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Risk & Safety The Limits of Choice. Mark Peterson April 12, 2013 For the Minnesota Brain Injury Alliance. The Dilemma of Choice. Too much risk Get hurt Lost property Die …. Too much safety Stifled spirit Limited options Loss of rights …. Mark Peterson [email protected]. - PowerPoint PPT Presentation
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Risk & SafetyThe Limits of Choice
Mark PetersonApril 12, 2013
For the Minnesota Brain Injury Alliance
The Dilemma of Choice
• Too much risk• Get hurt• Lost property• Die• …
• Too much safety– Stifled spirit– Limited options– Loss of rights– …
Mark [email protected]
When Choice is Limitedfor Jim & Jenna
• Where I want to live• With whom I want to live• Where I want to work• Where I want to go• How tidy a housekeeper I want to be/or not• How I spend my money• …• …
Mark [email protected]
The Dilemma of Choicefor the State, for Providers, for Parents
• Too much risk– Litigation– The Headline– Concern for Jim/Jenna– …– …
• Too much safety– Increased cost– …– …
Mark [email protected]
Points of View
• Rights
– My choice– Risk
• Benevolence
– Care for– Protect– Safety
Mark [email protected]
An Evolving System
• We’ve come a long way• Growth in choice• And, there are obstacles to making such an
assertion normative
Mark [email protected]
OBSTACLES
• IN LOCO PARENTIS• CONTROL• SAFETY CONCERN• “________ KNOWS BEST”• LEGAL LIABILITY CONCERN• THE HEADLINE• “WE’RE MAKING GRADUAL PROGRESS, REALLY.”• “WHEN YOU GET PUBLIC SERVICES, THERE ARE
LIMITATIONS. WE HAVE RULES, AFTER ALL.”Mark [email protected]
CURENT VALUE PROPOSITIONS
• FROM REFORM 2020• “BETTER INFORMED INDIVIDUAL DECISION-MAKING
• “INDIVIDUALS WILL INCREASLINGLY DIRECT THEIR OWN SERVICES.”
• “REFORM IN PHASES”
Mark [email protected]
OTHER VALUE PROPOSITIONS
• FROM LSS: Choice and achievement of personal goals (should be) the driving forces for evaluating plans, and (should be) the values that drive licensing functions…”
• My Life—My Choices– “For too long, it’s been: My Life—Your Choices”
Mark [email protected]
No PityPeople With Disabilities Forging a New Civil
Rights Movement
• “Our society automatically underestimates the capabilities of people with disabilities.”
• “Self-advocacy is the new rights movement of…disabled people rebelling against being…deprived of choices, treated as eternal children and thought to lead lesser lives.”
Mark [email protected]
No Pity
• “So people with retardation often need help in making the choices and judgments that constitute their own acts of self-assertion.”
• “Ultimately, self-advocacy comes down to the issue that has always been at the heart of how we deal with people with retardation: how much protection do they need/ Is protection necessarily good, compassionate, and progressive?”
Mark [email protected]
No Pity
• “There is a delicate blend of success and failure in any person’s life, but people with retardation are rarely trusted to handle either,” complains one self-advocate.
Mark [email protected]
Doing Good The Limits of Benevolence
• Benevolence:– The exercise of power in disguise– The better-off doing for the worse-off
Power“Power is the natural antagonist of liberty…”
– Willard Gaylin, Glasser, et.al. 1978
Mark [email protected]
CQL Research Findings• “Having greater choice does not affect an individual’s
safety and only modestly affects an individual’s freedom from abuse and neglect.”
• When “people choose where and with whom they live”, and “people choose where they work”, and “people choose services”, three times more likely to have the outcome of social roles also present.
• “Maintaining close ties with natural support systems and having intimate relationships and friends may be the best predictor of personal safety and freedom from abuse and neglect.”
Mark [email protected]
May your first accident be a small one
• How long the tail of that event?• How to judge the risk of risk?• Who gets to decide?
Mark [email protected]
