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Build up a Community through anElectronic newsletter….
OrphaNews Europe Opt-in service: registration on
www.rdtf.org and Orpha.net 8,500 registered readers from 32
countries Started in June 05 as a monthly
publication Now publish every two weeks High satisfaction of the readership
OrphaNews Europe topics of interest European News
– European Policy– from EC funded projects
News from Member States initiatives Scientific news:
– new RD– New genes– Diagnostic and therapeutic break through
Announcements– Major publications /reports– Events/ congresses/workshops…– Call for collaboration / enrollment– Job opportunities
Active communication at meetings…First semester 2007
WHO steering group meeting, 17 April 07, Tokyo, Japan
CORD meeting, 25 April 07, Ottawa, Canada
ICORD meeting, 3 May 07, Paris, France
Ministry of Health, 5 June 07, Budapest, Hungary
