. 2006 Jul/Sept; 20 (3): 227-34. Capitulo KL. Evidence for healing interventions with perinatal bereavement. MCN Am J Matern Child Nurs. 2005 Nov-Dec; 30(6):389-96. Chan MF, Chan SH, Day MC. Nurses' attitudes towards perinatal bereavement support in Hong Kong: A pilot study. J Clin Nurs. 2003 Jul; 12(4):536-43. Cohen J. From grief to action: Meeting the needs of bereaved families. AWHONN Lifelines. 2001 Feb-Mar; 5(1):11-13. Committee on Psychosocial Aspects of Child and Family Health: The pediatrician and childhood bereavement. Pediatrics. 2000 Feb; 105(2):445-47. Conrad R, Schilling G, Liedtke R. Parental coping with sudden infant death after donor inseminations: a case report. Human Reprod. 2005 Apr; 20(4): 1053-6. Cote-Arsenault D, Bidlack D, Humm A. Women's emotions and concerns during pregnancy following perinatal loss. MCN Am J Matern Child Nurs. 2001 May-Jun; 26(3):128-34. Cote-Arsenault D, Freiji MM. Support groups helping women through pregnancies after loss. West J Nurs Res. 2004 Oct; 26(6):650-70. Cote-Arsenault D, Marshall R. One foot in-one foot out: Weathering the storm of pregnancy after perinatal loss. Res Nurs Health. 2000 Dec; 23(6):473-85. Cote-Arsenault D, Mahlangu N. Impact of perinatal loss on the subsequent pregnancy and self: Women's experiences. J Obstet Gynecol Neonatal Nurs. 1999 28(3):274-82. Cook P, White DK, et al. Bereavement support following sudden and unexpected death: Guidelines for care. Arch Dis Child. 2002 Jul; 87(1):36-38. Davies R. Mothers' stories of loss: their need to be with their dying child and their child's body after death. J Child Health Care. 2005 Dec; 9(4):288-300. de Montigny F, Beaudet L, Dumas L. A baby has died: The impact of perinatal loss on family social networks. J Obstet Gynecol Neonatal Nurs. 1999 28(2):151-56. DiMarco MA, Menke EM, McNamara T. Evaluating a support group for perinatal loss. MCN Am J Matern Child Nurs. 2001 May-Jun; 26(3):135-40.

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Dyer KA. Identifying, understanding, and working with grieving parents in the NICU, Part I: Identifying and understanding loss and the grief response. Neonatal Netw. 2005 May-Jun; 24(3):35-46. Dyregrov K. Bereaved parents experience of research participation. Soc Sci Med. 2004 Jan; 58(2):391-400. Dyregrov K, Nordanger D, Dyregrov A. Predictors of psychosocial distress after suicide, SIDS and accidents. Death Stud. 2003 Feb-Mar; 27(2):143-65. Dyregrov A. Dyregrov K. Long-term impact of sudden infant death: A 12- to 15-year follow-up. Death Stud. 1999 Oct; 23(7):635-61. Franche RL, Mikail SF. The impact of perinatal loss on adjustment to subsequent pregnancy. Soc Sci Med. 1999 48:1613-23. Fleming PJ, Blair PS, et al. Investigating sudden infant deaths in infancy and childhood and caring for bereaved families: An integrated multiagency approach. BMJ. 2004 328(7435):331-28. Geller PA, Psaros C, Kerns D. Web-based resources for health care providers and women following pregnancy loss. J Obstet Gynecol Neonatal Nurs. 2006 July-Aug; 35 (4): 523-32. Grout LA, Romanoff BD. The myth of the replacement child: Parents' stories and practices after perinatal death. Death Stud. 2000 24:93-113. Guerrero L. Counseling patients after perinatal death. OBG Management. 1999 March: 55-62. Gudmundsdottir M, Chesla CA. Building a new world: Habits and practices of healing following the death of a child. J Fam Nurs. 2006; 12(2): 143-164. Hinds PS, Oakes LL, Hicks J, Anghelescu DL. End-of-life care for children and adolescents. Semin Oncol Nurs. 2005 Feb; 21(1):53-62. Hughes PM, Turton P, Evans CD. Stillbirth as risk factor for depression and anxiety in the subsequent pregnancy: Cohort study. BMJ. 1999 318(7200):1721-24. International Work Group on Death, Dying, and Breavement; Corr CA, Corr DM, Goldman C, Jupp P, Lattanzi-Licht M, Papadatou D, Rybarik MF, Skeen J, Smeding R, Sourkes B, Thompson N. Caregivers in death, dying, and bereavement situations. Death Stud. 2006 Sep; 30(7):649-63 Jansen JL. A bereavement model for the intensive care nursery. Neonatal Network. 2003 May-June; 22(3):17-23.

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Kenyon S. Responding when a baby dies. J Family Health Care. 2002 12(3):58. Krueger G. Meaning-making in the aftermath of sudden infant death syndrome. Nurs Inq. 2006 Sep; 13(3):163-71 Krwin KM, Hamrin V. Decreasing the risk of complicated bereavement and future psychiatric disorders in children. J Child Adolesc Psychiatr Nurs. 2005 Apr-Jun; 18(2):62-78.7. Lang A, Goulet C, Aita M, Giguere V, Lamarre H, Perreault E. Weathering the storm of perinatal bereavement via hardiness. Death Stud. 2001 Sep; 25(6):497-512. Lang A, Goulet C, Amsel R. Explanatory model of health in bereaved parents post-fetal/infant death. Int J Nurs Stud. 2004 Nov, 41 (8):869-80. Li J, Laursen TM, Precht DH, Olsen J, Mortensen PB. Hospitalization for mental illness among patients after the death of a child. N Engl J Med. 2005 Mar 24; 352(12):1190-6. Neimeyer RA. Searching for the meaning of meaning: Grief therapy and the process of reconstruction. Death Stud. 2000, 24:541-48. Nordanger D, Dyregrov K, Dyregrov A. Care and support after sudden unexpected death. Pediatr Res. 1999 May; 45(5 Pt 2 of 2):36A. Ramer-Chrastek J, Thygeson MV. A perinatal hospice for an unborn child with a life-limiting condition. Int J Palliat Nurs. 2005 Jun; 11(6):274-6. Seecharan GA, Andresen EM. Parents assessment of quality of care and grief following a child's death. Arch Pediatr Adolesc Med. 2004 June; 158(6):515-20. St John A, Cooke M, Goopy S. Shrouds of silence: three women's stories of prenatal loss. Aust J Adv Nurs. 2006 Mar-May; 23(3):8-12. Vance JC, Boyle FM, Najman JM, Thearle MJ. Couple distress after sudden infant or perinatal death: A 30-month follow up. J Paediatr Child Health. 2002 Aug; 38(4)368-72. Wing AE, Carter BS. Once again, Vanderbilt NICU in Nashville leads the way in nurses' emotional support. Pediatr Nurs. 2004 Nov-Dec; 30(6):471-2. Wilson RE. Parent support of their other children after a miscarriage or perinatal death. Early Hum Dev. 2001 Mar; 61(2):55-65. Zhang B, El-Jawahri A, Prigerson HG. Upadate on Bereavement Research: Evidence-based guidelines for the diagnosis and treatment of complicated bereavement. J Palliat Med. 2006 Oct; 9(5):1188-203.

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Religious Books Dealing with Loss Overcoming Grief: Joining and Participating in Bereavement Support Groups Munday JS, Skokie, IL: ACTA Publications. 2005. 87p. Available from ACTA Publications,5559 W. Howard Street, Skokie, IL 60077. (800) 397-2282 (toll-free), (800) 397-0079 (Fax), [email protected] (e-mail), www.actapublications.com (not a U.S. Government Web site). ISBN 0-87946-290-6. Safe in the Arms of God: Truth from Heaven About the Death of a Child MacArthur J. Nashville, TN: Thomas Nelson, Inc. 2003. 175 p. Available from Thomas Nelson Publishers, P.O. Box 14100, Nashville, TN 37214. www.thomasnelson.com (not a U.S. Government Web site). ISBN 07852-6343-8. Mommy, Please Don't Cry: There Are No Tears in Heaven DeYmaz L. Sisters, OR: Multnomah Gifts, 2003. 48 p. Available from Multnomah Gifts, P.O. Box 1720, Sisters, OR 97759. (541) 549-1144, [email protected] (e-mail), www.multnomahbooks.com (not a U.S. Government Web site). ISBN 1-59052-151-X. A Pilgrimage Through Grief: Healing the Soul's Hurt After Loss Miller JE. Fort Wayne, IN: Willow Green Publishing, 2003. 96 p. Available from Willow Green Publishing, 10351 Dawson's Creek Boulevard, Suite B, Fort Wayne, IN 46825. (260) 490-2222, (260) 497-9622 (fax), [email protected] (e-mail), www.willowgreen.com (not a U.S. Government Web site). ISBN 1-885933-34-7. Grieving the Child I Never Knew: A Devotional Companion for Comfort in the Loss of Your Unborn or Newly Born Child Wunnenberg KL. Grand Rapids, MI: Zondervan Publishing House, 2001. 157 p. Available from Zondervan Publishing House, 5300 Patterson SE, Grand Rapids, MI 49530. [email protected] (e-mail), www.zondervan.com (not a U.S. Government Web site). ISBN 0-310-22777-1. Threads of Hope, Pieces of Joy: A Pregnancy Loss Bible Study Fackler T, Kik G. St. Paul, MN: A Place to Remember, 1999. 104 p. Available from A Place to Remember, 1885 University Avenue, Suite 110, St. Paul, MN 55104. (800) 631-0973 (toll-free), (651) 645-7045, (651) 645-4780 (fax), [email protected] (e-mail), www.aplacetoremember.com (not a U.S.

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Government Web site). ISBN 0-970-77070-7. Good Grief Westberg GE. Philadelphia, PA: Fortress Press. 1997. 66 p. Available from Centering Corporation, P.O. Box 4600, Omaha, NE 68104. (402) 553-1200, (402) 553-0507 (fax), [email protected] (e-mail), www.centering.org (not a U.S. Government Web site). ISBN 0-8006-1114-4. To Find Hope: Simple Wisdom for Those Who Grieve Ryan KK. Mahwah, NJ: Paulist Press. 1997. 64 p. Available from Paulist Press, 997 Macarthur Boulevard, Mahwah, NJ 07430. (800) 218-1903 (toll-free), (201) 825-7300, (800) 836-3161 (fax), [email protected] (e-mail), www.paulistpress.com (not a U.S. Government Web site). ISBN 0-8091-3735-6. When Joy Withers Away Revised Edition. Vander Meyden CD. St Paul, MN: A Place to Remember. 1994. 18 p. Available from A Place to Remember, 1885 University Avenue, Suite 110, St. Paul MN 55104. (651) 645-7045, (800) 631-0973 (toll-free), (651) 645-5780 (fax), [email protected] (e-mail), www.aplacetoremember.com (not a U.S. Government Web site). Spanish Materials Besos y abrazos al aire [Flying Hugs and Kisses] Sample J, Centennial, CO: Lifevest Publishing. 2006. 32p. Available from Authors to Believe In, C/O Lifevest Publishing, 4901 East Dry Creek Road, #170, Centennial, CO 80122. (877) 843-1007 (toll-free), [email protected] (e-mail), http://authorstobelievein.com/children.htm (not a U.S. Government Web site). ISBN 1-59879-291-1. Como Aceptar la Muerte Subita e Inesperada de un Nino: Informacion y Apoyo para Families en Proceso de Duelo y para Amigos y Profesionales Que Desean Ayudarlos [SIDS and Infant Death Survival Guide: Information and Comfort for Grieving Family and Friends and Professionals Who Seek to Help Them] Horchler JN, Rice R. Cheverly, MD: SIDS Educational Services, 2004. Available from SIDS Educational Services, Inc., 2905 64th Avenue, Cheverly, MD 20785. (301) 322-2620, (877) 935-6839 (toll-free), (301) 322-9822 (fax), [email protected] (e-mail), www.sidssurvivalguide.org (not a U.S. Government Web site). ISBN 0-9641218-4-0.

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Como Superar La Muerte De Un Bebe [Sudden Infant Death Syndrome: Surviving the Death of a Baby]. Baltimore, MD: First Candle/SIDS Alliance, 2004. 11p. Available from National SIDS/ID Program Support Center, 1314 Bedford Avenue, Suite 210, Baltimore, MD 21208. (410) 415-6628, (800) 221-7437 (toll-free), (410) 653-8709 (fax), [email protected] (e-mail), www.firstcandle.org/health/health_human.html (not a U.S. Government Web site). Sindrome de Muerte Infantile Repentina (SIDS): Lo que Deben Sader las Guarderias Infantiles y Personas que Cuidan Ninos [Sudden Infant Death Syndrome (SIDS): What Childcare Providers and Other Caregivers Should Know] Rancho Cordova, CA: California SIDS Program, Maternal and Child Health Branch, California Department of Health Services, 2001. 13 p. Available from California SIDS Program, 11344 Coloma Rd, Suite 560, Gold River, CA 95670-6304. (916) 851-7437, (800) 369-7437 (toll-free in California), (916) 851-5937 (fax), [email protected] (e-mail), www.californiasids.com (not a U.S. Government Web site). Los Ninos Tambien Mueren: Para Padres que Estan Sufriendo la Muerte de un Hijo [Children Die, Too: A Book for Parents Who Have Experienced the Death of a Child] Johnson J, Johnson SM, et al. (Translators). Omaha, NE: Centering Corporation, 2004. 10 p. Available from Centering Corporation, P.O. Box 4600, Omaha, NE 68104. (402) 553-1200, (402) 553-0507 (fax), [email protected] (e-mail), www.centering.org (not a U.S. Government Web site). Aborto Espontaneo: Un Libro Para los Padres [Miscarriage: A Book for Parents] Johnson J, Johnson M, et al. Omaha, NE: Centering Corporation, 2003. 17 p. Available from Centering Corporation, P.O. Box 4600, Omaha, NE 68104. (402) 553-1200, (402) 553-0507 (fax), [email protected] (e-mail), www.centering.org (not a U.S. Government Web site). Cuando Muere un Nino [When a Child Dies] Oak Brook, IL: The Compassionate Friends, 2004. 2 p. Available from The Compassionate Friends, P.O. Box 3696, Oak Brook, IL 60522-3696. (877) 969-0100 (toll-free), (630) 990-0010, (630) 990-0246 (fax), [email protected] (e-mail), www.compassionatefriends.org (not a U.S. Government Web site). Dolor y Comprension [Grief and Understanding] Oak Brook, IL: The Compassionate Friends, 1995, 2 p. Available from The Compassionate Friends, P.O. Box 3696, Oak Brook, IL 60522-3696. (877) 969-0100 (toll-free), (630) 990-0010, (630) 990-0246 (fax),

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[email protected] (e-mail), www.compassionatefriends.org (not a U.S. Government Web site). Nacidos Muertos, Abortos Naturals y Muertes Infantiles… Entendiendo la Congoja [Stillbirth, Miscarriage and Infant Death… Understanding Grief] Oakbrook, IL: The Compassionate Friends, 2003. 2 p. Available from The Compassionate Friends, P.O. Box 3696, Oak Brook, IL 60522-3696. (877) 969-0100 (toll-free), (630) 990-0010, (630) 990-0246 (fax), [email protected] (e-mail), www.compassionatefriends.org (not a U.S. Government Web site). Ayudando a los Ninos Con Su Pena: Sindrome de Muerte Infantile Repentina [Helping Children Grieve: Sudden Infant Death Syndrome] Rancho Cordova, CA: California SIDS Program, Maternal and Child Health Branch, California Department of Health Services, 1999. 13 p. Available from California SIDS Program, 11344 Coloma Rd, Suite 560, Gold River, CA 95670-6304. (916) 851-7437, (800) 369-7437 (toll-free in California), (916) 851-5937 (fax), [email protected] (e-mail), www.californiasids.com (not a U.S. Government Web site). Hechoa y Sentimientos: Sindrome de Muerte Infantile Repentina [Facts and Feelings: Sudden Infant Death Syndrome] Rancho Cordova, CA: California SIDS Program, Maternal and Child Health Branch California Department of Health Services, 1999. 14 p. Available from California SIDS Program, 11344 Coloma Rd, Suite 560, Gold River, CA 95670-6304. (916) 851-7437, (800) 369-7437 (toll-free in California), (916) 851-5937 (fax), [email protected] (e-mail), www.californiasids.com (not a U.S. Government Web site). Cuando un Bebe se Muere… [When a Baby Dies…] Boston, MA: Massachusetts Center for SIDS, 1998. 12 p. Available from Massachusetts Center for SIDS, Boston Medical Center, 1 Boston Medical Center Place, Boston, MA 02118-2393. (617) 414-7437, (800) 641-7437 (toll-free in Massachusetts and Rhode Island), (617) 414-5555 (fax), [email protected] (e-mail) www.bmc.org/pediatrics/special/SIDS (not a U.S. Government Web site). El Cuento de Thumpy [Thumpy's Story: A Story of Love and Grief Shared by Thumpy, the Bunny] Burnsville, NC: Compassion Books, 1985. 20 p. Available from Compassion Books, Inc., 7036 Hwy 80 South, Burnsville, NC 28714. (800) 970-4220 (toll-free), (828) 675-5909 (tollfree outside U.S.), (800) 970-3350 (toll-free fax), (828) 675-9687 (fax outside U.S.), [email protected] (e-mail), www.compassionbooks.com (not a U.S. Government Web site).

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Selected Organizations The list below includes contact information for national and international organizations providing support and services to bereaved parents. To obtain specific information about local affiliates, please contact the national offices listed below. National and International SIDS and Infant Death Organizations Alliance of Grandparents against SIDS Tragedy (AGAST) P.O. Box 271386, Salt Lake City, UT 84127-1386. (888) 774-7437 (toll-free), [email protected] (e-mail), www.agast.org (not a U.S. Government Web site). American Academy of Pediatrics (AAP) 141 Northwest Point Boulevard, Elk Grove Village, IL 60007-1098. (847) 434-4000, (847) 434-8000 (fax), [email protected] (e-mail), www.aap.org (not a U.S. Government Web site). American SIDS Institute 509 Augusta Drive, Marietta, GA 30067. (800) 232-SIDS (7437) (toll-free), (770) 426-8746, (770) 426-1369 (fax), [email protected] (e-mail), www.sids.org (not a U.S. Government Web site). Association of SIDS and Infant Mortality Programs (ASIP) 8280 Greensboro Drive, Suite 300, McLean, VA 22102. (800) 930-7437 (toll-free), (703) 902-1320 (fax), [email protected] (e-mail), www.asip1.org (not a U.S. Government Web site). The Canadian Foundation for the Study of Infant Deaths (CFSID) 586 Eglinton Avenue East, Suite 308, Toronto, Ontario, Canada M4P 1P2. (800) 363-7437 (toll-free), (416) 488-3260, (416) 488-3864 (fax), [email protected] (e-mail), www.sidscanada.org (not a U.S. Government Web site). CJ Foundation for SIDS The Don Imus - WFAN Pediatric Center, Hackensack University Medical Center, 30 Prospect Avenue, Hackensack, NJ 07601. (888) 825-7437 (toll-free), (201) 996-5111, (201) 996-5326 (fax), [email protected] (e-mail), www.cjsids.com (not a U.S. Government Web site). First Candle/SIDS Alliance 1314 Bedford Avenue, Suite 210, Baltimore, MD 21208. (800) 221-7437 (toll-free), (410) 653-8226, (410) 653-8709 (fax), [email protected] (e-mail), www.firstcandle.org (not a U.S. Government Web site).

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Foundation for the Study of Infant Deaths (FSID) Artillery House, 11-19 Artillery Row, London, UK SW1P 1RT. 0870 787 0885, 0870 787 0725 (fax), [email protected] (e-mail), www.sids.org.uk/fsid (not a U.S. Government Web site). National Fetal and Infant Mortality Review Program (NFIMR) 409 12th Street, SW, P.O. Box 96920, Washington, DC 20090-6920. (202) 863-2587, (202) 484-3917 (fax), [email protected] (e-mail), www.acog.org/goto/nfimr (not a U.S. Government Web site). National Institute of Child Health and Human Development (NICHD) Back to Sleep, Bldg. 31, Room 2A32, MSC 2425, 31 Center Drive, Bethesda, MD 20892-2425. (800) 505-2742 (toll-free), (301) 496-7101 (fax), www.nichd.nih.gov/sids/sids.cfm (not a U.S. Government Web site). National SIDS/Infant Death Program Support Center (NSIDPSC) 1314 Bedford Avenue, Suite 210, Baltimore, MD 21208. (800) 221-7437 (toll-free), (410) 415-6628, (410) 653-8709 (fax), [email protected] (e-mail), www.firstcandle.org/health/health_human.html (not a U.S. Government Web site). National SIDS and Infant Death-Project IMPACT 8280 Greensboro Drive, Suite 300, McLean, VA 22102. (800) 930-SIDS (7437) (toll-free), (703) 902-1260, (703) 901-1320 (fax), [email protected] (e-mail), www.sidsprojectimpact.com (not a U.S. Government Web site). National SIDS/Infant Death Resource Center (NSIDRC) 8280 Greensboro Drive, Suite 300, McLean, VA 22102. (866) 866-7437 (toll-free), (703) 821-2098 (fax), [email protected] (e-mail), www.sidscenter.org (not a U.S. Government Web site). National Center for Cultural Competence (NCCC) SIDS/Infant Death (ID) Project Georgetown University Center for Child and Human Development, University Box 571485, Washington DC 20007. (800) 788-2066 (toll-free), (202) 687-5387, (202) 687-8899 (fax), [email protected] (e-mail), http://www11.georgetown.edu/research/gucchd/nccc/projects/sids/index.html (not a U.S. Government Web site). SIDS and Kids National SIDS Council of Australia, Ltd., Suite 3, 98 Morang Road, Hawthorn, VIC 3122, Australia. 03 9819 4595, 03 9818 4596 (fax), [email protected] (e-mail), www.sidsandkids.org/ (not a U.S. Government Web site). SIDS Educational Services, Inc. 2905 64th Avenue, Cheverly, MD 20785. (877) 935-6839 (toll-free), (301) 322-2620, (301) 322-9822 (fax), [email protected] (e-mail), www.sidssurvivalguide.org (not a U.S. Government Web site).

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SIDS Network P.O. Box 520, Ledyard, CT 06339. (860) 892-7042 ext. 551, (860) 887-7309 (fax), [email protected] (e-mail), www.sids-network.org (not a U.S. Government Web site). State SIDS Programs To obtain contact information for State SIDS programs, click on “State SIDS Programs” under “Professional Resources” on the NSIDRC home page. Grief and Bereavement Organizations Aiding Mothers and Fathers Experiencing Neonatal Death (AMEND Inc.) P.O. Box 20260, Wichita, KS 67208-1260. [email protected] (e-mail), www.amendinc.com (not a U.S. Government Web site). Alive Alone 11115 Dull Robinson Road, Van Wert, OH 45891. [email protected] (e-mail), www.alivealone.org (not a U.S. Government Web site). Association for Death Education and Counseling (ADEC) 60 Revere Drive, Suite 500, Northbrook, IL 60062. (847) 509-0403, (847) 480-9282 (fax), [email protected] (e-mail), www.adec.org (not a U.S. Government Web site). Association for Recognizing the Life of Stillborns Frank and Linda Pavlak, 11128 West Frost Avenue, Littleton, CO 80127. (303) 978-9517. Bereavement Services/Gundersen Lutheran Medical Foundation 1910 South Avenue, La Crosse, WI 54601. (800) 362-9567 ext. 54747 (toll-free), (608) 775-4747, (608) 775-5137 (fax), [email protected] (e-mail), www.bereavementprograms.com (not a U.S. Government Web site). Center for Loss and Life Transition 3735 Broken Bow Road, Fort Collins, CO 80526. (970) 226-6050, (970) 226-6051 (fax), [email protected] (e-mail), www.centerforloss.com (not a U.S. Government Web site). Center for Loss in Multiple Birth (CLIMB), Inc. P.O. Box 91377, Anchorage, AK 99509. (907) 2225321 (9 a.m.-2 p.m.), [email protected] (e-mail), climb-support.org (not a U.S. Government Web site). The Compassionate Friends (TCF) National Office, P.O. Box 3696, Oak Brook, IL 60522-3696. (877) 969-0100 (toll-free), (630) 990-0010, (630) 990-0246 (fax), [email protected] (e-mail), www.compassionatefriends.org (not a U.S. Government Web site).

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Conley Outreach Community Services, Ltd. P.O. Box 931, Elburn, IL 60119. (630) 365-2880, (630) 466-5323 (fax), [email protected] (e-mail), www.conleyoutreach.org (not a U.S. Government Web site). The Dougy Center National Center for Grieving Children, P.O. Box 86852, Portland, OR 97286. (503) 775-5683, (503) 777-3097, [email protected] (e-mail), www.dougy.org (not a U.S. Government Web site). The Good Grief Program 1 Boston Medical Center Place, Mat 5, Boston, MA 02118. (617) 414-4005, (617) (617) 414-7915 (fax), [email protected] (e-mail), International Stillbirth Alliance 1427 Potter Road, Park Ridge, IL 60068. [email protected] (e-mail), www.stillbirthalliance.org (not a U.S. Government Web site). National Funeral Directors Association (NFDA) 13625 Bishop's Drive, Brookfield, WI 53005. (800) 228-6332 (toll-free), (262) 789-1880, (262) 789-6977 (fax), [email protected] (e-mail), www.nfda.org (not a U.S. Government Web site). National Donor Family Council National Kidney Foundation, Inc., 30 East 33rd Street, Suite 1100, New York, NY 10016. (800) 622-9010 (toll-free), (212) 889-2210, (212) 689-9261 (fax), [email protected] (e-mail), www.kidney.org/recips/donor (not a U.S. Government Web site). National Self-Help Clearinghouse Graduate School and University Center of the City University of New York, 365 5th Avenue, Suite 3300, New York, NY 10016. (212) 817-1822, [email protected] (e-mail), www.selfhelpweb.org (not a U.S. Government Web site). National Stillbirth Society P.O. Box 10273, Phoenix, AZ 85064. (800) 611-7237 (toll-free), (602) 216-6600, [email protected] (e-mail), www.stillnomore.org (not a U.S. Government Web site). SHARE Pregnancy and Infant Loss Support, Inc. St. Joseph Health Center, 300 First Capitol Drive, St. Charles, MO 63301-2893, (800) 821-6819 (toll free), (636) 947-6164, (636) 947-7486 (fax), [email protected] (e-mail), www.nationalshareoffice.com (not a U.S. Government Web site).

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The Triplet Connection P.O. Box 693392, Stockton, CA 95209. (209) 474-0885, (209) 474-9243 (fax), [email protected] (e-mail), www.tripletconnection.org (not a U.S. Government Web site). Wendt Center for Loss and Healing 4201 Connecticut Ave., NW Ste 300, Washington DC 20008, (202) 624-0010, (202) 624-0062 (fax), [email protected] (e-mail), www.lossandhealing.org (not a U.S. Government Web site). Selected Journals and Newsletters Journals Bereavement (Bimonthly) Bereavement Publishing, Inc., 4765 North Carefree Circle, Colorado Springs, CO 809172118. (888) 604-4673 (toll-free), [email protected] (e-mail), www.bereavementmag.com (not a U.S. Government Web site). Death Studies (10 Issues Per Year) Brunner-Routledge, Taylor & Francis Group, 325 Chestnut Street, Suite 800, Philadelphia, PA 19106. (800) 354-1420 (toll-free), (215) 625-8914 (fax), [email protected] (e-mail), www.taylorandfrancis.com (not a U.S. Government Web site). ISSN 0748-1187. Journal of Loss and Trauma Quarterly Journal. Brunner-Routledge, Taylor & Francis Group, 325 Chestnut Street, Suite 800, Philadelphia, PA 19106. (800) 354-1420 (toll-free), (215) 625-8914 (fax), [email protected] (e-mail), www.taylorandfrancis.com (not a U.S. Government Web site). Mortality Journal (Quarterly) Brunner-Routledge, Taylor and Francis Group, 325 Chestnut Street, Suite 800, Philadelphia, PA 19106. (800) 354-1420 (toll-free), (215) 625-8914 (fax), [email protected] (e-mail), www.taylorandfrancis.com (not a U.S. Government Web site). ISSN 1357-6275. Omega: Journal of Death and Dying Bimonthly Journal. Baywood Publishing Company, Inc., 26 Austin Avenue, P.O. Box 337, Amityville, NY 11701-3004. (800) 638-7819 (toll-free), (613) 691-1270, (613) 691-1770 (fax), [email protected] (e-mail), www.baywood.com (not a U.S. Government Web site). ISSN 0030-2228.

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SIDS Newsletters AZSIDF Newsletter Arizona Sudden Infant Death Foundation (AZSIDF), P.O. Box 111, Phoenix, AZ 85001-8111. (800) 597-7437 (toll-free), [email protected] (e-mail), www.azsidf.org (not a U.S. Government Web site). Full text available on Web site. Considerations Newsletter CJ Foundation for SIDS. The Don Imus Pediatric Center, Hackensack University Medical Center, 30 Prospect Avenue, Hackensack, NJ 07601. (888) 8CJ-SIDS (toll-free), (201) 996-5111, (201) 996-5326 (fax), [email protected] (e-mail), www.cjsids.com (not a U.S. Government Web site). Full text available on Web site. Family Connections Newsletter Sudden Infant Death Services of the Mid-Atlantic, 2700 South Quincy Street, Suite 220, Arlington, VA, 22206. (703) 933-9100, [email protected] (e-mail), www.sidsma.org/professionals/index.html (not a U.S. Government Web site). Full-text available on Web site. FSID News Foundation for the Study of Infant Deaths (FSID), Artillery House, 11-19 Artillery Row, London, UK SW1P 1RT. 0870 787 0885, 0870 787 0725 (fax), [email protected] (e-mail), www.sids.org.uk/fsid (not a U.S. Government Web site). Full text available on Web site. Handprints Helping After Neonatal Death-HAND, P.O. Box 341, Los Gatos, CA 95031. (888) 908-HAND (toll-free), [email protected] (e-mail), www.hand.org (not a U.S. Government Web site). Full text available on Web site. Information Exchange Newsletter National SIDS/Infant Death Resource Center (NSIDRC), 8280 Greensboro Drive, Suite 300, McLean, VA 22102. (866) 866-7437 (toll-free), (703) 821-8955, (703) 821-2098 (fax), [email protected] (e-mail), www.sidscenter.org (not a U.S. Government Web site). Full text available on NSIDRC Web site. Insights Newsletter Center for Infant and Child Loss, 630 West Fayette Street, Room 5-691, Baltimore, MD 21201. (800) 808-7437 (toll-free), [email protected] (e-mail), www.infantandchildloss.org (not a U.S. Government Web site). Full text available on Web site. Iowa Newsletter Iowa SIDS Alliance, P.O. Box 13274, Des Moines, IA 50310-0274. (866) 480-4741 (toll-

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free), [email protected] (e-mail), www.iowasids.org (not a U.S. Government Web site). Full text available on Web site. ITS-SIDS Newsletter North Carolina Healthy Start Foundation, NC Back to Sleep, 1300 St. Mary's Street, Suite 204, Raleigh, NC 27605. (919) 828-1819, (919) 828-1446 (fax), [email protected] (e-mail), www.nchealthystart.org (not a U.S. Government Web site). Full text available on Web site. Reaching Out SIDS Network, P.O. Box 520, Ledyard, CT 06339. (860) 892-7042 ext. 551, (860) 887-7309 (fax), [email protected] (e-mail), sids-network.org/newsletter (not a U.S. Government Web site). Full text available on Web site. Scottish Cot Death Trust Newsletter Scottish Cot Death Trust, Royal Hospital for Sick Children, Yorkhill, Glasgow G3 8SJ. 0141 357 3946, 0141 334 1376 (fax), [email protected] (e-mail), www.sidscotland.org.uk/about_us/about_us.htm (not a U.S. Government Web site). Sunlight & Shadows SIDS Foundation of Washington, 4649 Sunnyside Avenue North, Room 328, Seattle, WA 98105. (800) 533-0376 (toll-free in Oregon, Washington, Idaho), (206) 548-9290, (206) 548-9445 (fax), [email protected] (e-mail), www.sidsofwa.org (not a U.S. Government Web site). Full text available on Web site. Illuminations First Candle/SIDS Alliance, 1314 Bedford Avenue, Suite 210, Baltimore, MD 21208. (800) 221-7437 (toll-free), (410) 653-8226, (410) 653-8709 (fax), [email protected] (e-mail), www.firstcandle.org (not a U.S. Government Web site). Full text available on Web site. General Newsletters from Grief and Bereavement Organizations The Baby's Breath The Canadian Foundation for the Study of Infant Deaths, 586 Eglinton Avenue East, Suite 308, Toronto, Ontario, Canada M4P 1P2. (800) 363-7437 (toll-free), (416) 488-3260, (416) 488-3864 (fax), [email protected] (e-mail), www.sidscanada.org (not a U.S. Government Web site). Caring Concepts Centering Corporation, 7230 Maple Street, Omaha, NE 68134. (402) 553-1200, (402) 5530507 (fax), [email protected] (e-mail), www.centering.org (not a U.S. Government Web site). Free with membership. Centerpiece: A Publication for Our Friends Center for Loss and Life Transition, 3735 Broken Bow Road, Fort Collins, CO 80526.

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(970) 226-6050, (970) 226-6051 (fax), [email protected] (e-mail), www.centerforloss.com (not a U.S. Government Web site). Full text available on Web site. For Those Who Give and Grieve National Donor Family Council, c/o National Kidney Foundation, Inc., Material Resources Coordinator, 30 East 33rd Street, Suite 1100, New York, NY 10016. (800) 622-9010 (toll-free), (212) 889-2210, (212) 689-9261 (fax), [email protected] (e-mail), www.kidney.org/recips/donor (not a U.S. Government Web site). Full text available on Web site. The Forum Association for Death Education and Counseling, 342 North Main Street, West Hartford, CT 061172507. (860) 586-7503, (860) 586-7550 (fax), www.adec.org (not a U.S. Government Web site). Full text available on Web site. Missing Angels MISS Foundation, P.O. Box 5333, Peoria, AZ 85385. (623) 979-1000, (623) 979-1001 (fax), [email protected] (e-mail), www.missfoundation.org (not a U.S. Government Web site). Full text available on Web site. Our Newsletter Center for Loss in Multiple Birth, Inc., P.O. Box 91377, Anchorage, AK 99509. (907) 222-5321 (9 a.m.-2 p.m.), [email protected] (Jean Kollantai) (e-mail), www.climb-support.org (not a U.S. Government Web site). Sharing SHARE Pregnancy and Infant Loss Support, Inc., St. Joseph Health Center, 300 First Capital Drive, St. Charles, MO 63301-2893. (800) 821-6819 (toll-free), (636) 947-6164, (636) 947-7486 (fax), [email protected] (e-mail), www.nationalshareoffice.com (not a U.S. Government Web site). Free to bereaved parent for one year. Triplet Connection The Triplet Connection, P.O. Box 693392, Stockton, CA 95269. (209) 474-0885, (209) 474-9243 (fax), [email protected] (e-mail), www.tripletconnection.org (not a U.S. Government Web site). We Need Not Walk Alone: A Newsletter for Bereaved Parents and the People Who Care About Them The Compassionate Friends, National Office, P.O. Box 3696, Oak Brook, IL 60522-3696. (877) 969-0100 (toll-free), (630) 990-0010, (630) 990-0246 (fax), [email protected] (e-mail), www.compassionatefriends.org (not a U.S. Government Web site).

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Selected Publishers Abbey Press One Caring Place, St. Meinrad, IN 47577. (888) 374-4226 (toll-free), (800) 320-8670 (fax), [email protected] (e-mail), www.abbeypress.com (not a U.S. Government Web site). Psychology Press Taylor & Francis Group, 29 West 35th Street, New York, NY 10001. (800) 634-7064 (toll-free), [email protected] (e-mail), www.taylorandfrancis.com (not a U.S. Government Web site). ADM Publishing P.O. Box 917675, Longwood, FL 32741-7675. (800) 431-1579 (toll-free), (407) 774-5260, (407) 650-3179 (fax), [email protected] (e-mail), http://admpublishing.com (not a U.S. Government Web site). Ave Maria Press P.O. Box 428, Notre Dame, IN 46556-0428. (800) 282-1865 (toll-free), (800) 282-5681 (fax), [email protected] (e-mail) www.avemariapress.com (not a U.S. Government Web site). Beachcomber Press P.O. Box 300578, Escondido, CA 92030-0578. (760) 747-4429, [email protected] (e-mail). Bereavement Publishing, Inc. 4765 North Carefree Circle, Colorado Springs, CO 80917-2118. (888) 604-4673 (toll-free), (719) 266-0006, (719) 266-0012 (fax), [email protected] (e-mail), www.bereavementmag.com (not a U.S. Government Web site). Centering Corporation 7230 Maple Street, Omaha, NE 68134. (402) 553-1200, (402) 553-0507 (fax), [email protected] (e-mail), www.centering.org (not a U.S. Government Web site). Companion Press Center for Loss and Life Transition, 3735 Broken Bow Road, Fort Collins, CO 80526. (970) 226-6050, (970) 226-6051 (fax), [email protected] (e-mail), www.centerforloss.com (not a U.S. Government Web site). Compassion Books 7036 Highway 80 South, Burnsville, NC 28714. (800) 970-4220 (toll-free), (800) 970-3350 (fax), [email protected] (e-mail), www.compassionbooks.com (not a U.S. Government Web site).

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Compassionate Friends National Office, P.O. Box 3696, Oak Brook, IL 60522-3696. (877) 969-0100 (toll-free), (630) 990-0010, (630) 990-0246 (fax), [email protected] (e-mail), www.compassionatefriends.org (not a U.S. Government Web site). Conley Outreach Publications P.O. Box 931, Elburn, IL 60119. (630) 365-2880, (630) 365-6434 (fax), [email protected] (e-mail), www.conleyoutreach.org (not a U.S. Government Web site). Fairview Press 2450 Riverside Avenue South, Minneapolis, MN 55454. (800) 544-8207 (toll-free), (612) 672-4180, (612) 672-4980 (fax), [email protected] (e-mail), www.fairviewpress.org (not a U.S. Government Web site). Human Services Press P.O. Box 2423, Springfield, IL 62705-2423. (217) 787-7227, [email protected] (e-mail). Jessica Kingsley Publishers Inc. 400 Market Street, Suite 400, Philadelphia, PA 19106. (866) 416-1078, (215) 922-1474, [email protected] (e-mail), www.jkp.com (not a U.S. Government Web site) Medic Publishing Company P.O. Box 89, Redmond, WA 98073-0089. (425) 881-2883, (425) 867-8939 (fax). National Funeral Directors Association (NFDA) 13625 Bishop's Drive, Brookfield, WI 53005-6607. (800) 228-6332 (toll-free), (262) 789-1880, (262) 789-6977 (fax), [email protected] (e-mail), www.nfda.org (not a U.S. Government Web site). Paulist Press 997 Macarthur Boulevard, Mahwah, NJ 07430. (800) 218-1903 (toll-free), (800) 836-3161 (fax), [email protected] (e-mail), www.paulistpress.com (not a U.S. Government Web site). Grief Watch 2116 NE 18th Avenue, Portland, OR 97212. (503) 284-7426, (503) 282-8985 (fax), [email protected] (e-mail), www.griefwatch.com (not a U.S. Government Web site). A Place to Remember 1885 University Avenue, Suite 110, St. Paul, MN 55104. (800) 631-0973 (toll-free), (651) 645-7045, (651) 645-4780 (fax), [email protected] (e-mail), www.aplacetoremember.com (not a U.S. Government Web site).

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Page 36: Selected Resources for Grieving Parents, Their Families, Friends

Twenty-Third Publications P.O. Box 180, Mystic, CT 06355. (800) 321-0411 (toll-free), (800) 572-0788 (fax), [email protected] (e-mail), www.twentythirdpublications.com (not a U.S. Government Web site). Wintergreen Press 3630 Eileen Street, Maple Plain, MN 55359. (952) 476-1303, [email protected] (e-mail), www.wintergreenpress.com (not a U.S. Government Web site). Selected Electronic Resources on Grief and Bereavement Numerous resources on parental grief and bereavement are now available electronically on the Internet. These electronic sources can provide a wealth of information and support to bereaved parents and families and those concerned about them at their time of loss. Each resource provides different information. Some provide information on how and where to obtain publications and materials; others serve as pathways to additional sites on the subject; others provide listservs or chat rooms for ongoing communication among bereaved families. Because such sources change frequently and in some cases may even cease to exist, only names and URLs (uniform resource locators or online addresses) are provided in this list. The best way to find additional electronic information is to use the search engine or browser using the SEARCH or FIND feature, entering key words or phrases such as SIDS or Sudden Infant Death Syndrome, parental grief and bereavement, parents' grief, child death, infant loss, and so on. One site leads to another, and there is a vast array of valuable information available online. Selected electronic resources that NSIDRC staff members have found to be helpful sources of information and referrals on parental grief and bereavement are listed below. We have included some international resources on this list because this is the easiest and least expensive way to access information. A Place to Remember www.aplacetoremember.com (Bookstore section of this Web site contains Spanish-language publications.) Abbey Press www.abbeypress.com (not a U.S. Government Web site) Alliance of Grandparents, A Support in Tragedy (AGAST) www.agast.org (not a U.S. Government Web site) American Academy of Pediatrics (AAP) www.aap.org (not a U.S. Government Web site) American Association of Retired Persons (AARP) www.aarp.org/griefandloss (not a U.S. Government Web site)

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American SIDS Institute www.sids.org (not a U.S. Government Web site) Arizona SIDS Foundation (AZSIDF) www.azsidf.org (not a U.S. Government Web site) www.azsidf.org/spanish/index.html (Spanish-language Web site) Association for Death Education and Counseling (ADEC) www.adec.org (not a U.S. Government Web site) Association of SIDS and Infant Mortality Programs (ASIP) www.asip1.org (not a U.S. Government Web site) Associazione Semi per la SIDS (Italian SIDS Association) www.sidsitalia.it (Italian-language Web site) Batesville Management Services (Batesville Casket Company) www.batesville.com (not a U.S. Government Web site) Bereaved Families Online (BFO) www.bereavedfamilies.net (not a U.S. Government Web site) Bereaved Parents' Network www.care-for-the-family.org.uk Bereavement Publishing, Inc. www.bereavementmag.com (not a U.S. Government Web site) Bereavement Services/Gundersen Lutheran Medical Foundation www.bereavementprograms.com (not a U.S. Government Web site) www.gundluth.org (not a U.S. Government Web site) California SIDS Program www.californiasids.com (not a U.S. Government Web site) Canadian Foundation for the Study of Infant Deaths (CFSID) www.sidscanada.org (not a U.S. Government Web site) Canadian Institute of Child Health www.cich.ca (Web site in French and English) Center for Infant and Child Loss www.infantandchildloss.org (not a U.S. Government Web site) Center for Loss and Life Transition www.centerforloss.com (not a U.S. Government Web site)

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Center for Loss in Multiple Births (CLIMB), Inc. www.climb-support.org (not a U.S. Government Web site) Centering Corporation www.centering.org (not a U.S. Government Web site) Centers for Disease Control and Prevention (CDC) www.cdc.gov Children's Safety Network (CSN) www.childrenssafetynetwork.org (not a U.S. Government Web site) CJ Foundation for SIDS www.cjsids.com (not a U.S. Government Web site) Colorado SIDS Program www.coloradosids.org (not a U.S. Government Web site) Companion Press www.centerforloss.com/pg/Bookstore.asp (not a U.S. Government Web site) Compassion Books www.compassionbooks.com (not a U.S. Government Web site) Compassionate Friends www.compassionatefriends.org (The locator includes the nearest Compassionate Friends chapter, and chapter Web sites can be accessed through this site.) FemmEd, Inc. www.childbirthclasstogo.com (not a U.S. Government Web site) First Candle/SIDS Alliance www.firstcandle.org (not a U.S. Government Web site) Florida Funeral Directors Association (FFDA) www.ffda.org (not a U.S. Government Web site) Foundation for the Study of Infant Deaths (FSID) www.sids.org.uk/fsid GEPS Deutschland www.schlaud.de/geps (German-language Web site) Genesis Bereavement Services www.genesis-resources.com (not a U.S. Government Web site)

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Grief Recovery Institute www.grief-recovery.com (not a U.S. Government Web site) Griefnet www.griefnet.org Growth House, Inc. www.growthhouse.org (not a U.S. Government Web site) Guild for Infant Survival, Orange County (GISOC) www.gisoc.org (not a U.S. Government Web site) HAND (Helping After Neonatal Death) of the Peninsula www.handsupport.org (not a U.S. Government Web site) HAND for Alameda, Contra Costa, Santa Clara Counties and Central Valley, CA www.handonline.org (not a U.S. Government Web site) Healthfinder www.healthfinder.gov Healthfinder Español www.healthfinder.gov/espanol Health Resources and Services Administration (HRSA) www.ask.hrsa.gov Healthy Child Care America Back to Sleep Campaign (AAP) www.healthychildcare.org/section_SIDS.cfm (not a U.S. Government Web site) Hospice Foundation of America (HFA) www.hospicefoundation.org Hygeia Foundation, Inc. www.hygeia.org Indiana Perinatal Network (IPN) www.indianaperinatal.org (not a U.S. Government Web site) International Society for the Study and Prevention of Infant Death www.ispid.org/ispid/ispid_start.html (not a U.S. Government Web site) Irish Sudden Infant Death Association www.iol.ie/~isidansr/home.htm (not a U.S. Government Web site)

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Kids' Place www.kidsplace.org (not a U.S. Government Web site) London Bereavement Network www.bereavement.org.uk (not a U.S. Government Web site) March of Dimes (MOD) www.modimes.org (not a U.S. Government Web site) Maternal and Child Health Bureau (MCHB) www.mchb.hrsa.gov MedLine/PubMed www.ncbi.nlm.nih.gov/PubMed MISS Foundation www.missfoundation.org (not a U.S. Government Web site) Mommies Enduring Neonatal Death (MEND) www.mend.org (not a U.S. Government Web site) National Center for Cultural Competence SIDS/ID Component (NCCC) http://www11.georgetown.edu/research/gucchd/nccc/projects/sids/index.html (not a U.S. Government Web site) National Center for Education in Maternal and Child Health (NCEMCH) www.ncemch.org National Child Care Information Center www.nccic.org National Fetal and Infant Mortality Review Program (NFIMR) www.acog.org/goto/nfimr (not a U.S. Government Web site) National Funeral Directors Association (NFDA) www.nfda.org (not a U.S. Government Web site) National Health Information Center (NHIC) www.health.gov/nhic National Healthy Mothers/Healthy Babies Coalition (HMHB) www.hmhb.org (not a U.S. Government Web site) National Institute of Child Health and Human Development (NICHD) www.nichd.nih.gov/sids/sids.cfm www.nichd.nih.gov/publications/pubskey.cfm?from=sids

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National Kidney Foundation, Inc./National Donor Family Council www.kidney.org (not a U.S. Government Web site) National Resource Center for Health and Safety in Child Care http://nrc.uchsc.edu/ (not a U.S. Government Web site) National Partnership to Help Pregnant Smokers Quit www.helppregnantsmokersquit.org (not a U.S. Government Web site) National SIDS and Infant Death Program Support Center (NSIDPSC) www.firstcandle.org/health/health_human.html (not a U.S. Government Web site) National SIDS/Infant Death Resource Center (NSIDRC) www.sidscenter.org (not a U.S. Government Web site) National SIDS/Infant Death Project IMPACT www.sidsprojectimpact.com (not a U.S. Government Web site) Norwegian SIDS Organization www.sids.no (Norwegian-language Web site) Pediatrics www.pediatrics.org (not a U.S. Government Web site) Perinatal Loss/Griefwatch www.griefwatch.com (Web site contains resources for bereaved parents and professional caregivers) SHARE Pregnancy and Infant Loss Support, Inc. www.nationalshareoffice.com (not a U.S. Government Web site) SIDS and Kids Victoria (Australia) s www.sidsandkids.org (not a U.S. Government Web site) SIDS Center of New Jersey www.umdnj.edu/sids Located at Robert Wood Johnson Medical School www.thechildrenshospitalhumc.net/s129 Located at Hackensack University Medical Center SIDS Educational Services, Inc. www.sidssurvivalguide.org (not a U.S. Government Web site) SIDS Foundation of Washington www.sidsofwa.org (not a U.S. Government Web site) SIDS of Illinois, Inc. www.sidsillinois.org (not a U.S. Government Web site)

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SIDS Network www.sids-network.org (not a U.S. Government Web site) SIDS Resources, Inc. www.sidsresources.org (not a U.S. Government Web site) Southwest SIDS Research Institute www.swsids.com (not a U.S. Government Web site) SPALS: Subsequent Pregnancy After Loss Support www.spals.com (not a U.S. Government Web site) SANDS: Stillbirth and Neonatal death www.uk-sands.org (not a U.S. Government Web site) Sudden Unexplained Death in Childhood Program (SUDC) www.sudc.org (not a U.S. Government Web site) Swedish SIDS Parent Association www.ffpsd.se (Swedish-language Web site) Triplet Connection www.tripletconnection.org (not a U.S. Government Web site) Twinless Twins Support Group www.twinlesstwins.org (not a U.S. Government Web site) U.S. Consumer Product Safety Commission (CPSC) www.cpsc.gov U.S. Department of Health and Human Services Administration for Children and Families www.acf.hhs.gov U.S. Department of Health and Human Services Office of Minority Health www.omhrc.gov Utah Department of Health/Sudden Infant Death Program www.health.state.ut.us (Click on "Mom & Child Health" in the left sidebar and then "SIDS" for relevant publications.) Wendt Center for Loss and Healing www.lossandhealing.org (not a U.S. Government Web site)

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Wisconsin Stillbirth Service Program www.wisc.edu/wissp (not a U.S. Government Web site) World Health Organization Statistical Information System (WHOSIS) www3.who.int/whosis/menu.cfm?path=whosis,mort (not a U.S. Government Web site) (click on “Table 2: Infant Deaths” which lists infant deaths by country. Most of the countries have listed total SIDS deaths) This document was developed by the U.S. Department of Health and Human Services, Health Resources and Services Administration (www.hrsa.gov), Maternal and Child Health Bureau under a contract with the National Sudden Infant Death Syndrome (SIDS)/Infant Death Resource Center, Contract No. [NIH IDIQ-263-01-D-0208]. The National SIDS/Infant Death Resource Center is operated by Circle Solutions, Inc. U.S. Department of Health and Human Services Health Resources and Services Administration Maternal and Child Health Bureau National SIDS/Infant Death Resource Center www.hrsa.gov Last updated on Feb 8, 2007.

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