San Andreas Regional Center (SARC) Report · measures as well as individual outcome data.In California, data from this project will be used to review and benchmark statewide and regional

NCI Family/Guardian Survey Outcomes San Andreas Regional Center (SARC) Report FiscalYear2013‐2014

Table of Contents

QualityAssessment Projectand NationalCoreIndicators© ...................................................................................................................................................................... 1

WhatisNCI? ...................................................................................................................................................................................................................................................................... 1

Whatisthe NCIFamily/Guardian Survey? .......................................................................................................................................................................................................... 1

Whattopicsarecoveredbythesurvey? ............................................................................................................................................................................................................... 2

TABLE1.NCIFAMILYSURVEYINDICATORS–SUB‐DOMAINS ANDCONCERN STATEMENTS................................................................................................................................................................................ 3

Howwere peopleselectedtoparticipate? ........................................................................................................................................................................................................... 3

Limitations ofData ......................................................................................................................................................................................................................................................... 4

Whatiscontainedinthisreport? ............................................................................................................................................................................................................................. 4

Results: Demographics of Family Member ..........................................................................................................................................................................1

GRAPH1.FAMILYMEMBER’SAVERAGEAGE ............................................................................................................................................................................................................................................................................... 2

GRAPH2.FAMILYMEMBER’SGENDER ........................................................................................................................................................................................................................................................................................... 2

GRAPH3FAMILYMEMBER’S RACEANDETHNICITY................................................................................................................................................................................................................................................................ 2

GRAPH4FAMILYMEMBER’SRESIDENCE ...................................................................................................................................................................................................................................................................................... 2

GRAPH5.FAMILYMEMBER’SPREFERREDMEANSOFEXPRESSION ................................................................................................................................................................................................................................ 3

GRAPH6.FAMILYMEMBER’S PREFERREDLANGUAGE........................................................................................................................................................................................................................................................... 3

GRAPH7.FAMILYMEMBER’STYPICALDAYACTIVITIES........................................................................................................................................................................................................................................................ 3

GRAPH8.FAMILYMEMBER’STYPICAL DAYACTIVITIES,CONTINUED............................................................................................................................................................................................................................ 3

GRAPH9.FAMILYMEMBER’SHIGHESTLEVEL OFEDUCATION.......................................................................................................................................................................................................................................... 4

GRAPH10.FREQUENCY OFMEDICALCARENEEDEDFORFAMILYMEMBER............................................................................................................................................................................................................... 4

GRAPH11.AMOUNTOFBEHAVIORAL SUPPORTNEEDEDFORFAMILYMEMBER..................................................................................................................................................................................................... 4

GRAPH12.AMOUNTOF HELPNEEDEDFORFAMILYMEMBER’SDAILYACTIVITIES................................................................................................................................................................................................ 4

Results: Demographics of Respondent..................................................................................................................................................................................5

GRAPH13.RESPONDENT'S AGE ......................................................................................................................................................................................................................................................................................................... 6

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GRAPH14.RELATIONSHIP TOFAMILYMEMBER ....................................................................................................................................................................................................................................................................... 6

GRAPH15.NUMBEROFTIMESRESPONDENT SEESFAMILYMEMBERINA YEAR ..................................................................................................................................................................................................... 6

GRAPH16.RESPONDENT'SHIGHESTLEVEL OFEDUCATION............................................................................................................................................................................................................................................... 6

GRAPH17.TOTAL TAXABLE FAMILY INCOMEOF WAGE EARNERSINTHEHOUSEHOLDINTHE PASTYEAR ............................................................................................................................................. 7

GRAPH18.OUT‐OF‐POCKET EXPENSES FORFAMILYINTHE PAST YEAR...................................................................................................................................................................................................................... 7

Services and Supports Received ..............................................................................................................................................................................................8

GRAPH19.SERVICESANDSUPPORTSRECEIVEDFROMREGIONAL CENTER ............................................................................................................................................................................................................... 9

Information and Planning....................................................................................................................................................................................................... 10

GRAPH20.DOYOUGETENOUGHINFORMATIONTOHELPYOUPARTICIPATEINPLANNINGSERVICESFORYOURFAMILYMEMBER?.................................................................................... 11

GRAPH21.ISTHEINFORMATIONYOURECEIVEEASYTOUNDERSTAND?................................................................................................................................................................................................................. 11

GRAPH22.ARE YOUKEPTINFORMEDABOUT HOWYOURFAMILYMEMBERISDOING? .................................................................................................................................................................................. 11

GRAPH23.DOESYOURFAMILYMEMBER HAVEANINDIVIDUAL PROGRAMPLAN(IPP)? ................................................................................................................................................................................ 11

GRAPH24.DIDYOURFAMILY MEMBERHELPDEVELOPTHEIPP? ............................................................................................................................................................................................................................... 12

GRAPH25.DIDYOUORANOTHERFAMILYMEMBERHELPDEVELOPTHEIPP? ..................................................................................................................................................................................................... 12

GRAPH26.DOESTHEIPPINCLUDEALL THESERVICES AND SUPPORTSYOURFAMILYMEMBERWANTS?............................................................................................................................................. 12

GRAPH27.DOESTHEIPPINCLUDEALL THESERVICES AND SUPPORTSYOURFAMILYMEMBERNEEDS? .............................................................................................................................................. 12

GRAPH28.DOESYOURFAMILYMEMBERRECEIVEALLOFTHESERVICES LISTEDINTHEIPP? ................................................................................................................................................................... 13

GRAPH29.DIDYOUDISCUSS HOWTOHANDLEEMERGENCIESRELATEDTO YOURFAMILYMEMBERATTHELASTIPPMEETING? ......................................................................................... 13

GRAPH30.HAVEYOUORYOURFAMILY MEMBERRECEIVEDINFORMATION ABOUTHIS/HERRIGHTS? ................................................................................................................................................. 13

Access and Delivery .................................................................................................................................................................................................................. 14

GRAPH31.AREYOUABLETOCONTACT YOURFAMILYMEMBER’S SUPPORT WORKERSWHENYOUNEEDTO? ................................................................................................................................... 15

GRAPH32.ARE YOUABLETOCONTACT YOURFAMILYMEMBER’S CASE MANAGER/SERVICECOORDINATORWHENYOUNEEDTO? ..................................................................................... 15

GRAPH33.ARE SERVICES ANDSUPPORTSAVAILABLEWITHINAREASONABLEDISTANCEFROMYOURFAMILYMEMBER’SHOME? ...................................................................................... 15

GRAPH34.DO THESERVICES ANDSUPPORTSCHANGEWHENYOURFAMILY MEMBER’SNEEDSCHANGE?........................................................................................................................................... 15

GRAPH35.IFYOURFAMILYMEMBER DOESNOTCOMMUNICATEVERBALLY (FOREXAMPLE,USESGESTURESORSIGNLANGUAGE),ARE THERESUPPORTWORKERS WHO CANCOMMUNICATEWITHHIM/HER? ......................................................................................................................................................................................................................................................................................... 16

GRAPH36.IF ENGLISHISYOURFAMILY MEMBER’SPREFERREDLANGUAGE,DOTHESUPPORTWORKERSSPEAK TOHIM/HEREFFECTIVELY?................................................................ 16

GRAPH37.ARE SERVICES DELIVERED INAWAYTHATISRESPECTFULTOYOURFAMILY MEMBER’SCULTURE?............................................................................................................................... 16

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GRAPH38.DOESYOURFAMILYMEMBERHAVEACCESSTO THESPECIAL EQUIPMENTOR ACCOMMODATIONSTHATHE/SHENEEDS(FOREXAMPLE, WHEELCHAIRS, RAMPS,COMMUNICATIONBOARDS)?............................................................................................................................................................................................................................................................................................................ 16

GRAPH39.DO SUPPORTWORKERSHAVETHERIGHTTRAININGTOMEET YOURFAMILYMEMBER’SNEEDS? ................................................................................................................................... 17

GRAPH40.DO YOUFEELTHATYOURFAMILYMEMBER'S RESIDENTIAL SETTINGISAHEALTHYAND SAFEENVIRONMENT? ...................................................................................................... 17

GRAPH41.DO YOUFEELTHATYOURFAMILY MEMBER’SDAY/EMPLOYMENT SETTINGISAHEALTHYANDSAFEENVIRONMENT?......................................................................................... 17

Choice and Control .................................................................................................................................................................................................................... 18

GRAPH42.DOESTHEAGENCY PROVIDINGRESIDENTIAL SERVICESTOYOURFAMILYMEMBERINVOLVEHIM/HERINIMPORTANTDECISIONS? ............................................................ 19

GRAPH43.DOESYOURFAMILYMEMBERCHOOSETHEPROVIDERAGENCIES THATWORKWITHHIMORHER? ................................................................................................................................. 19

GRAPH44.CAN YOURFAMILY MEMBER CHOOSEADIFFERENT PROVIDERAGENCYIFS/HE WANTSTO? ............................................................................................................................................... 19

GRAPH45.DOESYOURFAMILYMEMBER CHOOSETHEINDIVIDUAL SUPPORT WORKERSWHOWORKDIRECTLYWITHHIM/HER?......................................................................................... 19

GRAPH46.CAN YOURFAMILY MEMBERCHOOSEDIFFERENTSUPPORTWORKERSIFS/HEWANTSTO? ................................................................................................................................................. 20

GRAPH47.DIDYOURFAMILY MEMBER CHOOSEHIS/HERCASEMANAGER/SERVICECOORDINATOR? ..................................................................................................................................................... 20

GRAPH48.DOESYOURFAMILYMEMBER HAVECONTROLAND/ORINPUTOVERTHEHIRINGANDMANAGEMENTOF HIS/HERSUPPORTWORKERS?.................................................. 20

GRAPH49.DOESYOURFAMILYMEMBER KNOWHOWMUCHMONEYISSPENT BYTHEREGIONALCENTER ONHIS/HERBEHALF?*........................................................................................ 20

GRAPH50.DOESYOURFAMILYMEMBER HAVEASAYINHOWREGIONALCENTERMONEYISSPENTON HIS/HERBEHALF? ....................................................................................................... 21

GRAPH51.IFYOURFAMILYMEMBERHASA SAYINHOWREGIONALCENTERMONEYISSPENT,DOESS/HEHAVE ALLTHE INFORMATIONNEEDEDTO MAKE DECISIONS ABOUTHOWTOSPEND THISMONEY?......................................................................................................................................................................................................................................................................................... 21

Community Connections ......................................................................................................................................................................................................... 22

GRAPH52.DOESYOURFAMILYMEMBER PARTICIPATEINCOMMUNITYACTIVITIES(SUCHASGOINGOUTTOARESTAURANT,MOVIE,ORSPORTINGEVENT)?.............................. 23

GRAPH53.IFYOURFAMILYMEMBERDOESN'TPARTICIPATEINCOMMUNITYACTIVITIES, WHYNOT? ................................................................................................................................................... 23

GRAPH54.DOESYOURFAMILYMEMBER HAVEFRIENDSORRELATIONSHIPS WITHPERSONSOTHERTHANPAIDSTAFFORFAMILY?.................................................................................. 23

GRAPH55.DOESYOURFAMILYMEMBER HAVEENOUGHSUPPORT(FOREXAMPLE,SUPPORTWORKERS, COMMUNITYRESOURCES)TO WORKORVOLUNTEER INTHE COMMUNITY? ........................................................................................................................................................................................................................................................................................................................................... 23

Satisfaction................................................................................................................................................................................................................................... 24

GRAPH56.OVERALL,AREYOUSATISFIEDWITHTHESERVICESAND SUPPORTSYOURFAMILYMEMBER CURRENTLYRECEIVES? ........................................................................................... 25

GRAPH57.DO YOUKNOWTHEPROCESS FOR FILINGACOMPLAINTORGRIEVANCEAGAINSTPROVIDER AGENCIESORSTAFF?* ............................................................................................. 25

GRAPH58.AREYOUSATISFIEDWITH THEWAYCOMPLAINTSORGRIEVANCESAGAINST PROVIDERAGENCIESORSTAFF AREHANDLED ANDRESOLVED? ...................................... 25

GRAPH59.DOYOUKNOWHOWTO REPORTABUSEORNEGLECT?* ............................................................................................................................................................................................................................ 25

GRAPH60.WITHINTHEPAST YEAR,IF ABUSEORNEGLECT OCCURRED,DIDYOUREPORT IT? .................................................................................................................................................................... 26

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Family Outcomes........................................................................................................................................................................................................................ 27

GRAPH61.DO YOUFEELTHATSERVICESAND SUPPORTSHAVEMADEAPOSITIVEDIFFERENCEINTHELIFEOF YOUR FAMILYMEMBER?......................................................................... 28

GRAPH62.DO YOUFEELTHATSERVICESAND SUPPORTSHAVEREDUCED YOURFAMILY’S OUT‐OF‐POCKET EXPENSES FORYOURFAMILYMEMBER’S CARE? ................................ 28

GRAPH63.HAVETHESERVICES ORSUPPORTS THATYOURFAMILYMEMBER RECEIVEDBEENREDUCED,SUSPENDED,OR TERMINATEDINTHEPASTYEAR?................................ 28

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Quality Assessment Project and National Core Indicators ©

ThisreportcontainsregionalcenterlevelresultsfromCalifornia’sstatewideNationalCoreIndicator (NCI)Family/GuardianSurveydata

collectionfromFiscalYear2013‐2014(FY13/14)inaccordance withWelfareandInstitutionsCode(WIC),Section4571.WIC,Section

4571directstheDepartmentofDevelopmentalServices(DDS)to collectaccurate,reliable,and validconsumerand familysatisfaction

measuresaswellasindividualoutcomedata. InCalifornia,datafrom thisprojectwillbeused toreviewandbenchmarkstatewideand

regionalcenterdevelopmentaldisabilityservicesystemperformance. 1 ThisreportshowsFamily/GuardianSurveyfindingsfrom San AndreasRegionalCenter(SARC)comparedto theCaliforniastatewideandNCI averages.Regionalcenterscanusethisreportto help

guidestrategicplanningandmonitorsystemic changes.

What is NCI? TheNCIprogramisavoluntaryeffortbystatedevelopmentaldisabilityagenciestogaugeandtrack theirownperformanceusinga

commonandnationally validatedsetofperformancemeasures.TheeffortiscoordinatedbytheNationalAssociationofStateDirectors

ofDevelopmentalDisabilitiesServices(NASDDDS)incollaboration withtheHumanServicesResearchInstitute(HSRI).NCIhas

developed asetofmorethan100 standardperformance measures (or“indicators”)thatstatesusetoassesstheoutcomesofservices

providedto individuals andtheirfamilies.Theseindicatorsfocusonareas suchas:employment,rights,serviceplanning,community

inclusion,choice,health,and safety.Duringthe2013‐14 data collectioncycle,40states,the DistrictofColumbiaand22sub‐state entities

participated inNCI.

What is the NCI Family/Guardian Survey? TheNCIFamily/GuardianSurveyisamail‐insurveysenttothe familieswhohaveanadultfamilymemberwithan

intellectual/developmentaldisabilitylivingoutsideofthehomewhoreceivesservicesfrom one ofCalifornia’sregionalcenters.The

1 Refer to the California Family/Guardian Survey Report FY 13/14 for detailed information about Quality Assessment Project implementation, the NCI, and California’sStatewide results.

NationalCoreIndicatorsFamily/GuardianSurvey2013‐14 RegionalCenterResults |1

surveyisusedtogatherdataon familyoutcomes,anditisrefinedand testedto ensurethat itisvalidandreliable.Thesurveycollects

demographicinformationontheindividualreceivingservicesandthe surveyrespondent(usually aparent),aswellasinformationon

servicesandsupportsreceived. It containssixgroupings ofquestionsthatprobespecificareasofqualityserviceprovision: information

andplanning,accessanddelivery ofservices,choiceandcontrol,communityconnections,satisfaction,andfamilyoutcomes.

Respondentsalsohavetheoption ofwritingopen‐ended comments concerningtheirfamily’sparticipationintheservicesystem.

What topics are covered by the survey? TheNationalCoreIndicatorsare organizedby topicor“domain.”Each domainconsistsofsub‐domains,andeachsub‐domainis

associated withaparticularareaof concern.TheNCIFamily/GuardianSurveyincludesitemsto measuretheFamilyOutcomesdomain.

Thetableon thefollowingpageliststheNCIFamilySurveyssub‐domainsandconcerns.

NationalCoreIndicators Family/GuardianSurvey2013‐14RegionalCenterResults |2

TABLE 1. NCI FAMILY SURVEY INDICATORS –SUB‐DOMAINS AND CONCERN STATEMENTS

Sub‐Domain Concern

Information and Planning Families/familymemberswithdisabilitieshavetheinformation andsupportnecessary toplanfortheirservicesand supports.

Access & Support Delivery Families/familymemberswithdisabilitiesget theservicesand supportstheyneed.

Choice & Control Families/familymemberswith disabilitiesdeterminethe servicesand supportstheyreceiveandtheindividualsoragencieswhoprovide them.

Community Connections Familymemberswithdisabilities useintegratedcommunity servicesand participate in everyday community activities.

Satisfaction Families/familymemberswithdisabilitiesreceiveadequateandsatisfactorysupports.

Family Outcomes Individualandfamilysupportsmakeapositivedifferenceinthelives offamilies.

How were people selected to participate? Foreachregionalcenter,DDSselectedarandomsampleoffamilies whohadanadultwithadisability livingoutsideofthe familyhome

andreceivedatleastonedirectserviceorsupportotherthan service coordination.

TheStateCouncilonDevelopmentalDisabilitiesmailedoutapapersurveytofamiliesselected intheirsample.Afinalsample sizeof 400

fromeachregionalcenterguaranteesa+/‐5%marginoferrorand a 95%confidencelevel wheninterpretingthe results.Boththe


confidence intervalandmarginoferrorused arewidely acceptableforreviewingresults,regardlessof populationsize.Some regional

centershad alowerthan expected return rate andreceivedfewerthan400surveys;allregionalcenters reacheda minimumthreshold

ofamargin oferror no greater than+/‐7%.

Limitations of Data

TheNCIFamily/GuardianSurveytoolisnotintendedtobeused for monitoring individuals orproviders,butratherforassessing

system‐wideperformance.TheNCIandCalifornia Averagesshould notbeinterpretedasnecessarilydefining“acceptable”levels of performanceorsatisfaction,nor doesitprovidebenchmarksfor acceptableorunacceptablelevelsofperformancefor eachindicator.

Instead,itdescribesaveragelevelsofperformanceorsatisfaction acrosstheState.Itisup topublic managers,policy‐makers,andother

stakeholderstodecide whatisanacceptableorunacceptableresult(i.e.,percentageofindividualsachieving theindicatedoutcome).

What is contained in this report? ThisreportillustratesFY 13/14NCIFamily/GuardianSurveydemographicandoutcomeresultsfromSARCcomparedtotheCalifornia

statewideaverage,and NCIAverage.TheNCI Average iscalculatedbyaveraging allstates’estimates–itisan“averageof averages”,

therefore, eachstatecontributes thesameweighttotheNCIAverage, includingCalifornia.

InFY13/14,12states conductedtheFamily/GuardianSurvey.Allresultsareshowninchartform.Chartsdonotdisplaythenumberof

respondentstoeachquestion.Somequestions mayhavea lowresponserate,particularlyquestionsaboutknowledgeanduseof

regionalcentermoney, reporting grievances, and abuse or neglect.Regionalcentersorstateswithfewerthan 20responsesto a particularquestionwereexcludedfromanalysisforthatquestion.Thenumberofresponses per eachquestionareincludedinthestate

report.The stateand regionalcenterdataresultsforthissurveycanbe foundonlineathttp://www.dds.ca.gov/QA.


Results: Demographics of Family Member ILLUSTRATES THE DEMOGRAPHIC PROFILE OF FAMILY MEMBER WITH DISABILITIES FOR WHOM THE SURVEY WAS COMPLETED


GRAPH 1. FAMILY MEMBER’S AVERAGE AGE GRAPH 2. FAMILY MEMBER’S GENDER

GRAPH 3 FAMILY MEMBER’S RACE AND ETHNICITY* GRAPH 4 FAMILY MEMBER’S RESIDENCE

*CATEGORIES ARE NOT MUTUALLY EXCLUSIVE, AND THEREFORE SOME RESULTS MAY ADD UP TO MORE THAN 100%. NOTE: IN THE CALIFORNIA DATA, HISPANIC IS CONSIDERED A RACE CATEGORY. NCI USES THE U.S. CENSUS MODEL, WHICH DEFINES ETHNICITY SEPARATELY AS HISPANIC VS. NON‐HISPANIC.


GRAPH 5. FAMILY MEMBER’S PREFERRED MEANS OF EXPRESSION GRAPH 6. FAMILY MEMBER’S PREFERRED LANGUAGE

GRAPH 7. FAMILY MEMBER’S TYPICAL DAY ACTIVITIES GRAPH 8. FAMILY MEMBER’S TYPICAL DAY ACTIVITIES, CONTINUED


GRAPH 9. FAMILY MEMBER’S HIGHEST LEVEL OF EDUCATION GRAPH 10. FREQUENCY OF MEDICAL CARE NEEDED FOR FAMILY MEMBER

GRAPH 11. AMOUNT OF BEHAVIORAL SUPPORT NEEDED FOR FAMILY GRAPH 12. AMOUNT OF HELP NEEDED FOR FAMILY MEMBER’S DAILY MEMBER ACTIVITIES


Results: Demographics of Respondent ILLUSTRATES THE DEMOGRAPHIC PROFILE OF THE SURVEY RESPONDENTS


GRAPH 13. RESPONDENT'S AGE GRAPH 14. RELATIONSHIP TO FAMILY MEMBER

GRAPH 15. NUMBER OF TIMES RESPONDENT SEES FAMILY MEMBER IN A GRAPH 16. RESPONDENT'S HIGHEST LEVEL OF EDUCATION YEAR


GRAPH 17. TOTAL TAXABLE FAMILY INCOME OF WAGE EARNERS IN THE GRAPH 18. OUT‐OF‐POCKET EXPENSES FOR FAMILY IN THE PAST YEAR HOUSEHOLD IN THE PAST YEAR


Services and Supports Received

ILLUSTRATES THE SERVICES AND SUPPORTS RECEIVED BY FAMILY MEMBERS WITH A DISABILITY


GRAPH 19. SERVICES AND SUPPORTS RECEIVED FROM REGIONAL CENTER2

2 Allservices andsupports arereceivedfromtheregional center except social security benefits.


Information and Planning

FAMILIES AND FAMILY MEMBERS WITH DISABILITIES HAVE THE INFORMATION AND SUPPORT NECESSARY TO PLAN FOR THEIR

SERVICES AND SUPPORTS


GRAPH 20. DO YOU GET ENOUGH INFORMATION TO HELP YOU GRAPH 21. IS THE INFORMATION YOU RECEIVE EASY TO UNDERSTAND? PARTICIPATE IN PLANNING SERVICES FOR YOUR FAMILY MEMBER?

GRAPH 22. ARE YOU KEPT INFORMED ABOUT HOW YOUR FAMILY GRAPH 23. DOES YOUR FAMILY MEMBER HAVE AN INDIVIDUAL MEMBER IS DOING? PROGRAM PLAN (IPP)?


GRAPH 24. DID YOUR FAMILY MEMBER HELP DEVELOP THE IPP? GRAPH 25. DID YOU OR ANOTHER FAMILY MEMBER HELP DEVELOP THE IPP?

GRAPH 26. DOES THE IPP INCLUDE ALL THE SERVICES AND SUPPORTS GRAPH 27. DOES THE IPP INCLUDE ALL THE SERVICES AND SUPPORTS YOUR FAMILY MEMBER WANTS? YOUR FAMILY MEMBER NEEDS?


GRAPH 28. DOES YOUR FAMILY MEMBER RECEIVE ALL OF THE SERVICES GRAPH 29. DID YOU DISCUSS HOW TO HANDLE EMERGENCIES RELATED LISTED IN THE IPP? TO YOUR FAMILY MEMBER AT THE LAST IPP MEETING?

GRAPH 30. HAVE YOU OR YOUR FAMILY MEMBER RECEIVED INFORMATION ABOUT HIS/HER RIGHTS?


Access and Delivery

FAMILIES AND FAMILY MEMBERS WITH DISABILITIES GET THE SERVICES AND SUPPORTS THEY NEED


GRAPH 31. ARE YOU ABLE TO CONTACT YOUR FAMILY MEMBER’S GRAPH 32. ARE YOU ABLE TO CONTACT YOUR FAMILY MEMBER’S CASE SUPPORT WORKERS WHEN YOU NEED TO? MANAGER/SERVICE COORDINATOR WHEN YOU NEED TO?

GRAPH 33. ARE SERVICES AND SUPPORTS AVAILABLE WITHIN A GRAPH 34. DO THE SERVICES AND SUPPORTS CHANGE WHEN YOUR REASONABLE DISTANCE FROM YOUR FAMILY MEMBER’S HOME? FAMILY MEMBER’S NEEDS CHANGE?


GRAPH 35. IF YOUR FAMILY MEMBER DOES NOT COMMUNICATE GRAPH 36. IF ENGLISH IS YOUR FAMILY MEMBER’S PREFERRED VERBALLY (FOR EXAMPLE, USES GESTURES OR SIGN LANGUAGE), ARE LANGUAGE, DO THE SUPPORT WORKERS SPEAK TO HIM/HER THERE SUPPORT WORKERS WHO CAN COMMUNICATE WITH HIM/HER? EFFECTIVELY?

GRAPH 37. ARE SERVICES DELIVERED IN A WAY THAT IS RESPECTFUL TO GRAPH 38. DOES YOUR FAMILY MEMBER HAVE ACCESS TO THE SPECIAL YOUR FAMILY MEMBER’S CULTURE? EQUIPMENT OR ACCOMMODATIONS THAT HE/SHE NEEDS (FOR

EXAMPLE, WHEELCHAIRS, RAMPS, COMMUNICATION BOARDS)?


GRAPH 39. DO SUPPORT WORKERS HAVE THE RIGHT TRAINING TO GRAPH 40. DO YOU FEEL THAT YOUR FAMILY MEMBER'S RESIDENTIAL MEET YOUR FAMILY MEMBER’S NEEDS? SETTING IS A HEALTHY AND SAFE ENVIRONMENT?

GRAPH 41. DO YOU FEEL THAT YOUR FAMILY MEMBER’S DAY/EMPLOYMENT SETTING IS A HEALTHY AND SAFE ENVIRONMENT?


Choice and Control FAMILIES AND FAMILY MEMBERS WITH DISABILITIES DETERMINE THE SERVICES AND SUPPORTS THEY RECEIVE AND THE

INDIVIDUALS OR AGENCIES WHO PROVIDE THEM


GRAPH 42. DOES THE AGENCY PROVIDING RESIDENTIAL SERVICES TO GRAPH 43. DOES YOUR FAMILY MEMBER CHOOSE THE PROVIDER YOUR FAMILY MEMBER INVOLVE HIM/HER IN IMPORTANT DECISIONS? AGENCIES THAT WORK WITH HIM OR HER?

GRAPH 44. CAN YOUR FAMILY MEMBER CHOOSE A DIFFERENT PROVIDER GRAPH 45. DOES YOUR FAMILY MEMBER CHOOSE THE INDIVIDUAL AGENCY IF S/HE WANTS TO? SUPPORT WORKERS WHO WORK DIRECTLY WITH HIM/HER?


GRAPH 46. CAN YOUR FAMILY MEMBER CHOOSE DIFFERENT SUPPORT GRAPH 47. DID YOUR FAMILY MEMBER CHOOSE HIS/HER CASE WORKERS IF S/HE WANTS TO? MANAGER/SERVICE COORDINATOR?

GRAPH 48. DOES YOUR FAMILY MEMBER HAVE CONTROL AND/OR INPUT GRAPH 49. DOES YOUR FAMILY MEMBER KNOW HOW MUCH MONEY IS OVER THE HIRING AND MANAGEMENT OF HIS/HER SUPPORT WORKERS? SPENT BY THE REGIONAL CENTER ON HIS/HER BEHALF?*

*’DON’T KNOW’ RESPONSES WERE INCLUDED IN ‘NO’ RESPONSES FOR THIS QUESTION.


GRAPH 50. DOES YOUR FAMILY MEMBER HAVE A SAY IN HOW REGIONAL GRAPH 51. IF YOUR FAMILY MEMBER HAS A SAY IN HOW REGIONAL CENTER MONEY IS SPENT ON HIS/HER BEHALF? CENTER MONEY IS SPENT, DOES S/HE HAVE ALL THE INFORMATION

NEEDED TO MAKE DECISIONS ABOUT HOW TO SPEND THIS MONEY?


Community Connections FAMILY MEMBERS WITH DISABILITIES USE INTEGRATED COMMUNITY SERVICES AND PARTICIPATE IN EVERYDAY COMMUNITY

ACTIVITIES


GRAPH 52. DOES YOUR FAMILY MEMBER PARTICIPATE IN COMMUNITY GRAPH 53. IF YOUR FAMILY MEMBER DOESN'T PARTICIPATE IN ACTIVITIES (SUCH AS GOING OUT TO A RESTAURANT, MOVIE, OR COMMUNITY ACTIVITIES, WHY NOT? SPORTING EVENT)?

GRAPH 54. DOES YOUR FAMILY MEMBER HAVE FRIENDS OR GRAPH 55. DOES YOUR FAMILY MEMBER HAVE ENOUGH SUPPORT (FOR RELATIONSHIPS WITH PERSONS OTHER THAN PAID STAFF OR FAMILY? EXAMPLE, SUPPORT WORKERS, COMMUNITY RESOURCES) TO WORK OR

VOLUNTEER IN THE COMMUNITY?


Satisfaction

FAMILIES AND FAMILY MEMBERS WITH DISABILITIES RECEIVE ADEQUATE AND SATISFACTORY SUPPORTS


GRAPH 56. OVERALL, ARE YOU SATISFIED WITH THE SERVICES AND GRAPH 57. DO YOU KNOW THE PROCESS FOR FILING A COMPLAINT OR SUPPORTS YOUR FAMILY MEMBER CURRENTLY RECEIVES? GRIEVANCE AGAINST PROVIDER AGENCIES OR STAFF?*

GRAPH 58. ARE YOU SATISFIED WITH THE WAY COMPLAINTS OR GRAPH 59. DO YOU KNOW HOW TO REPORT ABUSE OR NEGLECT?* GRIEVANCES AGAINST PROVIDER AGENCIES OR STAFF ARE HANDLED AND RESOLVED?

*’DON’T KNOW’ RESPONSES WERE INCLUDED IN ‘NO’ RESPONSES FOR THIS QUESTION.


GRAPH 60. WITHIN THE PAST YEAR, IF ABUSE OR NEGLECT OCCURRED, DID YOU REPORT IT?


Family Outcomes INDIVIDUAL AND FAMILY SUPPORTS MAKE A POSITIVE DIFFERENCE IN THE LIVES OF FAMILIES


GRAPH 61. DO YOU FEEL THAT SERVICES AND SUPPORTS HAVE MADE A GRAPH 62. DO YOU FEEL THAT SERVICES AND SUPPORTS HAVE REDUCED POSITIVE DIFFERENCE IN THE LIFE OF YOUR FAMILY MEMBER? YOUR FAMILY’S OUT‐OF‐POCKET EXPENSES FOR YOUR FAMILY MEMBER’S

CARE?

GRAPH 63. HAVE THE SERVICES OR SUPPORTS THAT YOUR FAMILY MEMBER RECEIVED BEEN REDUCED, SUSPENDED, OR TERMINATED IN THE PAST YEAR?


Documents

San Andreas Regional Center (SARC) Report · measures as well as individual outcome data.In California, data from this project will be used to review and benchmark statewide and regional