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OPTIMIST FOR TYPE 1 DIABETES
March 2014 Happy Saint Patrick’s Day! Volume 1 Issue 5
RON GUSTAS TALKS ABOUT T1DOC
T1DOC: What is your connection to T1D? RG: I got involved with JDRF and T1D
programs after August of 2009 when our then three year old granddaughter Ellie Knox was diagnosed with T1D. We have supported her JDRF Walk Team, “Ellie’s Diabetes Busters” each year since raising more than $10,000 in each of the last couple years. T1DOC: What led you to become an Optimist? RG: I had several friends in the mid-1980’s
that were “Optimists” and joined at that time. Our three kids were in Denver Public Schools and I joined to support programs benefiting their schools and also projects that featured an “anti-drug use” message. T1DOC: What is your personal mission/vision as it
relates to T1DOC? RG: A tag line for “Optimists” is “Friend of Youth”. What better way to help youth and adults with T1D than grow the T1DOC as a focused service organization to help the T1D community in every way possible. Hopefully the T1DOC can encourage other Optimist clubs to adopt and/or support service projects benefiting kids with T1D. If our club is successful I hope it can be replicated in other Optimist Districts working in conjunction with JDRF and other T1D organizations. T1DOC: Please share with the club something most people don't know about you. RG: Among our six grandkids are three
young ladies that our other daughter Beth (not Ellie’s Mom) and her husband accepted into their family on the same day in September 2010 as foster kids. The sisters at that time were 2, 3, and 4 and were subsequently legally adopted on June 13, 2011. One of the three is at risk for T1D but so far has not been diagnosed.
IN THIS ISSUE: Interview Texting my Pancreas Social Mixed Insulin Study Coming Events ADA Camp Speakers Brain Bowl Summary Past Speakers Conference Report Cure for Type 1?? Optimist Letter
SOCIAL Our Bowling Social will take place at The Denver Athletic Club, 1325 Glenarm Place, Denver, CO 80204 on March 15th from 1:00-3:00 PM. The cost will be $5.00 per Adult and $3.00 per child. All bowling, shoes and balls are included, as well as pizza. This is a unique small bowling venue with only 8 lanes for bowling. It was the first bowling alley west of the Mississippi. The lanes have the special bumper for children and adults who need them. The social is for T1D families. The space is limited – PLEASE RSVP to Dick Cohen at [email protected] by March 1
OFFICERS FOR T1DOC
President Jeff Gartz Vice President David Cooper Vice President Richard Cohen Secretary Hannah Hoogenboom Treasurer Ron Gustas Meetings at Perkins-995 S Colorado Blvd Denver, CO 80222 Email news & pictures to [email protected] by March 20
BOARD OF DIRECTORS
Dan Thompson Aaron Knox
Karra Walker Tammy Miller-Davison
EVERYONE THAT IS INTERESTED IS
INVITED TO ATTEND OUR MEETINGS
If you have a suggestion for speaker or a
topic you would be interested in please call
Gary Bowman at 720-635-7122
MEETINGS ON THE 1ST AND 3RD WEDNESDAYS
COMING EVENTS
MAY 2-3: District 3rd Quarter Conference: Denver West-Marriott Hotel, Golden MAY 4: Optimist International Regional Leadership
Summit at Marriott Golden with O.I. President Ron Huxley
2014 Colfax Marathon–May 18, 2014 Join JDRF’s team for Denver’s springtime race!
The Colfax Marathon has a distance for everyone with seven races over two days in the Mile High City. The 26.2 mile Marathon runs through Denver’s iconic landmarks: Mile High Stadium (twice), Sloan’s Lake, City Park, Colfax Avenue – and so much more. The Colfax Half Marathon is the only race to run through Denver Zoo. Enjoy uniquely Colorado entertainment along the route. Celebrate lakeside in Denver’s City Park after the race. Race Options and Fundraising Minimums:
10-mile $500
Half-Marathon $500 Marathon $500 Relay $500 per team member Registration Fee is $100 for any entry
Here is the link to join the JDRF Team at the Colfax Marathon - http://team.jdrf.org/event/2014-colfax-marathon/#.UwZoY_t1lLM
A reminder for you to look at our Facebook page that Hannah created for T1DOC. Please "like" our page at: https://www.facebook.com/T1DOC ALSO
check for weather cancellations
HAPPY BIRTHDAY
Terri Cohen March 7 Andrea Ofiesh March 13 Cindy Pailet March 13 David Cooper March 17 Carolyn Hartwig March 28 Gina Gustas March 29 Aaron Knox March 30
Current Period Dues: Quarterly dues for the 3
month period from January 1st thru March 31, 2014 are $30 Please remit check payable to “Type 1 Diabetes Optimist Club” to Club Treasurer, Ron Gustas, 7813 S. Locust Ct., Centennial Co 80112.
MARCH SPEAKERS
March 5: Dr. Irene Schauer, on the research study to see if Type 2 pill can benefit Type 1
March 19: Becky Furuta is a diabetic and racer
for Team Novo Nordisk
APRIL SPEAKERS
April 2: Paramedic Kevin Coffey, on how diabetics are treated in an emergency
April 16: Dr. Jennifer Raymond on Adolescent Diabetic behavior
SPEAKERS Our February meeting was cancelled due to weather. Kevin Coffey will be at our April 2
nd meeting.
On February 19
th Dr. David Maahs from the Barbara Davis Center (BDC) presented
an update on the long-awaited Artificial Pancreas. Currently, we have all of the components necessary for an Artificial Pancreas (insulin pump, continuous glucose monitor, and a computer algorithm to control insulin dosing.) The challenge is to make these work in a safe and effective manner to improve glucose control and reduce patient burden. The first step of the Artificial Pancreas was approved in the US in 2013 (see Figure below). The BDC research team is working on step 2 (turning off insulin to prevent a low blood glucose before it happens) as well as overnight and daytime artificial pancreas control. Other researchers worldwide also are making great progress on this. As with any technology, it will continue to improve over time. The good news is that the first version of the artificial pancreas exists commercially and updated versions are on their way.
In addition, Dr Maahs briefly discussed two NIH sponsored research studies that have started recruitment at the BDC. One titled PERL ‘Preventing Early Renal Loss in Type 1 Diabetes’ in adults with T1D and kidney disease and the other FL3X “Flexible Lifestyles Empowering Change” in adolescents with T1D. Contact information for anyone interested is listed below.
New NIH Research Studies
• Vicki Gage 303-724-8367
• Start March ’14
• Inclusion:
• Age 18-60 years
• GFR 45-99 ml/min/1.73m2
• Microalbuminuria +
• Serum uric acid > 4.5 mg/dl
• Franziska Bishop 303-724-6764
• Start May ‘14
• Inclusion:
• Age 13-16 years
• T1D duration > 1 year
• A1c 8-13%
Dr. Maahs is on our Youtube page
CURE FOR DIABETICS? Andrea Ofiesh sent this link to Ben-Gurion University researcher may have a cure for Type 1 diabetes. If you can’t open the link I can send it to
you if you email me I’ll also post the link on the email page.
http://www.jns.org/latest-articles/2014/2/19/ben-gurion-university-researcher-
may-have-a-cure-for-type-1-diabetes#.Uwd5nE-Ybct
Dr. Maahs sent this note about the study. “Yes, Peter Gottlieb was the investigator on this and unfortunately the medication had a beneficial effect in only about 1/3 of patients. He has been fielding a lot of emails on this. It is far from a 'miracle' cure, unfortunately, but may have a role to help some people”.
Paul Simon Chief Communicator [email protected] Sharper Content “You are your message”
Writing, editing, webinars, and more 4123 S. Newport Way ww.sharpercontent .com
Denver, CO 80237 303-300-9940
www.linkedin .com/in/paulhsimon
D. F. SMITH CONSTRUCTION
BUILDER.REMODELER & EPA CERTIFIED LIC. & INS 20 YEARS EXPERIENCE
720.329.3695 FAX 720.283.0612 2572 W. ROW LAND AVE LITTLETON. CO. 80120 Douglas***[email protected]
COMPUTER INSRUCTER Pat McALister
Phone 303-756-6691 Email [email protected]
David A. Cooper, AAMS® Financial Advisor
Edward Jones MAKING SENSE OF INVESTING
Piney Creek Square 15436 East Orchard Road Centennial, CO 80016
Bus. (303) 693-7037 Fax 888-603-6315 [email protected]
www.edwardjones.com
Jeff Gartz JDRF
Improving JDRF Speakers Bureau Lives Specializing in T1D Curing
Type l Diabetes
Rocky Mountain Chapter 8055 E. Tuffs Avenue, Suite 770 Denver, CO 80237
[email protected] www.jdrfrockymountain.org 303.842.6680 Phone: 303.770.2873
Email me if you want to add your card [email protected]
ADA CAMPTEXTING MY PANCREAS
Read this amazing post by Kim Vlasnik at
Texting My Pancreas. She shares a huge leap forward in diabetes management that could make a difference in all of our lives. “Wouldn't life be wonderful if we could choose whatever medical devices work best for us and our diabetes? Maybe a T-Slim pump, a Dexcom CGM and a Medtronic meter… and have all of that valuable information go to one platform. What if that platform enables you to use any number of apps, all of which were pulling data from all of your devices? What If you could log into the cloud and see your child’s CGM graph, in real time—while they’re away from home. And send all this information to your educator and doctor without having to go in for a visit.” http://www.textingmypancreas.com/2014/02/we-are-not-waiting-tidepoolasante.html MIXING INSULIN
The earliest date I can find for Lantus is 2002. In 2006 the Doctors at the Barbara Davis Center did a study to see the effects of mixing Lantus with Novalog or Humalog insulin. After 6 months the people in the study had approximately the same HA1c’s as they did before they mixed the insulin. When Dr. Peter Chase told me about the study – I had a HA1c taken and mixed my insulin for 5 months. At that time I had another HA1c and it the result was the same. I’ve mixed my insulin since that time. We found out early on that Lantus would not last for me for 24 hours, so I take Lantus morning and night. There have been many other studies of the same kind and I’ve listed a few below. Whenever I went into the hospital I’d have to fight with the pharmacy to mix my insulin. Now my doctors tell all care-givers to let me do it. These are just a few of the many studies I found with the conclusion – you can mix insulin.
The 2014 American Diabetes Association Camp
Colorado will take place June 29-July 4, hosting over 260 children with type 1 diabetes between the ages of 8-17 at Eagle Lake Camp in beautif Woodland Park, Colorado. Registration is opening March 17. At Camp Colorado we believe that each child will take something away that is specific to their own stage of development. For more information on Camp Colorado please visit www.diabetes.org/adacampcolorado or contact Emily Fay-Enriquez at 720-855-1102 ext. 7015 or [email protected]! T1DOC is working to raise funds to help underwrite camp scholarships
JDRF GAYLA SILENT ACTION Here’s a great way to support type 1 diabetes (T1D) research - help us procure auction items for the 2014 JDRF Dream Gala on Saturday, May 17 at the Seawell Grand Ballroom. Ask your friends, family, vendors and service providers to make a donation. All items are great but wine and spirits, sports memorabilia and experiences do particularly well. For more information or to make a donation, please contact Ruth Hendren at [email protected] or 303-209-7718 or visit our website at rockymountain.jdrf.org/events/dreamgala/
A Baylor Study in 2004 SOURCE: Journal of Pediatrics, April 2006 Diabetes Care August, 2010 Pediatric Diabetes, May, 2012
Pat McAlister
COMMITTEES
COMMITTEES We are asking all of our members to please choose a committee to serve on. Gary Bowman is our Program chair, Dick Cohen is our Social Chair. Others are Membership and Fundraising. Please let Jeff or the chair know what your interest is OR add another committee you would like to see. This is very important to maintaining our club.
BRAIN BOWL SUMMARY One of the most popular programs among Optimists in the Colorado-Wyoming District is the annual Brain Bowl. It’s actually a series of four events that involves more than 1,200 middle school students and some 35 Optimist Clubs. The Brain Bowl consists of three regional tournaments and then a Championship that pits the top six teams in 6th, 7th and 8th grades from the three regional tournaments against each other. The championship this year is at Hamilton Middle School on Saturday, Feb. 22. The Optimist Brain Bowl is a team academic competition in which the kids answer questions based on speed and accuracy related to math, science, history, computers, literature, and common sense. It’s like “Jeopardy” with teams. Optimists, family members and friends are the volunteers who put on the Brain Bowl, with more than 150 volunteers needed at the two largest events – Central & North. This year North was held Jan. 11 at Standley Lake High School in Westminster and Central was Feb. 1 at Heritage High School in Littleton. The South tournament was Feb. 8 at Fort Carson Middle School in Colorado Springs. Members of T1DOC joined with those from the Front Range American Cancer Society Optimist Club to run the concessions at the North Event, raising $740 for T1DOC and showing how cooperation is a fun and rewarding byproduct of being involved in Optimism. The Brain Bowl was started more than 30 years ago by the then-Buckingham Optimist Club in Aurora. After it faltered, it was taken over and revived by the Monaco South Optimist Club, co-sponsor of T1DOC, and it is governed by a district-wide organizing committee. The Brain Bowl is funded by team fees and by generous contributions from Optimist Clubs throughout the district. You can read all about the Brain Bowl at www.optimistbrainbowl.org
Paul Simon
2ND QUARTER CONFERENCE
Feb 14, 2014 saw the start of the conference with the Executive Committee meeting at 4:30pm in the Pinon Room at the Stanley Hotel in Estes Park. When that business was over we all went to The Other Side restaurant for a leisurely dinner. Returning to the hotel and the Hospitality Suite we spent the rest of the evening reminiscing with old friends from around the district.
Saturday saw the rest of the attendees starting to troop in for the 9:00am Board of Directors Business Meeting led by Governor Bob Hartwig. All of our 60 Presidents, or their delegates, make up the Board. One of the items voted on, by these delegates, was the appointment of the 2014–2015 District Secretary/Treasurer proposed by our Governor Elect, Abigail Nicholas. Greg Young was appointed to that position for the next administration.
Steve Skodak, Executive Director of the OI Foundation, led a very well received morning session on “Using Social Media”. One of the major points he made was that to obtain & keep members each club really needs a web site. Nicole Powell did her part by helping quite a few of the attending clubs set up Facebook for their clubs.
At our Recognition Luncheon, Mayor Bill Pinkham of Estes Park told us of the remarkable effort the townspeople put forth to recover from the thousand year flood in September. District Chair Lois Gallaway gave out Achievement and Awards for this last quarter to members that had been nominated by their clubs. OI Foundation awards were handed out by our previous Governors and District Foundation Representatives, Donna Priester and Phil Perington. Several clubs had earned and received Honor Club and Distinguished Club status. Pins and banner patches were received by them, including T1DOC as a Distinguished club, and Lt Gov. Jeanette Thompson as a Distinguished Lt Gov. Phil also collected donations for the 2013-2014 OI Foundation fund drive.
The new Club Scholarship Program was announced by Charlie Nuemann. This program was set up to provide additional funds for a club officer or member to attend the quarterly meetings. The complete application information is on line at www.optimistcowy.org. Charlie also had requested baskets from the clubs with Colorado products & wines for a drawing to be held at dinner during the conference. She received 17 very decorative baskets for this drawing. Half of the funds raised in this drawing go to the new club scholarship program and the other half help cover some of the extras at the conferences.
Donna Priester held a Leadership / PGI session on Saturday afternoon. Those attending received a certificate and their PGI book was signed off on a self-development section of one of the ten levels. There are four skills development modules to complete in the PGI Passport book. Those who did not attend the training sessions went on the Snowy Peaks Winery Tour with Kathy Sullivan. About a dozen participated and I’m told they had a sipping good time. The “Tell Our Story Room” was open Friday and Saturday with information on the District “Kid” activities of: Essay, Oratorical and CCDHH contests; Brain Bowl; Tri-Star Basketball; Golf; CCC and others. Each area had someone to help you with forms and any other information you could need. CCC’s area had information on their Duck Pluck that brings in donations for Johns Hopkins research on Childhood Cancer. The Duck Pluck final competition will be held at the 3rd Quarter Conference in Golden along with our Scholarship Saturday where five $2,500.00 scholarships are awarded. District CCC Chair, Patty Hasty ([email protected]) the club Presidents and the sponsoring club FRACSOC have tickets available. They can be mailed in to reach Patty by May 1st or brought to the Conference NLT 8am May 3rd.
JOOI programs (new & still going), New Club Development and the pending 2nd Super Zone meeting, tentatively set for June 7th, were among the discussions this weekend.
Saturday’s Dinner had entertainment by the Major 13 Jazz Group who sang while we ate. Their director and keyboardist is Alan Denney, the music director of Estes Park High School. They were a remarkably talented young group. Steve Skodak spoke after dinner about all of the programs that the Foundation supports and thanked our district for all we do in donating toward the scholarships each year. Keep those Dime-A-Day donations coming!
Back to the Hospitality Suite for music of another variety – “The Glass Half Full” played ’til the clock hit the witching hour. Dancers and listeners filled the condo.
Sunday morning we had a short ecumenical service, breakfast, closing comments to pull the weekend together, farewells and then off to home - taking with us the beginnings of new found ideas, energy and enthusiasm to bring to our clubs.
Carolyn Hartwig
IF YOU KNOW ANUONE THAT MIGHT BE INTERESTED IN JOINING
US, PLEASE GIVE THEM THIS SHEET
WANT TO HELP KIDS WITH TYPE 1
DIABETES?
Then please read on about the new
“Type 1 Diabetes Optimist Club” (T1DOC).
Mission of the T1DOC?
The T1DOC is a newly formed Optimist Club organized to provide
support to JDRF, and the entire T1 community to improve the
lives of those with T1D.
Purpose of an Optimist Club?
Optimist Clubs are dedicated to "Bringing out the Best in Kids" and do their part through community service programs. Since each Club is autonomous and run by their members, Optimists have the unique flexibility to serve the youth and community of their area in any way they see fit.
What Does the T1DOC Do To Help Those with T1D?
Assist in providing educational outreach and awareness to school communities.
Help raise research funds seeking a T1 cure and improved treatment options.
Raise scholarship funds to allow T1D kids to attend special diabetes camps.
Establish a speaker’s bureau to educate about T1D and JDRF.
Provide a cadre of motivated volunteers to assist JDRF and other T1 organizations.
Whatever our creativity develops to provide help to the T1D community.
How Does the T1DOC Operate and What are the Costs?
Meetings are held at 6:30 P.M. on the 1st and 3rd Wednesday of each month at a central Metro location normally with a speaker program.
Projects are scheduled between meetings to accomplish program goals.
There is a nominal one-time $35 fee when joining the T1DOC.
Club dues are currently $10 or less per month to fund operating costs.
Anyone with an interest in helping the T1 community is welcome.
How Do I Get More Information About the T1DOC?
To get more information about the T1DOC and its goals please contact any of the following-
Jeff Gartz, [email protected] 303-987-8224
David Cooper, [email protected] 720-621-2739
Dick Cohen, [email protected] 303-320-1767
Ron Gustas, [email protected] 303-770-9640
Thanks for your interest in helping improve the lives of those with T1D
