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SYMPOSIA ETHICS, SCIENCE & SOCIETY , LISBON, 10TH /11TH NOV . 2018 Ethical aspects of the science and society dialogue. María Casado, Ph.D Full Professor of Philosophy of Law, Moral and Politics. Chairholder of the UNESCO Chair in Bioethics at the University of Barcelona. Director of the Bioethics and Law Observatory. Director of the Master in Bioethics and Law - University of Barcelona www.bioeticayderecho.ub.edu

S ETHICS, SCIENCE & SOCIETY, LISBON 10 /11 NOV. 2018 · 05.10.2010 The document identifies the bioethical 3 problems and conflicts derived from ... 15.12.2016 The document is dedicated

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Page 1: S ETHICS, SCIENCE & SOCIETY, LISBON 10 /11 NOV. 2018 · 05.10.2010 The document identifies the bioethical 3 problems and conflicts derived from ... 15.12.2016 The document is dedicated

SYMPOSIA ETHICS, SCIENCE & SOCIETY, LISBON, 10TH /11TH NOV. 2018 Ethical aspects of the science and society dialogue.

María Casado, Ph.D

Full Professor of Philosophy of Law, Moral and Politics. Chairholder of the UNESCO Chair in

Bioethics at the University of Barcelona. Director of the Bioethics and Law Observatory.

Director of the Master in Bioethics and Law - University of Barcelona

www.bioeticayderecho.ub.edu

Page 2: S ETHICS, SCIENCE & SOCIETY, LISBON 10 /11 NOV. 2018 · 05.10.2010 The document identifies the bioethical 3 problems and conflicts derived from ... 15.12.2016 The document is dedicated

Document on the ethical aspects of the science and society dialogue

Symposia Ethics, Science & Society, Lisbon, Nov. 2018

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31.05.2018

A report by the Bioethics and Law Observatory (OBD) of the University of Barcelona analyses the ethical aspects of dialogue between science and society, and goes through some successful and failure cases of communication between the scientific community and citizens, and provides participating stakeholders with a series of recommendations.

Page 3: S ETHICS, SCIENCE & SOCIETY, LISBON 10 /11 NOV. 2018 · 05.10.2010 The document identifies the bioethical 3 problems and conflicts derived from ... 15.12.2016 The document is dedicated

Nanotechnology and global bioethics

Symposia Ethics, Science & Society, Lisbon, Nov. 2018

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05.10.2010

The document identifies the bioethical problems and conflicts derived from the risks of nanotechnology applications in the fields of biomedicine, environment and biosafety, as well as its consequences in terms of involvement of goods, values and rights, such as quality of life, equity, privacy and safety, and its ethical, social and legal implications, with the aim of guiding recommendations towards the caution, safety and responsibility of the agents involved in expert systems and citizens in general.

Page 4: S ETHICS, SCIENCE & SOCIETY, LISBON 10 /11 NOV. 2018 · 05.10.2010 The document identifies the bioethical 3 problems and conflicts derived from ... 15.12.2016 The document is dedicated

Document on bioethics and gene editing in humans

Symposia Ethics, Science & Society, Lisbon, Nov. 2018

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15.12.2016

The document is dedicated to human gene-editing, particularly focused on the CRISPR technique, which allows modifying in a simple and efficient way the gene pool and gives the chance to decide on the characteristics of our specie’s descendants.

Page 5: S ETHICS, SCIENCE & SOCIETY, LISBON 10 /11 NOV. 2018 · 05.10.2010 The document identifies the bioethical 3 problems and conflicts derived from ... 15.12.2016 The document is dedicated

Document on bioethics and Big Data: exploitation and commercialisation of user data in public health care

Symposia Ethics, Science & Society, Lisbon, Nov. 2018

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29.01.2015

The document analyses the dangers derived from the violation of privacy and confidentiality of personal data stored on health data bases. Data anonymity justifies commercialization, but the document proves that big data technologies allow having access to many restricted data.

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Document Collection in Open Access

Symposia Ethics, Science & Society, Lisbon, Nov. 2018

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www.bioeticayderecho.ub.edu/en/publications

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Symposia Ethics, Science & Society, Lisbon, Nov. 2018

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Symposia Ethics, Science & Society, Lisbon, Nov. 2018

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Symposia Ethics, Science & Society, Lisbon, Nov. 2018

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DUBDH

• ART. 18 Adopción de decisiones y tratamiento de las cuestiones bioéticas

– 1. Se debería promover el profesionalismo, la honestidad, la integridad y la

transparencia en la adopción de decisiones, en particular las declaraciones de todos los conflictos de interés y el aprovechamiento compartido de conocimientos

• Se debería procurar utilizar los mejores conocimientos y métodos científicos disponibles para tratar y examinar periódicamente las cuestiones de bioética.

– 2. Se debería entablar un diálogo permanente entre las personas y los profesionales interesados y la sociedad en su conjunto.

– 3. Se deberían promover las posibilidades de un debate público pluralista e informado, en el que se expresen todas las opiniones pertinentes.

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DUBDH

• ART. 23 Educación, formación e información en materia de bioética – 1. Para promover los principios enunciados en la presente Declaración y

entender mejor los problemas planteados en el plano de la ética por los adelantos de la ciencia y la tecnología, en particular para los jóvenes, los Estados deberían esforzarse no sólo por fomentar la educación y formación relativas a la bioética en todos los planos, sino también por estimular los programas de información y difusión de conocimientos sobre la bioética.

– 2. Los Estados deberían alentar a las organizaciones intergubernamentales internacionales y regionales, así como a las organizaciones no gubernamentales internacionales, regionales y nacionales, a que participen en esta tarea.

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DUBDH

• ART. 24 Cooperación internacional – 1. Los Estados deberían fomentar la difusión de información científica a

nivel internacional y estimular la libre circulación y el aprovechamiento compartido de los conocimientos científicos y tecnológicos.

– 2. En el contexto de la cooperación internacional, los Estados deberían promoverla cooperación científica y cultural y llegar a acuerdos bilaterales y multilaterales que permitan a los países en desarrollo crear las capacidades necesarias para participar en la creación y el intercambio de conocimientos científicos y de las correspondientes competencias técnicas, así como en el aprovechamiento compartido de sus beneficios.

– 3. Los Estados deberían respetar y fomentar la solidaridad entre ellos y deberían también promoverla con y entre individuos, familias, grupos y comunidades, en particular con los que son más vulnerables a causa de enfermedades, discapacidades u otros factores personales, sociales o ambientales, y con los que poseen recursos más limitados.

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UNESCO Recommendation on Science and Scientific Researchers, adopted at 39th General Conference,

November 2017

Symposia Ethics, Science & Society, Lisbon, Nov. 2018

“The Recommendation is addressed to all research institutes, individuals and scientific organizations engaged in, regulating and promoting science, as well as to anyone interested in the norms, policies, and ethics of science.”

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Annex II Recommendation on Science and Scientific Researchers

Symposia Ethics, Science & Society, Lisbon, Nov. 2018

Preamble I. Scope of application II. Scientific researchers in the context of national policy-

making III. The initial education and training of scientific researchers IV. Rights and responsibilities in research

The civic and ethical aspect of scientific research The international aspect of scientific research

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Annex II Recommendation on Science and Scientific Researchers

Symposia Ethics, Science & Society, Lisbon, Nov. 2018

V. Conditions for success on the part of scientific researchers Adequate career development prospects and facilities Lifelong learning Mobility Participation in the international scientific and technological community Protection of health; social security Performance appraisal Expression by publication Recognition Reasonable flexibility in the interpretation and application of texts setting out the

terms and conditions of employment of scientific researchers The advancement of their various interests by scientific researchers in association

VI. Utilization and exploitation of the present Recommendation VII. Final provision

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