• It occurs in approximately 1 of every 20,000 live births.

• RB can sometimes be detected by the presence of a white, rather than a red reflection in the pupils of affected children. This reflection, medically known as leukocoria is a result of light bouncing off the RB tumour. Parents have sometimes described this as a "cat's eye".

• 60% of children have tumours in only one eye – unilateral retinoblastoma.

• 40% of children have tumours in both eyes – bilateral retinoblastoma.

• 90% of children diagnosed with RB have no family history of the disease.

• RB can range dramatically in severity, with no two cases being the same.

• Early detection and modern medical care has increased the survival rate for children with RB to 96%

• Retinoblastoma (RB) is a rare form of eye cancer affecting the retina of infants and young children.

• Ongoing research and new treatment developments are allowing increasing number of affected eyesto be saved and are maximizing visual outcomes and quality of life

RB Facts